National Forums

Planned work to date for 2015 - 17

March 2016 update
Shared Priorities
What
No voice unheard no
right ignored
consultation

Lead
Regions

Outcomes
Wide range of people involved in
consultation.

Timescale
June 2015

Submissions from both forum to

the consultation with evidence
from all 9 regions
Inform Green Paper working
groups & actions inc. key social
worker
Maintain links to wider networks
for feedback on issues

February 2016
onwards

Regional review

Regions

Understand current position &

priorities in each region

Reports written
September 2016

Themes identified informed

regional grant agreement
outcomes around strengthening
and developing the region and
reaching out to new groups (for
the NVFF parent carer forums,
for the National Forum of People
with Learning Disabilities people
with complex needs).
CQC engagement
regional work

East, East
Mids, West
Mids, North
East
regions

Raised awareness of the Care

Quality Commission and
understanding about how to
feedback on services.
Engagement with a wider group of
self-advocates and families and
promotion of the regional forums

Completed end of
March 2016

Transforming Care
regional & local
assurance for TCAB

Regions

Strengthened joint working

relationship between regional
family and self-advocacy forums
Evidence of impact of
June 2015 March
Transforming Care work in regions 2017
/ localities
Develop regional & local network
connections with more selfadvocates & family carers

Cuts evidence paper

for Learning Disability
Board

Regions

NHS England
engagement re
transforming care
regional work

Regions

Illustrative examples of the impact June 2016

of cuts from each regional forum
Evidence of where things are
working well
Engagement with a wider group of
self-advocates and families
Support & connect local
July 2016
engagement with emerging TC
Partnerships
Complimentary piece of work to
LGA TC assurance regional work

Promotion and
marketing of the
forums via social
media, website, LD
Today events etc.
Involvement in working
groups inc SAF
Representation at LD
Board and TCAB
Strengthen the joint
working arrangements
and raise the profile of
the forums

National
For a

National
For a

Clear identity for both forums

March 2016 March
Engagement with a wider group of 2017
self-advocates, families, ULOs
professionals etc.

Voices of people and families from

across regions represented
Coproduction
Co chairs
Voices of people and families from
across regions represented and
information fed back to regions
Both forums Joint meeting with attendance by
planning
government minister
groups

SAF, Dec 2015

March 2016
LD Board 3 x year
TCAB 4 x year ongoing
June 2016

National Forum of People with Learning Disabilities Priorities

What
Co chair elections

Who
National
Forum

Outcomes
New postal ballot process
adopted
New co-chair/vice chair
elected

Timescale
October 2015

Strengthening and
developing the regions

IN with reps / Focussed work on South

Apr 16 Mar 17
coordinators? East and South West regions
Evidence of greater
engagement with selfadvocates
Evidence of engagement
with different group of selfadvocates including people
with complex needs

Mazars letters to local

MPs using template
developed by My Life My

Regions

Raised profile of Mazars to

local MP
Question about how local

Feb 16 June 16

Choice

area is responding to this

Information reported back to
LD Board & shared widely to
support self-advocates in
challenging where they think
change needed

Having a voice

See Forum action plan

Understanding the change

to benefits

See Forum action plan

Being safe

See Forum action plan

Regional rep elections

Regions

Regional rep elections

timetable re-established
New reps elected for the
forum

Apr 16 Mar 17

National Valuing Families Forum Priorities

What
DOLS consultation

Who
NVFF /
regions

Outcomes
Submission from forum
and YH regional forum to
consultation
Ensure voice of family
carers of people with a
Learning Disability
included in review

Timescale
Submitted Oct 2016

Care Act Commission One NVFF /

Year On consultation
regions

Submission from forum to

consultation.
Ensure voice of family
carers of people with a
Learning Disability
included in consultation

Submitted March 2016

The NVFF have also
offered to give oral
feedback to the
commission they are
holding session in April
2016

Carers Strategy
consultation

Mazars FOI enquiries

NVFF /
regions

Regions

Submission from forum

Submission June 2016

Influence from families

across the country on the
carers strategy direction
Ensure voice of family
carers of people with a
learning disability included
in the consultation
Gather evidence on how
Feb 16 Oct 16
deaths of people with
learning disabilities are
being reported
National analysis to be
reported back to LD Board
& shared widely to support
families in challenging
where they think change
needed
Regional analysis used to
help regions or local reps

offer soloutions to issues

highlighted in mazars
Focussed work on East
Apr 16 Mar 17
Midlands and South West
regions which are currently
struggling
Evidence of greater
engagement with families

Strengthening and
developing the regions

Building alliances with the

National Parent Carer
Network

NVFF /
regions

Co chair and regional rep

elections

NVFF

Evidence of engagement
Apr 16 Mar 17
with different group of
families
Transition arrangements to
ensure continued
strengthen of families
voice
Information sharing
New process adopted
June 16 Mar 17
New co chair and regional
reps in place