Académique Documents
Professionnel Documents
Culture Documents
Disease
A report designed to help you understand your
illness and take charge of your health
“
It affects both men and women and strikes people in the prime
of their lives - usually from the ages of 18-40.
Still’s Disease
Adult Onset Still's Disease falls into a category of illness known is not a paint-
as rheumatic disease. Simply put, AOSD is a disease of
by-numbers
inflammation. As it progresses through the body it causes the
illness.
”
inflammation of the joints, tissues and organs of the diagnosed
person.
The acute phase describes the severe, relatively short lived set
of symptoms that ususally appear at the onset of the disease.
This phase lasts from two to four weeks, but may extend as
“
long as a couple of months.
Sore Throat
The illness usually starts with a sore throat that is
There
similar in sensation and intensity to an average winter are two phases
cold. From this point, almost all patients will experience of the illness:
several symptoms including severe joint and muscle the short term
pain, rashes and a high fever.
acute stage
Joint Pain
Inflammation and pain during the acute phase may
and the long
strike any joint in the body, but is most common in the term chronic
knees, ankles and wrists. The pain is often extreme: For phase.
”
example, an affected knee would probably prevent you
walking, moving the joint through its range of motion
or stretching in any way. The affected joint is often
visibly swollen and warm to touch. The nature of the
illness is that multiple joints are often affected at the
same time (your doctor might describe this to you as
being poly-articular).
“
you in detail! With that said, you don't really need to
have an in-depth knowledge of the inflammation
process to understand Adult Onset Still's Disease... just The acute phase
like you don't need to know how a car works in order is categorised
to drive to work, it isn't critical to fully comprehend the by:
science behind the inflammation process.
- Sore throat
With auto-immune diseases like Still’s Disease, the
- Rash
body misidentifies parts of itself as a foreign invader
- Joint pain
and attacks itself, causing pain and inflammation. For - Fever
example, with Still’s Disease, the body labels the - Internal
synovium (this is the fluid that lubricates your joints) as swelling
”
an unwelcome guest and sends the body’s inflammatory
agents and defence systems to combat the “invader”.
Once this process starts, the trademark pain and
inflammation cycle continues throughout the acute
and chronic phases of the illness.
Rash
The next most common symptom is a salmon coloured
rash that moves across the body. The rash is usually
splotchy, slightly raised and fairly localized. The most
peculiar thing about the rash is that it often appears
without warning in a varitety of positions - one
morning on your thighs... that afternoon on the upper
arm... an hour later on your chest. The rash then often
disappears as quickly as it arises.
“
Creams, ointments and cold packs do not usually bring
any relief.
Still’s sufferers
Fever
Sufferers of Adult Onset Still's Disease almost always
spike with fevers
experience a fever that often spikes to over 40 degrees over 40 degrees
centigrade. centigrade –
that’s 104
The fever waxes and wanes throughout the day, and is
usually the highest in the late afternoon or evening. In
degrees
the morning and throughout the day, a normal (36-37 Fahrenheit.
”
degree) temperature is normally recorded by the
patient.
Internal Swelling
Although less common, sufferers may experience
swelling of the spleen, lymph nodes and lining around
the heart (pericarditis). Depending on the severity of
the swelling, this may lead to pain in the chest and
abdomen and may require hospitalisation.
“
illness moves into a long term chronic phase.
The rash, internal swelling and fever components of the illness It is of the
normally subside during this phase of the illness. Joint pain due utmost
to the rheumatic component of the disease is often present importance that
throughout the chronic phase of the illness. Although not you have a
usually as severe as the initial onset, chronic inflammation of carefully
the joints often leads to pain, discomfort and disability.
considered plan
It is of the utmost importance that you have a carefully to manage the
considered plan to manage the chronic phase of the illness. I chronic phase of
understand that you may be reluctant to start a long term the illness.
”
medication regime, but it is critical that you don't try and "go it
alone" while the disease is in the chronic phase.
“
conditions, and the onset of depression is common. This is
often caused by the pressure not only on the patient, but the
Acute flare ups
family and support network of the person living with Still's
Disease.
occur with
most Still’s
Flare Ups sufferers.
Adult Onset Still's Disease seems to be a cyclical illness, and
acute episodes, or "flare ups" occur with most sufferers. These
These
episodes can be as severe as the initial onset of the illness, but episodes can
are usually shorter in duration. be as severe as
the initial
onset.
”
All rights reserved:
www.takingchargeofstillsdisease.com
The Long Term Prognosis
There is a great deal of debate surrounding the long term
prognosis of Adult Onset Still's Disease.
“
higher), and thereby distorting the actual figures.
Authorities estimate that sufferers of Adult Onset Still's Disease This illness
will fit into one of four groups: usually
1. A small percentage of patients experience one acute becomes
episode and then go into complete remission.
harder to deal
2. Roughly a third (although this may be an inflated with – not
figure) of sufferers move into complete remission after a
ten year time frame.
easier.
3. Approximately a third of sufferers will continue with
the illness, but experience only infrequent flare ups and
are almost completely managed by medication.
For those that fit into the last group, the disease normally
becomes harder to live with - not easier. The illness becomes less
”
responsive to medication as the inflammation of the illness
becomes greater than the suppressive force of the treatment.
Adult Onset Still's Disease waxes and wanes, not only throughout
the day, but also throughout the life of the illness. Many people
To be told that you have a disease that may impact your life
“
greatly for a significant period of time can be a daunting
prospect.
There is –
The silver lining that shines out from the black cloud of Adult
most certainly
Onset Still's Disease is that there is -- most certainly -- hope.
Yes, you will probably need to make changes to your lifestyle,
– hope.
”
however if you follow the advice of your medical team and
consider the recommendations made in this report, this illness
is almost always completely manageable.
“
team: your general practitioner or family doctor and your
specialist.
Your specialist
Your specialist, as the name implies, has a high level of
expertise in dealing with inflammatory diseases like Adult
has the
Onset Still's Disease. In most cases your specialist will be a expertise to
rheumatologist, although you may also be referred to an prescribe a
immunologist or a general physician.
treatment
Rheumatologists deal exclusively with inflammatory and auto- regime that
immune diseases like rheumatoid arthritis, lupus and ulcerative will help you
colitis, and have the necessary skills and expertise to prescribe
manage the
you a treatment regime that will help you manage the
symptoms of Adult Onset Still's Disease.
symptoms.
Although you will be referred to a specialist relatively quickly
by your family doctor, he or she is still a vital component of
your AOSD management plan. The main problem with
rheumatologists is that they are often booked solid for weeks
or months in the future – inflammation is a popular illness.
Your GP, in most cases, will be much more accessible and will
help you with a course of action to deal with related
”
complaints, prescriptions and any new symptoms that you may
experience.
“
recommendation.
The other medical professionals that you may deal with over
the course of your illness are radiologists (if x-rays are
Of critical
required), physiotherapists and a pathology technician who importance is
will take your blood when tests are required. your
Of critical importance is your relationship with your medical relationship
team. It is very important that you not only trust your medical with your
team, but that you know how to effectively communicate with medical team
”
them. If you are part of the Taking Control Of Still's Disease
newsletter, you'll be receiving practical tips and techniques
that you can use to maximise your relationship with your
medical team.
“
Onset Still's Disease before you had taken several trips between
the blood lab and the doctor's office. Still's Disease sufferers are
often misdiagnosed with a host of other illnesses including Still’s disease
influenza, malaria, lupus and rheumatoid arthritis before the is often mis-
correct condition is identified.
diagnosed at
The speed in which your doctor diagnosed your illness is not a the onset and
comment on his or her competence - it is more due to the
is usually
elusiveness of Adult Onset Still's Disease itself. If we were
going to be completely accurate, AOSD is not so much a
diagnosed by
disease as it is a collection of symptoms. ruling other
There is no definitive test that identifies Adult Onset Still's
illnesses out
Disease. Usually it is diagnosed by ruling out other diseases first.
”
first. Your doctor would have tested the following blood
markers to try and make a diagnosis:
Rheumatoid Factor
People that suffer with Rheumatoid Arthritis have
elevated levels of this marker. AOSD sufferers,
however, show no such elevation.
“
ESR
The ethrocyte-elevation rate indicates general
inflammation in the body. Normal ESR rates sit Diagnosis can
between 1-15mm/hour. When AOSD is in its acute
be drawn out,
phase, the ESR rate often exceeds 50mm/hour.
depending on
CRP
The C-Reactive Protein rate is another inflammation
your doctor’s
marker that measures the evidence of a special protein experience
that is secreted by the liver. Adult Onset Still's Disease with Still’s
sufferers have been known to exceed 150 units -
Disease.
”
compared to the normal rate of less than six units.
Others
Your doctor will also order tests that measure your
haemoglobin (Hb), ferretin, blood cell size (MCV),
platelet counts, as well as others to try and form a
diagnosis.
Often you will not be diagnosed with Still's Disease until you
are referred to a specialist.
“
body's inflammatory response or to slow down the progression
of the illness. The drugs used to treat Adult Onset Still's
Disease are fairly heavy-duty. As such, it is very important that
The drugs used
you fully understand the medication that you have been
to treat Still’s
prescribed.
Disease are
NSAIDs - The Front Line in Treatment often fairly
Non-steroidal anti inflammatory medication - or NSAIDs - is heavy-duty.
”
the front line in managing the symptoms of Adult Onset Still's
Disease. NSAIDs are found most commonly in over-the-
counter medications such as Neurofen, Advil and aspirin.
“
the medications commonly prescribed for Adult Onset Still's
Disease, it is not to say that they do not have their dangers.
The most common complaint of NSAID users are gastro- The most
intestinal problems. NSAIDs do not only target the processes
important thing
that trigger inflammation, they also decrease the body's ability
to produce the protective lining of the stomach. Ulcers, gastric
is that you
bleeding, nausea and diarrhoea are all side effects of NSAID understand
use. your
If you do suffer nausea or stomach upsets while using NSAIDs,
medication.
”
your doctor may prescribe you a new class of anti-
inflammatory drugs called COX-2 inhibitors. These drugs have
a similar effect to other NSAIDs, but are gentler on the
stomach due to their more targeted application to the body's
inflammatory agents. This class of drug is considerably more
expensive than other NSAIDs.
“
steroids that are used to increase muscle mass. Corticosteroid
(sometimes referred to as glucosteroids) mimic the function of
the adrenal gland's production of hormones that have a
Steroids may
profound effect on the body's inflammatory response.
Synthetic corticosteroids such as prednisone and prednisolone
seem like
are used for a variety of applications from asthma to migraines. miracle drugs,
They are particularly effective in the treatment of auto- but above all
immune diseases.
else they need
People that are crippled in the acute phase of Adult Onset to be
Still's Disease are often amazed to see their symptoms be
respected.
”
"switched off" after only a few days of taking corticosteroids.
The dramatic results come with a dark side, however.
“
treating your condition. During the initial onset of the illness,
a maximum dose of 60mg of prednisone or prednisolone may
be prescribed to you. With that said, steroids need to be used as DMARDs
sparingly as possible - and if possible - avoided as part of a long
slow the
term treatment plan.
progression of
Corticosteroids may seem like miracle drugs, but above all else, the illness and
they need to be respected.
minimise its
symptoms.
”
DMARDs - Preventing Long Term Damage
Sulfasalazyne
Going by the brand names of Azulfidine and
Salazopyrin, Sulfasalazyne is a sulphur based
“
Due to the fact that this drug increases the body's
toxicity, nausea is the most common side effect with
Sulfasalazyne use. The drug can also cause headaches, DMARDs
mouth sores and diarrhoea. These side effects are
that are
normally controlled by adjusting the dosage. In rare
cases, Sulfasalazyne can cause fever and an intense
effective in
itching rash. These symptoms disappear once the treating
medication is stopped. rheumatic
illnesses are
Methotrexate (MTX) sometimes
Methotrexate (MTX) is the next most commonly
discovered
prescribed DMARD in the treatment of Adult Onset
Still's Disease.
quite by
accident.
”
Methotrexate is a slow acting, but effective medication
that is taken only once a week by the patient. While
Methotrexate does not have major side effects (although
nausea is not uncommon), it is important that it is not
used in conjunction with sulfa-antibiotics, and alcohol
should be avoided while on Methotrexate.
“
medication.
Anti-Malarial Medication
Anti malarial drugs such as chloroquine and
Methotrexate
hydroxychloroquine are also used in the treatment of is often used in
rheumatic conditions. While they have a mild conjunction
immunosuppressant function on their own, they are
with other
often used to increase the effectiveness of Methotrexate.
medicines
The biggest benefit of combining chloroquine (most which often
commonly prescribed under the brand name Plaquenil) increases the
with other DMARDs is that they are steroid sparing - effectiveness of
allowing you to reduce the dosage of the more powerful
the drug.
”
- but more dangerous - corticosteroids.
TNF- Inhibitors
There are a set of new drugs on the DMARD scene that
are proving to be very effective in the fight against
Adult Onset Still's Disease, known as Tumor Necrosis
“
and are administered by a weekly injection. These drugs
are very expensive; in fact, typical retail prices of these Some
drugs are around $18,000 per year.
Still’s Disease
Before prescribing you a TNF inhibitor, your doctor
medications can
will conduct a series of blood tests to make sure that
you do not carry Lupus, Tuberculosis or other be extremely
infections.
expensive.
”
Minocycline
Another type of therapy that is gaining momentum, but
still remains controversial is Minocycline therapy.
Minocycline is an antibiotic that is used commonly for
acne and mild skin infections, however it also exhibits
some immunosuppressant properties by inhibiting the
cell death that leads to inflammation.
“
Although medication is an important and usually necessary
part of your Adult Onset Still's Disease management plan, it
should not be your only consideration. Although
The next part of this report looks at alternative therapies that medication is an
have been scientifically proven to assist in the management of
illnesses like Adult Onset Still's Disease.
important and
usually
necessary part
of your
management
plan, it should
not be your only
consideration.
”
All rights reserved:
www.takingchargeofstillsdisease.com
Alternative Therapies
Alternative Therapies - Compliments to your
Management Plan
“
Alternative therapies can play an important part in your Adult
Onset Still's Disease management plan. Alternative therapies
used to lie on the fringe of the orthodox medical society, but Alternative
are now increasingly considered as viable compliments to
therapies are
orthodox medicine.
now seen as a
This page is not meant to be a comprehensive guide to viable
alternative therapies - that could take up a whole report by
compliment to
itself! This is intended to be an introduction to some of the
more established therapies that have established credibility in
orthodox
treating illnesses like Adult Onset Still's Disease. medicine.
“
regarding its effectiveness in managing Adult Onset Still's
Disease. Acupuncture may be more effective as a tool to assist
your general wellbeing than providing lasting relief to the Acupuncture
symprtoms of AOSD. may be an
If you decide to include acupuncture as part of your effective tool
management plan, you can expect your practitioner to perform in assisting
a diagnosis by analyzing your pulse, the surface of your tongue
your general
and by interview. A session normally lasts around an hour, and
well-being.
you will be ususally required to make follow up sessions.
”
Acupuncture is considered to be be completely safe when
administered by a qualified practitioner.
Once this root cause has been identified, the homeopath will
use the concept of 'like curing like' to cure the illness. When
certain compounds (made from herbs, plants, minerals and
even organic tissue) are made into a remedy and given to
healthy people, they exhibit the symptoms of the particular
illness. When these same remedies are given to a person that
actually suffers from the illness, this leads to a complete cure in
“
Homeopathy is
well
established,
but its
effectiveness in
the homeopathic paradigm.
treating
Homeopathy is well established, particularly in Europe. Its rheumatic
effectiveness in treating Adult Onset Still's Disease and other
conditions is
rheumatic conditions is still debated. It is considered as a safe
theray and does not have significant side effects or
still debated.
”
contraindications.
“
from proven, physical therapy can certainly relieve pain,
promote general wellbeing and restore mobility, especially to
the joints affected by the arthritic component of the illness. When you
These therapies are generally considered safe when practised
only have a
by an experienced practitioner - with one major exception. hammer, every
When you suffer from Adult Onset Still's Disease, there is a problem looks
vertebrae in the neck that is often specifically weakened.
like a nail.
”
Because of this, any manipulation of the neck should be
avoided at all costs! This will be especially true if you see a
chiropractor or osteopath. If you do see one of these
practitioners, make sure that they understand this risk. If they
debate this, or seem unsure in any way, find another
practitioner!
An Important Caution
“
and is highly doubtful. The simple fact is that Adult Onset
Still's Disease can lead to serious, permanent joint damage if
you do not reduce the inflammation and stop the progression The secret of
of the disease. lasting health
The tendency of many health practitioners (and this includes lies in a
medical doctors!) is that the often believe that their method is the balanced
only method worth trying. Have you ever heard the saying:
"When you only have a hammer, every problem looks like a
approach.
”
nail"? This can be definitely applied to health care! The secret of
lasting health lies in a balanced approach.
If you go down to your local health food store, you will see
row upon row of expensive dietary supplements from vitamins
“
and minerals to tonics to balms to... well, you name it and
there's a supplement of some description that matches. With
all of the miracle claims attached to supplements, after being
You do not
diagnosed with Adult Onset Still's Disease it is tempting to buy need to spend
up hundreds of dollars worth of supplements. hundreds of
You're a smart person. You know that you don't need to walk dollars on
out of your health food store with ten shopping bags crammed supplements to
full of pills, powders and potions. This section looks at the two
manage your
key supplements that you should be taking every day - Fish oil
and a quality whole food multi vitamin.
illness.
“
your grandmother forcing cod-liver oil down your throat?
Well, she was right!), and its effectiveness is well documented On a
and scientifically supported.
scale of one to
You can obtain omega-3 from several sources, including some ten for anti-
plant oils, krill (the tiny prawn-like creatures that whales eat),
inflammatory
mussels and other shellfish and by eating deep sea fish. By far,
effectiveness,
the easiest to obtain and most cost effective omega-3 source is
found in medical-grade fish oil.
fish oil comes
in as a twelve.
”
You can buy fish oil either as a soft-gel capsule or it can be
bought as a liquid. If you were taking fish oil as a general
wellbeing supplement, soft-gels are great. You would typically
take one or two capsules in the morning with any other
supplements that you would take. The trouble is, when taking
fish oil for the anti-inflammatory effect required to manage
your Adult Onset Still's Disease symptoms you would need to
take eight to ten capsules every day... and that is a to do on a
daily basis! Because of this reason, you should seriously
consider liquid fish oil as an alternative.
I know that those memories of the foul tasting cod liver oil are
probably flooding back to you know and the prospect of liquid
fish oil might not be an attractive option. The great thing about
many modern fish oils is that they are flavoured with plant oils
and much of the 'fishiness' is removed. This means that you
“
You have to be careful though! Not all fish oils are effectively
flavoured! Arguably the best fish oil on the market is the
Carlson brand. It is cost effective, tastes as good as fish oil can You are well
possibly taste and comes highly recommended.
served by
taking out a
Multi-Vitamins - Getting the most from your food. little added
Your body has been designed over thousands of years to
insurance in
extract all of the necessary minerals and vitamins that it the form of a
requires from a balanced, healthy diet. multi-vitamin.
”
That's the idea, anyway.
When you suffer from a chronic disease like Adult Onset Still's
Disease, however, you are well served by taking out some extra
insurance by way of a high quality multi-vitamin. Your body
needs a host of vitamins and minerals required for optimum
function, but the real important ones for people with
Vitamin C has far broader health benefits than just reducing the
severity of colds and flu. It is a powerful antioxidant that has been
“
shown to reduce inflammation in patients suffering with
rheumatoid arthritis. As such, it is likely that this is also an
important vitamin for sufferers of Adult Onset Still's Disease. The
B vitamin group promote a healthy immune system and have For less than
been scientifically proven to reduce stress - certainly something
$50 a month,
that you will be struggling with as an AOSD sufferer.
you will see
Whilst there are a host of multi-vitamins on the market, I use and
recommend the Whole Food Multi Vitamin from
real, lasting
www.mercola.com. It is one of the few multi-vitamins on the benefits.
”
market that is contains only natural ingredients, rather than
chemically synthesized minerals and vitamins. It is actually
specifically designed to complement your diet - rather than
replacing it.
“
don't already know. There isn't really a secret to a healthy diet
- what you learnt in grade school about fruit and vegetables
and the importance of a balanced diet still largely holds true There is a
today. great deal of
There is a great deal of debate around "eating for arthritis" and debate
whether food has any direct effect on the symptoms of whether food
rheumatic disease. Whether or not the research has been done,
has any direct
I speak from experience when I say what goes in your mouth
effect on the
significantly affects the symptoms of Still's Disease, as well
impacting on your general wellbeing.
symptoms of
rheumatic
We'll start by looking at the foods to avoid when you have
Still's Disease, before looking at some of the most popular 'anti-
disease.
”
inflammatory' diets that are on the market.
Foods to avoid
Sugar
Processed sugar is just about everywhere. If you've
bought something in a packet, tin or jar, chances are
that it is packed with sugar. The amount of sugar in the
modern western diet has serious health implications,
most commonly seen in its role in obesity and diabetes.
As if this isn't enough, sugar has added implications for
you and your Still's Disease.
“
equation: more sugar leads to more inflammation.
Here are some simple tips that you can use to reduce
the amount of sugar in your diet: It’s not about
being strict.
1. Cut out the soda. If you are going to cut one thing out
of your diet and one thing only, make it soda. Soda is
It’s all about
packed full of sugar - in fact just one can of cola has being sensible.
”
TEN teaspoons of sugar in it.
“
These chemical-laden sweeteners have a range of
negative health effects and should be avoided at all
costs. You need fat in
Saturated and Trans Fat a healthy
Fat is an essential part of staying healthy and needs to
balanced diet.
form a part of your balanced diet. The trick is to make
take your fat intake from the right sources. There are
The trick is
two main types of dietary fat; omega-3 that comes from making sure it
some seafood and some plant oils and omega-6 fat that is the right
is found in vegetable oils and animal fat. In a healthy
type of fat.
”
diet, you should try and balance your omega-6 to
omega-3 ratio at about 1:1. In your average western
diet, however, the ratio has become more like 20:1.
“
balance the good and bad fats from your diet:
”
sandwich bar or a lamb kebab.
With that said, the better your diet, the better your general
health will be. In addition to a healthy balanced diet low in fat
“
and sugar and high in fruit and vegetables and unprocessed
foods, there are several 'anti-inflammatory' diets on the market
that have a loyal following with many sufferers of rheumatic Any diet must
diseases. While the idea that food triggers the symptoms of
be trialled for
illnesses like Still's Disease is still under debate by the medical
several months
community, the anecdotal evidence supporting these diets is
widely positive.
before you can
accurately
measure its
Anti-inflammatory Diets effectiveness.
”
The Non-Nightshade Diet
There is a widely held theory that the acidity in a
certain group of vegetables triggers the body's
inflammatory mechanisms. These vegetables are found
in the nightshade family and include most famously
tomatoes, capsicums, potatoes and eggplants.
“
This diet is based on a traditional diet from Chinese
medicine and is much more stringent that the non-
nightshade diet. People that undertake this diet can eat
all vegetables apart from tomatoes, and must avoid all
Some diets
fruit, meat, dairy, herbs, alcohol as well as all have been
preservatives, sweeteners and preservatives. scientifically
In the early 80s a group of arthritis sufferers were asked
trialled with
to go onto the Dong diet. While the results were rheumatoid
positive, there was no discernable difference between arthritis
patients that followed the Dong diet and those that ate a
patients with
healthy, balanced diet.
promising
The most concerning this about the Dong diet is the results.
”
absence of fruit, which provide the body with anti-
oxidants that are proven to be beneficial in managing
the symptoms of illnesses like Still's Disease. I would
certainly recommend discussing this diet with your
doctor before eliminating such a wide range of foods
from your diet.
“
www.mercola.com website, you are armed with a
better understanding of how your body is hard wired to
Use your
respond to food and you are labelled as either a 'Carb
Type', 'Protein Type' or 'Mixed Type". Depending on
management
your type, you will follow a diet that maximises your plan to see
body's response to certain foods. real and
For people with autoimmune diseases, it is more a diet positive
for ultimate wellbeing. With that said, this well change in the
established and well researched and documented diet intensity of
has been trialled with rheumatoid arthritis sufferers
your
with positive results.
symptoms.
I hope you can start to see your management plan taking shape
by now. You need to pay equal attention to all of the sides of
the treatment: the therapeutic use of medication, the advice of
a qualified complimentary practitioner, a healthy diet and a
high performing supplementation regime to see real and
positive change in the intensity of your symptoms.
”
The final part to the jigsaw is tweaking your lifestyle to
accommodate for your illness. Now don't get me wrong - this
isn't about "giving in" to your illness - this is about changing
the way that you do a few simple things that will reward you
with profound positive change.
”
you can do to protect your joints and manage your symptoms.
Exercise stimulates the body's systems, removing toxins and
restoring the chemical balance of your body's inflammatory
systems. It also aids in the mobility of the major joints. You
know what happens if you let a door's hinges rust with disuse...
it becomes pretty darn difficult to open the door! The same is
true for your joints. If you don't test their full range of motion
regularly, they also become stiff, difficult and painful to move.
With all that said, I wouldn't recommend that you join the
wrestling squad or taking up high-impact aerobics. You need
Qi Gong
Qi Gong is a lesser known, but well established
Traditional Chinese Medicinal discipline. It works by
cultivating chi, or life force in your body by the practise
“
of meditation and a series of slow, graceful movements.
Qi Gong is causing quite the stir in the orthodox
medical community over the last few years thanks to
You may want
some large trials on cancer patients that has yielded
some very promising results. People that regularly
to avoid the
practise Qi Gong report an increased feeling of peace wrestling
and wellbeing, as well as seeing relief in a wide range of squad when
ailments, including rheumatoid conditions. The best choosing a
thing about Qi Gong is that it can be practised at home
suitable
in as little as 20 minutes a day. I have personally seen a
lot of benefit by using Qi Gong as part of the
exercise for
management plan of my own Still's Disease symptoms. I yourself!
”
find the simple exercises fantastic therapy on my joints
and after practising, I am always instilled with a deep
feeling of peace and contentment - even on my bad
days.
“
equipment that can analyse your footprint. With this
information, a good store clerk will be able to
recommend you the best pair of shoes for you. Make Always discuss
sure that you tell them that you need extra support for
your condition
your knees, hips and ankles.
with your
When you walk, don't make it a chore. Load up your
instructor
iPod with music or podcasts. Go to the pound and adopt
prior to a
a dog. Walk with your partner or a friend. Buy a
pedometer for $40 and challenge yourself to beat your session.
”
record.
Yoga
Yoga is a very effective method of stretching your
entire body, strengtheing your core and harmonising
mind, body and spirit. There are several different
schools of yoga that are practised in the west. The most
common type of Yoga, and the one most suitable for
sufferers of Still's Disease is Hatha yoga. Hatha Yoga
Swimming
Swimming is the ultimate non-contact exercise. If
“ The most
important
thing is to get
to know your
limits.
walking is uncomfortable for you, definitely consider
”
swimming as an alternative exercise. Many people find
cool water soothing to their joints and the water's
buoyancy allows you to move through a greater range
of motion.
While you're down at the pool, why not check out and
see if they hold aqua-aerobics as well? Especially if you
used to participate in more vigorous workouts, this
“
class and get through it okay. But is that worth spending the
next three or four days laid up in bed because you over did it?
Just remember
Aim for gentle, sustainable exercise that you can practise on a
to listen to
regular basis. Just remember to listen to your own body - it has
a very good way of telling you to slow down!
your own body
- it has a very
good way of
Exercising Your Mind
telling you to
Exercising your mind is not really about making you smarter,
slow down
”
quicker or wittier (although exercising your mind often has
these positive side-efffects!). This is about your coping
strategy. It is very difficult when you suffer from a chronic
disease. Your body and mind are almost constantly under
stress of some description, and that stress can spill over and
flow into your family life, your relationships and your work.
Meditation
We have what is known as a 'stress threshold'. Have
you ever noticed how something is very stressful to
“
you, but it doesn't bother someone else at all? Have you
ever looked at those people with amazement - nothing
ever seems to phase them? Wouldn’t it be great to be
You will be
able to increase your stress threshold so that the "little given skills to
stuff" just doesn't sweat you at all? actually live
Meditation has this incredible side effect. With
with your
dedicated practise, you actually increase your stress illness and
threshold. The effect for you and the management of constructively
your illness will be profound: you will be given skills to
process the
actually live with your illness and constructively
process the stress of having a chronic illness.
stress of
having a
I cannot more strongly recommend the excellent
chronic illness.
meditation product offered by Centrepointe. It takes all
of the hard work out of meditation (would you believe
”
that sitting quietly is actually really challenging to do?).
What this technology does is to coax your brain waves
down to the lowest reaches of the delta state - this is
where you go in deep, peaceful sleep - and where the
therapeutic effect of meditation occurs.
”
the way to taking control of Still's Disease. The final piece of
the puzzle is to plan your day so that you can avoid flare ups
and stay in the optimum of health.
The key to remember here is that you can do most things - just
don't try and pack them into one day! If you know that tonight
is the night that you are going to the U2 concert and you're
going to be out until midnight, don't also make that the day
“
happen for you. You do have a choice here... you can stick
your head in the sand, ignore your illness and battle with Still's
Disease for years, or you can choose to make some carefully Choose to
considered changes, and take control of Still's Disease.
make some
If you want to hear about more great tips and tricks about
living with your illness - as well as receiving comprehensive
carefully
reports on some of the products and strategies raised on this considered
website, please make sure that you're part of the Taking
Control Of Stills Disease mailing list. changes in
I wish you all the health and happiness in the world. your life, and
take control of
Good luck, my friend.
Still's Disease.
”
All rights reserved:
www.takingchargeofstillsdisease.com