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Name

ADNI (Alzheimer's Disease Neuro-Imaging


Initiative)

Texas Hospital Inpatient Discharge Public

The Dartmouth Atlas of Health Care


Data Sources from Second Workshop on Data
Mining for Health care Management (DMHM
2011)
NIH Data Sets
Drug and Substance Abuse Data Sets

Agency for Health care Research and Quality

Behavioral Risk Factor Surveillance System


(BRFSS)
Framingham Health Care Data Set
Laboratory for Neuro-Imaging (UCLA)
Heritage Health care Prize
Behavioral Risk Factor Surveillance System
(BRFSS)
Stanford Micro-Array Database
Stanford Genomic Resources
World Health Organization Data Sets
World Bank Health Care Data Sets

Link
http://www.adni-info.org/Scientists/ADNIScientistsHome/ADNIPublications.aspx

http://www.dshs.state.tx.us/thcic/hospitals/HospitalData.shtm

http://www.dartmouthatlas.org/
http://phpartners.org/health_stats.html#National%20Public%20Health%20Data%20Sets
http://www.nlm.nih.gov/hsrinfo/datasites.html
http://www.icpsr.umich.edu/icpsrweb/SAMHDA/download

http://www.ahrq.gov/data/dataresources.htm

http://www.cdc.gov/brfss/
http://www.framinghamheartstudy.org/share/index.html
https://ida.loni.ucla.edu/services/Menu/IdaData.jsp?page=DATA&subPage=AVAILABLE_DATA
http://www.heritagehealthprize.com/
http://www.cdc.gov/brfss/
http://smd.stanford.edu/
http://genome-www.stanford.edu/
http://apps.who.int/ghodata/
http://data.worldbank.org/country

Description
Image, clinical, and genetic data for Alzheimer's disease
The Public Use Data File contains data on discharges from Texas hospitals. Data are available
by quarter beginning with data for 1999. The scheduled release dates for 2010 data are: First
Quarter - March 2011, Second Quarter - June 2011, Third Quarter - September 2011 and Fourth
Quarter - December 2011. The Texas Public Use Data File (PUDF) has been released through
forth quarter 2009. Purchasing the PUDF requires a completed Order Form and a signed Data
Use Agreement.
Medicare data that contains information and analysis about national, regional and local markets,
as well as hospitals and their affiliated physicians.
Data sets used for the papers in this workshop
A large collection of data sets on various aspects of health care hosted by the NIH
Various data sets related to drug and substance abuse studies
Contains a list of data sources on the following topics---accessibility of care, ambulatory
surgeries, emergency department visits, health care disparities, health care provided to lowincome and other vulnerable populations, health care quality, health care spending, health care
use, health information data element definitions, values and information models, HIV/AIDS,
hospitalizations, by payer, by states, for children and state specific health care quality
information (strengths, weaknesses and opportunities for improvement)
Health care survey data from 1984-2009-contains both summary statistics and raw data
Identifies the common factors that contribute to cardiovascular disease by following its
development over a long period of time in a large group of participants.
The Image Data Archive houses data for dozens of medical imaging projects, from small, single
institution studies to large multi-site consortia efforts.
Heritage launched the $3 million Heritage Health Prize with one goal in mind: to develop a
breakthrough algorithm that uses available patient data, including health records and claims
data, to predict and prevent unnecessary hospitalizations.
Health care survey data from 1984-2009; contains both summary statistics and raw data
Can access data for a particular species
Genome data available for different diseases
Regional economic data
Regional economic data

Availability
Free but need to request

Old years are free; New years available on


request

Free
Free
Free
Free

Free

Free
Free but need to request
Data for certain projects free and available on
request
Free
Free
Free
Free
Free
Free

Relevant Papers
http://portal.acm.org/citation.cfm?id=1402012

N/A

http://www.dartmouthatlas.org/publications/
N/A
N/A
http://www.icpsr.umich.edu/icpsrweb/SAMHDA/publications

N/A

http://www.cdc.gov/brfss/pubs/index.htm
http://www.framinghamheartstudy.org/biblio/index.html
N/A
N/A
http://www.cdc.gov/brfss/pubs/index.htm
http://smd.stanford.edu/cgi-bin/tools/display/listMicroArrayData.pl?tableName=publication
N/A
N/A
N/A