NPR

Crowdfunding Drives Funds And Attention Toward Questionable Medical Treatments

Many Americans turn to crowdfunding to pay for medical care. But sometimes the money covers unproven treatments. Should crowdfunding companies be held accountable for spreading false hopes?
Source: Sara Wong for NPR

For deep water divers who decompress too quickly, doctors may advise they lie inside a pressurized glass tube and inhale pure oxygen to treat painful symptoms known as "the bends." The oxygen boost is thought to reduce swelling and prevent infection.

The treatment, known as hyperbaric oxygen therapy or HBOT, is approved for a few other conditions, like carbon monoxide poisoning and a form of gangrene. But some clinics around the country offer it for numerous other health problems, including migraine headaches, depression, strokes, and even brain injuries. And HBOT hasn't been proven to work for most of these, according to the FDA.

That hasn't stopped many people from fundraising for the treatment — and many other unproven or alternative treatments — on crowdfunding platforms like GoFundMe and YouCaring (GoFundMe bought YouCaring in April 2018).

In two studies published recently, researchers ran systematic searches through crowdfunding sites to see just how pervasive this issue is. They identified thousands of campaigns raising millions of dollars for medical treatments that are not backed by science.

"It's wasteful both for the patient and the donor,, a brain injury specialist in Atlanta and the author of one of the studies.

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