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RESEARCH NOTE
Caring for my wife: voices from Malay older husbands in Singapore
Chang-Keun Hana* and Izarina Binte Juprib
a
Department of Social Welfare, Faculty of Arts & Social Sciences, Sungkyunkwan University,
Jongnogu Myeongnyundong, South Korea; bCare and Counselling Department, Medical Social
Worker, Tan Tock Seng Hospital, Singapore
Introduction
While a considerable amount of research has examined the nature and levels of burden that
families have in caregiving, only a small number of studies have focused on older
husbands and their caregiving burden (Ducharme et al., 2007; Fuller-Jonap & Haley,
1995; Gurung, Taylor, & Seeman, 2003; Kramer & Lambert, 1999). This may be because
females (wives, daughters, and daughters-in-law) are considered to be natural caregivers
(Huang, 2004; Wong, Rong, Chen, Wei, & Lin, 2007). However, studies have emphasized
the pressing need for research on male caregivers, in particular those caring for their
wives, to understand the predictors and consequences of their caregiving (Ducharme et al.,
2007; Gurung et al., 2003). Research on older husbands caregiving to their older wives is
especially important given todays modern context, wherein there are a growing number of
male older adults who make a sizable contribution to care for their wives (Baker &
Robertson, 2008).
Although this study is exploratory, two theoretical perspectives are considered to
explain male caregivers activity and its impacts on health and mental health. First, gender
socialization theory was introduced to explain different perception of caregiving to their
spouses. One study finds that some men may equate care with feminized activity and may
struggle to adjust themselves to caregiving roles (Baker, Robertson, & Connelly, 2010).
A few other studies, however, have found that older men occupy less polarized gender
roles and hold a less stereotyped image of caregiving (Crocker Houde, 2002;
Parsons, 1997). Male caregivers may perceive their caregiving activities as a duty,
a labour of love, or a way of repaying what they received from their spouse before
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her illness. In addition, they may consider caregiving of their sick wives as a primary
responsibility (Baker & Robertson, 2008; Ducharme et al., 2007). Second, the other
dimension of theoretical background is about impacts of husbands caregiving on their
health and well-being. However, the findings are mixed. Some researchers have found that
male caregivers are likely to have a higher rate of depression and lower levels of well-being
than male non-caregivers (Fuller-Jonap & Haley, 1995; Kramer & Lambert, 1999). These
findings suggest that caregiving is physically taxing and older male caregivers are at risk in
terms of health. These strains and complications may explain why some male caregivers
consider relinquishing their caregiving duties and institutionalizing their spouse (Ducharme
et al., 2007). The other group of researchers has found that husbands reported no negative
impacts of caregiving on their well-being or positive perceptions toward their caregiving
experience (Berg-Weger, Rubio, & Tebb, 2000; Chan, 2010).
Studies targeting caregiving by older husbands in Singapore are scarce. While informal
caregiving by family members is prevalent, the majority of caregivers for older adults are
female (Chan, 2010; Mehta, 2006; Teo, Mehta, Theng, & Chan, 2006). To address the
paucity of research on male caregivers of older spouses in Singapore, the current study
explores how Malay older husbands take care of their wives with dementia or health
limitations. The present study focuses on older husbands caregiving roles and how they
respond to these roles, such as coping strategies, social support and satisfaction. Cultural
factors may shape perceptions of familial responsibilities and thus, may also influence the
caregiving experience. This study uses in-depth interviews and a grounded theory approach
which may be useful to understand caregiving experiences of five Malay older husbands.
Since Malays are a minority in Singapore, findings of this study can provide empirical
evidence to develop culturally competent services for this disadvantaged population.
Methods
Participants
Participants in this study were conveniently and purposively selected through personal
invitation. Participants were selected according to the following selection criteria: (1)
Malay husbands aged 65 or above; (2) having wives with chronic illnesses (dementia or
kidney failure); (3) taking the primary caregivers role to their wives; (4) living
independently from other family members; (5) being physically competent tested with the
Activities of Daily Living (ADL) and the Instrumental Activities of Daily Living (IADL)
checklists. The final sample size was five. Key socio-economic characteristics of the
sample are presented in Table 1.
Interview and analysis
Semi-structured interviews were conducted with five participants in their respective homes
where they felt most comfortable. Before beginning the interview, we explained the purpose
of the research, and respondents signed informed consent forms. The interview guideline
consisted of five components: background of participant and his family, personal autonomy
(roles and activities), social support/network, coping, and expressed satisfaction. All of
them have 6 10 specific items which are open-ended. The interviews were conducted in
Malay. The interview duration ranged from 50 to 60 minutes. The interviews were
transcribed verbatim and analysed individually using thematic coding, allowing themes to
emerge. All ethical considerations on this research were approved by the Institutional
Review Board (IRB) at National University of Singapore (NUS IRB 11-127).
217
Husbands
Husbands Wifes medical
age
age condition
P1
80
74
P2
65
62
P3
P4
65
68
P5
72
Wifes
medical
condition
Housing
type
(HDB)
Dementia
3 rooms
Kidney failure
3 rooms
65
62
High blood
pressure
High blood
pressure
Body ache
Body ache
Dementia
Kidney failure
2 rooms
2 rooms
65
Body ache
Dementia
2 rooms
Number of
children
8 (3 daughters,
5 sons)
7 (all daughters)
4 (all sons)
5 (3 daughters,
2 sons)
4 (all daughters)
Length of
years in
providing care
5
8
5
15
6
Results
Caregiving roles and husbands perceptions
Participants help their spouses with daily basic needs like going to the toilet, preparing
meals and cleaning the house. Some statements are excerpted from the interviews below.
Ever since she was diagnosed with kidney failure and has been confined to the wheelchair, she
cannot do anything on her own anymore . . . .In short, everything in this house is done by me.
(P4)
I basically help her with her daily needs, like going to the toilet, preparing meals, and
everything. She doesnt leave the house alone now, most of the time if theres anything we
need, Ill hurry to the shop alone. (P3)
Despite their heavy responsibilities and stresses of caregiving, all of the participants
displayed a high degree of independence and low reliance on others in their daily decision
making.
I try my best to manage on my own. You know, be independent. I also dont find the need to let
others know about my private matters. I think if I can do on my own, Id rather do it myself.
Why involve people unnecessarily? (P2)
Id rather live on my own actually. I can do my own things without feeling I am depending on
other people. More freedom, and I feel in control. (P3)
218
The main challenge is the physical, because it can get very tiring for me to take care of her
. . . . My strengths and ability are also limited. My back aches and I need lots of rest (P5)
When I am sick, my leg hurts or I have a fever, I cannot take MC [Medical Certificate] from
my caregiving role. (P1)
However, it is interesting that the caregivers were unable to state explicitly the
illnesses they had and often conveniently classified their condition as old peoples
illness. They do not take their health ailments and illnesses seriously.
Secondly, some participants experienced emotional strain or loneliness.
Sometimes it tests my patience, and when I am ill there is no one else I can depend on.
Basically it is the emotional strain, not other aspects that I am concerned about. (P3)
I sometimes can get very lonely not talking to or meeting anyone. (P5)
Thirdly, uncertainty about the future is one of the major stresses. Since they were old,
they worried about who would care for their wives if something should happen to them.
I am old, too, so I am not sure of how long I can cope with the physical demands of caregiving
for my wife. (P4)
Its not that I cannot manage already, just that I dont know what will happen in the future.
I am getting old, dont know what will happen to my wife if anything happens to me first. (P5)
Coping
All the participants coped by relying on their religious faith, which centred on believing
that every difficulty they faced would become manageable through worship to God. They
exercised positive thinking, as demonstrated by the following examples:
We Malays, as you know, usually keep our issues to ourselves and find it hard to consult others
for help. So mostly, we rely on family . . . . As Muslims, we must always be grateful with what
we have. Every hardship and joy comes from God so we must accept it openly. (P1)
It helps to pray for strength and signs from God . . . . Its also part of our religious beliefs to
accept our fate and what God has created for us. (P5)
I guess thinking positively helps, and believing that everything comes from God. In times of
need, I think praying for strength and patience helps . . . by praying for strength I learn to cope
with my difficulties better. (P2)
The participants generally were not receiving any formal assistance, such as support
from the Family Service Centres (FSC) or the community. The only form of assistance is
219
emotional support provided mostly by their adult children. Participants did not receive any
help at all from anyone and relied mostly on themselves to meet their daily needs.
I dont think I need any help, and if other people can help me. I think there are others who are
worse off than me and need the help from all these sources. Let other people who deserve it get
the help. (P5)
I ask for help from my daughters when I cannot cope. As a last resort, so called . . . . I dont
believe in telling outsiders because people will not understand my personal issues. I think
better keep family issues within the people you are close to. (P5)
Expressed satisfaction
Participants were generally satisfied with their current situation, which may be mainly
attributed to their religious beliefs and positive thinking as discussed at the coping section
above.
Well. I think I am rather satisfied. I have good health, for someone with my age. I have a big
family who respects me and many grandchildren to keep me entertained when they visit. I still
have a wife although she is not well. I have a place for shelter and enough money to continue
to survive day by day. What more can I ask for? (P3)
I would say I am satisfied, because my life could have been harder and I could be challenged
more in life. Right now, I have children who still care about me and I have enough food to eat
and shelter for myself and my wife, so I am happy. (P1)
220
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