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INTRODUCTION
Genetic counselors throughout North America currently practice what they
describe as nondirective counseling, the aim of which is to enable clients
to make informed and independent decisions with minimal risk of manipulation or coercion. Nondirective counseling is grounded in the belief
that clients are capable of solving their own problems. In order to ensure
that decisions are informed, the counselors role is to provide clients with
accurate genetic information and respond to their questions and concerns.
Counselors minimize the risks of coercion or manipulation by communicating in value-neutral terms as much as possible and unconditionally
supporting client choices.
Genetic counselors are committed to nondirective counseling primarily because it is considered an effective and efficient means of providing
information and support to clients while respecting their freedom to make
their own decisions. Nondirectiveness also represents a pragmatic compromise between several competing social and political values. Because this
approach dissociates counselors from responsibility for decisions made,
genetic counseling cannot be identified with any particular position on
abortion or eugenics. By maintaining a stance of moral neutrality, genetic
counseling is also implicitly pro-choice, a position that is ideologically
in agreement with mainstream feminist values and is consistent with the
emphasis on patient autonomy that currently dominates medical practice.
For all of these reasons, nondirective counseling has remained largely
unchallenged as the most appropriate approach for contemporary genetic
counseling.
But nondirectiveness is not without its practical and ethical limitations.
First, nondirective counseling may not reliably or effectively meet clients
needs. Given the complexity, ambiguity, and unfamiliarity of genetic information, some clients may feel confused or uncertain of their ability to make
decisions independently; indeed, some may not even desire to make decisions alone. For clients that do not know what questions to ask, do not
understand the information given, lack necessary reasoning capacities or
are otherwise unable to make a decision, nondirective counseling creates
the possibility that decisions may be partially informed, based on misunderstanding, or poorly reasoned. To the extent that counselors believe
they must unconditionally support client choices, they may be reluctant to
question or challenge such decisions.
Second, some counselors express awareness of a discrepancy between
the principles of nondirectiveness and the needs of the clients they work
with in their counseling practices.1 Studies of counseling interactions suggest that counselors may shape information according to what they perceive
as their clients needs, and thereby depart from strict nondirectiveness.2;3
Counselors caught in a conflict between theory and practice may feel they
are either failing to serve their patients well or are failing to counsel appropriately. Similarly, the expectation that counselors unconditionally support
even decisions they believe to be unethical such as sex selection can be
highly stressful.4 The conflict between the requirements of nondirectiveness and what counselors believe is professionally appropriate not only
impinges on counselors personal and professional integrity, but supports
the view that nondirectiveness may not always serve clients or society
well.
Third, by providing no constraints on misconstrued, poorly reasoned,
or ethically questionable decisions, genetic counseling is at risk of being
perceived as professionally irresponsible. As the experts, clients expect
counselors to help them make the best decisions possible. If counselors fail
Enable their clients to make informed independent decisions, free of coercion, by providing or illuminating the necessary facts and clarifying the alternatives and anticipated
consequences9 (p. 170).
Although these passages acknowledge the value of information in selfdetermination, they focus on the importance of respect for individual differences and freedom from coercion. The emphasis on avoiding coercion and
supporting client choices suggests that in genetic counseling autonomy is
interpreted in a certain way: as clients right to noninterference in decisionmaking. This interpretation reflects the dominant view of autonomy in
contemporary American culture, however, is not clear that it corresponds
to the needs of clients faced with a genetic decision.
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sistent with a persons most cherished values, goals, and beliefs. Effective
deliberation resembles the traditional definition of competence, referring
to the conscious, rational evaluation of alternatives and their consequences
based on perceptions of risks and burdens in view of available resources
and services. Morally reflective decisions are evaluated in view of the
moral values they represent. While Miller argues that a decision made on
the basis of any one of these frameworks can be considered autonomous,
his analysis also suggests that autonomous decisions draw on a wide range
of factors and deliberative approaches.
I believe that the central weakness of nondirective counseling lies in
its neglect of the role of deliberation in autonomous decision-making.
Because most clients are unfamiliar with genetic information and the types
of decisions to be made, they cannot be assumed to be aware of all the
factors relevant to their decisions or to be independently capable of anticipating the consequences of their alternatives. Their prior knowledge and
experience may both inform and mislead them, while the stress of the
circumstances may impair their judgement. To the extent that nondirective
counseling limits counselors freedom to raise additional issues or question clients decisions, clients are at risk for making partially informed
or poorly reasoned choices. By focusing excessively on noninterference,
counselors could be construed as abandoning clients to errors of ignorance
or poor judgment, while clients are denied the full benefit of counselors
knowledge and experience.
IV. COUNSELING AS DIALOGUE
If client autonomy is to be respected in genetic counseling, opportunities for misconstrued, poorly reasoned, or ethically questionable choices
cannot be entirely eliminated, but it is important that they be minimized.
This can be achieved by reconfiguring the elements of autonomy, shifting the counselors attention from noninterference to the quality of the
decision-making process. This shift reflects a change in the understanding of autonomy. In nondirective counseling autonomy is construed as
a negative right: as clients right to noninterference in decision-making.
Alternatively, autonomy can be viewed as a positive right: as the right to
a maximally enhanced decision-making capacity.24 The aim of counseling remains unchanged: to enable clients to make decisions that are fully
informed and carefully deliberated, and consistent with their goals, values,
and beliefs.
In the interests of promoting sound decision-making, I propose that
counseling take the form of a dialogue in which counselor and client are
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but simply to minimize the likelihood of future regret due to some easily
avoidable error of omission, ignorance, or unanticipated consequences.
The goal of dialogical counseling, then, is an informed and wellconsidered decision, the quality of which is directly related to the thoroughness of the deliberative process. But what should be the content of
such a process? By what criteria should thoroughness be evaluated? How
might a counselor or client know when deliberation has reached its limit
and the best decision has been found?
Millers analysis of autonomy provides some guidance. His three frameworks suggest distinct types of values and content areas that should be
included in discussion. The framework of authenticity calls for consideration of clients prior beliefs, values, and experiences as well as their goals
and preferences. Effective deliberation requires consideration of pragmatic
factors, including but not limited to the medical diagnosis, existing family
responsibilities, financial resources, and available support services. Moral
reflection calls for examination of the ethical values of clients and the communities in which they live, and any consequences for other individuals or
society that may arise from genetic testing.
A thoroughly deliberated decision would be one that had taken account
of each of these kinds of considerations, even though they may not all be
reflected in the final choice. The optimal choice would represent a point
of balance, or equilibrium, between the values, beliefs, and goals of the
decision-maker. It may be at some remove from a clients initial thinking,
depending on what is included in the discussion and whether the client has
had to reevaluate his or her priorities. Decisions are not immune to regret,
because persons values change with time and experience. But clients that
believe their decisions are soundly reasoned can at least be confident that
they have made the best choice possible at that moment in their lives.
By ensuring that decisions are thoroughly considered, dialogical counselors can not only better meet the needs of clients, but in the process they
demonstrate responsibility for the use of their services. This responsibility
is limited, but not insignificant. It is limited because genetic counselors
cannot attempt to impose restrictions on the way genetic information is
used. Genetic decisions are highly personal, and in a pluralist society there
are no common values that could serve as ethical guidelines for the uses
of genetic information. This is clear from the kinds of decisions made.
While one person might perceive raising a child with Down syndrome as
imposing intolerable suffering on the child or a burden on society, another
might view the same child as an opportunity for parenting and compassion. While some may want to know if they carry a gene for a late onset
disorder in order that they may feel empowered and responsible, others
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would rather ignore the burden such knowledge might impose. The Asian
couple that needs a male child in order to maintain a family lineage may be
viewed by Americans as discriminating against women. Clearly, the differing values and needs of clients must be acknowledged and respected. But
errors of ignorance, poor judgement, or harms to others must be avoided.
To this end, the only prerogative counselors have is to ensure that clients
carefully consider the full range of personal, practical, and ethical issues
that are potentially relevant to their decisions. Because counselors must
respect clients final choices they cannot prevent poorly reasoned or ethically questionable decisions. But by taking responsibility for the quality of
the deliberative process, counselors not only can have the satisfaction of
knowing that they have done all they can to promote responsible decisionmaking, but they also demonstrate as much professional accountability as
is possible while upholding clients freedom of choice.
A dialogical model of counseling is not without its own limitations.
Critics will argue that a dialogical approach would take too long and risks
compounding clients confusion. This is a possibility. But it is also possible
that with slightly different training counselors can become astute in quickly
discerning which issues are sources of conflict for clients and which are
not. Dialogical counseling does not require that all facts and alternatives
be equally addressed, but that within the three frameworks, the types of
information and perspectives the client deems meaningful be given careful
consideration. As in nondirectiveness, much of the counselors skill will
entail determining how much clients want and need to know; when to offer
additional information or further explore clients reasoning; and when the
decision-making process is approaching resolution.
It will additionally be argued that clients should be free to make illinformed or poorly reasoned choices as they wish that the dialogical
model intrudes on client autonomy by requiring clients to think about
issues they might prefer to ignore. This is a legitimate claim. Some clients
may indeed prefer to be left to make their own choices without interference,
even knowing they may make a decision they may later regret. But I believe
the majority of clients want to make the best decisions they can, and that
counselors have a responsibility to help them to do so. This responsibility is
derived from counselors greater knowledge and experience with genetic
decisions, and the fact that clients come to them for help. In all other
areas of health care, when experts provide medical alternatives they do
not expect patients to make decisions without guidance or assistance as it
is assumed that patients cannot grasp the significance of the information
provided without help. Only in genetics, perhaps because of the Nazi
legacy and the fear of eugenic associations, have professionals exempted
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CONCLUSION
Dialogical counseling retains many of the features of nondirective counseling. By focusing on clients values, experiences and circumstances,
dialogical counseling could equally be described as client-centered. The
professional stance and many of the counseling strategies used in nondirective counseling may similarly be employed in the dialogical approach.
These include the use of empathy as a means of understanding clients
perspectives; sensitivity to the particular experiences and concerns of individual clients; conscious efforts to avoid manipulating client choices; and
perhaps to begin with, client-led discussion as a means of developing trust
and rapport. The key difference in the dialogical model lies in the expanded
role of the genetic counselor. She is no longer nondirective, but an active
participant in the decision-making dialogue. She is not morally neutral, but
responsible for ensuring that decisions are based on careful consideration
of all the factors the client identifies as significant. By taking responsibility
for the quality of the decision-making process, she demonstrates a degree,
if limited, of responsibility for the use of genetic information.
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Through the expanded role of the genetic counselor, dialogical counseling begins to address the ethical tensions outlined at the outset of this
paper. A dialogical counseling approach should enable clients more reliably and confidently to make fully informed and thoroughly considered
decisions. In this approach, counselors autonomy and integrity would be
enhanced to the extent that they would no longer feel torn between following the requirements of nondirectiveness and contributing what they
believe is most beneficial to the decision-making process. And by holding
counselors responsible for the quality of the deliberative process, dialogical counseling offers a means by which counselors can demonstrate a
degree of professional accountability for the use of genetic information.
This proposal has focused on the ethical dimension of the counselorclient relationship; it does not address the practical details of genetic counseling and client decision-making. Undoubtedly, dialogical counseling will
require more training in psychology and ethics than is currently offered in
most graduate programs. To be maximally effective it will require further
study of the deliberative process the factors and cognitive strategies used
in decision-making, and the ways counselors can contribute to, or interfere
with, that process. The meaning of social and professional responsibility in the context of genetic counseling also needs clarification. But as
a theoretical framework, dialogical counseling offers a way of maintaining the ethical priorities of nondirective counseling while addressing the
need for accountability brought on by the rapid increases in genetic testing. Undeniably, this counseling model imposes new responsibilities on
both counselors and clients. As partners in dialogue, counselors have an
increased responsibility to be at once broadly informed and skilled educators, psychologically astute counselors, and ethically reflective individuals.
Clients, on the other hand, must bring with their desire for information a
willingness to use that information wisely and responsibly. As an alternative to nondirectiveness, dialogical counseling thus may not be the easier
approach, for either counselors or clients. But in a future filled with testing
oportunities, it may be the only way to ensure responsible decision-making
while upholding individual freedom of choice.
ACKNOWLEDGEMENTS
The author is grateful to Robert D. Rece, Ph.D., Therese Lysaught, Ph.D.,
and John Douard, Ph.D., for their thoughtful comments and suggestions
on earlier drafts of this paper.
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