Académique Documents
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The Project aimed to extend the reflective practice that was occurring in the mental health service to include all partners in a change process, to introduce new practices and to build a quality framework.
TABLE OF CONTENTS
EXECUTIVE SUMMARY.............................................................................1
Introduction ........................................................................................................................ 1 Aims and Objectives ......................................................................................................... 1 Methodology ...................................................................................................................... 1 Model of Collaborative Care ............................................................................................ 2 Implementation .................................................................................................................. 2 Evaluation of Partnership Process .................................................................................. 2 Evaluation of Six Dimensions of Care............................................................................. 3 Achievements .................................................................................................................... 3 Innovation .......................................................................................................................... 4 Key Recommendations .................................................................................................... 4
RECOMMENDATIONS ...............................................................................5
Model.................................................................................................................................. 5 Training .............................................................................................................................. 5 Risk Management ............................................................................................................. 5 Clinical Indicators .............................................................................................................. 6 Key Performance Indicators............................................................................................. 6 Consultancy-liaison Service ............................................................................................. 6 Carer Involvement............................................................................................................. 6 Further Funding................................................................................................................. 6
ACKNOWLEDGMENTS..............................................................................7 BACKGROUND...........................................................................................8
Models of Practice ............................................................................................................ 8 Groups of Consumers ...................................................................................................... 9 Need for a New System of Community Care ................................................................. 9 Demographics of Noarlunga .......................................................................................... 10 Mental Health Service System in Noarlunga................................................................ 10 Early General Practitioner Perspectives ....................................................................... 11 Access to Specialist Mental Health Service ................................................................. 11 Referral Pathways........................................................................................................... 13 Numbers of Consumers with General Practitioners .................................................... 13 Consumer Perspectives ................................................................................................. 13 Carer Perspectives ......................................................................................................... 14 Physical Health Issues ................................................................................................... 14 Literature on Collaborative Models of Care .................................................................. 15 Conclusion ....................................................................................................................... 16 Differences in Attitude and Culture................................................................................ 16 Staff Issues ...................................................................................................................... 17
Identifying a New Model of Care ................................................................................... 30 Recommending a Clinical Communication System ..................................................... 32 Identifying Good Clinical Practices................................................................................ 33 Implementing Change .................................................................................................... 33 Evaluate Change............................................................................................................. 36 Input Measures................................................................................................................ 37 Compliance with Standards ........................................................................................... 37 Measures of Clinical Symptoms .................................................................................... 37 Clinical Indicator Measures ............................................................................................ 38 Sentinel Adverse Events ................................................................................................ 38 Key Performance Measures .......................................................................................... 38 Quality Control Methods in Community Mental Health ............................................... 38 Dissemination of Information ......................................................................................... 39
PROJECT FRAMEWORK.........................................................................40
Staffing ............................................................................................................................. 40 Governance ..................................................................................................................... 40 Role of the Advisory Group ............................................................................................ 41 Terms of Reference ........................................................................................................ 41 Evaluation Strategy......................................................................................................... 43 Changes to Goals ........................................................................................................... 43 Timetable ......................................................................................................................... 44 Overall Cost of Project.................................................................................................... 44
QUALITATIVE REPORTS.........................................................................87
Ability to Provide each Form of Service ........................................................................ 87 Training for Sustainability ............................................................................................... 87 Risk Management Analyses .......................................................................................... 88
REFERENCES ..........................................................................................93
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APPENDICES .............................................................................................1
1. 2. 3. 4. 5. 6. 7. 8. Concepts for Self Management of Mental Illness ......................................................I Agreed Strengths of Partners ................................................................................... III Multi-disciplinary Joint Care Plan Format................................................................ VI Protocol For Preparing Joint Care Plans .............................................................. VIII Joint Care Plans for Staff Training ............................................................................ X Audit for Written Communication with General Practitioner ............................... XVI Summary of relevant Medicare EPC Funding Items .......................................... XVII Revised questionnaires used for evaluation ........................................................ XIX
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The two new phases of care are shared care and consultancy. Implementation The new model of care was implemented with 60 consumers registered with community mental health services. Consumers selected had severe and enduring mental illness, and there was a perceived barrier to discharge from the mental health service. Barriers were a high potential for relapse, existence of legal orders covering treatment or finances, use of disability support services, and dependence on the mental health system. Consumers and their general practitioners were invited to participate in the collaborative arrangement that included evaluation. Evaluation of Partnership Process The project team developed questionnaires that were completed by five stakeholder groups to assess the quality of partnership processes. An experienced independent evaluator managed this evaluation with assistance from trained consumer and carer
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All key performance measures have the potential to be used in a continuous quality assurance process. Achievements The project implemented a new form of collaborative care between General Practitioners and mental health key workers for consumers with moderately complex needs. The new model achieved outcomes with each goal of the project as it provides:
Improved integration by defining four phases of care for clients, allowing an orderly progression that makes best use of the skills of general practitioners and mental health services. Is sustainable as general practitioners use EPC items to reimburse their participation. The project based collaboration on identified strengths of each participant. Improved communication by using joint care plans to record the contribution of each participant. Extended the partnership by including non-government agencies that provide disability support in the partnership. Aboriginal clients participated in the project and gave positive ratings in the evaluation.
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Key Recommendations Key recommendations of the project are to: Use the collaborative model based on four phases of care to provide an orderly progression for clients as they recover. Provide ongoing training for all participants in collaborative care to promote sustainability. Adopt new approaches for risk management including a new system for monitoring side effects of medication, and use of aggregated data to assess risk factors. Develop further models of collaborative care for other client groups, especially consultancyliaison services for clients who are reasonably independent but who require periodic early intervention to prevent relapse.
Training Use materials outlined in this report to form the basis of ongoing training for both mental health staff and General Practitioners to promote the sustainability of initiatives in collaborative care, where training covers attitudes and practices, values and philosophy of care. Provide ongoing training to promote those skills that are required for collaborative work between mental health workers and General Practitioners.
Risk Management Adopt the clinical monitoring system recommended in the Mount Sinai conference for clients who are prescribed anti-psychotic medications to detect side effects, both within the mental health service and for General Practitioners. Further explore appropriate approaches towards clinical risk management in collaborative care arrangements using aggregated data for consumers in programs
Key Performance Indicators Identify key performance indicators to be reported regularly to senior management, such as aggregate rate of use of inpatient mental health services for a program, and identify benchmarks for the Shared Care program
Consultancy-liaison Service Clarify good clinical practice in having non-medical mental health clinicians provide a consultancy-liaison service to General Practitioners for clients who are not currently registered with the service and are not in a state of crisis; where the service is responsive to requests by General Practitioners, provides brief early intervention to clients as required, and provides advisory feedback to General Practitioners about how they might continue to manage presenting issues.
Carer Involvement Further investigate issues around the satisfaction of carers with service delivery
Further Funding Seek opportunities for further funding to continue the partnership work
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General Practitioners asked for early intervention assistance for consumers whose mental health appeared to be deteriorating but who had not yet reached a crisis state. They sought advice about how to manage the consumer, not only for direct services for consumers. General Practitioners asked for a brief liaison service, rather than for an holistic case-management service where the consumer is removed from the care of the General Practitioners for a long period of time. In 2000 General Practitioners commented that the current system in community mental health encouraged dichotomization, as consumers were either in or out of the mental health system, leaving inadequate support for those not in the system. The dichotomized system provided holistic care for some consumers while other consumers received little care from the mental health service. General Practitioners commented that the mental health service was both conservative about discharging consumers and reluctant to readmit previous consumers. General Practitioners commented that the case management approach introduced a spirit of possessiveness towards both consumers and skills, where clinicians spoke about your consumer, and where there was a territorial attitude towards skills that polarized areas of expertise by suggesting that General Practitioners were good at physical health, while mental health services had expertise in mental health care. General Practitioners asked for access to specialist opinions from mental health workers who have experience with particular consumers, noting that there are no objective physical tests to assist General Practitioners in making diagnoses and determinations equivalent to tests that are used to diagnose other diseases. General Practitioners asked for community mental health services to be responsive to their requests as occurs with other specialist services that deal with physical health issues. General Practitioners noted that as primary health care providers, they make referrals to other health specialists and receive feedback from specialists. However the reforms in 1996 that made ACIS the single point of entry to the mental health service had stopped the referral method where the general practitioner as primary health provider makes referrals to the more specialized service and receives feedback from the specialist service.
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The review in the Canadian Journal of Psychiatry (2002) noted that current models of shared care are criticised for being more relevant for acute care and for being less effective for consumers who have severe and persistent problems. Meadows (2002) reported that the CLIPP program in Melbourne offers both shared care and consultancy services. Consultancy is offered predominantly for high prevalence disorders such as neuroses, depression, adjustment disorder and substance abuse. The primary service offered in consultancy is advice to the General Practitioners about appropriate intervention. Shared care is sought by General Practitioners more for low prevalence disorders such as schizophrenia, bipolar disorder, schizoaffective disorder, brief psychosis, and delusional disorder. Conclusion The ECCMH Advisory Group decided to plan a new method of collaborative care that builds on the principles of shared care. It was agreed to plan a model of care that could be used by all General Practitioners in the region instead of focusing services on a few selected General Practitioners and that would involve all clinicians who work as key workers for consumers. It was agreed to develop a model of collaborative care that in time can be extended to most mental health consumers. Differences in Attitude and Culture Literature discussing collaborative care between General Practitioners and mental health services in Australia note that these services have developed separately and have adopted so many different practices as to have different cultures (Hickie, 1999; Holmwood et al., 2000; Keks et al. 1998). The literature identifies a number of issues where attitudinal differences need to be addressed before a successful partnership can be introduced. Key issues where there are attitudinal and cultural differences in practice include: Reimbursement and funding Confidentiality Ability of consumers to self manage their illness Views about recovery Risk attitudes Views about case management Role of family members Expected outcomes of case management Access to disability support Prevalence of conditions as being high or low
The ECCMH project decided to address underlying attitudinal issues to establish a firm foundation for the cooperative venture.
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COLLABORATIVE CARE IN MENTAL HEALTH IN NOARLUNGA ACTION PROCESSES: STAKEHOLDER DISCUSSION AROUND PRINCIPLES AND PHILOSOPHY
The project sought to encourage reflective practice amongst partners that was similar to the reflective practice that was occurring within the mental health service. The ECCMH project was asked to plan, implement, and evaluate change. The project was organized using a participatory action research paradigm that is based on cycles of activities where each cycle includes components of: Planning by incorporating ideas from three sources of information: literature, opinions of experienced clinicians, and information from outcome studies Implementing the new partnership process for one consumer group Evaluation by measuring both processes and outcomes to assess six dimensions of quality of health care, together with processes that are important in a successful partnership Refining concepts and commencing a further cycle with another consumer group
Major topics for planning involved: Attitudinal and cultural issues Good clinical practices
Change was implemented by: Clarifying change management strategies Clarifying risk management strategies Addressing staff issues Clarifying the capacity of General Practitioners to operate in new ways
Focusing on two processes carried out evaluation: Partnership processes Clinical activities using the framework Six dimension of quality
Plan To Produce Sustainable Change Two cycles were planned in the ECCMH project using a participatory action research paradigm. The first cycle focused on consumers who received the medication Clozapine. The second cycle focused on consumers who have a chronic mental illness with associated disability and where there is some barrier to transferring care to a general practitioner. The ECCMH project team identified key processes considered to underpin the success of a collaborative care partnership. Basic elements for the partnership model were introduced in the first cycle and learning from the first cycle was used to refine the model of partnership that was used in the second cycle. There was further learning from the second cycle.
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Confidentiality Holmwood (1998) identified confidentiality practices as one hindrance to the exchange of clinical information that is required in a collaborative approach. The Mental Health Act of South Australia (1993) section 34 has strong provisions to protect the confidentiality of consumer information. Carers commented that confidentiality principles are often cited to exclude them from receiving information they feel they need when caring for their relative.
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Studies provide evidence that people with psychotic illnesses are able to learn to self manage their own illnesses (Fowler, Garety & Kuipers, 1995). The argument that people with a chronic mental health condition are often not capable of making decisions about their own treatment points to the fact that mental illness produces disordered thinking and so impacts directly on decision making skills. It is noted that disordered thinking may improve when the person takes medication. If a consumer takes medication as prescribed, then the person is considered to be compliant. On the other hand there is a risk that a client will experience a relapse if the client stops using medication where the clients cognitive abilities deteriorate to the point where the client becomes unable to make informed decisions. From this perspective, a person who wants to cease medication is considered as a poor decision-maker about their own treatment, as the person makes decisions that are not recommended by their therapist.
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The ECCMH steering group recognized that a proportion of consumers with a chronic mental health condition are able to recover and to regain their capacity to make decisions about their treatment just as occurs with people who have a chronic physical illness. Mental health and physical health conditions have sufficient common features that it appears that methods of self-management used in physical illness can also be used by mental health consumers. During the time of the ECCMH project, Noarlunga Health Services hosted another project that promoted self-management of chronic conditions and this project informed the ECCMH project (Urukalo, 2002). The ECCMH project was also informed by a report by Marwick, Reece and Battersby (2002) conducted at Flinders University involving self-management of chronic physical diseases. This report found that ability of consumers to self manage their condition was a better predictor of number of hours required to support a consumer than either severity or complexity of the condition. They reported that key indicators of successful self management include agreement between the consumer and professional about how to describe the problem and the ability of consumers to communicate with their doctor about both beneficial and adverse effects of medication. The Marwick, Reece and Battersby study promoted a sense of optimism that the self-management approach can be used with mental health consumers. The ECCMH project was informed by a model of self-management of mental illness that is given in Appendix 1.
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The Australian Health Ministers in the National Mental Health Plan 2003-2008 state as one objective Continue to ensure all States and territories have legislation and service provision that protects the rights of consumers and the community. The ECCMH steering group discussed the dilemmas that can arise if the principle of consumer competence to make final decisions about treatment is transferred from physical health to mental health issues. The principle of consumer competence indicates that a health consumer is able to make informed decisions about their own treatment regardless of the nature of the diagnosed illness. Implementing the principle of consumer competence introduces a possibility or a risk that a health consumer may make a decision to cease medication that will increase the likelihood of a relapse of illness. The risk of a relapse may be lower if the treating professional makes decisions about treatment, however this approach is viewed by consumers as being paternalistic. The ECCMH steering group discussed risk issues that arises with any chronic illness, including physical illnesses such as hypertension, diabetes and arthritis.
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Identifying a New Model of Care The project identified a new model of care that was relevant to the changing needs of consumers as they achieved different levels of recovery, made use of identified strengths of stakeholders including consumers, and made use of support provided by carers. The new model of care provides greater continuity of care as it is based on the concept of consumers moving through four phases of care, instead of changing abruptly from being a registered consumer to being discharged to care of a general practitioner.
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It was recognized that while most clients recover and progress through the phases of care, some clients regress. Basic definitions of each phase of care were introduced by stating roles of each participant for each phase of care. Initial definitions did not include precise indicators to identify consumers who are suited to each phase of care. The initial definitions are given in Table 1. The column Role of consumer was developed on the basis of feedback provided by a focus group of consumers.
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Phase
1. Specialist Care 2. Shared Care
Role of Consumer
Consumer seeks specialist assistance Consumer participates in forming the care plan and stating desired outcomes. Consumer attends appointments. Consumer sees the general practitioner regularly for all health needs.
3. Consultancy
RECOMMENDATION 2: Continue to use the model of collaborative care based on phases of care to promote partnership arrangements with General Practitioners. Recommending a Clinical Communication System The ECCMH project recommended that routine clinical communication between the consumer, general practitioner and mental health worker be based on a modified version of the multi-disciplinary care plan as shown in Appendix 3. This form is called a joint care plan. The ECCMH project recommended that General Practitioners be reimbursed for participating in preparing a joint care plan by claiming EPC item 720. The ECCMH project recommended that key workers take a lead role in assisting General Practitioners to prepare joint care plans by following the protocol that is given in Appendix 4.
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Planning for each key intervention strategy is outlined below. i Education About the New Model of Care Key workers employed in the Shared Care program at the commencement of the collaborative care project participated in discussions that clarified the new model of collaborative care. The new model of care was written up. Key workers were asked to nominate consumers who were suitable to participate in the collaborative care project based on established criteria and to educate these consumers about the new form of care using Table 1. General Practitioners who were nominated by selected consumers received a letter inviting them to participate in the collaborative care project. The letter outlined the new model of collaborative care. ii Training Involving Mutual Learning There is a literature about training for professionals who participate in collaborative care (Meadows, 2000; I seru, 1997; Weir and Penrose-Wall, 1999; Garton, 1999; Hazelton, 1999; Harries, 1999; Kosky, Rosen & Phillips, 1999). The ECCMH project established a Joint Training Working Group comprising representatives of stakeholder groups to identify topics where training was required for key workers and General Practitioners, and to organise this training. iii Contentious Issues It was apparent that the collaborative care project involved substantial change in practice for both mental health staff and General Practitioners, and it was anticipated that some changes to practice would evoke attitudinal issues. The project officer and other members of the steering group identified topics that were considered to be more contentious, based on literature and other sources. Potentially contentious issues were brought to the steering group for discussion and resolution. Members of the steering group were aware that they represented wider groups and were encouraged to approach their groups for advice if necessary. The project had funds to organise focus groups on specific topics and this avenue was used to address some topics. iv Pace of Progress Pace of progress was planned to be steady and safe allowing all parties to keep up, even if the pace proved to be slow by some standards. Feedback from all parties was encouraged at every phase. The project commenced with consumers whose needs were moderately complex, being consumers in the Shared Care program.
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One task for the ECCMH project was to find ways of making available to General Practitioners those quality assurance methods that are used in community mental health. The shared care and consultancy phases of care were offered to enable general practitioners to participate in the quality systems that are used in community mental health services. Dissemination of Information The project is required to disseminate information about the project. Dissemination will occur through a combination of: Visiting neighbouring services to explain the collaborative care system Providing copies of the project report, and making available electronic copies Providing a brochure summarizing outcomes Submitting reports to peer reviewed professional journals Visiting other mental health sites in Adelaide and providing reports as invited Giving presentations to mental health conferences
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Some changes in the Advisory Group occurred as the project progressed. The project officer who was first appointed resigned, and was replaced by the team leader who operated 0.5fte as team leader and 0.5fte as project officer. After the change in project officer, a senior staff represented the CCT team leader from the Shared Care program. The Noarlunga community mental health service system was reorganized during the project, and responsibility for the Shared Care program was transferred to a different team leader. Following this change the new team leader attended meetings of the advisory committee. There was regular attendance at meetings by most nominees, with especially strong attendance from representatives of SDGP, General Practitioners, and consumers and carers.
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Objectives Four goals were established for the project: Design a sustainable partnership approach that improves integration of services Implement the partnership approach in a manner that improves communication between stakeholders Evaluate the new system of shared care Extend the shared care partnership to other agencies
Indicators The Funding Agreement outlines a number of indicators. Addressing needs of Aboriginal consumers Sustaining progress by using the Medical Benefits Scheme Enhanced Primary Care items to provide a financial incentive for General Practitioners to continue to participate in the shared care partnership. Incorporating systems and processes into service delivery guidelines for Noarlunga MHS Develop a joint Shared Care agreement between Mental Health services and the Southern Division of General Practice
Outcomes The Funding Agreement identified as expected outcomes of the project: A quality system of shared care that is effective, consumer focused, meets consumer and practitioners definitions of quality, is sustainable, and can be generalized across mental health services. Documentation of the system (eg care plans, workbooks, audit tools) Dissemination of the project using systems such as peer reviews and web sites so as to facilitate adoption of the system elsewhere.
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All of the measures above can be used at an organisational level as part of an ongoing quality assurance process. Evaluation focused on a sample of 60 consumers that comprised half of the consumers in the Shared Care program. The evaluation strategy was planned by the advisory group and was implemented by an independent evaluator and the project officer. Changes to Goals The project team did not propose any changes to the goals and objectives expressed in the funding agreement.
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A further disruption to the project occurred when a hostel for people with mental illness in Adelaide city closed and a number of people were accommodated in the Noarlunga area and were referred to the Shared Care program. This increase in demand for clinical time drew attention away from the ECCMH project for a period, and raised needs of consumers who lived in supported accommodation. Overall Cost of Project The ECCMH project operated within the budget provided. The Southern Division of General Practice assisted the project significantly by making available time from their Liaison Officer. Noarlunga Health Services also contributed in a variety of ways including making available time of all of the staff who attended evening meetings of the advisory committee, provision of goods and services including administration support, a room and desk, computer facilities, photocopying and so on.
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IMPLEMENTATION OF PROJECT
This section describes the detailed steps required to plan a new system of care. Cycle 1- Clozapine Planning a System of Collaborative Care In the case management system of care, MHS staff and General Practitioners worked successively or one after the other so that at any point in time one or other party is responsible for care. The new form of collaborative care is distinctive as both the General Practitioners and MHS staff work concurrently or simultaneously with the consumer in phases of joint care. A simultaneous approach to care is viable if there are reasonably clear responsibilities for each partner. When the ECCMH project commenced, a new system of collaborative care involving General Practitioners and mental health staff working simultaneously with consumers was being introduced in Adaire Clinic for consumers who received Clozapine medication. The new system of collaborative care involved a number of features that appeared likely to inform the larger project. Features of the Clozapine partnership that appeared relevant for the larger project are summarized below. Good Clinical Practices for Cycle 1 Established clinical practice when prescribing Clozapine in a shared care partnership is recorded in a manual provided by the pharmaceutical supplier Novartis called, Clozaril shared-care program protocol (Novartis, 2003). The mental health clinic assesses the suitability of Clozapine for an individual consumer, discusses the option of taking Clozapine with the consumer, and with the informed consent of the consumer commences Clozapine medication. The clinic provides total care while Clozapine medication is being introduced and stabilized. The clinic assess when the consumer is ready for a shared care arrangement. The shared-care arrangement is summarized in terms of the following clinical practices. The general practitioner performs the following: General practitioner makes monthly appointments with the consumer, checking compliance and side effects including general health measures of blood pressure, monitors mouth and throat, temperature, heart sounds and pulse rate. General practitioner organizes for consumers scheduled blood tests to be conducted by a pathology service within two days of the appointment, with the General practitioner receiving results.
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The consumer does the following: Consumer attends General Practitioner appointments Consumer takes prescription to pharmacist for Clozapine to be dispensed.
Pharmacy does the following: Pharmacy sends copies of the Clozapine dispensed to the Clozapine Coordinator.
Mental health services do the following: Provides a nurse with the role of Clozapine Coordinator who coordinates with general practitioners, functions as key worker, and enters information on the Clozapine monitoring system Provides a psychiatrist who reviews clients at 6 monthly intervals or as requested by the General practitioner
Selection of Consumers Consumers who received Clozapine medication were selected as being suitable for a shared care arrangement where the General practitioner took over prescribing if the following inclusion criteria were met: The consumer could nominate a General practitioner to be the treating doctor The consumers mental state was stable The dose of medication was stable
Selection of General Practitioners General Practitioners were invited to participate in the shared care project on the basis of being nominated by a selected consumer as being the consumers usual general practitioner. Treating Team Initial decisions about a treatment program for a consumer who commences Clozapine are made by the treating team involving the treating clinic doctor, consumer, key worker, and carers where relevant.
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Expressed Concerns
Stress of changing over to General Practitioner Long wait in waiting room What about if away on holiday? Where will I get blood tests done? Are General Practitioners properly informed? How do I access Adaire if I need to? Will General Practitioners pick up early warning signs? Do I have to move? How can I look after myself?
Solution
Change will occur gradually at a time that suits the consumer Ask for first appointment after lunch Arrangements can be made via Adaire clinic Any pathology service can take blood for tests. General Practitioners have attended training, and are supported by Adaire Clinic. Contact your previous key worker or ACIS. Early warning signs are recorded on the care plan and General Practitioners are trained to notice these. The change is not compulsory. There are benefits to seeing your General Practitioner. You can attend ongoing support groups.
General Practitioner Concerns Concerns raised by General Practitioners were addressed during the education and feedback session. One concern involved questions about the capacity of consumers to give informed consent to treatment. Refinements from Cycle 1 Adjustments were made to the care plan following experience in Cycle 1. A section was added to allow recording of early warning signs of relapse. The name of the plan was changed to Joint Care Plan.
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Further inclusion criteria were set so that the project would address a number of perceived barriers when transferring care to the consumers General Practitioner. Perceived barriers to discharge were: Consumer received Clozapine medication that requires very close monitoring Consumer was on a Community Treatment Order CTO or an administration order Consumer received disability support from a non-government agency for mental health reasons, requiring coordination Consumer was reluctant to be transferred or was dependent on mental health services
Consumers were nominated by their key workers to include individuals with all of the characteristics above. Note that all inclusion criteria refer to characteristics of consumers, not to characteristics of General Practitioners.
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Clinical Quality Assurance In the Clozapine model, quality of service provision is monitored primarily using blood tests that are monitored regularly, with results being recorded on CPMS. Other physical tests are conducted about 6 monthly. There is no equivalent physical test of illness for the mental illnesses of psychosis and mood disorders. One method of quality control used in community mental health services is the multi-disciplinary clinical review that reviews consumer management plans. There are practical difficulties in inviting General Practitioners to attend existing clinical review meetings. The advisory committee considered that a multidisciplinary joint care plan meeting that included the consumer and General Practitioner was a reasonable approximation to the method of quality control used in community mental health services. The advisory committee supported use of a Joint Care Plan for quality assurance. Another method of quality monitoring that is being introduced in community mental health emerges from the approach of self-management of a chronic disease, where consumers are taught to identify early warning signs of a possible relapse and to take appropriate action when these warning signs are detected. The care plan format was adjusted to include early warning signs so that all parties were aware of this information. Recording of early warning signs in care plans can be used as a measure of quality of care in promoting consumer independence. Structure of General Practitioner Visits Unlike the case with Clozapine medication, no general principle was identified to recommend a frequency for consumers to visit their General Practitioner. Some medications such as depot medications require attendance at a certain frequency. Frequency of appointments was a topic to be addressed on an individual basis in care plans. Access Pathways The new model of collaborative care provided a means for General Practitioners to access mental health staff for consumers in all phases of care. However this access was time-limited.
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Participation by General Practitioners General Practitioners were selected in cycle 2 on the basis of being nominated by selected consumers as being their treating General Practitioner. A letter was sent to nominated General Practitioner in November 2003 inviting participation in the project for a nominated consumer, together with a one page information sheet that included the model based on phases of care, a statement about the confidentiality principle, and about philosophy of care. This process resulted in 34 General Practitioners and one private psychiatrist being nominated to participate in the project. Of these, 1 General Practitioner cared for 5 consumers, 4 General Practitioners for 4 consumers, 3 General Practitioners for 3 consumers, 3 General Practitioners for 2 consumers, and 24 doctors for one consumer. Some changes occurred in treating General Practitioners during the year of follow-up. At the time of the follow-up all consumers still had a nominated treating general practitioner. Training for General Practitioners Two training sessions were provided for General Practitioners in October/November 2003, covering topics of schizophrenia and bipolar disorder. Fourteen General Practitioners attended from twelve practices, together with two staff of MHS in addition to the presenter.
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CHARACTERISTIC
Gender
DATA 30 30 41.7 years 21-75 years 56 3 1 5.4 years 0.5 to 18 years 35 9 8 4 2 2 12 8 6 27 7 Mean 11.9, range 1 24 Mean 13.4, range 1 36
Age
Male Female Mean Range European Aboriginal Asian Mean Range Schizophrenia Schizo-affective disorder Bipolar disorder Dependent personality Delusional disorder Depression Clozaril medication CTO Administration Order Disability support service Dependence HoNOS LSP
Race
Length of Episode
Primary Diagnoses
Barrier to discharge
Participation by Key Workers During the time of the ECCMH project, the Shared Care program was staffed by the equivalent of 4 fte positions that were occupied by six workers who held positions of clinical mental health nurse, social worker, mental health nurses, enrolled nurse, and paramedical aide. A consultant psychiatrist and a registrar supported key workers. Education for Key Workers Education was provided for key workers in the Shared Care program. One method of education that proved to be very effective was to invite General Practitioners who were participating in the shared care project to attend a meeting of staff so that people could meet personally and discuss issues around the shared care partnerships. These educational meetings were funded by the ECCMH project.
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It is acknowledged that there is a need for ongoing staff training on a number of topics including self management, recovery, carer issues, risk attitudes, expectations of case management, use of EPC items, liaising with General Practitioners, and liaising with carers. RECOMMENDATION 3: That ongoing staff training be provided to cover skills required of mental health workers who participate in collaborative care with General Practitioners. ii - Refinements to definitions By 2004 staff of the Shared Care program had produced a new draft service plan to further clarify the role of the program. The Shared Care program is for consumers who require longer term care that will be provided in partnership with other services including a general practitioner, disability support services and other agencies. Shared Care accepts referrals from other community mental health services who have provided therapeutic interventions and linked consumers to relevant community services. The Shared Care program consolidates interventions that have been commenced by the referring service and accepted by the consumer, by providing these interventions at a less intense level. Consumers are assessed as requiring a combination of ongoing rehabilitation, relapse prevention and some acute work and crisis management support. On referral consumers have a stable mental state and are not in an acute stage of illness or in crisis. Consumers are expected to move through phases of care that are associated with reducing involvement by mental health staff to prepare the consumer gradually for discharge from the service. The role of carers in supporting consumers is facilitated. In this context, more operational definitions of each phase of care were introduced based on the following proposed indicators that clients were suited to each phase of care: that a consumer is ready for each phase of intervention roles of each professional.
Specialist Care The specialist care phase of the Shared Care program is for consumers who have already received specialist input from a community mental health team, and who are assessed as requiring several months of continuing multi-disciplinary input from a clinic doctor and key worker to maintain progress.
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Shared Care A consumer is referred to the shared care phase if there is a clear contributing role for both a key worker and General Practitioner, with the clinic having a role of consultancy to other professionals. Consumers have many of the following characteristics: Consumers mental state and life situation have been stable for three months Consumer understands and accepts diagnosis and recommended treatment Medication has been stabilised and can be prescribed by a General Practitioner Consumer is able to keep appointments Consumer will contact the general practitioner if early warning signs occur Consumer may have a physical illness that is being treated by a General Practitioner Consumer may be under a legal order involving treatment or finances requiring oversight by mental health services Carers are knowledgeable about the consumers condition and are supportive
Consultancy A consumer referred to the consultancy phase is able to receive services from a General Practitioner. The General Practitioner maintains a link with the clinic so as to be able to access advice on request. The consumer has some of the following characteristics: Consumer regularly sees a primary health practitioner such as a General Practitioner
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General Practitioner care A consumer referred to General Practitioner care has no greater need than other people to be registered with the mental health service and can re-access mental health services by following an agreed pathway to care. The consumer has the following characteristics: Consumer regularly attends appointments and cooperates with treatment Consumer asks to be transferred to General Practitioner care Consumer has self managed for a period of six months without a need to contact the clinic
RECOMMENDATION 4: Invite staff of the Shared Care program to review operational definitions that distinguish phases of care to increase confidence in use of each phase of care. iii Attitudes towards consumers in each phase of care As consumers achieve different stages of recovery and move into different phases of care, changes are required in the supportive attitude that is displayed by their treating team. Significant changes in practice by the treating team are required as a consumer recovers and progresses through phase of care as summarised below. Specialist Care Key worker pro-actively contacts the consumer at an agreed frequency to review mental health issues. Key worker contacts the general practitioner on receiving a referral and at periodic intervals to pass on information. Shared Care Key worker initiatives contact with the consumer at agreed intervals. Key worker initiates contacts with the General Practitioner. Key worker performs activities stated in the joint care plan. Key worker reduces frequency of initiated contacts with consumer. Key worker encourages consumer to resolve own crises.
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RECOMMENDATION 6: That the Division of Mental Health consider routinely providing General Practitioners with information used in the CLIPP program when transferring care to the general practitioner. v Monitoring for side effects of medication While the ECCMH project was in progress literature was being published about issues that require monitoring with consumers who take anti-psychotic medications (Citrome & Jaffe, 2003; Lebovitz, 2003; Liebzeit, Markowitz & Caley, 2001). Early antipsychotic medications were effective in reducing positive symptoms of psychosis, but produced two notable side-effects called tardive dyskinesia TD and extra-pyramidal symptoms EPS. New anti-psychotic medications were introduced that have been called second generation antipsychotics. The second generation medications are more effective in reducing negative symptoms of psychosis, and are less likely to produce the side effects of TD and EPS.
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MEASURE Personal / family history of obesity, diabetes, dyslipidemia, hypertension, cardiovascular disease Weight and BMI Waist circumference Blood pressure Fasting plasma glucose Fasting lipid profile
FREQUENCY Annually Monthly Annually 12 weeks, annually 12 weeks, annually 12 weeks, every 5 years
The finding that antipsychotic medications are associated with metabolic disease raises a dilemma for therapists. Existing information is that if schizophrenia is left untreated then episodes of illness become more frequent and more severe, and that recovery is more difficult and less comprehensive when treatment is recommenced following a relapse (Davis & Andriukutis, 1986). Schizophrenia is a chronic disease that requires lifelong treatment if relapses are to be avoided. The information that treatment for schizophrenia itself introduces significant risk factors raises a dilemma for therapists.
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Ethics approval was obtained to approach consumers, carers, general practitioner, and disability service agencies to obtain feedback about experience of the new form of service delivery. Dimensions of Care Dimensions of care were identified using a framework provided by the quality professional in the steering committee. Topics were: Safety of care relating to avoidance of harm to consumers arising from either actions or workers or from the environment, and minimizing risks arising from care processes. Appropriateness of care based on likelihood that interventions will produce the desired outcomes, according to available evidence. Effectiveness of care relating to the extent to which consumers actually obtain measurable benefit from care they receive. Consumer participation referring to provision of input by consumers in planning, delivery, monitoring and evaluation of service delivery. Efficiency of service provision referring to the use of resources in achieving value for money. Access to service referring to the equitable availability of services to people according to consumer need, irrespective of geography, socio-economic group, ethnicity, age or gender.
Table 5 gives an overview of the detailed measures gathered within the framework of Six Dimensions of Care. Partnership Processes Partnership process that were considered key to success of a collaborative project were identified by the steering committee, and questionnaires were developed for five stakeholder groups covering identified topics that included six process topics (communication, working together, communication instruments, confidence of practitioners, sharing of information, and payments) and two outcome measures (standards of care, and overall satisfaction). The five stakeholder groups were consumers, carers, general practitioners, non-government disability support agencies, and mental health clinicians. Revisions were made to the questionnaires based on experience in conducting interviews. Copies of revised questionnaires are given in Appendix 8. Questionnaires gathered both quantitative and qualitative information.
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Note that the scales use only positive ratings, giving measures of level of approval. Questionnaires also gathered qualitative comments to provide information about the nature of changes sought by stakeholders, and to cover additional topics that were not included in the eight critical success topics. Evaluation of partnership processes was conducted independently of the project officer and service providers. Evaluation was carried out by a mental health professional with experience in conducting evaluations, with assistance from both consumer representatives and a carer representative who received training both in objective interviewing and in use of the questionnaires. A full copy of the full report by the independent evaluator is available from the project officer.
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ISSUE Safety - Sentinel events Appropriateness of care Indicators of positive consumer outcomes
MEASURE Suicides Medication errors Stakeholders ratings on Standards of care Stakeholder ratings on Overall satisfaction with care Progress through pathway of care
Effectiveness
HoNOS, LSP scores Focus of care Admissions to ED Admissions to psychiatric inpatient unit Use of mental health services by discharged consumers Participation by representatives in project Complaint system Percent of consumers signing care plans Record of early warning signs in care plan Participation in collaborative care arrangement Number of consumers receiving collaborative care service Proportion of consumers with a nominated general practitioner Percent of consumers in each phase of care Involvement of Aboriginal consumers Consumers with other disabilities Number of contacts made in each phase of care Reimbursement for general practitioner Satisfaction ratings from stakeholders on communication, working together, instruments of communication, confidence of practitioners, sharing information, & reimbursement Communication using preferred care plan instrument
Consumer participation
Access
Efficiency of care
Partnership processes
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26 27 7 60
14 3
7 19
1 1 4
3 3 3 9
1 1
17
26
Table 6 shows that of the 26 consumers in specialist care in 2003, 14 consumers remained in specialist care, and 11 moved into less intensive forms of care by 2004 being 7 in shared care, 1 in consultancy, and 3 to General Practitioner care. Of the 27 consumers receiving shared care in 2003, 19 continued to receive shared care in 2004, 1 moved to consultancy, and 3 moved to General Practitioner care. Three consumers moved into the more intensive specialist care.
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Table 6 shows that in 2004 34 consumers were in one of the forms of joint care with a General Practitioner (either shared care or consultancy), giving 57% of consumers in joint care with a General Practitioner. Of the two consumers listed as other, one consumer transferred to the MAC team and one moved to another region. Movement and perceived barriers An analysis was made of relations between phases of care in 2004 and perceived barriers to consumers moving into less intensive forms of care. This analysis showed that: Consumers receiving Clozapine were in both specialist care and shared care Consumers who had been on a CTO were in specialist care, shared care, and General Practitioner care Consumers on an administration order were in specialist care and shared care Consumers receiving disability support were in all four phases of care These data show that perceived barriers did not prevent consumers from progressing through phases of care into joint care with their General Practitioner. Qualitative statements by key workers in the Shared Care program indicate that some key workers were cautious about progressing consumers into the new phases of care. One key worker commented, It looks bad if a consumer has a crisis after you have moved the consumer on. It looks as if you are not doing your work properly. We have to avoid consumers becoming distressed. Another staff commented, What if a consumer was discharged and then was referred back? This would look like we had a revolving door service. Effectiveness Of Care Effectiveness of care refers to the extent to which care produces expected health benefits, and reduces the need for alternative unplanned types of care. NOCC
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A visual examination of HONOS scores shown in Table 7 does not suggest any trend for scores to change as consumers move between phases of care. Similarly a visual examination of LSP scores does not suggest any trend associated with phases of care. NOCC scores can be compared to scores reported in literature. Trauer et al (1999) analyzed HoNOS scores for 2137 consumers registered in community services in Victoria. They classified scores from 0-7 as being low, from 8-13 as being medium, and from 14-40 as being high. The mean score for people with schizophrenia was 10.6, for people with depression was 11.05, and for bipolar disorder was 9.1. By this standard, HoNOS scores of consumers in the sample reflect a medium level of difficulty. Table 7 does not indicate any relation between mean scores on either the HoNOS or LSP measures and phases of care. ii Focus of care Table 8 shows an analysis of relations between phases of care and focus of care as reported in the NOCC system for 27 consumers.
Table 8. Numbers of consumers in each NOCC focus of care FOCUS OF CARE NUMBER OF CONSUMERS 1 Acute care 7 2 Functional gain 2 3 Intensive extended 0 4 Maintenance 18 SUM 27
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While there is another hospital, Flinders Medical Centre, in the overall region the project was not easily able to obtain information about presentations to the emergency department of that hospital. Table 9 shows both numbers of presentations and rate of presentations per year per 100 consumers for each time period. Data are given for both presentations to ED and over-night stays in ED.
Table 9. Presentations to Emergency Department each year July 2002 to July 2003 to June 2003 June 2004 Number in ED 15 14 Rate 25 23 Number of overnight 4 1 stays in ED July 2004 to Dec 2004 3 10 1
74
Table 10. Admissions to psychiatric inpatient unit in each time period July 2002 to June 2003 9 15 July 2003 to June 2004 5 8.3 July 2004 to Dec 2004 1 3.3
Admissions to a psychiatric unit are a measure of severity of relapse as a person requires treatment in a hospital setting. Data are converted to a rate of admissions where rate is the number of admissions per year per one hundred consumers in a group. Table 10 shows that rate of admission to the local psychiatric inpatient unit decreased steadily over time for consumers in the sample. A comparison can be made with bed days reported by Trauer et al (1999) for people who had comparable HoNOS scores. People in the sample reported by Trauer et al used 24.2 bed days per year. This study reports numbers of admissions which reflects on community services where Trauer et al (1999) reported bed days which also reflects on practices in inpatient units. v - Use of mental health services by discharged consumers An analysis was made of subsequent use of mental health services by consumers who were discharged from the Shared Care program to the care of their General Practitioner in the period July 2003 to June 2004. As only a few consumers from the sample were discharged, the analysis included consumers both from the sample and from the larger group of consumers in the Shared Care program. Follow-up was tracked for a minimum period of six months.
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Table 11 shows that the majority of consumers who were referred to their general practitioner required no further follow up by mental health services. The next largest group contacted the emergency mental health service on one occasion. About 10% of consumers were re-admitted to the Shared Care program. Two consumers transferred to another region. Overall, discharged consumers made low use of mental health services in the period immediately following discharge. These figures can be contrasted with statistics about consumers who were discharged from the CCCC team in 1996-1997. Of the 342 consumers who were discharged in that period, 14% re-presented within a year and were re-registered with the team. RECOMMENDATION 8: That the Mental Health Division identifies rates of use of other mental health services that are considered to be appropriate based on information gathered in this project. Consumer Participation The topic of consumer participation is relevant both in terms of project management and in terms of individual consumers. i Participation by consumer representatives Consumer representatives were involved in the ECCMH project from the outset. The local consumer group that expressed concern about the impact of changes on quality of service delivery sought funds for the project following a representation. A nominee of the Noarlunga Consumer Advisory Group was on the project advisory group, as was a carer representative. The consumer representatives chaired some meetings.
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78
79
80
Qualitative statements by key workers indicate that some staff gauge their own functioning in part by keeping themselves busy and by seeing consumers frequently so as to keep their contacts high. One staff commented, I do not use the phases of care. I just respond to consumers needs and see the consumer when I need to.
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In its draft Service Plan, the Shared Care program aims to decrease levels of input by key workers as consumers move through the phases of care. Table 14 shows there is scope to reduce numbers of contacts by mental health staff especially in the phases of shared care and consultancy. Trauer et al (1999) reported that a sample of consumers with comparable HoNOS scores received 84 contacts per year. Trauer et al also found no association between frequency of contact and improvement on HoNOS scores. A proposed average frequency of contact per year for consumers in each phase of care is given in Table 15.
Table 15. Proposed frequency of contact for consumers in each phase of care PHASE Key worker contacts per year 52 26 12 2 Doctor contacts per year 8-12 3-6 2 1 General practitioner contacts per year 12 12 12
RECOMMENDATION 11: That the Division of Mental Health state an expected frequency of contact with consumers in each phase of care. v - Reimbursement for General Practitioners The topic of reimbursement for General Practitioners was examined in the stakeholder questionnaires.
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Summary results from the independent evaluation report are given in Table 16 in terms of mean scores given by each stakeholder group on each topic. The independent evaluator added the topic program structure after receiving comments.
84
Mean scores are interpreted using a criterion that scores of 2 or more on the scale from 0-5 reflect a general satisfaction with a topic, whereas mean scores from any stakeholder group below 2 reflects dissatisfaction that warrants closer investigation. A score of 2 on the scale was labeled as acceptable. The two Aboriginal consumers gave ratings that are generally similar to ratings given by other consumers (pg 78). All stakeholder groups gave generally satisfactory ratings for six of the eight specific topics and for overall satisfaction. The six specific topics are: communication, working together, standards of care, confidence, sharing of information, and payments. Overall, carers gave lower ratings than other stakeholder groups on all topics. Low ratings were given by all stakeholder groups to the topics Joint care plan instrument and program structure. Qualitative comments gathered by the independent evaluator shows that the low rating for the joint care plan instrument reflects a low uptake by key workers in using joint care plans to record clinical planning with General Practitioners. Qualitative comments recorded by the independent evaluator also indicates a need to conduct further work on the detailed definitions of each phase of care in the model of collaborative care, and to provide operational definitions to indicate when consumers are ready to progress to the next phase of care, and to state the duty of care in each phase more clearly. RECOMMENDATION 12: That the Division of Mental Health further investigate issues around the satisfaction of carers with service delivery.
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Ability to Provide each Form of Service The new collaborative care model is based on four phases of care, of which two are traditional and two are new. One issue involves the capacity of the mental health service to provide services that are proposed in the new model of collaborative care. The mental health service was able to provide the traditional specialist care. Following training, key workers in the Shared Care program appeared able to provide the services required in the shared care phase of the new model. Training was required on topics including the rationale for the model of care, the philosophy underlying the model of care, and skills in approaching General Practitioners and preparing joint care plans. It was hoped that the skills and attitudes required to implement collaborative care arrangements might be passed on using a combination of formal presentations and coaching from a more experienced member of staff. Key workers in the Shared Care program were also able to provide a consultancy service to General Practitioners in the initial period after care of a consumer was transferred to the General Practitioner, while the information available to the key worker was still current. Key workers in the Shared Care program experienced greater difficulty in providing an ongoing consultancy service that extended for some years after care of the consumer had been transferred to the General Practitioner. More work is required both to develop a model of ongoing consultancy, and to clarify which part of the mental health service is best suited to provide this form of care. RECOMMENDATION 15: That the Division of Mental Health further develop practices required in a consultancy service. Training for Sustainability The ECCMH project identified a need for ongoing training of mental health professionals if gains made in the project are to become embedded and sustained.
87
RECOMMENDATION 16: That the Division of Mental Health use materials outlined in this report to form the basis of staff development materials to promote the sustainability of initiatives in collaborative care. Risk Management Analyses As discussed above, some stakeholders in the ECCMH project perceived a tension between demand to provide care for more consumers and quality of care provided to existing consumers. There was also concern that a change towards a partnership model of collaborative care might reduce quality of care. The ECCMH project discussed a number of variables associated with risks to quality of care. One traditional approach for managing risk in community health is to focus on issues at the level of individual consumers. For example, root cause analyses are conducted over individual cases where an adverse event has occurred. Another approach for developing informed attitudes about risk issues focuses on overall or aggregate relations between two objective variables. A quantitative analysis can be made of how change in one variable of interest affects another variable of interest. An analysis of risk associated with change can be conducted using a graph where a risk variable (a negative variable whose occurrence is to be minimised) is displayed against a positive variable that is to be maximised. Use of a risk-analysis graph allows managers to discuss the level of risk that is acceptable as a dependent variable is changed. It is proposed that it is preferable for managers to set risk standards for a service instead of leaving individual clinicians to set standards that reflect personal risk-attitudes. For example, a staff member may set a zero tolerance attitude towards clients presenting to the emergency department of the hospital and may spend a great deal of time trying to avoid all presentations to an emergency department, viewing any presentation to the ED as an event that is unacceptable and deserves criticism. An attempt to maintain a zero rate of presentation to ED may result in an over-concentration of resources on a few clients when a crisis management plan would achieve similar outcomes. The ECCMH project discussed but did not resolve the question of how best to identify risk-attitudes that are sustainable for a service.
88
89
The project identified nine factors that were considered to be critical to the success of a collaborative care partnership, implemented these factors, and obtained feedback from stakeholders on the factors in the evaluation. The nine proposed critical success factors are: communication, working together, standards of care, communication instruments, confidence, sharing of information, reimbursement and resources, having a clear model of care, and overall satisfaction with service delivery.
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Goal 4 Extend Partnership to Other Agencies The collaborative care partnership was developed between mental health staff and General Practitioners. Within the project the partnership was extended to those nongovernment agencies that provided disability support to consumers in the project. There have been requests to extend the collaborative care partnership approach to further government health and welfare agencies. Outcomes The project has achieved progress on the following outcomes. A new system of collaborative care has been identified and introduced that provides for joint or simultaneous work between General Practitioners in defined phases of care The new system of care was evaluated using a set of questionnaires that were designed by consumers, carers and General Practitioners The pathway for General Practitioners to communicate with the mental health service regarding consumers registered in the Shared care program has been clarified The model of care is documented in terms of care plans, protocols for some areas of practice and an audit tool The new model of care has the potential to be generalized to other groups of consumers and to other mental health services Measures have been identified that can be used in ongoing quality assurance processes There are plans to disseminate information about the new model of care in a variety of ways to different interest groups
Informed Risk Management The project recommends an approach for producing informed risk attitudes in community mental health. Risk analyses can be conducted using a graphical approach using objective measures where an outcome measure that is to be maximized is plotted against a risk variable that is to be minimized.
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Future Tasks The ECCMH project identified a number of areas where further work could usefully be carried out. To further embed practices, additional work could be conducted within the main focus area of the project, including: Clarifying operational definitions of phases in the model of care Further clarification of new phases of care, especially the consultancy phase Introduce ongoing staff training both for new mental health key workers and for General Practitioners
Key performance measures can be used in an ongoing way, leading to further examination of appropriate risk-attitudes towards consumers. The model of collaborative care can be extended to further groups of consumers.
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APPENDICES
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Risk Situations or Precipitants In both chronic physical and mental illness there are some everyday life situations that exacerbate the illness, and other lifestyle practices that protect good health. Consumers learn to identify risk situations and protective factors, and manage their lifestyle so as to avoid situations that increase risk of relapse unduly. Risk Attitudes Different stakeholders may have differing attitudes towards taking risks, with people who are more willing to take risks being called risk accepters and people who want to minimize risk being called risk averse. Consumers learn to identify their own risk-attitude, and learn to identify the riskattitude of other people such as carers and professionals. An important part of a self-management strategy involves clarifying the risk-attitude that will prevail. Self Management A model of self management for an illness can be based on the pattern of symptoms described above. Consumers and their carers learn to identify each set of symptoms based on personal experience informed by clinic experience. Consumers and carers learn to respond appropriately to each set of symptoms. Consumers who experience early warning signs respond in an agreed manner so as to avoid relapses. If a consumer experiences symptoms of the full illness, then acute treatment is provided. Consumers and their carers are taught to identify residual symptoms and to communicate these to their treating doctor, knowing that it is possible that no further treatment will be available and that the consumer may need to learn to tolerate these symptoms.
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II
For consumers with a diagnosed mental illness A general practitioner is able to: Be the first point of contact for a consumer and carer Assess mental state and take actions as required Monitor physical health issues, especially issues that may precipitate an episode of mental illness Provide routine appointments for a consumer at a frequency that is agreed to ensure quality care Promote consumer competence Prescribe ongoing medication Be aware of psycho-social changes that are likely to affect mental state, and encourage consumers to discuss occurrence of these stressors Recognise indicators of relapse and provide early intervention for risk of relapse, according to a care plan Monitor compliance with medication as indicated in a collaborative care plan Refer to community services as proposed in a care plan III
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Key Worker Skills of a multi-disciplinary key worker include: Assessment of mental state, including giving a second opinion for a general practitioner Take a mental health history Identify suitable forms of intervention Provide specialised education about symptoms of mental illness and treatments Assess a consumers current ability to make normal informed decisions about treatment Provide assertive followup including home visits Investigate any role of psycho-social factors in relapse, and assist self management of these issues Identify lifestyle issues that may impact on mental illness, that the consumer is responsible for Identify mental health crises that require intervention by a specialised mental health service Educate carers about mental health issues Collaborate with General Practitioners in developing care plans Contribute to a case conference Educate consumers about community services and link to services Liaise with other agencies about an individual consumer Conduct a risk assessment Negotiate inpatient support if required Recommend psychiatric assessment as required Access a coordinated multi-disciplinary assessment as required Advocate for a consumer
iv Psychiatrist / Registrar In addition to the skills of a key worker, a psychiatrist is able to provide the following: Review diagnoses made by a primary mental health professional Investigate role of biological factors in a relapse Recommend medications Identify the nature of predisposing, precipitating and perpetuating factors of illness
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IV
Disability Services Non-government disability support services are able to: Provide regular non-specialist contact as required Promote socialisation and integration into community services Accompany consumer to appointments as required Teach daily living skills Support families and carers Provide peer support Provide pre-vocational activities
vii
Consumer Peer Worker A consumer peer worker is able to: Accompany a consumer to appointments Communicate personal recovery experiences
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Phone
Fax
Patient consent obtained and documented? I agree to this Care Plan and have received my copy:
Yes / No
..................................................................................................................... Patient Signature Signature of general practitioner responsible for Care Plan:........................ General practitioners Name and Address:................................................... ..................................................................................................................... Care Plan Review Date:.............................................
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VI
2.
3.
4.
5.
I agree to the above Care Plan .................................................................... Patients Signature Date:.................................................. Review Date / / VII
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September 2003
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IX
Health Care Providers: Name Discipline Steven Ann Harvey Neil Rex Psychiatrist Key worker General practitioner CSI Public Trust
Fax
Yes / No
I agree to this Care Plan and have received my copy: ............................................................................................................. Patient Signature Signature of General practitioner responsible for Care Plan: ............... General Practitioner Name and Address:............................................. ............................................................................................................. Care Plan Review Date:.....................................
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1.
2.
Diabetes
3.
Cholesterol
Monitor. Keep chol < 5.0, TG < 2.0. Support participation in community activities. Live within DSP
Monitor 3 monthly Follow diet, exercise. See dietician 4 monthly. Continue CSI input. General practitioner to renew CSI. Liaise with Public Trust, review need for Admin Order
GP
4.
Social isolation
5.
Finances
3 Excessive spending
I agree to the above Care Plan .................................................................... Patients Signature Date:.................................................. Review Date / /
XI
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Dosage 300 mg
Frequency Daily
Health Care Providers: Name Discipline Dr Harris Martin Lucy Rose General practitioner Key worker Respite services Mother
Phone
Fax
Patient consent obtained and documented? I agree to this Care Plan and have received my copy:
Yes / No
..................................................................................................................... Patient Signature Signature of General Practitioner responsible for Care Plan:....................... General Practitioner Name and Address:..................................................... ..................................................................................................................... Care Plan Review Date: .............................................
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XII
4.
5.
I agree to the above Care Plan .................................................................... Patients Signature Date:.................................................. Review Date / /
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XIII
Dosage 2 mg 20 mg
Frequency Bd Daily
Health Care Providers: Name Discipline Dr Smith Martin Joseph Carol Dr Vogel General Practitioner Key worker Father Sister Psychiatrist
Phone
Fax
Patient consent obtained and documented? I agree to this Care Plan and have received my copy:
Yes / No
..................................................................................................................... Patient Signature Signature of General Practitioner responsible for Care Plan: ....................... General Practitioner Name and Address: ..................................................... ..................................................................................................................... Care Plan Review Date: .............................................
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2. Panic attacks
Use methods of self management for simple anxiety Maintain good relationship
Alex, Martin
3. Concern of father
Alex, Carol
4.
5.
3.
I agree to the above Care Plan..................................................................... Patients Signature Date:.................................................. Review Date / /
XV
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Item 720 provides remuneration for GPs to prepare a care plan for patients with chronic health conditions that requires multi-disciplinary care for six months. At least three care providers from different disciplines need to be named on the EPC Care Plans and evidence of collaboration included in the GP notes. The Care Plan is developed by the GP with the patients and a copy of the Care Plan needs to be provided to the patient and all participants. There is also a discharge Care Plan Item 722 and Item 724 for review of care plans. There are also Items 726, 728 and 730 for GPs participating in a Community Care Plan, Discharge Plan and review of care plans respectively. 3. Case Conferencing Item Numbers (730 773)
There are Items that provide remuneration for GPs to be involved in multidisciplinary case discussions and payments are according to three time tiers 15 30 minutes, 30 45 minutes and over 45 minutes.
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Residential Aged Care Facilities. For organising Items (734 738) for participating Items (775 779); In the Community for organising items (740 744) for participating Items (759 765) and On discharge for organising Items (746 757) for participating Items (768 773).
Health Assessments, Care Plans and Case Conferences can be carried out once annually unless there is a significant change in health status of a patient. Care plans can be reviewed every three months. If a patient has an EPC Care plan they are eligible for up to: 1. Five services from private Allied health providers who are registered with the HIC. 2. Three dental services if oral health is identified, the first service being a dental assessment. On referral from a General Practitioner.
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Comment . 2. Rate your confidence in the ability of Staff of the Adaire Clinic to deal with issues you raise: NA 0 1 2 3 4 5
Comment . 3. Please rate the level of respect shown to you in communication by Staff of the Adaire Clinic: NA 0 1 2 3 4 5
Comment . 4. Rate how easily you believe you can access your GP when you require assistance: NA 0 1 2 3 4 5
Comment . 5. Rate your confidence in the ability of your GP to deal with issues you raise: NA 0 1 2 3 4 5
Comment . 6. Please rate the level of respect shown to you in communication by your GP: NA 0 1 2 3 4 5
Comment .
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Comment . 8. Rate how clearly the care plan states what each professional will provide for you: NA 0 1 2 3 4 5
Comment . 9. Please rate how well you feel you are included in making decisions that affect your care: NA 0 1 2 3 4 5
Comment ..... 10. Rate whether you believe that sharing of information with your carer is satisfactory: NA 0 1 2 3 4 5
Comment . 11. Please rate your overall satisfaction with the total care provided to you: NA 0 1 2 3 4 5
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Comment 2. Rate your confidence in the ability of Staff of Adaire to deal with issues raised by the person you care for: NA 0 1 2 3 4 5
Comment 3. Please rate the level of respect shown to you by Staff of Adaire when discussing the person you care for: NA 0 1 2 3 4 5
Comment 4. Rate how easily you believe the person you care for can access the GP when assistance is required: NA 0 1 2 3 4 5
Comment 5. Rate your confidence in the ability of your GP to deal with issues raised by the person you care for: NA 0 1 2 3 4 5
Comment 6. Please rate the level of respect shown to you by the GP when discussing the person you care for: NA 0 1 2 3 4 5
Comment
LACIE 128 Gb:Klemm Family:Digital Reality Freelance:Customers L-Z:Noarlunga Health Services:NHS Collaborative Care XXI Report:TEXT:Eval Collab Care - Sept 05.doc
Is finance a factor in decisions by the person you care for to see a GP? Yes Partly No
Comment 8. Rate how well the care plan states clearly what each professional will provide for the person you care for: NA 0 1 2 3 4 5
Comment 9. Please rate your satisfaction with your opportunities to participate in decisions when there is a proposal to change the care plan for the person you care for: NA 0 1 2 3 4 5
Comment 10. Rate your satisfaction with the sharing of information with you as Carer: NA 0 1 2 3 4 5
Comment 11. Please rate your overall satisfaction with the collaborative care arrangement: NA 0 1 2 3 4 5
LACIE 128 Gb:Klemm Family:Digital Reality Freelance:Customers L-Z:Noarlunga Health Services:NHS Collaborative Care XXII Report:TEXT:Eval Collab Care - Sept 05.doc
Comment ..... 2. Rate your capacity to find time the meet the needs of this client: NA 0 1 2 3 4 5
Comment ..... 3. Rate how easily you believe you can access Staff of Adaire when you require assistance with the client: NA 0 1 2 3 4 5
Comment ..... 4. Please rate the level of respect shown to you in communication by the Staff of Adaire: NA 0 1 2 3 4 5
Comment ..... 5. Rate how well the Collaborative Care arrangement uses the expertise and skills of both: NA NA 0 0 1 1 2 2 3 3 4 4 5 5
Comment ..... 6. Rate your satisfaction with the Care Plan document to support collaborative work: NA 0 1 2 3 4 5
Comment .....
LACIE 128 Gb:Klemm Family:Digital Reality Freelance:Customers L-Z:Noarlunga Health Services:NHS Collaborative Care XXIII Report:TEXT:Eval Collab Care - Sept 05.doc
Comment ..... 8. Is finance a factor in your participation with this client? Yes partly No
Comment ..... 9. Please rate your overall satisfaction with the collaborative care arrangement for this client: NA 0 1 2 3 4 5
LACIE 128 Gb:Klemm Family:Digital Reality Freelance:Customers L-Z:Noarlunga Health Services:NHS Collaborative Care XXIV Report:TEXT:Eval Collab Care - Sept 05.doc
Comment ..... 2. Rate your ability and confidence to deal with issues raised by this client: NA 0 1 2 3 4 5
Comment ..... 3. What has been the most effective way of contacting the GP and why was this effective?
Comment ..... .. 4. Have you experienced any difficulties contacting GPs? Yes No
Comment ..... 5. Have you contacted the Carer about the client in the last 6 months? Yes No
Comment ..... 6. Rate how well the Collaborative Care arrangement uses the expertise and skills of both: NA NA 0 0 1 1 2 2 3 3 4 4 5 5
Yourself GP
Comment .....
LACIE 128 Gb:Klemm Family:Digital Reality Freelance:Customers L-Z:Noarlunga Health Services:NHS Collaborative Care XXV Report:TEXT:Eval Collab Care - Sept 05.doc
Rate your satisfaction with the structures of the Collaborative Care Programme to support and inform collaborative work: NA 0 1 2 3 4 5
Comment ..... 8. Rate your satisfaction with the Care Plan document to support collaborative work: NA 0 1 2 3 4 5
Comment ..... 9. Is finance raised as a factor in the Collaborative care arrangement with this client? Yes partly No
Comment ..... 10. How could a more effective service be provided by the Collaborative Care Programme?
Comment ..... .. .. 11. Please rate your overall satisfaction with the Collaborative Care arrangement for clients: NA 0 1 2 3 4 5
LACIE 128 Gb:Klemm Family:Digital Reality Freelance:Customers L-Z:Noarlunga Health Services:NHS Collaborative Care XXVI Report:TEXT:Eval Collab Care - Sept 05.doc
Comment ..... 2. Do you / your workers see any issues with the Collaborative Care Programme? NA 0 1 2 3 4 5
Comment ..... 3. Could you rate the support provided by the Collaborative Care Programme?
Comment ..... .. 4. Have you / your workers found any confidentiality issues regarding the Collaborative Care Project? NA 0 1 2 3 4 5
Comment ..... 5. Could you rate the coordination provided by the Adaire Clinic Keyworkers? NA 0 1 2 3 4 5
Comment ..... 6. Are there any areas where you seek training arising from care of mental health clients?
Comment ..... .. ..
LACIE 128 Gb:Klemm Family:Digital Reality Freelance:Customers L-Z:Noarlunga Health Services:NHS Collaborative Care XXVII Report:TEXT:Eval Collab Care - Sept 05.doc
LACIE 128 Gb:Klemm Family:Digital Reality Freelance:Customers L-Z:Noarlunga Health Services:NHS Collaborative Care XXVIII Report:TEXT:Eval Collab Care - Sept 05.doc