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Understanding
RADio-
theRapy
Contents
Contents
About this booklet
1 What is radiotherapy?
2 External radiotherapy
29
3 Internal radiotherapy
43
51
5 After treatment
65
71
7 Further information
77
Understanding radiotherapy
Understanding radiotherapy
What is radiotherapy?
Radiotherapy departments
Radiotherapy staff
12
14
17
20
23
Understanding radiotherapy
1 What is radiotherapy
Palliative treatment
This is given when its not possible to cure a cancer.
Radiotherapy may be given to relieve symptoms such as
pain. Lower doses of radiotherapy are given for palliative
treatment than for curative treatment, and theyre usually
given over a shorter period of time. Sometimes just a single
dose is given.
Radiotherapy treatments are planned on an individual
basis. This means that even if someone youve met
has the same type of cancer as you, their radiotherapy
treatment may be different.
Understanding radiotherapy
Radiotherapy departments
Your radiotherapy treatment will be given in a radiotherapy
department. Not all hospitals have radiotherapy departments.
This is because radiotherapy machines are very complex and
the treatment needs to be planned and given by specially
trained staff.
Most radiotherapy departments are in the larger regional and
teaching hospitals. You may have your initial cancer treatment,
such as surgery, at your local hospital and then be referred to
your nearest specialist cancer hospital for radiotherapy.
You can usually have external radiotherapy as an outpatient,
but if youre unwell or having chemotherapy at the same time,
you may need to stay in hospital. In this case, you will go to the
radiotherapy department each day from the ward.
If youre having internal radiotherapy, you may have to stay in
hospital for a few days.
Radiotherapy staff
In most hospitals, a team of specialists will meet to discuss
and agree on the plan of treatment they feel is best for your
situation. This team is known as a multidisciplinary team
(MDT). On the next few pages, weve listed the staff who are
involved in planning and giving your radiotherapy.
1 What is radiotherapy
Understanding radiotherapy
10
1 What is radiotherapy
11
Understanding radiotherapy
1 What is radiotherapy
13
Understanding radiotherapy
14
1 What is radiotherapy
Its a good idea to have a relative or friend with you when the
treatment is explained, to help you remember the discussion.
You may also find it useful to write a list of questions before
your appointment. You can find a list of questions that you may
want to ask your radiotherapy team on pages 7880.
People sometimes feel that hospital staff are too busy to answer
their questions, but its important for you to know how the
treatment is likely to affect you. The staff should be willing
to make time for your questions.
If you dont understand what youve been told, let the
staff know straight away so they can explain again.
Some radiotherapy treatments are complex, so its not
unusual to need repeated explanations.
You can always ask for more time if you feel that you cant
make a decision when your treatment is first explained to you.
You are also free to choose not to have the treatment. The staff
can explain what may happen if you dont have it. Its essential
to tell a doctor, a radiographer or the nurse in charge, so they
can record your decision in your medical notes. You dont
have to give a reason for not wanting treatment, but it can
help to let the staff know your concerns so they can give you
the best advice.
If you decide to stop your treatment after it has started, you will
need to discuss this with your doctors. They will explain what
may happen to you and will talk to you about other possible
treatment options.
15
Understanding radiotherapy
Pregnancy
If youre a woman of childbearing age, its important that you
dont become pregnant during your treatment. This is because
radiotherapy given during pregnancy could harm a developing
baby. Your doctors will be able to give you more information
about this.
Before you give your consent for radiotherapy, you will need
to confirm:
that you arent pregnant
that you understand you should avoid becoming pregnant
during treatment (this means youll need to use a reliable
form of birth control).
If you think that you may be pregnant at any time during your
treatment, tell the doctors and radiographers immediately and
youll be offered a pregnancy test.
If youre a man having radiotherapy treatment, your doctors
may advise you not to father a child during treatment or for
a few months after its finished. You can ask your doctors for
information about this.
Heart pacemakers, implantable cardiac devices (ICDs)
and cochlea implants
If you have a pacemaker, ICD or cochlea implant
(a special implant in your ear), you must tell your oncologist
or radiographer either before or during your first planning
appointment. These devices can be affected by radiotherapy,
so your treatment has to be planned to allow for them.
16
1 What is radiotherapy
17
Understanding radiotherapy
18
1 What is radiotherapy
Smoking
Research has shown that stopping smoking during and after
radiotherapy may make it more effective. It can also reduce the
side effects of treatment. So if you do smoke, you should try
cutting down or stopping.
Many hospitals provide help or advice on how to quit smoking.
Your clinical oncologist, specialist radiographer, or specialist
nurse will let you know if your hospital provides this service.
If they dont, your GP, a pharmacist or an organisation such as
Smokefree (see page 89) will be able to help.
We have a leaflet called Giving up smoking, which we
can send you.
Work and further education
If youre working or in further education, its a good idea to talk
to your employer or tutors, so they can make arrangements to
support you and organise your time off during treatment.
19
Understanding radiotherapy
1 What is radiotherapy
21
Understanding radiotherapy
22
1 What is radiotherapy
Understanding radiotherapy
1 What is radiotherapy
Skin markings
Once the treatment area has been decided, markings are
made on your skin to pinpoint the exact place where the
radiation will be directed.
Usually, permanent markings are made (tattoos). Theyre the
size of a pinpoint and will only be done with your permission.
Its a little uncomfortable while the tattoo is being made,
but it makes sure that treatment is directed accurately.
If youre concerned about having permanent tattoos, let your
radiographers know. They can discuss alternative options with
you. You may not have tattoos if youre only having a single or
short session of radiotherapy for symptom control.
If you have a mould or mask, any marks that need to be made
will be made on the mould or mask rather than your skin.
Skin care
During your radiotherapy, youll need to take extra care of
the skin in the area thats being treated. This is because the
treatment may cause a skin reaction (see pages 5556).
Before your treatment starts, the staff in the radiotherapy
department will give you advice on how to look after your skin.
This will depend on the type of treatment youre having and the
area of your body being treated.
Usually youll be asked to avoid using any deodorants, soaps,
perfumes and lotions on the area being treated other than
those advised by the radiographers. This is because some
products may make any soreness worse.
25
Understanding radiotherapy
26
1 What is radiotherapy
27
Understanding radiotherapy
28
External radiotherapy
31
35
38
Understanding radiotherapy
30
2 External radiotherapy
Understanding radiotherapy
2 External radiotherapy
33
Understanding radiotherapy
34
2 External radiotherapy
Understanding radiotherapy
36
2 External radiotherapy
You can find out more about IMRT and whether its a suitable
treatment for you from your clinical oncologist. They can
arrange for you to have IMRT at another treatment centre if
its not possible for you to have it at your local centre.
We can send you more information about IMRT.
Image guided radiotherapy (IGRT)
Before, and sometimes during, a course of radiotherapy,
images are taken to make sure the treatment accurately targets
the treatment area. With IGRT, images are taken just before
each treatment. This may involve taking x-ray images or
moving the machine around you to get an image similar to a
CT scan. The images can be compared to those taken during
the planning scan. They are used to make adjustments to the
treatment area, making it very precise.
IGRT is helpful because some tumours can shrink in size
and change shape during the treatment. Others can change
position between treatment sessions. For example, the position
of a tumour in the prostate gland or cervix can be altered by a
full bladder or bowel on the day of your treatment. With IGRT,
adjustments can be made before each treatment to allow for
these changes to the tumour shape or position.
Every person should have IGRT as part of their treatment.
How its carried out varies in different radiotherapy centres.
You may want to ask your team for more information about
how IGRT is being used to check your treatment is accurate.
37
Understanding radiotherapy
2 External radiotherapy
39
Understanding radiotherapy
Intra-operative radiotherapy
This uses a special machine to give a single dose of radiation
in the operating theatre at the time a cancer is removed.
Research is being carried out to see if this could be an
alternative for women with early breast cancer who would
normally have a course of radiotherapy after surgery.
External radiotherapy for children
Radiotherapy can be a frightening experience for both children
and their parents, but once everyone understands what is
involved, this fear can be reduced. Radiotherapy staff are used
to treating children and can offer help and support. A play
therapist will often be available as well to provide support.
Young children, especially those under three, may have their
treatment under a mild general anaesthetic. Youll probably
have a morning appointment, as your child cant eat or drink for
at least four hours before their anaesthetic. The anaesthetic is
usually given in the radiotherapy department by an anaesthetist.
You can stay with your child until theyre asleep.
Although you wont be able to stay in the radiotherapy room
during your childs treatment, you may be able to watch them
through the window or a camera. The nurses will look after
your child until they wake up, usually after 2060 minutes.
You will then both be able to go home unless your child is
an inpatient, in which case a nurse will take them back to the
ward. Older children may take a while to get used to the size
and sound of the machines, but this should get easier once they
get to know the staff and the surroundings.
40
2 External radiotherapy
41
Understanding radiotherapy
42
Internal radiotherapy
Brachytherapy
44
Radioisotope therapy
48
Understanding radiotherapy
Brachytherapy
Brachytherapy gives a high dose of radiotherapy directly to the
tumour but only a low dose to normal tissues. Its mainly used
to treat cancers in the prostate gland, cervix and womb but it
may also be used to treat some other cancers, such as head
and neck cancers. Brachytherapy may be given in addition to
external radiotherapy.
Prostate cancer
There are two ways of giving brachytherapy for prostate cancer.
Small radioactive seeds can be inserted into the tumour and
left to release their radioactivity slowly. This is sometimes known
as low-dose rate treatment. The seeds are not removed and the
radiation gradually fades away over about six months. All the
radioactivity is absorbed by the prostate, so its safe for you to
44
3 Internal radiotherapy
Understanding radiotherapy
46
3 Internal radiotherapy
47
Understanding radiotherapy
Radioisotope therapy
This therapy uses radioactive substances known as
radioisotopes or radionuclides.
3 Internal radiotherapy
49
Understanding radiotherapy
50
53
Effects on sexuality
58
Effects on fertility
60
62
62
Second cancers
63
Understanding radiotherapy
You may also find it helpful to read our booklet about your
type of cancer before you start your treatment. It will include
information about the possible side effects of radiotherapy.
Being aware of these in advance can help you cope with any
side effects that may develop.
External radiotherapy tends to cause more general side effects
than internal therapy. Its important to remember that most
people will have only a few of the side effects mentioned here,
and for many people, they will be mild. The use of modern
treatments means that severe side effects are very rare.
Most side effects of radiotherapy will continue for about
1015 days after treatment has finished and then gradually
begin to get better. However, symptoms of tiredness may
continue for longer.
52
53
Understanding radiotherapy
55
Understanding radiotherapy
56
Flu-like symptoms
If you have palliative radiotherapy given in one or two
treatment sessions (see page 31), you may experience flulike symptoms. These include headaches, aching joints or
muscles, and lack of energy (lethargy). If you also develop a
temperature, its important to let your radiotherapy team know.
Flu-like symptoms usually settle quickly. Drinking plenty of fluids
and getting some rest can help.
Hair loss
Radiotherapy will only cause hair loss in the treatment area.
Hair loss can also happen where the radiation beam leaves the
body (for example, on the back of the neck), as well as where it
enters the body. Ask your clinical oncologist or radiographer to
show you exactly where your hair will fall out.
Hair usually begins to fall out after 23 weeks. Hair should grow
back after treatment finishes. This may take several months,
although it depends on the dose of radiotherapy you have.
Occasionally, hair loss is permanent. Your radiographer can tell
you if any hair loss is likely to be permanent.
Managing hair loss If you lose the hair on your head,
you may want to wear a wig or cover up in other ways.
We can send you a booklet about hair loss, which gives
helpful tips on what you can do to cover up and how to cope
with the emotional effects.
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Understanding radiotherapy
Its very important to let your doctors know if you feel very
unwell, if your temperature goes above 38C (100.4F),
or if you start feeling cold and shaky.
Effects on sexuality
Radiotherapy can sometimes cause physical changes that may
affect your sex life. If youre having problems, it may help to
talk these over with your partner and your medical team.
Although it can be embarrassing to talk to health professionals
about intimate things like sex, remember theyre used to
dealing with these issues and can suggest things that will help.
Both men and women may temporarily lose interest in sex.
This is common and may happen because of worries about the
future, or even because the treatment is making you too tired to
think about sex. Men may become temporarily unable to get an
erection (erectile dysfunction ED).
58
59
Understanding radiotherapy
Effects on fertility
Effects on women Most radiotherapy treatment has no effect
on your ability to have children unless the ovaries are in the
treatment area.
60
Understanding radiotherapy
62
Second cancers
Radiotherapy can cause cancer, and a small number of people
will develop a second cancer because of the treatment theyve
had. However, the chance of a second cancer developing is so
small that the risks of having radiotherapy are far outweighed
by the benefits.
If youre concerned about your risk of developing a second
cancer, talk to your cancer specialist.
63
Understanding radiotherapy
64
5
After treatment
Follow-up
66
Beginning to recover
67
Lifestyle changes
68
Complementary therapies
69
Understanding radiotherapy
66
5 After treatment
Beginning to recover
Coming to the end of your radiotherapy treatment can be a time
of mixed emotions. Youll probably feel relieved, but there can
also be feelings of anxiety and uncertainty. It can take time to
rebuild confidence and to come to terms with what youve
been through. It may also take time to recover from treatment.
You may feel tired for a while and you may have emotional
changes to deal with, so its important to give yourself time
to adjust.
Support is available from the organisations listed on pages
8790. You can also ask your healthcare team for the details
of local support groups that may be able to help you.
67
Understanding radiotherapy
Lifestyle changes
When treatment is over, you may want to think about making
changes to your lifestyle and find out more about healthy living.
Perhaps you already followed a healthy lifestyle before your
treatment, but you now want to be more focused on making
the most of your health. There are things you can do to help
your body recover. These can also help improve your sense of
well-being and lower your risk of getting other illnesses and
other cancers.
Eating well
Its important to have a nutritious and well-balanced diet with
plenty of fresh fruit and vegetables, even if your appetite and
interest in food have been reduced.
Giving up smoking
If youre a smoker, its important to try to give up. Smoking can
delay your recovery and puts you at greater risk of developing
a second cancer.
5 After treatment
Complementary therapies
Complementary therapies may help you feel better and
reduce any stress and anxiety. Relaxation, counselling and
psychological support are available at many hospitals.
Some hospitals also offer visualisation, massage, reflexology,
aromatherapy and hypnotherapy. Therapies are sometimes
available through cancer support groups or your GP.
Many complementary therapists also have private practices.
Our booklet Cancer and complementary therapies
tells you about different therapies and gives advice
on choosing a therapist.
Not all complementary therapies are suitable
for people who have just finished radiotherapy,
so its important to check with your healthcare team
first if youre thinking of having one.
69
Understanding radiotherapy
70
6
Living with cancer
Your feelings
72
Work
73
75
Understanding radiotherapy
72
Work
Some people are able to continue working during radiotherapy
treatment. Others need to take time off during treatment and
for a while afterwards. This may be because they feel very tired
or have side effects to cope with.
It can be hard to judge the best time to go back to work,
and this will depend mainly on the type of work you do and
how much your income is affected. Its important to do whats
right for you. Getting back into your normal routine can be
very helpful, and you may want to go back to work as soon
as possible. It can be helpful to talk to your employer about
the situation it may be possible for you to work part-time or
job share.
On the other hand, it can take a long time to recover fully from
cancer treatment, and it may be many months before you feel
ready to return to work. Its important not to take on too much,
too soon. Your consultant, GP or specialist nurse can help you
decide when, and if, you should go back to work.
Our booklets Work and cancer, Working while caring for
someone with cancer and Self-employment and cancer
have more information that may be helpful. Theres also
lots more information at macmillan.org.uk/work
73
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74
75
Understanding radiotherapy
76
Further information
78
83
87
Further resources
93
Understanding radiotherapy
78
7 Further information
How long will my course of treatment take and how often will I
need to have the treatment?
79
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80
7 Further information
Other notes
81
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82
7 Further information
83
Understanding radiotherapy
Publications
We provide expert, up-to-date
information about different
types of cancer, tests and
treatments, and about living
with and after cancer. We can
send you free information in
a variety of formats, including
booklets, leaflets, fact sheets,
and audiobooks. We can also
provide our information in
Braille and large print.
Someone to talk to
84
7 Further information
Professional help
Support groups
You can find out about support
groups in your area by calling
us or by visiting macmillan.
org.uk/selfhelpandsupport
Online community
You can also share your
experiences, ask questions,
get and give support to
others in our online
community at macmillan.
org.uk/community
85
Understanding radiotherapy
Financial and
work-related support
86
7 Further information
Understanding radiotherapy
88
7 Further information
Tenovus
Head Office,
Gleider House, Ty Glas Road,
Cardiff CF14 5BD
Tel 0808 808 1010
(MonSun, 8am8pm)
www.tenovus.org.uk
Aims to help everyone
get equal access to cancer
treatment and support.
Funds research and provides
support such as mobile
cancer support units, a free
helpline, an Ask the nurse
service on the website and
benefits advice.
Support with
stopping smoking
Smokefree
England helpline
0800 022 4 332
Scotland helpline
0800 84 84 84
Wales helpline
0800 169 0 169
Northern Ireland helpline
0800 85 85 85
Isle of Man helpline
01624 642 404
(MonFri, 9am8pm,
SatSun, 11am4pm)
www.smokefree.nhs.uk
Offers free information, advice
and support via the helpline
and website to people who
want to give up smoking.
Counselling and
emotional support
British Association
for Counselling and
Psychotherapy (BACP)
BACP House,
15 St Johns Business Park,
Lutterworth LE17 4HB
Tel 01455 883 300
Email bacp@bacp.co.uk
www.bacp.co.uk
Promotes awareness of
counselling and signposts
people to appropriate services.
You can search for a qualified
counsellor at itsgoodtotalk.
org.uk
89
Understanding radiotherapy
90
Financial or legal
advice and information
Benefit Enquiry Line
(England, Wales, Scotland)
Tel 0800 882 200
(MonFri, 8am6pm)
Textphone 0800 243 355
7 Further information
Email BEL-CUSTOMERSERVICES@dwp.gsi.gov.uk
www.gov.uk/
benefit-enquiry-line
Provides advice and
information for disabled
people and carers on the
range of benefits available.
NI Direct
(Northern Ireland)
Tel 0800 220 674
(MonWed and Fri,
9am5pm, Thu,
10am5pm)
Textphone 0800 243 787
www.nidirect.gov.uk/
money-tax-and-benefits
Citizens Advice
Provides advice on a
variety of issues including
financial, legal, housing and
employment issues. Find
details for your local office in
the phone book or on one of
the following websites:
England and Wales
www.citizensadvice.
org.uk
Scotland
www.cas.org.uk
Northern Ireland
www.citizensadvice.co.uk
You can also find advice
online in a range of languages
at adviceguide.org.uk
GOV.UK
www.gov.uk
Has comprehensive
information about
social security benefits
and public services.
Personal Finance Society
Find an Adviser service
www.findanadviser.org
Use the website to find
qualified financial
advisers in your area.
You can search for
more organisations
on our website
macmillan.org.uk
or call our support line
on 0808 808 00 00.
91
Understanding radiotherapy
92
7 Further information
Further
resources
Related Macmillan
information
You may want to order some
of the resources mentioned in
this booklet. These include:
A parents guide to
childrens cancer
Cancer and
complementary therapies
Giving up smoking
Understanding allogeneic
(donor) stem cell transplants
Understanding cancer
research trials (clinical trials)
93
Understanding radiotherapy
Understanding
cervical cancer
Understanding early
(localised) prostate cancer
Understanding head and
neck cancers
Understanding high-dose
treatment with stem
cell support
Understanding secondary
cancer in the bone
Understanding
thyroid cancer
Understanding womb
(endometrial) cancer
What to do when treatment
ends: 10 top tips
Work and cancer
Working while caring for
someone with cancer
94
Macmillan videos
There are many videos
on the Macmillan website
featuring real-life stories and
information from health and
social care professionals.
We have a video about
radiotherapy. It features a
clinical oncologist talking
about external radiotherapy,
how its given and the side
effects. You can watch it
at macmillan.org.uk/
radiotherapy
Macmillan audiobooks
Our high-quality audiobooks,
based on our variety of
booklets, include information
about cancer types,
different treatments and
about living with cancer.
To order your free CD,
visit be.macmillan.org.uk
or call 0808 808 00 00.
7 Further information
Useful websites
A lot of information
about cancer is available
on the internet. Some
websites are excellent,
others have misleading or
out-of-date information.
The sites listed here are
considered by doctors to
contain accurate information
and are regularly updated.
www.macmillan.org.uk
(Macmillan Cancer Support)
Find out more about living
with the practical, emotional
and financial effects of
cancer. Our website contains
expert, accurate up-to-date
information on cancer and its
treatments including:
all the information from
our 150+ booklets and
360+ fact sheets
videos featuring real-life
stories from people affected
by cancer and information
from medical professionals
95
Understanding radiotherapy
www.cancerhelp.org.uk
(Cancer Research UK)
Contains patient information
on all types of cancer and has
a clinical trials database.
www.healthtalkonline.org
www.youthhealthtalk.org
(site for young people)
Both websites contain
information about some
cancers and have video and
audio clips of people talking
about their experiences of
cancer and its treatments.
www.macmillan.org.uk/
cancervoices
(Macmillan Cancer Voices)
A UK-wide network that
enables people who have or
have had cancer, and those
close to them such as family
and carers, to speak out about
their experience of cancer.
www.nhs.uk
(NHS Choices)
The countrys biggest
health website. Gives all the
information you need to make
decisions about your health.
96
www.nhsdirect.nhs.uk
(NHS Direct Online)
NHS health information
site for England covers
all aspects of health,
illness and treatments.
www.nhs24.com
(NHS 24 in Scotland)
www.nhsdirect.wales.
nhs.uk
(NHS Direct Wales)
www.n-i.nhs.uk
(Health and Social Care
in Northern Ireland)
The official gateway to
health and social care
services in Northern Ireland.
www.patient.co.uk
(Patient UK)
Provides information about
health and disease. Includes
evidence-based information
leaflets on a wide variety of
medical and health topics.
www.riprap.org.uk
(Riprap)
Developed especially
for teenagers who have
a parent with cancer.
Disclaimer
We make every effort to ensure that the information we provide is accurate and up
to date but it should not be relied upon as a substitute for specialist professional
advice tailored to your situation. So far as is permitted by law, Macmillan does
not accept liability in relation to the use of any information contained in this
publication, or third-party information or websites included or referred to in it.
Some photographs are of models.
Thanks
This booklet has been written, revised and edited by Macmillan Cancer Supports
Cancer Information Development team. It has been approved by our medical
editor, Dr Tim Iveson, Macmillan Consultant Medical Oncologist.
With special thanks to Dr Michael Williams, Consultant Clinical Oncologist and
Mrs Sarah James, Professional Officer, The Society and College of Radiographers
for their help and guidance with the revision of this edition.
Additional thanks to: Ms Laura Allington, Superintendent Radiographer; Ms Kerry
Chapman; Senior Radiographer and Patient Information Project Manager;
Ms Heather Dias, Macmillan Radiotherapy Specialist; Dr David Gilligan,
Consultant Clinical Oncologist; Dr Glynne Jones, Consultant Clinical Oncologist;
Ms Lisa Mann, Macmillan Radiotherapy Specialist; Dr Catherine McBain,
Consultant Clinical Oncologist; Mr Stuart McCaighy, Clinical and Technical
Development Superintendent Radiotherapy Cancer Centre; Ms Peggotty Moore,
Macmillan Information and Review Lead Radiotherapy and Oncology Outpatients;
and the people affected by cancer who reviewed this edition.
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Sources
NHS National Cancer Action Team. National Radiotherapy Implementation Group
Report: Image Guided Radiotherapy (IGRT): Guidance for implementation and use.
August 2012.
Department of Health. Radiotherapy Services in England 2012.
www.dh.gov.uk/health/2012/11/radiotherapy-2012 (accessed November 2012).
Ahmad S, et al. Advances in radiotherapy. BMJ. 2012. 345: e7765.
Society of Radiographers. An overview of radiotherapy.
www.sor.org/about-radiography/patient-information/overview-radiotherapy
(accessed November 2012).
Improving Supportive and Palliative care for Adults with Cancer. March 2004.
National Institute for Health and Care Excellence.
98
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Date
Please cut out this form and return it in an envelope (no stamp required) to:
Supporter Donations, Macmillan Cancer Support, FREEPOST LON15851,
89 Albert Embankment, London SE1 7UQ
27530