Académique Documents
Professionnel Documents
Culture Documents
Needs Analysis
Introduction
Data Collection
Methods used
parents becoming more aware of the services that are available through
occupational therapy.
Lastly, they regretted that due to their current billing and scheduling
structure, they were unable to provide group intervention and parent education.
Dr. Golley spoke of an occasion she had witnessed in another setting where two
children had been able to connect through such group sessions. It was the first
time the children had had an opportunity to play with someone who they felt truly
understood them, and they became best friends. This was a rewarding
experience for the children, therapists, and families involved.
Providing education and social support for parents is also lacking in
current programming. Dr. Golley and Ms. Welch reported that parents often do
not know where they can take their children in the community that will be
sensitive to their sensory needs. Furthermore, parents dont have a place where
they can gather, whether virtually or in person, to meet with other parents who
have children with sensory issues to discuss their struggles and insights. This
peer support gap is a missed opportunity to share advice and experience. They
also want a way for parents to return to the clinic for check-ups to address new
issues or circumstances.
Intervention observations
During three therapy sessions, I was able to observe therapists working
with children with sensory needs. I was able to see first-hand how barriers to
sensory organization affected each childs performance in skill areas such as
gross motor planning and execution, fine-motor movement, sustained attention,
social interaction, and emotional regulation. While the therapists moved around
the room interacting with and observing the child, they also tried to involve and
educate parents; which wasnt always an easy task. The patients safety is the
clinicians top priority, as well as providing therapeutic interaction. That makes it
difficult to give the parents direct attention and to fully explore concepts and
questions. Additionally, the parents were often distracted by the necessity of
providing supervision to their other young children, and so were unable to take
notes on what they wanted to remember.
Student perspective
I witnessed strengths of the occupational therapy program and team at
Primary Childrens. Dedicated, passionate, and competent therapists provided
specialized therapy to each patient. During informal faculty introductions,
therapists were supportive and expressed excitement regarding program
expansion. I was impressed with the drive of those in management to be
innovative and push for change rather than maintain the status quo.
Another strength I observed during clinic visits was that several of the
locations provided a large sensory-style gym, which was hugely advantageous to
therapy sessions. Conversely, individual treatment rooms became quite small
with the therapist, patient, parent, younger sibling, and several students present.
The clinics seemed to be well stocked with activities, tools, and play equipment.
The staff offices also had many informational resources and assessments to
draw from. Overall, the environment was supportive, friendly, and positive.
Literature Review
Sensory Processing
General information
Sensory processing refers to the neural organization and classification of
sensory information in the environment in order to form a behavioral response
(Brown & Nicholson, 2011). Theory behind the concept of sensory processing
originated with an occupational therapist named Jane Ayers, who developed the
Sensory Integration frame of reference. Ayers (1979) postulated that sensory
integration involved a purposeful, goal directed response to a sensory
experience (p.6). When an individual craves a certain stimulus, or is over or
underresponsive to stimuli and it interferes with their ability to participate in
everyday activities, a sensory modulation disorder may be present (Brown &
Nicholson, 2011).
The etiology and prevalence of sensory-related issues are current
subjects of study. Research by Owen et al. (2013) presented results of diffusion
tensor imaging (DTI), which showed abnormal posterior white matter
mircrostructure among children diagnosed with Sensory Processing Disorder
(SPD), and abnormal posterior cerebral white matter among children with
sensory-related behaviors. Regarding the prevalence of sensory processing
disorders in the United States, estimated rates range from 5.3-16.5% (Ahn,
Miller, Milberger, & McIntosh, 2004; Ben-Sasson, Carter, & Briggs-Gowan, 2009),
and up to 55.9% in low-income settings (Gourley, Wind, Henninger, & Chinitz,
2013). These numbers indicate that there is a need and demand for evidencebased, sensory-specific treatment.
Sensory processing issues have also been found to affect one of the most
important occupations of children; play. Children with sensory issues
demonstrate lower levels of social play and complexity of social play, respond to
fewer social cues, and experience more frequent conflict during play than
typically developing peers (Cosbey, Johnston, Dunn, & Bauman, 2012).
Furthermore, sensory overresponsivity can compromise social participation due
to discomfort related to the unpredictable and changing sensory input that comes
with social play (Ben-Sasson, Carter, & Briggs-Gowan, 2009). Sensory issues
also influence choice of toys and type of play, as children seek to meet their
sensory needs (Mische-Lawson & Dunn, 2008).
Parenting and family roles
The aforementioned areas of concern can certainly impact family routine,
and parents of children with sensory needs can feel at a loss as to how to handle
these challenges. Cohn, May-Benson, and Teasdale (2010) performed a study
with 248 parent participants of children with SPD, with the intention of
determining whether sensory-related behaviors in their children (avoiding eye
contact, being uncooperative, or having temper tantrums or poor frustration
tolerance p.179) correlated with parental sense of competency. Results
indicated a significant relation, with higher rates of challenging behaviors
corresponding to lower sense of competence. The article concluded with a
recommendation to address not only social behavior of children, but also the
needs of parents during therapy intervention.
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the long-term. Families often return to the clinic because they have been unable
to successfully implement strategies. Part of that difficulty likely stems from the
chaotic and short amount of time in which parents have to glean information
during the therapy sessions.
Research literature shows that incorporating a parent education
component leads to positive outcomes both in the sense of competency of the
parent, and increased positive behaviors and goal achievement in the client
(Dunn, Cox, Foster, Mische-Lawson, & Tanquary, 2012; Flanagan, Hampton,
Sullivan, Miller, & Schoen, 2015; Gee & Peterson, 2016). In short, a more
educated and better-supported parent can affect the occupational performance
and participation of their child. And yet, the parent population in the current
system is underserved.
Another missing piece of the current program is the opportunity to address
social interaction. Group therapy is not covered by insurance, and so has not
been seen as an option at Primary Childrens even though social participation
and play are top concerns of parents (Schaaf et al., 2015), and are reduced in
children with sensory issues (Cosbey, Johnston, Dunn, & Bauman, 2012).
Research shows that a focus on social interaction enables children to make
connections and establish friendships (Ben-Sasson, Carter, & Briggs-Gowan,
2009). This has also been the experience of Dr. Golley, who reported witnessing
similar positive outcomes in her own profession experience.
As Primary Childrens Hospital seeks to put the child first, it is important to
incorporate evidence into programming to provide the best care, and to listen to
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parents when determining what is most important for them and their children.
Although therapists have been able to address the area of ADL and IADL
participation, which was identified as another concern of parents (Schaaf et al.,
2015) through individual therapy, other areas of concern have not been similarly
addressed.
Program Proposal
General description
Note: This paper is to be read in combination with a paper authored by
Kelli Garfield, which focuses on additional services offered to parents and
children such as an online forum and community sessions.
Program overview
The needs analysis and literature review revealed valuable services
missing from the current sensory program at Primary Childrens Hospital; namely,
parent education and social participation. Literature revealed positive,
occupation-based outcomes for this type of programming in both the child and
parent. Increasing the scope of existing programming through incorporating
these areas will assist Primary Childrens Hospital to ensure best care, and to
realize their mission of putting the child first.
To this aim, the proposed program offers a didactic parent education
course providing an introductory-level overview of sensory processing, sensory
modulation, environmental and lifestyle adaptation, and parenting skills/behavior
management. A dedicated parent education program that is free from distraction,
would provide a preferred environment for parents to learn more about their
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childs condition and how to best support them. Social participation will be
addressed through group therapy sessions incorporating play. This will enable
children to practice sensory modulation skills in a safe and guided space, and in
a manner more purposeful and meaningful to them. Group therapy also affords
the therapist an opportunity to observe the social interactions of each child in a
more natural environment.
Several assessments will be utilized to serve as outcome measures.
Currently, therapists perform the Sensory Processing Measure or Sensory Profile
and assess sensory motor skills during the initial evaluation. Including the COPM
during the initial evaluation and then again at discharge will enable comparison of
parents satisfaction levels regarding change in occupational performance. To
determine program efficacy for parent participants, the Parenting Stress Index
(short form), and the Parenting Sense of Competence Scale will be administered.
Rationale for occupational therapist
Occupational therapists core objective is to enable clients to participate in
the activities they need or want to do, despite disability or illness. This is
accomplished through analyzing the transaction between a person (with their
accompanying skills and physical abilities), the demands of the chosen task, and
the individuals contexts and environments (AOTA, 2011). Thus, the domain of
occupational therapy is a good fit for the needs of children with sensory issues,
who have difficulty being successful in tasks such as self-care, social
participation, and role competence due to sensitivity to their sensory
environment. Occupational therapists are able to look at the child holistically to
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References
Ahn, R. R., Miller, L. J., Milberger, S., & McIntosh, D. N. (2004). Prevalence of
parents perceptions of sensory processing disorders among kindergarten
children. American Journal of Occupational Therapy, 58(3), 287-293.
American Occupational Therapy Association. (2011). Definition of occupational
therapy practice for the AOTA Model Practice Act. Retrieved from
http://www.aota.org/~/media/Corporate/Files/Advocacy/State/Resources/P
racticeAct/Model%20Definition%20of%20OT%20Practice%20Adopted
%2041411.ashx
Ayres, A. J. (1979). Sensory Integration and the Child. Los Angeles: Western
Psychological Services.
Barnhill, G. P., Cook, K. T., Tebbenkamp, K., & Myles, B. S. (2002). The
effectiveness of social skills intervention targeting nonverbal
communication for adolescents with Asperger syndrome and related
pervasive developmental delays. Focus on Autism and Other
Developmental Disabilities, 17(2), 112-118.
BarShalita, T., Vatine, J. J., & Parush, S. (2008). Sensory modulation disorder: A
risk factor for participation in daily life activities. Developmental Medicine
& Child Neurology, 50(12), 932-937.
BenSasson, A., Cermak, S. A., Orsmond, G. I., TagerFlusberg, H., Kadlec, M.
B., & Carter, A. S. (2008). Sensory clusters of toddlers with autism
spectrum disorders: Differences in affective symptoms. Journal of Child
Psychology and Psychiatry, 49(8), 817-825.
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Ben-Sasson, A., Carter, A. S., & Briggs-Gowan, M. J. (2009). Sensory overresponsivity in elementary school: prevalence and social-emotional
correlates. Journal of abnormal child psychology, 37(5), 705-716.
Brown, C., & Nicholson, R. (2011). Sensory Skills. In C. Brown & V. C. Stoffel
(EDS.), Occupational Therapy in Mental Health: A Vision for Participation
(1st ed., pp. 280-281). Philadelphia: F. A. Davis Company.
Chien, C. W., Rodger, S., Copley, J., Branjerdporn, G., & Taggart, C. (2016).
Sensory Processing and Its Relationship with Children's Daily Life
Participation. Physical & occupational therapy in pediatrics, 36(1), 73-87.
Cohn, E. S. (2001). Parent perspectives of occupational therapy using a sensory
integration approach. American Journal of Occupational Therapy, 55(3),
285-294.
Cohn, E., May-Benson, T. A., & Teasdale, A. (2011). The relationship between
behaviors associated with sensory processing and parental sense of
competence. OTJR: Occupation, Participation and Health, 31(4), 172-181.
Cordier, R., Chen, Y. W., Speyer, R., Totino, R., Doma, K., Leicht, A., ... &
Cuomo, B. (2016). Child-Report Measures of Occupational Performance:
A Systematic Review. PloS one, 11(1), e0147751.
Cosbey, J., Johnston, S. S., Dunn, M. L., & Bauman, M. (2012). Playground
behaviors of children with and without sensory processing disorders.
OTJR: Occupation, Participation and Health, 32(2), 39-47.
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Dunn, W. (1997). The Impact of Sensory Processing Abilities on the Daily Lives
of Young Children and Their Families: A Conceptual Model. Infants &
Young Children, 9(4), 23-35.
Dunn, W., Cox, J., Foster, L., Mische-Lawson, L., & Tanquary, J. (2012). Impact
of a contextual intervention on child participation and parent competence
among children with autism spectrum disorders: A pretestposttest
repeated-measures design. American Journal of Occupational Therapy,
66(5), 520-528.
Flanagan, J., Hampton, S. R., Sullivan, J., Miller, L. J., & Schoen, S. (2015). A
Retrospective Pretest/Posttest Study of Occupational Therapy Intervention
for Children With Sensory Challenges. American Journal of Occupational
Therapy, 69(Supplement_1), 6911515056p1-6911515056p1.
Gee, B. M., & Peterson, T. W. (2016). Changes in Caregiver Knowledge and
Perceived Competency Following Group Education about Sensory
Processing Disturbances: An Exploratory Study. Occupational Therapy
International, 23(4), 338-345.
Intermountain Primary Childrens Hospital (n.d.). About: The child first and
always. Retrieved from
https://intermountainhealthcare.org/locations/primary-childrenshospital/hospital-information/about/
Koenig, K. P., & Rudney, S. G. (2010). Performance challenges for children and
adolescents with difficulty processing and integrating sensory information:
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Appendix A
What
What
are the specific issues you see with your areas of concern?
No opportunity for group sessions or parent education
No way for parents to connect with each other
Difficult for new patients to get in for an appointment; slots are
already taken by patients who are regulars
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