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RESPONSE AND KOPING PATIENT DIABETES MELLITUS POST AMPUTATION IN

ULIN HOSPITAL BANJARMASIN

Candra Kusuma1, Yati Afiyanti 2, Abd.basyid 3


1
Universitas Muhammadiyah Banjarmasin
2
Universitas Indonesia
3
STIKES Cahaya Bangsa Banajrmasin

Abstract

Background: DM disease is a health problem that is very important because it is associated


with a high incidence of complications and high mortality. For most people the disease diabetes
mellitus is a disease that is very worrying and the public aware of the magnitude of the potential
dangers caused. For individuals who suffer from diabetes mellitus with post-amputation, the next
life is a new round of challenges and changes, and will go through the process of coping with the
change process.
Objective: In general, this study aims to explore various diabetic patients experience post-
amputation of responses and coping experienced.
Methods: This study used a qualitative phenomenological study. Retrieving data using in depth
interview in four participants were treated diabetic foot clinic in Ulin Hospital Banjarmasin
equipped with a guidance interview and informed consent. The analytic method structure from
Creswell into 6 steps.
Results: There are 2 themes depicting various responses post-amputation and depicting various
coping DM patients post-amputation. Sub-Theme in depicting various responses post-
amputation namely: (1) Experiencing physical barriers, (2) Experiencing the changing role, (3)
Experiencing the grieving process, and are 4 Sub-theme depicting various coping DM patients
post-amputation namely: (1) More worship, (2) Accept the circumstances, (3) A strong
Motivation, (4) social support.

Keywords: Response, Coping, diabetes mellitus, amputation.

1
2

1. Introduction from the environment, in order to


Diabetes Mellitus (DM) is a reduce stress (Rasmun, 2009).
metabolic disease that is a collection
of symptoms that arise in a person The response and coping of each DM
because of an increase in blood patient varies, so there needs to be a
glucose levels above the normal more in-depth study using qualitative
value. This disease is caused by the phenomenology studies. Based on
impaired glucose metabolism due to these descriptions, the question
lack of insulin either in absolute or arises as to what and how Response
relative. According to Smeltzer & and coping experienced by DM
Bare (2002) diabetes can be divided sufferers in adapting to their daily
into three types, Type I is insulin- life after amputation.
dependent diabetes mellitus or
Insulin Dependent Diabetes Mellitus 2. Research Methods
(IDDM), Type II diabetes mellitus is This study used qualitative study
not dependent insulin or Noninsulin with phenomenological approach.
Dependent Diabetes Mellitus Phenomenology provides a deep
(NIDDM) and diabetes Mellitus understanding of the phenomena as
Gestational Diabetes Mellitus experienced by some individuals.
(GDM). DM disease is a serious Explore in depth and naturalistic of
threat to society, if DM disease is patient DM post amputation. The
ignored and uncontrollable can cause population on this study is post
disease or other complications that amputation patients with diabetes
can be serious such as, hypertension, mellitus in diabetic foot Ulin
kidney disorder, coronary heart, can Hospital Banjarmasin clinic. The
even end up in amputation and left samples used in this study were
over time would cause death. patients with DM with post
amputation, which met the inclusion
Davidson (2002) states that people criteria. The data is taken through in-
with diabetes mellitus whose depth interviews using the interview
experience loss of limbs due to guidelines that have been prepared.
amputation, expose the individual in Analysis this study using Creswell
a variety of threats are increasingly (2014).
widespread, developing and full of
challenges to physical functions such 3. Thematic analysis results
as weakness. Changes in physical The theme analysis was obtained
conditions in patients with DM who from interviews in this study on
experience amputation can cause participant response and coping in
stress conditions. Stress that appears patients with DM post amputation.
in patients with DM post-amputation Produces 2 main themes found such
can greatly affect the individual as (1) various post amputation
coping mechanism (Mitra, 2008). responses, and (2) various coping of
Coping is a person's effort or way to DM post amputation patients. These
reduce psychological stress in the themes will the researchers re-
face of daily life problems that describe each sub-theme to gain an
require personal ability and support understanding of how these two
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themes are based on the experience


of the participant In this theme all participants
disclosed can researchers conclude
Post amputation responses with the occurrence of amputations
(Theme1). in the body of participants will affect
Experiencing barriers to activity the physical condition such as
(sub-theme 1.1) weakness of the body, physical
A participant below reveals the conditions will affect the activity or
impact of weakness is in his body, daily activity of a person. As a result,
this condition affects the function of the family as a person gets caught by
the participant's physical ability as a the participants gives aid in the
supporting activity. blessing. It is expected that patients
with amputation require help from
My body feels weak (P1) the surrounding environment in their
This weakness leads to spontaneous daily activities.
reactions and responses from the
immediate environment such as the Experiencing role change (sub-theme
family that always accompanies the 1.2)
participants. The presence of the According to participant experience,
family in the life of the participant is role change occurs in participants
very important in the participant who have amputation. Role changes
perform daily activities. This is such as job loss occur in the
expressed by the participants as following participants.
follows.
My son, told me not to work
If the path is supported by the wife anymore (P4)
(P3)
Work is an activity or routine that
The next participant revealed that gives impact to one's material. Loss
there is interruption in the activity, of work is also experienced by the
participants are more likely to following participants:
indulge with not quickly and in a
hurry due to the new physical cannot do anything, cannot work to
condition. Seeing from the impact make money for family(P1)
that occurs after post amputation
makes participants not free and free, After the incident finally after the
series I feel the consequences all
Not like before amputation or as because more or less cannot work
usual. (P3)

All activities are done rather slowly, Everyone has different reactions to
unlike before in amputation yes the threat of amputation. Behavior
rather quickly (P1) and emotional depend on the nature
of the amputation, the participant's
There are only activities, but attitude to the new condition. The
activities that are not heavy (P4) family is the person closest to the
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participants, so that the effect is that he was decided to do


immense to the participants' amputation. Participants' statements
emotional. Some participants who about their disbelief in the
used to be head of the family and amputation decision were expressed
also as breadwinners now experience by the following participants.
role disorder. This role disruption
occurs because of the impact caused First of all I do not agree, if this
to the new conditions experienced. disease can be treated normally (P1)

Yes, just stay at home (P1). Oh God my God, if can avoid is


very hurt (P2).
Participants in the study also
revealed that role change was also The participant response when it was
identified in family function decided to do an amputation showed
changes, which should be the most a shocked reaction. This statement is
dominant income earner in the disclosed by the following
family now changing into other participants:
family members such as wives who
make a living for the family. This is The first time the amputation was
expressed by the following decided, I was surprised (P1).
participants.
Bargaining has been described by the
My wife makes a cake order for insertion as a form of distrust.
catering (P3).
The participant who expressed his
In this theme participants experience disbelief attempted to clarify what
a change in the role of both the loss was indicated by a bargaining
of occupation and role disorder as a reaction through a sense of regret.
functional unit structure within the Participants in the diagnosis of
family. Participants mostly stopped amputation will experience regret.
completely their work routines The participant's statement of
because of conditions that were not remorse is expressed by the
possible to move, some participants following participants:
also switched roles from previous
roles in the household. If can this disease just treated
casually (P1).
Experiencing the grieving process
(sub-theme 1.3) Sense of regret is also experienced
The grieving response is a response by the following participants as a
indicated by the participant who has consequence of the amputation
been amputated. Participants in this decision that has been lived.
study showed reactions in the form
of disbelief he will be amputated, Well, it turns out the remaining two
surprise, bargaining, sadness, and just the rest of my finger(P2).
accept. Participants in this study
showed the attitude of not believing Signs and symptoms of depression
are described by participants as a
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form of protest against the


occurrence of amputation. If it has rotted, just cut already
Participants in this study showed sad (P3).
behavior that causes depression
when it is amputated. The sadness On this theme all participants
faced by participants in dealing with disclose can researchers conclude
the problem as one form of grieving that in the grieving process there are
response to the loss of limbs it has. phases to be passed. Through this
Participants who experienced an stage then formed the acceptance
amputation showed feelings of worry participants condition that have
about the condition after it because it experienced.
was not able to work again and
impact on his life. The participant's Various coping patients DM post
statements about her feelings of amputation (Theme2).
worry about her illness are expressed Participants who experience
by the following participants. amputation is a new chapter in his
life, the various stages through which
I'm afraid, this fate of mine (P1). he can accept his new condition. In
Well, I keep also my mind this so as the stage there is a process or way
not tired, which can cause blood that is done to solve the problem.
sugar to rise (P2). Various coping patients like more
worship, accept the situation, strong
Almost all participants express their motivation and seek social support.
sadness, they think the impact that The following is the researcher's
will definitely be very influential that description of the sub themes found
is mainly on their role in the family. in this theme.
Participants' statements about deep
feelings of sadness toward the More worship (sub-theme 2.1)
amputation decision are expressed by Some of the following participants
the following participants. express a much prayer response to
God over what happened to him.
Feeling sad there is also, gloomy at Conducting worship is demonstrated
home (P1). by behaviors such as the time to pray
more, seeking clues about the truth
Yes I am so sad, even time i cry and drawing closer to God becoming
(P2). more intensive than before their
amputation. This is expressed by the
In addition to reject the amputation participants through the following
decision, another response that the statement:
participant who was declared by
amputation was responding by One of them by drawing closer to
accepting the reality. Participants God my confidence more and more
express acceptance of the state of day (P1).
amputation through the following
expression. Just pray for the best(P2).
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Some participants also express their friends, yesterday at the hospital


submissive attitude to God, treated many who come for visit, he
indicating acceptance of the new wish better than now (P2) .
condition he experienced as a
consequence of God. Participants When the amputation conditions, the
express feelings of resignation about family tried adapt in large changes
the state of amputation. due to change in body condition in
one these families. The attention
Resigned to accept the given by the family to the
circumstances, maybe this has participants is a form of
become the destiny of god (P1). encouragement in facing their new
But I just accept the fact (P2). condition. This is expressed by
participants through the following
Gratefulness is also expressed by a expression:
participant below. Gratitude is
encouraged because of the remaining Hope God always protects you,
organs that survived the amputation, said you still given a chance by
this makes gratitude. Allah (P4).

"Ehmm, how did you feel? Feeling Receiving attention is also obtained
good already, I has seen my friend from the following participants as a
his legs already gone, thank God I given expression. Sympathetic form
still have 2 finger (P1). new condition that happened. The
sympathetic reception of others is
A participant expresses his one part in order to accept his new
gratefulness to God for his new state.
condition, because the participants
believe this is the way of God to I do not worry, he said, maybe
make the problem solved. because of my condition like this
they are also sorry (P1).
"I am even thankful to God ..." (P3).
Strong motivation (sub-theme 2.3)
Everyone always uses coping, either
Accept the circumstances (sub-theme adaptive or maladaptive to be able to
2.2) adapt. The motivation to recover and
The various stages of the process that motivation to return to normal
participants go through to the stage conditions is some form of
of acceptance of new conditions is motivation revealed by some of the
not easy. Gaining a lot of support and following participants.
receiving sympathy from others is
one form of the process of receiving Disease had medicine hope soon
to face new conditions. This is recover, yes until now (P2).
expressed by the participants through
the following statement: Participants have the ability to adapt
to new circumstances, showing a
When at the office, encouraged good response by expressing realistic
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expectations of their circumstances expressed by participants through the


with expectations of return to normal following expression.
conditions. This is expressed by the
participants through the following This stick was given yesterday by
statement. the result of fundraising from my
family, my family is kind to
I still show that I am capable like me(P1).
most people (P1)
We already spend money about
Expectations expressed by the million, outside of personal(P2).
participants above is one of the ways
of solving the problems faced related So my fee at mulya sari hospital is
to the process of receiving the new almost "20 million is borne by all
condition. companies (P3).
So said my son-in-law all of them, I
Seeking social support (sub-theme do not think about the cost, which I
2.4) think only health (P4).
Support as a form of coping received
by participants. Material support and Social support received is one form
support information is identified of environmental response around
within this sub-theme. Here are some the sense of want to help to
related social support statements participants who underwent new
received. conditions. The problems faced by
participants when starting new life
Brothers and sisters, they says "bro conditions create external responses
get some other skill" (P1). that can help in the coping process
that will do.
In addition to the need to feel secure,
patients with amputees identify the 4. Discussion
need for information as a high Participants who experience the state
priority. The need for what step of amputation will feel the impacts in
process will be lived in the future at life. The impact is felt directly by
that time. They also need to know participants such as experiencing
how the process going forward. This obstacles in the activity, changing the
is expressed by participants through role, and experience the process of
the following expression: grieving. Almost all participants in
this study had a similar experience of
Spirit and ask to friends (P2). perceived physical complaints of
inability to indulge independently,
In addition to moral support, partipan due to changes in new physical
in this study revealed that there are conditions experienced. Amputation
parties who provide assistance in the affects men and women of all ages,
form of material or cost. Participants classes, races and religions. The
revealed that there were families reactions / responses of each
with good attention. This is participant are unique and diverse.
This finding is similar to that found
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by Sebaee & Mohamed (2011) that hood.


amputation poses challenges at
various levels such as impact on the This is the impact of the new
physical aspect. conditions it receives, patients with
amputation have limitations. The
Findings of disturbance in the limitations experienced will have an
activity also identified in this study impact in the work and activities in
indicated by the inability of everyday life. The role disorder is
participants in daily activities should the inability of a person to carry out
be assisted with others such as close his duties in full, and be replaced by
family of children, husband / wife others. The family is part of society
and even close relatives. The phrase and plays a role in the life of
activity is done rather slowly also someone who lives his new life
identified this study, the activities especially with the condition of
performed are not as fast and the amputation. Family empowerment
previous one before amputation. affects the coping of participants
These findings are supported by who are experiencing problems, it is
research conducted by Helena found in Iwan Adrian (2013) study
Burger (2012) found 36 subject, that family empowerment
those who have amputated have significantly influence family coping
impaired body functions and barriers in families with DM patients. The
in the activity. A similar study opinion is in line with the results of
conducted by Nur Widayati (2015) in research conducted by Achmad
his research resulted in several Khalif (2014) found the theme of one
obstacles and coping strategies in of the necessary support including
managing self-care for diabetics, family support. The results of this
namely physical barriers, study are in line with existing
psychological barriers, and research that family support is
knowledge barriers. necessary for participants who
undergo activities with all the
Subsequent findings in this study limitations.
found a role change in participants
who experienced amputation. These Further findings of the grieving
role changes occur in job loss and process were also found in this study.
role disorder. Participants in the There was a diversity of responses
study revealed that the participants when participants were diagnosed
were silent at home and did not work with amputation. The attitude shown
anymore. This suggests that by participants who mourn the
amputation conditions will have an diagnosis of amputation is to deny,
impact on the loss of primary surprise, bargain, sadness, and
employment as income for the accept.
family. The role change in the family
function, as it should be the father as Rejection will be done amputation
the most dominant family backbone process almost experienced by all
will be assisted by the wife in participants in this research. This
seeking income for the family's live rejection process is in the form of
9

disapproval of the action to be express their anger, then he will


performed. When participants know advance in the bargaining phase, the
that they are suffering from a reaction of feelings of guilt and
disease, they will feel a change and a anger. It is a sensitive phase so easily
loss. The findings of Kozier, Erb, offended. It is a coping participant to
Berman and Snyder (2011) found cover up the feelings of
that loss is an actual and potential disappointment and is an anxiety
situation in which something of manifestation of the diagnosis of the
value is worth changing, no longer illness experienced.
present or disappearing.
The study also found a deep sadness
For most people DM disease is a associated with the condition
very worrying disease and people are experienced. Non-verbal behavior is
aware of the impact that may arise. shown by participants such as head
Many people die due to bowed, moody faces and even
complications. According to Kubler crying. Deep sadness is generally not
Ross (1969) in Suliswati et al. (2005) only felt in patients with amputation
the first reaction of the losing caused by diabetes mellitus. Anxiety
participants was shocking, will afflict almost everyone at any
unbelieving, feeling stricken and given time in his or her life which is
denying. a normal reaction to a life-
threatening or threatening situation.
The existence of a bargaining
process by participants diagnosed to The study's findings by Vladimira
be amputated was first identified in Fejfarova et al. (2014) in most
the response refused in this study. diabetes mellitus patients, especially
The emergence of denying feelings those with DF (Diabetic foot) with
expressed by participants in peroses the risk of amputation having
is caused due to illness suffered uncontrolled stress well. The
today. Participants are wondering findings are in accordance with the
whether they are still able to work results of this study that participants
and work in the current state of expressed anxiety.
illness. It is an effort performed by Against the conditions experienced.
participants as an expression in The anxiety that participants
showing perasaaanya. The process of experience arises as a result of the
bargaining is in accordance with the consequences of amputation. A study
opinion suliswati et al. (2005), if the by Hanan (2011) found that patients
participant has been able to express with an amputated limb will face
his anger, then he will advance at the stress related to their new condition.
bargaining stage. Seek to bargain to
avoid losing, expressing guilt or fear The number of influences or impacts
problems. if no amputation takes place allows
participants to be shocked by the
The results of this study are in condition if not amputated. The
accordance with the findings that if findings of Daniella Margalit, Eyal
participants have been able to Heled, Corinne Barger (2013) found
10

that those who reject the realistic expectations, and seeking


consequences of amputation will social support.
experience severity. This makes
amputation an act that participants The second finding in this research is
must accept as a way to avoid the identified spiritual activity that
severity of their condition. the participants behaved in
performing the worship during the
Some of the results of research that sick by praying a lot to God.
related with receive response shows Participants believe with a lot of
the same results found by the prayer will help the recovery
researcher is when participants feel process. Participants at the time of
surprised, anxious and sad. The illness become less able to care for
existence of this similarity because is themselves and rely on others in their
a natural response that occurs during care and support. Spiritual distress
the process of changes in health can develop in line with someone
conditions that occur in participants. searching for meaning what
Acceptance is the final phase of the happened, which may lead to a
loss process, in which one develops a person feeling alone and isolated
sense of peace, accepts destiny. The from others. Research findings by
deep feelings of sadness and physical Mattias Anderson (2006) that a lot of
pain experienced by participants may worship is one of the adaptive coping
be lost in this phase. Kuber-Ross response in the form approach to
describes this fifth phase as the end God.
of the struggle in the process of loss.
Clients with a spiritual belief can feel
The results of this study have that their beliefs are challenged by
similarities with the theory of Kubler their health situation. The findings of
Ross, at the acceptance stage Kozier et al., 2011 in its findings find
participants realize that life must the fulfillment of spirituality needs to
continue and they must seek new improve coping and expand the vital
meaning from the current state. resources available to clients. This is
Participants have accepted the reality also supported by the results of
of their loss. Participants at this stage research Abernety (2000) revealed
begin to draw up a plan that will be that the spiritual approach can reduce
done in addressing the condition. stress and depression significantly.
This is due to the emergence of This will improve the immune
coping strategies in participants who response through the release of stress
are diagnosed with the disease. hormones. A person's spiritual
Participants involve various attempts strength can be an important factor in
to regulate their emotions and adjust the face of the changes caused by
to the effects of the situation. chronic panyakit. Success in dealing
with changes caused by chronic
The next theme in this study is the illness can strengthen a person in a
various copies found in this study spiritual way.
including: more worshiping,
accepting circumstances, having The findings of Perry & Potter
11

(2005) in his research find those who study that social attachment and long
are spiritually strong will reshape lasting relationships are accepted as
their identity and live in their an emotional aspect of life. This can
potential. The research is supported stop the stress effect, help people
by a study by Sudarma (2008) that is face stressful events and the
for a person who is religious, healthy possibility of reducing stress due to
or sick is believed to be from God's health conditions that apprehensive.
behavior to His servant and ill is due
to God's destiny and only God who The study concludes that gaining
has healing ability. The beliefs of the support and receiving sympathy from
participants, can increase the spirit of others will influence the acceptance
a more optimistic life of new conditions to be addressed.
Among the results of this study with
Spiritual care encompasses the reach previous research, not all have
of a person in the touch of the Divine conformity. There are some
through sensing His presence, participants who express their
praying, reading spiritual reading, experience about the lack of concern
reciting. from the environment around their
living or work environment. The
There is a correspondence between environment acts as if it does not
the results of this study with previous know anything, does not pay
research that participant in this study attention, even some are patronizing.
reveals his experience in the aspect
of spirituality when sick or treated is Participants in the study also
a lot of praying. Prayer is believed to expressed their hope to return as
heal the sick and pave the way for usual. This is a wish to heal and
those who are in a state of return to normal. The results of this
helplessness and can be a source of study showed the ability to adapt by
comfort and strength for believers. participants who diagnosed
amputation as a coping done.
Subsequent findings in this research
that participant get a lot of support Roy (1984) sees people as adaptive
coming from family, peers, and the systems that function as wholeness
surrounding community. Participant through the interdependence of their
support in the form of motivation parts. The system consists of input,
spirit, prayer, and feel sorry to be process control and output. Inputs
identified in this study. Almost are stimuli from external and internal
everyone cannot solve their own environments, including information
problems, but they need the help of from cognitive and regulatory
others. Based on the results of this mechanisms. The process control
study that support was important biological and pathological
mediator in solving a person's mechanism of coping, as well
problem. cognitive and regulatory response.
Output is an adaptive and ineffective
The relationship of good and long- behavior response of a person.
standing attachment Pratiwi's (2009)
12

Roy explains that the response that support is needed in every treatment
leads to a decrease in body integrity performed on sick participants. The
will lead to a need and cause the results of this study identify the form
participants to respond through of family support provided to
certain attempts or behaviors. Such patients in the form of information
efforts are known as participants' support and support costs. Family is
self-defense or coping mechanisms. small social systems covering a
Every human being is always trying series of interdependent and
to cope with changes in health status influenced parts of both internal and
and nurses must respond to help external structures. A person's
humans adapt to these changes. As support can prevent the development
human adaptive systems are depicted of problems due to the pressures
in characteristic terms, so humans faced. A person with high support
are seen as a unity that is will be more successful in dealing
interconnected between units as a with and overcoming his problems
whole or a unit for multiple than those who do not have support.
purposes.
Support received from both family
A study conducted by Hanan A EL and community was identified in this
Sebae & Labiba A Mohamed (2011) study. Contributions on family
found that patients with an support in the Lestari report (2011)
amputated extremity were newly shows the support of most
exposed to different stresses related respondents in good category
to social life, work situations, and (40.0%), followed by bad category
body image changes. (32.0%) and last category (14.0%).
Family support consists of
The results of this study indicate that informational support, instrumental
there is a correspondence between support, assessment support and
the participants' experience in the emotional support. The highest
process of adjustment or adaptation family support is emotional support
to the disease suffered with relevant (69.14%), whereas the least
research results. Participants informational support (59.00%).
diagnosed with amputees have great
expectations in everything, such as The importance of support required
strong motivations such as longevity, by participants in this study is one of
recovery from illness and staying the coping strategies that participants
healthy, and hope for medication that receive as an effort to lead to the
can help the healing process. adaptation process. This is in line
Participants show adaptive behavior with the research by Chanelle Grech,
by trying to find. Roberta Farrugia (2014) identifies
that there are various changes in
Subsequent findings were found in reactions that occur after the loss of
participants in the form of seeking limbs found the importance of family
support. Every participant who is members and cyclical support as an
hospitalized has limitations in important part of the adaptation of
fulfilling all his needs. Family participants to their new condition.
13

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