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We provide assistance in 2009 Program Guide

obtaining medical, legal,

financial and other supportive

services for people living with

HIV and AIDS (PLWH/A) in the


Consumer
Ryan White Washington DC

Eligible Metropolitan Area (DC


Advocacy
EMA). The DC EMA consists of

Washington, DC and counties


Project (CAP)
in Maryland, Virginia and

West Virginia. GET CONNECTED! • STAY CONNECTED!


We provide support to PLWH/A

who are encountering barriers to

HIV/AIDS services to ensure that

they remain in care.

If PLWH/A encounter problems

with their care, we provide a

consumer grievance resolution

process in the DC EMA.

CAP Hotline: 1-866-846-9366


CAP 2009 Program Guide The Denver Principles

Contents Who We Are


About The National Association
Founded in 1983, the National Association of People with AIDS (NAPWA) is the oldest national
of People With AIDS (NAPWA). . . . 2
AIDS organization in the United States and the oldest national network of people living with HIV/
A Letter from the
AIDS in the world. NAPWA has been and continues to be an essential voice in HIV/AIDS. Our orga-
Vice President for
nization and mission statement were formed around the Denver Principles. The Denver Principles
Community Affairs, NAPWA. . . . 3
(see below) are as relevant and powerful today as they were when they were written. Our mission
A Letter from the
is to advocate for the lives and dignity of all people living with and affected by HIV/AIDS.
President and CEO, NAPWA . . . . 3
The Denver Principles
EMA Services Directory
Statement from the Advisory Committee of People with AIDS (1983).
The District of Columbia. . . . . . . 4
“We condemn attempts to label us as ‘victims,’ a term which implies defeat and we are only occasion-
Maryland . . . . . . . . . . . . . . . . . . . 7
ally ‘patients,’ a term which implies passivity, helplessness and dependence upon the care of others. We
Virginia. . . . . . . . . . . . . . . . . . . . . 8
are People With AIDS.”
West Virginia. . . . . . . . . . . . . . . . 9

Other Important Documents RECOMMENDATIONS FOR RECOMMENDATIONS FOR PEOPLE WITH AIDS
Client Bill of Rights . . . . . . . . . . 10 HEALTH CARE PROFESSIONALS 1. Form caucuses to choose their own representa-
Client Bill of Responsibilities. . . 11 1. Come out, especially to their patients who tives, to deal with the media, to choose their
Client Grievance have AIDS. own agenda and to plan their own strategies.
Resolution Process. . . . . . . . . . . . . 11 2. Be involved at every level of decision-making
2. Always clearly identify and discuss the theory they
and specifically serve on the board of directors
favor as to the cause of AIDS, since this bias af-
CAP Staff fects the treatments and advice they give.
of provider organizations.

3. Be included in all AIDS forums with equal cred-


Stephen Bailous, Vice President for 3. Get in touch with their feelings (e.g., fears,
ibility as other participants, to share their own
Community Affairs, Program Director anxieties, hopes, etc.) about AIDS and not
experiences and knowledge.
simply deal with AIDS intellectually.
Raul Posas, CAP Program
4. Substitute low-risk sexual behaviors for those
Associate 4. Take a thorough personal inventory and identify which could endanger themselves or their part-
Vanessa Johnson, Executive Vice and examine their own agendas around AIDS. ners; we feel that people with AIDS have an
President, CAP Ombudsman ethical responsibility to inform their potential
5. Treat people with AIDS as a whole people,
and address psychological issues as well as partners of their health status.

CAP Advocates biophysical ones. RIGHTS OF PEOPLE WITH AIDS


6. Address the question of sexuality in people 1. To live as full and satisfying sexual and emo-
Washington, DC
with AIDS specifically, sensitively and with tional lives as anyone else.
Yevette Lindsey
Karen Reynolds information about gay male sexuality in gen- 2. To receive quality medical treatment and quality
Pamela Jasper eral, and the sexuality of people with AIDS social service provision without discrimination
in particular. of any form, including sexual orientation, gen-
Maryland
der, diagnosis, economic status or race.
Shirley Graham RECOMMENDATIONS FOR ALL PEOPLE
Sandy Blackwell 1. Support & Membership in our struggle against 3. To obtain full explanations of all medical

Virginia those who would fire us from our jobs, evict us procedures and risks, to choose or refuse their

Phillip Bailey from our homes, refuse to touch us or separate treatment modalities, to refuse to participate in
us from our loved ones, our community or research without jeopardizing their treatment and
West Virginia
our peers, since available evidence does not to make informed decisions about their lives.
Richard Harris
support the view that AIDS can be spread by 4. To ensure privacy and confidentiality of medical
EMA-Wide
casual, social contact. records, to receive human respect and the right
Solmar Gordillo
2. Not scapegoat people with AIDS, blame us for to choose who their significant others are.
To contact a CAP Advocate call the
the epidemic or generalize about our lifestyles. 5. To die--and to LIVE--in dignity.
toll-free number or send an e-mail
to advocate@napwa.org. For a complete Client Bill of Rights, please refer to page 10 of this guide.

2 CAP Hotline: 1.866.846.9366


Consumer Advocacy Project CAP 2009 Program Guide

Consumer
Advocacy Project
A Letter from the Vice President for Community Affairs, NAPWA Access to HIV/AIDS services is

It is with great joy that we bring you this updated CAP program guide. As the Vice President for
critical to the medical, mental
Community Affairs, I have the pleasure of meeting the people that NAPWA serves. I am able to and emotional health and the
put names to faces and faces to the HIV/AIDS epidemic. I see faces that tell extraordinary stories quality of life for PLWH/A. This
of courage, hope, strength and defiance in the face of this disease. Throughout this guide you will project is designed to ensure
see some of those faces and read the stories of courageous people who have come forward to lend that people with HIV/AIDS have
their voices to break the silence around HIV/AIDS. access to and are maintained in
HIV primary medical care with
For those of you for whom basic heath care needs are not being met, I urge you to access CAP
services. Then tell your story of triumph over adversity so that other people living with HIV/AIDS will appropriate support services.
be inspired by your example. NAPWA’s CAP is designed to
provide consumer advocacy and
outreach primarily for indigent,
uninsured or underinsured PLWH/A
Stephen Bailous, Vice President for Community Affairs
in the Ryan White DC EMA. The DC
EMA covers three states and one
territory comprising 19 counties
in Washington, DC, Maryland,
Virginia and West Virginia.

The heart of CAP is its group of


Consumer Advocates who provide
outreach services and help
A Letter from the President and CEO, NAPWA
PLWH/A navigate the health care
As President and CEO of NAPWA, I am especially grateful to the DC Department of Health’s HIV/AIDS system. They also let consumers
Administration for making this vital project possible for PLWH/A. As AIDS has changed, so has NAPWA.
know about the grievance
Our programs—which continue to build the knowledge and capacity of HIV-positive people to serve in
resolution process in the DC EMA.
leadership roles—increasingly focus on under-served populations such as women, gay men of color and
For more information on CAP go
youth. And when we once struggled just to “stay alive,” now our sights are set much higher. Today, we
to www.napwa.org.
strive to improve the longevity and standard of living for all people living with HIV/AIDS.

Improving the quality and availability of a wide range of health and supportive services is there-
fore at the top of our agenda, as well as an array of legal, social and medical issues facing people
with HIV. These issues include trauma, aging, immigration, disclosure, relationships, family, mental
To reach the Consumer Advocacy
health and addictions.
Project call our toll-free number,
CAP is consistent with NAPWA’s mission, vision and values which were established over twenty five years 1-866-846-9366,
ago in the Denver Principles. So Get Connected and Stay Connected!
or send us an e-mail at
advocate@napwa.org.

Frank Oldham, Jr, President & CEO

National Association of People with AIDS 3


CAP 2009 Program Guide District of Columbia

Washington, DC • EMA Services Directory


The following Ryan White organizations are service providers in the
District of Columbia.
Giving BACK
Client — DC Andromeda Transcultural Health Center. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 202-291-4707
1400 Decatur Street, NW www.andromedatransculturalhealthcenter.org
Zhilphia receives services from Family and Medi-
cal Counseling Services in the District of Colum- Outpatient Ambulatory, Medical Care, Early Intervention, Mental Health Services, Medical Case Manage-
bia. She also works with and volunteers for Pre- ment, Substance Abuse Services – Outpatient, Treatment Adherence and Counseling
vention Works which provides their clients with
Carl Vogel Center. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 202-638-0750
syringe exchange and outreach and referral
1012 Fourteenth Street, NW, Suite #700 www.carlvogelcenter.org
to drug treatment. She is a mother and freely
shares her story of becoming infected from Outpatient Ambulatory, Medical Care, Mental Health Services, Medical Case Management, Substance
unprotected sex with an injecting drug user. She Abuse Services – Outpatient, Food Bank Home Delivered, Treatment Adherence and Counseling
talks about giving birth to two children and the
Children’s National Medical Center . . . . . . . . . . . . . . . . . . . . . . . . 888-884-2327 or 202-476-2327
path she took to get treatment, stay healthy
111 Michigan Avenue, NW www.childrensnational.org
and stay in a positive frame of mind.


Outpatient Ambulatory, Medical Care, Early Intervention, Mental Health Services, Medical Nutrition Ther-
My work with the CBOs and educating young
apy, Medical Case Management, Substance Abuse Services – Outpatient, Child Care, Emergency Financial
people is my way of giving back, of saving a life
Assistance, Food Bank Home Delivered, Medical Transportation and Psychosocial Support Services
of someone living with HIV. The main thing is to
see a doctor, take your medications, use a con- Christ House. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 202-328-1100
dom if you have sex and don’t share needles. 1717 Columbia Road, NW www.christhouse.org


You can live happily with HIV.
Outpatient Ambulatory, Medical Care, Medical Case Management, Food Bank Home Delivered and
— Zhilphia Turner (HIV + for 18 years) Medical Transportation

Community of Hope . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 202-232-9022


2250 Champlain Street, NW www.communityofhopedc.org

Oral Health and Medical Case Management

Damien Ministries . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 202-526-3020


2200 Rhode Island Avenue, NE www.damienministries.org

Medical Case Management and Food Bank Home Delivered


never give up DC CARE Consortium. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 202-223-9550
1156 Fifteenth Street, NW, Suite #500 www.dccare.org

“ For transgender woman it is not always easy to


overcome your fears and the stigma that comes
even sometimes from your own community.
Emergency Financial Assistance and Medical Transportation

Echelon Community Services . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 202-388-9400


Everyone needs to get tested and into care if
302 V Street, NE
you are HIV-positive. I believe I have to lead
Substance Abuse Counseling – Services
by example using the Each One-Teach One
approach. My experience, strength and hope
Family & Medical Counseling Services, Inc.. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 202-889-7900
has taught me that there are services available
2041 Martin Luther King Jr. Ave., SE
which are sensitive to the special needs of the
Outpatient Ambulatory, Medical Care, Mental Health Services, Medical Nutrition Therapy, Medical Case Man-
transgender community. Today people are living
agement, Substance Abuse Services – Outpatient, Food Bank, Treatment Adherence and Counseling
full lives and no longer dying so quickly. It is
better to know. Too many people are still in
Food and Friends. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 202-269-2277


denial about their status.
219 Riggs Road, NE www.foodandfriends.org
— Pamela (HIV + for 14 years) Medical Nutrition Therapy and Home Delivered Meals

4 CAP Hotline: 1.866.846.9366


District of Columbia CAP 2009 Program Guide

Howard University Hospital. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 202-865-6100


2041 Georgia Avenue, NW www.huhealthcare.com

Primary Medical Care, Oral Health, Nutritional Counseling, Treatment Adherence and Case Management

La Clinica del Pueblo . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 202-462-4788


2831 15th Street, NW www.lcdp.org
Life goes on
Consumer Advocate–DC
Outpatient Ambulatory, Medical Care, Medical Care (OTT), Mental Health Services, Medical Case
Management and Linguistics Services

Metro Teen AIDS . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 202-543-9355


“ I love the people I come in contact with. I
have been doing consumer advocacy for 15
years. I am not dependent on what some-
651 Pennsylvania Avenue, SE www.metroteenaids.org body can do for me, but on what I can do
Early Intervention Services for myself. As a Consumer Advocate , I try to


teach others to advocate for themselves.
National Association of People with AIDS (NAPWA) . . . . . . . . . . . . . . . . . . . . . . . . 240-247-0880
— Yvette Lindsey (HIV + for 22 years)
8401 Colesville Road, Suite #505 www.napwa.org

Referral for Healthcare and Supportive Services (OTT)

Prevention Works!. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 866-446-1896 or 202-588-5580


2501 Benning Road, NE www.preventionworksdc.org

Medical Care Management

Regional Addiction Prevention, Inc. (RAP). . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 202-462-7500


1949 4th Street, NE www.rapinc.org

Primary Medical Care, Outpatient Ambulatory, Mental Health Services, Medical Nutrition Therapy and
Medical Case Management

TERRIFIC, Inc. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 202-234-4128 No Time


1222 T Street, NW

Medical Case Management, Childcare, Adoption/Foster Care/Permanency Planning


www.terrificinc.org
to be Angry
Client - DC

Unity Health Care. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 202-518-6409 Jill connected with the Women’s Collective,
3020 14th Street, NW, Suite #307 www.unityhealthcare.org a DC-based agency focusing on women’s
HIV needs. She attends support groups
Unity Health Care/Phoenix Center. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 202-548-6500 there as well as the Coffee House which
1900 Massachusetts Avenue, SE brings in guest speakers and provides vital
Outpatient Ambulatory, Primary Medical Care, Oral Health, Medical Nutrition Therapy, Medical Case information for women living with HIV. Jill
Management and Psychosocial Support Services says the women at the Women’s Collective
are encouraging as well as informed and
US Helping US, Inc. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 202-446-1100 she is happy to be connected with them.
3636 Georgia Avenue, NW www.uhupil.org

Mental Health Services, Medical Case Management and Psychosocial Support Services
“ HIV does not define who I am. I am the
same person as I was before I contracted
HIV. I don’t have any anger about becom-
Whitman-Walker Clinic – New Client Hotline . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 202-939-7690
www.wwc.org ing infected or towards the individual who
infected me. That’s the one thing I believe
Outpatient Ambulatory, Primary Medical Care, Oral Health, Early Intervention, Home and Community,
that keeps me healthy. Without anger I have
Based Care (Day Program), Mental Health Services, Medical Nutrition Therapy, Medical Case Manage-
a positive outlook on life. HIV is just some-
ment, Substance Abuse Services – Outpatient, Legal Services and Psychosocial Supper Services
thing I have to juggle in my life, just like
The Women’s Collective . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 202-483-7003 going to work and paying my bills. I plan to


1436 U Street, NW, Suite #200 www.womenscollective.org live my life to the fullest.

Medical Case Management — Jill Greene (HIV + for for 27 years)

National Association of People with AIDS 5


CAP 2009 Program Guide District of Columbia

The following organizations are Ryan White service providers


Love in Maryland.

Yourself and Charles County Department of Health. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 301-609-6811

Client - DC
Others 4545 Crain Highway, White Plains www.charlescountyhealth.org

Medical Case Management, Medical Transportation, Non-Medical Case Management, Dental Assis-

“ Take control of your life and become an


advocate for the community. I became a
strong advocate for myself and everyone
tance, Emergency Financial Assistance and Seropositive Clinic/Primary Medical

Children’s National Medical Center . . . . . . . . . . . . . . . . . . . . . . . . 888-884-2327 or 202-476-5789


111 Michigan Avenue, NW www.childrensnational.org
else who is infected with and affected by
HIV. You can learn how to be a leader and Childcare, Emergency Food Vouchers, Medical Case Management, Medical Nutrition Therapy, Medical Trans-
take action. Embrace people with love, portation, Mental Health Services, Outpatient/Ambulatory Medical Care and Substance Abuse Outpatient Care
patience and understanding. But most of all,
Dimensions Healthcare System. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 301-322-2326
appreciate life, the people in your life and
7582 Annapolis Road, Hyattsville www.dimensionshealth.org
the individuals who work in the agencies to
provide services. Love yourself and others.
3001 Hospital Drive, Suite #1055, Cheverly. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 301-618-2473
This is how you take care of yourself while
Medical Case Management, Outpatient/Ambulatory
living with HIV and help the next generation


of people who will be impacted by HIV.
Food and Friends. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 202-269-6848
— James Scott (HIV + for 22 years) 219 Riggs Road, NE www.foodandfriends.org

Home Delivered Foods and Medical Nutrition Therapy

Frederick County Health Department . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 301-600-3117


350 Montevue Lane, Frederick www.co.frederick.md.us

EDUCATE AIDS Pharmaceutical Assistance, Emergency Food Vouchers, Health Insurance Premium & Cost Sharing Assis-

others tance, Linguistic Services, Medical Case Management, Medical Nutrition Therapy, Non-Medical Case Manage-
ment, Oral Health, POWER – Prevention for Positives and Seropositive Clinic/Primary Medical
DC EMA-Wide
Spanish-Speaking Consumer Advocate Greater Baden Medical Services (Administrative Office). . . . . . . . . . . . . . . . . . . . . 301-599-6379

“ I first became aware of HIV when I met an 9440 Pennsylvania Avenue, Suite #160, Upper Marlboro www.gbms.org

outreach worker who was handing out 13605 Baden Westwood Drive, Brandywine. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 301-888-1197

condoms and talking about how you can get 1458 Addison Road, Capitol Heights. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 301-324-1500

HIV. Three months later I was in the hospital 3028 Brightseat Road, Suite #104, Glenarden. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 301-772-6905

because of HIV. When I got out of the hos- 5001 Silver Hill Road, 2nd floor, Suitland. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 240-492-2500

pital I felt that I should do the same kind of 4375 Port Tobacco Road, Nanjemoy. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 301-753-4630

outreach that was done for me. My mission AIDS Pharmaceutical Assistance, Medical Case Management, Oral Health Care, Outpatient/Ambulatory
is to get people tested for HIV and make sure Medical Care and Early Intervention Services
they have access to care and services.
Heart to Hand, Inc.. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 301-772-0103
There is stigma attached to HIV/AIDS, espe- 3030 Brightseat Road, Suite #304, Glenarden
cially in the Latino and Hispanic communi-
Non-Medical Case Management, Outreach Services and Emergency Food
ties. Among the greatest challenges are that
HIV education is absent and people don’t Montgomery County Department of Health and Human Services. . . . . . . . . . . . . 240-777-1869
like to think about HIV. I try to empower 2000 Dennis Avenue www.montgomerycountymd.gov
people by educating them. I encourage them
AIDS Pharmaceutical Assistance, Emergency Food Vouchers, Emergency Rental Assistance,
to disclose their HIV status to their partners,
Emergency Utilities Assistance, Medical Case Management, Medical Nutrition Therapy, Medical


ex-partners and friends.
Transportation, Mental Health Services, Oral Health, Outpatient/Ambulatory Medical Care and
—Solmar Gordillo, (HIV + for for 5 years) Substance Abuse Outpatient Care

6 CAP Hotline: 1.866.846.9366


Maryland CAP 2009 Program Guide

Prince George’s County Health Department. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 301-583-3700

I Chose Not to Reveal My


3003 Hospital Drive, First Floor, Cheverly www.co.pg.ed.us
9314 Piscataway Road, Clinton. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 301-856-9490

AIDS Pharmaceutical Assistance, Emergency Food Vouchers, Medical Case Management, Medical Nutri- Photo Due to the Stigma
tion Therapy, Medical Transportation, Mental Health Services, Non – Medical Case Management, Oral
Health, Outpatient/Ambulatory Medical Care and Substance Abuse Outpatient Care
Surrounding HIV/AIDS
Client - MD

The following organizations are Ryan White service providers


in Virginia.
“ I am a 25 year-old African American gay male
who found out I was HIV+ just two years ago.
I just disclosed to my family in the summer of
2008. Working with NAPWA and CAP helped
AIDS Response Effort, Inc. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 540-536-5290 me cope with the stress of HIV and provided
333 W Cork Street, 7th Floor, Winchester www.aidsresponseeffort.org me with someone to help me navigate the
system. It was a complicated process I knew I
Case Management and Referral, Emergency Housing and Utility assistance, Food, Lab Tests, Payments
had to manage, but an advocate helped make
for Medical Care, Prescriptions and Transportation
it easier. I had to go to four places to get all the
Alexandria Health Department, HIV/AIDS Services . . . . . . . . . . . . . 703-838-4400 ext. 305 or 231 services I needed. It would be nice if we could
For Spanish, dial ext. 232 have one-stop shopping. I would also encour-
4480 King Street, Alexandria www.alexandriava.gov/health/info/ age all young people not to be afraid to get


tested because knowing is life. I love living!
1200 N. Howard Street, Alexandria Casey Clinic and Dental Services. . . . . . . . . . 703-519-5979 ext. 211
www.alexhealth.org — Steve (HIV + for 2 years)

Dental Services (requires a referral from case manager), HIV Anonymous and Confidential Testing,
Partner Counseling, Referral Services, Sexually Transmitted Disease (STD) Clinic, AIDS Drug Assistance,
Medical Case Management, Nutrition Services, Primary Medical Care and ADAP

Alexandria Neighborhood Health Service, Inc. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 703-535-5568


2 East Glebe Road, Alexandria www.anhsi.org

Services: Adult medicine and women’s health


3804 Executive Ave. D-1, Alexandria. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 703-519-1725

Services: Pediatrics
3802 Executive Ave. D-1, Alexandria. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 703-535-7930

Services: Family support and Mental Health Services


Arlington County Department of Human Services (Section 8 Housing) . . . . . . . . . . . . . . 703-228-1450
Volunteer - MD
EMPOWER
3033 Wilson Blvd., Suite #400-A, Arlington www.arlingtonva.us/departments/HumanServices/

Arlington DHS provides HOPWA funded tenant-based rental assistance to Arlington PWAs and families
affected by AIDS. They also administer the Housing Choice Voucher (formerly Section 8) program for the
county, which is not specifically designed for but is available to PWAs
“ Getting a diagnosis of HIV is not the end of the
world even though it seems like it. There are
many services available...It is just a matter of
knowing how to get what you need whether
Health AIDS/HIV Services . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 703-228-5200 or 703-228-1200 it is medications, mental health services, dental
HIV/STD testing and risk reduction counseling care or basic medical care. An HIV diagnosis is
not a death sentence. Through CAP, I feel that
Children’s National Medical Center, Burgess Clinic. . . . . . . . . . . . . . . . . . . . . . . . . . 202-884-5939 I can listen to people and help them navigate
111 Michigan Avenue, NW www.childrensnational.org the service delivery system by walking them


Childcare, Babysitting, Emergency Food Vouchers, Medical Case Management, Medical Nutrition Ther- through the process.
apy, Medical Transportation, Mental Health Services, Outpatient/Ambulatory Medical Care, Substance
— Terry Anderson (HIV + for 16 years)
Abuse Outpatient Care, Clinical research, Community Education Programs, Referrals, Social Work and
Volunteer programs

National Association of People with AIDS 7


CAP 2009 Program Guide Maryland — Virginia

Fairfax County Health Department, HIV/AIDS Services . . . . . . . . . . . . . . . . . . . . . . 703-246-2433


Various locations throughout Fairfax County www.fairfaxcounty.gov/hd/health1a.htm

think Confidential HIV Testing and Community Education Programs

POSITIVELY
Consumer Advocate - MD
Fairfax-Fall Church Community Services Board. . . . . . . . . . . . . . . 703-642-4627 or 703-799-2795
8119 Holland Road, Alexandria www.fairfaxcounty.gov/csb


Mental Health Services, Substance Abuse Outpatient Care, Crisis Intervention, Family/Couple Counseling,
I am very positive about life now and feel
Psychiatric referrals/consultation, Support Group Facilitation and Volunteer Programs
healthy. I have no problem with disclosing
my HIV status. I’m just dealing with it like an
Food and Friends. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 202-269-6848
illness, just like anyone else. I am happy now.
219 Riggs Road, NE www.foodandfriends.org
There is a bright future for me. I did a lot of
Home Delivered Foods and Medical Nutrition Therapy
work to get to this point in my life. I went to
therapy, talked and disclosed to my family,
Fredericksburg Area HIV/AIDS Support Services. . . . . . . . . . . . . . . . . . . . . . . . . . . . 800-215-8121
educated myself and I prayed. Face your
415 Elm Street, Fredericksburg www.fahass.org
fears head on because once you do, you
Non-Medical Case Management, Testing, Oral Health, Emergency Food Assistance, Medical Transportation,


conquer your fears and become stronger.
Medical Case Management and Substance Abuse Treatment
— Sandy Blackwell (HIV + for 12 years)
Haven of Northern Virginia, Inc. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 703-941-7000
4606 Ravensworth Road, Annandale www.havenofnova.org

Haven of Northern Virginia, Inc. offers bereavement services to families and friends affected by HIV/AIDS

INOVA Juniper Program, HIV Clinic Services . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 703-321-2600


8001 Forbes Place, Suite #200, Springfield www.inova.org

Substance Abuse Counseling, AIDS Pharmaceutical Assistance, Oral Health, Emergency Food Assistance,
Non-Medical Case Management, Medical Case Management, Medical Nutrition Therapy, Primary Medi-
cal Care, Psychosocial Support and Mental Health Counseling

support systems K.I. Services, Inc. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 703-823-4401

are KEY
3333 Duke Street, Alexandria www.kiservices.org

Education, Health, Prevention case management and Offers OraSure HIV Testing
Consumer Advocate - VA

“ I was so addicted to drugs that I had com- Korean Community Service Center. . . . . . . . . . . . . 888-987-4561 (AIDS Hotline) or 703-354-6345

pletely bottomed out in my life. I could only 7700 Little River Turnpike, Suite #406, Annandale www.kcscgw.org

take the HIV test and regain control of my Medical Case Management and Referral Services
life with the unconditional love and support
of my family. My family helped me get clean Legal Services of Northern Virginia. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 703-778-6800

and into treatment for HIV. I believe that you 6066 Leesburg Pike, Suite #500, Falls Church www.lawhelp.org/program/1569

should celebrate life every day.” Legal Services for Supplemental Security Income (SSI) and Medicaid, Employment, Housing and Public Benefits

I have a great quality of life and a reason for Loudoun County Health Department. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 703-771-5820
being. I am a Consumer Advocate. This is 102 Heritage Way, NE, Suite #101, Leesburg www.loudoun.gov


what I do and what I was meant to do.
AIDS Pharmaceutical Assistance, Oral Health and Primary Medical Care and Medical Transportation
— Phillip Bailey (HIV + for 17 years)
Medicorp Health Services/Mary Washington Hospital. . . . . . . . . . . . . . . . . . . . . . . 540-374-3277
1101 Sam Perry Blvd, Suite #307, Fredericksburg www.medicorp.org/mwh

AIDS Pharmaceutical Assistance, Oral Health and Primary Medical Care

8 CAP Hotline: 1.866.846.9366


Virginia — West Virginia CAP 2009 Program Guide

National Association of People with AIDS (NAPWA) . . . . . . . . . . . . . . . . . . . . . . . . 866-846-9366


8401 Colesville Road, Suite #505, Silver Spring, MD www.napwa.org

Consumer Advocacy Project provides assistance to PWA’s living throughout the metro Washington in
obtaining: Financial, Legal, Medical Assistance and other supportive services

Northern Virginia AIDS Ministry. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 703-533-5505 ext. 10


803 West Broad Street, Suite #700, Falls Church www.novam.org Client - VA
KEEP fighting
Emergency Food Services, Children Services, Pastoral Care, Transportation and Volunteer programs
Shaun receives medical care from the Northern
Northern Virginia Area Health Education Center. . . . . . . . . . . . . . . . . . . . . . . . . . . 703-549-7060 Virginia Inova Juniper program. He believes that
3131-A Mount Vernon Ave., Alexandria www.nvahec.org it is important to educate young adults about
STDs and HIV. He belongs to the Northern Vir-
Interpreter and Translation Services
ginia AIDS Ambassador Program and regularly
Northern Virginia Family Services (NVFS) . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 703-385-3267 speaks to high school students. He also makes
10455 White Granite Dr., Suite #100, Oakton www.nvfs.org presentations at George Mason University and
Northern Virginia Community College.
HOPWA funded tenant-based rental assistance (TBRA) and other housing related services

Prince Williams Housing & Community Development . . . . . . . . . 703-792-7530 (Prince Williams)


15941 Donald Curtis Dr., Suite #112, Woodbridge. . . . . . . . . . . . . . . . . 703-361-8277 (Manassas City)
“ Don’t give up. I definitely believe in the power
of positive thinking. Keep the faith, keep


fighting and we’ll get through it together.
www.pwcgov.org
— Shaun Hobdy (HIV + for 25 years)
Housing counseling and tenant-based rental assistance to PWAs living in Prince William County (includ-
ing residents of Manassas and Manassas Park)

Prince Williams Health Department. . . . . . . . . . . . . . . . . . . . . . . . . . . . 703-792-6300 (Manassas)


9301 Lee Ave, Manassas
4001 Prince William Prkwy, Suite #101, Woodbridge . . . . . . . . . . . . . . . . 703-792-7300 (Woodbridge)

ADAP Certification, Confidential HIV Testing, Education, Prevention and Referral Services

Wesley Housing Development Corporation (Agape House) . . . . . . . . . . . . . . . . . . 703-642-3830 I AM great


5515 Cherokee Avenue, Suite #200, Alexandria www.wesleyhousing.org Consumer Advocate - WV

Agape House, a complex of 12 one- and two-bedroom apartments designated for PWAs. Agape House
is located in western Fairfax County. An on-site resident services coordinator provides counseling and
other support services to the residents
“ I am very lucky that my care is covered
by Veterans Affairs. Most people in West
Virginia have to be clients of two service
providers in order to get a full continuum of
Wholistic Family Agape Ministries Institute . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 703-519-9100
care. Many clients deal with stigma; some of
2433 Mt. Vernon Avenue, Alexandria
it is self-imposed. I believe that you have to
Medical Case Management be okay with yourself and then everything
good will follow. You have to get out of your


box and not be labeled.

— Richard Harris (HIV + for 10 years)

The following organization is the Ryan White service provider


in West Virginia.

AIDS Network of the Tristate Area. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 304-263-0738


400 West Martin Street, Martinsburg geocities.com/ants25401

Medical Case Management, Education and Support Services

National Association of People with AIDS 9


CAP 2009 Program Guide Client Bill of Rights

Client Bill of Rights


Therefore, be it known, the following are our rights as people living with HIV/AIDS:

yes we can We have the right to our confidentiality and privacy, We have the right to be protected from exposure to
improve in all contexts and in all contacts. infectious diseases, which may further compromise
our health.

Care Services
We have the right to be treated with dignity, com-
passion, sensitivity, and respect. We have the right to make informed decisions about
Chair of HIV Health Services Planning Council our lives and in order to do so we have the right to


We have the right to have control over our lives, our have full explanations of all medical procedures, risks
The AIDS epidemic is not over. It is im-
treatment, and our goals. and benefits, and we have the right, without jeopar-
perative that people living with HIV/AIDS
dizing our (overall plan of) treatment:
utilize the services available. In spite of the We have the right to be free from harassment and
recession and lack of personal resources, discrimination, whether from governmental or non- • to choose or refuse treatment, in all or in part,
HIV/AIDS services are available to people governmental authorities and agencies. • to choose or refuse participation in clinical
who are HIV positive and not in care. Too research trials,
We have the right to quality health care, to choose
many people are falling out of care. People • and to be informed of alternative modes
and, with/through a due process, change our health
need assistance to navigate the health care of treatment.
care provider, without being penalized.
system. The best way to do this is through
culturally competent case management for We have the right to include, exclude, or limit our
We have the right to discuss our feelings and fears,
all who need it. It would also help if services significant other, spouse, family, children, or care giv-
openly, honestly, and on an ongoing basis.
were portable, so that PLWH/A could access ers participation in our treatment plan and progress.


services throughout our EMA. We have the right to be free from intimidation and
We have the right to participate in the assessment of
abuse of any nature, whether physical, mental,
— Wallace L. Corbett, Jr. (HIV + for 20 years) our own, and our family’s needs, and in the develop-
verbal, or sexual.
ment of a plan of (medical and or service) care; and

We have the right to a full and satisfying sexual and to arrange, coordinate, monitor, evaluate, and advo-

emotional life. cate to match our needs to a package of services.

We have the right, at our request, to have our medi-


We have the right to a standardized grievance proce-
cal condition explained by a health or social service
dure that will leave us free from being penalized by a
professional to our families, school, job, church, etc.
provider or organization.
We have the right to have information regarding
We have the right to case management (from the
health hazards and safety procedures and practices
moment we are informed of our HIV+ diagnosis).
made available to all persons who are handling and/
We have the right to request a change in our case or assisting us on a daily basis.
management within one service organization to
We have the right to culturally sensitive service orga-
another of our choice, without excessive red tape,
nizations that embrace, encourage, and promote an
and without being penalized or refused (continuance
appreciation for and understanding of cultural and
of) services that are available in the original service
ethnic diversity, regardless of legal or residency status.
organization, if we are being case managed by
another (service organization). We have the right to be referred or directed, by our
primary caregiver, to the proper service organiza-
We have the right to treatment based on our illness, tions if our request for services cannot be met by our
rather than on our ability to pay, and to be informed primary caregiver.
of caps or limits during treatment.
We have the right to non-judgmental, clear, and
We have the right to establish priority of services non-condescending communication from all ser-
which will/may change with the progression of vice organizations and their representatives, from
the disease. which we seek assistance.

10 CAP Hotline: 1.866.846.9366


Client Grievance Resolution Process CAP 2009 Program Guide

Client Bill of Responsibilities


Therefore, be it known, the following are the responsibilities of people living with HIV/AIDS:

To treat staff with dignity and respect. To maintain treatment that, if terminated, could
put the public at risk (e.g. Tuberculosis medication).
To not threaten the safety of staff or others.
To ensure the privacy and rights of others who are
To keep appointments or cancel in a timely manner. seeking HIV services during your visits.

To adhere to any local policies regarding parking, All clients are advised that certain activities are pro-
loitering, smoking, and etc. hibited in clinic or in Health Department buildings.
They include:
To maintain your own health.
• Fighting
To not infect others with HIV/AIDS. • Possession of weapons
• Threats or acts of violence toward other
stay
To notify the medical staff if using alternative
treatments and other providers.
clients or staff STRONG
To inform our potential sexual partners of our
• Buying, selling, or using drugs and/or any other
contraband while obtaining or accessing services.
it gets better
HIV/health status prior to sexual encounters, and HIV/AIDS Activist
Any client involved in these activities can and
to use safer sexual behavior and practices.

To use clean needles and not share needles when


will be terminated from services immediately.
Information about and referral to other sources
“ In spite of being a mother with five children
(one of my children is HIV-positive) I have
been able to be an HIV/AIDS activist since I
injecting drugs. of care will be provided.
got my diagnosis. Being a single mother by
***Adapted from the Charles County Department of Health*** itself can be complicated, but being a single
mother with HIV is even more challenging.
Client Grievance Resolution Process One of the biggest challenges PLWH/A face
is finding clean, safe affordable housing.
If you think your treatment is not appropriate or your rights have been violated, you have the right to
Housing is often the first priority for PLWH/A.
file a grievance. A grievance is a complaint by a client or patient caused by a circumstance thought to be
My children have always known my HIV
unjust or injurious during service provision. It is the policy of the DC EMA that all patients or clients shall
status. I always talk about HIV even when
have the right to file a grievance regarding treatment provided. NAPWA’s Consumer Advocacy Project
my children don’t want me to mention it in
can help you at any or all stages of the grievance resolution process.
front of their friends. I don’t let my children’s


fear of stigma silence me.
The steps you should take when filing a grievance are:
— Danielle Pleasant (HIV + for 16 years)
Make an appointment and talk to your case manager. If this does not assist you in resolving your grievance;

Make an appointment and talk to the case management supervisor. If this does not assist you in resolv-
ing your grievance;

Prepare a written complaint and refer it to the service provider’s appropriate program person in accor-
dance with their Grievance Policy. Your written complaint should contain the following elements:

Clearly identify the nature and source of your complaint or grievance. Request that the written notice be
acknowledged by the appropriate program person within five (5) working days and that you be advised
of the time frame for completing the investigation, not to exceed fifteen (15) working days from the
date the written notice was received and acknowledged. Please note the timeline may vary.

If your complaint still has not been resolved after completing the agency grievance resolution process
you can appeal that decision to the Consumer Advocacy Project.

All patients and clients have the right to file a grievance and to be heard without fear of retaliation.

National Association of People with AIDS 11


The Government of the District of

Columbia, Department of Health,

HIV/AIDS Administration, funds

this program wholly or in part.

Esta Programa es financiado total

o parcialmente por el Gobierno

de Distrito de Columbia,

Departamento de Salud,

Administración de VIH/SIDA.

Photos by VannArtPhoto,

Van A. Emery, photographer

Email: advocate@napwa.org

8401 Colesville Rd, Ste 505 • Silver Spring, MD 20910