Académique Documents
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Contents
Executive Summary.................................................................................................................3
Program Background...............................................................................................................4
Findings.........................................................................................................................................6
Referral Trends...........................................................................................................................6
Source of Referral.................................................................................................................8
Time of Referral (FY15).......................................................................................................9
Primary Reasons for Referral (FY15)..............................................................................9
Characteristics of Persons Served....................................................................................10
Age at Referral...........................................................................................................................11
Gender.....................................................................................................................................13
Level of Intellectual Disability........................................................................................14
Living Situation at Intake.................................................................................................14
Mental Health Diagnoses at Time of Referral...........................................................16
Medical Diagnoses at Time of Referral.......................................................................18
Emergency Service Trends..................................................................................................22
Psychiatric Hospitalizations (pre-START)....................................................................22
Emergency Department Use (pre-START)..................................................................23
Other Emergency Service Use (pre-START)...............................................................23
START Service Outcomes.....................................................................................................23
START Tertiary Care Model...............................................................................................25
Primary Services..................................................................................................................27
National START Study Groups.........................................................................................28
Secondary Services............................................................................................................28
Tertiary Services..................................................................................................................31
Other Emergency Services..............................................................................................32
Case Example...........................................................................................................................33
Goals and Recommendations for FY16...........................................................................36
Appendix A38
Executive Summary
This past project year has been one of change and continued progress. We
began the year with twenty-one (21) ArkSTART staff and finished the year
with fourteen (14). Although our reduction resulted in one-third less staff, the
full-time equivalency was only reduced from 9.5 to 8.75, and we are in the
process of interviewing an additional Coordinator Intern.
An additional regional office was opened in Star City to coordinate activities
in south Arkansas. This now gives ArkSTART four (4) regional offices (Little
Rock, Springdale, and Jonesboro are the other locations).
Staff continue to reach out to DD, Behavioral Health, and Law Enforcement
agencies as we attempt to build support networks across the various service
systems in Arkansas. Staff continue to receive intensive training while
providing services to clients and their support teams. All but one (1)
ArkSTART Intern will be seeking certification in 2015, with the newest Intern
scheduled for 2016.
The following report provides a summary of ArkSTART program development
and services from July 2014 through June 2015. We are pleased with the
accomplishments to date and our plans for strengthening the network of
supports for the clients we serve. This report is designed to fully inform the
Division of Developmental Disabilities Services and the Arkansas Department
of Human Services of the activities undertaken by the DD Cooperative of
Arkansas. This is truly a collaborative effort of many organizations, agencies
and individuals. We are confident with the continued support of DDS the
ArkSTART initiative will translate into more effective services and supports for
individuals with IDD and behavioral health issues.
Respectfully submitted,
Whitney Emerson, ArkSTART Program Director
Larry Stang, DD Cooperative of Arkansas Board Chair
Director
Clinical Director
Northwest
Clinical Team
Leader
Northeast
Clinical Team
Leader
Central Clinical
Team Leader
Medical Director
Southwest
Clinical Team
Leader
Southeast
Clinical Team
Leader
Coordinator
Coordinator
Coordinator
Coordinator
Coordinator
Coordinator
Coordinator
Coordinator
Coordinator
Coordinator
Coordinator
Coordinator
Coordinator
Coordinator
Coordinator
Findings
Below are descriptions of referral trends, characteristics of persons serviced,
emergency service trends, and services outcomes of those served by
ArkSTART.
Referral Trends
Appropriate Referrals
80
70
60
50
Appropriate Referrals
40
30
20
10
0
Start Up
FY 14
FY 15
Appropri
ate
Inappropriate
71
Total Referrals
2
73
56
58
30
157
0
4
30
161
Region
Arkansas Central
Arkansas Northeast
Arkansas Northwest
Arkansas Southeast
Arkansas Southwest
Total
Numbe
r
(FY15)
Percent
(FY15)
Number
(Overall)
Percent
(Overall)
15
20.55%
68
42.24%
10
13.70%
21
13.04%
27
36.99%
40
24.84%
10.96%
15
9.32%
13
73
17.81%
100.00%
17
161
10.56%
100.00%
Source of Referral
The majority of referrals (75%) in FY15 to ArkSTART were from case
managers. This is an increase over previous years, when case managers
made up 65% of referrals. The table below delineates all sources of referral
to ArkSTART compared to referral trends for START programs nationally. While
case manager referrals are also the largest source of referrals for START
programs nationally, sources of referral typically become more diversified as
the program develops and becomes more established. ArkSTART has not
received referrals from mobile crisis teams, hospital emergency
departments, and state psychiatric hospitals. This is likely a result of the
ArkSTART team currently not providing 24-hour mobile crisis response (as
many START teams nationally do) and thus not having as many opportunities
to partner with those services providers and agencies. Further, stakeholder
feedback indicates that fewer people with IDD in Arkansas attempt to access
these emergency services, because of barriers related to primary diagnoses
and billing/reimbursement. This problem has been discussed with the
Division of Behavioral Health and collaboration on this issue has begun in the
southern regions. ArkSTART will continue to work with mental health
Number of
Sources
Percent of
Sources (Ark)
National
START Trends
55
75.34%
64.04%
0.00%
1.07%
0.00%
3.26%
9
4
0
12.33%
5.48%
0.00%
1.48%
5.47%
0.07%
0
0
0.00%
0.00%
4.53%
0.10%
1
0
1.37%
0.00%
0.94%
0.20%
2
0
0
2.74%
0.00%
0.00%
4.67%
0.57%
0.10%
2
0
0
0
73
2.74%
0.00%
0.00%
0.00%
100.00%
1.51%
1.54%
7.29%
3.16%
100.00%
Number
Referred
(Ark)
Percent
Referred
(Ark)
National
START Trends
70
95.89%
80.86%
0
2
1
73
0.00%
2.74%
1.37%
100.00%
4.37%
2.28%
12.49%
100.00%
Number
Reportin
g
Problem
s
Percent
Reporting
Problems
(Ark)
National
START
Trends
10
55
14
75.34%
19.18%
70.72%
17.09%
24
32.88%
15.82%
3
6
0
26
13
22
3
14
1
73
4.11%
8.22%
0.00%
35.62%
17.81%
30.14%
4.11%
19.18%
1.37%
12.69%
21.66%
4.97%
42.81%
10.68%
22.33%
3.53%
13.47%
5.17%
2.48
2.41
11
17-22; 17%
23-29; 23%
30-49; 40%
12
30-49; 31%
23-29; 24%
Gender
13
Gender: ArkSTART
Male; 52%
Female; 48%
14
Number
(Ark)
2
3
53
27
14
10
19
21
START
Percen Programs
t (Ark)
Nationally
1.34%
2.18%
2.01%
3.76%
35.57%
44.41%
18.12%
24.09%
9.40%
7.15%
6.71%
3.46%
12.75%
9.23%
14.09%
5.74%
44%
% General
Population with ID
87%
24%
10%
7%
3%
3%
15
Number
(Ark)
0
2
17
28
0
26
0
0
Percen
t (Ark)
0.00%
1.34%
11.41%
18.79%
0.00%
17.45%
0.00%
0.00%
START Adult
Programs
Nationally
4.63%
1.14%
3.29%
38.32%
0.47%
22.48%
2.08%
0.13%
16
9
2
2
6
22
9
9
17
149
6.04%
1.34%
1.34%
4.03%
14.77%
6.04%
6.04%
11.41%
100.00
%
2.68%
0.27%
2.95%
2.82%
2.08%
2.95%
9.87%
3.83%
100.00%
Psychiatric Diagnoses
Number of
individuals
reporting a
psychiatric
diagnosis
Percent of individuals
reporting a psychiatric
diagnosis
101
67.79%
48
32.21%
149
100.00%
Number of
individuals with
this number of
17
1.83
1
51
40
9
1
N/A
N/A
50.50%
39.60%
8.91%
0.99%
0.00%
101
100.00%
18
Psychiatric Diagnoses
Anxiety - all
Autism - all
Childhood - all
Mood - all
Psychotic - all
Impulse control disorder
Personality disorders
(Axis II)
Other
Total diagnoses reported
Total individuals with
reported psychiatric
diagnoses
Number of
individuals by
current types of
psych diagnoses
reported
23
18
10
62
27
10
6
Percent of individuals by
current types of psych
diagnoses reported
22.77%
17.82%
9.90%
61.39%
26.73%
9.90%
5.94%
29
185
28.71%
101
67.79%
19
60.00%
40.00%
ArkSTART
National START Trends
(Adults)
20.00%
0.00%
Medical Diagnoses
Individuals with reported
medical diagnoses
Total individuals
reporting no medical
diagnosis
Total
Number of
individuals
reporting a medical
diagnosis
Percent of individuals
reporting a medical diagnosis
68
45.64%
81
54.36%
149
100.00%
Number of
individuals with
this number of
medical diagnoses
2.50
1
25
16
12
5
10
14.71%
21
68
100.00%
Medical Diagnoses
Cardiovascular
Dental/Oral
Dermatology/Skin
Ear/Nose/Throat
Endocrine
Eye disorders
Gastro/Intestinal
Genitourinary
GYN/Pregnancy
Hematology/Oncology
Hepatic/Biliary
Immunology/Allergy
Neurologic
Nutritional disorders
Pulmonary disorders
Other
Total diagnoses
reported
Total individuals with
reported medical
diagnoses
Number of
individuals by
Percent of individuals by
current med
current med diagnoses
diagnoses reported
reported
16
23.53%
4
5.88%
4
5.88%
8
11.76%
11
16.18%
9
13.24%
24
35.29%
6
8.82%
6
8.82%
4
5.88%
2
2.94%
5
7.35%
27
39.71%
4
5.88%
6
8.82%
34
50.00%
170
68
45.64%
22
40.00%
ArkSTART
20.00%
0.00%
23
Numbe
r
Percent
24
16.11%
24
84
41 *
149
1-6
1.96
56.38%
27.52% *
100.00%
Numb
er
Percent
4
13.79%
9
31.03%
16
55.17%
29
100.00%
1 to 2
1.5
25
Numb
er
7
11
20
Percent
4.70%
7.58%
13.42%
27
Potential
impact of
intervention
Tertiary
Prevention:
Emergency Room
services,
hospitalizations
and law
enforcement
interventions. 2%
Required
intensity of
intervention
28
88
11
53
5
29
to
to
to
to
residential provider
families
mental health providers
emergency service
19
26
9
2
to others
35
24
Total Number of Episodes
8
National Online Training Series and START Study Groups
The National Center for START Services provides an online core training
curricula for ArkSTART staff as well as ongoing National Training Series. The
National Training Series is available for ArkSTART staff and their partners;
thus, these trainings by national experts on topics relevant to supporting our
population are shared with any and all interested agencies and service
providers with whom ArkSTART collaborates. Appendix B outlines the
calendar of trainings provided this past fiscal year.
Ark START personnel also participate regularly in national study groups with
other professionals as a way to gain knowledge and skills needed to improve
system capacity. The goal of these groups is to insure that all START teams
have the latest knowledge and technical support to provide evidence-based
services in all areas of service provision. These study groups include:
Clinical Directors Study Group, facilitated by Dr. Karen Weigle
Resource Center Directors Study Group, facilitated by Dr. Jill Hinton and Bob
Scholz, M.S.
Medical Directors Study Group, facilitated by Dr. Jarrett Barnhill
Team Leaders Study Group, facilitated by David ONeal, MSW, and Alyce
Benson, MSW
National Program Director forums held quarterly; and
National conference chaired by Joan B. Beasley, Ph.D.
Secondary Services: Specialized direct services to people at risk of
needing emergency services
30
START Planned
Services
Assessment
Activities
Outreach
Cross System
Crisis Planning
Total Individuals
Number
of
Individu
als
Percent of
Individuals
84
116
56.38%
77.85%
83
149
55.70%
Assessment: Work done to determine the needs of the individual and their
team, and the services to be provided. Includes: Information/record
gathering; intake meeting; completion of assessment tools (ABC, RSQ); and
START action plan development.
Table 21: Assessment Tools Completed
Assessment Tools
Aberrant Behavior Checklist
(ABC)
Recent Stressors
Questionnaire (RSQ)
ArkSTART
69
75
31
ArkSTART
77.85%
1-56
2
12.4
ArkSTART
83
32
ArkSTART
117
78.52%
1-35
1
6.8
ArkSTART
33
74
Clinical Education Team (CET): Preparing for and holding a Clinical Education
Team meeting regarding the individual referred. Including reviewing and
identifying relevant recommendations with START Clinical Director; and
assisting system of support with implementing recommendations. These will
continue monthly, and in the future we hope to be able to rotate them
through the various regions in Arkansas. This is dependent on having access
to our psychiatrist and clinical director to consult at those events.
Table 26: Clinical Education Team
Clinical Education Team
Number Completed
ArkSTART
9
34
ArkSTART
27
80
2.96
59.26%
1-12
1
Number of
Individuals
6
4
7
35
7
10
2 to 30
7.4
74
2
28.57%
Case Examples:
Bobby
Bobby is a 49 year-old male with severe ID who lives in an ICF/DD. He was
referred to ArkSTART in April, 2014.Staff reported sudden unexplained
outbursts and aggression that resulted in considerable property damage.
Because of Bobbys size and strength, staff considered his outbursts a
significant safety threat. He had spent most of his life residing in the group
homes and participating in the day programs offered by this provider. Over a
number of years, his aggressive behavior had increased in both frequency
and intensity, finally culminating in nearly daily events. Staff described the
behaviors as out of the blue. When Bobby was referred to ArkSTART, he
was in danger of losing services and had spent some time in an inpatient
psychiatric unit. After thoroughly examining Bobbys situation and factors
impacting him through the use of the START intake process and the use of
the START Action Plan, ArkSTART learned that Bobby was not using his CPAP
machine (device to help regulate breathing while sleeping) regularly which
was causing aggravation of previous medical and psychiatric conditions.
Additionally, Bobby expressed his wish to retire from his group home
residence and work training day program. He felt that at the age of 49 he
deserved to live in his own apartment. A Comprehensive Service Evaluation
(CSE) was completed in which important historical information as gathered
and reviewed with his team. The Cross Systems Crisis Intervention and
Prevention Plan was utilized to assist Bobby and his team when Bobby was
experiencing stress. The use of these tools gave some relief and stability to
Bobby and his team, so that ArkSTART could assist with seeking a local
provider that was better able to address Bobbys medical needs and would
allow him the anonymity of living in his own apartment. The plan proved
successful. Since the move, Bobby has begun to wear oxygen at night (this
allows for better sleep quality and positively impacts some of his medical
36
37
38
39
40
Appendix A
DD COOPERATIVE OF ARKANSAS MEMBERS LIST 2014-15
Abilities Unlimited, Jonesboro
Advantages of Southeast Arkansas, Monticello
*AEDD, Little Rock
Arkansas Center for Independence, Newport
*Bost, Inc. Fort Smith
*Civitan Services, Benton
Community Living Arrangement, El Dorado
Community School of Cleburne County, Heber Springs
Day Springs of Arkansas, Little Rock
*Easter Seals Arkansas, Little Rock
ERC, Inc., Springdale
Evergreen Presbyterian Ministries, Texarkana, TX
*Faulkner County Day School, Conway
*First Step, Hot Springs
*Friendship Community Care, Russellville
*Grand Prairie Job Center, Stuttgart
41
Appendix B
2014-2015 National START Online Training Series
September 19, 2014: Health & Wellness Considerations for Individuals with Autism
Spectrum Disorder, Leslie Rubin, MD
October 17, 2014: The Rational Use of Psychotropic Medications in Individuals with
Intellectual Disabilities, Jarrett Barnhill, MD
January 16, 2015: START Scholars Presentation - Coordinating Therapeutic Goals &
Activities for Guests, Jason Tuell
42
March 20, 2015: Creating a Vision of Inclusion: The Importance of Film in Education,
Awareness and Systems Change, Dan Habib
April 17, 2015: Supporting Individuals with Challenging Behaviors, David Pitonyak,
Ph.D.
43