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  • EDS KC Sep Seminar

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    Abbey Rose
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    Call to Action - Ever wish your healthcare providers knew more about EDS? If so, help us be visible and teach our health care providers more about EDS via this unique opportunity! Please save the date for September 7 to learn and also educate your physicians and healthcare professionals about Ehlers-Danlos Syndromes (EDS) via a day long EDS and Associated Conditions seminar. I am attaching fliers for you to print and take to your health care providers. To encourage participation, CME for doctors will be provided, as well as, certificates of attendance for nurses and other ancillary health care professionals. The Elhers-Danlos Syndromes and Associated Awareness and Education Seminar will feature renown national EDS experts including Dr. Pradeep Chopra (pain management), Dr. Anne Maitland (immunologist and mast cell expert) and Dr. Ellen Elias (clinical pediatric geneticist). Local speakers from KU and CMH will also be presenting. I have worked full-time over the past year to make this event happen and traveled to other EDS conferences to recruit speakers and learn. Dr. Eric Rush, clinical geneticist at CMH, Dr. Jordan Jones, pediatric rheumatologist at KU, and I have been meeting for many months to plan this event. Registration will begin in April/May via our new EDSKC Collaboration Inc. website at www.EDSKC.org. I will also be handing out professionally printed fliers during future support group meetings and potentially other events. A local seminar of this nature for EDS has never been done before and is a true collaboration of patient advocates, local physicians and national EDS experts. It is a first step toward educating local doctors and beginning to foster collaborations locally and nationally between medical health professionals.

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    Call to Action - Ever wish your healthcare providers knew more about EDS? If so, help us be visible and teach our health care providers more about EDS via this unique opportunity! Please save the date for September 7 to learn and also educate your physicians and healthcare professionals about Ehlers-Danlos Syndromes (EDS) via a day long EDS and Associated Conditions seminar. I am attaching fliers for you to print and take to your health care providers. To encourage participation, CME for doctors will be provided, as well as, certificates of attendance for nurses and other ancillary health care professionals. The Elhers-Danlos Syndromes and Associated Awareness and Education Seminar will feature renown national EDS experts including Dr. Pradeep Chopra (pain management), Dr. Anne Maitland (immunologist and mast cell expert) and Dr. Ellen Elias (clinical pediatric geneticist). Local speakers from KU and CMH will also be presenting. I have worked full-time over the past year to make this event happen and traveled to other EDS conferences to recruit speakers and learn. Dr. Eric Rush, clinical geneticist at CMH, Dr. Jordan Jones, pediatric rheumatologist at KU, and I have been meeting for many months to plan this event. Registration will begin in April/May via our new EDSKC Collaboration Inc. website at www.EDSKC.org. I will also be handing out professionally printed fliers during future support group meetings and potentially other events. A local seminar of this nature for EDS has never been done before and is a true collaboration of patient advocates, local physicians and national EDS experts. It is a first step toward educating local doctors and beginning to foster collaborations locally and nationally between medical health professionals.

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    EDS KC Sep Seminar

    Transféré par

    Abbey Rose
    Call to Action - Ever wish your healthcare providers knew more about EDS? If so, help us be visible and teach our health care providers more about EDS via this unique opportunity! Please save the date for September 7 to learn and also educate your physicians and healthcare professionals about Ehlers-Danlos Syndromes (EDS) via a day long EDS and Associated Conditions seminar. I am attaching fliers for you to print and take to your health care providers. To encourage participation, CME for doctors will be provided, as well as, certificates of attendance for nurses and other ancillary health care professionals. The Elhers-Danlos Syndromes and Associated Awareness and Education Seminar will feature renown national EDS experts including Dr. Pradeep Chopra (pain management), Dr. Anne Maitland (immunologist and mast cell expert) and Dr. Ellen Elias (clinical pediatric geneticist). Local speakers from KU and CMH will also be presenting. I have worked full-time over the past year to make this event happen and traveled to other EDS conferences to recruit speakers and learn. Dr. Eric Rush, clinical geneticist at CMH, Dr. Jordan Jones, pediatric rheumatologist at KU, and I have been meeting for many months to plan this event. Registration will begin in April/May via our new EDSKC Collaboration Inc. website at www.EDSKC.org. I will also be handing out professionally printed fliers during future support group meetings and potentially other events. A local seminar of this nature for EDS has never been done before and is a true collaboration of patient advocates, local physicians and national EDS experts. It is a first step toward educating local doctors and beginning to foster collaborations locally and nationally between medical health professionals.

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    Ehler-Danlos Syndromes

    and Associated Conditions


    Awareness and Education Seminar
    What: One day seminar about Ehlers-Danlos Syndromes and its associated
    conditions including genetics, cardiology/dysautonomia, immunology, pain

    PRESENTS management, physical therapy, psychology and other key topics.

    When: Saturday, September 7th, at University of Missouri Kansas City


    Pierson Auditorium

    September Target Audience: Physicians, patients, other health care providers and
    community stakeholders. CME will be provided by Children's Mercy Kansas
    7th, 2019 City.
    8:30AM - 4:00PM
    Presenters: National leaders in the field and speakers from Children's
    Mercy Kansas City, University of Kansas Health System and other local EDS
    experts

    This seminar is a collaborative effort between local health care professionals


    and EDSKC Collaboration Inc., a Kansas City advocacy organization focused
    University of Missouri on awareness and care for Ehlers-Danlos Syndromes (EDS) and
    Kansas City Hypermobility Spectrum Disorders (HSD).
    Pierson Auditorium
    Anne Maitland, MD, PhD
    Atterbury Student
    Success Center
    Confirmed Speakers Department of Medicine, Division of Allergy &
    Clinical Immunology
    Mount Sinai Hospital
    Eric T. Rush, MD, FAAP, FACMG
    Assistant Professor
    Clinical Geneticist
    Icahn School of Medicine at Mount Sinai
    Children's Mercy Hospital
    New York, NY
    Associate Professor of Pediatrics
    University of Missouri - Kansas City School of Medicine
    Pradeep Chopra, MD, MHCM
    Kansas City, MO
    Director, Pain Management Center
    5000 Holmes St., Assistant Professor (Clinical)
    Ellen Roy Elias, MD Brown Medical School
    Kansas City, MO Clinical Geneticist, Director, Special Care Clinic Providence, RI
    Children's Hospital Colorado
    64110 Professor, Pediatrics and Genetics William R. Black, PhD, HSP
    University of Colorado School of Medicine Assistant Professor
    Aurora, Colorado University of Kansas Medical Center
    Department of Pediatrics, Division of Behavioral
    Lindsey E. Malloy-Walton, DO, MPH Pediatrics
    Pediatric Electrophysiologist, Pediatric Cardiology Kansas City, Kansas
    Children's Mercy Hospital
    Assistant Professor of Pediatrics Noelle Dowma, DPT, BFA, PMA-CPT
    University of Missouri - Kansas City School of Medicine (Pilates Method Alliance-Certified Pilates
    CME Provided by: Teacher)
    Kansas City, MO
    Children’s Mercy Kinesphere Physical Therapy and Pilates
    Kansas City Overland Park, Kansas

    www.EDSKC.org
    Full program brochure and registration will be available in April/May 2019.

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