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To cite this Article Mol, Annemarie(1998)'Lived reality and the multiplicity of norms: a critical tribute to George Canguilhem',Economy
and Society,27:2,274 284
To link to this Article: DOI: 10.1080/03085149800000020
URL: http://dx.doi.org/10.1080/03085149800000020
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Lived reality and the
multiplicity of norms: a
critical tribute to George
Canguilhem
Annemarie Mol
Abstract
Canguilhem considered the li\ed realitj of a disease that makes a person visit a doctor
with clinical complaints as more important than the de\iance that may be detected in
the laboratory. H e also insisted that doing medicine is a technique mobilized to
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improve life rather than an assemblage of neutral scientific facts. But these two ways
of insisting on lived reality have different consequences. In line with the second, I
present various ways in which clinical normality and laboratory normality are handled
in current day medical practice. I consider where that leaves the first approach of
setting standards. T h e multiplicity of normalities detected raises the question of how
the various medical normnli~iesrelate. For if they hang together coherentll, medicine,
by normalizing, might actively help to order the society of which it forms a part. But
what if the various medical normalities contradict each other and inform different
orders?
neutral terms and it requires qualification. It is not simply a fact, says Canguil-
hem, but also a value. It is not so much a subjective value, set by an thinking
mind, as a vital value that comes out of the relation between an organism and its
surroundings.
Canguilhem's argument for the primacy of the clinic over the lab comes in
two steps. The first is about the specificity of organisms. Their ordering is
marked by their active ability to set norms. This is their lived reality rather than
something predictable from the laws of dead nature. Rut there is a second step
as well. Canguilhem also inserted the very attempt to know; to ask questions
about reality, inside life. He took knowing in order to intervene to be one of the
activities of the living. Canguilhem's insistence on liaed realitjt therefore not only
made him create thresholds in the Comtean pyramid (between physical and
chemical laws and biological norms). He also pointed out loops in the order of
the sciences. A physicist who knows everything about the laws of nature, said
Canguilhem, is prone to get ill at some point, and to die. Or, another way to
frame this, a laboratory may now claim to be in a better position than a doctor
in a consulting room to know whether a patient is healthy or ill. But even in those
instances where this claim is justified, laboratory knowledge is not basic. For
laboratories only ever came into being because at some point in history they were
built. And they were built in an attempt to meet the needs of those who came to
see their doctor with complaints.
These two steps in Canguilhem's argument for the appreciation of lived
reality over positive facts each have a different consequence. Canguilhem's
insistence on the specificity of organisms is normative: the complaints patients
come to see their doctor with are more important than laboratory numbers, and
276 Annemarie M o l
complaints, therefore, are what medicine should be about. In this same norma-
tive vein the lab should be accorded its proper place, that is a place which allows
it to support a well-directed clinical practice. However, treating knowledge as a
part of lived reality is different. It does not state a norm, but suggests a ques-
tion. This is the question: what is the place accorded to the laboratory in the
lived reality of present-day medicine? How do the numbers of technologically
supported diagnostic devices and the complaints uttered in the clinical encounter
between patient and physician currently relate?
In what follows I will not judge present-day medical practice against Can-
guilhem's clinical standard, but take the second route of asking the question how
clinic and lab relate in medical practice. Not in order to give an exhaustive over-
view, but to indicate the direction in which we might look for the answer. Or,
rather, the answers, in the plural. For this is what I would like us to take seri-
ously: in present-day medicine disease is not diagnosed in a single way. There is,
instead, a whole array of well-established relations between 'the clinic' and 'the
lab'.
The current health-care organization of most Western countries is one that
privileges clinical diagnosis. For most diseases, entrance to the health-care
system depends on the initiative of patients. People who have no complaints are
screened for deviance in only a small number of well-delineated cases. Formerly
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the most important of these was tuberculosis, now it is cervical carcinoma. There
are also screening programmes for new-born babies. But for most of the hun-
dreds of diseases that may plague a person medical detection and diagnosis
depend on the initiative of lay people in seeking out medical help.
Once people are in a consulting room, however, the number of diseases diag-
nosed in a clinical way is a lot smaller. A variety of patterns emerges. The clini-
cal findings point to a single diagnosis, but the lab is called in for a confirmation.
(It is likely this patient has diabetes, please check blood sugar.) Or: the clinical
findings allow for several possible diagnoses and the lab is called in to decide
between them. (The patient has not had a period so she may be pregnant, but it
is also possible she is just stressed, please do a pregnancy test.) Or: the clinical
findings are not conclusive and the lab must help to increase or exclude possi-
bilities. (Patient is dizzy and endlessly tired: please check haemoglobin level, for
this might be anaemia, but also do a sedimentation test, for there may be an infec-
tion.) Or: the clinical findings give no clue about what the lab discovers when it
is used for a routine test. (Some general practitioners routinely measure the
blood pressure of all elderly patients whatever the complaints they present. A
high blood pressure may thus be found in someone who came in with a sore back
or a sore throat.)
T h e next important step in a patient's itinerary, then, is the decision about
treatment. This need not parallel the diagnosis. For example, someone may have
bad arteries, but when operating on this person involves a high risk of increas-
ing the problems he or she faces in daily life, while there is only a small chance
of actually improving this life, no operation follows. T h e reason for operating to
treat atherosclerosis reflects the complaints patients present, not the small lumen
Lived reality and the multiplicity o f norms 277
sugar is getting too high or too low. Others live in a laboratory mode: they say
that they 'don't trust their feelings' and act upon what they find when they
measure themselves.
And then there are mixtures of these strategies. After measuring blood-sugar
levels regularly for a number of months and keeping a diary of these measure-
ments, some people say that they acquire the ability to feel what they are going
to measure. Others tell stories about persistent mzsmatches between feeling and
measurement: they measure their blood-sugar levels when they do not feel well,
but then may have a blood sugar of 7 mmol/l, which is within the normal range.
The story is that they may have felt bad, not because they had an 'abnormal'
blood-sugar level there and then, but because they had just dropped from, say,
15 mmol/l. T h e measuring thus stops them from eating until they feel well
again, but are 'way too high in their sugars'. And then there are people who say
that they feel better after they have taken the measurements since the numbers
reassure them.
In The Normal and the Pathological Canguilhem defended the lived reality of
clinical normality over the norms set in the laboratory. That was the first, nor-
mative line of his argument. He also argued that knowledge is not only about the
world, but in the world as well. Engaging in medicine is a human activity, it is
part of our lived reality. In line with that latter argument, I have presented some
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examples of the ways in which the relation between clinical normality and
laboratory normality is lived in present-day medicine. What we end up with,
then, is an array of lived medical realities but also a new question. This is the
question: given that they relate in many different ways, how should we think
about the normative plea that clinical normality should be taken as more impor-
tant than laboratory normality?
I do not know the answer to this question. The primary importance of the
clinic might be mobilized as a counterfactual norm by which to judge the various
configurations just described. But maybe the thickness of actual practice, in all
its intricacies and complexity, resists the gestures of setting normative standards
from the outside because such gestures are simply too large. The specificities I
have talked about might indicate that norms are necessarily local. But then again,
another possibility, maybe adhering to clinical normality is not a norm from
outside, and we should not treat it in that way. Perhaps, instead, it is already
there, in the lived reality of medical practice, informing the very relations
between clinic and lab I have just described.
I do not know the answer but wish to stress here that the question is gener-
ated by the juxtaposition of the two different ways in which Canguilhem stressed
the importance of 'lived reality' - by favouring the clinic over the lab and medi-
cine's technicity over its fact finding. Somehow Canguilhem was able to avoid
this juxtaposition. He never explored what his judgements might mean in prac-
tice. But today this seems an urgent question. Medical ethicists keep on articu-
lating and legitimating norms. Anthropologists and sociologists give more and
more detailed descriptions of hospital life, the surgeries of general practitioners,
and even of lab~ratories.~ But where does it all go? How might norms be applied
Lzued realzty and the m u l ~ ~ p l z cof
z t ~norms 279
to a reality in which they already figure? What becomes of norms if we are serious
in saying that they are part of lived reality already? And what should we make of
the dazzling plurality of configurations, of the mixtures and interferences of
multiple normalities?
One of the most intriguing essays in The Normal and the Pathological is called
'From the social to the vital'. It was added to the second edition of 1966, and in
this essay Canguilhem compares the norms of life with those of society. In both
instances 'norm' is a term used to mark the difference between order and chaos.
Chaos is normlessness, while there are as many orders as there are norms. Like
an organism, Canguilhem explains, a society may be ordered by norms. There
is, however, a difference. While for an organism the norms are given with its life
and the surroundings in which it lives, for society this is different. Social norms
are actively set. They merely rnzmzc organic norms. They are created and they
may be altered. This is the point of the analysis: to show that social norms may
be altered. Or, there is a second, to show the difference between the way norms
order a society and the way in which this is done by state laws. If laws are not
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with. Implied in this is the argument that the norms of medicine are, or should
be, those given with the life of an organism in its surroundings. Not those set
for society.
But here appears, again, the tension that I noted earlier. Canguilhem insists
on the importance of the lived reality of ab-normality but also, simultaneously,
on understanding medicine as a part of life. But where does the latter argument
lead now? It suggests that we should stop wondering about the grounds of medi-
cine's definitions of normality and the question as to whether these are justified
and instead focus on their effects. In doing so it becomes apparent that, even if
medical norms were those of the organism, given along with its vitality, actively
trying to uphold them through medical care would, from the point of view of
the social, be a way of setting norms. A society with a medicine striving after the
normality of its people differs from one without such a medical effort - which is
what Michel Foucault has shown us in so many ways6 And thus it is his work
that turned the term normalization into a word for the way in which modern
medicine helps to govern the society of which it forms a crucial part: by order-
ing; by holding up normality as a norm, a standard, an ideal for each and every-
body (every body) to attain.
Once the lived reality of acquiring and handling knowledge is taken seriously,
the social consequences of operative medical norms become more important
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than whether these norms are given with the organism or actively set by one
social class or another. Doing medicine may well be a specific way to mediate
between vital norms and their social consequences. But what are these social
consequences? Does striving after normality indeed imply that the society comes
to mimic the organism? This, again, does not so much depend on where the norms
comefrom as on how they relate. Do the various normalities that inform medical
interventions cohere, do they hang together as a system, do they form a tightly
knitted whole?
Earlier we saw that there is not just a single way of establishing normality in
medicine, but there are many. So far, however, I have merely described this
variety without considering how the various normalities relate. In order to deal
with this question I will now look at a single example a little more closely. It is
the example of diabetes. Diabetes is marked by the body's inability to produce
its own insulin. This problem cannot be solved. There is no therapy available to
correct this condition. Thus the 'normalizing' norms in the life of a patient with
diabetes are not those that mark the distinction between the normal and the
pathological. Someone with diabetes does not strive after a normal insulin regu-
lation but has another aim: that of maintaining a normal blood-sugar level.
As I noted earlier, according to the textbook the normal human blood sugar
level lies between 3 mmol/l and 8 mmol/l.' Once diabetes has been diagnosed,
a good physician begins by trying to establish the complex, somewhat paradoxi-
cal, severe but non-neurotic relation of her patients to this norm.
Patients have to try to normalize their blood sugar: it must stay within this
normal range. If they let their blood sugar drop too low, they may fall into a coma.
If nobody gets them out of that, the ultimate risk is death. If one often suffers
Lived reality and the multiplicity o f norms 281
from such states of hypoglycaemia brain damage may occur. But if patients allow
their blood sugar to rise too high, they are prone to lots of complications in the
long run, including blindness, neuropathy (lack of sensation) and an early onset
of atherosclerosis. So patients have to try hard. But they also have to accept that
sometimes their blood sugar will drop too low or rise too high. If they do not
accept this they are bound to suffer from trying too hard and experiencing
repeated disappointments.
A normal blood-sugar level is thus a level that does not get either too low or
too high. It is maintained by adjusting one's diet, exercise and insulin injections.
It is maintained by monitoring one's own blood-sugar level with regular
measurements and acting accordingly. The proper way to execute all this, and
thus to relate to one's own normality, is by trying hard but not too hard. As a
normal person. Thus: what we have here is not a single norm, but at least two:
one for blood sugar, one for a person's attitude towards her own treatment. How
do these norms relate? They happen to be interdependent: a normal person is in
the best position to maintain normal blood-sugar levels. It is through such an
interdependence that norms may hang together and form coherent wholes.
However, this is not all there is to say about diabetes because the norms do
not always fit so nicely together. Take the situation of M r Hanssen, a 35-year-old
owner of a small enterprise. His special task in the enterprise is to do the market-
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ing and the contacts with the clients. This means that he regularly has to go and
see these clients and meet potential new clients. The enterprise is far too small
for it to be able to pay for a driver. This is no problem for M r Hanssen, for he
likes the driving. Since he lives in the Netherlands he is allowed to do so, even
though he was diagnosed as diabetic four years ago, for, after a few months with
adjustment problems, M r Hanssen has been able to regulate his blood-sugar
level. He takes measurements of his own blood-sugar levels five times a day one
day a week, and then whenever he feels odd. He shows these numbers to his
physician every few months. His physician praises him for the way he manages
to keep his blood sugar within the normal range, despite the irregularity of his
responsible work.
Now on a sad day in a busy period in March, Mr. Hanssen is stopped by a
policeman, who suspects him of being drunk. He is not drunk, his blood sugar
is too low. Since the latter is at least as risky as the former for both himself and
other people on the road, Mr Hanssen is temporarily forbidden to drive. First,
he has to be medically tested again. What to do? Here is the dilemma that M r
Hanssen faces. H e may set the blood-sugar level he is aiming for slightly higher.
So far, he has tried to stick to a good 6 mmol/l as a mean value. But, since this
has once caused him to drop to the 2 mmol/l that caused his driving problems,
he may decide to set his target somewhat higher - at 8 mmol/l, for instance.
Doing so would allow him to drive again. He could then keep his enterprise going
the way it does. But with 8 as a target, his values would be above 10 a lot more
often than they have been while 6 was his target. And that, he knows, is a long-
term risk. He would increase his chances, of, say, going blind at 50 or having a
fatal heart attack at 53. What to do?
282 Annemarie Mol
T h e coherence has vanished. While, earlier, the normal person and her
normal blood-sugar range fitted so beautifully, now there are two possible normal
values to strive after: 6 or 8. One of these is linked up with a higher risk of hypo-
glycaemia and the other with a higher risk of long-term complications. They
have a relation to Mr Hanssen as a person, too, but not to how normal he is, but
to what will become of him. For sticking to one norm would force M r Hanssen
to stop driving, which would mean he would have to change completely a
working life he both enjoys and which pays him (and those he works with) well;
while sticking to the other would allow him to continue to do his work but might
have major consequences for the kind of life he is likely to lead in twenty years'
time - if indeed by then he is still living.
M r Hanssen faces the question of what to do. Which complications to 'accept':
a small risk of brain damage or a larger one of blindness, neuropathy and/or
atherosclerosis? To prevent death due to a car accident he will be forbidden to
drive if he tends to have hypoglycaemias, but, if he avoids these so as to be able
to drive, he risks dying of an early heart attack before he is 50. So turning himself
into a normal person is not enough for M r Hanssen. Instead, he faces the ques-
tion of what kind of life he will lead: one without a job, or (if he can find it) one
with a calm indoor job, or one as the travelling marketing man of his own enter-
prise? Such questions do not have a single answer. There is not one normality at
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play here, rather there are two. The effects of going with one norm, a blood-
sugar level of 6 mmol/l, differ from those of going with the other norm, a blood-
sugar level of 8 mmol/l. Instead of hanging together these possibilities exclude
each other. They clash.
M r Hanssen cannot live up to both norms, for there is a divergence between
them. What happens with such divergences? In current medicine, or so it seems
to me, they are handled simultaneously in two very different ways. On the one
hand, there are instances where dilemmas such as these are treated as problems
to be solved, questions that require a proper answer. Clinical trials that must
help to judge the relative merits of various treatments are designed in order to
forge a choice between them. Thus they order the effects of such treatments on
a single scale. They put them in a hierarchy derived from a few physical par-
ameters and some variant of a quality of lzfe scale. They try to achieve singular-
ity and to set the best treatment as standard. On the other hand, however, there
is also a rather different move. This is to give up trying to solve practical dilem-
mas with the techniques available to the multi-disciplinary research team.
Instead of being ranged in a vertical hierarchy, the dilemmas are laid out side
by side on a horizontal line. In this way the various treatment possibilities are
turned into options.
In the situation of M r Hanssen this is what happened. His physician sat down
to talk with him. He told him that medicine is able to inform him about the likely
effects of setting 6 or rather 8 mmol/l as a norm for his blood-sugar level, but
cannot tell him what to do. It cannot decide what is best, cannot make the choice
for him. 'I don't know what you should do, M r Hanssen, we can of course talk
about it, but when it comes to it, it is up to you.'
Liaed reality and the multiplzcit~)~
o f norms 283
adding u p may not, indeed, be a good metaphor at all. But to mobilize a term
like 'complexity' is not to reach a satisfying conclusion. I t only marks a new
beginning. I t requires us to investigate and reflect upon societ11all over again. O r
does it? Is this what it does? For, who knows, it may also be that 'society' is over.
N o t because there are only individuals and families left, but rather because the
fleshy, financial, metal and fluid matters that constitute it, form tense, multivo-
cal, non-organic patterns for which the words are still to be invented.
Utrecht
Notes
1 They are also the product of the work of many. I would like especially to thank here
Peter van Lieshout with whom I wrote (in Dutch) about Canguilhem and social theory
more than ten years ago, Dick Willems for our discussions about medical technology,
several anonymous patients with diabetes who were willing to talk about their lives and
Claar Parlevliet for conducting interviews with them, Harold deValk and Willem Erkelens
for their hospitality and information, and John Law for his encouragement and for
correcting my English.
2 The intricacies of the relation between the object of diagnosis and the object of
treatment form a topic for discussion in medical anthropology and sociolog>.For this and
the example of atherosclerosis of the leg vessels, see Mol and Elsman (1996).
3 This co-consitution in tension of norms for anaemia is more extensi~elydescribed in
Mol and Berg (1994).
4 The intertwining between a patient's body and the technology used to diagnose and
treat is analysed for the case of asthma by nick Willems, see, for example, U'illems (1992).
284 Annemarie Mol
5 Situating him in French intellectual history, I would argue that Bruno Latour,
however much he has attacked the normative first line of Canguilhem's work, has simul-
tanuously drawn upon the second anthropological line of it by studying science as a
human activity; see especially Latour (1984).
6 Canguilhem was Foucault's thesis supervisor during the time he must have been
working on 'From the social to the vital'. This makes it is hard to tell which of them
invented the term normalization. Their shared dislike of the obsession of historians of
ideas with inventors and matters of authorship makes it easy to care more about what is
written than about who disowned whom. For Foucault's use of 'normalization', see, for
example, Foucault (1975).
7 That is, the precise numbers that indicate the 'normal range' differ slightly from one
source to another. These numbers come from a widely used British textbook (Souhami
and Moxam 1990).
8 For the term modes of ordering and a far more extensive exploration of what it may
mean to talk about 'society', see Law (1994).
References