A Single Swim
()
About this ebook
On August 13th, 2011, sixteen-year-old Courtney Nash passed away after contracting Naegleria fowleri, a brain-eating amoeba that lurks in warm waters. This is her story.
A Single Swim follows Courtney's life and death, while taking a closer look into an amoebic infection very few people ever hear about - until it's too late. Tracing as far back as 1960s, Naegleria fowleri and the resulting infection of this parasite have taken more than a dozen lives, with a fatality rate of nearly 100%.
Through an examination of Courtney's case along with stories of other victims across the United States, A Single Swim offers a glimpse into our waters' rare silent killer. From ecology to symptoms, hospital care to awareness, find out what can happen ... after a single swim.
Kristina Circelli
Kristina Circelli is the author of several fiction novels, including The Helping Hands series, The Whisper Legacy series, "The Never," and "The SOur Orange Derby." A descendent of the Cherokee nation, Circelli holds both a Bachelor of Arts and Master of Arts in English from the University of North Florida.Her Whisper Legacy series is steeped in the spoken narratives of Native American lore, and is at once a gripping story of a father's love and his search for redemption as well as a written record of a Nation's belief system. Part adventure, part myth, and altogether riveting, this series from Kristina Circelli signifies the emergence of an important voice in Native American literature.From her extraordinary ability to vividly create heretofore-unknown worlds to her engaging prose, Circelli's novels position her as one of the freshest new voices in all of contemporary American fiction. She currently lives in Florida and works as an author, book editor, copywriter, and creative writing professor.
Read more from Kristina Circelli
Fragile Creatures Rating: 5 out of 5 stars5/5Beyond the Western Sun Rating: 0 out of 5 stars0 ratingsInto the Shadow Realm Rating: 0 out of 5 stars0 ratingsDamsel Not Rating: 0 out of 5 stars0 ratingsIn Sickness Rating: 0 out of 5 stars0 ratingsLie the Liar Rating: 0 out of 5 stars0 ratingsFollow Me Home Rating: 0 out of 5 stars0 ratingsAftermorrow Rating: 0 out of 5 stars0 ratingsUnbroken Beings Rating: 0 out of 5 stars0 ratingsThe Silent Sounds of Chaos Rating: 0 out of 5 stars0 ratingsWalk the Red Road Rating: 0 out of 5 stars0 ratingsThe House of Gabriel Rating: 0 out of 5 stars0 ratingsThe Never Rating: 0 out of 5 stars0 ratingsThe City Will Crumble Rating: 0 out of 5 stars0 ratingsAvenge the Forgotten Rating: 0 out of 5 stars0 ratingsThe Other Side of Again Rating: 0 out of 5 stars0 ratings
Related to A Single Swim
Related ebooks
A Little Touch of Cancer and How It Made Me Well Rating: 0 out of 5 stars0 ratingsThrough the Eyes of the Heart: Stories of Love and Loss Rating: 0 out of 5 stars0 ratingsUNLOCKING THE POWER OF FATHERHOOD Rating: 0 out of 5 stars0 ratingsWalking on the Wind: Cherokee Teachings for Harmony and Balance Rating: 4 out of 5 stars4/5A Cure for Emma: One Mother's Journey to Oz Rating: 0 out of 5 stars0 ratingsStepping-Stones ~ Following a Pathway to the End of Life Rating: 0 out of 5 stars0 ratingsGrateful Guilt: Living in the Shadow of My Heart Rating: 0 out of 5 stars0 ratings(Mis)carriage: A Mother's Story of Why Pregnancy Loss Matters Rating: 0 out of 5 stars0 ratingsUnstoppable: Forging the Path to Motherhood in the Early Days of IVF Rating: 0 out of 5 stars0 ratingsGood Morning Beautiful: Winning the battle over seizures Rating: 0 out of 5 stars0 ratingsBreast Cancer: A Nurse's Journey from Diagnosis Through Reconstruction Rating: 0 out of 5 stars0 ratingsShe's Not Herself Rating: 5 out of 5 stars5/5Paperdolls & Cowboy Boots: The Original Paperdolls: Healing From Sexual Abuse in Mormon Neighborhoods Rating: 0 out of 5 stars0 ratingsThe Miracle of Hospice: The Personal Journey of a Hospice Nurse Rating: 0 out of 5 stars0 ratingsCaring for Mother: A Daughter's Long Goodbye Rating: 4 out of 5 stars4/5Journal of a Black Queer Nurse Rating: 0 out of 5 stars0 ratingsFellowship of the Snow Leopards: The Journey Begins Rating: 0 out of 5 stars0 ratingsPeriod: Twelve Voices Tell the Bloody Truth Rating: 0 out of 5 stars0 ratingsBeyond Knowing: Mysteries and Messages of Death and Life from a Forensic Pathologist Rating: 4 out of 5 stars4/5I Cried Until I Laughed: Now Stop the World, I’M Getting Back On! Rating: 0 out of 5 stars0 ratingsThe Continuing Ripples of Living Beyond Suicide: Dedicated to Those Who Have Survived Suicide Rating: 5 out of 5 stars5/5Visits From Heaven Rating: 0 out of 5 stars0 ratingsHow I Discovered My Mother Was a Goddess: A Daughter's Story Rating: 0 out of 5 stars0 ratingsA Free Spirit Rating: 0 out of 5 stars0 ratingsI'm Not Dead, I'm Different: Kids in Spirit Teach Us About Living a Better Life on Earth Rating: 3 out of 5 stars3/5Office Upstairs: A Doctor's Journey Rating: 4 out of 5 stars4/5Awake Beloved And Arise: Transforming Suffering Into Strength Rating: 0 out of 5 stars0 ratingsLaugh to Death: My Rx for Dying Well With ALS Rating: 0 out of 5 stars0 ratingsA Life Worthwhile: No Life is Ordinary Rating: 0 out of 5 stars0 ratingsMary Magdalene, Shaman: Awakening to the Indigenous Christian Soul Rating: 0 out of 5 stars0 ratings
Social Science For You
A People's History of the United States Rating: 4 out of 5 stars4/5All About Love: New Visions Rating: 4 out of 5 stars4/5Men Explain Things to Me Rating: 4 out of 5 stars4/5Just Mercy: a story of justice and redemption Rating: 5 out of 5 stars5/5The Art of Witty Banter: Be Clever, Quick, & Magnetic Rating: 4 out of 5 stars4/5Come As You Are: Revised and Updated: The Surprising New Science That Will Transform Your Sex Life Rating: 4 out of 5 stars4/5Prisoners of Geography: Ten Maps That Explain Everything About the World Rating: 4 out of 5 stars4/5Dumbing Us Down - 25th Anniversary Edition: The Hidden Curriculum of Compulsory Schooling Rating: 4 out of 5 stars4/5The Fourth Turning Is Here: What the Seasons of History Tell Us about How and When This Crisis Will End Rating: 4 out of 5 stars4/5The Denial of Death Rating: 4 out of 5 stars4/5The Like Switch: An Ex-FBI Agent's Guide to Influencing, Attracting, and Winning People Over Rating: 4 out of 5 stars4/5Verbal Judo, Second Edition: The Gentle Art of Persuasion Rating: 4 out of 5 stars4/5Close Encounters with Addiction Rating: 5 out of 5 stars5/5The Sun Does Shine: How I Found Life and Freedom on Death Row (Oprah's Book Club Selection) Rating: 4 out of 5 stars4/5You're Not Listening: What You're Missing and Why It Matters Rating: 4 out of 5 stars4/5Living Resistance: An Indigenous Vision for Seeking Wholeness Every Day Rating: 5 out of 5 stars5/5The Human Condition Rating: 4 out of 5 stars4/5My Secret Garden: Women's Sexual Fantasies Rating: 4 out of 5 stars4/5Homicide: A Year on the Killing Streets Rating: 4 out of 5 stars4/5Nickel and Dimed: On (Not) Getting By in America Rating: 4 out of 5 stars4/5
Reviews for A Single Swim
0 ratings0 reviews
Book preview
A Single Swim - Kristina Circelli
A SINGLE SWIM
In Collaboration with Swim Above Water
and the Courtney Nash Amoeba Awareness Foundation Inc.
by Kristina Circelli
For Courtney
And for Those Who Lost Their Lives, and the Families That Survive Them
"When I count my blessings, I count my horse twice." - Courtney Nash
© 2014 by Kristina Circelli
Editing by Juli’s Elite Editing
Formatting by Elizabeth Sharp
Cover Art by Sarah Hansen/Okay Creations
* * * * * * * * *
Smashwords Edition
* * * * * * * * *
All rights reserved. No part of this book may be reproduced or utilized in any form, or stored in a retrieval system or transmitted in any form, or by any other means, without the written permission of the author, except by a reviewer for quoting or brief passage to be printed in a newspaper, magazine, or journal.
This book is a combination of facts about Courtney Nash’s life and other stories as told by family members, as well as scientific input by medical specialists. Some names have been changed or shortened by request, or to protect the individual, as indicated by a * symbol.
First Edition
1 2 3 4 5 6 7 8 9 10
From a Mother’s Memory
A Poem by P.J. Nash-Ryder
As of right now my life is in God’s hands.
- Courtney Nash
I’d like to tell you a little story about this sixteen-year-old girl,
Who has changed the world.
Her name was Courtney Jean.
She was sweet; she was caring, always lending a hand.
She loved her brother, her horses; she was a big Taylor Swift fan.
She loved to fish and play in the mud.
She had a big heart and gave her love.
She thought of others so they could live.
Her organs she donated - what more can you give.
She gave of herself so others could live.
I now sit here at the river, out at Hatbill Park,
Knowing that you are still here,
Way way up high.
There you are, the angel in the sky.
Still watching us as we grow,
To make sure that we all know,
God has taken you home to a safe and happy place.
No worries, no fear,
For the Lord says he is near.
Be happy for me.
I am finally free.
We will be together again one day,
And you can show us the way.
This story will continue as we keep in our hearts,
The example of one life.
One sixteen-year-old girl with one big heart.
-P.J. Nash-Ryder
Table of Contents
Foreword
Chapter 1: An Introduction
A Girl Named Courtney
Chapter 2: An Overview
PAM
Not All Victims Are Children
Chapter 3: A Change in Climate
An Accidental Host
Chapter 4: The History of PAM
A Question of Rarity
Chapter 5: Testing Waters
A Silent Killer
Symptoms of PAM
Chapter 6: The Spread
Reopening the Case
Chapter 7: Valiant Efforts
Waylon’s Case
Children Vs. Adults/Immune System
Chapter 8: Prevention
Make Ourselves Aware
Chapter 9: Testing Methods
Meeting Dalton
Children being Children
Chapter 10: A Step toward Survival
Living on through Others
Organ Donation Risks
Chapter 11: Make a Change
Chapter 12: Families Left Behind
Swim Above Water
Chapter 13: Changing Lives
Broadening Our Knowledge
In Memory Of
A Message for Courtney
A Special Thanks
Sources
About the Author
Foreword
Two years ago, I received a phone call that a cousin of mine was ill. Though we weren’t close, hers was a name I’d heard often, spoken through the family grapevine as words often pass. I knew her family, knew how tight knit they were, closely resembling my own immediate family.
That phone call spoke as much of my cousin as it did her family. My mother told me the story, as much as anyone knew at that time ‒‒ Courtney was in the hospital with an illness no one could identify, and it wasn’t looking good. I just wanted to let you know,
I remember my mom telling me, so you could keep Courtney and P.J. [her mom] in your thoughts.
Only a couple days later Courtney passed away, and it was then that we learned about the deadly amoeba that had taken her life ‒‒ an amoeba none of us had ever heard about, despite growing up and living in an area that allows for a perfect environmental host. In the days and months that followed Courtney’s death, we learned more about a silent killer that lurked around us our entire lives, never having known about the brain-eating parasite that could have taken any one of our lives on any given day.
Later, P.J., Courtney’s mother, would start a foundation dedicated to her daughter and to raising awareness to a single-cell killer that has been taking lives since the 1960s ‒‒ perhaps even earlier, though these are the earliest on medical record. Personally, I kept up with P.J.’s foundation and many benefits via Facebook and word of mouth, admiring and appreciating the way she kept her daughter’s memory alive in such a positive way.
When the topic of writing a book about Courtney was first brought up (by someone not involved with the foundation), I shied away from the idea, worried I would not be able to do this beautiful teenager justice. A fiction writer through and through, I feared that attempting a true story rooted in such scientific fact would be beyond my capabilities. But, the more I watched P.J. honor her daughter, the more I wanted to honor P.J., and everything she found the strength to do in the wake of Courtney’s passing.
A Single Swim began as a tribute to Courtney, to tell her story and highlight P.J.’s awareness organization. Throughout the course of researching the amoeba and writing the book, it became much more. In addition to working with the Courtney Nash Amoeba Awareness Foundation in Florida, I also met up with the members of Minnesota’s Swim Above Water, all of whom shared their stories with me and gave me greater insight into the devastating effects the amoeba not only has on its victims, but on the families left behind.
One by one I heard the stories from parents who lost children, wives who lost husbands, families who lost a brother or son, and one by one I realized that A Single Swim was no longer about one person or one death. Instead, it became a book about anyone, everyone, who has ever swam in a lake, water skied in the river, slid down a ride at a local water park. It no longer mattered that I wasn’t a scientist or even a nonfiction author. All that mattered was that I told their stories, that I told them well, and that I helped these people raise awareness.
A Single Swim is a testament to all of the victims of Naegleria fowleri, to all of the families left behind, to everyone who has dedicated their lives to raising awareness, and to the medical and scientific professionals who took the time to share their knowledge and experiences.
To this end, I want to thank everyone who has been a part of this journey.
First and foremost, I want to thank P.J. Nash-Ryder for allowing me the opportunity to write A Single Swim. I brought the idea to her before