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SPRING 2015
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CONTENTS
COVER STORY: Triathlete Colin Hackett isnt letting
cancer slow him down.
SPRING SPOTLIGHT
42
16
29
16
DEPARTMENTS
4 OUR LEAP
6
11
46
12
FOREFRONT
Cycle Around Alberta; Coffee and Melanoma; Most
Loving Person; Shopping Car-Free; Get McHappy;
Meat Sugar and Cancer; Kale Caesar Salad Recipe
NEXT GEN
Young researcher uses studentship to study
cancer-reovirus connection
BEYOND CANCER
14
21
PATIENT ENGAGEMENT
Smart design and the human connection essential
in cancer care
26 A TIME TO LIVE
FEATURES
30 ROLE REVERSAL
35 ALL ABOARD
38
WHY I DONATE
Personal trainer Ike Henry gives back to breast cancer
research in sweat
29 CORPORATE GIVING
42 TOP JOB
50 MY LEAP
46 RESEARCH ROCKSTAR
38
22 ON OUNCE OF PREVENTION
13 SMART EATS
POOLING STRENGTH
A seven-time Ironman triathlete prepares for
his biggest obstacle yet
spring 2015
TRUSTEES
Angela Boehm, Chair
Calgary
Gary Bugeaud
Calgary
Steven Dyck
Lethbridge
Paul Grundy
Edmonton (ex-officio)
Jordan Hokanson
Edmonton
Katie McLean
Calgary
John J. McDonald
Edmonton
Andrea McManus
Calgary
Brent Saik, Vice Chair
Sherwood Park
Sandy Slator
Edmonton
Greg Tisdale
Calgary
spring 2015
We are now a few months into 2015 and it has certainly been an
interesting time for Alberta. Oil prices have placed immense financial
pressures on the province, affecting our budget as well as numerous
industries across Alberta.
Despite these economically challenging times, weve made it clear
that cancer doesnt stop when oil prices drop. Thats why the timing of
this issue seems especially poignant right now. The theme is more
moments, and how important it is to create the moments in peoples
lives they look forward to: a childs graduation, a vacation in the sun or
the birth of a grandchild. We do that by making investments that matter
investments that will detect cancer earlier, improve quality of life and
provide better treatment options. Every investment we make has a
direct line of sight to patients.
Youll read about how we are making life better for Albertans facing
cancer by investing in such research rockstars as Dr. Quincy Chu, who is
a clinical trials star in his own right for accruing the highest number of
patients to Phase 1 trials at the Cross Cancer Institute.
You will hear from exper ts in the field of prevention and
screening and how our researchers are doing their best to be proactive
against cancer.
You will also read compelling stories from Albertans who are desperate for as many moments as they can have with loved ones. Our cover
model, Colin Hackett, is one of our great ambassadors and is taking this
disease head on. There is inspiration to be found in so
many places across this province and we are privileged
Sometimes when a cancer
to be part of that journey.
diagnosis is delivered to
Sometimes when a cancer diagnosis is delivered to
patients, doctors know a cure patients,
doctors know a cure may not always be the
may not always be the goal.
goal. You will read how treating those patients to provide them the best possible quality of life so they can
make the best of those moments is just as important.
In the midst of these economic challenges, we remain committed to
making life better for Albertans facing cancer. Ongoing investment in
research is what will allow us to give every patient that chance. New
drugs, new research strategies and new treatment options that is what
is going to drive us forward and give patients a chance for many, many
more moments.
Myka Osinchuk, CEO
Alberta Cancer Foundation
myleapmagazine.ca
TOGETHER
WERE CREATING
MORE MOMENTS
FOR ALBERTANS
FACING CANCER
Kindness Matters
Cancer care volunteer designated Albertas most loving person
Cody and Eva Borek, a couple from Stettler,
spring 2015
myleapmagazine.ca
Spring Cycles In
The snow is beginning to melt and its a great time
to pedal some of Albertas best path systems
EDMONTON RIVER VALLEY:
The North Saskatchewan River cuts a prominent form down the
middle of Edmonton, and it also provides an ideal locale for a leisurely (or not-so leisurely) bike ride, depending on how far you
want to go. The river valley, itself, acts as a jumping off point for
other bike trips around the city. You can choose trips that suit your
schedule, skill-level and location. For more information and a
map of the citys various bike paths, visit
edmonton.ca/transportation/cycling_walking/bicycle-map
HIGHWOOD PASS:
The Gran Fondo Highwood Pass is a bike tour that winds its way
through 135 kilometres of beautiful Rocky Mountain landscape.
And while the Gran Fondo, itself, is a bike trip that many train for
months to complete, you can tackle this trip on your own and in
any increment that you prefer. You start the ride out of Canmore,
and ride through Peter Lougheed Park into the Highwood Pass.
The ride can be difficult, but can also be easily paced with breaks
and rests.
NOSE HILL:
Nose Hill Park is in the middle of Calgary, but you sure wont feel
like it once you park and start riding. In the northwest quadrant of
the city, Nose Hill features 11 kilometres of walking and biking
paths that vary in terrain from super steep to gently sloping. For
directions to the park, visit calgary.ca
spring 2015
Hamburger Happiness
McHappy Day helps support Medicine Hat cancer centre
Each year, McHappy Days raises thousands of dollars across the country
in a fundraiser for Ronald McDonald House and various local charities. This year,
funds raised in Medicine Hat will go towards the Margery E. Yuill Cancer Centre.
On this one day we bring together our employees, our customers, our suppliers and our friends in the community to raise money for families and their
sick children across the country, says Carly Pancotto, owner/operator of
Medicine Hat McDonalds. On May 7, McDonalds will donate a dollar from
select menu items (like the Big Mac, Happy Meal and McCaf beverages) to a
Ronald McDonald House and local charities in the Medicine Hat region, and that
means the Margery Yuill is included. Some franchises even host fundraising
events leading up to McHappy Day.
McHappy Days is about families and in particular, supporting those going
through a difficult time, says Pancotto. This is why we are pleased to be able to
provide proceeds from McHappy Day towards the new Margery Yuill Cancer
Centre, to assist with furnishing and decorating the pediatric treatment room.
spring 2015
After Powel Crosleys wife Sladjana died of a rare form of ovarian cancer,
INGREDIENTS:
DIRECTIONS:
Caesar dressing
1 clove garlic
4 anchovy fillets
1 Tbsp Dijon mustard
Zest and juice of 1 lemon
cup olive oil
Caesar dressing
Using a fork, crush garlic and anchovies
against the inside of a large bowl. Add
mustard, lemon juice and zest and olive
oil and whisk until well emulsified. Pour
the dressing into a glass jar and set aside.
Kale salad
2 Tbsp olive oil, plus more, if needed
4 thin slices prosciutto, julienned
cup panko crumbs
Maldon salt and black pepper
2 bunches kale, leaves only, julienned
1 cup grated Pecorino Romano
2 soft-boiled eggs, peeled and halved
(optional)
Kale salad
Line a plate with paper towels. Heat olive
oil in a medium frying pan on high. Add
prosciutto and pan-fry until crispy, about
five minutes. Transfer to the paper towellined plate and set aside. Reduce the
heat to low.
Add panko crumbs to the pan, adding
a little oil if required, and toast until
golden, about two minutes. Scrape the
panko into a small bowl, season to taste
12,000 Canadians develop cancer each year due to physical inactivity and being
overweight. Dr. Darren Brenner, who works with the department of cancer epidemiology and prevention research at Alberta Health Services, says many people
tend to forget the role that obesity and low physical activity play as risk factors for
developing cancer.
The evidence is clear that thousands of cancers could be prevented each year
if people paid more attention to diet and exercise, says Brenner, whose research
is focused on how physical activity and obesity relate to cancer risk and survival.
Brenners research also shows a direct relationship between weight and risk of
developing cancer the greater the excess weight, the greater the risk.
The study uses data collected in 2007, which found that 5,771 cancer cases
were attributable to excess body weight and 12,885 to physical inactivity. And
while there could be some overlap between the two groups, previous research
has shown that consuming more calories through food than are burned through
activity can cause several different types of cancer.
Its shocking how few people are getting enough exercise, says Brenner,
whose study was published in the journal Preventive Medicine. The research
notes that only 15 to 20 per cent of people meet the minimum requirements
spring 2015
GOING VIRAL
Mark Ariss Summer Studentship recipient considers
the reovirus as a potential cancer combatant
BY SHELLEY WILLIAMSON
It might contravene a stereotype of university
student behaviour but science undergrad Asha Lal prefers to spend her free time toiling away in the lab than,
well, pretty much anything else.
So when the opportunity for the 2014 Mark Ariss
Summer Studentship came up, working alongside
mentor Dr. Maya Shmulevitz, assistant professor in
medical microbiology and immunology at the
University of Alberta, the second-year psych major
jumped at it. No stranger to beating out fierce competition, Lal had previously sported a white coat as a Grade
11 student under Shmulevitz, as part of the Heritage
Youth Researcher Summer Program, funded in part by
the Alberta Cancer Foundation.
Selected from hundreds of applicants for a HYRS
studentship in 2012, Lal took that challenge in stride.
And Shmulevitz, whos also the chair in molecular virology and oncotherapy, couldnt be more pleased with the
young researchers efforts and attitude both then and
now. In the lab, shes very mature, says Shmulevitz.
As a human shes very thoughtful, shes quite smart
CELL SHOCKER: U of A undergrad Asha Lal
and capable, yet shes very thankful for others, so shes
spent last summer studying how lung cancer
humble, which allowed her to learn a lot. Every opportucells react to the reovirus.
nity that came up, Asha was very interested in discussing
it and learning. She also takes advice very well.
In terms of experiments, Lals ambitions, like her
work ethic, are well beyond her years. Its really hard to ship last summer (made possible through targeted funding from donor Mark Ariss
get summer studentships in your first year, says via the Alberta Cancer Foundation) often saw her toiling into the wee hours studying
Shmulevitz. Theres so much competition, so its quite and logging data. The virus I was working with has a 24-hour replication cycle, so
sometimes I would have to stay until midnight doing 12-hour time frames. Trying to
a statement that she got it.
Shes proven her worth with an incredibly strong manoeuvre my life around the nature of the project, that was a really good chalcommitment to her projects focus: the reovirus as lenge, says Lal.
Ariss, a geologist by trade who volunteers at the Alberta
a potential attacker of
Childrens Hospital, says hes delighted Lal was the first to
cancer cells, which
Trying to manoeuvre my life
Shmulevitz admits sur- around the nature of the project, receive his namesake endowment after witnessing her diligence in Shmulevitzs lab. The stipulation with his donation,
passes the average
undergrads scope or that was a really good challenge, which will support summer students like Lal for five summers,
says Asha Lal.
was that it fund pediatric oncology study. I was looking for
skill. Ashas project was
something to do with pediatric cancer and this specific research
to try to start looking at
cancer cells that let the virus grow really well and can- project came up, so the money was earmarked for Asha to look at the reovirus, says
cer cells that didnt, she explains. She started to look Ariss, who has two older children of his own. It seemed to be a nice fit. Working with
at the details of what the virus does, and she found that kids at the hospital, I see a potential need there, and this certainly could have very
there are certain steps of the virus replication cycle that good ramifications for the general public if they do find something that can use virusare stopped in cancer cells that are not permissive. The es to attack the cancer cells.
idea is that, if we can understand that better, we may be
The once-in-a-lifetime experience was not lost on Lal, whos considering both a
able to predict which cancers might be better or worse medical degree and a doctorate. Especially working with students at such a high
for therapy and be able to manipulate that virus to over- level, it pushes you to do your best. I think thats so important for students to not wait
until they are doing a masters degree to learn how to properly execute a research
come it. She was really dedicated to it.
Far from a nine-to-five job, Lals four-month student- project. These are skills that I can apply to my everyday life.
Alber ta Cancer Foundation
spring 2015
11
Now What?
BY JANINE GIESE-DAVIS
spring 2015
your cancer centre. This can help you tap into deeper aspects of what is meaningful
to you. This might include many creative activities including drawing and painting,
dance, music and telling your story in ways that others can benefit from.
Finding ways to give back to others through volunteer work can deepen a sense of
purpose. There are many ways for people to volunteer, for instance through Alberta
Health Services Patient Engagement (sitting on professional committees that recommend changes to health-care teams), at Wellspring and informally to others in
your friendship networks as they experience cancer in their own lives.
Think about taking part in a research study, because whether it is biological samples, questionnaires or interviews, it is a way for your experience to make things
better for future cancer survivors.
Talk with other survivors to help you to consider different perspectives and expand
your horizons.
Contact a local spiritual care team or clergy member, who can also play an important role in helping you to find meaning in your life after cancer.
These suggestions are only a few of the things others have documented that can
help answer the What now? questions that inevitably arise once cancer treatment
has ended and you are creating the rest of your life. Victor Frankl, a Holocaust survivor and author of Mans Search for Meaning, talked a lot about the importance of
finding meaning in life as a way to rise above even the direst of life-threatening circumstances. Here are two of his most famous quotes:
- Everything can be taken from a man but one thing: the last of the human
freedoms to choose ones attitude in any given set of circumstances, to choose
ones own way.
- Those who have a why to live can bear with almost any how.
myleapmagazine.ca
Breaking
Bread
MEAT AND
ALTERNATIVES
GRAIN
PRODUCTS
VEGETABLES
AND FRUIT
MILK AND
ALTERNATIVES
Grate low-fat
cheese on the
tortilla
Serve low-fat
yogurt for dessert
Serve low-fat
yogurt for dessert
Add cooked
frozen green or
yellow beans
Scramble eggs
Here are some more time-saving ideas to help you have healthy meals at home:
Choose a day of the week to prepare and assemble meal items which can be
quickly put in a slow cooker in the morning, and you will have your meal ready
when you get home.
Cook larger quantities of food when choosing quinoa, brown rice or vegetables,
for example, so you will have them for other lunch or dinner meals
Try a grocery delivery service
Look for businesses in your community where you can assemble meals and take
them home to cook at a later date.
Consider starting a cooking circle or cooking club with friends. These are groups of
people who get together on a regular basis to cook. It can be a great way to develop
skills and prepare healthy and affordable meals.
For more healthy meal ideas and recipes, visit healthyeatingstartshere.ca
Karol Sekulic is a registered dietitian with Alberta Health Services who has expertise and interest
in the areas of weight management and nutrition communications.
spring 2015
13
IN THE
KNOW
14
spring 2015
myleapmagazine.ca
I am a woman in my 30s.
How often should I get screened
for cervical cancer?
spring 2015
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MORE moments
Pooling
Strength
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spring 2015
myleapmagazine.ca
spring 2015
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MORE moments
For the uninitiated, Ironman includes a fourkilometre swim, a 180-kilometre bike ride and a
42-kilometre run. Its a gruelling feat of endurance,
and it wrings its participants through the kind of
physical agony typically reserved for famine, combat
or pandemics. For many, completing that first
Ironman means getting the iconic red Ironman logo
tattooed on you the next day. Luckily you dont need
one for every race you finish thereafter, because
Hackett would be pockmarked like the hood of a stock
car. Hes finished seven Ironmans to date, at just 33
years old.
The plan was to write a book about going from transferred to another hospital, where they tried to open his colon with a stent.
being a fat guy to being at the Ironman World When the procedure failed, an ambulance took him back to the Sturgeon for
Championship in Hawaii, Hackett says. But on bowel surgery. He awoke to find hed had a colon resection and they had biopsied a
November 10, 2014, the plan
spot on his liver. He had a
changed, and suddenly the
in one nostril and two
The plan was to write a book about going from being tube
blog was about more than
in the other. The biopsy
a fat guy to being at the Ironman World Champion- results came in.
just his weight loss. On New
Years Eve 2014, exactly seven
It was debilitating. I was
ship in Hawaii, Hackett says. But on November 10,
years since the resolution
10 days away from doing my
2014, the plan changed, and suddenly the blog was eighth Ironman, Hackett
that turned his life around,
about more than just his weight loss.
Hackett started his first
says. I was still training 100
round of chemotherapy. He
per cent and I had this huge,
had stage four colorectal cancer, and it was incurable.
stage four tumour going. His youngest daughter was just two weeks old. His oldest
was five years old.
At 4 a.m. on November 6, 2014, Hackett was
Hackett already had a bit of a history with cancer. During Ironman Canada in
complaining about bad gas. After a trip to emergency 2010, he met the Cops for Cancer triathlon team, a fundraising group for cancer
at the Sturgeon Community Hospital, he went home, research, and he joined in 2011. He started fundraising at the high school he worked
only to return later for a CT scan that found his at then, Centre High. It seemed like a really great place to focus my efforts, he
bowels were blocked. The doctor gave him morphine says. I lost my grandfather to prostate cancer when I was seven years old. He
and he stayed the night. The next morning, he was didnt get to see me grow up and play football.
18
spring 2015
myleapmagazine.ca
says. He also ran a five-kilometre race just four hours after he finished his first round of
chemotherapy.
The exercise might have something to do with it. There are many studies, both in
curative chemotherapy (to remove cancer completely) and chemotherapy to prolong
peoples lives, where it appears that people who exercise do better than people who do
not, says Sawyer. And there are hints that exercise can decrease naturally occurring
hormones and chemicals in our body that the cancer uses for its own benefits, he says.
Its not immediately evident why exercise can have these benefits, but it at least appears
that it does. And Hackett thrives on this fact.
Meanwhile, the median survival of colon cancer patients increases with each passing
year, thanks mainly to new and stronger drugs. When I was a medical student, the
expected survival was somewhere between six and nine months, Sawyer says. Two or
three years ago, the median survival for patients was about two years; today its pushing
30 months. Sawyer makes no qualms about saying Hackett will have cancer for the rest
of his life, but he also cant help but highlight all the reasons why Hackett shouldnt slow
down.
Speaking to Hackett again, I ask how his consultation went. It wasnt great
news, he responds. But the oncologist stressed that we dont know how these things
work you dont have a stamp on your foot that says when your time is up.
spring 2015
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MORE moments
spring 2015
people at the Polish Veterans Hall in Edmonton for an auction and entertainment,
where he raised more than $21,000.
Hackett is training every day, spending time with his family and updating his blog. A
recent post reads, Cancer. There, I said it. This seems to be one of the most powerful
words in the English language.
And before we finish our conversation, he says, If people talked about the fact
that they have cancer, wed all know more survivors, he says. If everybody talked
about it, we could see how many people have done so well for so long. Nobody
knows these amazing survivor stories that are out there.
myleapmagazine.ca
A Healing Environment
Smart design and the human connection are
potent prescriptions for cancer care facilities
BY JESSICA DOLLARD
Since July 2014, patient and family advisors have
been engaged in conversations about how to create a
healing environment in cancer care. These talks have
been inspirational, and the good news is that according to our patients and families there is room for improvement when it comes to the current cancer care
experience.
Our parents taught us that first impressions matter,
and this holds true when it comes to creating a healing experience. Ultimately, when it comes to cancer
care, we want our first impression to be: You will be
cared for here and youre in good hands. Since we
know thats what our patients and families need to
hear most, how can we clearly communicate it? The
answer requires a perfect synergy between smart
space design and the human connection.
Last fall during a meeting led by exhibit developer and artist Kris Kelly-Frre, the advisors shared
their thoughts on healing environments by using
sticky notes in a four-part matrix using the words: I
like, I wish, What if? and Aha! Not surprisingly, their comments highlighted the importance of
making positive first impressions at the Tom Baker
Cancer Centre.
As advisors considered what they liked and wished
for, one suggested that the lobby of the Alberta
Childrens Hospital provides an example of positive
experience, noting: Adults need colour, too! Following the lead of the suggestion, the advisors recommended the ideal space have a comfortable entrance featuring plants, natural light, calming works
of art, use of natural materials such as wood, a feeling
of spaciousness, big comfy chairs, places of respite,
a view of the surrounding natural environment and
spots to sit and have coffee. Beyond removing the
clutter and chaos of a beyond-capacity cancer centre,
the advisors expressed a longing for a welcoming and
inviting environment to meet patients during one of
the most stressful and scary moments of their lives.
A beautiful environment would only partially
impact patient experience it also needs a human
connection to support it. Among the most powerful
recommendations was to Help us with finding our
humanity. I spent some time with this comment, and
it hit me personally and pretty hard. Not only does
it provide insight into how lost and fearful cancer
patients can feel, but it is also an invitation to help reconnect patients with their
physical, mental, spiritual and emotional selves. All of that is lost (for a time) when
facing cancer. With their suggestions, the advisors reminded us that the first faces
patients often see at a cancer centre are strangers who will tell them that they have
cancer. These first faces are tasked with not only being knowledgeable and friendly, but also with a responsibility to begin the patients healing process.
As youve guessed, Im not a fan of waiting around for resources to create a perfect healing environment. I believe that staff empowerment and personal accountability are two keys toward creating an overall healing experience.
When I walk through the cancer centres entrance and hallways to get to a meeting, I often stop to help if I see someone who looks lost or confused. Truth be told,
there is always someone fitting this description. Now the words, Help me with
finding my humanity, regularly play in my head as I ask them if I can be of help.
With the current absence of comfy chairs and a caf, the responsibility belongs to
every person who works in cancer care to create a more healing environment. No
matter what his or her role or title is, everyone is a caregiver. This mindset is the
beginning of a deeply healing environment.
Jessica Dollard is the patient-centred experience advisor on the Calgary Cancer Project. As a
consultant in engagement and patient experience, as well as an actor, film and theatre producer,
programmer, medical skills trainer and executive certified coach, she brings a creative background
to this work.
spring 2015
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myleapmagazine.ca
An Ounce of
Prevention
Through screening programs, healthy living and
some genetic learning, Albertans are doing their
best to be proactive against cancer
BY COLLEEN BIONDI
o hedge their bets against developing cancer, Albertans are doing their
due diligence. They are eating well, staying active, avoiding environmental toxins and learning about their genetic vulnerabilities. In addition, many are participating in two effective provincial initiatives screening programs for breast, cervical and colorectal cancers, and the human papillomavirus (HPV) vaccine campaign.
Albertas provincial breast cancer screening program has been in operation since
2004, says Dr. Huiming Yang, medical director of Alberta Health Services (AHS)
screening programs. It is recommended that women have mammograms every two
years, between the ages of 50 and 74. Regular breast cancer screening finds tumours
early, when they are small and more treatment options are available. As a result, it
is estimated that breast cancer screening can reduce deaths by 20 per cent. Breast
self-examinations are no longer recommended, as they have not proven to be helpful
in reducing breast cancer deaths and can result in unnecessary anxiety for concerned
women and more unnecessary doctors visits and invasive tests. They are not effective, can actually cause harm and should be discontinued, says Yang.
The Alberta cervical cancer screening program was established in 2000, and it is
recommended that women between the ages of 21 and 69 undergo one Pap test every
three years. This screening tool is highly effective in detecting pre-cancerous cells at
very early stages, and can prevent 90 per cent of invasive cervical cancers. Even if you
have been given the HPV vaccine, says Yang, you should still have regular cervical cancer screening, as the vaccine accommodates only four strains of the virus and is not
100 per cent effective in preventing cervical cancer.
Colorectal cancer screening is targeted at people between the ages of 50 and 74.
Since November 2013, a new fecal immunochemical test (FIT) has been recommended for average-risk Albertans. This stool test is done at home (no dietary restrictions are needed) every one to two years, and then brought to the lab for analysis.
For those at high risk of colorectal cancer, a screening colonoscopy is still recommended, with frequency depending on the results each time if pre-cancerous
polyps are discovered and removed, more frequent screening may be recommended.
For people at average risk (which includes most people between the ages of 50 and
74), regular screening with the FIT is as effective as more invasive colonoscopy over
the long term to prevent colorectal cancer deaths, Yang says.
spring 2015
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MORE moments
Despite the benefits these screening tests bring, Albertas participation rate is sary). It is not only associated
still relatively low. From 2012 to 2013, compliance with the breast cancer screening rec- with cervical cancer (in 90 per
ommendation was 57 per cent (the target rate is 70 per cent). There is a 63 per cent par- cent of cases), but also with anal
ticipation rate for cervical screening (the target is 80 per cent) and it is estimated that cancer (in 80 per cent of cases)
only 50 per cent of the target population is following screening recommendations for and with a certain subset of head
and neck cancer related to the tonsils, the back of
colorectal cancer.
Yang says there are a number of reasons these rates are low. For one, many people the throat and the base of the tongue called orophamay not get screened because they feel well and dont understand the importance of ryngeal cancer (in up to 70 per cent of cases). Over
cancer screening. They may live in remote areas or in small, rural towns and not know the last few decades, there has been a remarkable
how to access the tests. They may be put off by the ick factor, and for some people the increase in the diagnosis of anal cancers among young
tests can be uncomfortable to experience. Vulnerable populations (immigrants, First women (the number has doubled in Alberta between
Nations peoples and the economically disadvantaged) may be particularly at risk due 1975 and 2009) and oropharyngeal cancers in young
to language barriers, cultural norms or being overwhelmed with day-to-day duties and men. Research is still ongoing regarding the rationale
responsibilities. People may also be wary of the risks associated with screenings. The for these new increases, but Doll is unfortunately seeing
mammogram, for example, may result in a false positive or negative result, and there is the statistics coming to life in her clinic.
Because there are no screening programs for anal
exposure to low-dose radiation with the X-rays. Still, the risks are small relative to the
cancer or oropharyngeal cancer, by
benefit incurred, says Yang.
the time symptoms present themThere are initiatives being
There are initiatives being developed
selves, they can be locally advanced
developed to bump up the particto bump up the participation rates for
and debilitating, requiring a long
ipation rates for cancer screening
programs in Alberta. To improve
cancer screening programs in Alberta. course of therapies. We have done
with cervical cancer (due to
access to cancer screening, two
To improve access to cancer screening, well
screening protocols), says Doll.
mobile units travel to rural and
two mobile units travel to rural and
But we need to get a better handle
remote communities to provide
services. By bringing screening remote communities to provide services. on anal and oropharyngeal cancers.
They are an increasing clinical conservices closer to home, these
mobile units funded by Alberta Cancer Foundation also provide women with an cern in a relatively young patient group.
The HPV vaccine is not a magic bullet. It only
opportunity to undergo both a Pap test and mammogram during one visit. Centralized
screening clinics located in Calgary and Edmonton provide blitz screening weekends, protects against four of 100 specific strains of the
and even arrange for transportation for people who cannot easily get to the location. To virus strains 6, 11, 16 and 18 but clinical trials have
help inform Albertans about screening programs, interactive risk assessment tools can shown a significant reduction in the development
be found on the program website (www.screeningforlife.ca). In addition to these tools, of pre-invasive lesions for those who have been
a range of print and online materials about the significance of screening are now cus- administered the vaccine. More time will be needed
tomized for specific populations and are translated into six different languages (French, to generate data related to risk reduction for development of specific cancers, but so far the results are
Arabic, Punjabi, Chinese, Vietnamese and Spanish).
But there is still more work to be done to reach the targets. Research into new and promising.
In the meantime, it is critical for people to be
improved cancer screening tests, as well as innovative approaches to support enhanced
access to cancer screening, is ongoing, and AHS screening programs are also looking at alerted to symptoms related to anal and oropharynways to improve wider-system operations so the entire process is smoother and less geal cancers. For example, if you have a prolonged
unwieldy. Some examples of this include encouraging primary health-care physicians sore throat or neck lumps, or pain eliminating or
to speak to their clients about the benefits of screening and recommend regular screen- bloody stools, see your doctor. With early detection,
ings, being able to book appointments quickly and easily and getting in touch with peo- effective treatment (surgery or radiation and chemople whose results are abnormal in a speedy fashion. Researchers are also exploring the therapy) is possible and can be curative.
Research related to HPV will continue. We are
viability of developing screening programs on other cancer fronts. For example, a pilot
program in Alberta, funded by the Alberta Cancer Foundation, is currently testing a looking at whether HPV-related cancers should be
group of high-risk people for lung cancer. The evidence suggests targeted lung cancer treated differently, says Doll. They hope to explore
the incidence of certain HPV sub-types, what their
screening could reduce deaths by 20 per cent.
Getting more people to benefit from these programs is an important project, accord- molecular differences are and how they respond differently to treatment.
ing to Yang. Quite simply, cancer screening saves lives, he says.
There is much potential with cancer screening and
So will the HPV vaccine, says Dr. Corinne Doll, a Calgary-based radiation oncologist. Gardasil, which is being offered to girls and boys in Grade 5 in Alberta (with a vaccination. In some cases, increased compliance
catch-up opportunity in Grade 9), has been a huge victory in the movement to erad- means preventing cancer completely. In others, it
icate HPV-associated cancers. If one is already exposed to the virus (prevalence is means finding it early and offering more choices and
estimated to be about 70 per cent among young adults, although the virus frequent- less intervention regarding treatment. In most cases,
ly clears itself within one or two years), the vaccine is not effective, so it is import- it means increased quality of life and more treasured
ant to vaccinate early on. At the campaigns outset, the participation rate was fairly moments for individuals to seek and to cherish.
And thats a goal worth pursuing, say Yang and
low, but recent data in the Calgary public school system reports uptake of 70 per cent.
Doll, who remain optimistic about reducing mortalHPV is the most common sexually transmitted disease in the world, and is ity rates associated with cancer. We have impressive
typically contracted through skin-to-skin genital contact (intercourse is not neces- data so far, says Doll. It is a very satisfying time.
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MORE moments
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BY CORY SCHACHTEL
spring 2015
27
MORE moments
And these patients are only expected to live a median remaining. It boils down to priorities, Pelletier says. I advise people to recognize their
length of time of 14.6 months. The goal is to shorten the main support people friends, family, their spouses and children and to focus on those
radiation duration to four weeks, and improve their com- relationships. If you want to make the best of the moment, it behooves you to get closer
fort and convenience, he adds.
to the people you love.
Based on similar studies that found condensed
Of course, relationships arent easy. Fences need mending, roles need re-evaluating
radiation treatments are tolerable for otherwise healthy and, with the help of someone like Pelletier, conflicts need resolving. We hear of
people, Patels team has, since September 2014, ap- cases where cancer brings people together, but the scientific literature says, and
proached all new patients
Ive observed clinically, that its because
diagnosed with glio- We hear of cases where cancer brings the fundamentals of the relationships were
blastoma (between 18
already set. If theres a fracture point, you can
and 70 years old) about people together, but the scientific liter- guarantee cancer will make it wider.
taking part. Those who ature says, and Ive observed clinically,
Then there are the children who must deal
enrol will provide data
with
their mother or father being sick. The
that its because the fundamentals of
that could determine
worst thing, Pelletier says, is to lie or prethe relationships were already set,
future radiation practend nothing is wrong, especially with a brain
tices. A landmark study says clinical psychologist Guy Pelletier. tumour. It becomes very obvious to the child
out of the University
that mom or dad is not well, so lying is a waste of
of Toronto similarly randomized breast cancer patients time, he says. We say very clearly that its not their job to make mom or dad better, its
between three-and-a-half and five weeks of therapy. The the doctors job. Once thats established, it becomes: how do we maintain the structure?
results proved equivalent, and the shortened sched- Ensuring kids are going to school, maintaining friendships, eating properly and doing
ule is now standard. Two weeks may not seem like their chores the continuation of stable parenting, to the extent its possible, is the best
much, Patel says, but an extra half-month free of way to help a child cope, he says. Routine is very important to all people, but particularly
chemotherapy, when you only have 14 months, means a lot. to children.
Whats clear is that cancer is not just a physical affliction. The mental and
The qualitative aspect of those moments is where
Dr. Guy Pelletier, clinical psychologist at the Tom Baker emotional aspects seem, at times, the worse pain, one most of us are lucky to not have to
Cancer Centre, comes in. His main clinical assignment for feel, until we do. And its not just the patients, Patel says. Its the spousal caregivers, who
the past 23 years has been to patients with brain tumours, dedicate themselves despite all the exhausting demands, and the children of any
and while success stories of multi-year survivals exist, the age who show a great deal of courage. Ive seen a lot of good people die in 23 years. Thats
harsh reality remains that glioblastoma is eventually ter- the reality and I knew that when I started. But to help these people at the end of life has
minal. That doesnt mean his patients lives are over, but it been an honour for me. I see it as a privilege. Ive learned what it means to be human,
does force them to look at how they want to live the time and to live a life.
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SHAKE IT UP
BY MARTIN DOVER
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Role
REVERSAL
Doctor turned his own diagnosis into a $3-million endowment
for head and neck cancer research
BY MICHAEL HINGSTON
very cancer diagnosis comes as something of a shock. But when Interfacial Biomechanics Research Program have been
Dr. Murray Mickleborough received his, in 2010, it came with an added announced. Each will receive a total of $150,000 for
layer of surprise: Mickleborough, a long-time maxillofacial surgeon, had a two-year period of research. The first, led by
cancer in his throat, one of the very same areas in which he specialized. Dr. Martin Osswald, is a ground-breaking bench study
that will help scientists generate a specific type of nasal
Suddenly, the doctor had become the patient.
As Mickleboroughs cancer spread to his mandible, he decided he wanted to give back cartilage that frequently needs to be removed following
to one of the institutions that had been instrumental in treating him. But even execu- cancer treatment.
In order to reconstruct a nose, the cartilage must be
tives at the Institute for Reconstructive Sciences in Medicine (iRSM) in Edmonton were
staggered by what Mickleborough had in mind: a $1-million donation that would help harvested from elsewhere in the body of that patient,
find ways to improve quality-of-life outcomes for patients battling head and neck cancer. says Osswald, a maxillofacial prosthodontist and assistant
He was enamoured with the work they were doing [at iRSM], says Ross Porter, professor in the U of As department of surgery. Thats
Mickleboroughs son-in-law, and he felt that some additional resources could take an extra surgical procedure. You basically have to remove
things to the next level. That next level became even more reachable thanks to a tissue from another part of the body, risking many associated complications, he
matching $1-million donation from the Alberta Cancer
says. We got to thinking:
Foundation, and an additional $500,000 gift from the
We got to thinking: if we could
we could generate this
Caritas Hospital Foundation. In all, some $3 million was
generate this cartilage without having ifcartilage
without having
gathered to fulfill the goal that Mickleborough (who
to access these other sites, wed really to access these other sites,
passed away in June of 2011) had envisioned.
wed really be helping our
The question remained, however: what was the best
be helping our patients get back
patients get back to normal
way to go forward? Originally, the plan was to create a
to normal much quicker, says
much quicker.
dedicated research chair position, in Mickleboroughs
Dr. Martin Osswald.
Osswald and his team
name, at the faculty of engineering at the University of
(including
co-investigaAlberta, which would then work in tandem with iRSM.
But, Porter says, recruiting for such a position takes time, and when the hiring com- tors Dr. Adetola Adesida and Dr. Kal Ansari, and their
mittee wasnt able to find a suitable candidate in their initial search, they decided to collaborator Dr. Nils Petersen) hope to instead grow
this cartilage in the lab, using the patients existing
change course.
Instead, what they decided on was a project-based collaboration. Researchers from stem cells as well as special scaffolding that has been
across the U of A were invited to submit proposals that had the potential to substan- 3D printed for the occasion. In addition to saving patially impact treatment for patients with defects of the head and neck, as a result of tients another surgery, Osswald says that this way,
cancer, in any of five different areas. A special emphasis was placed on improving pa- the tissue can be precisely customized ahead of time
according to the individual patients needs. Thats
tients overall quality of life.
Now, the first two projects to be funded by the Dr. Murray E. Mickleborough especially important when dealing with an area as
spring 2015
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BY SHELLEY WILLIAMSON
spring 2015
33
Dont try this at home: Ladders present some of the most dangerous
circumstances, especially when using one alone or on a snowy or wet surface.
Nichols sees people in the emergency room whove been doing maintenance
around the house and using ladders incorrectly. We see people whove been on
a ladder putting up or taking down the Christmas lights, he says. Theyre doing
it the same way they would in the summer, where they assume that the ground is
grippy, and they dont bother to have someone with them. They assume that the
ladder steps are not slippery. Regardless of the season, he says, the common
sense thing would be to have someone out there with you.
Stuart Brideaux, public education officer with Calgary EMS, agrees with Nichols. His team sees home maintenance injuries, and he says your house is not
worth your health. There was a snowfall a man was attempting to push snow
off the roof. He sustained high-fall injuries, resulting in fractures and head injuries, Brideaux says. Its not that he was being purposely unsafe, but perhaps he
might have planned it better. Property can be expensive to maintain, but when
youre working with your own life and body, the risk becomes severe.
Nichols advises asking yourself stop-and-check questions, such as Would I do
this on a jobsite? Does that seem safe? What safety equipment would a contractor
use? He says that its not just the rank amateur at risk. A contractor we saw last
week fell off the roof, and I asked him if he had his safety gear on. He said, Well, I
was working on my own place. At work I wouldnt have done that.
(Dont) put your back into it: With snow comes the never-ending need to
shovel walks, steps and driveways. Throw in some overnight freezing rain and
the injuries mount. While Nichols doesnt see loads of people in the ER whove
thrown their backs out shovelling, it does happen. The common sense advice
around back health is to lift with your legs and not your back, says Nichols.
Theres probably some evidence for ergonomic shovels, he says, but the worst
thing for the back is the bend and twist. The same is true for lifting the kid out of
the back seat, pulling groceries out of the car, or heaving the snow.
Not-so-fancy footwork: Unless you want the trouble of an ambulance ride,
Brideaux suggests dressing for success this winter, starting with proper shoes.
One of the things that people arent careful about and I see this in downtown
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Weights and balance: The New Year brings wellintended resolutions to embrace exercise. Its a great
idea, but take it slow, Nichols advises. Start gently.
If youve put on weight, or those muscles havent
been used a lot, and you go put a whole lot of stress
against a knee for example it will hurt. Instead of
myleapmagazine.ca
ALL
ABOARD
New rowing classes can help you stroke
( stroke ... stroke ...) towards better fitness
BY LYNDSIE BOURGON
spring 2015
35
spring 2015
back into it in Calgary, and there wasnt really anyone doing anything with it, she
says. She began teaching rowing classes on the water at the Glenbow Reservoir, and
then a friend put her in touch with Tallick. She has been teaching at BodyRock since
last September. I love it, she says. The whole point is to get participants energized and excited about rowing.
Storwick has been developing classes to music, to guide the rowing, like a spin
class. Its harder to find music with appropriate beats, but were trying to get some
good playlists in, she says. Right now, Storwicks classes include a rowing warm-up,
some time off the machine doing other exercises (squats, lunges, kettle ball workouts and push-ups) and then hopping back on the rowing machine. When participants are back on the rowing machine, for 500- and 1,000-metre sprints, they work
all-out. She has also led classes structured more intensely 40 minutes straight
spent on the rowing machine, then 15 focusing on core or strength workouts. Sometimes, BodyRock will combine its rowing classes with a TRX class. There is some
technique involved, says Tallick. Its not as hard as people think, but also really
hard at the same time. Storwicks classes usually include around eight participants,
ROWING MOVEMENT
The Catch
The Finish
spring 2015
37
ZUMBA OR BUST
Personal trainer Ike Henry gives back
to breast cancer research the best way
he knows in sweat
BY SAMUS SMYTH
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39
PHOTOS COURTESY ALBERTA CANCER FOUNDATION
Recently, Henry became certified to train cancer papeople add a limit to what they can do, instead of saying I can do more because I have
tients and survivors by completing a six-month course
been taking care of myself to this moment.
Henry is all for progression. He encourages clients and class participants to push and grueling three-hour exam. He was drawn to helpthemselves and see what the body is capable of doing, making him an ideal instructor for ing cancer patients because of the immense toll disease
takes on a person, not just
the BaM initiative.
Bust a Move originally began in Halifax, but
It is important that people know physically, but emotionally as
the annual fundraiser now travels across Canaand understand that the body is like well.
Henry has taken it upon
da and even dips into Australia It was first held
a machine. If you dont keep it in
himself to persuade those
in Edmonton in 2012, when Henry was asked
with cancer that physical acto deliver the opening session before the guest
shape at all times, then trouble
tivity is vital to their survival.
presenter of the weekend, the iconic Richard
begins, says personal trainer and Staying active will improve
Simmons. Although he admits he felt nervous
to open the event before one of the pioneers of
BaM Zumba instructor Ike Henry. their chances of surviving.
And creating new blood cells,
the fitness movement, Henry took on the challenge with the tenacity that has made him the successful instructor he is today, and the or making the blood cells stronger, helps fight cancer,
he explains.
experience made him even more motivated to help with the BaM campaign.
He says many people begin to shy away from exercise
The event is six hours long, and participants need not prepare before taking it on as
three levels of participation are presented. Henry recommends BaM participants pace during chemotherapy because their strength begins to
themselves, but he assures that, with mini-entertainment slated for in between work- drastically decline. This is where I come in to provide
that motivation and that physical component to keep
outs and refreshment stands everywhere, its six hours that are sure to be unforgettable.
Zumba is a fitness program that fuses Latin dance with aerobics, creating a dance- them going, he says.
Its all unchartered territory, but Henry is interested
heavy workout. Becoming a Zumba instructor was never a planned career move for Henin exploring it. Jumping jacks and push-ups are great
ry, but his enthusiasm and enlightened mind fit well with the course.
He spent 15 years dancing ballet before slowly made the transition to the Zumba move- options for people with a clean bill of health, but what
ment. I became involved with Zumba because I wanted to add a little bit more repertoire about those with severe spinal injuries or crippling arto my fitness ability, he says. He was also enticed by the freedom and height that one thritis? Henry says too many people are sent to a doctor
can reach in this athletic dance. We do 150 squats in one session participants are having only to find that there are limited ways for them to fulfill
their urge to sufficiently exercise.
fun and giggling, and they dont realize that they are working out, he explains.
Its about making progress and having goals and
Henry relishes the post-workout atmosphere in the studio, when many participants
believe that anything is possible if they push themselves hard enough. Not knowing creating an understanding that we can assist those who
what you just did can elevate your spirit and take your body to a new stage and your are suffering from specific diseases and injuries in their
lives, he says.
mind is just continually active and getting stronger as well, he says.
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JUNE 27 2015
SPRINT TRIATHLON
AND DUATHLON
Get inspired. Register now.
albertacancer.ca/joesteam
Top Job
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Palliative
CARING
spring 2015
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Top Job
spring 2015
myleapmagazine.ca
In 2012, she took a sabbatical to enhance her education in the When that happens, there are feelings that maybe we could have
field, enrolling in the MacEwan University certificate program in done better, she says. But what keeps her motivated is the connechospice palliative care. In 2013, Bailey became certified in hospice tion she feels with her patients and their families. She values being
palliative care nursing through the Canadian Nurses Association. present for this time in their lives, and providing patients what they
And in 2013 she received the Dr. Solomon Levin Memorial Award, need in terms of holistic care. Just the idea you can make it a little
which promotes palliative care
bit better for the patient and family is
We dont like to see anyone die alone,
professional education, knowlquite incredible, she says.
A huge part of her job revolves
edge and skills for Alberta Health
so if there isnt someone there with them
around patient education. We do
Services employees working in
and death is imminent, then we will take
lots of teaching about their diagnosis
cancer care.
that
time and try and be there when they and symptoms. We are always keepThe award was established
in 2007 by the Alberta Cancer
ing patients informed of what is going
are dying.
Foundation, in partnership with
on, she says. Often theyve got lots
the Department of Symptom Control and Palliative Care at the of questions about dying, and what dying is going to look like. We are
Cross Cancer Institute in memory of Dr. Solomon Levin. The ini- available to the family and patient, and if they do want us there at the
tial fund was created through the generosity of Dianne and Irving end we are there with them. We dont like to see anyone die alone, so
Kipnes, in support of the award as well as additional funds received if there isnt someone there with them and death is imminent, then
in memory of Dr. Levin. The award is managed by the Alberta Can- we will take that time and try and be there when they are dying.
Afterward, she focuses her care on family members: sometimes
cer Foundation and Alberta Health Services CancerControl Alberta. Bailey used the award to attend a week-long course, Psychoso- sitting with them, and at other times listening as they talk about
cial Care of the Dying and Bereaved, held by the Victoria Hospice in their loved one. Even years afterward, shell run into families who
Victoria, B.C. It was amazing, she says. It covered so much ma- will thank her and tell her they couldnt have gone through the exterial. Meeting other people at the conference was really incredible perience without her.
as well, and hearing their stories and networking.
Bailey, who expects shell continue working in palliative care for
The most challenging part of Baileys job is when a patients the rest of her nursing career, is planning to earn a masters degree
symptoms at the end of his or her life are difficult to control. in nursing and become a nurse practitioner in palliative care.
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Research Rockstar
BY JEN JANZEN
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nexpected
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Research Rockstar
In 2002, Chu entered a clinical research fellowship at the Institute for Drug Development in San
Antonio, Texas, where he studied the development of
anti-cancer drugs. This training gave him the experience to spearhead, alongside fellow Cross oncologist
Dr. Michael Sawyer, the Cross formal New Drug Development Program.
You could say that becoming an oncologist heavily
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spring 2015
involved in research was a natural compromise between his interest in biochemistry (which is, essentially, studying the makeup of living things) and the medical field.
And he finds the constantly changing treatment landscape to be invigorating. In the
early 2000s, he explains, a drug company might have one or two new drugs a year.
Now, there are 10-15 new drugs each year from each drug company. I knew the development would be fast, but I didnt imagine it would be this fast, he says. Every three
or four months one of the cancer types will change practice.
Chu specializes in thoracic (lung) and soft tissue cancers, and explains that
myleapmagazine.ca
My favourite things:
FAVOURITE PIECE OF CLOTHING: Shoes.
FAVOURITE FOOD: Rustic flavourful food that is not frou-frou: Italian
food, Spanish food and Southern French food. Very dainty Parisian food is
not my thing.
FAVOURITE DRINK: Single-malt scotch.
FAVOURITE CITY: Amsterdam
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By Sam Macdonald
He admits that there were struggles, especialScott Todd is no stranger to running, especially in the name of cancer research.
Todd began his marathon career in 2011, after he was diagnosed with Hodgkins lym- ly in 2012, when he was still in treatment. At first I
phoma. His goal was to complete the Disney World Half Marathon after treatment. was tired just from taking walks, Todd says. It was
Inspired by the runDisney events, he began his Coast to Coast Challenge, which cul- frustrating having such physical challenges in training when I hadnt had them when I trained for my
minated in running a marathon on the east and west U.S. coasts.
first run in 2011. Gradually,
Eventually, Todd completed both the 2012 Disney World
Half Marathon and the 2012 Disneyland Half Marathon. He The runs have provided a goal to Todd worked his way up from
was hooked, and seeing the success of his first two runs, work towards. The generosity and walks to short runs.
Looking back, he doesnt
moved on to complete the 2013 Disney World Tower of motivation from the donations has
regret any of it. After going
Terror 10 Mile night run when he was in remission. The also helped push me to complete
through diagnosis and treatproceeds from each marathon went to support the Cross all the runs, says Scott Todd.
ment myself, I had seen how
through the Alberta Cancer Foundation.
The third round of his fundraiser, which he dubbed Help Me Help Others Like Me: strong my wife was through the whole thing. I knew
Scotts Running Away From Cancer, raised $4,000. Funds raised for the first three that when we received her diagnosis, I could be nothing but the same for her, he says. The runs have
runs totalled almost $15,000.
As if one person in the family with cancer werent enough, with his wife Kristys provided a goal to work towards. The generosity and
diagnosis of the rare Merkel cell carcinoma in December 2013, Todd couldnt pass motivation from the donations has also helped push
up another opportunity to run again. After Kristy received phenomenal treatment me to complete all the runs. Without the donations,
from the Cross Cancer Institute and University of Alberta Hospital, the entire family none of it would have been possible.
Todd says donations go towards great research,
ran the 2014 Disneyland Half Marathon. Just out of treatment, Kristy hit the ground
running participating in the 10-kilometre event, while their daughter ran in the kids medical advancement and improving patient care.
race. The Todd family goal was to raise $4,800, which they exceeded. His latest fund- Kristy and I have sat in the chairs and beds that many
have, and unfortunately many more will, he says.
raiser brought in $9,180, elevating Todds total raised to almost $25,000.
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