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  • HBOC Patient & Family Resources

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    National Coalition for Health Professional Education in Genetics
    51 vues2 pages
    This sheet provides resources appropriate for patients and families to learn more about genetic conditions, generally, and hereditary breast and ovarian cancer, specifically. It was developed by NCHPEG as part of the educational program, Hereditary Breast and Ovarian Cancer: Is your patient at high risk? (www.nchpeg.org/hboc)

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    This sheet provides resources appropriate for patients and families to learn more about genetic conditions, generally, and hereditary breast and ovarian cancer, specifically. It was developed by NCHPEG as part of the educational program, Hereditary Breast and Ovarian Cancer: Is your patient at high risk? (www.nchpeg.org/hboc)

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    Attribution Non-Commercial (BY-NC)
    Téléchargez comme DOCX, PDF, TXT ou lisez en ligne sur Scribd
    Signaler comme contenu inapproprié
    51 vues2 pages

    HBOC Patient & Family Resources

    Transféré par

    National Coalition for Health Professional Education in Genetics
    This sheet provides resources appropriate for patients and families to learn more about genetic conditions, generally, and hereditary breast and ovarian cancer, specifically. It was developed by NCHPEG as part of the educational program, Hereditary Breast and Ovarian Cancer: Is your patient at high risk? (www.nchpeg.org/hboc)

    Droits d'auteur :

    Attribution Non-Commercial (BY-NC)
    Téléchargez comme DOCX, PDF, TXT ou lisez en ligne sur Scribd
    Signaler comme contenu inapproprié
    sur 2

    Hereditary Breast & Ovarian Cancer Program

    Patient & Family Resources


    RESOURCES FOR THE GENETIC EVALUATION PROCESS
    Genetic Counseling What to Expect When Meeting With a Genetic Counselor: An article on Cancer.net, an information source provided by the American Society of Clinical Oncology. http://www.cancer.net/all-aboutcancer/genetics/what-expect-when-meeting-genetic-counselor Testing Decision-making Genetic Testing: An article listing factors to consider when making a decision about genetic testing. Provided by the American Society of Clinical Oncology. http://www.cancer.net/all-aboutcancer/genetics/genetic-testing Testing Decision Aid: A tool to help patients weigh the pros and cons of genetic testing. Provided by Australias Centre for Genetics Education. http://www.genetics.edu.au/Publications-andResources/PublicationsBrochuresandPamphlets/Genetic%20Tests%20for%20Breast%20and%20O varian%20Cancer%20Decision%20Aid Understanding risk Understanding Cancer Risk: An article on Cancer.net, an information source provided by the American Society of Clinical Oncology. http://www.cancer.net/all-about-cancer/risk-factors-andprevention/understanding-cancer-risk Understanding Statistics Used to Estimate Risk and Recommend Screening: An article on Cancer.net, an information source provided by the American Society of Clinical Oncology. http://www.cancer.net/all-about-cancer/newly-diagnosed/understanding-statistics-used-estimaterisk-and-recommend-screening Communicating with Family Sharing Genetic Test Results with Family: An article on Cancer.net, an information source provided by the American Society of Clinical Oncology. http://www.cancer.net/all-aboutcancer/genetics/sharing-genetic-test-results-your-family Family Health History Initiative: Resources provided by the U.S. Surgeon General to help patients open up family communication about health history. http://www.hhs.gov/familyhistory/

    GENERAL SUPPORT
    FORCE: Facing Our Risk of Cancer Empowered: A national non-profit organization providing familyfriendly education about HBOC, a support community, and links to resources. http://www.facingourrisk.org Bright Pink:A support organization specifically for younger women at high risk for breast and ovarian cancer. http://www.brightpink.org Sharsheret: A non-profit organization supporting women of Jewish ancestry facing breast cancer. http://www.sharsheret.org NOCC: National Ovarian Cancer Coalition: A non-profit dedicated to raising awareness and education about ovarian cancer. http://www.ovarian.org

    Published September 2013 NCHPEG All rights reserved

    GENERAL EDUCATION
    Genetics Home Reference: Family-friendly education about the genetic contribution to breast cancer. A resource of the National Library of Medicine. http://ghr.nlm.nih.gov/condition/breast-cancer National Comprehensive Cancer Network Patient Resources: Provides family-friendly educational resources, including translations of guidelines that doctors use to prevent, screen and treat cancer. http://www.nccn.org/patients

    Published September 2013 NCHPEG All rights reserved

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