Katie Keegan Ivy Tech Community Campus 1 ANNOTATED BIBLIOGRAPHY 1. Kids ealth !rom "emours # $o%n Syndrome & http'(()idshealth.org()id(health*problems(birth*de!ect(do%n*syndrome.html &This %ebsite is part o! the Kids ealth %eb pages. It %ould be a good site !or parents to loo) at %ith their children %ho may have +uestions about $o%n syndrome, %hether it be !rom ma)ing their o%n observations at school or in public, or perhaps i! they have a little brother or sister %ith $o%n Syndrome. It gives e-amples o! physical characteristics as %ell as health problems. It also e-plains %hat causes $o%n syndrome. .. Autism Society' Improving the /ives o! All A!!ected by Autism & http'((%%%.autism&society.org( & I !ound that this %ebsite %ould be very help!ul !or a %ide range o! people. It has speci!ic lin)s !or those that have an autistic !amily member, those that are on the spectrum, those that %ant to be an advocate, and those that %ant to %or) %ith this disorder pro!essionally. 0. Par)inson1s $isease 2oundation & http'((%%%.pd!.org(en(inde- &There %as a lot o! good in!ormation on this %ebsite. It had lin)s telling you ho% you can get involved, in!ormation about the disease itsel!, and it even had in!ormation about coping as %ell as helping )ids cope. I !eel that this %ebsite %ould bene!it a lot o! people. The !irst thing that comes to mind is maybe somebody %ho has recently been diagnosed or has a loved one that has been diagnosed. This gives a lot o! use!ul yet basic )no%ledge. 3. Kids ealth !rom "emours # Tay&Sachs $isease & http'(()idshealth.org(parent(medical(genetic(tay*sachs.html 2 ANNOTATED BIBLIOGRAPHY & Similar to the Kids ealth %ebsite on $o%n syndrome, the one on Tay&Sachs disease %ould be help!ul !or parents e-plaining the disease to younger children. I also thin) it %ould be use!ul !or older )ids as it puts things in a %ay that is easy !or them to understand. It even has a button to clic) on to listen about the disease. 4. Breast Cancer & http'((%%%.breastcancer.org( & This site is literally !ull o! in!ormation. There are so many lin)s and options to clic). It covers just about anything you %ould be curious about. I %ouldn1t say this site %ould be especially use!ul !or younger children. Another thing I enjoy about this %ebsite is that is has a discussion board. This %ould be %onder!ul !or people %ith cancer or those that have a loved one going through cancer. "ot everybody is com!ortable opening up and tal)ing about everything %ith !riends and !amily but behind the computer screen it might be a little easier !or some. 5. Sic)le Cell $isease Association o! America, Inc. & http'((%%%.sic)lecelldisease.org( & The S.C.$.A.A. site %as not as help!ul as some o! the other sites that I came across. I !ound it a little cluttered and although there is a menu on the le!t, the main part o! the page seems disorgani6ed and messy. This might be a good %ebsite !or somebody %ho is loo)ing into a !undraiser or donations !or Sic)le Cell $isease. 7. Turner Syndrome Society o! the 8nited States & http'((%%%.turnersyndrome.org( & I !ound that this %ebsite %as easy to guide through. The lin)s %ere very help!ul. Some sites can have so many lin)s that it begins to !eel over%helming and cro%ded. I don1t 3 ANNOTATED BIBLIOGRAPHY believe that %as a problem !or this site. I also enjoyed the slidesho% that is on the homepage. It1s nice to see real people as opposed to models(actors doing ads or commercials. 9. Spinal :uscular Atrophy ;S:A< 2oundation & http'((%%%.sma!oundation.org( & =ne thing I really enjoyed about this %ebsite %as the slidesho% on the homepage !ull o! basic !acts that everyone may not )no%. It also I %ouldn1t suggest this %ebsite to children. It is more convenient !or adults or older children. It might be help!ul !or adults trying to e-plain spinal muscular atrophy to children though. >. ?ilson $isease Association ;?$A< International & http'((%%%.%ilsonsdisease.org( & This %as another %ebsite that I personally !ound a little chaotic and unorgani6ed. There %as a very clear area !or donations, but the rest o! the areas %ere a little clustered. ?hen it comes to a disease li)e this that I don1t much about, it %ould have been convenient to have some pieces o! in!ormation !ront and center. This %ould be a good %ebsite !or people %ho already have the general in!ormation on ?ilson disease. 1@. Cystic 2ibrosis # resource !or cystic !ibrosis in!ormation, support and ne%s. & http'((%%%.cystic!ibrosis.com(c!)ids*about.c!m & This %as a very )id !riendly %ebsite. It %ould be a good site !or a parent and child to loo) over together. It e-plains things in a %ay that I believe a child %ould be able to understand. Aven the graphics and colors are appropriate !or children. 4