CLINICAL DECISION ANALYSIS 2 This semester during my medical-surgical clinical rotation I got to experience how the health care team gets involved during ethical situations. It was very interesting to see the different dynamics involved when there is an ethical issue on the line. There are so many people involved and nothing can happen unless everyone is on the same page. This can be very difficult in these situations because not everyone is on the same page, which leaves the patient in limbo until everyone comes to an agreement. I found it hard to watch this situation unfold because the only person suffering was the patient, who could not speak for herself. The patient I took care of was a 94-year-old female who had come to the hospital a few months prior due to a myocardial infarction. The patient was in the ICU for a few weeks and had multiple complications while there. Once she was discharged to the medical-surgical floor the patient did not heal well. During this time she became very deconditioned. One of the main reasons for her deconditioned state was due to the fact that the patient did not want to except care. Everything that was done for her she refused and would fight the staff if they tried pursuing anything. The patient was very stuck in her ways and did not want our help. She came off as though she did not want to live anymore. This state of mind brought upon a bad spell of depression for this patient. Her attending physician tired putting her on an antidepressant to help her healing and state of mind. However, the family did not want her on these medications due to previous attempts with antidepressants failing. As her depression worsened she ended up refusing all medications and would no longer eat. She also would not communicate with the staff or her family. CLINICAL DECISION ANALYSIS 3 It was then determined that she was no longer in the right state of mind to make medical decisions for herself and her DPOA was instated. Her son was her DPOA and he was very persistent in making sure that his mother lived even if it was not what she wanted. Her living will stated that she did not want artificial nutrition to keep her alive nor did she wished to be resuscitated should the need arise. Although the patients wishes stated that she did not want artificial nutrition it was up to the son on whether or not a nasogastric tube would be placed to help feed and medicate his mother. Prior to my shift of taking care of this patient two previous attempts to put in an NG tube were failed. Both times the patient pulled out the tube and put up a fight, resisting the insertion. Upon the start of my shift with this patient I got report that her body weight had dropped drastically since her initial admission, multiple systems were starting to fail including her kidneys and liver, and her blood sugars through out the night had been drastically low. On top of all of this her PICC line had to be taken out due to a blood clot and the Sergeant that was going to put in a PEG tube refused to due to her condition. Going into this situation my nurse warned me that it would not be an easy day. Decisions were going to have to be made and her family was not going to be happy about any of them. There were basically two options for this patient. Option one was to give her artificial nutrition to keep her alive and option two was to put her on comfort measures. Seeing as she did not handle the processes of artificial nutrition previously we knew that option was almost already out of the picture. Also, even if a NG tube was placed that would only be a temporary fix. This patients CLINICAL DECISION ANALYSIS 4 prognosis was not good and no matter what we do to help her it would only prolong her life for so long. The physician, nurse, and I went into the patients room and explained her current health status and stated the two options to her son. The physician mentioned that in her living will she wished not to receive artificial nutrition as a means of prolonging life. The idea of comfort measures was posed to the son as a valuable option. The physician explained that she believed that his mother would benefit greatly from being on comfort measures. She clearly did not want the treatment that was being offered and the extensive measures we were taking were only upsetting her. It is not the teams ideal situation to make this patients last moments distraught and upsetting. We wanted to make her comfortable and relaxed. When the idea of comfort measures were proposed to the son he freaked out. He believed his mother was nowhere near ready to pass away, despite what the lab work and her physical condition said. He also did not care what her living will said he wanted her to get artificial nutrition. The physician tried reinforcing that she was so deconditioned that the artificial nutrition would only be a temporary fix. She already had multiple system failure and it was inevitable that her time would come sooner than later. Regardless of what was said the son did not want to hear it and he insisted that we put in the nasogastric tube and start the tube feedings. The physician, nurse, and I left the room and talked about what our next step would be. The physician was very angry that the family was refusing to believe that their mother was dying. It was upsetting to her to have to go through with inserting CLINICAL DECISION ANALYSIS 5 the NG tube and artificially feeding the patient because she knew inevitably the patient would not survive. Depict what the physician felt she told the nurse and I to proceed. Though she did insist that we only try putting the tube in one time and that we make the family stay so they could see how much their mother did not want it. As the student nurse taking care of this patient it was tough to do something that I knew the patient did not want. I personally did not get to put the NG tube in this patient but I did help assist. During the situation I felt awful and I could tell the nurse and everyone else assisting felt just as awful. This patient had not talked to anyone in weeks and as we were preparing to do it she was crying and telling us to leave her alone. The son was watching and did not care that his mother was crying. He just kept trying to calm her down and telling her it was for the best. The nurse warned the son that she was only going to try inserting the tube once and if it did not work then she was not going to torture his mother. He insisted that it was fine and to just do it quick. The other second nurse, that was helping assist us, and I held each of the patients hands so she would not resist. I felt so guilty holding her hand, almost as if I was restraining her. As the nurse slipped the tube down the patients nose the patient was crying and gagging. Luckily the tube went it easily. Afterwards though I felt so guilty because the patient proceeded to cry for the rest of my shift. We had to make her a one to one with a LNA because we knew if she did not have someone watching her she would rip the tube out like she had previously. The LNA watching her said the patient did not move or talk for the whole shift she just laid there lifeless and cried. CLINICAL DECISION ANALYSIS 6 After leaving clinical that day I felt like an awful person. It was as if I was restraining the poor lady to keep her alive. This woman was not going to live much longer regardless of her receiving artificial nutrition and during her final moments she was going to be even further depressed. The whole situation was making this women have a very poor quality of life. This is against everything I believe in. During the situation I kept thinking to myself that I did not want to be apart of this. I wanted to just say no and leave. I felt enraged, I wanted to just speak up and yell at the son. It was frustrating because the son was making the health care team out to be the bad people. He thought that all we wanted was to kill his mother. As a health care provider it was so obvious to me that this was not our intention, yet no matter what was said the son would think so. I wanted to tell the son that we were trying to help her and he was the one making her suffer. Instead of saying anything though I just kept my mouth shut and held the patients hand. I was so upset the rest of that clinical day because I did not want to be apart of that situation. Later on thinking back about my thinking during that situation I realized that it was not fair on me to be so judgmental. This family just loved their mother and it killed them to let her go. The obviously did not want to see her suffer but in their minds dying was worse than suffering. They could not come to terms with the inevitable and that is very hard for a lot of people to do. I should have been more understanding and supportive for the family. I have never been faced with their situation and I should not have been so quick to pass judgments. They were going through a hard situation and they were doing the best they could at the time. CLINICAL DECISION ANALYSIS 7 The hardest part about this whole situation was I found out the next week that the patient had passed away three days after the NG tube was placed. This upset me even more due to the fact that the patient could have been comfortable and relaxed during her last breathes. Instead though she was upset and distraught. Although I know I should have been more supportive toward her family it still bothered me greatly that their mother had to suffer during her final moments. If I were in this situation again I would have gone about informing the family differently. Showing and giving examples to them might have been more effective than just telling them. Showing them research or different lab values and explaining what each what meant could have cleared things up. This could have helped them come to terms with what was actually happening. Also, developing a better nurse- client relationship could have helped the family accept what was happening. During the situation the family was very hostile toward the staff and vice versa. If a better relationship had been formed the outcome for this patient may have ended better. The final thing I would have done differently would have been getting the ethics committee involved. There was clearly an ethical issue involved between the two parties. The ethics committee could have helped clear up the situation and made it a more legal situation. During my time with this patient I did not actively do much but it made me self reflect on my own practice beliefs. I truly was uncomfortable with the situation and if I was the nurse I would have not gone through with inserting the NG tube. I would have had to ask my charge nurse to reassign me. This situation also involved patient quality outcome due to the fact that we knew what her outcome was and we CLINICAL DECISION ANALYSIS 8 wanted to make the best of it. Depict trying to make this patients quality outcome the best it could be we were hindered in out abilities to succeed. Everyone involved in this situation was on a totally different page. There was a lot of tension and hostility between both parties. This lead to no one wanting to agree on what was best for the patient. Each party wanted what they thought was best and no one took the patients thoughts into perspective. I think there was a lot of things that could have gone differently through out her time at the hospital. There was a lot of miscommunication between everyone, which ultimately lead to this patient having a poor quality of life at the end. Looking at the clinical guidelines and research has also helped me figure out what would have been the best clinical practice in this situation. In the future I will definitely take these points into consideration. The General Medical Councils guideline (2010) has evidence for the best treatment and care toward the end of life. According to this guideline if the DPOA involved in a patients care asks for something that the doctor considers not clinically appropriate then it is up to the doctors digression whether or not he/she goes forward with the request. If the doctor explains why the request is not favorable and the DPOA still insists, than the doctor still has the right to not perform the task at hand (p. 18-19). In the case of my patient I think that it would have been wise for the physician in charge to have told the family all of the reasons why placing the NG tube was not clinically practical. If they still disagreed with her than she had the right not to go forward with placing the tube. She should have stuck with what she believed in and the patient could have had a better quality of life. CLINICAL DECISION ANALYSIS 9 The General Medical Councils guideline (2010) also states that in the case of a disagreement that cannot be mutually solved a non-biased second party should become involved. This may include an independent advocate, a more advanced colleague, a second opinion, a case conference, or the ethics committee (p. 30). The National Collaborating Center for Acute care (2006) also says that if there is doubt as to what is the best action for the patient legal advise should be sought (p.72). As I said previously, if I were to be involved in a situation like this again I would have gotten the ethical committee involved. It is not fair to any party involved in this situation that have to live with doing something that is unethical to them. By having a mediator it helps alleviate tension and solve the issue in a manner that is expectable to both parties involved. Another valuable piece that could have been useful in my situation is establishing a better relationship with the family. According to the General Medical Council (2010) a good way to handle this situation is to encourage the DPOA to think about what they may want for themselves if they where in this situation. Also, help them to discuss their wishes and concerns (p.32). By having the DPOA put themselves in the patients shoes it takes out the biasness of the situation. It allows them to think about what they truly would want in this situations and not just focus on the thought of the death of their loved one. The National Collaborating Center for Acute Care (2006) recommends not giving Enteral nutrition to those patients in the final stages of life where treatment would just prolong the dying process and would take away the patients comfort and dignity (p.72). This guideline also recommends that if a patients illness is in the CLINICAL DECISION ANALYSIS 10 terminal phase such measures should not be taken to prolong survival unless it is relieving symptoms (p. 72). In the case of my patient the NG tube was not being used as a symptomatic relieving mechanism, it was used to prolong life. This patient was in the terminal phase of her life and the NG tube was still placed, this took away her comfort and dignity. Both of these clinical guidelines made me realize how differently this situation could have gone had the team stepped back and looked at what the best practice is. I truly believe that if the physician stuck to what she believed in and said no or perhaps is an ethic committee got involved this patient would have had a much more comfortable and dignified death. It saddens me that I had to take part in not allowing this patient to die with dignity and if a situation like this arises again I will definitely speak up and look at what the evidence says. Every patient has the right to receive the best practice available and the only way to give this is to know what the research says.
CLINICAL DECISION ANALYSIS 11 References General Medical Council. (2010). Treatment and Care Toward the End of Life: Good Practice and Decision Making. Retrieved from http://www.gmc- uk.org/static/documents/content/End_of_life_9_May_2013.pdf National Collaborating Centre for Acute Care. (2006). Nutrition Support for Adults: Oral Nutrition Support, Enteral Tube Feedings, and Parenteral Nutrition. Retrieved from http://www.nice.org.uk/nicemedia/live/10978/29981/29981.pdf