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This paper has been prepared by Jean Roberts, PhD, CITP, CEng, MHM and
Joint Vice-Chair of the UK Faculty of Health Informatics.
In this paper Jean summarises some of the challenges, developments and future
opportunities for Health Informatics related Research and Development (R&D) in
the UK. She sets this in the context of wider European and international
developments in the field.
Jean also identifies what role the UK Faculty of Health Informatics and its
members could play in overcoming the challenges and making the most of the
future opportunities.
The paper is designed to be used for anyone working in the NHS, Education or
the Private Sector interested in contributing to, or in learning about how Health
Informatics related R&D can potentially improve patient care. It is not restricted
just to members of the UK Faculty of Health Informatics.
The Faculty will also be holding a Health Informatics R&D Think-Tank on 26th
March 2009 to look at its future role and priorities in this area.
http://www.espace.connectingforhealth.nhs.uk/community/nhs-faculty-HI
Scope, Challenges & Opps of HI R&D: 26/03/2009
This overview paper addresses the context and significant issues relating to
health informatics (HI) research, making observations regarding actions that can
be taken to develop and disseminate such research. In some cases work is
ongoing and is referenced, other initiatives may be contributory but are not widely
known to the health informatics community in general and could benefit from
further promotion and coordination. The main areas addressed cover the identity
of the domain and the scope of HI research, predominantly in the UK. The
challenges to be faced include scoping the core body of knowledge that HI
encompasses, positioning research to capitalize on rapidly changing
technologies, methods to stimulate further research and to recognise and grow
the workforce, nurturing opportunities whilst maintaining knowledge of the past.
The paper touches on potential for interworking, data sharing and interoperability
whilst not ignoring widely held concerns about the needs for sensitive handling of
health data.
DOMAIN IDENTITY
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Scope, Challenges & Opps of HI R&D: 26/03/2009
SCOPE OF HI RESEARCH
The discipline of HI can in itself be researched and also the tools and techniques
that constitute health informatics can be deployed to facilitate research itself in
related areas. Health informatics encompasses all the areas where technology
and information contribute to the support of health care delivery, management,
planning and research. Related to the core areas are themes such as ethics,
attitudes learning, coping with third party interactions – all ‘into and utilizing’
health informatics. Other research has been identified into content provision,
generating an evidence base and knowledge management.
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Scope, Challenges & Opps of HI R&D: 26/03/2009
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Scope, Challenges & Opps of HI R&D: 26/03/2009
see the total picture of which topics are being addressed by which teams, and
are at what stages and have produced what deliverables and publications refer.
Kwankam again gives some parameters that confirm the exponential growth of
material in our area - ‘In the area of health research, for instance, the sheer
volume of new information is enough to stretch even ICT-assisted decision
making systems. On an average day, there are 55 new clinical trials, 1260
articles are indexed in MEDLINE, and 5000 papers are published in the
biomedical sciences. In 2002, the world produced 5 exabytes (PITAC, 2003) of
new information, 90% of it on magnetic media (and only 0.01% on paper), and
the annual growth rate is 30% (Liman and Varian 2003).’
Research projects can produce deliverables which are open and public or on
controlled circulation amongst the project participants. Knowledge of all these
factors can help other research teams that are wishing to be considered for
future work to set the context for their bids; in synergy or following on from the
outcome stage of previous work.
The sections below identify some of the developments that may help address
some of the greatest HI Research challenges that have been identified:
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Scope, Challenges & Opps of HI R&D: 26/03/2009
There is much debate (BCS HINOW, March 2007) in the UK and internationally
with regard to what HI encompasses. There are also variations in use of terms
and synonyms between countries; for example Germany uses ‘medical
informatics’ as its top level term whereas the UK uses ‘health informatics’ to
describe similar scope. Work lead by the Centre for HI Research and
Development (CHIRAD) team, since 2005, has resulted in a mapping of the HI
discipline that is recognised by the International Medical Informatics Association
and contains over 450 terms associated with the HI domain specifically. In order
to make research as effective as possible, the development of additional explicit
meta-tags, based on the IMIA cognitive map could increase the effectiveness of
searching for relevant published material and increase world-wide access.
Doupi and colleagues from STAKES Unit for eHealth, Finland, as part of the
European ERA project identified ‘semantic interoperability of electronic patient
records’ as a focus during the MIE2008 meeting in Gothenburg and this priority
was also in evidence at the World of Health IT in Copenhagen in (November
2008. This term encompasses both robust consistent message passing and
presentation of data without corruption to the meaning. When patient records are
shared it is important to retain appropriate context whether the acquiring system
uses the data in identifiable or anonymised form.
Technology can offer great potential for sharing and collaborative working;
however, recent incidents involving loss of data, unauthorised access to data and
use without consent have created public and professional concern. Considerable
effort needs to be made to reassure the public, subjects of research, and
partners that systems are robust and that data will be handled sensitively and
securely, in line with agreed purposes. The concept of an ‘honest broker’ and
‘safe haven’ for data ((NHS CFH, June 2008) to be used by the research
community are laudable in essence but there is a need for more practical
discussion with practicing clinicians, particularly GPs who have strong concerns
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Scope, Challenges & Opps of HI R&D: 26/03/2009
Publishing
The range of types of publication media / sources for research findings are also
wide and decisions about where to submit research papers to can be quite
complex. In addition, there are challenges to finding and accessing sources,
some of which are ‘on subscription’.
There is limited generic consistency in the keywords that can scope particular
searches other than the medical headings (MeSH terms) available for Medline
citation; and searching is made more complex as basic terms like
‘informatics/ICT/IM&T/IT’, ‘classification/ coding / terminology’, and even ‘clinical
/medical’ can be deployed differently depending on national, institutional or
discipline-specific origins.
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Scope, Challenges & Opps of HI R&D: 26/03/2009
Previously European Union law had necessitated ‘creative’ bids for HI research
funding at a multi-national level. Article 129 (now renumbered as Article 152)
(http://europa.eu/scadplus/leg/en/lvb/a16000.htm) states that health was a
national not collective responsibility. Research in informatics could therefore be
demonstrated –and funded- in a health context not as HI specifically. That said,
the deliverables from EU funding are extensive, impressive and many are leading
edge (http://europa.eu.int/information_society/activities/health/index_en.htm ).
The current high level target areas for EU funding in 2009 from the ICT for Health
Unit under the Framework 7 programme are:
In UK HI, the National Library of Health (NeLH) could give summary guidance to
generate a clearer understanding of research protocols so that operational
practitioners‘ input could be included more rapidly, meeting the same standards
as traditionally expected from established research activists.
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Scope, Challenges & Opps of HI R&D: 26/03/2009
FUTURE OPPORTUNITIES
A greater awareness of who is doing what, where and when can generate both a
clearer landscape for targeted research and informed development, which will
realize benefits to the health domain and UK PLC. Opportunities are outlined
here but will require further consideration and prioritization; but not all of the
opportunities can realistically be developed by the UK Faculty of HI but it is
appropriate for the Faculty to act as a catalyst at this stage.
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Scope, Challenges & Opps of HI R&D: 26/03/2009
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Scope, Challenges & Opps of HI R&D: 26/03/2009
There are a relatively small number of people and places that are already well-
recognised for research in and utilizing health informatics. There is a huge pool
of latent knowledge and experience that has not yet been tapped. Whilst it is
rarely effective for positive discrimination to awake all the potential participants,
such discrimination could act as a catalyst, encouraging new players into the
field. The mix of (current and future) members of the UK Faculty of HI can to
work together in research bids; creating synergy through a willingness to
collaborate.
REFERENCES:
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Scope, Challenges & Opps of HI R&D: 26/03/2009
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