Tufts OpenCourseWare Legal and Ethical Issues in Genetics

2007 Tufts University

1.

Legal and Ethical Issues in Human Genetics

2.

Confidentiality

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Tufts OpenCourseWare Legal and Ethical Issues in Genetics

2007 Tufts University

3.

Malpractice Law

4.

Genetic Discrimination

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Tufts OpenCourseWare Legal and Ethical Issues in Genetics

2007 Tufts University

5.

Genetic Discrimination

6.

Regulation of Human Genome Research

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Tufts OpenCourseWare Legal and Ethical Issues in Genetics

2007 Tufts University

7.

Gene Patents

8.

Ethical Challenges in Genetic Testing

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Tufts OpenCourseWare Legal and Ethical Issues in Genetics

2007 Tufts University

9.

Views on Genetic Testing

10.

Autonomy

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Tufts OpenCourseWare Legal and Ethical Issues in Genetics

2007 Tufts University

11.

Beneficence / Nonmaleficence

12.

Legal Responsibilities of Health Care Providers

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Tufts OpenCourseWare Legal and Ethical Issues in Genetics

2007 Tufts University

13.

Case 3: Familial Adenomatous Polyposis

14.

Familial Adenomatous Polyposis

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Tufts OpenCourseWare Legal and Ethical Issues in Genetics

2007 Tufts University

15.

Genetic testing for FAP

16.

Case 3: Familial Adenomatous Polyposis

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Tufts OpenCourseWare Legal and Ethical Issues in Genetics

2007 Tufts University

17.

Ethical Principles of Concern:

18.

Duty to Warn Third Parties Safer v. Pack (1996)

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Tufts OpenCourseWare Legal and Ethical Issues in Genetics

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19.

Duty to Warn Third PartiesSafer v. Pack (1996)

20.

Duty to warn third parties, cont.

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Tufts OpenCourseWare Legal and Ethical Issues in Genetics

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21.

Duty to warn third parties, cont.

22.

Duty to warn third parties, cont.

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Tufts OpenCourseWare Legal and Ethical Issues in Genetics

2007 Tufts University

23.

Ethical Issues to Consider:

24.

Genetic Testing in Minors

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Tufts OpenCourseWare Legal and Ethical Issues in Genetics

2007 Tufts University

25.

Genetic Testing in Minors

26.

Friedreich Ataxia Case 1

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Tufts OpenCourseWare Legal and Ethical Issues in Genetics

2007 Tufts University

27.

Freidreich Ataxia Case

28.

Issues to consider:

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Tufts OpenCourseWare Legal and Ethical Issues in Genetics

2007 Tufts University

29.

Case: Hemophilia in the family?

30.

Case: Hemophilia in the family?

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Tufts OpenCourseWare Legal and Ethical Issues in Genetics

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31.

Ethical Principles to Consider:

32.

Case 1: CF Newborn Screening

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33.

Case 1: CF Newborn Screen

34.

Case 1: CF Newborn Screening

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Tufts OpenCourseWare Legal and Ethical Issues in Genetics

2007 Tufts University

35.

Possible Explanations for Discrepancy:

36.

How to proceed…

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Tufts OpenCourseWare Legal and Ethical Issues in Genetics

2007 Tufts University

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Ethical Principles of Concern:

38.

Case: Known but unknowing patients with Factor V LeidenDefic...

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Tufts OpenCourseWare Legal and Ethical Issues in Genetics

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39.

Case: Known but unknowing patients with Factor V LeidenDefic...

40.

Ethical Principles to consider:

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Tufts OpenCourseWare Legal and Ethical Issues in Genetics

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41.

Case 2: 14 year old female with lack of pubertal development...

42.

Past Medical History

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43.

Physical Exam

44.

Physical Exam, cont.

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45.

Work-up:

46.

Follow-up

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47.

Ethical Principles of Concern:

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