Volume 1, Issue 1 Fall 2008

Celebrate Life
Team Kentucky
N A T I O N A L K I D N E Y F O U N D A T I O N
O F K E N T U C K Y

PHONE
LIST
F i r s t I s s u e o f C e l e b r a t e L i f e
The National Kidney Dear Readers, be considered for publication. dress. Please send an email
Foundation of
We’d also like to recognize to bmoran@nkfk.org or call
Kentucky Welcome to the National Kid-
800.737.LIFE transplant anniversary dates 800.737. LIFE.
ney Foundation of Kentucky’s
as well as organ donation an-
Kentucky Organ Do- inaugural issue of Celebrate If you are not a member of
niversary dates so please let
nor Affiliate Life! This Newsletter is meant Team Kentucky and would like
800.525.3456 us know when those are! You
to do just that, Celebrate the to join, the process is painless!
all mean so much to our or-
Kentucky Circuit Lives of all those involved with Anyone who has received a
ganization because of your
Court Clerks Trust Transplantation and the con- lifesaving solid organ trans-
For Life willingness to volunteer, share
tinuation of Life. We hope plant--heart, liver, kidney, lung,
866.945.5433 your stories, and create a sup-
that you will join us in connect- and pancreas can join. Bone
port system for others like you.
National Living Do- ing people to the issues that marrow recipients are also
nor Assistance Center For this we thank you and
revolve around the process’ of eligible to participate. Those
(NLDAC) hope that you will continue to
703.414.1600 Organ Donation. ages 18 months-100 years
help us to get the word out
can be apart of our team!
We at the NKFK desire to Cele- about Chronic Kidney Disease
The Transplant Cen- Team Kentucky members
ter at Jewish Hospital brate the Gift of Life with Do- and the crucial need for organ
raise their own funds to travel
502.587.4011 nors, Donor Families, Trans- donation.
and compete in the U.S. Trans-
plant Recipients and those
University of Ken- We request all Team Kentucky plant Games which are held
tucky Transplant who Support them. Please
members to update their email every two years.
Center feel free to make mention
866.285.4337 address’ with us. For those
some things that you would Sincerely,
without an email account, we
like to see featured in Cele-
must verify your mailing ad- NKFK Staff
brate Life. All suggestions will

I N S I D E T H I S
I S S U E :

Welcome Readers 1 T e a m K e n t u c k y T a k e s H o m e 2 0
M e d a l s !
Team Kentucky 1 The U.S Transplant Games The purpose of the U.S. from the United Network for
were held July 11-16 in Pitts- Organ Sharing) people on the
Transplant Games is to pro-
burgh, PA . Over 6000 ath- waiting list for an organ trans-
mote organ and tissue dona-
Volunteer Spotlight 3 letes participated and com- plant in the United States.
tion and organ donor aware-
peted for gold, silver and
ness, as well as to recognize Team Kentucky did an excel-
What is Chronic Kidney Dis- bronze medals in twelve
3 donor families. Currently, lent job competing against
ease?
sports. Congratulations Team
there are over athletes from across the
Kentucky for bringing home 20
4 100,000(Information obtained
Heart Healthy Recipe medals! Cont’d on pg 2
 Pa g e 2 C e l e b r a t e L i f e

T e a m K e n t u c k y

Cont’d from pg 1 Linda Basham Gold 1500 Meter-Katie Raybould

nation. The basketball team
succeeded with only four
players when other teams
had an average of six players
and we were down to only
three players in the champi-
onship game after an ankle
injury Robin Hinton sustained
during a previous game. Well
done gentlemen! The medal-
ists and their competing
sports are listed below:
Team Basketball
Richard McKnight Bronze
Mark McGaha Bronze
Team Golf
Ron Pinchback Bronze
Bill D’Antoni Bronze
Singles Bowling
Dot Duckworth Bronze
Richard McKnight Silver
Ben Meibers Bronze
Singles Golf
Lance Alexander Silver
Silver
2008 Sportsmanship Award
Jessica Owen Gold
Congratulations to all of
our Team Kentucky mem-
bers, you have made us
proud! The next U.S.
Transplant Games will
take place July 30th-
August 4th 2010 in Madi-
son, WI. Become a Team
Kentucky Member! For more
information contact: Lisa

Ron Pinchback Silver

Allgood, Team Manger Place Your
Junie Silvils Gold

Robin Hinton Gold Single Swimming Breaststroke

800.737.5433 or
lallgood@nkfk.org.
Ad
Leslie Howard Gold Shirley Middleton Gold

Mark McGaha Gold Single Track & Field Here

Team Bowling 25 Yard Dash-Riley Speck Bronze
Contact:
Dot Duckworth Gold 100 Meter-Katie Raybould
Bronze bmoran@nkfk.org

“Hope is the
thing with feathers
that perches in the
soul and sings the
tune without the
words and never
stops at all.”
-Emily Dickinson
Team Kentucky pictured at the
2008 U.S. Transplant Games,
Pittsburg, PA.

Second Chance at Life Chapters Second Chance at Life Chapters Second Chance at Life Chapters

Ashland/Huntington Lexington Prestonsburg/Hazard

859.278.3492 859.278.3492 859.278.3492

Hopkinsville Louisville Tri-State

270.839.2211 800.525.3456 800.525.3456
The National Kidney Foundation is offering a series of FREE monthly
interactive telephone discussions called Coffee House Conversa-
More than 26 million Americans have
tions™. These calls are being held to educate and empower you to
become your own best advocate by giving you valuable information some form of kidney or urologic
on different topics related to chronic kidney disease, donation or disease. Millions more are at risk. The
transplantation. National Kidney Foundation, a major
Join us for Coffee House Conversations™ telephone discussions voluntary health organization seeks to
on:
prevent kidney and urinary tract
“Getting the Care You Need”
January 14, 2009 diseases, improve the health and well-
being of individuals and families
& affected by these diseases, and increase
“Knowing Your Rights & Responsibilities” the availability of all organs for
February 11, 2009
transplantation. Through its 51
affiliates & divisions nationwide, the
(Toll free) Number for Calls: 888-603-9220 foundation conducts programs in
Password: KIDNEY research, professional education,
patient and community services, public
Hear featured panelists give presentations, and have the opportu-
nity to ask them questions by registering with the NKF.
education and organ donation. The
Space is limited! Be sure to register by calling 1-888-JOIN-NKF work of the National Kidney
(888-564-6653) or by filling out the attached registration form and Foundation is funded by public
e-mailing it to coffeehouse@kidney.org or fax it to Elizabeth Dun- donations.
phy at 212-889-2038.

I n M e m o r i a m C h r o n i c K i d n e y
D i s e a s e

Carroll H. Williams, Williams; twenty Chronic Kidney Disease is blood vessels, eyes and
60, of Louisville grandchildren and his a condition that damages nerves.
passed away on Friday donor family, Mi- your kidneys. It de- High blood pressure, or
October 10, 2008 at chelle, Burt, Dawn creases your kidneys’ abil- hypertension, occurs
Jewish Hospital. He Miller and the Yates ity to balance your body’s when the pressure of
was a member of Trust Family. Carroll meant fluids and important min- blood against the walls
For Life, Kentucky so much to the Na- erals in your blood, re- of your blood vessels
Organ Donor Affili- tional Kidney Founda- move waste products increases. If uncon-
ates, Second Chance at tion and we will miss from your blood, remove trolled, or poorly con-
Life, Team Kentucky, him so much, our sin- drugs and toxins from trolled, high blood pres-
and an army veteran of cerest condolences to your body, and release sure can be a lead cause
the United Sates of his family and friends. hormones into your blood. of chronic kidney dis-
America military. He
The two main cause of ease, heart attacks and
is survived by his
wife, the former Deb- chronic kidney disease strokes. Chronic Kidney
bie Snellen; daughters, are diabetes and high Disease can also cause
Lexie and Angie Wil- blood pressure. Diabetes high blood pressure.
liams and Karen occurs when your blood (National Kidney Founda-
Kemper; sons, James sugar is too high, causing tion, Kidney Learning
and Scott Williams, damage to many organs System)
in your body, including For more information
and Mike, Don, Scott contact the NKFK
and Brian Shepherd; the kidneys and heart as
800.737.LIFE or lall-
sister, Pauline Hellard; well as good@nkfk.org.
brother, David
 Many thanks to our
O N T H E ROA D T O M AD I S O N ! ! Team Kentucky Spon-
sors! You helped to
Greetings to each of you interests of Team Ken- expected to participate make our trip to this
and I hope you all had tucky in mind in all deci- in fundraising activities. year’s games in Pitts-
an experience of a life- sion making. The Plan- In the current economic
burgh, PA a great suc-
time at the U.S. Trans- ning Committee will meet climate, raising funds
plant Games in Pitts- quarterly in 2009 and will pose a challenge cess.
burgh this year. monthly in 2010. The but we are resilient and
meetings are held in creative and we will
The U.S. Transplant Frankfort, KY to accom- succeed.
Games will be held July modate committee mem-
KENTUCKY CIRCUIT
30-August 4, 2010 in bers who live in the east- The National Kidney
Madison, Wisconsin. ern and western part of the Foundation of Kentucky COURT CLERKS
We will begin planning Kentucky. is looking forward to TRUST FOR LIFE
for Team Kentucky to the 2010 Games and is
travel to the Games Members of the Planning dedicated to the man-
soon. As in the past, a Committee will be asked agement of Team Ken- UK HEALTH CARE
Team Kentucky Plan- to participate on at least tucky. Any questions
ning Committee com- one subcommittee. These regarding Team Ken- TRANSPLANT CENTER
prised of sub commit- include: Fund Raising, tucky should be directed
tees will prepare for all Athlete/Donor Family Re- to the Team Manager,
aspects of “getting to the cruitment, Uniform and Lisa Allgood at 502- MPC PROMOTIONS
Games”. Publicity. This is not an 585-4433 or lall-
inclusive list and other good@nkfk.org
subcommittees may be KENTUCKY ORGAN DO-
The Team Kentucky
Planning Committee added as the Team Man- Best to each of you as NOR AFFILIATES
will be comprised of ager/Planning Committee we get “On the Road to
members from the pro- deems necessary. Madison”!!
fessional transplant/ JEWISH HOSPITAL
organ and tissue dona- All team members will be Lisa THE TRANSPLANT CEN-
tion community, recipi- provided a list of the TER
ents, donor families, liv- Committee members and
ing donors and a mem- are encouraged to share
ber of the National Kid- your thoughts and ideas KENBOWL
ney Foundation of Ken- with them. Communica-
tucky Board of Direc- tion with Team Kentucky
tors. members will be by email,
THE SKIN GROUP, PLLC
These members will be regular mail (for those
appointed by the Team who request it) and the ROBERT H ZAX M.D.
Manager, Lisa Allgood. Celebrate Life newsletter.
All members will be
very capable representa- Team Kentucky raises all WARREN ELECTRIC CO.
tives for Team Kentucky their own money to “get LOUIE WARREN
and will keep the best to the Games” and all ath-
letes are invited and RECIPIENT & DONOR
FAMILY
V o l u m e 1 , I s su e 1 P a g e
V o l u n t e e r
S p o t l i g h t
Pictured: Silvester “Junie” Sivils, Lisa Allgood
(Executive Director NKFK, Manager Team Kentucky)
We would like to thank Junie Sivils for being an
outstanding volunteer. He was the emcee at
The National Kidney Foundation of Kentucky
8th annual Kidney Walk. The Walk took place
on September 20, 2008 and was a huge suc-
cess.
Junie is a kidney recipient and received his
kidney from a related living donor in 1993.
From the moment I met him I was able to rec-
ognize his kindred and easy going spirit. He is
always very encouraging to others and has the
ability to transfer his contagious smile to any
audience. He has been a participant in the
U.S. Transplant Games since 1996 and even
took home a gold medal this year in three on
three Basketball.
The reason Junie participates in the Transplant
Games is because “[I]t gives him a better un-
derstanding about life, that is, we are all the
same”. Thank you for your wonderful attitude
about life and remaining positive throughout
life’s daily struggles.
Did you know that The Living
Donor Assistance Program will
pay up to $6000 in financial as-
sistance to those who qualify.
For a list of guidelines and appli-
cation materials go to:
http://
www.livingdonorassistance.org/
-or-
National Living Donor Assis-
tance Center (NLDAC)
2461 S. Clark Street, Suite 640
Arlington, VA 22202
Phone: 703.414.1600
C e l e b r a t e
Meet Jessica Tandy Owen, Team
Kentucky member and vivacious
fourteen year old. Jessica was
born with biliary atresia, a rare
condition in newborn infants in
which the bile duct between the
liver and small intestines is
blocked or absent. Jessica spent
much of her infancy making trips
to and from the hospital until she
received a liver transplant on
January 25, 2004. Jessica’s
mother became a living donor
when Jessica was in need of a
kidney transplant which she re-
ceived on September 14, 2006.
When you first meet Jessica you
5
Helpful Websites
National Donor Family Council
http://www.kidney.org/
transplantation/donorFamilies/
index.cfm
The NKF transAction Council
www.transplantrecipients.org
U.S Senate
http://www.senate.gov/
L i f e S t o r y
can’t help but fall in love with her
and her exuberant spirit. She
blesses so many people in her life
and could teach us all a few of
life’s lessons. Jessica participated
in the 2008 U.S. Transplant
games where she competed in:
softball toss, bowling and swim-
ming. She received the team
manager’s gold medal for sports-
manship. For Jessica the games
were more than a competition to
beat out one’s opponent but an
opportunity to meet new friends
and others who share in under-
standing the common struggles
held by transplant recipients.

N K F K
250 East Liberty Street, Suite 710
Louisville, Kentucky 40202
Phone: 800-737-LIFE/502-585-5433
Fax: 502-585-1445
E-mail: bmoran@nkfk.org
Website: www.nkfk.org
Share Your Spare!
S a l t - F r e e
Good nutrition is the key to good health
for everyone. It is especially important
for people with chronic kidney disease.
Even with the help of artificial kidney
treatments (dialysis), you cannot get rid
of all the wastes and fluids that build up
in your body from what you eat and
drink. (National Kidney Foundation,
Kidney Learning System)
Try this quick and easy recipe to have
ready during a weekend football game or
for dinner during the week.
Ingredients:
Dough
1/2 package (1 1/4 teaspoon) dry yeast
1 cup warm water
1 tablespoon oil
1 tablespoon sugar
2 cups flour
Sauce
3 oz no-salt tomato paste
1/2 cup water
WE’RE ON THE WEB!
WWW.NKFK.ORG
The National Kidney Foundation of Kentucky
Seeks to Become the State-Wide Leader in
the Prevention of Kidney Disease and a Val-
ued Source of Information and Support for
Kidney Patients and Their Families.
Our Goals Include:
• Supporting Research and Research
Training
• Continuing Education of Health Care Pro-
fessionals
• Expanding Patient Services and Commu-
nity Resources
• Educating the Public
• Shaping Health Policy
• Fund Raising
P i z z a
1/4 teaspoon garlic powder Simmer 5 minutes. Grease a 17x 14
1/2 teaspoon oregano - inch baking sheet. Press dough over
1 tablespoon sugar sheet to edges. Cover with sauce.
1 tablespoon oil
Top with onion, green pepper, beef
1/4 cup chopped onion
and cheese. Bake at 400°F for 20 to
1/4 cup chopped green pepper
30 minutes until dough and cheese
1/2 lb cooked gourd beef, well drained (my
mother would always rinse under cold water are golden brown. Cut into 12 pieces.
to rid the excess oil)
6 oz mozzarella cheese, shredded Per Serving:Serves 12/1 piece per serving
Calories 201
Carbohydrates 19
Directions:
Protein 11
Dissolve yeast in warm water. Stir in 1
Fat 9
tablespoon oil, 1 tablespoon sugar and Sodium 75
enough flour to make a soft dough. Stir Potassium 176
20 strokes. Place in a greased bowl, Phosphorus 115
turn to moisten all surfaces, cover and
let set in warm area. Combine tomato Renal and Renal Diabetic Exchanges:
paste, 1/2 cup water, garlic powder, 1 Meat
oregano, 1 tablespoon sugar and 1 ta- 1 Starch
1 Low Potassium Vegetable
blespoon oil in a small saucepan.
1 Fat