Kumpulan Referensi Evaluasi Klinik

David Feeny, William Furlong,
and George W. Torrance

Health Utilities Incorporated
Note: This information is also available at: http://www.fhs.mcmaster.ca/hug/index.htm and
http://www.healthutilities.com/
12 July 2015
A Few Sources of Information
on the Health Utilities Index (HUI)
Clinical and Evaluative Studies Using HUI [Clinical; Evaluative; Reliability; Responsiveness;
Validity]
Abrams, Harvey B., Theresa H. Chisholm, and Rachel McArdle, Health-Related Quality of Life
and Hearing Aids: A Tutorial. Trends in Amplification, Vol. 9, No. 3, 2005, pp 99-109. [HUI3;
Review Article]
Adachi, J. D., G. Ioannidis, L. Pickard, C. Berger, J. C. Prior, L. Joseph, D. A. Hanley, W. P.
Olszynski, T. M. Murray, T. Anastassiades, W. Hopman, J. P. Brown, S. Kirland, C. Joyce, A.
Papioannou, S. Poliquin, A. Tennenhouse, and E. A. Papadimitropoulos, The Association
Between Osteoporotic Fractures and Health-Related Quality of Life as Measured by the Health
Utilities Index in the Canadian Multicentre Osteoporosis Study (CaMos). Osteoporosis
International, Vol. 14, No. 11, November, 2003, pp 895-904. [HUI2; HUI3; Construct Validity]
Albertsen, Peter C., Robert F. Nease, and Arnold L. Potosky, Assessment of Patient Preferences
among Men with Prostate Cancer. Journal of Urology, Vol. 159, No. 1, January, 1998, pp
158-163. [HUI2; Clinical]
Alessi, Daniela, Elisa Dama, Ronald Barr, Maria Luisa Mosso, Milena Maule, Corrado Magnani,
Guido Pastore, and Franco Merletti, Health-Related Quality of Life of Long-Term Childhood
Cancer Survivors: A Population-Based Study of the Childhood Cancer Registry of Piedmont,
Italy. European Journal of Cancer, Vol. 43, No. 17, November, 2007, pp 2545-2552. [HUI3;
Construct Validity]
Alexander, Michael, William Berger, Patricia Buchholz, John Walt, Caroline Burk, Jeff Lee, Rob
Arbuckle, and Linda Abetz, The Reliability, Validity, and Preliminary Responsiveness of the Eye
Allergy Patient Impact Questionnaire (EAPIQ). Health and Quality of Life Outcomes, Vol. 3, No.
67, October 31, 2005 (electronic journal) [http://www.hqlo.com/content/3/1/67 [HUI2; HUI3;
Construct Validity]
Anis, Aslam H., Bohdan Nosyk, Huiying Sun, Daphne P. Guh, Nick Bansback, Xin Li, PaulG.
Barnett, Vilja Joyce, Kathleen M. Swanson, Tassos C. Kyriakides, Mark Holodniy, D. William
Cameron, and Sheldon T. Brown, Quality of Life in Patients with Advanced HIV/AIDS:
Measuring the Impact of Both AIDS-Defining Events and Non-AIDS Serious Adverse Events.
Journal of Acquired Immune Deficiency Syndrome, Vol. 51, No. 5, August 15, 2009, pp 631-639.
1
HUI Reference List
[HUI3; Construct Validity; Responsiveness]

Anthony, Samantha J., Enid Selkirk, Lillian Sung, Robert J. Klaassen, David Dix, Katrin
Scheinemann, and Anne F. Klassen, Considering quality of life for children with cancer: a
systematic review of patient-reported outcome measures and the development of a conceptual
model. Quality of Life Research, Vol. 23, No. 3, April, 2014, pp 771-789; published online
August 2, 2013. [HUI2; HUI3; Review Article]
Arnoldner, Christoph, Vincent Y. Lin, Richard Bresler, Alexandra Kaider, Jafri Kithubutheen,
David Shipp, and Joseph M. Chen, Quality of Life in Cochlear Implantees: Comparing Utility
Values Obtained Through the Medical Outcomes Study Short-Form Survey-6D and the Health
Utility Index Mark 3. Laryngoscope, published online February 18, 2014. [HUI3; Construct
Validity; Responsiveness]
Asakawa, Keiko, Darryl Rolfson, Ambikaikapan Senthilselvan, David Feeny, and Jeffrey A.
Johnson, Health Utilities Index Mark 3 Showed Valid in Alzheimer Disease, Arthritis, and
Cataracts. Journal of Clinical Epidemiology, Vol. 61, No. 7, July, 2008, pp 733-739. [HUI3;
Construct Validity]
Ashe, Maureen C., William C. Miller, Janice J. Eng, and Luc Noreau, Older Adults, Chronic
Disease and Leisure-Time Physical Activity. Gerontology, Vol. 55, No. 1, 2009, pp 64-72;
published online June 20, 2008. [HUI3 ambulation; HUI3 dexterity; HUI3 pain; Construct
Validity]
Avorn, Jerry, Josh Benner, Ian Ford, David A. Ganz, Allan Gaw, Robert J. Glynn, Joseph Jackson,
A. Margot Lagaay, SebastianSchneeweiss, Thomas Walley, and Philip S. Wang, Measuring the
Cost-Effectiveness of Lipid-lowering Drugs in the Elderly: The Outcomes Research and Economic
Analysis Components of the PROSPER Trial. Controlled Clinical Trials, Vol. 23, No. 6,
December, 2002, pp 757-773. [HUI3]
Baladi, Jean-Francois, Devidas Menon, and Nicholas Otten, "An Economic Evaluation of
Finasteride for Treatment of Benign Prostatic Hyperplasia." PharmacoEconomics, Vol. 9, No. 5,
May, 1996, pp 443-454. [HUI2; Evaluative]
Banks, Brie Ann, Nicholas J. Barrowman, and Robert Klassen, Health-Related Quality of Life in
Children Undergoing Chemotherapy. Journal of Pediatric Hematology and Oncology, Vol. 30,
No. 4, April, 2008, pp 292-297. [HUI2; HUI3; Construct Validity; Inter-rater Reliability;
Responsiveness]
Bansback, N., C. Czoski-Murray, J. Carlton, G. Lewis, L. Hughes, M. Espallargues, C. Brand, and
J. Brazier, Determinants of Health-Related Quality of Life and Health State Utility in Patients
with Age Related Macular Degeneration: The Association of Contrast Sensitivity and Visual
Acuity. Quality of Life Research, Vol. 16, No. 3, April, 2007, pp 533-543. [HUI3; Construct
Validity]
Barr, Ronald D., William Furlong, Susan Dawson, Anthony C. Whitton, Ingrid Strautmanis,
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HUI Reference List
Mohan Pai, David Feeny, and George W. Torrance, "An Assessment of Global Health Status in
Survivors of Acute Lymphoblastic Leukemia in Childhood." American Journal of Pediatric
Hematology/ Oncology, Vol. 15, No. 3, August, 1993, pp 284-290. [HUI2; Clinical; Construct
Validity]
Barr, Ronald D., William Furlong, Jennifer Henwood, David Feeny, John Wegener, Irwin Walker,
and Michael Brain, "Economic Evaluation of Allogenic Bone Marrow Transplantation A
Rudimentary Model to Generate Estimates for the Timely Formulation of Clinical Policy."
Journal of Clinical Oncology, Vol. 14, No. 5, May, 1996, pp 1413-1420. [HUI2; Clinical;
Evaluative]
Barr, Ronald D., David Feeny, William Furlong, Sheila Weitzman, and George W. Torrance, "A
Preference-Based Approach to Health-Related Quality of Life in Children with Cancer."
International Journal of Pediatric Hematology/Oncology, Vol. 2, 1995, pp 305-315. [HUI2;
Clinical; Construct Validity]
Barr, Ronald D., Mohan K. R. Pai, Sheila Weitzman, David Feeny, William Furlong, Peter
Rosenbaum, and George W. Torrance, " A Multi-Attribute Approach to Health Status
Measurement and Clinical Management - Illustrated by an Application to Brain Tumors in
Childhood." International Journal of Oncology, Vol. 4, No. 3, March, 1994, pp 639-648. [HUI2;
Clinical; Construct Validity; Reliability]
Barr, Ronald D., Claire Petrie, William Furlong, Marilyn Rothney, and David Feeny,
"Health-Related Quality of Life during Post-Induction Chemotherapy in Children with Acute
Lymphoblastic Leukemia in Remission: An Influence of Corticosteroid Therapy." International
Journal of Oncology, Vol. 11, 1997, pp 333-339. [HUI2; Clinical; Construct Validity;
Responsiveness]
Barr, Ronald D., Toni Simpson, Anthony Whitton, Bonnie Rush, William Furlong, and David H.
Feeny, Health-Related Quality of Life in Survivors of Tumours of the Central Nervous System in
Childhood - A Preference-Based Approach to Measurement in a Cross-Sectional Study. European
Journal of Cancer, Vol. 35, No. 2, 1999, pp 248-255. [HUI2; Clinical; Construct Validity;
Cross-Cultural Validation]
Barr, Ronald D., Dawn Chalmers, Sonja DePauw, William Furlong, Sheila Weitzman, and David
Feeny, Health-Related Quality of Life in Survivors of Wilms Tumor and Advanced
Neuroblastoma: A Cross-Sectional Study. Journal of Clinical Oncology, Vol. 18, No. 18,
September 15, 2000, pp 3280-3287. [HUI2; HUI3; Clinical; Construct-Validity]
Barr, Ronald D., A. Gonzalez, M. Longchong, W. Furlong, M. P. Vizcaino, J. Horsman, L. Fu,
and L. Castillo, Health Status and Health-Related Quality of Life in Survivors of Cancer in
Childhood in Latin America: a MISPHO Feasibility Study. International Journal of Oncology,
Vol. 19, No. 2, August, 2001, pp 413-421. [HUI2; HUI3; Clinical; Construct Validity]
Barr, Ronald D., Mahassen Saleh, William Furlong, John Horsman, Julia Sek, Mohan Pai, and
Irwin Walker, Health Status and Health-Related Quality of Life Associated with Hemophilia.
3
HUI Reference List
American Journal of Hematology, Vol. 71, No. 3, November, 2002, pp 152-260. [HUI2; HUI3;
Barr, Ronald D., Julia Sek, John Horsman, William Furlong,, Mahassen Saleh, Mohan Pai, and
Irwin Walker, Health Status and Health-Related Quality of Life Associated with von Willebrand
Disease. American Journal of Hematology, Vol. 73, No. 2, June 2003, pp 108-114. [HUI2; HUI3;
Barr, Ronald D., David Feeny, and William Furlong, Economic Evaluation of Treatments for
Cancer in Childhood. European Journal of Cancer, Vol. 40, No. 9, June, 2004, pp 1335-1344.
[HUI2; HUI3]
Barr, Ronald D., and Alessandra Sala, Quality-Adjusted Survival: A Rigorous Assessment of
Cure after Cancer During Childhood and Adolescence. Pediatric Blood and Cancer, Vol. 44, No.
3, March, 2005, pp 201-204. [HUI2; HUI3; Review Article]
Barr, Ronald D., Agustina Silva, Maria Wong, William Frid, Susan Posgate, and Gina Browne, A
Comparative Assessment of Attendance and Nonattendance at Camp Trillium by Children with
Cancer and Their Families; Including Their Utilization of Health and Social Services. Journal of
Pediatric Hematology and Oncology, Vol. 32, No. 5, July, 2010, pp 358-365. [HUI2; HUI3;
Construct Validity]
Barrera, Maru, Tanya Teall, Ronald Barr, Mariana Silva, and Mark Greenberg, Health-Related
Quality of Life in Adolescent and Young Adult Survivors of Lower Extremity Bone Tumors.
Pediatric Bone and Cancer, Vol. 58, No. 2, February, 2012, pp 265-273; published online
February 11, 2011. [HUI2; HUI3; Construct Validity]
Bartman, Barbara A., Mitchell J. Rosen, Douglas D. Bradham, Julie Weissman, Marc Hochberg,
and Dennis A. Revicki, Relationship Between Health Status and Utility Measures in Older
Claudicants. Quality of Life Research, Vol. 7, No. 1, January, 1998, pp 67-73. [HUI2; Clinical;
Construct Validity]
Barton, Garry R., John Bankart, Adrian C. Davis, and Quentin A. Summerfield, Comparing
Utility Scores Before and After Hearing-Aid Provision: Results According to the EQ-5D, HUI3,
and SF-6D. Applied Health Economics and Health Policy, Vol. 3, No. 2, 2004, pp 103-105.
Barton, Garry R., John Bankart, and Adrian C. Davis, A Comparison of the Quality of Life of
Hearing-Impaired People as Estimated by Three Different Utility Measures. International Journal
of Audiology, Vol. 44, No. 3, March, 2005, pp 157-163. [HUI3; Construct Validity]
Barton, Garry R., Paula C. Stacey, Heather M. Fortnum, and A. Quentin Summerfield,
Hearing-Impaired Children in the United Kingdom, IV: Cost-Effectiveness of Pediatric Cochlear
Implantation. Ear & Hearing, Vol. 27, No. 5, October, 2006, pp 575-588. [HUI3; Construct
Validity]
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HUI Reference List
Battie, Michele C., C. Allyson Jones, Donald P. Schopflocher, and Richard W. Hu, Health-related
quality of life and comorbidities associated with lumbar spinal stenosis. Spine Journal, Vol. 12,
No. 3, March, 2012, pp 189-195; E-pub December 20, 2011. [HUI3; Construct Validity]
Bauer, M., A. Leavens, and K. Schwartzman, A systematic review and meta-analysis of the
impact of tuberculosis on health-related quality of life. Quality of Life Research, Vol. 22, No. 8,
October, 2013, pp 2213-2235. [HUI2; HUI3; Review Article]
Bayoumi, Ahmed M., and Donald A. Redelmeier, Economic Methods for Measuring the Quality
of Life Associated with HIV Infection. Quality of Life Research, Vol. 8, No. 6, September, 1999,
pp 471-480. [HUI2; Clinical; Construct Validity]
Beaton, Dorcas E., Sheilah Hogg-Johnson, and Claire Bombardier, Evaluating Changes in Health
Status: Reliability and Responsiveness of Five Generic Health Status Measures in Workers with
Musculoskeletal Disorder. Journal of Clinical Epidemiology, Vol. 50, No. 1, 1997, pp 79-93.
[Clinical; Reliability; Responsiveness]
Belfort, Mandy B., John A.F. Zupancis, Katherine M. Riera, Jane H. G. Turner, and Lisa A.
Prosser, Health Status Preferences Associated with Weight Status in Children and Adolescents.
BMC Pediatrics, Vol. 11, No. 1: 12, February 7, 2011 (on-line journal). [HUI2; HUI3; Construct
Validity]
Bell, Chaim, Sally S. Araki, and Peter J. Neumann, The Association Between Caregiver Burden
and Caregiver Health-Related Quality of Life in Alzheimer Disease. Alzheimer Disease and
Associated Disorders, Vol. 15, No. 3, July-September, 2001, pp 129-136. [HUI2; Construct
Validity]
Bennett, Kathryn J., George W. Torrance, Lea-Anne Moran, Frank Smith, and Charlie H.
Goldsmith, Health State Utilities in Knee Replacement Surgery: The Development and Evaluation
of McKnee. Journal of Rheumatology, Vol. 24, No. 9, 1997, pp 1796-1805. [HUI2; Clinical]
Bichey, Bradford G., Jon M Hoversland, Michael K. Wynne, and Richard T. Miyamoto, Changes
in Quality of Life and the Cost-Utility Associated with Cochlear Implantation in Patients with
Large Vestibular Aqueduct Syndrome. Otology & Neurotology, Vol. 23, May, 2002, pp 323-327.
[HUI3; Clinical; Construct Validity]
Bichey, Bradford G., and Richard T. Miyamoto, Outcomes in bilateral cochlear implantation.
Otolaryngology-Head and Neck Surgery, Vol. 138, No. 5, May, 2008, pp 655-661 [HUI3;
Construct Validity; Responsiveness]
Bier, Jo-Ann Blaymore, Anthony Prince, Michelle Tremont, and Michael Msall, Medical,
Functional, and Social Determinants of Health-Related Quality of Life in Individuals with
Myelomeningocele. Developmental Medicine and Child Neurology, Vol. 47, No. 9, September,
2005, pp 609-612. [HUI2; Construct Validity]
Billson, Amanda L. and David A. Walker. "Assessment of Health Status in Survivors of Cancer."
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HUI Reference List
Archives of Disease in Childhood ,Vol. 70, No. 3, March, 1994, pp 200-204. [HUI2; Clinical;
Construct Validity]
Birkmeyer, Nancy J. O., James N. Weinstein, Anna N. A. Tosteson, Tor D Tosteson, Jonathan S.
Skinner, Jon D. Lurie, Richard Deyo, and John W. Wennberg, Design of the Spine Patient
Outcomes Research Trial (SPORT). Spine, Vol. 27, No. 12, June 15, 2002, pp 1361-1372. [HUI2;
HUI3; Study Design]
Blackmore, C. Craig, Scott D. Ramsey, Frederick A. Mann, and Richard A. Deyo, Cervical Spine
Screening with CT in Trauma Patients: A Cost-Effectiveness Analysis. Radiology, vol. 212, No.
1, July, 1999, pp 117-125. [HUI2; Economic Evaluation]
Blanchard, Chris, David Feeny, Jeffrey L. Mahon, Robert Bourne, Cecil Rorabeck, Larry Stitt, and
Susan Webster-Bogaert, "Is the Health Utilities Index Responsive in Total Hip Arthroplasty
Patients?" Journal of Clinical Epidemiology, Vol. 56, No. 11, November, 2003, pp 1046-1054.
[HUI2; HUI3; Construct Validity; Responsiveness]
Blanchard, Chris, Isabelle Ct, and David Feeny, Comparing Short Form and RAND Physical
and Mental Health Summary Scores: Results from Total Hip Arthroplasty and High-Risk
Primary-Care Patients. International Journal of Technology Assessment in Health Care, Vol. 20,
No. 2, Spring, 2004, pp 230-235. [HUI3; Construct Validity]
Blanchard, Chris, David Feeny, Jeffrey L. Mahon, Robert Bourne, Cecil Rorabeck, Larry Stitt, and
Susan Webster-Bogaert, "Is the Health Utilities Index Valid in Total Hip Arthroplasty Patients?,"
Quality of Life Research, Vol. 13, No. 2, March, 2004, pp 339-348. [HUI2; HUI3; Construct
Validity]
Boman, Krister K., Assessing Psychological and Health-Related Quality of Life (HRQL) Late
Effects after Childhood Cancer. Acta Paediatrica, Vol. 96, No. 9, September, 2007, pp
1265-1268. [HUI3; Content Validity]
Boman, K.K., E. Hoven, M. Anclair, B. Lannering, and G. Gustafsson, Health and Persistent
Functional Late Effects in Adult Survivors of Childhood CNS Tumours: A Population-Based
Cohort Study. European Journal of Cancer, Vol. 45, No. 14, September, 2009, pp 2552-2561.
[HUI2; HUI3; Construct Validity; Inter-rater Agreement; Proxy Assessment]
Bond M., S. Mealing, R. Anderson, J. Elston, G. Weiner, R.S. Taylor, M. Hoyle, Z. Liu, A. Price,
and K. Stein, The effectiveness and cost-effectiveness of cochlear implants for severe to profound
deafness in children and adults: a systematic review and economic model. Health Technology
Assessment, Vol. 14, No. 44, September, 2009, pp 1-330. [HUI3; Review Article]
Bondini, Silvia, Jilliam Kallman, Amy Dan, Zahra Younoszai, Fatema Nader, and Zobair M.
Younossi, Health-Related Quality of Life in Patients with Chronic Hepatitis B. Liver
International, Vol. 27, No. 8, October, 2007, pp 1119-1125. [HUI2; HUI3; Construct Validity]
Boran, Perran, John Horsman, Gulnur Tokuc, William Furlong, Pinar Uygur Muradoglu, and Elif
6
HUI Reference List
Vagas, Translation and Cultural Adaptation of Health Utilities Index with Application to Pediatric
Oncology Patients During Neutropenia and Recovery in Turkey. Pediatric Blood and Cancer,
Vol. 56, No. 5, May, 2011, pp 812-817. [HUI2; HUI3; Construct Validity; Responsiveness;
Translation]
Bosch, J. L., E. E. E. van Wijck, P. L. Baum, M. C. Donaldson, J. J. A. M. van den Dungen, and
M. G. M. Hunink, "The McMaster Health Utility Index (II) and the EuroQol 5D Assessed in
Patients with Peripheral Arterial Disease in the United States and the Netherlands." Medical
Decision Making, Vol. 16, No. 4, October-December, 1996, p 450 (Abstract). [Clinical; Construct
Validity]
Bosch, Johanna L., Maria G. M. Hunink, The Relationship Between Descriptive and Valuation
Quality-of-Life Measures in Patients with Intermittent Claudication. Medical Decision Making,
Vol. 16, No. 3, July-September, 1996, pp 217-225. [HUI2; Clinical; Construct Validity]
Bosch, Johanna L., Eric Tetteroo, Willem P. T. M. Mali, Maria G. M. Hunink, for the Dutch Iliac
Stent Trial Group, Iliac Arterial Occlusive Disease: Cost-Effectiveness Analysis of Stent
Placement versus Percutaneous Transluminal Angioplasty. Radiology, Vol. 208, No. 3,
September, 1998, pp 641-648. [HUI2; Clinical; Construct Validity]
Bosch, Johanna L., Yolanda van der Graaf, Maria G. M. Hunink, for the Dutch Iliac Stent Trial
Group, Health-Related Quality of Life after Angioplasty and Stent Placement in Patients with
Iliac Artery Occlusive Disease: Results from a Randomized Controlled Clinical Trial.
Circulation, Vol. 99, No. 24, June 22, 1999, pp 3155-3160. [HUI2; Clinical; Construct Validity]
Bosch, Johanna L. and M. G. Myriam Hunink, Comparison of the Health Utilities Index Mark 3
(HUI3) and the EuroQol EQ-5D in Patients Treated for Intermittent Claudication. Quality of Life
Research, Vol. 9, No. 6, 2000, pp 591-601. [Clinical; Construct Validity; Responsiveness]
Bosch, Johanna L., Elkan F. Halpern, and G. Scott Gazelle, Comparison of Preference-Based
Utilities of the Short-Form 36 Health Survey and Health Utilities Index Before and After
Treatment of Patients with Intermittent Claudication. Medical Decision Making, Vol. 22, No. 5,
September-October, 2002, pp 403-409. [HUI2, HUI3, Construct Validity; Responsiveness]
Boulton, Mary, Linda Haines, Diane Smyth, and Alistair Fielder, Health-Related Quality of Life
of Children with Vision Impairment or Blindness. Developmental Medicine & Child Neurology,
Vol. 48, No. 8, August, 2006, pp 656-661. [HUI3; Construct Validity]
Bowker, Samantha L., Sheri L. Pohar, and Jeffrey A. Johnson, A Cross-Sectional Study of
Health-Related Quality of Life Deficits in Individuals with Comorbid Diabetes and Cancer.
Health
and
Quality
of
Life
Outcomes,
Vol.
4/1/17,
March
22,
2006;
http://www.hqlo.com/content/4/1/17 [HUI3; Construct Validity]
Boyle, Michael H., George W. Torrance, John C. Sinclair, and Sargent P. Horwood, "Economic
Evaluation of Neonatal Intensive Care of Very-Low-Birth-Weight Infants." New England Journal
of Medicine, Vol. 308, No. 22, June 2,1983, pp 1330-1337. [HUI1; Clinical; Evaluative]
7
HUI Reference List
Brady, Bruce, Laura McAuley, and Vijay K. Shukla, Economic Evaluation of Zanamiriv for the
Treatment of Influenza, Ottawa: Canadian Coordinating Office for Health Technology
Assessment Technology Report No. 13, January, 2001. [HUI3; Clinical]
Brazier, J. E., C. Green, and J. A. Kanis, A Systematic Review of Health State Utility Values for
Osteoporosis-Related Conditions. Osteoporosis International, Vol. 13, No. 10, October 2002, pp
768-776. [HUI2; HUI3; Review Paper]
Brazier, John, Jennifer Roberts, Aki Tsuchiya, and Jan Busschbach, A Comparison of the EQ-5D
and SF-6D Across Seven Patient Groups. Health Economics, Vol. 13, No. 9, September, 2004, pp
873-884. [HUI3; Construct Validity; Responsiveness]
Brehaut, Jamie C., Dafna E. Kohen, Parminder Raina, Stephen D. Walter, Dianne J. Russell,
Marilyn Swinton, Maureen ODonnell, and Peter Rosenbaum, The Health of Primary Caregivers
of Children with Cerebral Palsy: How Does It Compare with that of Other Canadian Caregivers?
Pediatrics, Vol. 114, No. 2, August, 2004, pp 182-191. [HUI3; Construct Validity]
Bremner, Karen E., George Tomlinson, and Murray D. Krahn, Marker States and a Health Prompt
Provide Modest Improvements in the Reliability and Validity of the Standard Gamble and Rating
Scale in Prostate Cancer Patients. Quality of Life Research, Vol. 16, No. 10, December, 2007, pp
1665-1675. [HUI3; Construct Validity]
Brown, Jeffrey S., Peter J. Neumann, George Papadopoulos, Gary Ruoff, Merle Diamond, and
Joseph Menzin, Migraine Frequency and Health Utilities: Findings for a Multisite Survey. Value
in Health, Vol. 11, No. 2, March-April, 2008, pp 315-321; published on-line July 21, 2007 (doi:
10.1111/j.1524-4733.2007.00246.x). [HUI3; Construct Validity]
Brunner, H. I., D. Maker, B. Grundland, N. L. Young, V. Blanchette, A-M Stain, and B. M.
Feldman, Preference-Based Measurement of Health-Related of Life (HRQL) in Children with
Chronic Musculoskeletal Disorders (MSKDs). Medical Decision Making, Vol. 23, No. 4,
July-August, 2003, pp 314-322. [HUI3; Clinical; Construct Validity]
Bullinger, Monika, Denise Globe, Joan Wasserman, Nancy L. Young, and Sylvia von Mackensen,
Challenges of Patient-Reported Outcome Assessments in Hemophilia Care - A State of the Art
Review. Value in Health, Vol. 15, No. 5, July-August, 2009, pp 802-820; published on-line
March 11, 2009. [HUI2; HUI3; Review Article]
Buysse, Corinne M. P., Hein Raat, Jan A. Hazelzet, Jessie M. Hulst, Karlien Cransberg, Wim C. J.
Hop, Linday c. A. C. Vermunt, Elisabeth M. W. J. Utens, Marianne Maliepaard, and Koen F. M.
Joosten, Long-term Health Status in Childhood Survivors of Meningoccal Septic Shock.
Archives in Pediatric and Adolescent Medicine, Vol. 162, No. 11, November, 2008, pp 1036-1041.
[HUI2; HUI3; Construct Validity]
Cardarelli, Chiara, Cinzia Cereda, Lucia Masiero, Elisabetta Viscardi, Roberto Faggin, AnnaMaria
Laverda, Gianni Bisogno, and Giorgio Perilongo, Evaluation of Health Status and Health-Related
8
HUI Reference List
Quality of Life in A Cohort of Italian Children Following Treatment for a Primary Brain Tumor.
Pediatric Blood and Cancer, Vol. 46, No. 5, May, 2006, pp 637-644. [HUI2; Construct Validity]
Carreno, Agata, Ignacio Fernandez, Xavier Badia, Cristina Varela, and Montserrat Roset, Using
HAQ-DI to estimate HUI3 and EQ05D utility values for patients with rheumatoid arthritis in
Spain. Value in Health, Vol. 14, No. 1, January-February, 2011, pp 192-200. [HUI3; Construct
Validity]
Chen, Joseph M., Hossam Amoodi, and Nicole Mittmann, Cost-Utility Analysis of Bilateral
Cochlear Implantation in Adults: A Health Economic Assessment From the Perspective of a
Publicly Funded Program. Laryngoscope, Vol. 124, No. 6, June, 2014, pp 1452-1458. [HUI3;
Construct Validity]
Cheng, Andr K., and John K. Niparko, Cost-Utility Analysis of the Cochlear Implant in Adults.
Archives of Otolaryngology - - Head and Neck Surgery, Vol. 125, No. 11, November, 1999, pp
1214-1218. [HUI3; Clinical; Evaluative]
Cheng, Andr K., Haya R. Rubin, Neil R. Powe, Nancy K. Mellon, Howard W. Francis, and John
K. Niparko, Cost-Utility Analysis of the Cochlear Implant in Children. Journal of the American
Medical Association, Vol. 284, No. 7, August 16, 2000, pp 850-856. [HUI3; Clinical; Evaluative]
Ching, Shim, Achilles Thoma, Randi E. McCabe, and Martin M. Antony, Measuring Outcomes in
Aesthetic Surgery: A Comprehensive Review of the Literature. Plastic and Reconstructive
Surgery, Vol. 111, No. 1, January, 2003, pp 469-480. [HUI; Clinical]
Chong, Christopher A. K. Y., Anar Gulamhussein, E. Jenny Heathcote, Les Lilly, Morris Sherman,
Gary Naglie, and Murray Krahn, Health-State Utilities and Quality of Life in Hepatitis C
Patients. American Journal of Gastroenterlogy, Vol. 98, No. 3, March, 2003, pp 630-638. [HUI3;
Construct Validity]
Clayson, Darren J., Diane J. Wild, Paul Quterman, Isabelle Duprat-Lomon, Maria Kubin, and
Stephen Joel Coons, A Comparative Review of Health-Related Quality-of-Life Measures for Use
in HIV/AIDS Clinical Trials. Pharmacoeconomics, Vol. 24, No. 8, 2006, pp 751-765. [HUI2;
HUI3; Review Article]
Comerota, Anthony J. Richard C. Throm, Susan D. Mathias, Signe Hauhgton, and Mark
Mewissen, Catheter-Directed Thrombolysis for Iliofemoral Deep Vein Thrombosis Improves
Health-Related Quality of Life. Journal of Vascular Surgery, Vol 32, No. 1, July, 2000, pp
Conner-Spady, Barbara, and Maria E. Suarez-Almazor, Variation in the Estimation of
Quality-Adjusted Life-Years by Different Preference-based Instruments. Medical Care, Vol. 41,
No. 7, July, 2003, pp 791-801. [HUI3; Construct Validity; Responsiveness]
Cranney, Ann, Douglas Coyle, Ba Pham, Jacqueline Tetroe, George Wells, Elaine Jolly, and Peter
Tugwell, The Psychometric Properties of Patient Preferences in Osteoporosis. Journal of
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Rheumatology, Vol. 28, No. 1, January, 2001, pp 132-137. [HUI2; Construct Validity]
Cranney, Ann B., Douglas Coyle, Wilma M. Hopman, Valerie Hum, Barbara Power, and Peter S.
Tugwell, Prospective Evaluation of Preferences and Quality of Life in Women with Hip
Fractures. Journal of Rheumatology, Vol. 32, No. 12, December, 2005, pp 2393-2399. [HUI2;
Dakin, Helen, Stavros Petrou, Mark Haggard, Sarah Benge, and Ian Williamson, Mapping
Analyses to Estimate Health Utilities Based on Responses to the OM8-30 Otis Media
Questionnaire. Quality of Life Research, Vol. 19, No. 1, February, 2010, pp 65-80. [HUI2; HUI3;
mapping]
Damen, Godelieve W. J. A., Andy J. Beynon, Paul F. M. Krabbe, Jef J. S. Mulder, and Emmanuel
A. M. Mylanus, Cochlear Implantation and Quality of Life in Postlingually Deaf Adults:
Long-term Follow-up. Otolaryngology-Head and Neck Surgery, Vol. 136, No. 4, April, 2007, pp
Davis, A, P. Smith, M. Ferguson, D. Stephens, and I. Gianopoulos, Acceptability, benefits and
costs of early screening for hearing disability: a study of potential screening tests and models.
Health Technology Assessment, Vol. 11, No. 42, 2007. [HUI3; Construct Validity;
Responsiveness]
Davis, Erin M., Lary D. Lynd, Maja Grubisic, Jacek A. Kopec, Eric C. Sayre, Jolanda Cibere, John
Esdaile, and Carlo A. Marra, Responsiveness of Health State Utility Values in Knee
Osteoarthritis. Journal of Rheumatology, Vol. 40, No. 12, December 1, 2013, pp 2075-2082.
Davison, Sara N., Gian S. Jhangri, and David H. Feeny, Comparing the Health Utilities Index
Mark 3 (HUI3) with the Short-Form 36 Preference-Based SF-6D in Chronic Kidney Disease.
Value in Health, Vol. 12, No. 2, March/April, 2009, pp 340-345; published on line July 24, 2008.
[HUI3; Construct Validity]
Davison, Sara N., Gian S. Jhangri, and David H. Feeny, Evidence on the Construct Validity of the
Health Utilities Index Mark 2 and Mark 3 in Patients with Chronic Kidney Disease. Quality of
Life Research, Vol. 17, No. 6, August, 2008, pp 933 - 942; published on-line June 12, 2008.
[HUI2; HUI3; Construct Validity]
De Civita, Mirella, Dean Reiger, Abul H. Alamgir, Aslam H. Anis, Mark J. FitzGerald, and Carlo
A. Marra, Evaluating Health-Related Quality-of-Life Studies in Paediatric Populations: Some
Conceptual, Methodological Developmental Considerations and Recent Applications.
Pharmacoeconomics, Vol. 23, No. 7, 2005, pp 659-685. [HUI2; HUI3; Review Article]
De Lissovoy, Gregory, Louis S. Matza, Hannah Green, Meghan Werner, and Terence Edgar,
Cost-effectiveness of Intrathecal Baclofen Therapy for the Treatment of Severe Spasticity
Associated with Cerebral Palsy. Journal of Child Neurology, Vol. 22, No. 1, January, 2007, pp
49-59. [HUI2; Cost-Utility Analysis]
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Deglinnocenti, Alessio, Gordon H. Guyatt, Ingela Wiklund, Diane Heels-Ansdell, David

Armstrong, Carlo A. Fallone, Lisa Tanser, Sander Veldhuyzen van Zanten, Samer El-Dika, Naoki
Chiba, Alan N. Barkun, Peggy Austin, and Holger J. Schunemann, The Influence of Demographic
Factors and Health-Related Quality of Life on Treatment Satisfaction in Patients with
Gastroesophageal Reflux Disease Treated with Esomeprazole. Health and Quality of Life
Outcomes (electronic journal) (Vol. 3: 4, January, 13, 2005), http://www.hqlo.com/content/3/1/4
de Keizer, N. F., G. J. Bonsel, and R. J. B. M. Gemke, Health Status Prediction in Critically Ill
Children: A Pilot Study Introducing Standardized Health Ratios. Quality of Life Research, Vol. 6,
No. 2, March, 1997, 192-199. [HUI2; Clinical; Predictive Validity]
de Sonneville-Koedoot, Caroline, Elly A Stolk, Hein Raat, Clazien Bouwmans-Frijters, and
Marie-Christine Franken, Health-related quality of life of preschool children who stutter. Journal
of Fluency Disorders, Vol. 42, December, 2014, pp 1-12. [HUI3; Construct Validity]
Detmar, S.B., E. J. Hosli, A.M.J. Chorus, T. van Beekum, T. Vogels, P.E.C. Mourad-Baars, A.C.
Engelberts, C.G.M. Groothuis-Oudshoorn, and G.H.W. Verrips, The Development and Validation
of a Handicap Questionnaire for Children with Chronic Illness. Clinical Rehabilitation, Vol. 19,
No. 1, January, 2005, pp 73-80. [HUI3; Construct Validity]
Duckworth, JoAnn, Trishana Nayiager, Eleanor Pullenayegum, Anthony Whitton, Robert
Hollenberg, John Horsman, William Furlong, Rachel Spitzer, and Ronald D. Barr, Health-Related
Quality of Life in Long-Term Survivors of Brain Tumors in Childhood and Adolescence: A Serial
Study Spanning a Decade. Journal of Hematology/Oncology, May 15, 2015. [HUI2; HUI3;
Ebrahim, Shanil, and Christopher Parshuram, Comparison of utility scores from Visual Analog
Scale and Health Utilities Index 3 in children following pediatric intensive care unit admission.
Journal of Child Health Care, published online August 12, 2013. [HUI3]
Edelman, David, Rhys Williams, Margaret Rothman, and Gregory P. Samsa, A Comparison of
Three Health Status Measures in Primary Care Outpatients. Journal of General Internal Medicine,
Vol. 14, No. 12, December, 1999, pp 759-762. [HUI2; Clinical; Construct Validity]
Ekwunife, Obinna Ikechurwu, Cletus Nze Aguwa, and Nneka Uchenna Igboeli, Health Utilities
Index Mark 3 (HUI3) demonstrated construct validity in a Nigerian population with hypertension.
Quality of Life Research, Vol. 22, No. 2, March, 2013, pp 455-458; published online March 11,
2012. [HUI3; Construct Validity]
El-Dika, Samer, Gordon H. Guyatt, David Armstrong, Alessio Deglinnocenti, Ingela Wiklund,
Carlo A. Fallone, Lisa Tanser, Sander Veldhuyzen van Zanten, Diane Heels-Ansdell, Peter
Wahlqvist, and Holger J. Schunemann, The Impact of Illness in Patients with Moderate to Severe
Gastro-esophageal Reflux Disease. BMC Gastroenterology, Vol. 5, No. 23, July 10, 2005
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Espallargues, Mireia, Carolyn J. Czoski-Murray, Nicholas J. Bansback, Jill Carlton, Grace M.

Lewis, Lindsey A. Hughes, Christopher S. Brand, and John E. Brazier, The Impact of
Age-Related Macular Degeneration on Health Status Utility Values. Investigative Ophthalmology
and Visual Science, Vol. 46, No. 11, November, 2005, pp 4016-4023. [HUI3; Construct Validity]
Ettema, Teake P., Rose-Marie Droes, Jacomine de Lange, Gideon J. Mellenbergh, and Miel W.
Ribbe, A Review of Quality of Life Instruments Used in Dementia. Quality of Life Research,
Vol. 14, No. 3, April, 2005, pp 675-686. [HUI2; HUI3; Review Article]
Falicov, Alexis, Charles G. Fisher, Joe Sparkes, Michael C. Boyd, Peter C. Wing, and Marcel F.
Dvorak, Impact of Surgical Interventions on Quality of Life in Patients with Spinal Metastases.
Spine, Vol. 31, No. 24, November 15, 2006, pp 2949-2856. [HUI3; Construct Validity;
Responsiveness; HUI3 pain]
Fayed, Nora, Vero Schiariti, Cristina Bostan, Alarcos Cieza, and Anne Klassen, Health Status and
QOL Instruments Used in Childhood Cancer Research: Deciphering Conceptual Content using
World Health Organization Definitions. Quality of Life Research, Vol. 20, No, 8, October, pp
1247-1259; online publication February 4, 2011. [HUI3; Review Article]
Fayed, Nora, Olaf Kraus de Camargo, Elizabeth Kerr, Peter Rosenbaum, Ankita Dubey, Cristina
Bostan, Markus Faulhaber, Parminder Raina, and Alarcos Cieza, Generic patient-reported
outcomes in child health research: a review of conceptual content using World Health Organization
definitions. Developmental Medicine & Child Neurology, Vol. 54, No. 12, December, 2012, pp
1085-1095. [HUI2; HUI3; Review Article]
Feeny, David H., Alison Leiper, Ronald D. Barr, William Furlong, George W. Torrance, Peter
Rosenbaum, and Sheila Weitzman, "The Comprehensive Assessment of Health Status in Survivors
of Childhood Cancer: Application to High-Risk Acute Lymphoblastic Leukaemia." British
Journal of Cancer, Vol. 67, No. 5, May, 1993, pp 1047-1052. [HUI2; Clinical; Construct Validity]
Feeny, David, William Furlong, Ronald D. Barr, George W. Torrance, Peter Rosenbaum, and
Sheila Weitzman, "A Comprehensive Multiattribute System for Classifying the Health Status of
Survivors of Childhood Cancer." Journal of Clinical Oncology, Vol. 10, No. 6, June, 1992, pp
923-928. [HUI2; Clinical; Construct Validity]
Feeny, David, Chris Blanchard, Jeffrey L. Mahon, Robert Bourne, Cecil Rorabeck, Larry Stitt, and
Susan Webster-Bogaert, Comparing Community-Preference Based and Direct Standard Gamble
Utility Scores: Evidence from Elective Total Hip Arthroplasty. International Journal of
Technology Assessment in Health Care, Vol. 19, No. 2, Spring, 2003, pp 362-372. [HUI2; HUI3;
Scoring]
Feeny, David, William Furlong, Saroj Saigal, and Jian Sun,Comparing Directly Measured
Standard Gamble Scores to HUI2 and HUI3 Utility Scores: Group and Individual-Level
Comparisons. Social Science & Medicine, Vol. 58, No. 4, February, 2004, pp 799-809. [HUI2;
HUI3; Scoring]
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Feeny, David, Lieling Wu, and Ken Eng, Comparing Short Form 6D, Standard Gamble, and
Health Utilities Index Mark 2 and Mark 3 Utility Scores: Results from Total Hip Arthroplasty
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Scoring]
Feeny, David, Karen Farris, Isabelle Ct, Jeffrey A. Johnson, Ross T. Tsuyuki, and Ken Eng, A
Cohort Study Found the RAND-12 and Health Utilities Mark 3 Demonstrated Construct Valiidity
in High-Risk Primary-Care Patients. Journal of Clinical Epidemiology, Vol. 58, No. 2, 2005, pp
Feeny, David, The Roles for Preference-Based Measures in Support of Cancer Research and
Policy, Chapter 4 in Joseph Lipscomb, Carolyn Cook Gotay, and Claire Snyder, eds., Outcomes
Assessment in Cancer: Measures, Methods, and Applications, New York, Cambridge University
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Feeny, David, Karen Spritzer, Ron D Hays, Honghu Liu, Theodore Ganiats, Robert M. Kaplan,
Mari Palta, and Dennis G. Fryback, Agreement About Identifying Patients Who Change Over
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Felder-Puig, Rosemarie, E. Frey , G. Sonnleithner, David Feeny, H. Gadner, Ronald D. Barr,
William Furlong, and Reinhard Topf, German Cross-Cultural Adapation of the Health Utilities
Index and Its Application to a Sample of Childhood Cancer Survivors. European Journal of
Pediatrics, Vol. 159, No. 4, April, 2000, pp 283-288. [HUI2; Clinical; Cross-Cultural Validation;
Construct Validity; Reliability/Agreement; Translation]
Felder-Puig, R., A. Di Gallo, M. Waldenmair, P. Norden, A. Winter, H. Gadner, and R. Topf,
Health-related quality of life of pediatric patients receiving allogeneic stem cell or bone marrow
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Reliability]
Fiest, Kirsten M., Tolulope T. Sajobi, and Samuel Wiebe, Epilepsy surgery and meaningful
improvements in quality of life: Results from a randomized controlled trial. Epilepsia, published
online April 15, 2014. [HUI3; Construct Validity; Responsiveness]
Fisk, J. D., M. G. Brown, I. S. Sketris, L. M. Metz, T. J. Murray, and K. J. Stadnyk, A
Comparison of Health Utility Measures for the Evaluation of Multiple Sclerosis Treatments.
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[HUI3; Construct Validity; Test-Retest Reliability]
Fluchel, Mark, John R. Horsman, William Furlong, Luis Castillo, Yasmine Alfonz, and Ronald D.
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Foley, Robert N., Patrick S. Parfrey, Janet Morgan, Paul E. Barre, Patricia Campbell, Pierre
Cartier, Douglas Coyle, Adrian Fine, Paul Handa, Iris Kingman, Cathy Y. Lau, Adera Levin, David
Mendelssohn, Norman Muirhead, Brendan Murphy, Richard K. Plante, Gerald Posen, and George
A. Wells, Effect of Hemoglobin Levels in Hemodialysis Patients with Asymptomatic
Cardiomyopathy. Kidney International, Vol. 58, No. 3, September, 2000, pp 1325-1335. [HUI2;
Fontana, Robert J., Cheryl A. Moyer, Seema Sonnad, Anna S. F. Lok, Naomi Sneed-Pee, John
Walsh, Steven Klein, and Steven Webster, Comorbidities and Quality of Life in Patients with
Interferon-Refractory Chronic Hepatitis C. American Journal of Gastroenterology, Vol. 96, No.
1, January, 2001, pp 170-178. [HUI3; Clinical; Construct Validity]
Foreman, Nicholas K., Paul M. Faestel, Joanne Pearson, Jennifer Disabato, Marty Poole, Greta
Wilkening, Edward B. Arenson, Brian Greffe, and Robert Thorne, Health Status in 52 Long-Term
Survivors of Pediatric Brain Tumors. Journal of Neuro-Oncology, Vol. 41, No. 1, January, 1999,
Forman-Hoffman, Valerie L., Caroline P. Carney, Tomoko R. Sampson, Paul M. Peloso, Robert F.
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Impact on Quality of Life among Veterans Serving during the First Gulf War. Quality of Life
Research, Vol. 14, No. 10, December, 2005, pp 2303-2314. [HUI3; Construct Validity]
Francis, Howard W., Nelson Chee, Jennifer Yeagle, Andre Cheng, and John K. Niparko, Impact
of Cochlear Implants on the Functional Health Status of Older Adults. The Laryngoscope, Vol.
112, No. 8, Part 1, August, 2002, pp 1482-1488. [HUI3; Construct Validity; Responsiveness]
Franic, Duska M., Larry Aull, Dennis Grauer, Olatoye Oyelowo, Adherence, asthma control,
generic and disease-specific quality of life instruments in asthma. Expert Review of
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Construct Validity]
Frey, E., R. Felder-Puig, G. Sonnleithner, R. Topf, and H. Gadner, The Assessment of
Health-Related Quality of Life in Survivors of Childhood Cancer: Our Experience with the Health
Utilities Index Mark 2 + 3 (HUI2/3) in the After-Care Clinic, International Journal of Pediatric
Hematology/Oncology, Vol. 6, No. 3, 1999, pp 214-216 (Abstract). [Clinical; Cross-Cultural
Validation; Reliability/Agreement; Translation]
Fu, Ligia, Danielle Talsma, Fulgencio Baez, Miguel Bonilla, Belgica Moreno, Maria Ah-Chu,
Armando Pena, William Furlong, and Ronald D. Barr, Measurement of Health-Related Quality of
Life in Survivors of Cancer in Childhood in Central America: Feasibility, Reliability, and
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[HUI2; HUI3; Construct Validity; Inter-rater Reliability]
Furlong, William, Ronald D. Barr, David Feeny, and Suzanne Yandow, Patient-Focused
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Article]
Furlong, William, Charlene Rae, David Feeny, Richard Gelber, Caroline Laverdiere, Bruno
Michon, Lewis Silverman, Stephen Sallan, and Ronald D. Barr, Health-Related Quality of Life
Among Children with Acute Lymphoblastic Leukemia. Pediatric Blood & Cancer, Vol. 59, No.
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Validity]
Gabriel, Sherine E., Terry S. Kneeland, L. Joseph Melton, III, Megan M. Moncur, Bruce Ettinger,
and Anna N. A. Tosteson, Health-Related Quality of Life in Economic Evaluations for
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Gemke, Reinoud J. B. J., and Gouke J. Bonsel, "Reliability and Validity of a Comprehensive
Health Status Measure in a Heterogeneous Population of Children Admitted to Intensive Care."
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Construct Validity; Reliability]
Gemke, Reinoud J. B. J., Gouke J. Bonsel, and A. Johannes van Vught, "Long Term Survival and
State of Health after Paediatric Intensive Care." Archives of Disease in Childhood, Vol. 73,
September, 1995, pp 196-201. [HUI2; Clinical; Construct Validity]
Glaser AW, N. F. Nik Abdul Rashid, U. Chin Lyn, and D. A. Walker, "School behaviour and
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76, No. 5, 1997, pp 643-650. [HUI2; Clinical; Construct Validity; Cross-Cultural Validation]
Glaser AW, K. Davies, D. Walker, D. Brazier, "Influence of proxy respondents and mode of
administration on health status assessment following central nervous system tumours in
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Construct Validity; Cross-Cultural Validation; Reliability]
Glaser, Adam W., William Furlong, David A. Walker, Katherine Fielding, K. Davies, David H.
Feeny, and Ronald D. Barr, "Applicability of the Health Utilities Index to a Population of
Childhood Cancer Survivors of Central Nervous System Tumours in the United Kingdom."
European Journal of Cancer, Vol. 35, No. 2, 1999, pp. 256-261. [HUI2; Clinical; Construct
Validity; Cross-Cultural Validation; Reliability]
Glaser, Adam, Colin R. Kennedy, Jonathan Punt, and David Walker, Standardized Quantitative
Assessment of Brain Tumor Survivors Treated within Clinical Trials in Childhood. International
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from the EuroQol EQ-5D and the Health Utilities Index. Medical Decision Making, Vol. 19, No.
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Globe, D., N. L. Young, S. Von Mackensen, M. Bullinger, and J. Wasserman, Review Article:
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Goeree, Ron, Rob Hopkins, John K. Marshall, David Armstrong, Wendy J. Ungar, Charles
Goldsmith, Christopher Allen, and Mehran Anvari, Cost-Utility of Laparoscopic Nissen
Fundoplication versus Proton Pump Inhibitors for Chronic and Controlled Gastroesophageal
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Goldstein, Larry B., Patrick Lyden, Susan D. Mathias, Shoshana S. Colman, David J. Pasta,
Gregory Albers, Richard Atkinson, Gordon Kelley, Ken Ng, and Anders Rylander, Telephone
Assessment of Functioning and Well-Being Following Stroke: Is It Feasible? Journal of Stroke
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Inter-rater Reliability; Intra-rater Reliability; Construct Validity]
Gooch, Katherine L., David Feeny, Robert L. Wong, Hartmut Kupper, Aileen Pangan, Dennis
A. Revicki,, and Desiree van der Heidje, Is the Health Utilities Index 3 Valid for Patients with
Ankylosing Spondylitis. Value in Health, Vol. 14, No. 1, January, 2011, pp 160-165. [HUI3;
Construct Validity]
Gorodetskaya, Irina, Stefanos Zenois, Charles E. MuCulloch, Alan Bostrom, Chi-Yuan Hsu,
Andrew, B. Bindman, Alan S. Go, and Glenn M. Chertow, Health-Related Quality of Life and
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Gortner, Susan R., Adelheid A. Jaeger, Judith Harr, and Terry Miller, "Elders' Expected and
Realized Benefits from Cardiac Surgery." Cardiovascular Nursing, Vol. 30, No. 2, March/April
1994, pp 9-14. [HUI2; Clinical; Evaluative]
Grant, J., A. Cranston, John Horsman, William Furlong, N. Barr, S. Findlay, and Ronald Barr,
Health Status and Health-Related Quality of Life in Adolescent Survivors of Cancer in
Childhood. Journal of Adolescent Health, Vol. 38, No. 5, Mary, 2006, pp 504-510. [HUI2; HUI3;
Construct Validity]
Grant, Richard W., Enrico Cagliero, Henry C. Chueh, and James B. Meigs, Internet Use Among
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Gray, Ron, Stavros Petrou, Christine Hockley, and Frances Gardner, Self-Reported Health Status
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Griebsch, Ingolf, Joanna Coast, and Jackie Brown, Quality-Adjusted Life Years Lack Quality in
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Grima, Daniel T., George W. Torrance, G. Francis, G. Rice, A. J. Rosner, and L. LaFortune, Cost
and Health Related Quality of Life Consequences of Multiple Sclerosis. Multiple Sclerosis, Vol.
6, No. 2, April, 2000, pp 91-98. [HUI2; Clinical; Construct Validity]
Groessl, Eric J., Lin Liu, Marisa Sklar, Steven R. Tally, Robert M. Kaplan, and Theodore G.
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Grootendorst, Paul, Deborah Marshall, Dan Pericak, Nicholas Bellamy, David Feeny, and George
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Index Scores in Patients with Osteoarthritis of the Knee. Journal of Rheumatology, Vol. 34, No.
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Grosse, Scott D., Lisa A. Prosser, Keiko Asakawa, and David Feeny, QALY Weights for
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Grossman, R., J. Mukherjee, D. Vaughan, C. Eastwood, R. Cook, J. LaForge, and N. Lampron, A
One-Year Community-Based Health Economic Study of Ciprofloxacin versus Usual Antibiotic
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[HUI2; Clinical; Evaluative]
Grutters, Janneke P. C., Manuela A. Joore, Frans van der Horst, Hans Vershuure, Wouter A.
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Guo, Na, Carlo A. Marra, Fawziah Marra, Susanne Moadebi, R. Kevin Elwood, and J. Mark
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Guo, Na, Fawziah Marra, and Carlo A. Marra, Measuring Health-Related Quality of Life in
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Article]
Handa, Victoria L., Halina M. Zyczynski, Kathryn Burgio, Mary Pat Fitzgerald, Diane
Borello-France, Nancy K. Janz, Paul M Fine, William Whitehead, Morton B. Brown, and Anne M.
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Weber, for the Pelvic Floor Disorders Network, The Impact of Fecal and Urinary Incontinence on
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Harrison, Mark J., Linda M. Davies, Nick J. Bansback, Mary Ingram, Aslam H. Anis, and Deborah
P. M. Symmons, The Validity and Responsiveness of Generic Utility Measures in Rheumatoid
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HUI3; Test-Retest Reliability; Construct Validity; Responsiveness; Review Article]
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2004, pp 602-609. [Cardiovascular; Clinical; HUI3; Construct Validity; Responsiveness]
Hawthorne, Graeme, Measuring Incontinence in Australia. Canberra: Commonwealth of Australia,
March, 2006. [HUI3; Construct Validity; Review Article]
Hays, Ron D., Jo-Ann Eastwood, Jenny Kotlerman, Karen L. Spritzer, Susan L. Ettner, and Marie
Cowan, Health-Related Quality of Life and Patient Reports About Care Outcomes in a
Multidisciplinary Hospital Intervention. Annals of Behavioral Medicine, Vol. 31, No. 2, April,
2006, pp 173-178. [HUI3; Construct Validity; Responsiveness]
Hebert, Paul L., Jane E . Sisk, Jason J. Wang, Leah Tuzzio, Jodi M. Casablanca, Mark Chassin,
Carol Horowitz, and Mary Ann McLaughlin, Cost-Effectiveness of Nurse-Led Disease
Management for Heart Failure in an Ethnically Diverse Urban Community. Annals of Internal
Medicine, Vol. 149, No. 8, October, 2008, pp 540-548. [HUI3; Cost-Effectiveness Analysis;
Cost-Utility Analysis]
Heidenheim, A. Paul, Norman Muirhead, Louise Moist, and Robert M. Lindsay, Patient Quality
of Life on Quotidian Hemodialysis. American Journal of Kidney Disease, Vol. 42, No. 1
(Supplement), July, 2003, pp S36-S41. [HUI3; Construct Validity, Responsiveness]
Heintz, Emelie, Ann-Britt Wirehn, Beatrice Bourghardt Peebo, Ulf Rosenqvist, and Lars-Ake
Levin, QALY Weights for Diabetic RetinopathyA Comparison of Health State Valuations with
HUI-3, EQ-5D, EQ-VAS, and TTO. Value in Health, Vol. 15, No. 3, May, 2012, pp 475-484.
Hickey, Anne, Maja Barker, Hannah McGee, and Ciaran OBoyle, Measuring Health-Related
Quality of Life in Older Patient Populations.
A Review of Current Approaches.
Pharmacoeconomics, Vol. 23, No. 10, 2005, pp 971-993. [HUI2; HUI3; Review Article]
Hille, E. T. M., A. L. den Ouden, M. C. Stuifbergen, G. H. W. Verrips, A. G. C. Vogels, R. Brand,
J. Bennebroek Gravenhorst, and S. P. Verloove-Vanhorick, Is Attrition Bias a Problem in
Neonatal Follow-Up? Early Human Development, Vol. 81, No. 11, November, 2005, pp 901-908.
Hinds, Pamela S., J. S. Gattuso, A. Fletcher, E. Baker, B. Coleman, T. Jackson, A. Jacobs-Levine,
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HUI Reference List
D. June, S. N. Rai, S.Lensing, and C.-H. Pui, Quality of Life as Conveyed by Pediatric Patients
with Cancer. Quality of Life Research, Vol. 13, No. 4, May, 2004, pp 761-772. [HUI2; HUI3;
Content Validity]
Hinds, Pamela S, Elizabeth A. Burghen, Yinmei Zhou, Nancy West, Lisa Bashore, and Ching-Hon
Pui, The Health Utilities Index 3 Invalidated When Completed by Nurses for Pediatric Oncology
Patients. Cancer Nursing, Vol. 30, No. 3, May-June 2007, pp 169-177. [HUI3; Inter-Rater
Reliability]
Horsman, John, William Furlong, David Feeny, and George Torrance, The Health Utilities Index
(HUI): Concepts, Measurement Properties and Applications. Health and Quality of Life
Outcomes (electronic journal) (Vol. 1: 54, October 16, 2003), http://www.hqlo.com/content/1/1/54
[HUI2; HUI3; Review Article]
Hoven, Emma, Brigitta Lannering, Goran Gustafsson, and Krister K. Boman, The Met and Unmet
Health Care Needs of Adult Survivors of Childhood Central Nervous System Tumors: A
Double-Informant, Population-based Study. Cancer, Vol. 117, No. 18, September 15, 2011, pp
4294-4303; published online March 8, 2011. [HUI3; Construct Validity]
Hoven, Emma, Brigitta Lannering, Goran Gustafsson, and Krister K. Boman, Persistent impact of
illness on families of adult survivors of childhood central nervous system tumors: a
population-based cohort study. Psycho-Oncology, Vol. 22, No.1, January, 2013, pp 160-167.
Hung, Shih-Ying, A. Simon Pickard, Whitney P. Witt, and Bruce L. Lambert, Pain and
Depression in Caregivers Affected Their Perception of Pain in Stroke Patients. Journal of Clinical
Epidemiology, Vol. 60, No. 9, September, 2007, pp 963-970. [HUI3; Construct Validity;
Inter-Rater Reliability]
Ikeda, Erika, Erica Hinckson, and Chris Krageloh, Assessment of quality of life in children and
youth with autism spectrum disorder: a critical review. Quality of Life Research, Vol. 23, No. 4,
May, 2014, pp 1069-1085. [HUI3; Review Article]
Janse, A. J., R. J. B. J. Gemke, C. S. P. M, Uiterwaal, I. Van der Tweel, J. L. L. Kimpen, and G.
Sinnema, Quality of Life: Patients and Doctors Dont Always Agree: A Meta-Analysis. Journal
of Clinical Epidemiology, Vol. 57, No. 7, July, 2004, pp 653-661. [HUI2; HUI3; Inter-rater
Reliability]
Janse, A. J., C. S. P. M. Uiterwall, R. J. B. J. Gemke, J. L. L. Kimpen, and G. Sinnema, A
Difference in Perception of Quality of Life in Chronically Ill Children Was Found Between Parents
and Pediatricians. Journal of Clinical Epidemiology, Vol. 58, No. 5, May, 2005, pp 495-502.
[HUI3; Construct Validity; Reliability]
Janseens, Astrid, Jo Thompson Coon, Morwenna Rogers, Karen Allen, Colin Green, Crispin
Jenkinson, Alan Tennant, Stuart Logan, and Christopher Morris, A Systematic Review of Generic
Multidimensional Patient-Reported Outcome Measures for Children, Part I: Descriptive
19
HUI Reference List
Characteristics. Value in Health, Vol. 18, No. 2, March, 2015, pp 315-333. [HUI2; HUI3; Review
Article]
Janseens, Astrid, Morwenna Rogers, Jo Thompson Coon, Karen Allen, Colin Green, Crispin
Jenkinson, Alan Tennant, Stuart Logan, and Christopher Morris, A Systematic Review of Generic
Multidimensional Patient-Reported Outcome Measures for Children, Part II: Evaluation of
Psychometric Performance of English-Language Versions in a General Population. Value in
Health, Vol. 18, No. 2, March, 2015, pp 334-345. [HUI2; HUI3; Review Article]
Janssens, Loes, Jan Willem Gorter, Marjolijn Ketelaar, William L. M. Kramer, and Herman R.
Holtslag, Health-Related Quality of Life Measures for Long-Term Follow-up in Children after
Major Trauma. Quality of Life Research, Vol. 17, No. 5, June, 2008, pp 701-713. [HUI2; Review
Paper]
Jayashree, M., S. C. Singhi, and P. Malhi, Follow Up of Survival and Quality of Life in Children
After Intensive Care. Indian Pediatrics, Vol. 40, No. 4, April 17, 2003, pp 303-309. [HUI2;
Construct Validity]
Johansen, Kisten L., Mark W. Smith, Mark L. Unruh, Andrew M. Siroka, Theresa Z. OConnor,
and Paul M. Palevsky, Predictors of Health Utility among 60-Day Survivors of Acute Kidney
Injury in Veterans Affairs/National Institutes of Health Acute Renal Failure Trial Network Study.
Clinical Journal of the American Society of Nephrology, Vol. 5, No. 8, August, 2010, pp
1366-1372; published online May 27, 2010. [HUI3; Construct Validity]
John-Baptiste, Ava A., George Tomlinson, Priscilla C. Hsu, Mel Krajden, E. Jenny Heathcote,
Audrey Laporte, Eric M. Yoshida, Frank H. Anderson, and Murray D. Krahn, Sustained
Responders Have Better Quality of Life and Productivity Compared with Treatment Failures Long
After Antiviral Therapy for Hepatitis C. American Journal of Gastroenterology, Vol. 104, No. 10,
October, 2009, pp 2439-2448. [HUI2; HUI3; Construct Validity]
Jones, C. Allyson, and David H. Feeny, Agreement Between Patient and Proxy Responses on
Health-Related Quality of Life After Hip Fracture. Journal of the American Geriatrics Society,
Vol. 53, No. 7, July, 2005, pp 1227-1233. [HUI2; HUI3; Inter-Rater Agreement; Reliability;
Construct Validity]
Jones, C. Allyson, David Feeny, and Ken Eng, Test-Retest Reliability of Health Utilities Index
Scores: Evidence from Hip Fracture. International Journal of Technology Assessment in Health
Care, Vol. 21, No. 3, August, 2005, pp 393-398. [HUI2; HUI3; Test-Retest Reliability]
Jones, C. Allyson, Marguerite Wieler, Jennifer Carvajal, Logan Lawrence, and Robert Haennel,
Physical Activity in persons with Parkinson disease: A feasibility study. Health, Vol. 4, No. 11A,
November, 2012, pp 1145-1152; http://www.scirp.org/journal/health/ [HUI3]
Jones, C. Allyson, Sheri L. Pohar, Ken Eng, and David H. Feeny, Longitudinal construct validity
of the HUI2 and HUI3 in hip fracture: A comparison with Functional Independence Measure.
Quality of Life Research, Vol. 23, No. 3, April, 2014, pp 805-813; published online October 1,
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HUI Reference List
2013. [HUI2; HUI3; Construct Validity; Responsiveness]

Jones, Samanata, Khadija Rantell, Katherine Stevens, Brigitte Colwell, Jane R. Ractcliffe, Philip
Holland, Kathy Rowan, and Gareth J. Parry, Outcome at 6 Months After Admission for Pediatric
Intensive Care: A Report of a National Study of Pediatric Intensive Care Units in the United
Kingdom. Pediatrics, Vol. 118, No. 5, November, 2006, pp 2101-2108. [HUI2; UK Scoring;
Construct Validity]
Joyce, Vilja B., Paul G. Barnett, Ahmed M. Bayoumi, Susan C. Griffin, Tassos C. Kyriakides, Wei
Yu, Vandana Sundaram, Mark Holodniy, Sheldon T. Brown,, William Cameron, Mike Youle,
Mark Sculpher, Aslam H. Anis, and Douglas K. Owens, Health-Related Quality of Life in a
Randomized Trial of Antiretroviral Therapy for Advanced HIV Disease. Journal of Acquired
Immune Deficiency Syndrome, Vol. 50, No. 1, January 1, 2009, pp 27-36. [HUI3; Construct
Validity]
Joyce, Vilja B., Paul G. Barnett, Adam Chow, Ahmed M. Bayoumi, Susan C. Griffin, Huiying
Sun, Mark Holodniy, Sheldon T. Brown, Tassos C. Kyriakides, D. William Cameron, Mike Youle,
Mark Sculpher, Aslam H. Anis, and Douglas K. Owens, Effect of Treatment Interruption and
Intensification of Antiretroviral Therapy on Health-Related Quality of Life in Patients with
Advanced HIV: A Randomized Controlled Trial. Medical Decision Making, Vol. 32, No. 1,
January-February, 2012, pp 11-30; E-pub March 7, 2011. [HUI3; Construct Validity;
Responsiveness]
Juniper, Elizabeth F., Gordon H. Guyatt, David H. Feeny, Lauren E. Griffith, and Penelope J.
Ferrie, "Minimum Skills Required by Children to Complete Health-Related Quality of Life
Instruments for Asthma: Comparison of Measurement Properties." European Respiratory
Journal, Vol. 10, No. 10, October, 1997, pp 2285-2294. [HUI2; Clinical; Reliability;
Responsiveness]
Kamlet Mark S., Nancy Paul, Joel Greenhouse, David Kupfer, Ellen Frank, and Martcia Wade,
Cost-Utility Analysis of Maintenance Therapy for Recurrent Depression. Controlled Clinical
Trials, Vol. 16, No. 1, February, 1995, pp 17-40. [HUI1]
Kanabar, D. J., S. Attard-Montalto, V. Saha, J. E. Kingston, J. E. Malpas, and O. B. Eden, "Quality
of Life in Survivors of Childhood Cancer After Megatherapy with Autologous Bone Marrow
Rescue." Pediatric Hematology and Oncology, Vol. 12, 1995, pp 29-36. [HUI2; Construct
Validity]
Karlawish, Jason H., Art Zbrozek, Bruce Kinosian, Annemarie Gregory, Allison Ferguson, and
Henry A. Glick, Preference-based quality of life in patients with Alzheimers disease.
Alzheimers & Dementia, Vol. 4, No. 3, May, 2008, pp 193-202. [HUI2; Construct Validity;
Test-Retest Reliability]
Karlawish, Jason H., Art Zbrozek, Bruce Kinosian, Annemarie Gregory, Allison Ferguson,
Dominique V. Low, and Henry A. Glick, Caregivers assessments of preference-based quality of
life in Alzheimers disease. Alzheimers & Dementia, Vol. 4, No. 3, May, 2008, pp 203-211.
21
HUI Reference List
[HUI2; Construct Validity; Proxy Assessments; Test-Retest Reliability]

Kaplan, Robert M., Erik J. Groessl, Nishan Sengupta, William J. Sieber, and Theodore G. Ganiats,
Comparison of Measured Utility Scores and Imputed Scores from the SF-36 in Patients with
Rheumatoid Arthritis. Medical Care, Vol. 43, No. 1, January, 2005, pp 79-87. [HUI2; HUI3;
Kaplan, Robert, Steven Tally, Ron D. Hays, David Feeny, Theodore Ganiats, Mari Palta, and
Dennis G. Fryback, Five Preference-Based Indexes in Cataract and Heart-Failure Patients Were
Not Equally Responsive to Change. Journal of Clinical Epidemiology, Vol. 64, No. 5, May, 2011
pp. 497-506; published online August 4, 2010. [HUI2; HUI3; Construct Validity; Responsiveness]
Kapral, Moira K., Jiming Fang, Michael D. Hill, Frank Silver, Janice Richards, Cheryl Jaigobin,
and Angela M. Cheung, Sex Differences in Stroke Care and Outcomes: Results From the Registry
of the Canadian Stroke Network. Stroke, Vol. 36, No. 4, April, 2005, pp 809-814. [HUI3;
Descriptive]
Kavirajan, Harish, Ron D. Hays, Stefanie Vassar, and Barbara G. Vickrey, Responsiveness and
Construct Validity of the Health Utilities Index in Patients with Dementia. Medical Care, Vol 47,
No. 6, June, 2009, pp 651-661. [HUI2; HUI3; Construct Validity; Responsiveness]
Kennedy, Colin R., and Kathleen Leyland, Comparison of Screening Instruments for Disability
and Emotional/Behavioral Disorders with a Generic Measure of Health-Related Quality of Life in
Survivors of Childhood Brain Tumors. International Journal of Cancer, Supplement 12,
December, 1999, pp 106-111. [HUI2; Clinical; Construct Validity; Discriminative Validity]
Kennedy, Colin, Kim Bull, Mathilde Chevignard, David Culliford, Helmuth G. Drr, Franois
Doz, RolfDieter Kortmann, Birgitta Lannering, Maura Massimino, Aurora Navajas Gutirrez,
Stefan Rutkowski, Helen A. Spoudeas, and Gabriele Calaminus Quality of Survival and Growth
in Children and Young Adults in the PNET4 European Controlled Trial of Hyperfractionated
Versus Conventional Radiation Therapy for Standard-Risk Medulloblastoma. International
Journal of Radiation Oncology, Biology, Physics Vol. 88, No. 2, February 1, 2014, pp 292300.
Kennes, Janneke, Peter Rosenbaum, Steven E. Hanna, Stephen Walter, Dianne Russell, Parminder
Raina, Doreen Bartlett, and Barbara Galuppi, Health Status of School-Aged Children with
Cerebral Palsy: Information from a Population-Based Sample. Developmental Medicine & Child
Neurology, Vol. 44, No. 4, April, 2002, pp 240-247. [HUI3; Construct Validity]
Kiltie, Anne E., and H. Rao Gattamaneni, "Survival and Quality of Life of Paediatric Intracranial
Germ Cell Tumour Patients Treated at the Christie Hospital, 1972-1993." Medical and Pediatric
Oncology, Vol. 25, 1995, pp 450-456. [HUI2; Clinical; Construct Validity]
Kimel, Miriam, Dennis A. Revicki, Sumati A. Rao, Dennis Fryback, David Feeny, Nesha
Harman, Chris Thompson, and Mary A. Cifaldi, Norms-Based Assessment of Patient-Reported
Outcomes Associated with Adalimumab Montotherapy in Patients with Ankylosing Spondylitis.
Clinical and Experimental Rheumatology, Vol. 29, No. 4, July-August, 2011, pp 624-632;
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HUI Reference List
published on-line August 31, 2011. [HUI3; Construct Validity; Responsiveness]

Kithubutheen, Jafri, Nicole Mittmann, Hosam Amoodi, Wei Qian, and Joseph M. Chen, The
Effect of Different Utility Measures on the Cost-Effectiveness of Bilateral Cochlear Implants.
Laryngoscope, published online August 28, 2014.
Kitterick, Padraig T., Gerard M. ODonoghue, Mark Edmondson-Jones, Andrew Marshall, Ellen
Jeffs, Louise Craddock, Alison Riley, Kevin Green, Martin ODriscoll, Dan Jiang, Terry Nunn,
Shakeel Saeed, Wanda Aleksy, and Bernhard U. Seeber, Comparison of the benefits of cochlear
implantation versus contra-lateral routing of signal hearing aids in adults with single-sided
deafness: study protocol for a prospective within-subject longitudinal trial. BMC Ear, Nose &
Throat
Disorders,
Vol
14,
No.
7,
published
August
11,
2014;
http://www.biomedcentral.com/1472-6815/14/7 [HUI3; Study Design]
Klaassen, Robert J., John J. Doyle, Murray D. Krahn, Victor S. Blanchette, and Gary Naglie,
Initial Bone Marrow Aspiration in Childhood Idiopathic Thrombocytopenia: Decision Analysis.
Journal of Pediatric Hematology/Oncology, Vol 23, No. 8, November, 2001, pp 511-518. [HUI2;
Decision Analysis]
Klaassen, Robert J., Murray Krahn, Isabelle Gaboury, Joanna Hughes, Ronald Anderson, Paul
Grundy, Kaiser Ali, Lawrence Jardine, Oussama Abla, Mariana Silva, Dorothy Barnard, and Mario
Cappelli, Evaluating the Ability to Detect Change of Health-Related Quality of Life in Children
with Hodgkin Disease. Cancer, Vol. 116, No. 6, March 15, 2010, pp 1608-1614. [HUI2; HUI3;
Klaassen, Robert J., Ronald D. Barr, Joanna Hughes, Paul Rogers, Ronald Anderson, Paul Grundy,
Kaiser Ali, Rochelle Yanofsky, Oussama Abla, Mariana Silva, Anne-Sophie Carret, and Mario
Cappelli, Nurses Provide Valuable Proxy Assessment of the Health-Related Quality of Life of
Children with Hodgkin Disease. Cancer, Vol. 116, No. 6, March 15, 2010, pp 1602-1607. [HUI2;
HUI3; Inter-rater Reliability; Proxy Assessment]
Klassen, Anne F., Shoo K. Lee, Perminder Raina, Herbert W. P. Chan, Derek Matthew, and David
Brabyn, Health Status and Health-Related Quality of Life in a Population-Based Sample of
Neonatal Intensive Care Graduates. Pediatrics, Vol. 113, No. 3, March, 2004, pp 594-600.
[Comprehensive Health Status Classification System for Pre-School Children, CHSCS-PS;
Construct Validity]
Klassen, Anne F., Samantha J. Anthony, Aalia Khan, Lillian Sung, and Robert Klaassen,
Identifying determinants of quality of life of children with cancer and childhood cancer survivors:
a systematic review. Support Care Cancer, Vol. 19, No. 9, September, 2011, pp 1275-1287.
Kleiner-Fisman, Galit, Matthew B. Stern, and David N. Fisman, Health-Related Quality of Life in
Parkinson disease: Correlation between Health Utilities Index III and Unified Parkinsons Disease
Rating Scale (UPDRS) in U.S. Male Veterans. Health and Quality of Life Outcomes, Vol. 8, 91,
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[HUI3; Construct Validity;
23
HUI Reference List
Responsiveness]
Knapp, Caprice, Vanessa Madden, Dennis Revicki, David Feeny, Hua Wang, Charlotte Curtis,
Phyllis Sloyer, and Elizabeth Shenkman, Health Status and Health-Related Quality of Life In an
Integrated Pediatric Palliative Care Program. Journal of Palliative Medicine, Volume 15, No. 7,
July, 2012, pp 790-797; published online June 11, 2012. [HU2; HUI3; Construct Validity]
Koedoot, Caroline, Clazien Bouwmans, Marie-Christine Franken, and Elly Stolk, Quality of life
in adults who stutter. Journal of Communication Disorders, Vol. 44, No. 4, July-August, 2011, pp
Koomen, Irene, Hein Raat, Aag Jennekens-Schinkel, Diederick E. Grobbee, John J. Roord, and
Marceline van Furth, Academic and Behavioral Limitations and Health-Related Quality of Life in
School-Age Survivors of Bacterial Meningitis. Quality of Life Research, Vol. 14, No. 6, August,
2005, pp 1563-1572. [HUI2; HUI3; Construct Validity]
Krabbe, Paul F. M., Johannes B. Hinderink, and Paul van den Broek, The Effect of Cochlear
Implant Use in Postlingually Deaf Adults. International Journal of Technology Assessment in
Health Care, Vol. 16, Nol. 3, Summer, 2000, 864-873. [HUI2; Clinical Study; Construct Validity;
Responsiveness]
Krahn, Murray, Paul Ritvo, Jane Irvine, George Tomlinson, Karen E. Bremner, Andrea Bezjak,
John Trachtenberg, and Gary Naglie, Patient and Community Preferences for Outcomes in
Prostrate Cancer: Implications for Clinical Policy. Medical Care, Vol. 41, No. 1, January, 2003,
153-164. [HUI3; Clinical Study; Construct Validity]
Krahn, Murray, Karen E. Bremner, George Tomlinson, Paul Ritvo, Jane Irvine, and Gary Naglie,
Responsiveness of Disease-Specific and Generic Utility Instruments in Prostate Cancer Patients.
Quality of Life Research, Vol. 16, No. 3, April, 2007, pp 509-522. [HUI2; HUI3; Construct
Krahn, Murray D., Karen E. Bremner, Shabbir M. H. Alibhai, Andy Ni, George Tomlinson,
Audrey Laporte, and Gary Naglie, A reference set of health utilities for long-term survivors of
prostate cancer: population-based data from Ontario, Canada. Quality of Life Research, Vol. 22,
No. 10, December, 2013, pp 2951-2962; published online April 6, 2013. [HUI2; HUI3; Construct
Validity]
Kroeker, Andrew, William F. Clark, A. Paul Heidenheim, Louise Kuenzig, Rosemarry Leitch,
Michael Meyette, Norman Muirhead, Heather Ryan, Randy Welch, Sharon White, and Robert M.
Lindsay, An Operating Cost Comparison Between Conventional and Home Quotidian
Hemodialysis. American Journal of Kidney Disease, Vol. 42, No. 1, Supplement 1, July, 2003, pp
S49-S55. [HUI; Construct Validity]
Kulkarni, Abhaya V., Distribution-based and Anchor-based Approaches Provided Different
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HUI Reference List
Kulkarni, Abhaya V., D. Douglas Cochrane, P. Daniel McNeely, and Iffat Shams, Medical Social,
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Construct Validity]
Kulkarni, Abhaya V., Sonya Hui, Iffat Shams, and Ruth Donnelly, Quality of Life in Obstructive
Hydrocephalus: Endoscopic Third Ventriculostomy Compared to Cerebrospinal Fluid Shunt.
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Kulkarni, Abhaya V., Quality of Life in Childhood Hydrocephalus: A Review. Childs Nervous
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Kulkarni, Abhaya V., Iffat Shams, D. Douglas Cochrane, and P. Daniel McNeely, Quality of Life
after Endoscopic Third Ventriculostomy and Cerebrospinal Fluid Shunting: An Adjusted
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Kuspinar, Ayse, and Nancy E. Mayo, Do generic utility measures capture what is important to
quality of life of people with multiple sclerosis? Health and Quality of Life Outcomes, Vol. 11,
No. 1/71, 2013; http://www.hqlo.com/content/11/1/71 [HUI2; HUI3; Content Validity]
Lammers, Marc J. W., Wiko Grolman, Yvette E. Smulders, and Maroeska M. Rovers, The
Cost-Utility of Bilateral Cochlear Implantation: A Systematic Review. Laryngoscope, Vol. 121,
No. 12, December, 2011, pp 2604-2609. [HUI3; Review Article]
Langfitt, J. T., B. G. Vickrey, M. P. McDermott, S. Messing, A. T. Berg, S. S. Spencer, M. R.
Sperling, C. W. Bazil, and S. Shinnar, Validity and Responsiveness of Generic Preference-based
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pp 899-914. [HUI2; HUI3; Construct Validity; Responsiveness]
Lee, Hoo-Yeon, Eun-Cheol Park, Han Joong Kim, Jae-Yong Choi, and Hee-Nam Kim,
Cost-Utility Analysis of Cochlear Implants in Korea using Different Measures of Utility. Acta
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Lee, Joyce M., Kirsten Rhee, Michael J. OGrady, Anirban Basu, Aaron Winn, Priya John, David
O. Meltzer, Craig Kollman, Lori M. Laffel, Jean M. Lawrence, William V. Tamborlane, tim
Wysocki, Donguyuan Xing, and Elbert S. Huang, Health Utilities for Children and Adults with
Type 1 Diabetes. Medical Care, Vol. 49, No. 10, October, 2011, pp 924-931; published online
May 3, 2011. [HUI3; Construct Validity; Iner-rater Reliability; Test-Retest Reliability]
Lee, Todd A., William Hollingworth, and Sean D. Sullivan, Comparison of Directly Elicited
Preferences Derived from the SF-36 in Adults with Asthma. Medical Decision Making, Vol. 23,
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Le Gals, Catherine, Nathalie Costet, Jean-Claude Gentet, Chantal Kalifa, Didier Frappaz,
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Christine Edan, Eric Sariban, Dominique Plantaz, and Franois Doz, Cross-Cultural Adaptation
of a Health Status Classification System in Children with Cancer. First Results of the French
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Supplement 12, December, 1999, pp 112-118. [Clinical; Construct Validity; Cultural Adaptation;
Reliability]
Leidy, N.K., and C. Coughlin, Psychometric Performance of the Asthma Quality of Life
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Leidy, N.K., KS Chan, and C. Coughlin, Is the Asthma Quality of Life Questionnaire a Useful
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Liem, Yilan S., Johanna L. Bosch, M. G. Myriam Hunink, Preference-Based Quality of Life of
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Article]
Lima, Viviane Dias, and Jacek A. Kopec, Quantifying the effect of health status on health care
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Lloyd, A., B. Nafees, S. Gavriel, M. D. Rousculp, K. S. Boye, and A. Ahmad, Health Utility
Values Associated with Diabetic Retinopathy. Diabetic Medicine, Vol. 25, No. 5, May, 2008, pp
Lobo, Francis S., Cynthia R. Gross, and Barbara J. Matthees, Estimation and Comparison of
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Longstreth, W. T., Graham Nichol, Lois Van Ottingham, and Alfred P. Hallstrom, Two simple
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Lovrics, Peter J., Sylvie D. Cornacchi, Francesco Barnabi, Tim Whelan, and Charles H. Goldsmith,
The Feasibility and Responsiveness of the Health Utilities Index in Patients with Early-stage
Breast Cancer: A Prospective Longitudinal Study. Quality of Life Research, Vol. 17, No. 2,
March, 2008, pp 333-345. [HUI3; Construct Validity; Responsiveness]
Lubeck, Deborah P., Patient-Reported Outcomes and Their Role in the Assessment of
Rheumatoid Arthritis. Pharmacoeconomics, Vol. 22, Supplement 1, 2004, pp 27-38. [HUI3]
Lubetkin, Erica I., and Marthe R. Gold, Comprehensibility of Measures of Health-Related Quality
of Life in Minority and Low-Income Patients. Journal of the National Medical Association. Vol.
26
HUI Reference List
94, No. 5, May, 2002, pp 327-335. [HUI3; Construct Validity; Routine Use]
Lung, Tom W. C., Alison J Hayes, Andrew Hayen, Andrew Farmer, and Philip M. Clarke, A
meta-analysis of health state valuations for people with diabetes: explaining variation across
methods and implications for economic evaluation. Quality of Life Research, Vol. 10, No. 10,
December, 2011, pp 1669-1628; published online April 7, 2011. [HUI3; Review Article]
Luo, Nan, Ling-Huo Chew, Kok-Yong Fong, Dow-Rhoon Koh, See-Cheng Ng, Kam-Hon Yoon,
Sheila Vasoo, Shu-Chuen Li, and Julian Thumboo, A Comparison of the EuroQol-5D and the
Health Utilities Index Mark 3 in Patients with Rheumatic Disease. Journal of Rheumatology, Vol.
30, No. 10, October, 2003, pp 2268-2274. [HUI3; Construct Validity]
Luo, Nan, Boon-Kheng Seng, Julian Thumboo, David Feeny, and Shu-Chuen Li, A Study of the
Construct Validity of the Health Utilities Index Mark 3 (HUI3) in Patients with Schizophrenia,
Quality of Life Research, Vol 15, No. 5, June 2006, pp 889-898. [HUI3; Construct Validity]
Macran, Susan, Helen Weatherly, and Paul Kind, Measuring Population Health: A Comparison of
Three Generic Health Status Measures. Medical Care, Vol. 41, No. 2, February, 2003, pp
218-231. [modified non-standard version of HUI3; Construct Validity; Primary Care; Routine Use]
Maddigan, Sheri L., David H. Feeny, and Jeffrey A. Johnson, A Comparison of the Health
Utilities Indices Mark 2 and Mark 3 in Type 2 Diabetes. Medical Decision Making, Vol. 23, No.
6, November-December, 2003, pp 489-501. [HUI2; HUI3; Construct Validity]
Maddigan, Sheri L., Sumit R. Majumdar, Ellen L. Toth, David H. Feeny, and Jeffrey A. Johnson,
Health-Related Quality of Life Deficits Associated with Varying Degrees of Disease Severity in
Type 2 Diabetes. Health and Quality of Life Outcomes (electronic journal) (Vol 1: 78, December
15, 2003), http://www.hqlo.com/content/1/1/78 [HUI3; Construct Validity]
Maddigan, Sheri L., David H. Feeny, and Jeffrey A. Johnson, Construct Validity of the RAND-12
and Health Utilities Index Mark 2 and 3 in Type 2 Diabetes. Quality of Life Research, Vol. 13,
No. 2, March, 2004, pp 435-448. [HUI2; HUI3; Construct Validity]
Maddigan, Sheri L., Sumir R. Majumdar, Lisa M. Guirguis, Richard Z. Lewanczuk, T. K. Lee,
Ellen L. Toth, and Jeffrey A. Johnson, Improvements in Patient-Reported Outcomes Associated
with an Intervention to Enhance Quality of Care for Rural Patients with Type 2 Diabetes.
Diabetes Care, Vol. 27, No. 6, June, 2004, pp 1306-1312. [HUI3; Construct Validity;
Responsiveness]
Maddigan, Sheri L., David H. Feeny, and Jeffrey A. Johnson, Health Related Quality of Life
Deficits Associated with Diabetes and Comorbidities in a Canadian National Population Health
Survey. Quality of Life Research, Vol. 14, No. 5, June, 2005, pp 1311-1320. [HUI3; Construct
Validity]
Maddigan, Sheri L., Sumit R. Majumdar, and Jeffrey A. Johnson, Understanding the Complex
Associations Between Patient-Provider Relationships, Self-Care Behaviours, and Health-Related
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HUI Reference List
Quality of Life in Type-2 Diabetes: A Structural Equation Modeling Approach. Quality of Life
Research, Vol. 14, No. 6, August, 2005, pp 1489-1500. [HUI3; Construct Validity]
Maes, Iris H. L., Manuela A. Joore, Rilana F. F. Cima, Johannes W. Vlaeyen, and Lucien J. C.
Anteunis, Assessment of Health State in Patients with Tinnitus: A Comparison of the EQ-5D and
HUI Mark III. Ear & Hearing, Vol. 32, No. 4, July/August, 2011, pp 428-435. [HUI3; Construct
Mahle, William T., Joseph M. Forbess, Paul M. Kirshbom, Angel R. Cuadrado, Janet M. Simsic,
and Kirk R. Kanter, Cost-Utility Analysis of Salvage Cardiac Extracorporeal Membrane
Oxygenation in Children. Journal of Thoracic and Cardiovascular Surgery, Vol. 129, No. 5,
May, 2005, pp 1084-1090. [HUI2; Construct Validity]
Mahon, Jeffrey L., Robert B. Bourne, Cecil H. Rorabeck, David H. Feeny, Larry Stitt, and Susan
Webster-Bogaert, Health-Related Quality of Life and Mobility in Patients Awaiting Elective Total
Hip Arthroplasty: A Prospective Study. Canadian Medical Association Journal, Vol. 167, No. 10,
November 12, 2002, pp 1115-1121. [HUI3; Construct Validity; Responsiveness]
Majumdar, Sumit R., Jeffrey A. Johnson, Samantha L. Bowker, Gillian L Booth, Lisa Dolovich,
William Ghali, Stewart B. Harris, Janet E. Hux, Anne Holbrook, Hui Nien Lee, Ellen Toth, and
Jean-Francois Yale, A Canadian Consensus for the Standardized Evaluation of Quality
Improvement Interventions in Type 2 Diabetes. Canadian Journal of Diabetes, Vol. 29, No. 3,
2005, pp 220-229. [HUI3; Quality Improvement]
Malthaner, Richard A., and John D. Miller, Lung Volume Reduction Surgery: Results from a
Canadian Pilot Study. Canadian Journal of Surgery, Vol. 43, No. 5, October, 2000. [HUI3;
Responsiveness]
Marra, Carlo A., John M. Esdaile, Daphne Guh, Jacek A. Kopec, John E. Brazier, Barry E.
Koehler, Andrew Chalmers, and Aslam H. Anis, A Comparison of Four Indirect Methods of
Assessing Utility Values in Rheumatiod Arthritis. Medical Care, Vol. 42, No. 11, November,
Marra, Carlo A., John C. Woolcott, Jacek A. Kopec, Kamran Shojania, Robert Offer, John E.
Brazier, John M. Esdaile, and Aslam H. Anis, A Comparison of Generic, Indirect Utility
Measures (the HUI2, HUI3, SF-6D, and the EQ-5D) and Disease-specific Instruments (the RAQoL
and the HAQ) in Rheumatoid Arthritis. Social Science & Medicine, Vol. 60, No. 7, April, 2005,
pp 1571-1582. [HUI2; HUI3; Construct Validity; Interpretability; Responsiveness]
Marra, Carlo A., Amir R. Rashidi, Daphne Guy, Jacek A. Kopec, Michal Abrahamowicz, John M.
Esdaile, John E. Brazier, Paul R. Fortin, and Aslam H. Anis, Are Indirect Utility Measures
Reliable and Responsive in Rheumatoid Arthritis Patients? Quality of Life Research, Vol. 14, No.
5, June, 2005, pp 1333-1344. [HUI3; Construct Validity; Test-Retest Reliability; Responsiveness]
Marra, Carlo A., S. A. Marion, D. P. Guh, M. Najafzadeh, John M. Esdaile, A. E. Clarke, M. A.
Gignac, and Aslam H. Anis, Not all Quality-Adjusted Life Years Are Equal. Journal of
28
HUI Reference List
Clinical Epidemiology, Vol. 60, No. 6, June, 2007, pp 616-624. [HUI2; HUI3; Construct Validity;
Responsiveness]
Marra, Carlo A., Jolanda Cibere, Major Grubisic, Kelly A. Grindrod, Louise Gastonguay, Jamie M.
Thomas, Patrick Embeley, Lindsey Colley, Ross T. Tsuyuki, Krim M. Khan, and John M. Esdaile,
Pharmacist-Initiated Intervention Trial in Osteoarthritis: A Multidisciplinary Intervention for
Knee Osteoarthritis. Arthritis Care & Research, Vol. 64, No. 12, December, 2012, pp 1837-1845.
Marra, Carolo A., Maja Grubisic, Jolanda Cibere, Kelly A. Grindrod, John C. Wollcott, Louise
Gastonguay, and John M. Esdaile, Cost-Utility Analysis of a Multidiscplinary Strategy to Manage
Osetoarthritis of the Knee: Economic Evaluation of a Cluster Randomized Controlled Trial Study.
Arthritis Care & Research, Vol., 66, No. 5, June, 2014, pp 810-816. [HUI3; Construct Validity;
Responsiveness]
Marshall, Deborah, Dan Pericak, Paul Grootendorst, Katherine Gooch, Peter Faris, Cy Frank,
Nicholas Bellamy, George Torrance, and David Feeny, Validation of a Prediction Model to
Estimate Health Utilities Index Mark 3 Utility Scores from WOMAC Index Scores in Patients with
Osteoarthritis of the Hip. Value in Health, Vol. 11, No. 3, May/June, 2008, pp 470-477; published
on-line September 4, 2007. [HUI3; Construct Validity]
Mathias, Susan D., Molly M. Bates, David J. Pasta, Miriam G. Cisternas, David Feeny, and Donald
L. Patrick, "Use of the Health Utilities Index with Stroke Patients and their Caregivers." Stroke,
Vol. 28, No. 10, October, 1997, pp 1888-1894. [HUI2; Clinical; Construct Validity; Reliability]
Maxwell, Colleen J., Jian Kang, Jennifer D. Walker, Jenny X. Zhang, David B. Hogan, David H.
Feeny, Walter P. Wodchis, Sex Differences in the Relative Contribution of Social and Clinical
Factors to the Health Utilities Index Mark 2 Measure of Health-Related Quality of Life in Older
Home Care Clients. Health and Quality of Life Outcomes (electronic journal) (Vol. 7: 80,
September 2, 2009); doi:10.1186/1477-7525-7-80; http://www.hqlo.com/content/7/1/80 [HUI2; C
MDS-HSI; Construct Validity]
Mayo, Nancy E., Susan C. Scott, Mark Bayley, Angela Cheung, Jayne Garland, Jeffrey Jutai, and
Sharon Wood-Dauphinee, Modeling health-related quality of life in people recovering from
stroke. Quality of Life Research, Vol. 24, No. 1, January, 2015, pp 41-53; published online
December 19, 2013. [HUI2; HUI3; Construct Validity]
McCarter, Helen, William Furlong, Anthony C. Whitton, David Feeny, Sonja DePauw, Andrew R.
Willan, and Ronald D. Barr, Health Status Measurements at Diagnosis as Predictors of Survival
among Adults with Brain Tumors. Journal of Clinical Oncology, Vol. 24, No. 22, August 1,
2006, pp 3636-3643. [HUI2; HUI3; Predictive Validity]
McDonough, Christine M., Margaret R. Grove, Tor D. Tosteson, Jon D. Lurie, Alan S. Hilbrand,
and Anna N. A. Tosteson, Comparison of EQ-5D, HUI, and SF-36 Derived Societal Health-State
Values among Spine Patient Outcomes Research Trial (SPORT) Participants. Quality of Life
Research, Vol. 14, No. 5, June, 2005, pp 1321-1332. [HUI2; HUI3; Construct Validity]
29
HUI Reference List
McDonough, Christine M., Tor D. Tosteson, Anna N. A. Tosteson, Alan M. Jette, Margaret R.
Grove, and James N. Weinstein, A Longitudinal Comparison of 5 Preference-Weighted Health
State Classification Systems in Persons with Intervertebral Disk Herniation. Medical Decision
Making, Vol. 31, No. 2, March-April, 2011, pp 270-280. [HUI2; HUI3; Construct Validity;
Responsiveness]
McMahon, Pamela M., Sally S. Araki, Peter J. Neumann, Gordon J. Harris, and G. Scott Gazelle,
Cost-Effectiveness of Functional Imaging Tests in the Diagnosis of Alzheimer Disease.
Radiology, Vol. 217, No. 1, October, 2000, pp 58-68. [HUI2; Clinical]
McMahon, Pamela M., Sally S. Araki, Eileen A. Sandberg, Peter J. Neumann, and G. Scott
Gazelle, Cost-Effectiveness of PET in the Diagnosis of Alzheimer Disease. Radiology, Vol. 228,
No. 2, August, 2003, 515-522. [HUI2; HUI3; Construct Validity]
McTaggart-Cowan, Helen M., Carlo A. Marra, Yaling Yang, John E. Brazier, Jacek A. Kopec, J.
Mark Fitzgerald, Aslam H. Anis, and Larry D. Lynd, The Validity of Generic and
Condition-Specific Preference-based Instruments: The Ability to Discriminate Asthma Control
Status. Quality of Life Research, Vol. 17, No. 3, April, 2008, pp 453-462; published online
February 15, 2008; DOI 10.1007/s11136-008-9303-6. [HUI3; Construct Validity]
Meenan, Richard T., David Feeny, David Labby, Mark Spofford, David Mosen, and Rebecca
Ramsay, Using Health-Related Quality of Life Assessments to Evaluate Care Support within
Medicaid. Care Management Journals, Vol. 9, No. 2, 2008, pp 42-51. [HUI3; Construct Validity;
Responsiveness]
Midgley, Deborah E., Tatum A. Bradlee, Christopher Donohoe, Kevin P. Kent, and Estella M.
Alonso, Health-Related Quality of Life in Long-Term Survivors of Pediatric Liver
Transplantation. Liver Transplantation, Vol. 6, No. 3, May, 2000, pp 333-339. [HUI2; Clinical;
Construct Validity]
Mihalopoulos, Catherine, Gang Chen, Angelo Iezzi, Munir A.Khan, and Jeffrey Richardson,
Assessing outcomes for cost-utility analysis in depression: comparison of five multi-attribute
utility instruments with two depression-specific outcome measures. British Journal of Psychiatry,
published online Septembeer 25, 2014. [HUI3; Construct Validity]
Miller, Edward Alan, Lon S. Schneider, and Robert A. Rosenheck, Assessing the relationship
between health utilities, quality of life, and health services use in Alzheimer disease. International
Journal of Geriatric Psychiatry, Vol. 24, No. 1, January, 2009, pp 96-105. [HUI3; Construct
Validity]
Miller, Edward Alan, Robert A. Rosenheck, and Lon S. Schneider, Caregiver Burden, Health
Utilities, and Institutional Service Costs Among Community-dwelling Patients with Alzheimer
Disease. Alzheimer Disease and Associated Disorders, Vol. 24, No. 4, October-December 2010,
pp 380-389; E-pub July 9, 2010. [HUI3; Construct Validity; Prediction of Cost]
30
HUI Reference List
Miller, Edward Alan, Lon S. Schneider, Arthur Zbrozek, and Robert A. Rosenheck,
Sociodemographic and Clinical Correlates of Utility Scores in Alzheimers Disease. Value in
Health, Vol. 11, No. 7, December, 2008, pp 1120-1130. [HUI3; Construct Validity;
Responsiveness]
Miller, Edward Alan, Robert A. Rosenheck, and Lon S. Schneider, Caregiver burden, health
utilities, and institutional service use in Alzheimers disease. International Journal of Geriatric
Psychiatry, Vol. 27, No. 4, April, 2012, pp 382-393. [HUI3; Construct Validity]
Miller, Edward Alan, Robert A. Rosenheck, and Lon S. Schneider, Assessing the relationship
between health utilities, quality of life, and health care costs in Alzheimers disease: the
CATIE-AD study. Current Alzheimer Research, Vol. 7, No. 4, June, 2010, pp 348-357. [HUI3;
Construct Validity]
Miller, John D., Richard A. Malthaner, Charles H. Goldsmith, Ronald Goeree, David Higgins, P.
Gerard Cox, Lawrence Tan, and Jeremy D. Road for the Canadian Lung Volume Reduction
Surgery Study, A Randomized Clinical Trial of Lung Volume Reduction Surgery Versus Best
Medical Care for Patients with Advanced Emphysema: A Two-Year Study from Canada. Annals
of Thoracic Surgery, Vol. 81, No. 1, January, 2006, pp 314-321. [HUI3; Construct Validity;
Responsiveness]
Mills, J. Michael, Estella M. Alonso, James B. Piper, David S. Bruce, Kenneth A. Newell, E. Steve
Woodie, Alfred L. Baker, Peter F. Whitington, and J. Richard Thistlewaite, "Liver Transplantation
at the University of Chicago," in J.M. Cecka and Paul I. Terasaki, eds., Clinical Transplants (Los
Angeles, UCLA Tissue Typing Laboratory, 1995), pp 187-197. [HUI2; Clinical]
Mills, Tim, Simon K. Law, John Walt, Patricia Buchholz, and Jan Hansen, Quality of Life in
Glaucoma and Three Other Chronic Diseases: A Systematic Literature Review. Drugs & Aging,
Vol. 26, No. 11, 2009, pp 933-950. [ HUI3; Construct Validity; Review Article]
Mok, Winnie Ka Yan, Wilfred Hing-Sang Wong, Gary Tsz Kin Mok, Yoyo Yiu Chu, Frederick Ka
Wing Ho, Chun Bong Chow, Patrick Ip, and Brian Hon-Yin Chung, Validation and application of
health utilities index in Chinese subjects with down syndrome. Health and Quality of Life
Outcomes,
Vol.
12,
No.
144,
published
online
October
14,
2014;
http://www.hqlo.com/content/12/1/144 [HUI2; HUI3; Construct Validity]
Moock, Joern, and Thomas Kohlmann, Comparing Preference-based Quality of Life Measures:
Results from Rehabilitation Patients with Musculoskeletal, Cardiovascular, or Psychosomatic
Disorders. Quality of Life Research, Vol. 17, No. 3, April, 2008, pp 485-495. Epub February 21,
2008. [HUI2; HUI3; Construct Validity; Responsiveness]
Moore, Andrew D., Ann E. Clarke, Deborah S. Danoff, Lawrence Joseph, Patrick Blisle, Carolyn
Neville, and Paul R. Fortin, Can Health Utility Measures Be Used in Lupus Research? A
Comparative Validation and Reliability Study of 4 Utility Indices. Journal of Rheumatology, Vol.
26, No. 6, June, 1999, pp 1285-1290. [HUI2; Clinical; Construct Validity; Reliability]
31
HUI Reference List
Moy, Marilyn L., Anne L. Fuhlbrigge, Karen Blumenschein, Richard H. Chapman, Alan J. Zillich,
Karen M. Kuntz, A. David Paltiel, Barrett T. Kitch, Scott T. Weiss, and Peter J. Neumann,
Association Between Preference-based Health-Related Quality of Life and Asthma Severity.
Annals of Allergy, Asthma, and Immunology, Vol. 92, No. 9, March, 2004, pp 329-334. [HUI3;
asthma; construct validity]
Msall, Michael E., Measuring Functional Skills in Preschool Children At Risk for
Neurodevelopmental Disabilities. Mental Retardation and Developmental Disabilities Research
Reviews, Vol. 11, No. 3, August, 2005, pp 263-273. [Comprehensive Health Status Classification
System for Pre-School Children, CHSCS-PS; Review Article]
Msall, Michael E., Neurodevelopmental surveillance in the first 2 yeras after extremely preterm
birth: Evidence, challenges, and guidelines. Early Human Development, Vol. 82, No. 3, March,
2006, pp 157-166. [Comprehensive Health Status Classification System for Pre-School Children,
CHSCS-PS; Review Article]
Mulhern, Raymond K., Correlation of the Health Utilities Index Mark 2 Cognition Scale and
Neuropsychological Functioning among Survivors of Childhood Medulloblastoma. International
Journal of Cancer, Supplement 12, December, 1999, pp 91-94. [Clinical; Construct Validity;
Discriminative Validity]
Naglie, Gary, George Tomlinson, Catherine Tansey, Jane Irvine, Paul Ritvo, Sandra E. Black,
Morris Freedman, Michel Silberfeld, and Murray Krahn, Utility-Based Quality of Life Measures
in Alzheimers Disease. Quality of Life Research, Vol. 15, No. 4, May, 2006, pp 631-643. [HUI3;
Construct Validity; Inter-Rater Reliability; Test-Retest Reliability]
Naglie, Gary, David B. Hogan, Murray Krahn, Sandra E. Black, Lynn Beattie, Christopher
Patterson, Chris MacKnight, Morris Freedman, Michael Borrie, Anna Byszewski, Howard
Bergman, David Streiner, Jane Irvine, Paul Ritvo, Janna Comrie, Matthew Kowgier, and George
Tomlinson, Predictors of Family Caregiver Ratings of Patient Quality of Life in Alzheimer
Disease: Cross-Sectional Results from the Canadian Alzheimers Disease Quality of Life Study.
American Journal of Geriatric Psychiatry, Vol. 19, No. 1, October, 2011, pp 891-901. [HUI3;
Construct Validity; Proxy Assessment]
Nathan, Paul C., William Furlong, and Ronald D. Barr, Challenges to the Measurement of
Health-Related Quality of Life in Children Receiving Cancer Therapy. Pediatric Blood and
Cancer, Vol. 43, No. 3, September, 2004, pp 215-223. [Clinical]
Nathan, Paul C., William Furlong, Sonja DePauw, John Horsman, Charmaine van Schaik, Martha
Rolland, Sheila Weitzman, David Feeny, and Ronald D. Barr, Health Status of Young Children
during Various Phases of Therapy for Advanced Neuroblastoma. Pediatric Blood and Cancer,
Vol. 43, No. 6, November, 2004, pp 659-667. [Comprehensive Health Status Classification System
for Pre-School Children, CHSCS-PS; Reliability; Construct Validity; Pediatric Oncology]
Nathan, Paul C., William Furlong, John Horsman, Charmaine van Schaik, Martha Rolland, Sheila
Weitzman, David Feeny, and Ronald D. Barr, Inter-Observer Agreement of a Comprehensive
32
HUI Reference List
Health Status Classification System for Pre-School Children among Patients with Wilms Tumor
or Advanced Neuroblastoma. Quality of Life Research, Vol. 13, No. 10, December, 2004, pp
1707-1715. [Comprehensive Health Status Classification System for Pre-School Children,
CHSCS-PS; Reliability; Construct Validity; Pediatric Oncology]
Neumann, Peter J., Karen M. Kuntz, Joel Leon, Sally S. Araki, Richard C. Hermann, Ming Ann
Hsu, and Milton C. Weinstein, "Health Utilities and Health Status in Alzheimers Disease: A
Cross-Sectional Study of Subjects and Caregivers." Medical Care, Vol. 37, No. 1, January, 1999,
Neumann, P. J., R. C. Hermann, K. M. Kuntz, S. S. Araki, S. B. Duff, Leon J. Berenbaum, P. A.
Goldman, L. W. Williams, and M. C. Weinstein, Cost-Effectiveness of Donepezil in Treatment of
Mild or Moderate Alzheimers Disease. Neurology, Vol. 52, No. 6, April 12, 1999, 1138-1145.
[HUI2; Clinical; Evaluative]
Neumann, Peter J., Eileen A. Sandberg, Sally S. Araki, Karen M. Kuntz, David Feeny, and Milton
C. Weinstein, A Comparison of HUI2 and HUI3 Utility Scores in Alzheimers Disease. Medical
Decision Making, Vol. 20, No. 4, October-December, 2000, pp 413-422. [Clinical; Construct
Validity]
Nichol, Graham, I. G. Stiell, P. Hebert, George Wells, K. Vandemheen, and Andreas Laupacis,
Do Survivors of Cardiac Arrest Have a Good Quality of Life? A Prospective Study. Academic
Emergency Medicine, Vol. 6, No. 2, February, 1999, 95-102. [HUI2; Clinical; Construct Validity;
Evaluative]
Nichol, Michael B., Nishan Sengupta, and Denise R. Globe, Evaluating Quality-Adjusted Life
Years: Estimation of the Health Utility Index (HUI) from the SF-36. Medical Decision Making,
Vol. 21, No. 2, March-April, 2001, pp 105-112. [HUI2; Construct Validity; Scoring]
Nosyk, Bohdan, Huiying Sun, Nick Bansback, Dapne P. Guh, Xin Li, Paul Barnett, Ahmed
Bayoumi, Susan Griffin, Vilja Joyce, Mark Holodniy, Doug K. Owens, and Aslam H.Anis, The
Concurrent Validity and Responsiveness of the Health Utilities Index (HUI3) among Patients with
Advanced HIV/AIDS. Quality of Life Research, Vol. 18, No. 7, September, 2009, pp 815-824;
published online June 27, 2009. [HUI3; Construct Validity; Responsiveness]
Odame Isaac, JoAnn Duckworth, Danielle Talsma, Lesley Beaumont, William Furlong, Colin
Webber, and Ronald Barr, Osteopenia, Physical Activity and Health-Related Quality of Life in
Survivors of Brain Tumors Treated in Childhood. Pediatric Blood and Cancer, Vol. 46, No. 3,
March, 2006, pp 357-362. [HUI2; HUI3; Construct Validity]
Oluboyede, Yemi, Sandy Tubeuf, and Chris McCable, Measuring health outcomes of adolescents:
report from a pilot study. European Journal of Health Economics, Vol. 14, No. 1, February, 2013,
pp 11-19. [HUI2; HUI3; Reliability]
Oostenbrink, Rianne, Henriette A. Moll, and Marie-Louise Essink-Bot, The EQ-5D and the
Health Utilities Index for Permanent Sequelae after Meningitis: A Head-to-Head Comparison.
33
HUI Reference List
Journal of Clinical Epidemiology, Vol. 55, No. 8, August, 2002, pp 791-799. [HUI2; HUI3;
Construct Validity]
Oostenbrink, Rianne, Jan B. Oostenbrink, Karel G. Moons, Gerarad Derksen-Lubsen,
Marie-Louise Essink-Bot, Diederick E. Grobbee, W. Ken Redekip, and Henriette A. Moll,
Cost-Utility Analysis of Patient Care in Children with Meningeal Signs. International Journal of
Technology Assessment in Health Care, Vol. 18, No. 3, Summer, 2002, 485-496. [HUI3; Construct
Validity]
Palmer, Cynthia S., John K. Niparko, Robert Wyatt, Margaret Rothman, and Greogory de
Lissovoy, A Prospective Study of the Cost-Utility of the Multichannel Cochlear Implant.
Archives of Otolaryngology - - Head and Neck Surgery, Vol. 125, No. 11, November, 1999, pp
Parsons, Susan K., and Deborah K. Mayer, Health-Related Quality of Life Assessment in
Hematologic Disease. Hematology/Oncology Clinics of North America, Vol. 18, No. 6,
December, 2004, pp 1235-1248. [HUI2; HUI3; Review Article]
Payakachat, Nalin, J. Mick Tilford, Werner BF Brouwer, N. Job van Exel, and Scott D. Grosse,
Measuring health and well-being effects in family caregivers of children with craniofacial
malformations. Quality of Life Research, Vol. 20, No. 9, November, 2011, pp 1487-1495;
published online February 24, 2011. [HUI3; Construct Validity]
Payakachat, Nalin, J. Mick Tilford, Erica Kovacs, and Karen Kuhlthau, Autism spectrum
disorders: a review of measures for clinical, health services and cost-effectiveness applications.
Expert Review of Pharmacoeconomics and Outcomes Research, Vol. 12, No. 4, August, 2012, pp
Payakachat, Nalin, J. Mick Tilford, Karen Kuhlthau, N. Job van Exel, Erica Kovacs, Jayne
Bellando, Jeffrey M. Pyne, and Werner B. F. Brouwer, Predicting Health Utilities for Children
with Autism Spectrum Disorders. Autism Research, published online September 25, 2014. [HUI3;
Construct Validity]
Peasgood, T., K. Herrmann, J. A. Kanis, and J. E. Brazier, An Updated Systematic Review of
Health State Utility Values for Osteoporosis Related Conditions. Osteoporosis International, Vol.
20, No. 6, June, 2009, pp 853-868. [HUI2; HUI3; Review Article]
Penn, Anthony, Robert I. Shortman, Stephen P. Lowis, Michael C. G. Stevens, Linda P. Hunt,
Renee J. McCarter, Andrew L. Curran, and Peta M. Sharples, Child-Related Determinants of
Health-Related Quality of Life in Children with Brain Tumours 1 Year After Diagnosis. Pediatric
Blood & Cancer, Vol. 55, No. 7, December 15, 2010, pp 1377-1385. [HUI3; Construct Validity]
Penn, Anthony, Stephen P. Lowis, Michael C. G. Stevens, Robert I. Shortman, Linda P. Hunt,
Renee J. McCarter, Andrew L. Curran, and Peta M. Sharples, A Detailed Prospective
Longitudinal Assessment of Health Status in Children with Brain Tumors in the First Year After
Diagnosis. Journal of Pediatric Hematology and Oncology, Vol. 33, No. 8, December, 2011, pp
34
HUI Reference List
592-599. [HUI3; Construct Validity; Responsiveness; Inter-rater agreement; Proxy Assessment]

Peetsold, M.G., J. Huisman, V. E. Hofman, H. A. Heij, H. Raat, and R. J. Gemke, Psychological
Outcome and Quality of Life in Children Born with Congenital Diaphragmatic Hernia. Archives
in Diseases of Children, Vol. 94, No. 1, November, 2009, pp 834-840. [HUI3; Construct Validity]
Petrou, Stavros, Donna McCann, Catherine M. Law, Peter M. Watkin, Sarah Worsfold, and Colin
R. Kennedy, Health Status and Health-Related Quality of Life Preference-Based Outcomes of
Children Who Are Aged 7 to 9 Years and Have Bilateral Permanent Childhood Hearing
Impairment. Pediatrics, Vol. 120, No. 5, November, 2007, pp 1044-1052. [HUI3; Construct
Validity; Hearing]
Petrou, Stavros, Giselle Abangma, Samantha Johnson, Dieter Wolke, and Neil Marlow, Costs and
Health Utilities Associated with Extremely Preterm Birth: Evidence from the EPICure Study.
Value in Health, Vol. 12, No. 8, November/December, 2009, pp 1124-1134. [HUI3; Construct
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Petrou, Stavros, Samantha Johnson, Dieter Wolke, Chris Hollis, Puja Kochhar, and Neil Marlow,
Economic Costs and Preference-Based Health-Related Quality of Life Outcomes Associated with
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2010, pp. 395-404. [HUI2- UK Scoring; HUI3; Construct Validity]
Pickard, A. Simon, Jeffrey A. Johnson, David H. Feeny, Ashfaq Shuaib, K. C. Carriere, and
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Pickard, A. Simon, Jeffrey A. Johnson, and David H. Feeny, Responsiveness of Generic
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February, 2005, pp 207-219. [HUI2; HUI3; Construct Validity; Responsiveness]
Pinto, Angela Marinilli, Miriam Kuppermann, Sanae Nakagawa, Eric Vittinghoff, Rena R. Wing,
John W. Kusek, William H. Herman, and Leslee L. Subak, Comparison and correlates of three
preference-based health-related quality of life measures among overweight and obese women with
urinary incontinence. Quality of Life Research, Vol. 20, No.109, December, 2011, pp 1655-1662;
published online April 3, 2011. [HUI3; Construct Validity]
Pinto, Angela Marinilli, Leslee L. Subak, Sanae Nakagawa, Eric Vittinghoff, Rena R. Wing, John
W. Kusek, William H. Herman, Delia Smith West, and Miriam Kuppermann, The effect of
weight loss on changes in health-related quality of life among overweight and obese women with
urinary incontinence. Quality of Life Research, Vol. 21, No. 10, 2012, pp 1685-1694. [HUI3;
Ploeg, Jenny, Kevin Brazil, Brian Hutchison, Janusz Kaczorowski, Dawn M. Dalby, Charles H.
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HUI Reference List
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Pogany, Lisa, Ronald D. Barr, Amanda Shaw, Kathy N. Speechley, Maru Barrera, and Elizabeth
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Research, Vol. 15, No. 1, February, 2006, pp 143-157. [HUI3; Construct Validity]
Pohar, Sheri L., C. Allyson Jones, Sharon Warren, Karen V. L. Turpin, and Kenneth Warren,
Health Status and Health Care Utilization of Multiple Sclerosis in Canada. Canadian Journal of
Neurological Sciences, Vol. 34, No. 2, May, 2007, pp 167-174. [HUI3; Construct Validity]
Polinder, Suzanne, Juanita A. Haagsma, Gouke Bonsel, Marie-Louise Essink-Bot, Hidde Toet, and
Ed F. Van Beeck, The measurement of long-term health-related quality of life after injury:
comparison of EQ-5D and the health utilities index. Injury Prevention, Vol. 16, No. 3, Jun, 2010,
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Polsky, Daniel, Nancy L. Keating, Jane C. Weeks, and Kevin A. Schulman, Patient Choice of
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November, 2002, pp 1068-1079. [HUI3; Construct Validity; Responsiveness]
Post, Piet N., Anne M. Stiggelbout, and Peter P. Wakker, The Utility of Health States after
Stroke: A Systematic Review of the Literature. Stroke, Vol. 32, No. 6, June, 2001, pp
1425-1429. [HUI2; HUI3; Construct Validity; Review Article]
Pressler, Susan J., George J. Eckert, Gwendolyn C. Morrison, Michael D. Murray, and Neil B.
Oldridge, Evaluation of the Health Utilities Index Mark-3 in Heart Failure. Journal of Cardiac
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Internal Consistency Reliability; Test-Retest Reliability]
Prince, F. H. M., L. M. Geerdink, G. J. M. Borsboom, M. Twilt, M. A. J. Van Rossum, E. P. A. H.
Hoppenreijs, R. Ten Cate, Y. Koopman-Keemink, M. Van Santen-Hoeufft, H. Raat, and L. W. A.
Van Suijlekom-Smit, Major Improvements in Health-Related Quality of Life During the Use of
Etanercept in Patients with Previously Refractory Juvenile Idiopathic Arthritis. Annals of
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Responsiveness]
Quinn, Graham E., Velma Dobson, Saroj Saigal, Dale L. Phelps, Robert J. Hardy, Betty Tung, C.
Gail Summers, Earl A. Palmer, CRYO-ROP Cooperative Group, Health-Related Quality of Life
at Age 10 Years in Very Low-Birth-Weight Children with and without Threshold Retinopathy of
Prematurity. Archives of Ophthalmology, Vol. 122, No. 11, November, 2004, pp 1659-1666.
Raat, Hein, Gouke J. Bonsel, Marie-Louise Essink-Bot, Jeanne M. Landgraf, and Reinoud J. B. J.
Gemke, Reliability and Validity of Comprehensive Health Status Measures in Children: The
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Raat, Hein, Ashna D. Mohangoo, and Martha A. Grootenhuis, Pediatric Health-Related Quality of
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Henriette A. Moll, Albert Hofman, and Johan P. Mackenbach, The Generation R Study: A
Candidate Gene Study and Genome-wide Association Study (GWAS) on Health-Related Quality
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Rae, Charlene, William Furlong, Momcilo Jankovic, Albert Moghrabi, Ahmed Naqvi, Alessandra
Sala, Yvan Samson, Sonja De Pauw, David Feeny, and Ronald D. Barr, , Economic evaluation of
treatments for acute lymphoblastic leukemia in childhood. European Journal of Cancer Care,
Vol. 23, No. 6, November, 2014, pp 779-785; published online January 7, 2014. [HUI3;
Construct Validity]
Raina, Parminder, Maureen ODonnell, Peter Rosenbaum, Jamie Brehaut, Stephen D. Walter,
Dianne Russell, Marilyn Swinton, Bin Zhu, and Ellen Wood, The Health and Well-Being of
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measures and the feeling thermometer among participants in the action to control cardiovascular
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Ramsey, Scott D., M. Robyn Andersen, Ruth Etzioni, Carol Moinpour, Sue Peacock, Arnold
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Rashidi, Amir Adel, Aslam H. Anis, and Carlo A. Marra, Do Visual Analogue Scale (VAS)
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Comparison of Patient and Community Preferences for Health Status in Rheumatoid Arthritis
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Raynauld, J. P., G. W. Torrance, P. A. Band, C. H. Goldsmith, P. Tugwell, V. Walker, M. Schultz,
and N. Bellamy, A Prospective Randomized, Pragmatic, Health Outcomes Trial Evaluating the
Incorporation of Hylan G-F 20 into the Treatment Paradigm for Patients with Knee Osteoarthritis
(Part 1 or 2): Clinical Results. Osteoarthritis and Cartilage, Vol. 10, No. 7, 2002, pp 506-517.
Revicki, Dennis A., K. N. Simpson, Albert W. Wu, and R. L. LaVallee, Evaluating the Quality of
Life Associated with Rifabutin Prophylaxis for Mycobacterium avium Complex in Persons with
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Revicki, Dennis A., N. K. Leidy, F. Brennan-Diemer, C. Thompson, and A. Togias, Development
and Preliminary Validation of the Multiattribute Rhinitis Symptom Utility Index. Quality of Life
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Revicki, Dennis A., David Feeny, Timothy L. Hunt, and Bernard Cole, Analyzing Oncology
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or TWiST and Shout? Quality of Life Research, Vol. 15, No. 3, April, 2006, pp 427-428. [HUI2;
HUI3; Interpretation]
Revicki, Dennis A., Nancy Brandenburg, Louis Matza, Mark C. Hornbrook, and David Feeny,
Health-Related Quality of Life and Utilities in Primary-care Patients with Generalized Anxiety
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Revicki, Dennis A., Karin Travers, Kathleen W. Wyrwich, Henrik Svedsater, Julie Locklear, Maria
Stoecki Mattera, David V. Sheehan, and Stuart Montgomery, Humanistic and economic burden of
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Ritvo, Paul, Jane Irvine, Gary Naglie, George Tomlinson, Andrea Bezjak, Andrew Matthew, John
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[HUI2; Construct Validity; Screening]
Roberts, Victor Lawrence, John Stewart, Maher Issa, Barbara Lake, and Robert Melis, Triple
Therapy with Glimepiride in Patients with Type 2 Diabetes Mellitus Inadequately Controlled by
Metformin and a Thiazolidinedione: Results of a 30-Week, Randomized, Double-Blind,
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pp 1535-1547. [HUI3: Construct Validity]
Robertson, Charlene M. T., Joe M. Watt, Ari R. Joffe, Deirdre B. Murphy, Julianne M. Nagy,
Deirdre E. McLean, Kerrie S. Pain, and Duncan Saunders, Childhood Morbidity after Severe
Traumatic Brain Injury: Increased Detection with the Multiattribute Health Status Classification.
Pediatric Critical Care Medicine, Vol. 2, No. 2, April, 2001, 145-150. [HUI2; Construct Validity;
Inter-rater Agreement]
Rosenbaum, Peter, The Quality of Life for the Young Adult with Neurodisability: Overview and
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Rosenheck, R.A., D.L. Leslie, J.L. Sindelar, E.A. Miller, P.N. Tariot, K.S. Dagerman, S.M. Davis,
B.D. Lebowitz, P. Rabins, J.K. Hsiao, J.A. Lieberman, and L.S. Schneider, Cost-benefit analysis of
second-generation antipsychotics and placebo in a randomized trial of the treatment of psychosis
and aggression in Alzheimer disease. Archives of General Psychiatry, Vol. 64, No. 11, November,
Rosner, Andrew J., Daniel T. Grima, George W. Torrance, Cathy Bradley, Jonathan D. Adachi,
Rolf J. Sebaldt, and Donald J. Willison, Cost Effectiveness of Multi-Therapy Treatment
Strategies in the Prevention of Vertebral Fractures in Postmenopausal Women with Osteoporosis.
PharmacoEconmics, Vol. 14, No. 5, November, 1998, pp 559-573. [HUI2; Clinical; Evaluative]
Ruchlin, Hirsch S., and Ralph P. Insinga, A Review of Health-Utility Data for Osteoarthritis:
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Saigal, Saroj, David Feeny, Peter Rosenbaum, William Furlong, Elizabeth Burrows, Barbara
Stoskopf, and Lorraine Hoult, "Self-Perceived Health Status and Health-Related Quality of Life of
Extremely Low Birthweight Infants at Adolescence." Journal of the American Medical
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Saigal, Saroj, Peter L. Rosenbaum, David Feeny, Elizabeth Burrows, William Furlong, Barbara L.
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Saigal, Saroj, Peter Rosenbaum, Barbara Stoskopf, Lorraine Hoult, William Furlong, David Feeny,
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Elizabeth Burrows, and George Torrance, "Comprehensive Assessment of the Health Status of
Extremely Low Birthweight Children at Eight Years of Age: Comparison with a Reference
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Construct Validity]
Saigal, Saroj, David Feeny, William Furlong, Peter Rosenbaum, Elizabeth Burrows, and George
Torrance, "Comparison of the Health-Related Quality of Life of Extremely Low Birthweight
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Saigal, Saroj, Perception of Health Status and Quality of Life of Extremely Low-Birth Weight
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Saigal, Saroj, Peter Rosenbaum, Barbara Stoskopf, Lorraine Hoult, William Furlong, David Feeny,
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Construct Validity; Reliability]
Saigal, Saroj, Barbara Stoskopf, Janet Pinelli, David Streiner, Lorraine Hoult, Nigel Paneth, and
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Saiguay, Weena, and Phantipa Sakthong, The psychometric testing of the Thai version of the
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Construct Validity; Test-Retest Reliability; Responsiveness; Translation]
Santana, Maria J., and David Feeny, Using the Health Utilities Index in Routine Clinical Care:
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HUI3; Construct Validity; Routine Use]
Santana, Maria-Jose, David Feeny, Katherine Jackson, Justin Weinkauf, and Dale Lien,
Improvement in Health-Related Quality of Life Post-Lung Transplantation. Canadian
Respiratory Journal, Vol. 16, No. 5, September/October, 2009, pp 153-158. [HUI2; HUI3;
Santana, Maria-Jose, David Feeny, Jeffrey A. Johnson, Finlay A. McAlister, Daniel Kim, Justin
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Interpretation; Routine Use]
Santana, Maria-Jose, David Feeny, Justin Weinkauf, Roland G. Nador, Ali Kapasi, Kathleen
Jackson, Marianne Schafenacker, Dalyce Zuk, and Dale Lien, The Use of Patient Reported
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September 1, 2010. [HUI2; HUI3; Construct Validity; Routine Use]
Santana, Maria-Jose, David Feeny, Sunita Ghosh, Roland G. Nador, Justin Weinkauf, Katherine
Jackson, Marianne Schafenacker, Dalyce Zuk, Grace Hubert, and Dale Lien, The Construct
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Health and Quality of Life Outcomes (electronic journal) (Vol. 8, 110, September 28, 2010),
Santana, Maria Jose, David Feeny, Sunita Ghosh, and Dale Lien, Patient-reported Outcome at
Two Years of Lung Transplantation, Does the Underlying Diagnosis Matter? Patient Related
Outcome
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Vol.
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November
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Santana, Maria J., J. Mirus, M. A. Loadman, Dale C. Lien, and David Feeny, An Assessment of
the Effects of Iyengar Yoga Practices on the Health-Related Quality of Life of Patients with
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Sawka, A. M., L. Thabane, A. Papionannou, A. Gafni, G. Ioannidis, E. A. Papadimitropoulos, W.
M. Hopman, A. Crannery, D. A. Hanley, L. Pickard, and J. D. Adachi, Health-Related Quality of
Life Measurements in Elderly Canadians with Osteoporosis Compared to Other Chronic Medical
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Construct Validity]
Schiariti, Veronica, Jill S. Hoube, Sarka Lisonkova, Anne F. Klassen, and Shoo K. Lee,
Caregiver-Reported Health Outcomes of Preschool Children Born at 28 to 32 Weeks Gestation.
Journal of Developmental and Behavioral Pediatrics, Vol 28, No. 1, February, 2007, pp 9-15.
Construct Validity]
Schiariti, Veronica, Anne F. Klassen, Jill S. Hoube, A. Synnes, Sarka Lisonkova, Shoo K. Lee,
Perinatal Characteristics and Parents Perspective of Health Status of NICU Graduates Born at
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Schneider, H. P. G., A. H. MacLennan, and D. Feeny, Assessment of Health-Related Quality of
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A Randomized Controlled Trial to Evaluate the Effect of Informing Patients about their
Pretreatment Responses to Two Questionnaires. Chest, Vol. 122, No. 5, November, 2002, pp
Schunemann, Holger J., Lauren Griffith, David Stubbing, Roger Goldstein, and Gordon H. Guyatt,
A Clinical Trial to Evaluate the Measurement Properties of 2 Direct Preference Instruments
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Schunemann, Holger J., David Armstrong, Alessio Deglinnocenti, Ingela Wiklund, Carlo A.
Fallone, Lisa Tanser, Sander Veldhuyzen Van Zanten, Diane Heels-Ansdell, Samer El-Dika, Naoki
Chiba, Alan N. Barkun, Peggy Austin, and Gordon H. Guyatt, A Randomized Multicenter Trial to
Evaluate Simple Utility Elicitation Techniques in Patients with Gastroesophageal Reflux Disease.
Medical Care, Vol. 42, No.11, November, 2004, pp 1132-1142. [HUI3; Construct Validity]
Schunemann, Holger J., Roger Goldstein, M. Jeffrey Mador, Dougls McKim, Elisabeth Stahl, M.
Puhan, Laurent E. Griffith, B. Grant, P Austin, R. Collins, and Gordon H. Guyatt, A Randomised
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European Respiratory Journal, Vol. 25, No. 1, January, 2005, pp 31-40. [HUI3; Construct
Schunemann, Holger J., Roger Goldstein, M. Jeffrey Mador, Douglas McKim, Elisabeth Stahl,
Lauren E. Griffith, Ahmed M. Bayoumi, Peggy Austin, and Gordon H. Guyatt, Do Clinical
Marker States Improve Responsiveness and Construct Validity of the Standard Gamble and
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Shaw, Amanda K., Howard I. Morrison, Kathy N. Speechley, Elizabeth Maunsell, Maru Barrera,
Dena Schanzer, Lisa Pogany, and Marie Desmeules, The Late Effects Study: Design and Subject
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Shearer, David, and Saam Morshed, Common Generic Measures of Health-Related Quality of
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Shimoda, Sandra, Beatriz de Camargo, John Horsman, William Furlong, Luiz Fernando Lopes,
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Disability and Health-related Quality of Life in Long-term Survivors of Cancer in Childhood in
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Siderowf, Andrew, Bernard Ravina, and Henry A. Glick, Preference-Based Quality-of-Life in
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Construct Validity]
Smith-Olinde, Laura, Scott D. Grosse, Frank Olinde, Patti F. Martin, and John M. Tilford, Health
state preference scores for children with permanent childhood hearing loss: A comparative analysis
of the QWB and HUI3. Quality of Life Research, Vol. 17, No. 6, August, 2008, pp 943-953.
Solans, Maite, Sabrina Pane, Maria-Dolors Estrada, Vicky Serra-Sutton, Silvina Berra, Michael
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Children and Adolescents: A Systematic Review of Generic and Disease-Specific Instruments.
Value in Health, Vol. 11, No. 4, July-August, 2008, pp 742-764; December 17, 2007 Epub. [HUI2;
HUI3; Construct Validity; Review Article]
Speechley, Kathy Nixon, Elizabeth Maunsell, Marie Desmeules, Dena Schanzer, Jeanne Landgraf,
David H. Feeny, and Maru E. Barrera, Mutual Concurrent Validity of the Child Health
Questionnaire and the Health Utilities Index: An Exploratory Analysis Using Survivors of
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Stade, Brenda C., Bonnie Stevens, Wendy J. Ungar, Joseph Beyene, and Gideon Koren,
Health-Related Quality of Life of Canadian Children and Youth Prenatally Exposed to Alcohol.
Health and Quality of Life Outcomes, Vol. 4/1/81, October 13, 2006;
Stevens, Katherine J., and Jennifer V. Freeman, An assessment of the psychometric performance
of the Health Utilities Index 2 and 3 in children following discharge from a U.K. pediatric
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[HUI2; HUI3; Construct Validity; Inter-rater Reliability; Proxy Agreement; Responsiveness]
Stiell, Ian, Graham Nichol, George Wells, Valerie De Maio, Lisa Nesbitt, Jose Blackburn, and
Daniel Spaite, Health-Related Quality of Life Is Better for Cardiac Arrest Survivors Who
Received Citizen Cardiopulmonary Resuscitation. Circulation, Vol. 108, No. 16, October 21,
Stiell, Ian G., George A. Wells, Brian Field, Daniel W. Spaite, Lisa P. Nesbitt, Valerie J. De Maio,
Graham Nichol, Donna Cousineau, Jose Blackburn, Doug Munkley, Lorraine Luinstra-Toohey,
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[HUI2; HUI3; Construct Validity; Responsiveness]
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[HUI2; Clinical; Construct Validity]
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David Feeny, William Furlong,

and George W. Torrance

[HUI3; Construct Validity; Responsiveness]

Deglinnocenti, Alessio, Gordon H. Guyatt, Ingela Wiklund, Diane Heels-Ansdell, David

Espallargues, Mireia, Carolyn J. Czoski-Murray, Nicholas J. Bansback, Jill Carlton, Grace M.

838-843. [HUI3; Construct Validity; Inter-Rater Reliability]

2013. [HUI2; HUI3; Construct Validity; Responsiveness]

[HUI2; Construct Validity; Proxy Assessments; Test-Retest Reliability]

published on-line August 31, 2011. [HUI3; Construct Validity; Responsiveness]

592-599. [HUI3; Construct Validity; Responsiveness; Inter-rater agreement; Proxy Assessment]

Aleksy, L. Meerton, C. Verschure, P. Ashcroft, and M. Pringle, Self-reported benefits from

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