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LEGISLATIVE BEAT
5, ISSUE 4
VOLUME 3, 1 Winning the fight better
Moving towards against colorectal
care cancer
and a cure WINTER 2008
SUMMER 2010
Medical Review Network Although C3 is still considered a young and 100 percent of it went directly
Nancy Baxter, MD, FRCSC organization (we’ll be starting our to Dr. Chou. By the end of 2010, C3
University of Toronto fifth year in March), our friends and will have committed nearly $100,000
advocates feel like old, dear friends to research for late stage colorectal
Al B. Benson III, MD, FACP to us. And as we finish off 2009, it’s cancer (www.FightColorectalCancer.
Northwestern University nice to remember all that we’ve been org/LisaFund).
through together.
Richard Goldberg, MD We’re looking forward to seeing
University of North Carolina We’ve marched on Congress, we’ve old friends and making new ones at
flooded the phone lines to the Capitol, the 2010 Call-on Congress in March
Axel Grothey, MD
we’ve put new research dollars (page 5 and back cover). We hope
Mayo Clinic College of Medicine
toward beating late-stage colorectal that anyone touched by colorectal
Heinz-Josef Lenz, MD, FACP cancer and we’ve held companies and cancer in any way – as a patient,
University of Southern California government agencies accountable to caregiver, family member, friend or
patients. medical professional – will come to
John Marshall, MD Washington, DC to have their voices
Georgetown University Medical C3 is changing the landscape for heard. Our empowering and inspiring
Center colorectal cancer patients. We are able event has had a major impact on
to do this because of the support we colorectal cancer legislation and
Howard McLeod, PharmD receive from you, our friends. Thank research funding.
University of North Carolina you for all that you have done to
Neal Meropol, MD
forward the colorectal cancer cause, On a personal note, I am thrilled to
and all that you have done to help C3 announce that in August, my husband
Fox Chase Cancer Center
become the organization it is today. and I adopted a baby girl. I took some
Edith Mitchell, MD time off in the fall to spend with our
Thomas Jefferson University In the past six months, we said new daughter — time that I cherished
goodbye to Joe Arite, C3’s Policy immensely. The C3 staff and Board of
Daniel Sargent, Ph.D. Director since 2007, who left the Directors didn’t skip a beat while I was
Mayo Clinic College of Medicine organization to follow his heart to knee deep in formula and diapers for
Chicago. We were thrilled to find a three months. They have my unending
Joel Tepper, MD
wonderful addition and perfect fit in gratitude for picking up the extra work
University of North Carolina Catherine Knowles, C3’s new Director with humor, grace and overwhelming
of Policy (page 4). generosity. I returned to work full time
2009 Annual Report We provided another young researcher
in November.
To obtain a copy of C3’s 2009 Annual the opportunity to make a difference So, please join us as we celebrate our
Report contact Jerri Lyn Mooney at in colorectal cancer by awarding successes, which could not have been
1-703-548-1225 our second Lisa Fund Research achieved without your support and
grant to Dr. Jeffrey Chou, who is generosity. We also remember those
x10 or you can
studying colorectal cancer stem cells. who have lost their fight and in their
download a copy The search for the third Lisa Fund memory we will work even harder.
at http://link.
2009 ANNUAL REPORT
Research grant recipient is underway
FightCRC.org/ right now, and will be announced next May you all have a wonderful holiday
09AnnualReport. spring. One hundred percent of the season and a happy new year.
grant funding came from C3 donors,
2 www.FightColorectalCancer.org
PREVENTION
LEGISLATIVE BEAT
C3’s new Director of Policy, Catherine familiarity with the inside workings
Knowles, will be on familiar ground as of regulatory agencies will come
she directs advocates through the halls in handy at C3, where part of her
of Congress and monitors legislation job is to monitor issues affecting
that impacts colorectal cancer colorectal cancer patients at federal
patients. After she graduated from agencies such as the Food and Drug
law school, Catherine spent five years Administration.
working on Capitol Hill before joining
C3 in September. Catherine blogs and posts political
Action Alerts frequently on C3’s
In her former role as legislative website. She holds monthly meetings
counsel for Rep. Kay Granger (R-TX), with the Grassroots Action Committee,
Catherine was in the thick of health plus quarterly conference calls with
care issues facing Congress. Rep. C3 advocates all over the country.
Granger sits on the Appropriations She is available by phone or email if
Committee which funds the National people want advice about local, state
Institutes of Health (NIH) and the or federal political action. She can be
Centers for Disease Control and reached by telephone at 1-703-548-1225
Catherine Knowles, C3 Director of Policy
Prevention (CDC), and also leads x12 or by email at Catherine.Knowles@
several health-related initiatives such FightColorectalCancer.org.
as the Congressional Prevention from other legislative staffers how
Caucus. they brought their personal stories to “C3 has an outstanding reputation
Capitol Hill during Call-on Congress as a group that has accomplished a
Rep. Granger lost her father to
and stood out (in their resplendent tremendous amount in a short period
colorectal cancer, and has made
Cover Your Butt T-shirts) from the of time,” Catherine said. “It is an honor
colorectal cancer one of her top
usual daily blur of lobbyists and to be part of a group that not only pays
priorities. She first introduced the
visitors. attention to the science of colorectal
Colorectal Cancer Prevention, Early
Detection, and Treatment Act (H.R. cancer, but also knows how to rally the
“Legislators are so impressed by
1189) in July 2006, and a part of troops and impact change.”
constituents who use their vacation
Catherine’s job was to keep the bill time and their own money to come
moving forward. H.R. 1189 will create all the way to Washington,” she
a national colorectal cancer screening said. “Their passion and personal
program, making this lifesaving stories have a far greater impact than
measure available to poor, uninsured
Call-on Congress
lobbyists paid to cruise the halls of
and underinsured Americans. Congress.” What: Two-plus days that include
training, networking and visiting
Because H.R. 1189 is also one of This March, it will be Catherine Congress
C3’s top priorities, Catherine had training and escorting C3 advocates
When: March 15–18, 2010
worked closely with Joe Arite, C3’s to visit elected officials to tell their
former Director of Policy, to increase stories as part of 2010 Call-on Who: Patients, caregivers, family, friends
support for the legislation. When Joe Congress on March 15-18. “I’m looking and medical professionals
relocated to Chicago in September forward to working with advocates Cost: $150 plus travel and lodging
2009, Catherine saw it as a perfect from across the country to get H.R. Deadline: Application deadline is
opportunity to join C3 where she could 1189 passed this session,” she says. Feb. 1, 2010
apply her years of experience with
political and regulatory processes to As a graduate of Indiana To register, visit
focus on just one issue: colorectal University Law School, Catherine http://link.FightCRC.org/ConC2010
cancer. has also worked at the Federal
Communications Commission and
Catherine was already impressed the National Telecommunications
with C3’s advocates, having heard & Information Administration. Her
4 www.FightColorectalCancer.org
POLICY & ADVOCACY
6 www.FightColorectalCancer.org
Screening Saves Lives. Do It.
continued from page 3
cancer years before—which would I don’t think there’s a single person Today, with both his colorectal cancer
have strengthened his case for getting who knows me who doesn’t know my and multiple myeloma under control
an earlier colonoscopy. He believes experience with it,” he said. He talks or in remission, Eric Vogt is retired and
screening has saved all of his siblings. to family, to friends and to fellow enjoying his life in southern California
All had colonoscopies and as a result members at Rotary meetings. “I’ll just with his two sons and six grandchildren
some had early polyps removed. None get up and ask: ‘how many of you have nearby.
has developed colon cancer. had your colonoscopy?’ I just tell them
to save themselves some pain and When he thinks about how much
As a result, he shares his story every anguish and get it done. he almost lost he comes to only one
day of his life. conclusion.
“How can we not do something that we
“I talk about colon cancer to everyone. know saves lives?” “Colonoscopies save lives. Get one.”
Steve Baker • Ted Blau • Joe Casone • Nancy Crafts • Janet Crane • Edmond Dowe • Lisa Dubow • Avi Elbachri
Anthony Evans • Fran Hagin • Arlene Hartill • Ian Harvey • Bill Keane • Rae Ann Littler • Joan Maddox • Patricia Ann Martins
Kevin May • David Moskal • Christine Niemi • Patricia Pagliaro • Henrietta Ryder • Christine Teepe • Kenneth Weiner
8 www.FightColorectalCancer.org