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psychiatry
December
2003
ARTICLE
that cultural idioms and signifiers are borrowed, used, and transformed by
particular persons.
Through the notion of work of culture, Obeyesekere (1985, 1990)1
examined how certain religious idioms and signifiers contribute to elaborate the inner experience of the person suffering psychosis. A particular
religious signifier may be interpreted or used differently by people with
psychosis and their families, in different contexts or at different periods of
their lives. Obeyesekere explored the ways in which collective symbols are
appropriated by singular persons and used to express, transform, and
communicate personal experiences of distress and suffering. His notion of
personal symbols expresses the idea that some symbols operate simultaneously at the personal and cultural levels; they allow the expression of
the unconscious thoughts of the individual and provide a basis for selfreflection (private dimension), as well as for communication with others
(public dimension). Because these personal symbols are public and private
at the same time, they provide the person with options, choices, and the
leeway for manipulation. In addition, they can operate either in a progressive way, towards restoration and elaboration, or in a regressive way,
remaining trapped within repetition, personal conflicts, or problems
(Obeyesekere, 1981, 1990).
Resorting to cultural signifiers, and more specifically religious signifiers,
can contribute to articulating personal and interpersonal reactions to
psychotic symptoms and in framing this experience lead to the further
evolution of the disorder. This perspective is demonstrated in the seminal
work of Ortigues, Martino, and Collomb (1967) conducted in a clinic in
Dakar. They showed the particular ways that a patient, Aminata, was able
to solve interpersonal conflicts, and to re-organize her initial psychotic
state of bouffe dlirante while manipulating a series of religious signifiers
that involved her affiliation with the Islamic cult of rab, as well as her
beliefs in child spirits and magical practices. In a similar vein, Corin,
Thara, and Padmavati (n.d.) have shown how people with psychosis
and their families in South India mobilize different representations
including religious referents while elaborating what is specific in their
experience of psychosis.
Method
This research is based on 12 months of ethnographic fieldwork in the city
of So Paulo, Brazil. The first phase of fieldwork consisted of the recruitment of and participant observation with 21 young people (10 males, 11
females) in the psychiatric emergency service of a large public university
hospital that primarily provides care to a low-income population. The
second phase of fieldwork unfolded as I interviewed these youths and their
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families and followed them in their everyday lives for a period of at least
6 months after the initial recruitment and informed consent. I normally
contacted them once every two weeks. Initially, each young person and,
separately, a family member (usually the mother) responded to the
Turning Point Interview (TPI), a qualitative semi-structured questionnaire
for the retrospective evaluation of the development of signs and difficulties, interpretations, and reactions in early schizophrenia (Corin,
Lesage, King, & Van Haaster, 1996). The elements of the perceived life
history collected through the TPI were complemented during the second
phase of fieldwork with more interviews and informal conversations. I also
spent time with the youths during their daily lives trying to understand
their life strategies, and their interactions with their family, social
networks, and neighbors. I paid special attention to their direct or indirect
contact with religious settings in order to understand how the youths
perceived their significance. The lengthy period of follow-up allowed me
to interview other people in the social networks of the participants. Besides
the young person and the mother, in many cases I was able to conduct
tape-recorded interviews with brothers and sisters, the father, neighbors,
boyfriends, girlfriends, cousins, and psychiatrists
I selected participants who were experiencing a first episode of psychosis
because during this period one can see more clearly the role played by
cultural and social dimensions, because the process of experiencing
psychosis is not totally settled. Therefore, those people who had already
experienced previous episodes of psychosis were not included. I also
selected only individuals 1727 years of age, because youths share life
experiences common to their life stage. Throughout this article, case
examples of youths are provided under fictitious names to protect the
anonymity of the research participants.
Religious Help-Seeking
In Brazil, religion is lived as a family matter. The initial religious affiliation
of each person is usually framed by the familys previous religious background, most frequently by that of the mother. Most people expect the
mother to be in charge of the religious life of the entire family. However,
this initial affiliation tells very little about the meaning of religion in
peoples lives. I observed that peoples original religious affiliation is
insufficient to understand how religion affects everyday life for two main
reasons: (1) people often have different levels of religious participation
over time, and (2) people make use of a variety of religious signifiers independent of active religious participation or affiliation. This was most
evident in those families with traditional Catholicism as the dominant
religious background. Catholic families are not as engaged in religious life
as other denominations, they are also more receptive to simultaneous
participation in other religious milieus. In the case of Pentecostalism,
families often participate more in the everyday religious life of their own
congregations. This does not imply, however, that they restrict themselves
to their own church, or that they would not try other religious pathways
in situations of deep crisis.
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Families Perspectives
Families felt confused, lost, and helpless during the outbreak of psychosis;
they tried whatever was within reach to solve the problem. Even before the
family had the chance to consider existing sources of religious help, believers often would come to visit. Neighbors, friends, and the extended family
would come to suggest names of spiritual healers, or they attracted the
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The basic reasoning remained the same whether it was expressed in terms
of added efficacy or added burden. Most families strongly believed that
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The narratives of the various families reflect the widespread belief that the
persons body is composed of a spiritual and a material part, and that both
have to be healed. In other words, Gods power in combination with
spiritual healing transcends the work of physicians because physicians
attain their power through Gods will. Physicians remain important
because they take care of the material part of the sick person, whereas God
looks after the spiritual part. Several parents were unable to determine
whether their child suffered from a spiritual or material problem. For this
reason, they took the youth to several religious places, frequently Pentecostal churches, in addition to the psychiatric emergency room. Because
they perceived the efficacy of spiritual healing as ultimately certain, most
families preferred to try another religious place whenever the help being
provided did not solve the problem, and this happened frequently. For
these families, spiritual healing always remained an open possibility. Most
families aimed to take care of both the spiritual and the material dimensions of the person.
Another reason, which impelled families to seek religion, is that several
psychotic symptoms are easily confused with signs of spiritual possession,
or some other kind of spiritual disturbance. Religious explanations were
generally well accepted by families because they resonated with their own
observation that the youth expressed signs of nervousness, fear, insomnia,
fainting or nervous attack, visions and hearing voices, which are popularly
associated with signs of spirit or devil possession. These signs of disturbance or the strange behaviors might also be the consequence of some kind
of malice, black magic committed by some other human or spiritual
being to harm the youth. This can be exemplified by the case of a youth
that will be called Jos. His mother was convinced that Joss problem had
a supernatural causation: some evil spirit was disturbing her son, or that
he was the prey of some black magic perpetrated by her ex-lover. This
belief motivated Joss mother to force her son to be exorcised in a Pentecostal church. In this case, as in many others, the ritual of exorcism,
through the work of culture, did not succeed in helping the youth to
elaborate or to transform his experience of psychosis. Joss participation
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in the exorcism ritual only reassured him that his problem was not related
to evil spirits, or analogous religious referents. He rejected any relation
between the voices he was hearing and signs of devil possession:
After hearing voices, my mother took me to church to see if I would get
better and to check if it was something, some evil spirit. She took me and I
felt well there, I didnt see anything [of importance], I saw people fall down
but I didnt fall down. When the pastor said whoever hears voices, evil
things, things from the devil, things from Lucifer, you burn now! I remained
normal, I felt I was there normal, the pastor came to bless me, I believe I
have nothing to do with the supernatural. [Jos]
The case above illustrates how families often resorted to religion because
it yields causal explanations for the problem; however, this belief was not
necessarily shared by the youth. For families, religious explanations
provided some benefit by removing the blame from the psychotic person
and shifting it to spiritual entities or acts of sorcery perpetrated by other
people. This process allowed parents to keep a positive image of their
children as individuals who have not failed, or sinned, and who could not
be held responsible for their sudden strange, unexpected, or unexplainable
actions. Besides the urge to exculpate their offspring, this reliance on
religious explanations helped parents to re-situate the problem within the
shared social space of religion, and to become more actively involved while
trying to find alternative ways to solve the problem.
Active religious involvement through prayers, consultations with
spiritual healers, household rituals of protection, or church attendance
provided a bounding frame for families to deal with the problem, but on
the negative side, this back-and-forth movement between different
religious places generated ambiguity and contradiction. It was unacceptable for some families to see themselves transgressing some of their
previous religious beliefs and faith. For other families, the contradiction
occurred because different religions gave different definitions and
solutions to the problem, and yet a large space for fluidity and common
shared beliefs co-existed. In some circumstances, the family member
created a cleavage between their previous (or present) religious identity,
beliefs, or the involving religious context. For example, some mothers
converted to a different religion hoping that this would help their children
improve. More frequently, however, families apprehended religious
meanings and signifiers through a process of bricolage of the different
religious world-views and practices.
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They were often restless and paid little attention to what was happening.
My impression was that these youths were participating in the religious
ceremony without really being there. Apparently, they needed to create
some kind of inner distance towards the religious ritual. They also seemed
to experience the ritual in a more positive and soothing way when they
were allowed to maintain a free circulation and tenuous links with the
religious ritual.
When comparing Umbanda practices to Pentecostalism, the youths
usually demonstrated more aversion towards Umbanda rituals: Ah I didnt
like it, I got very anguished, I only got worse. Or they responded that they
felt just the same, and experienced only a momentary relief. Two other
elements contributed to enhance their rejection of Umbanda: the context
of the help-seeking initiative, and of the healing ritual itself. Consulting
Umbanda was normally veiled from the other family members. For
instance, the father took the youth without telling him or her where they
were really going or without the mothers knowledge or will. Those youths,
who consulted Umbanda on their own initiative, did so secretly. They also
preferred to keep secret most of what happened to them there. Right from
the beginning most often the youths and their families regarded Umbanda
with suspicion and mistrust. This character of secrecy is related to the
ambiguous place occupied by Umbanda in the religious arena of So
Paulo, particularly for those people with a Protestant religious background. This initial shared attitude of suspicion, mistrust, and secrecy
helped to create an atmosphere of incredulity even before the start of the
Umbanda therapy. Because most young people only stressed their uneasiness and discomfort while undergoing the therapy, Umbanda probably
reinforced fearful rather than soothing experiences.
What the youths resisted most was the directness and closeness of the
physical one-to-one interaction between the Umbanda healer (or the
Pentecostal pastor) and the sick person that inevitably occurs during
rituals of religious healing. For instance, the pastors gesture of laying-onhands over the sick persons head to expel the evil spirit away from the
sick persons body. This gesture conveys a very powerful meaning as it
represents the direct contact with the evil (or devil) that has to be exorcized from the persons body in order for the patient to enter into direct
contact with the Holy Spirit. One can only speculate about how the youths
experienced this ritual of a direct contact between the Holy Spirit and the
evil forces. They may have confused the meanings attributed to the
beneficial power of the Holy Spirit with the malignant power of the evil
(or devil). These therapeutic rituals also invaded bodily frontiers of the
youth, which were already blurred.
Another common way that youths resorted to religion was through the
creation of private rituals. They usually repeated or transformed portions
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experience of psychosis or the drifting quality of their perceived environment. It was much more an attempt to put into words and to qualify their
shifting and uncanny experience, rather than to provide an explanation as
such. I also observed qualitative variations attributed to the voices or
visions which constantly disturbed them and sometimes made them feel
even more unstable and uncertain regarding their own feelings and
perceptions. For instance, sometimes the youths attributed positive and
soothing qualities to the voices they were overhearing, albeit most of the
time the negative, threatening, and uncanny aspects of these voices dominated their narratives. Voices that threatened to kill them or to destroy the
whole world were intermeshed with messages from God.
Being completely immersed in a world of uncertainties, strangeness, and
chaos induced the youths to look for religious referents as some kind of
anchoring point, they were looking for some stability in the deteriorated
world they were experiencing:
In my mind I was feeling well . . . the unusual things I saw is because I
believed it was the end of the world that was normal for me. I had to search
for the salvation of souls and preach to the people, that is what I thought.
[Sarah]
I thought that the world had ended. That just bad people remained on earth.
I would see everyone different, I would see everyone in the shape of devil.
[. . .] Nothing was real, it was something from my head, and nothing was
true. It was something from my head because it was not possible for people
to remain in the way I saw them, of hearing voices . . . [Mateus]
In the excerpts above, Sarah evoked a more active reaction than Mateus
paralysing mode of being-in-the-world because she also started to search
for salvation and preached to all people as a way of fighting against the
imagined end of the world. One could hypothesize that both of them were
also trying to protect their precarious sense of self in projecting the
deterioration of their experience to the outside world, as well as attaching
religious referents to describe and name their unusual experiences. Most
young people made frequent allusions to their missing a personal sense of
boundaries in relation to themselves, to other people, or to the outside
world. Their sense of self seemed to be constantly dissolving and changing
limits or boundaries. In this context, any attempt to find or establish some
kind of anchoring point becomes inevitable. Perceptions like everyone in
the shape of the devil; the end of the world further indicates how the
world around them appeared dominated by a fixed feeling of evil and of
ending sometimes-even death. The youths repeatedly alluded to existential questions concerning life and death, or they were particularly
concerned with answering questions such as Who am I? and Do I exist?
521
this revelation could kill her mother. Other youths were also anguished,
frightened, and perplexed when they imagined that they could even kill
people just through thinking because of their powerful telepathic
thoughts. Sarah commented that she dealt with this threatening situation
because she finally lost her special powers when she abandoned herself to
God, thus allowing God to carry on with the fight against the devil.
The figure of God on whom youths relied was always that of an omnipotent God. Youths derived some sense of stability from believing that they
had been elected by God, or even that they had become God, but this kind
of perception occasionally remained entrapped within psychosis. Thus, a
very thin and flimsy line seemed to separate ones experience of God from
oneself. One may question whether this close association between aspects
of the psychotic experience and ones experience of God weighted up in
the religious experience towards the negative or towards the positive, as the
only way out for youths to cope with psychosis. Therefore, the youths were
not always able to cope with psychosis in what psychiatry conceives as a
positive way. Even so, the identification with God was a common attitude
that helped several youths create some kind of protection against the evil
world in which they felt themselves engulfed. From the psychiatric
perspective, this attitude only reveals the prominence of psychotic
symptoms.
Acknowledgements
I would like to express my gratitude to Nora Jacobson for her insightful suggestions regarding the organization of this paper.
Notes
1.
2.
3.
4.
5.
Obeyesekere (1990: xix) has defined work of culture as the process whereby
symbolic forms existing on the cultural level get created and recreated
through the minds of people.
Rolim (1992) defines autonomous Pentecostalism in opposition to classic
Pentecostalism. The former, he explains, is developed around strong leadership, yet is dissident from the classic that originates from the Pentecostal
churches of North American missionaries, and is very uncommon in Brazil.
Healing, exorcism, and prosperity are the most significant characteristics that
define autonomous Pentecostalism in Brazil.
The cultural psychiatry literature describes how the experience of psychosis
is often a burden to the family (e.g. Jenkins & Schumacher 1999). I am also
suggesting that religious help-seeking can eventually enhance this burden that
families are already experiencing with the problem.
This is a common expression employed by Pastors of Pentecostal churches
during rituals of exorcism.
Dribble is a slang term in Brazil used in soccer games which means that the
soccer player is able to fool his adversary by provoking him through body
movements to keep control of the ball, to run with it or to pass it over to
another player.
References
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volution et actualit du mouvement social spirite entre France et Brsil. Paris:
ditions Jean-Claude Latts.
Binswanger, L. (1963). Being-in-the-world: Selected papers of Ludwig Binswanger
[translated from the German and introduction by Jacob Needleman]. New
York: Basic Books.
Blankenburg, W. (1991). La perte de lvidence naturelle. Une contribution la
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