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Focus on Autism and Other

Developmental Disabilities
Volume 24 Number 2
June 2009 77-88
Transition From School to Adulthood © 2009 Hammill Institute on
Disabilities

for Youth With Autism Spectrum Disorders 10.1177/1088357608329827


http://focus.sagepub.com
hosted at
http://online.sagepub.com
Review and Recommendations
Dawn R. Hendricks
Paul Wehman
Virginia Commonwealth University, Richmond

The transition from school services to adulthood can be particularly difficult for many adolescents with autism spectrum
disorders (ASD). Although some individuals with ASD are able to successfully transition, most are faced with significant
obstacles in multiple areas as they attempt to negotiate their way into college, work, community participation, and indepen-
dent living. This article contains a review of research related to the transition from school to adulthood for youth with ASD
in the areas of education, employment, community living, and community integration. These key areas of the transition
process are crucial for success in adulthood. A summary of principal conclusions drawn from the current literature and
suggestions for future research are provided.

Keywords:   postschool transition; autism spectrum disorders; community integration

L eaving high school can be an exciting time for many


individuals as they transition to new challenges such
as work, community college, university, trade school, or
121,324 adolescents between the ages of 15 and 19 have
an ASD. It is believed to be a permanent developmental
disorder that will continue into adulthood, creating life-
the armed services. However, the transition from school long challenges for the individual (Gilchrist et al., 2001;
services to adulthood can be a particularly difficult time Volkmar, Stier, & Cohen, 1985). As Seltzer, Shattuck,
for many adolescents with significant disabilities (deFur Abbeduto, and Greenberg (2004) indicated in their
& Patton, 1999; Schall & Wehman, 2008; Sitlington & review, despite reports highlighting improvements in core
Clark, 2006). For young people with autism spectrum behavioral characteristics in adolescence and adulthood,
disorders (ASD), this is especially true inasmuch as the functioning seldom leads to normal ability and significant
postsecondary and employment opportunities for those deficits continue for most.
students have traditionally been very limited (O’Brien & With appropriate training and education, individuals
Daggett, 2006; Schall, Cortijo-Doval, Targett, & Wehman, with ASD can integrate meaningfully into the community
2006). Transition typically includes completing school, (Schall et al., 2006) and work competitively (Gerhardt &
gaining employment, participating in postsecondary edu- Holmes, 2005; Hurlbutt & Chalmers, 2002, 2004). It
cation, contributing to a household, participating in the becomes essential that professionals carefully plan for the
community, and experiencing satisfactory personal and transition to adulthood to ensure success. Given the het-
social relationships (Wehman, 2006). Although transition erogeneity found in the disorder, adolescents and young
planning and postschool outcomes have received growing adults will require a wide range of services and supports
attention for many students with disabilities in the educa- that are individualized and need driven.
tional research (e.g., Sitlington & Clark, 2006), the expanded A review of research related to the transition from
interest in services for youth with ASD results in a critical school to adulthood for youth with ASD is provided to
need to assess what is known currently about their transi- give insights into the transition process and help identify
tion to adulthood.
ASD refers to a continuum of disorders that range
Authors’ Note: Please address correspondence to Dawn R. Hendricks,
from severe to mild (American Psychiatric Association, Virginia Commonwealth University, Department of Special Education
1994; Neisworth & Wolfe, 2005). Fombonne (2003) esti- and Disability Policy, 1314 W. Main Street, Richmond, VA 23284
mated that in the United States between 55,602 and (e-mail: drhendricks@vcu.edu).

77
78   Focus on Autism and Other Developmental Disabilities

needed service delivery and intervention. Transition is transition planning, and educational services influence
defined as to include education, employment, commu- postschool outcomes.
nity living, and community integration. These areas are
crucial for success in adulthood for young people with Student achievement. Little research has focused on
disabilities, including those with ASD. academic achievement of students with ASD. According
to the U.S. Department of Education (USDOE, 2008),
rates for graduating with a diploma are low. In the year
Method 2005–2006, 38% of students with ASD graduated with a
standard diploma or higher, 18% received a certificate,
Publications pertaining to transition from school to
6% reached maximum age, and another 6% dropped out
adulthood were obtained by conducting electronic and
of school altogether. Adolescents with autism do not fare
ancestral searches for the years 1996 to 2008, inclusive.
nearly as well in academic achievement as their typically
An electronic database search of ERIC and PsycINFO
developing peers (Thoma & Sale, 2005; Wagner, Marder
was conducted using the following terms: autism, autis-
et al., 2003). Although those educated in the general
tic, pervasive developmental disorder, Asperger syn-
education classroom are reported by teachers as having
drome (AS), youth, adolescent, adolescence, high school,
high grades and keeping up with academics, on average
transition, post secondary, outcome, school, home, liv-
they are more than 4 years behind grade level in reading
ing, work, employment, and community. Hand searches
and nearly 5 years behind in mathematics (Myles &
were conducted on journals that publish research on
Simpson, 1998). Wagner, Newman, Cameto, and Levine
autism (i.e., Autism, Focus on Autism and Other
(2006) evaluated academic achievement and functional
Developmental Disabilities, Journal of Autism and
performance for students with disabilities ages 16 to 18.
Developmental Disorders, Education and Training in
Subtests of the Woodcock-Johnson III (Woodcock, McGrew,
Developmental Disabilities, and Journal for the
& Mather, 2001) were used to assess competency in lan-
Association of Behavior Analysis). Because of the con-
guage arts, mathematics, science, and social studies.
tinuity across autistic disorders, this review addresses
Average assessment scores for adolescents with autism
both the narrowly defined disorder of autism and the
were three standard deviations below the mean of their
broader range of ASD, including pervasive developmental
peers in the general population. Scores were consistently
­disorder–not otherwise specified and AS.
lower in the four assessed areas for students with autism
Articles selected for review met several inclusion criteria.
than all other disability categories with the exception of
First, they had to have been published in a peer-reviewed
deaf-blindness, multiple disabilities, and intellectual dis-
journal. Second, at least 50% of the participants in the study
abilities. The Scales of Independent Behavior–Revised
had to be identified as having an ASD. Third, at least 50% of
(Bruininks, Woodcock, Weatherman, & Hill, 1996) was
the participants had to be 13 years of age or older. For studies
given to students for whom assessment of academic skills
evaluating specific intervention strategies, an additional crite-
was inappropriate. Only 16% scored equal to or above the
rion was utilized. The researchers had to employ a design that
mean and 65% scored more than six standard deviations
showed a functional relation between the independent vari-
below the mean of their peers. This indicated most had
able and dependent variable.
difficulty performing age-appropriate functional skills.

Results Transition planning. As adolescents with ASD prepare


for life after school, transition planning is needed to dic-
tate goals, courses of study, services, and supports.
Preparing for Transition in School
Effective plans require active involvement and participa-
The goals of education for individuals with ASD are the tion from a multidisciplinary team (National Council on
same as the goals for any other student, that is, to provide Disability, 2000). In a study commissioned by the Office
opportunities to acquire skills that increase personal inde- for Special Education Programs of the USDOE, Cameto,
pendence and social responsibility (Kavale & Forness, Levine, and Wagner (2004) examined transition planning
1999). For those with ASD this means acquisition of skills for students with disabilities. The findings suggested that
in academics, socialization, language and communication, nearly 85% of secondary students with autism had a tran-
self-management, self-determination, home living, sition plan and 71% had received instruction on skills
employment, and community. Students must demonstrate needed for effective planning. Team member participa-
competence in such skills by fluidly applying knowledge tion varied considerably. Predictably, special education
in a variety of life environments. Student achievement, teachers were the most common team member, with 96%
Hendricks, Wehman / Transition From School to Adulthood   79  

of meetings attended by a special educator. On a positive related services to address a wide range of educational
note, parents and guardians were next, with more than issues. Speech-language therapy needed to ameliorate
90% of meetings attended by at least one caretaker. language and social deficits is the most commonly
Active participation by other team members was signifi- reported, with 75% receiving such services. Occupational
cantly lower. In all, 58% of meetings were attended by therapy designed to improve activities of daily living and
related service personnel, 40% by a general education provide strategies for managing sensory abnormalities
teacher, and 30% by any external support agency. (Smith, 1994) is received by less than half. Assistive tech-
Effective transition planning provides the opportunity nology that can be used to support and enhance functional
for adolescents to learn about themselves and plan for capabilities and improve communication (Individuals
their futures. This requires student involvement as an with Disabilities Education Act [IDEA], 2004) was
active, respected participant and preferably as a team received by 16% of students. Extended school year ser-
leader (Wehman, 2006). Cameto et al. (2004) found that vices devised to provide continuous support were received
fewer than one third of students with autism actively par- by approximately 43%. Parents expressed dissatisfaction
ticipated in transition planning meetings, whereas only with the related services their son or daughter received as
3% led the discussion. A variety of supports have been well as the effort required to obtain those services (Levine
demonstrated to increase involvement. Fullerton and et al., 2004). Parents reported lack of information, lack of
Coyne (1999) successfully used visual, social, and organi- availability, transportation difficulties, scheduling con-
zational supports to facilitate young adults’ participation. flicts, and services of poor quality as barriers to their
Held, Thoma, and Thomas (2004) described one 17-year- child receiving appropriate services.
old with autism who conducted his own transition meeting As students leave the safety of the educational system,
with the use of assistive technology. postschool services may be needed to facilitate personal
and professional development (Smith, 1994). According
Transition goals. Postsecondary goals dictate what stu- to Cameto et al. (2004), approximately 88% of adoles-
dents need to learn to function as an adult (Wehmeyer, cents with autism had postschool services identified as
2002). Goals for students with ASD must be developed part of their transition plan. Just more than half of plans
specifically for the individual and should be functional in identified the need for vocational services and a third for
nature, with a focus on skills needed in current and future supported living services. Because ASD is a lifelong dis-
environments (Iovannone, Dunlap, Huber, & Kincaid, ability (Seltzer et al., 2004), services may include those
2003). It is recommended that goals for adolescents with designed to ameliorate the core characteristics of the dis-
ASD address communication and social skills in community, order. For example, 19% of plans documented a need for
vocational, home, and leisure content (Schall et al., 2006) and behavioral intervention and 23% speech or communica-
academics related to transition goals (Downing, 2005; tion therapy. Adolescents with ASD are reported to
Nuehring & Sitlington, 2003). There is a limited amount of become more depressed and suffer from increased anxiety
research evaluating goals contained within transition plans. (Bellini, 2004; Ghaziuddin, Ghaziuddin, & Greden, 2002;
The study by Cameto et al. (2004) evaluated the presence of Kim, Szatmari, Bryson, Streiner, & Wilson, 2000; Tantam,
goals related to postsecondary education, employment, liv- 1991). Mental health services needed for psychiatric
ing, and social development. For adolescents with autism, comorbidity (Tsatsanis, Foley, & Donehower, 2004) were
most plans contained employment-related goals. In all, 22% low, with 14% identifying this need. It is not enough to
outlined goals for competitive employment, 39% supported document the need for support services, but timely con-
employment, and another 39% sheltered employment. tacts to service agencies must be made to align program-
Goals related to living skills were also common, with 58% ming between school and adult providers. Of students,
of such goals designed to maximize functional indepen- 25% had job placement agencies contacted on their behalf,
dence and 28% to live independently. Of transition plans, 36% supported employment agencies, 30% sheltered
23% included goals related to attending a 2- or 4- year col- employment agencies, and 21% adult day programs. Of
lege. Just more than half (57%) contained goals associated students, 21% had supported living agencies contacted
with social development needed to increase friendships and and 5% congregate care facilities.
social interactions (Howlin, Goode, Hutton, & Rutter, 2004;
Orsmond, Krauss, & Seltzer, 2004). Implementation of transition plans. Cameto et al. (2004)
reported that 66% of teachers surveyed had implemented an
Services and supports. Many individuals with ASD educational program to meet established transition goals.
need to access a variety of services and supports to make Transition plans lead to success only if the educational
progress toward transition goals (Wolfe, 2005). According program is appropriately designed to help students achieve
to Levine, Marder, and Wagner (2004), students receive such goals. Transition plans dictate what students need to
80   Focus on Autism and Other Developmental Disabilities

learn. However, there are two other important consider- Smith and Philippen (1999) describe a continuum of liv-
ations: where and how these skills will be taught so they ing arrangements that includes living with family, living
will have meaning and be naturally occurring over time. with a foster family, living independently, partially sup-
Wagner, Newman, Cameto, Levine, and Marder (2003) ported living, and fully supported living. The nature of
surveyed teachers to determine secondary school experi- the disorder demands such a continuum, which enables
ences of students with disabilities. Results suggested that, individuals to live within the community while receiving
on average, one third of the courses students take during the level of support needed to be successful. Research
high school are composed of general education courses and demonstrates benefit for moving away from home.
62% special education courses. Regardless of the severity Parents of adolescents with ASD experience elevated
of the student’s disability, learning can be enhanced by pro- caregiving demands (Holmes & Carr, 1991) and have
viding instruction in natural community-based environ- higher levels of stress and depression compared to par-
ments (Wehman & Kregel, 2004). Wagner, Newman, et al. ents of other disability categories (Abbeduto et al., 2004).
(2003) noted that instruction outside of the classroom In a study by Krauss, Seltzer, and Jacobson (2005), moth-
occurs more frequently as part of special education classes. ers reported great benefit for their child with ASD who
In general education classrooms, 23% of students “often” lived away from home, whereas those who coresided
participated in school-based activities outside of the class- reported negative consequences including lack of con-
room and 4% “often” participated in community-based tentment, not being pushed to be independent, and social
experiences. In special education classrooms 47% “often” isolation. Residential programs designed specifically for
participated in school-based activities and 40% “often” adults with autism may provide appropriate living arrange-
received community-based instruction. ment for those needing intensive support. Beginning in
Transition instruction requires educators to be knowl- the 1970s, residential programs of this type were devel-
edgeable of a variety of teaching techniques and strategies, oped, incorporating the use of instructional techniques to
each individually applied to meet the strengths of the ado- develop new skills (Holmes, 1990; Van Bourgondien &
lescent (Iovannone et al., 2003). Educational programming Reichle, 1997; Wall, 1990). Research suggests these resi-
for this group is constrained by limited research on teach- dential treatment models result in increased community
ing strategies and curricula (McClannahan, MacDuff, & participation (Luce & Dyer, 1995), increased independent
Krantz, 2001; Simpson et al., 2005). There is an abundance functioning and interpersonal behavior (Persson, 2000),
of published studies documenting the efficacy of educa- and higher quality of life (Van Bourgondien, Reichle, &
tional strategies for young children with ASD (e.g., Bondy Schopler, 2003).
& Frost, 1993; Goin-Kochel, Myers, Hendricks, Carr, & Although an array of residential options is available,
Wiley, 2007; Gray, 1998; Green, 1996; Lovaas, 1987; research on living outcomes yield disappointing results. A
Sheinkopf & Siegel, 1998), but research specifically small percentage of adults with ASD live alone and some
focused on adolescents and adults is limited (Hart, 1993; reside in long-stay hospitals or institutions, but most con-
National Research Council [NRC], 2001). Research with tinue to live at home with their parents (Billstedt, Gillberg,
this age group has focused on teaching a variety of skills in & Gillberg, 2005; Howlin et al., 2004). Wagner, Newman,
the educational arena, including language development Cameto, Garza, and Levine (2005) surveyed out of school
(Heimann, Nelson, & Tjus, 1995; Krantz, Zalewski, Hall, youth and found 80% of those who had an educational
Fenski, & McClannahan, 1981; McIlvane, Bass, O’Brien, label of autism while in high school were still living at
Gerovac, & Stoddard, 1984), replacement of inappropriate home and 4% were living on their own. Howlin et al.
behavior (Carr & Durand, 1985; Schreibman & Carr, (2004) investigated the living conditions of adults who
1978), and literacy (Bedrosian, Lasker, Speidel, & Politsch, had a performance IQ of at least 50 (mean age 29.3 years).
2003; Collins & Stinson, 1994; Kamps, Leonard, Potucek, Participants were split into two IQ bands: those with an IQ
& Garrison-Harrell, 1995; O’Connor & Klein, 2004). In of 70 or greater and those with an IQ of 50 to 69. Overall,
recent years, strategies designed to increase independence nearly 40% of participants lived at home and less than 5%
and participation have received much-needed attention lived independently. However, findings showed that those
(Agran et al., 2005; Kay, Harchik, & Luiselli, 2006; Myles, with IQ scores of less than 70 faired much worse than
Ferguson, & Hagiwara, 2007). those with scores greater than 70. In a study conducted in
Sweden, Cedurland, Hagberg, Billstedt, Gillberg, and
Gillberg (2008) compared the outcomes of adults who had
Home
been diagnosed as children with either AS (ages 16 to 36)
Adolescents with ASD may wish to reside in more or autistic disorder (ages 16 to 38). In the AS group, 64%
integrated and independent settings as they get older. were living independently, whereas 8% from the autism
Hendricks, Wehman / Transition From School to Adulthood   81  

group were doing so. Although living away from their Adults with ASD experience high unemployment and
families, participants from both groups were described as underemployment, switch jobs frequently, have difficulty
dependent on their parents for support. adjusting to new job settings, make less money than their
A number of researchers have documented supports and counterparts, and are much less likely to be employed
interventions that improve independence in the home envi- than typically developing peers (Howlin, 2000; Hurlbutt
ronment. Much of the research has focused on increasing & Chalmers, 2004; Jennes-Coussens, Magill-Evans, &
self-help skills and participation in activities of daily living Koning, 2006; Müller, Schuler, Burton, & Yates, 2003),
(Bledsoe, Smith, & Simpson, 2003; Lasater & Brady, 1995; individuals with less severe language disorders, or indi-
Lee, Poston, & Poston, 2007; Smith & Belcher, 1985). viduals with learning disabilities (Cameto et al., 2004).
Researchers have successfully increased independence by Even for those individuals who have postsecondary edu-
reducing inappropriate behaviors in the residential setting cational experience, employment difficulties are common
(Brown, 1991; Reese, Sherman, & Sheldon, 1998). (Howlin, 2000). According to self-reports, vocational
success is not contingent on completing job duties but lies
in the social aspect of employment (Hurlbutt & Chalmers,
Work
2004; Müller et al., 2003).
The many challenging characteristics and behaviors Participation in secondary education may provide a
that individuals with ASD present can make them appear suitable alternative to employment; however, limited
unsuitable for employment. Experience has proven, how- research in this area indicates participation is low. Howlin
ever, that these individuals can work in a variety of busi- (2000) provided a literature review of outcome studies of
nesses and industries (O’Brien & Daggett, 2006). A adults with HFA and AS. The proportion of participants
spectrum of employment options is now available that who had received a college or university education ranged
include segregated training centers, supported employ- from 7% to 50%. Cedurland et al. (2008) documented
ment, and competitive employment (Smith, Belcher, & 11% of the AS group attended or were attending college,
Juhrs, 1995). The supported employment framework pro- whereas another 2% had received a degree. None of the
vides a variety of individualized supports and provisions individuals in the autism group had attended college.
designed to increase participation in community work set- Factors contributing to successful employment include
tings (Smith & Philippen, 1999). The onset of supported attainment of communication and interpersonal skills and
employment increased employment rates, raised salaries management of stereotyped patterns of behavior (Burt,
(Howlin, Alcock, & Burkin, 2005), and improved the Fuller, & Lewis, 1991). Specialized interventions and
quality of life of individuals with ASD (Garcia-Villamisar, treatments can prepare the individual for employment by
Wehman, & Navarro, 2002). Recently, Garcia-Villamisar teaching important skills needed in the vocational setting.
and Hughes (2007) found improvement in cognitive per- Several researchers have focused on the unique needs of
formance as a result of being in supported employment. individuals with ASD in the workplace. Most have used
Despite research documenting the benefit of community- behavior management strategies to reduce inappropriate
based employment, the vast majority of people with behavior, including aggression, self-injury, property
ASD continue to be unemployed (National Organization destruction, and pica (Berkman & Meyer, 1988; Kemp &
on Disability, 2004; Wagner et al., 2005). In a study with Carr, 1995; Smith, 1986, 1987; Smith & Coleman, 1986).
187 young adults with autism (mean age of 21.5), only one More recent research has focused on strategies designed
fourth were employed (Kobayahsi & Murata, 1992). to increase employment retention by matching the indi-
Mawhood, Howlin, and Rutter (2000) found that among 19 vidual to a complimentary job. A variety of strategies have
men with autism, only 1 was competitively employed and been successful in yielding an appropriate match, includ-
3 worked in sheltered or voluntary jobs. The employment ing offering choices (Nuehring & Sitlington, 2003), using
results for those with high-functioning autism (HFA) and assessments to determine task preferences (Lattimore,
AS indicate outcomes are generally much lower than would Parsons, & Reid, 2006; Nuehring & Sitlington, 2003),
be expected on the basis of the individual’s intellectual evaluating social and communication needs (Müller et al.,
functioning. Howlin et al. (2004) discovered that those with 2003), and adding necessary ­modifications and adapta-
an IQ greater than 70 had only slightly higher rates of tions (Hagner & Cooney, 2005).
employment than those with IQs of less than 70. In addi-
tion, the majority of jobs were in sheltered employment or
Community
voluntary in nature. Cedurland et al. (2008) found that only
20% of the men with AS held jobs, with 10% working in Community participation is a critical component of the
competitive employment and another 10% working in transition planning process. Planning must involve the
sheltered employment. entire community in which the person wishes to take part
82   Focus on Autism and Other Developmental Disabilities

after high school and might include myriad activities, no particular friends with whom they shared activities.
organizations, agencies, and institutions. Community Howlin et al. (2004) found only 26% of total participants
participation includes productive engagement in these with autism, regardless of intellectual functioning, were
activities but, more important, encompasses the desired rated as having at least one friend, whereas the majority
goal of integration into social networks and relationship had neither friends nor acquaintances. More sophisti-
development. For those with ASD, a variety of support cated relations are also sparse, as only a small portion of
services and interventions specifically designed to increase the population engage in intimate relations (Hellemans,
community participation likely are needed. Challenging Colson, Verbraeken, Vermeiren, & Deboutte, 2006;
behaviors (Smith, 1990; Van Bourgondien & Elgar, 1990), Jennes-Coussens et al., 2006) or get married (Cedurland
limited social skills (Arick, Krug, Fullerton, Loos, & et al., 2008; Howlin, 2000).
Falco, 2005; Howlin, 2000; Orsmond et al., 2004), and low Despite the low incidence of social relationships, it is
independence outside of the home (Wagner et al., 2005) important to note that the individual may desire such
are major deterrents. Luce and Dyer (1995) described the relations but not possess skills needed to cultivate them.
success of a decentralized community-based model that Adolescents with ASD report wanting friends (Marks,
provided a full continuum of supports. Participants were Schrader, Longaker, & Levine, 2000), intimate relations
assisted by trained staff and taught new skills using instruc- (Hellemans et al., 2006; Jennes-Coussens et al., 2006;
tional and behavioral techniques. Individuals with ASD Ruef & Turnbull, 2002), and having higher levels of
participated in the community at levels equal to or exceed- loneliness than their typically developing peers
ing those without disabilities. This approach has been also (Bauminger & Kasari, 2000; Bauminger, Shulman, &
used very successfully in the Life Long Inclusion for Agam, 2003). A lack of necessary social skills, including
Everyone (Spence-Cochran & Pearl, 2006) for high school failure to comprehend social stimuli, social rules, and
students with severe autism in Central Florida. affect intrinsic to social interactions, leads to limited suc-
Little is known about the actual community integration cess in this area (Koning & Magill-Evans, 2001; Tantam,
experienced by individuals with ASD. The only data 1991). Success is further hindered by possession of less
available in this area pertain to participation in recreation knowledge about romantic relationships and sexual
and leisure activities. For the adolescent or young adult behaviors than typically developing peers (Stokes &
with ASD, leisure pursuits are rarely community based Kaur, 2005; Stokes, Newton, & Kaur, 2007; Van
and are likely to be isolated activities such as video games Bourgondien, Reichle, & Palmer, 1997).
and watching television (Jennes-Coussens et al., 2006; A number of interventions have been used to improve
Wagner et al., 2005). There are few studies that document social functioning. Research has demonstrated the effi-
supports and interventions that enhance community par- cacy of a variety of techniques, including peer-mediated
ticipation. Much of the research has focused on reducing approaches (Farmer-Dougan, 1994; Haring & Breen,
the inappropriate behaviors that often accompany the 1992), self-management strategies (Koegel & Frea,
disorder (Belcher, 1995; Carr & Carlson, 1993; Carr & 1993), Social Stories and Comic Strip Conversations
Durand, 1985; Carr, Smith, Giacin, Whelan, & Pancari, (Rogers & Myles, 2001), and audiotaped social scripts
2003; McMorrow & Foxx, 1986). Other research has (Stevenson, Krantz, & McClannahan, 2000). In recent
focused on strategies designed to increase safety skills years, technology has received increased attention, as
(Taylor, Hughes, Richard, Hock, & Coello, 2004) as well researchers have utilized virtual environments to increase
as recreation and leisure participation (Jones & Block, social skills (Moore, Cheng, McGrath, & Powell, 2005;
2006; Orsmond et al., 2004; Scheitner & Devine, 2001). Parsons, Leonard, & Mitchell, 2006; Parsons, Mitchell,
During adolescence, the social gap between individu- & Leonard, 2004).
als with ASD and typically developing peers often wid-
ens (Arick et al., 2005; Church, Alinsanski, & Amanullah,
2000; Collier & Schall, 2003). The prevalence of friend- Recommendations for Effective Service
ships and participation in social groups is low for these Delivery Practices and Future Research
individuals despite where they are on the spectrum.
Orsmond et al. (2004) investigated peer relationships Examination of the current research on adolescents
among 235 adolescents and adults with autism. In all, with ASD who transition from high school to adulthood
30% reported at least one friend, whereas nearly half yields sobering results. Although some individuals with
reported no peer relationships. Mawhood et al. (2000) ASD are able to successfully transition, most are faced
found that only 16% of young adults with HFA had at with significant obstacles in multiple areas. Even for
least one friend and almost half (47%) reported having those considered to be more skilled, many obstacles exist
Hendricks, Wehman / Transition From School to Adulthood   83  

as they attempt to negotiate their way into college, work, efforts that stretch beyond the parameters of the transi-
community participation, and independent living. tion period. At the heart of this issue, however, is the need
Planning for transition needs to begin when students are for efficacious teaching strategies, as there is currently a
between 10 and 13 years old, with more serious planning dearth of research on instructional strategies effective with
occurring as the child enters the early to middle teen years adolescents with ASD. Because there is not one single
(Wehman, 2006). A successful transition requires thorough most effective method that works for all individuals on the
preparation and implementation. Furthermore, it requires spectrum (Heflin & Simpson, 1998; NRC, 2001), rigorous
resources within the school as well as adult service agen- research on a variety of practices is needed. Adolescents
cies that can provide needed support. These resources need require instruction in skills related to community, employ-
to overlap with each other for a period of time. Continual ment, home, and leisure (Schall et al., 2006) as well as
involvement, planning, and careful coordination between academics related to the transition goals (Downing, 2005;
the school and key community agencies are essential to Nuehring & Sitlington, 2003). Moreover, strategies for
improving outcomes through the transition process. There remedying communication, socialization, and behavioral
is obviously a great deal more for researchers and practitio- deficits that profoundly and perpetually affect the indi-
ners to learn to improve the quality of life for young people vidual are critical (Iovannone et al., 2003). Transition
with ASD. What follows is a brief description of different instruction is further complicated by the need for learning
research and service delivery practices needed in the areas opportunities to be provided in a variety of settings, includ-
of school, home, work, and community. ing the special education classroom, the general education
classroom, out-of-classroom school environments, and
community settings (Wehman & Kregel, 2004).
School
Efforts are needed to improve the transition planning
Home
process for adolescents with ASD. Placing the individ-
ual at the center of the transition process is a pivotal Individuals with ASD should be assisted to live where
component of planning that has been greatly overlooked. they want and with whom they want. It is critical that
Students should not be passive recipients and should have ongoing planning and training take place beginning in
control over the intervention and support process (Everson the adolescent years (Wehman, 2006). This requires edu-
& Reid, 1999). There is a need to explore methods for cators to begin planning during the transition period by
involving adolescents with ASD of all ability levels in exploring residential opportunities and working toward
transition planning and empowering individuals to become goals that will enable appropriate living situations within
active change agents in their lives. Furthermore, efforts are the community. Educators should collaborate with the
needed to ensure transition goals help students reach their individual and the parents to ensure the characteristics
full potential. More opportunities exist than ever before. and goals of the individual, the role of the family, and the
Student goals should include the full range of community desired program components are at the heart of the plan-
pursuits and should not be based on perceived student ning process (Everson & Reid, 1999).
limitations (Wehman, 2006). Although some individuals with ASD learn to live inde-
Most students with ASD are not receiving a “seamless pendently, many require ongoing supervision (Cedurland
transition” experience, that is, one where the school ser- et al., 2008; Howlin, 2000). For those who are unable to
vices flow into adult services easily (e.g., Certo et al., access supported residential settings, parental and family
2003). There are currently a variety of postschool services support might be needed to allow the individual to remain
designed to help adults with ASD live, work, and partici- in the community (Burt et al., 1991). Given the current
pate in the community (Rusch & Braddock, 2004). Efforts state of affairs, it would be highly beneficial to educate
on the part of school personnel, parents, and service pro- family members and ensure they are well equipped to sup-
viders are needed to ensure collaboration and involvement port their loved one. This includes providing up-to-date
of these agencies in the transition planning process. To information about ASD and best practice as well as
prevent patterns of dependency and institutional care, it is hands-on teaching of instructional strategies and imple-
necessary to establish measures for moving the individual mentation of much-needed behavior support plans.
systematically from the protected umbrella of the school There are a myriad of skills needed in the home setting.
to the adult service delivery system. They include skills related to safety, activities of daily liv-
Efforts are undoubtedly needed to increase the aca- ing, and financial accountability. For mastery, however,
demic achievement and rates of graduating with a the individual must demonstrate increased levels of inde-
diploma. This is a tremendous task, indeed, requiring pendence and self-sufficiency (Smith & Philippen, 1999).
84   Focus on Autism and Other Developmental Disabilities

Few strategies have undergone rigorous evaluation of their adult. This will ensure the student has opportunities to
effectiveness with adolescents with ASD. This presents a socialize in the community and learn applicable skills
tremendous need. Acquisition of such living skills night (Wehman & Thoma, 2006).
not only lead to better opportunities to stay in the com- Progress in community integration is severely hampered
munity but also reduce stress in caregivers (Van by the limited research on efficacious strategies and sup-
Bourgondien & Reichle, 1997). ports needed to facilitate meaningful participation.
Development of strategies specifically designed to increase
Work community participation is essential to ensuring equal
opportunities for this group. Rigorous research on a variety
Meaningful integrated employment should be a goal for of practices that address the myriad of skills required in the
all individuals with ASD who wish to work and should be the wide array of community activities is needed.
first choice offered (Luecking & Gramlich, 2003; Wehman, The skills required for socialization are complex and are
Inge, Revell, & Brooke, 2007; Wehman, Revell, & Brooke, arguably the most difficult for an individual with ASD to
2003). Work experiences should begin while the student is in learn, yet little empirical research has been conducted in
high school and include career exploration activities and this area. Unless social skills are taught, full community
assessments to determine task preferences (Smith, 1990). integration and social fulfillment remain a challenge. Much
Furthermore, competitive work experience prior to gradua- more is needed in this area, as extant research has focused
tion can help negate poor employment outcomes by helping on discrete skills, and little is known about methods for
the student develop relationships, learn valuable work skills, generalizing social skills across environments and people.
and create a strong work ethic (Targett, 2006).
For adolescents leaving school, learning specific work-
related skills is necessary. Such skills should focus on not Conclusion
only job-related tasks but also, more important, the inter-
personal skills that will foster a positive work experience Federal measures have been put in place to ensure schools
(Fast, 2004). Currently, research on such strategies with plan for transition (IDEA, 2004); however, transition plan-
adolescents with ASD is sparse and desperately needed. ning and implementation is falling short of what the federal
An alternative to employment after high school might government intended for many with ASD (Certo et al., 2003;
be postsecondary education. Involvement, however, is Luecking & Gramlich, 2003). Students often do not receive
extremely limited for those with ASD (Wagner et al., the services and supports needed to address the complex set
2005), and research on this topic is nearly nonexistent. of issues they possess. It is essential that professionals care-
Individuals with ASD likely will need specialized teach- fully plan for this transition to ensure adolescents and young
ing strategies, supports, and accommodations in the post- adults are armed with the appropriate skills and supports
secondary setting for a successful educational experience needed to be successful. Individuals with ASD spend much
(Getzel & Wehman, 2005). Conducting investigations more of their lifetime outside of the educational system than
with individuals currently involved in higher education in the system; therefore, efforts to maximize this critical
can yield valuable information about effective instruc- period are pivotal to improving outcomes.
tional and organizational measures needed to increase
rates of participation and educational success.
References
Community Abbeduto, L., Seltzer, M. M., Shattuck, P., Krauss, M. W., Orsmond,
Full community integration is possible but is not yet a G., & Murphy, M. M. (2004). Psychological well-being and coping
in mothers of youths with autism, down syndrome, or fragile X
reality for many adolescents and young adults with ASD. syndrome. American Journal on Mental Retardation, 109, 237–
This is especially true given that most have not achieved 254.
effective social integration (Howlin, 2000; Orsmond et al., Agran, M., Sinclair, T., Alper, S., Cavin, M., Wehmeyer, M., & Hughes,
2004). The community is composed of myriad activities, C. (2005). Using self-monitoring to increase following-direction skills
organizations, agencies, and institutions, all of which of students with moderate to severe disabilities in general education.
Education and Training in Developmental Disabilities, 40, 3–13.
involve different skills and competencies. For adolescents
American Psychiatric Association. (1994). Diagnostic and statistical
to learn requisite skills, education and training must be manual of mental disorders (4th ed.). Washington, DC: Author.
provided in the community during high school. Specifically, Arick, J. R., Krug, D. A., Fullerton, A., Loos, L., & Falco, R. (2005).
education must take place in community environments School-based programs. In F. Volkmar, R. Paul, A. Klin, & D. Cohen
where the student is likely to frequent and utilize as an (Eds.), Handbook of autism and pervasive developmental disorders:
Hendricks, Wehman / Transition From School to Adulthood   85  

Assessment, interventions, and policy (Vol. 2, pp. 1003–1028). Church, C., Alinsanski, S., & Amanullah, S. (2000). The social,
Hoboken, NJ: John Wiley. behavioral, and academic experiences of children with Asperger
Bauminger, N., & Kasari, C. (2000). Loneliness and friendship in high- syndrome. Focus on Autism and Other Developmental Disabilities,
functioning children with autism. Child development, 71, 447–456. 15, 12–20.
Bauminger, N., Shulman, C., & Agam, G. (2003). Peer interaction Collier, V., & Schall, C. (2003). Adolescence and autism: What you
and loneliness in high-functioning children with autism. Journal can expect. Advocate, 35(4), 20–23.
of Autism and Developmental Disorders, 33, 489–507. Collins, B. C., & Stinson, D. M. (1994). Teaching generalized reading
Bedrosian, J., Lasker, J., Speidel, K., & Politsch, A. (2003). of product warning labels to adolescents with mental disabilities
Enhancing the written narrative skills of an AAC student with through the use of key words. Exceptionality, 5, 163–181.
autism: Evidence based research issues. Topics in Language deFur, S. H., & Patton, J. R. (1999). Transition and school-based
Disorders, 23, 305–324. services: Interdisciplinary perspectives for enhancing the transi-
Belcher, T. L. (1995). Behavioral treatment vs. behavioral control: A tion process. Austin, TX: PRO-ED.
case study. Journal of Developmental and Physical Disabilities, Downing, J. E. (2005). Teaching literacy to students with significant
7, 235–241. disabilities. Thousand Oaks, CA: Corwin Press.
Bellini, S. (2004). Social skill deficits and anxiety in high-functioning Everson, J. M., & Reid, D. H. (1999). A systematic evaluation of
adolescents with autism spectrum disorders. Focus on Autism and preferences identified through person-centered planning for per-
Other Developmental Disabilities, 19, 78–93. sons with profound multiple disabilities. Journal of Applied
Berkman, K. A., & Meyer, L. H. (1988). Alternative strategies and Behavior Analysis, 32, 467–477.
multiple outcomes in the remediation of severe self-injury: Going Farmer-Dougan, V. (1994). Increasing requests by adults with devel-
“all out” nonaversively. Journal of the Association for Persons opmental disabilities using incidental teaching by peers. Journal
with Severe Handicaps, 13, 76–86. of Applied Behavior Analysis, 27, 533–544.
Billstedt, E., Gillberg, C., & Gillberg, C. (2005). Autism after adoles- Fast, Y. (2004). Employment for individuals with Asperger syndrome
cence: Population-based 13 to 22–year follow-up study of 120 or non-verbal learning disability: Stories and strategies. London:
individuals with autism diagnosed in childhood. Journal of Autism Jessica Kingsley.
and Developmental Disorders, 35, 351–360. Fombonne, E. (2003). Epidemiological surveys of autism and other
Bledsoe, R., Smith, B., & Simpson, R. L. (2003). Use of a social story pervasive developmental disorders: An update. Journal of Autism
intervention to improve mealtime skills of an adolescent with and Other Developmental Disorders, 23, 365–382.
Asperger syndrome. Autism, 7, 289–295. Fullerton, A., & Coyne, P. (1999). Developing skills and concepts for
Bondy, A. S., & Frost, L. A. (1993). The Picture Exchange self-determination in young adults with autism. Focus on Autism
Communication System. Focus on Autistic Behavior, 9(3), 1–19. and Other Developmental Disabilities, 14, 42–52, 63.
Brown, F. (1991). Creative daily scheduling: A nonintrusive approach Garcia-Villamisar, D., & Hughes, C. (2007). Supported employment
to challenging behaviors in community residences. Journal of the improves cognitive performance in adults with autism. Journal
Association for Persons with Severe Handicaps, 16, 75–84. Intellectual Disabilities Research, 51, 142–150.
Bruininks, R. H., Woodcock, R. W., Weatherman, R. F., & Hill, B. K. Garcia-Villamisar, D., Wehman, P., & Navarro, M. D. (2002). Changes
(1996). Scales of Independent Behavior–Revised. Chicago: Riverside. in the quality of autistic people’s life that work in supported and
Burt, D. B., Fuller, S. P., & Lewis, K. R. (1991). Competitive employ- sheltered employment. A 5-year follow-up study. Journal of
ment of adults with autism. Journal of Autism and Developmental Vocational Rehabilitation, 17, 309–312.
Disorders, 21, 237–242. Gerhardt, P. F., & Holmes, D. L. (2005). Employment: Options and issues
Cameto, R., Levine, P., & Wagner, M. (2004). Transition planning for for adolescents and adults with autism spectrum disorders. In F. R.
students with disabilities. A Special Topic Report from the Volkmar, R. Paul, A. Klin, & D. Cohen (Eds.), Handbook of autism
National Longitudinal Transition Study–2 (NLTS-2). Menlo Park, and pervasive developmental disorders, Vol. 2: Assessment, interven-
CA: SRI International. tions, and policy (3rd ed., pp. 1087–1101). New York: John Wiley.
Carr, E. G., & Carlson, J. I. (1993). Reduction of severe behavior Getzel, E. E., & Wehman, P. (2005). Going to college: Expanding
problems in the community using a multicomponent treatment opportunities for people with disabilities. Baltimore: Brookes.
approach. Journal of Applied Behavior Analysis, 26, 157–172. Ghaziuddin, M., Ghaziuddin, N., & Greden, J. (2002). Depression in
Carr, E. G., & Durand, V. M. (1985). Reducing behavior problems persons with autism: Implications for research and clinical care.
through functional communication training. Journal of Applied Journal of Autism and Developmental Disorders, 32, 299–306.
Behavior Analysis, 18, 111–126. Gilchrist, A., Green, J., Cox, A., Burton, D., Rutter, M., & Le
Carr, E. G., Smith, C. E., Giacin, T. A., Whelan, B. A., & Pancari, J. Couteur, A. (2001). Development and current functioning in ado-
(2003). Menstrual discomfort as a biological setting event for lescents with Asperger syndrome: A comparative study. Journal of
severe problem behavior: Assessment and intervention. American Child Psychology and Psychiatry, 42, 227–240.
Journal on Mental Retardation, 198, 117–133. Goin-Kochel, R. P., Myers, B. J., Hendricks, D. R., Carr, S. E., &
Cedurland, M., Hagberg, B., Billstedt, E., Gillberg, I. C., & Wiley, S. B. (2007). Responsiveness to applied behavior analysis
Gillberg, C. (2008). Asperger syndrome and autism: A compara- (ABA) among preschool children with autism. International
tive longitudinal follow-up study more than five years after Journal of Disability, Development, and Education, 54, 151–175.
original diagnosis. Journal of Autism and Developmental Gray, C. A. (1998). Social stories and comic strip conversations with
Disorders, 38, 72–85. students with Asperger syndrome and high-functioning autism. In
Certo, N. J., Mautz, D., Pumpain, I., Sax, K., Smalley, H. A., Wade, E. Schopler, G. B. Mesibov, & L. J. Kunce (Eds.), Asperger syndrome
D., et al. (2003). A review and discussion of a model for seamless or high-functioning autism? (pp. 167–198). New York: Plenum.
transition to adulthood. Education and Training in Developmental Green, G. (1996). Early behavioral intervention for autism: What
Disabilities, 38, 3–17. does research tell us? In C. Maurice, G. Green, & S. Luce (Eds.),
86   Focus on Autism and Other Developmental Disabilities

Behavioral intervention for young children with autism: A manual Kamps, D. M., Leonard, B., Potucek, J., & Garrison-Harrell, L.
for parents and professionals (pp. 29–44). Austin, TX: PRO-ED. (1995). Cooperative learning groups in reading: An integration
Hagner, D., & Cooney, B. F. (2005). “I do that for everybody”: strategy for students with autism and general classroom peers.
Supervising employees with autism. Focus on Autism and Other Behavioral Disorders, 21, 89–109.
Developmental Disabilities, 20, 91–97. Kavale, K. A., & Forness, S. R. (1999). Efficacy of special education
Haring, T. G., & Breen, C. G. (1992). A peer-mediated social network and related services. Washington, DC: American Association on
intervention to enhance the social integration of persons with Mental Retardation.
moderate and severe disabilities. Journal of Applied Behavior Kay, S., Harchik, A. E., & Luiselli, J. K. (2006). Elimination of drool-
Analysis, 25, 319–333. ing by an adolescent student with autism attending public high
Hart, C. A. (1993). A parent’s guide to autism. New York: Pocket school. Journal of Positive Behavior Interventions, 8, 24–28.
Books. Kemp, D. C., & Carr, E. G. (1995). Reduction of severe problem
Heflin, L. J., & Simpson, R. L. (1998). Interventions for children and behavior in community employment using a hypothesis-driven
youth with autism: Prudent choices in a world of exaggerated multicomponent intervention approach. Journal of the Association
claims and empty promises. Part I. Intervention and treatment for Persons with Severe Handicaps, 20, 229–247.
option review. Focus on Autism and Developmental Disabilities, Kim, J. A., Szatmari, P., Bryson, S. E., Streiner, D. L., & Wilson, F. J.
13, 194–211. (2000). The prevalence of anxiety and mood problems among
Heimann, M., Nelson, K. E., & Tjus, T. (1995). Increasing reading children with autism and Asperger syndrome. Autism, 4, 117–132.
and communication skills in children with autism through an Kobayashi, R., & Murata, T. (1992). Behavioral characteristics of 187
interactive multimedia computer program. Journal of Autism and young adults with autism. Psychiatry Clinical Neuroscience, 52,
Developmental Disorders, 25, 459–480. 383–390.
Held, M. F., Thoma, C. A., & Thomas, K. (2004). “The John Jones Koegel, R., & Frea, W. D. (1993). Treatment of social behavior in
show”: How one teacher facilitated self-determined transition autism through the modification of pivotal social skills. Journal of
planning for a young man with autism. Focus on Autism and Other Applied Behavior Analysis, 26, 369–377.
Developmental Disabilities, 19, 177–188. Koning, C., & Magill-Evans, J. (2001). Social and language skills in
Hellemans, H., Colson, K., Verbraeken, C., Vermeiren, R., & adolescent boys with Asperger syndrome. Autism, 5, 23–36.
Deboutte, D. (2006). Sexual behavior in high-functioning male Krantz, P. J., Zalewski, S., Hall, L., Fenski, E., & McClannahan, L.
adolescents and young adults with autism spectrum disorder. (1981). Teaching complex language to autistic children. Analysis
Journal of Autism and Developmental Disorders, 37, 260–269. & Intervention in Developmental Disabilities, 1, 259–297.
Holmes, D. L. (1990). Community-based services for children and Krauss, M. W., Seltzer, M. M., & Jacobson, H. T. (2005). Adults with
adults with autism: The Eden family programs. Journal of Autism autism living at home or in non-family settings: Positive and
and Developmental Disorders, 20, 339–351. negative aspects of residential status. Journal of Intellectual
Holmes, N., & Carr, J. (1991). The pattern of care in families of Disability Research, 49, 111–124.
adults with a mental handicap: A comparison between families of Lasater, M. W., & Brady, M. P. (1995). Effects of video self-modeling
autistic adults and Down syndrome adults. Journal of Autism and and feedback on task fluency: A home-based intervention.
Other Developmental Disorders, 2, 159–176. Education & Treatment of Children, 18, 389–407.
Howlin, P. (2000). Outcome in adult life for more able individuals Lattimore, L. P., Parsons, M. B., & Reid, D. H. (2006). Enhancing job
with autism or Asperger syndrome. Autism, 4, 63–83. site training on supported workers with autism: A reemphasis on
Howlin, P., Alcock, J., & Burkin, C. (2005). An 8 year follow-up of a simulation. Journal of Applied Behavior Analysis, 39, 91–102.
specialist supported employment service for high-ability adults Lee, S., Poston, D., & Poston, A. J. (2007). Lessons learned through
with autism or Asperger syndrome. Autism, 9, 533–549. implementing a positive behavior support intervention at home: A
Howlin, P., Goode, S., Hutton, J., & Rutter, M. (2004). Adult outcome case study on self-management with a student with autism and his
for children with autism. Journal of Child Psychology and mother. Education and Training in Developmental Disabilities,
Psychiatry, 45, 212–229. 42, 418–427.
Hurlbutt, K., & Chalmers, L. (2002). Adults with autism speak out: Levine, P., Marder, C., & Wagner, M. (2004). Services and supports
Perceptions of their life experiences. Focus on Autism and Other for secondary school students with disabilities. A Special Topic
Developmental Disabilities, 17, 103–111. Report from the National Longitudinal Transition Study–2
Hurlbutt, K., & Chalmers, L. (2004). Employment and adults with (NLTS-2). Menlo Park, CA: SRI International.
Asperger syndrome. Focus on Autism and Other Developmental Lovaas, I. (1987). Behavioral treatment and normal educational and
Disabilities, 19, 215–222. intellectual functioning in young autistic children. Journal of
Individuals with Disabilities Education Act Amendments of 2004, Consulting and Clinical Psychology, 55, 3–9.
Pub. L. No. 105–17, 111 U.S.C. (2004). Luce, S. C., & Dyer, K. (1995). Providing effective transitional
Iovannone, R., Dunlap, G., Huber, H., & Kincaid, D. (2003). Effective programming to individuals with autism. Behavioral Disorders,
educational practices for students with autism spectrum disorders. 21, 36–52.
Focus on Autism and Other Developmental Disabilities, 18, Luecking, R., & Gramlich, M. (2003). Quality work-based learning
150–165. and postschool employment success. Issue brief: Examining cur-
Jennes-Coussens, M., Magill-Evans, J., & Koning, C. (2006). The rent challenges in secondary education and transition. Education
quality of life of young men with Asperger syndrome: A brief and Training in Developmental Disabilities, 2, 1–5.
report. Autism, 10, 403–414. Marks, S. U., Schrader, C., Longaker, T., & Levine, M. (2000).
Jones, K. J., & Block, M. E. (2006). Including an autistic middle Portraits of three adolescent students with Asperger’s Syndrome:
school child in general physical education: A case study. Strategies: Personal stories and how they can inform practice. The Journal of
A Journal for Physical and Sport Educators, 19, 13–16. the Association for Persons with Severe Handicaps, 25, 3–17.
Hendricks, Wehman / Transition From School to Adulthood   87  

Mawhood, L., Howlin, P., & Rutter, M. (2000). Autism and develop- Persson, B. (2000). Brief report: A longitudinal study of quality of
mental receptive language disorder—A comparative follow-up in life and independence among adult men with autism. Journal of
early adult life. I: Cognitive and language outcomes. Journal of Autism and Developmental Disorders, 30, 61–66.
Child Psychology and Psychiatry, 41, 547–559. Reese, R. M., Sherman, J. A., & Sheldon, J. B. (1998). Reducing disrup-
McClannahan, L. E., MacDuff, G. S., & Krantz, P. J. (2001). Behavior tive behavior of a group home resident with autism and mental retarda-
analysis and intervention for adults with autism. Behavior tion. Journal of Autism and Developmental Disorders, 28, 159–165.
Modification, 26, 9–26. Rogers, M. F., & Myles, B. S. (2001). Using social stories and comic
McIlvane, W. J., Bass, R. W., O’Brien, J. M., Gerovac, B. J., & strip conversations to interpret social situations for an adolescent with
Stoddard, L. T. (1984). Spoken and signed naming of foods after Asperger syndrome. Intervention in School and Clinic, 36, 310–313.
receptive exclusion training in severe retardation. Applied Research Ruef, M. B., & Turnbull, A. P. (2002). The perspectives of individuals
in Mentally Retarded, 5, 1–28. with cognitive disabilities and/or autism on their lives and their
McMorrow, M. J., & Foxx, R. M. (1986). Some direct and general- problem behavior. Journal of the Association for Persons with
ized effects of replacing an autistic man’s echolalia with correct Severe Handicaps, 27, 125–140.
responses to questions. Journal of Applied Behavior Analysis, Rusch, F. R., & Braddock, D. (2004). Adult day programs versus sup-
19, 289–297. ported employment (1988–2002): Spending and service practices of
Moore, D., Cheng, Y., McGrath, P., & Powell, N. J. (2005). mental retardation and developmental disabilities state agencies.
Collaborative virtual environment technology for people with Research & Practice for Persons with Severe Disabilities, 29,
autism. Focus on Autism and Other Developmental Disabilities, 237–242.
20, 231–243. Schall, C., Cortijo-Doval, E., Targett, P. S., & Wehman, P. (2006).
Müller, E., Schuler, A., Burton, B. A., & Yates, G. B. (2003). Meeting Applications for youth with autism spectrum disorders. In
the vocational support needs of individuals with Asperger syn- ­P. Wehman (Ed.), Life beyond the classroom: Transition strategies
drome and other autism spectrum disabilities. Journal of Vocational for young people with disabilities (4th ed., pp. 535–575).
Rehabilitation, 18, 163–175. Baltimore: Brookes.
Myles, B. S., Ferguson, H., & Hagiwara, T. (2007). Using a personal Schall, C., & Wehman, P. (2008). Understanding the transition from
digital assistant to improve the recording of homework assign- school to adulthood for students with autism. In P. Wehman, M. D.
ments by an adolescent with Asperger syndrome. Focus on Autism Smith, & C. Schall (Eds.) Autism and the transition to adulthood:
and Other Developmental Disabilities, 22, 96–99. Success beyond the classroom (pp. 1–14). Baltimore, MD: Paul H
Myles, B. S., & Simpson, R. L. (1998). Asperger syndrome. Austin, Brookes.
TX: PRO-ED. Scheitner, R., & Devine, M. A. (2001). Reduction of self-injurious
National Council on Disability (2000). Transition and post-school behaviors of an individual with autism: Use of a leisure communica-
outcomes for youth with disabilities: Closing the gaps to tion book. Therapeutic Recreation Journal, 35, 207–219.
post-secondary education and employment. Retrieved February Schreibman, L., & Carr, E. G. (1978). Elimination of echolalic
1, 2008, from http://www.ncd.gov/newsroom/publications/ responding to questions through the training of a generalized ver-
2000/pdf/transition_11–1–00.pdf bal response. Journal of Applied Behavior Analysis, 11, 453–463.
National Organization on Disability. (2004). N.O.D./Harris Survey of Seltzer, M. M., Shattuck, P., Abbeduto, L., & Greenberg, J. S. (2004).
Americans with Disabilities: Landmark survey finds pervasive Trajectory of development in adolescents and adults with autism.
disadvantages. Washington, DC: Author. Mental Retardation and Developmental Disabilities Research
National Research Council. (2001). Educating children with autism. Reviews, 10, 234–247.
Washington, DC: National Academy Press. Sheinkopf, S., & Siegel, B. (1998). Home based behavioral treatment
Neisworth, J. T., & Wolfe, P. S. (2005). The autism encyclopedia. of young autistic children. Journal of Autism and Developmental
Baltimore: Brookes. Disorders, 28, 15–24.
Nuehring, M. L., & Sitlington, P. L. (2003). Transition as a vehicle: Simpson, R. L., de Boer-Ott, S. R., Griswold, D. E., Myles, B. S.,
Moving from high school to an adult vocational service provider. Byrd, S. E., Ganz, J. B., et al. (2005). Autism spectrum disorders:
Journal of Disability Policy Studies, 14, 23–35. Interventions and treatments for children and youth. Thousand
O’Brien, M., & Daggett, J. A. (2006). Beyond the autism diagnosis: Oaks, CA: Sage.
A professional’s guide to helping families. Baltimore: Brookes. Sitlington, P. L., & Clark, G. M. (2006). Transition education and ser-
O’Connor, I. M., & Klein, P. D. (2004). Exploration of strategies for vices for students with disabilities (4th ed.). Boston: Allyn & Bacon.
facilitating the reading comprehension of high-functioning stu- Smith, M. (1986). Managing the aggressive and self-injurious behav-
dents with autism spectrum disorders. Journal of Autism and iors of adults disabled by autism in the community. Journal of the
Developmental Disorders, 34, 115–127. Association for Persons with Severe Handicaps, 10, 228–232.
Orsmond, G. I., Krauss, M. W., & Seltzer, M. M. (2004). Peer relation- Smith, M. (1987). Treatment of pica in an adult disabled by autism by
ships and social and recreational activities among adolescents and differential reinforcement of incompatible behavior. Journal of
adults with autism. Journal of Autism and Developmental Disorders, Behavior Therapy and Experimental Psychiatry, 18, 285–288.
34, 245–256. Smith, M. (1990). Autism and life in the community: Successful
Parsons, S., Leonard, A., & Mitchell, P. (2006). Virtual environments for interventions for behavioral challenges. Baltimore: Brookes.
social skills training: Comments from two adolescents with autistic Smith, M. (1994). Increasing work productivity of employees disabled
spectrum disorder. Computers and Education, 47, 186–206. by autism. Journal of Vocational Rehabilitation, 4, 60–65.
Parsons, S., Mitchell, P., & Leonard, A. (2004). The use and under- Smith, M., & Belcher, R. (1985). Teaching life skills to adults disabled by
standing of virtual environments by adolescents with autistic autism. Journal of Autism and Developmental Disorders, 15, 163–175.
spectrum disorders. Journal of Autism and Developmental Smith, M., Belcher, R. G., & Juhrs, P. D. (1995). A guide to success-
Disorders, 34, 449–466. ful employment for individuals with autism. Baltimore: Brookes.
88   Focus on Autism and Other Developmental Disabilities

Smith, M., & Coleman, D. (1986). Managing the behavior of adults disabilities during secondary school. A report from the National
with autism in the job setting. Journal of Autism and Developmental Longitudinal Transition Study–2 (NLTS-2). Menlo Park, CA: SRI
Disorders, 16, 145–154. International.
Smith, M. D., & Philippen, L. R. (1999). Community integration and Wagner, M., Newman, L., Cameto, R., Garza, N., & Levine, P.
supported employment. In D. B. Zager (Ed.), Autism: Identification, (2005). After high school: A first look at the postschool experi-
education, and treatment (2nd ed., pp. 301–321). Mahwah, NJ: ences of youth with disabilities. A report from the National
Lawrence Erlbaum. Longitudinal Transition Study–2 (NLTS-2). Menlo Park, CA: SRI
Spence-Cochran, K., & Pearl, C. E. (2006). Moving toward full inclu- International.
sion. In P. Wehman (Ed.), Life beyond the classroom: Transition Wagner, M., Newman, L., Cameto, R., & Levine, P. (2006). The aca-
strategies for young people with disabilities (4th ed., pp. 133–164). demic achievement and functional performance of youth with
Baltimore: Brookes. disabilities. A report from the National Longitudinal Transition
Stevenson, C. L., Krantz, J. P., & McClannahan, L. E. (2000). Social Study–2 (NLTS-2). Menlo Park, CA: SRI International.
interaction skills for children with autism: A script-fading procedure Wagner, M., Newman, L., Cameto, R., Levine, P., & Marder, C.
for nonreaders. Behavioral Interventions, 15, 1–20. (2003). Going to school: Instructional contexts, programs, and
Stokes, M. A., & Kaur, A. (2005). High-functioning autism and sexu- participation of secondary school students with disabilities.
ality: A parental perspective. Autism, 9, 266–289. Menlo Park, CA: SRI International.
Stokes, M., Newton, N., & Kaur, A. (2007). Stalking, and social and Wall, A. J. (1990). Group homes in North Carolina for children and
romantic functioning among adolescents and adults with autism adults with autism. Journal of Autism and Developmental
spectrum disorder. Journal of Autism and Developmental Disabilities, 20, 353–366.
Disorders, 37, 1969–1986. Wehman, P. (2006). Individualized transition planning: Putting self-
Tantam, D. (1991). Asperger syndrome in adulthood. In U. Frith determination into action. In P. Wehman (Ed.), Life beyond the
(Ed.), Autism and Asperger syndrome (pp. 147–183). London: classroom: Transition strategies for young people with disabilities
Cambridge University Press. (4th ed., pp. 71–96). Baltimore: Brookes.
Targett, P. S. (2006). Finding jobs for young people with disabilities. In Wehman, P., Inge, K. J., Revell, W. G., & Brooke, V. A. (2007). Real
P. Wehman (Ed.), Life beyond the classroom: Transition strategies work for real pay: Inclusive employment for people with disabilities.
for young people with disabilities (4th ed., pp. 255–288). Baltimore: Baltimore: Brookes.
Brookes. Wehman, P., & Kregel, J. (2004). Functional curriculum for elementary,
Taylor, B. A., Hughes, C. E., Richard, E., Hoch, H., & Coello, A. R. middle, and secondary age students with special needs (2nd ed.).
(2004). Teaching teenagers with autism to seek assistance when Austin, TX: Pro-Ed.
lost. Journal of Applied Behavior Analysis, 37, 69–79. Wehman, P., Revell, W. G., & Brooke, V. (2003). Competitive
Thoma, C. A., & Sale, P. (2005). Going to school. In P. Wehman, P. J. employment: Has it become the “first choice” yet? Journal of
McLaughlin, & T. Wehman (Eds.), Intellectual and developmental Disability Policy Studies, 14, 163–173.
disabilities: Toward full community inclusion (3rd ed., pp. 16–29). Wehman, P., & Thoma, C. A. (2006). Teaching for transition. In
Austin, TX: PRO-ED. P. Wehman (Ed.), Life beyond the classroom: Transition strategies
Tsatsanis, K. D., Foley, C., & Donehower, C. (2004). Contemporary for young people with disabilities (4th ed., pp. 201–236).
outcome research and programming guidelines for Asperger syn- Baltimore: Brookes.
drome and high functioning autism. Topics in Language Disorders, Wehmeyer, M. L. (2002). Teaching students with mental retarda-
24, 249–259. tion: Providing access to the general curriculum. Baltimore:
U.S. Department of Education. (2008). Individuals with Disabilities Brookes.
Education Act (IDEA) data. Retrieved February 14, 2008, from Wolfe, P. S. (2005). Service delivery. In P. Wehman, P. J. McLaughlin,
http://www.ideadata.org & T. Wehman (Eds.), Intellectual and developmental disabilities:
Van Bourgondien, M., & Elgar, S. (1990). The relationship between Toward full community inclusion (3rd ed., pp. 60–76). Austin, TX:
existing residential services and the needs of autistic adults. Journal PRO-ED.
of the Association for Persons with Severe Handicaps, 16, 75–84. Woodcock, R. W., McGrew, K., & Mather, N. (2001). Woodcock
Van Bourgondien, M. E., & Reichle, N. C. (1997). Residential treat- Johnson tests of cognitive abilities and tests of achievement.
ment for individuals with autism. In D. J. Cohen & F. R. Volkmar Chicago, IL: Riverside.
(Eds.), Handbook of autism and pervasive developmental disorders
(pp. 691–706). New York: John Wiley.
Van Bourgondien, M. E., Reichle, N. C., & Palmer, A. (1997). Sexual Dawn Hendricks, PhD, is an assistant professor at Virginia
behavior in adults with autism. Journal of Autism and Commonwealth University. Her areas of interest include posi-
Developmental Disorders, 27, 113–125. tive behavior supports and transition for individuals with
Van Bourgondien, M. E., Reichle, N. C., & Schopler, E. (2003). Effects autism spectrum disorders.
of a model treatment approach on adults with autism. Journal of
Autism and Developmental Disorders, 33, 131–140.
Volkmar, F. R., Stier, D. M., & Cohen, D. J. (1985). Age of recogni-
Paul Wehman, PhD, is a professor in the Department of
tion of pervasive developmental disorder. American Journal of Physical Medicine and Rehabilitation; chairman of the Division
Psychiatry, 142, 1450–1452. of Rehabilitation Research; and director of the Virginia
Wagner, M., Marder, C., Blackorby, J., Cameto, R., Newman, Commonwealth University, Rehabilitation and Research
L., Levine, P., et al. (2003). The achievements of youth with Training Center on Workplace Supports and Job Retention.

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