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ARTICLES

Public Stigma in China Associated With Schizophrenia,


Depression, Attenuated Psychosis Syndrome, and
Psychosis-Like Experiences
Edwin Ho-Ming Lee, M.B.Ch.B., M.Sc., Christy Lai-Ming Hui, Ph.D., Elaine Yee-Ning Ching, M.Sc., Jingxia Lin, Ph.D.,
Wing-Chung Chang, M.B.Ch.B., Sherry Kit-Wa Chan, M.B.B.S., M.Phil., Eric Yu-Hai Chen, M.D.

Objective: Attenuated psychosis syndrome (APS) has re- Results: Schizophrenia received the highest public stigma
cently been included in the appendix of DSM-5 as a condi- ratings, followed by APS, depression, and psychosis-like
tion for further study. This study compared public stigma experiences. Total stigma scores were higher for the general
associated with four mental health conditions among study public than for health care professionals. Public stigma as-
participants in Hong Kong. sociated with APS was similar to that associated with de-
pression. Ratings of treatment carryover indicated that
Methods: The cross-sectional study involved 204 participants participants believed that being known to have received
(154 members of the general public general public and 50 treatment for APS or depression would have lasting
health care professionals) recruited through a public awareness consequences.
campaign and the e-mail network of the University of
Hong Kong. Participants read four vignettes describing per-
Conclusions: Stigma should be considered in the develop-
sons with schizophrenia, depression, APS, or psychosis-like
ment of mental health services and research in China, par-
experiences. For each vignette, they used a scale to rate their
ticularly in regard to people with schizophrenia and those at
level of stigma in seven domains: social distance, traditional
risk of psychosis.
prejudice, exclusionary sentiments, negative affect, perceptions
of dangerousness, treatment carryover, and disclosure carry-
over. Analyses compared ratings within and across vignettes. Psychiatric Services in Advance (doi: 10.1176/appi.ps.201500156)

Among people with mental illness, stigma has adverse effects to control, more unpredictable, and more dangerous
in multiple domains—from detection to treatment and re- than depression and less likely to be treated (9,11,12). In
covery (1–3). Antistigma and public awareness programs contrast, many view depression as easier to control than
have been conducted to minimize the impact of public schizophrenia, more predictable, less dangerous, and more
stigma on patients and their families, but the effectiveness of treatable; people are less likely to want to maintain social
such programs has been questioned (4,5). With the recent distance from individuals with depression (13). Severity of
emphasis on detecting and treating individuals in the pro- symptoms and deviation from normal behavior may also
dromal phase of psychosis, concerns have been raised about affect stigma (14–16).
whether stigma would spread to this at-risk population. These explanations of the effects of stigma may apply
Attenuated psychosis syndrome (APS), which is character- only when the illness is clearly understood. In the case of
ized by psychosis-like symptoms that are below the APS, people may not fully understand the condition, which
threshold for full psychosis, is included in DSM-5 under may affect their attitude toward the affected individual (17).
“conditions for further study.” Scholars continue to debate The symptoms of APS and schizophrenia are similar. Even
whether the condition should be classified as a separate di- though APS symptoms are less severe, people might base
agnostic entity and whether the risk of developing full- their understanding of APS on their knowledge of psychosis.
blown psychosis and the level of stigma associated with APS This study compared public stigma associated with APS and
are as substantial as they were thought to be (6,7). with schizophrenia, depression, and psychosis-like experi-
Schizophrenia has been viewed as a more stigmatized ences. We hypothesized that public stigma associated with
mental illness than depression (8–10). Many people believe APS is less than that associated with schizophrenia and
that schizophrenia is a brain disorder and that it is harder similar to that associated with depression and that public

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MENTAL ILLNESSES AND PUBLIC STIGMA IN CHINA

stigma is lower among individuals with more education and about the fear that persons from a group represent a threat of
previous contact with persons with mental disorders. violence to self or others. Treatment carryover is the belief
that being known to have received mental health care carries
long-lasting consequences. Disclosure spillover refers to the
METHODS
negative consequences of revealing one’s mental illness. The
Study Design SDSS uses a 4-point Likert scale (1, strongly agree; 2, agree; 3,
This cross-sectional study of public stigma used a vignette disagree; and 4, strongly disagree) to measure agreement with
methodology. A total of 204 Chinese participants were statements about each vignette. Each domain score was cal-
recruited through a public awareness campaign and through culated by summing responses from the relevant items and
the e-mail network of the University of Hong Kong. Indi- dividing by the total number of items in the domain. Scores
viduals age 18 and older who had never had a diagnosis of above the midpoint (2.0) indicated a stigmatizing attitude,
or treatment for a mental disorder and who consented to with higher scores indicating more severe public stigma.
participate were included. The study was approved by
the Institutional Review Board of the University of Hong Statistical Analyses
Kong/Hospital Authority Hong Kong West Cluster and Statistical analyses were conducted with SPSS, version 20.0.
performed in accordance with ethical standards of the 1964 The Kolmogorov-Smirnov test was used to test for normality
Declaration of Helsinki and its later amendments. Basic of noncategorical variables, and Wilcoxon signed-rank tests
demographic information, including age, gender, current were used to examine differences in scores between pairs of
occupation, and education level, was collected. Previous vignettes. Kruskal-Wallis or Mann-Whitney tests examined
contact with persons with mental illness was also noted on differences in scores between demographic variables.
the basis of questions adapted from Alexander and Link (18).
Participants read four vignettes describing individuals with
RESULTS
APS, schizophrenia, depression, or psychosis-like experiences
and responded online. They used a seven-domain stigma scale Demographic Characteristics
(SDSS) to rate their level of public stigma associated with each As shown in Table 1, 204 participants (154 from the general
of the four individuals in the vignettes. [The four vignettes are public and 50 health care professionals) completed the
included in an online supplement to this article.] questionnaires. The mean age of the 204 participants was
27.3. Seventy percent were female, and 64% had un-
Measures dergraduate or postgraduate degrees. Most participants did
Each of the vignettes objectively described symptoms and not have relatives or close friends who had been hospitalized
functioning of the person with the disorder. The schizophrenia in a psychiatric unit. However, about half (43%) had worked
and depression vignettes stated the diagnosis and were pre- or volunteered in mental health services.
viously used in study by Pescosolido and colleagues (19). The APS
vignette described the likelihood of transition to psychosis as Domain Scores Across Vignettes
follows: “People at high risk of psychosis have not yet developed As shown in Table 2, total stigma scores were highest for
a full psychotic disorder but have some symptoms that might schizophrenia, followed by APS, depression, and psychosis-
lead to a future psychotic disorder. However, only 35% of these like experiences. For both schizophrenia and psychosis-like
individuals will go on to exhibit psychosis within 2.5 years of experiences, total stigma scores and all domain scores dif-
identification” (20). The vignette on psychosis-like experiences fered significantly (p,.001) from scores for the other vi-
described a person with no psychiatric diagnosis and normal gnettes. For APS and depression, only the domain score for
functioning who experienced transient psychotic symptoms. treatment carryover differed significantly.
English versions of the Chinese vignettes were back-translated For APS and depression, the order of domains as ranked by
by a professional translator and proved to be satisfactory. score was similar; the domain with the highest score for both
The SDSS is a 27-item questionnaire about public stigma vignettes was disclosure spillover, followed by perception of
adopted from Pescosolido and colleagues (19). The scale dangerousness, and treatment carryover. For APS, the two
measures seven major domains of public stigma, including domains with the next-highest scores were social distance
social distance, traditional prejudice, exclusionary senti- and traditional prejudice, followed by negative affect and
ments, negative affect, perceptions of dangerousness, treat- exclusionary sentiments. In contrast, for depression, the two
ment carryover, and disclosure carryover. Social distance domains with the next-highest scores were traditional prej-
refers to reluctance to interact with members of a group. udice and social distance, also followed by negative affect and
Traditional prejudice refers to adherence to the belief that exclusionary sentiments. However, there was no significant
all members of a group are categorically inferior to others. difference between domain rankings for depression. For
Exclusionary sentiment refers to the willingness to exclude schizophrenia, domain rankings were as follows (from highest to
people from a group from the full benefits of citizenship. lowest score): disclosure spillover, perception of dangerousness,
Negative affect refers to public views that people from a group treatment carryover, social distance, negative affect, traditional
are difficult to interact with. Perception of dangerousness is prejudice, and exclusionary sentiments. Significant differences

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LEE ET AL.

TABLE 1. Characteristics of 204 participants in a vignette study vignette, total scores of participants from the general public were
of public stigma higher than scores of health care professionals (Z=23.0, p,.01);
Characteristic N % the scores for these two groups did not differ significantly for
Participant group any other vignette. For the APS vignette, some domain scores
Public 154 76 (data not shown) were also significantly higher for the public
Health care professional 50 25 group than for the professional group: social distance (Z=22.86,
Age (M6SD) 27.3610.5 p,.01), negative affect (Z=23.98, p,.001), and perceptions of
Gender dangerousness (Z=22.39, p,.05). No significant differences
Male 62 30
between rankings were found by gender and age for any vignette.
Female 142 70
Significant differences in total stigma scores were found
Education level
Primary 1 1
by education level for both the APS and the schizophrenia
Secondary 18 9 vignettes. For the APS vignette, participants who had a high
Diploma 53 26 school diploma had significantly higher scores than partic-
Undergraduate degree 76 37 ipants in the other education-level groups (x2=12.8, df=4,
Postgraduate degree 55 27 p,.05). For the APS vignette, scores in two domains (data
Missing 1 1
not shown) were also significantly higher for those with a
First-degree relatives hospitalized
high school diploma than for those in the other education-
Self 3 2
Parent 6 3 level groups: traditional prejudice (x2=11.7, df=4, p,.05) and
Children 1 1 negative affect (x2=13.0, df=4, p,.05). For the schizophrenia
Sibling 4 2 vignette, participants without a high school diploma (sec-
No 188 92 ondary level) had significantly higher scores than those in
Missing 2 1
the other education-level groups on one domain: treatment
Other relative hospitalized carryover (x2=11.1, df=4, p,.05).
Yes 22 11
No 180 88
For all vignettes, total stigma scores of participants who
Missing 2 1 reported working or volunteering in mental health services
Close friend or spouse hospitalized were significantly lower than total scores of participants
Close friend 16 8 who reported no such experiences (Table 3). For the APS
No 186 91 vignette, not only did the total stigma score differ between
Missing 2 1 these groups (x2=24.1, df=2, p,.001), but the scores on five
Worked or volunteered in mental health services domains (data not shown) also differed: social distance
Worked 50 25 (x2=25.7, df=2, p,.001), traditional prejudice (x2=10.2, df=2,
Volunteered 37 18
No 121 59
p,.01), negative affect (x2=26.0, df=2, p,.001), perception
Missing 29 14 of dangerousness (x2=13.2, df=2, p,.001), and treatment
Visited psychiatric hospital for purpose other carryover (x2=8.6, df=2, p,.01). For the schizophrenia vi-
than treatment gnette, scores between the general public and health care
Yes 74 36 professionals differed for two domains: negative affect
No 130 64 (x2=8.0, df=2, p,.05) and treatment carryover (x2=9.8, df=2,
Saw someone in public who seemed mentally ill p,.01). For the depression vignette, scores between the two
Often 18 9 groups differed only for the domain of treatment carryover
Sometimes 144 71
Almost never 36 18
(x2=8.9, df=2, p,.05). For the psychosis-like experiences
Never 5 3 vignette, scores between the two groups differed for two
Missing 1 1 domains: exclusionary sentiments (x2=8.5, df=2, p,.05) and
negative affect (x2=8.6, df=2, p,.01).
Finally, for the APS vignette, participants who reported
with other vignettes were noted for social distance (Z=22.00, encountering someone in public who appeared to be mentally
p,.05) and negative affect (Z=21.97, p,.05). For psychosis- ill either often or sometimes had higher scores on two domains
like experiences, domain rankings were as follows: disclosure than those who reported almost never having such encounters
spillover, treatment carryover, traditional prejudice, social dis- (data not shown): exclusionary sentiments (x2=1.0, df=3, p,.05)
tance, dangerousness, exclusionary sentiments. Significant and negative affect (x2=15.3, df=3, p,.01).
differences with other vignettes were noted for treatment
carryover (Z=22.09, p,.05), and exclusionary sentiments
DISCUSSION
(Z=22.11, p,.05).
In this cross-sectional study involving 204 participants, we
Total Scores Across Vignettes by Characteristic found that the stigma scores of the general public were
Table 3 presents total public stigma scores for each vignette highest for schizophrenia, followed by APS, depression, and
by demographic and other characteristics. For the APS psychosis-like experiences. Of note, stigma scores indicated

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MENTAL ILLNESSES AND PUBLIC STIGMA IN CHINA

TABLE 2. Scores of 204 participants on seven domains of public stigma, by mental health or not they were a health care
conditiona professional, and whether they
Psychosis-like worked or volunteered in men-
Schizophrenia APS Depression experiences tal health services.
Total score and domain M SD M SD M SD M SD Studying public stigma as-
Total score 2.45* .43 2.22 .36 2.10 .38 1.79* .44 sociated with various mental
Domain health conditions is important
Social distance 2.53* .58 2.24 .49 2.08 .51 1.77* .54 because stigma can affect help-
Traditional prejudice 2.31* .44 2.14 .45 2.09 .45 1.81* .59
seeking behavior and recovery.
Exclusionary sentiments 2.20* .95 1.97 .48 1.96 .52 1.64* .48
Negative affect 2.42* .70 2.02 .57 2.01 .57 1.64* .52 Public stigma associated with
Perceptions of dangerousness 2.56* .63 2.38 .68 2.31 .55 1.76* .62 APS was found to be weaker
Treatment carryover 2.56* .60 2.31* .90 2.15* .64 1.86* .71 than that associated with
Disclosure spillover 2.61* .45 2.52 .44 2.34 .51 2.04* .58 schizophrenia, whereas stigma
a
APS, attenuated psychosis syndrome. Possible scores range from 1 to 4, with higher scores indicating more severe associated with APS and de-
stigma. pression was similar. This
*p,.001, for difference with scores of all other vignettes
finding suggests that sub-
stantial public stigma is asso-
that APS and depression were perceived similarly by study ciated with APS; being known to have received treatment for
participants; however, significantly higher scores for APS on APS was perceived as having lasting consequences. The
the domain of treatment carryover indicated that partici- findings also suggest potential stigma reduction strategies;
pants believed that being known to have received treatment for example, the public should be informed about the high
for APS would have more lasting consequences than treatment remission rate among individuals who experience psy-
for depression. Demographic and other characteristics chotic symptoms and the potential for complete recovery.
appeared to have affected stigma scores for the four mental A positive finding is that even though symptoms of APS
health conditions, with the largest effects seen for APS. and schizophrenia have similar presentations, stigma scores
Characteristics that affected stigma included participants’ were lower for APS. This finding may be related to un-
education level, the frequency with which they encountered certainty about whether all individuals with APS transition
in public someone who appeared to be mentally ill, whether to a full-blown psychotic disorder.
Ranking by score on stigma
domains for schizophrenia dif-
TABLE 3. Total public stigma scores of 204 participants, by mental health condition and participant fered more than for the other
characteristica conditions. For schizophrenia,
Psychosis-like higher scores were given to
APS Schizophrenia Depression experiences “immediate emotion-focused”
Characteristic M SD M SD M SD M SD domains, such as perceptions
Participant group
of dangerousness, negative
Public 2.27 .09 2.41 .11 2.17 .10 1.86 .10 affect, and social distance, and
Professional 2.14 .06 2.41 .12 2.11 .07 1.86 .10 scores for “higher-order social
Gender values,” such as traditional
Male 2.19 .08 2.47 .07 2.14 .09 1.92 .14 prejudice, were lower (19,21).
Female 2.22 .07 2.39 .11 2.14 .08 1.83 .08 This finding may result from
Education level differences in how the public
Secondary 2.22 .15 2.41 .04 2.26 .15 2.06 .17 perceives the role of biopsy-
Diploma 2.49 .09 2.49 .05 2.38 .10 2.17 .11
Undergraduate degree 2.17 .07 2.35 .13 2.05 .09 1.74 .09
chosocial factors in these
Postgraduate degree 2.19 .10 2.49 .11 2.18 .10 1.96 .15 illnesses. The public may
Worked or volunteered in mental view biopsychosocial factors
health services as playing a larger role in
Work 1.95 .09 2.17 .21 1.94 .11 1.58 .12 APS and depression, com-
Volunteer 2.23 .12 2.43 .23 2.14 .18 1.96 .20 pared with schizophrenia (22).
No 2.32 .07 2.52 .07 2.23 .08 1.97 .09
In addition, the public may
Saw someone in public who seemed view the individual affected by
mentally ill
Often 2.20 .17 2.83 .02 1.91 .31 1.74 .41
APS or depression as being
Sometimes 2.24 .06 2.48 .07 2.19 .07 1.87 .08 more responsible for having
Almost never 2.08 .13 2.04 .30 1.97 .18 1.85 .17 the illness, as reflected in the
a
APS, attenuated psychosis syndrome. Possible scores range from 1 to 4, with higher scores indicating more severe scores for traditional preju-
stigma. dice and negative affect.

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LEE ET AL.

This study had several limitations. First, the study did 4. Smith M: Anti-stigma campaigns: time to change. British Journal
not assess self-stigma. Second, there was no qualitative in- of Psychiatry. Supplement 55:s49–s50, 2013
5. Zoppei S, Lasalvia A: Antistigma campaigns: really useful and ef-
vestigation of participants’ stigma perceptions, which may
fective? A critical review of the anti-stigma initiatives conducted in
have provided additional insight into beliefs held by the Italy [in Italian]. Rivista di Psichiatria 46:242–249, 2011
general public. Third, the concept of APS is relatively new, 6. Shrivastava A, McGorry PD, Tsuang M, et al: “Attenuated psy-
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we provided a working definition of APS for participants, agnosis in DSM-V: the debate. Indian Journal of Psychiatry 53:
57–65, 2011
their stigma ratings may also have depended on their pre-
7. Yung AR, Woods SW, Ruhrmann S, et al: Whither the attenuated
vious knowledge or experiences. Fourth, the participants psychosis syndrome? Schizophrenia Bulletin 38:1130–1134, 2012
may not have been representative of the larger population. 8. Kelly CM, Jorm AF: Stigma and mood disorders. Current Opinion
Fifth, although the vignettes were reviewed by local expe- in Psychiatry 20:13–16, 2007
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of Social Psychiatry 58:69–78, 2012
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depression groups. Finally, our study was limited to the in- family members of individuals with schizophrenia and major af-
vestigation of public stigma in the Chinese culture, and fective disorders in rural Ethiopia. Social Psychiatry and Psychi-
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Future studies of APS in countries with different beliefs and
and depression: similarities and differences. Social Psychiatry and
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CONCLUSIONS
chiatry and Psychiatric Epidemiology 40:391–395, 2005
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acquisition in schizophrenic and major affective disorder patients
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AUTHOR AND ARTICLE INFORMATION 2010
The authors are with the Department of Psychiatry, University of 18. Alexander L, Link B: The impact of contact on stigmatizing atti-
Hong Kong, China (e-mail: edwinlhm@hku.hk). tudes toward people with mental illness. Journal of Mental Health
The authors report no financial relationships with commercial interests. 12:271–289, 2003
19. Pescosolido BA, Medina TR, Martin JK, et al: The “backbone” of
Received April 22, 2015; revision received September 15, 2015; accepted
stigma: identifying the global core of public prejudice associated
October 26, 2015; published online March 15, 2016.
with mental illness. American Journal of Public Health 103:853–860,
2013
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