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DOI: 10.1590/1413-81232018245.

10602017 1723

Ways of seeing and doing: health, disease and care in marketers’

article
family units

Milena Nascimento Guirra Saturnino (https://orcid.org/0000-0002-6344-1984) 1


Tamires Pereira dos Santos (https://orcid.org/0000-0003-0606-9984) 1
Paulo Roberto Lima Falcão do Vale (https://orcid.org/0000-0002-1158-5628) 2
Maria Geralda Gomes Aguiar (in memorian) 1

Abstract The concepts of health, disease, care


and care practices in family units of marketers
in Feira de Santana (BA), Brazil, are the object
of the study, which aimed to understand the re-
lationships between the concepts of health, dis-
ease, care and ways of seeing their care practices.
An exploratory research through qualitative ap-
proach was conducted with 16 marketers through
a semi-structured interview. The corpus was sub-
mitted to thematic content analysis. The concepts
about health, disease and care are linked to the
explanatory models of health-disease process em-
anating from the professional sector of care and
to the socially constructed of action rationales
and are coordinated with the ways of daily act-
ing to provide care. The family stands out in the
care of its members through solidarity, leveraging
resources in order to overcome health problems.
Among the therapeutic options, the marketers use
the informal sector, especially home care provided
by their support network. The family is a network
1
Núcleo de Estudos of social support that assumes a moral and sol-
e Pesquisas sobre idary duty in the provision of health care to its
o Cuidar/Cuidado, members without relinquishing the healthcare
Universidade Estadual
de Feira de Santana. Av. networks.
Transnordestina s/n, Novo Key words Health-disease process, Family, Care,
Horizonte. 44036-900 Feira Social support
de Santana BA Brasil.
mil.n.s.saturnino@
gmail.com
2
Universidade Federal do
Recôncavo da Bahia. Santo
Antônio de Jesus BA Brasil.
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Saturnino MNG et al.

Introduction Care is part of the health-disease process9,


consisting of symbols and meanings that perme-
The critical issues of research on family and care ate family relationships, and allow its members to
aim to establish the adopted family concept, to organize, understand, interpret, relearn and face
define the perspectives through which the rela- barriers to overcome health problems.
tionship between family and care are being ad- In this study, care is assumed as a phenome-
dressed, and to have a theoretical reference that non in the existential sphere, as that which is part
can guide the empirical material’s analysis pro- of being, endowed with rationality, cognition,
cess. Thus, in this research, whose objects are sensitivity and feelings; care confers humanity.
the concepts of health, disease, care, and care It is relational or co-existential, since it occurs
practices in family units of marketers in Feira vis-à-vis the other, and also contextual, insofar
de Santana (BA), the family is understood as a as, for its practice, it is necessary to consider the
complex institution, a social body and a social- circumstances in which it occurs, assuming vari-
izing agency ensuring social reproduction. Other ations, intensities and differences in its ways of
concepts around the family indicate that it tran- providing care10.
scends blood ties, and its members are united by These forms of care, also called caregiving or
affection, identification or needs1,2. care practices, are ways of doing of population
The family unit is the first reference of an in- groups referenced in their life contexts, seeking
dividual’s health care system, mainly due to the to identify practices related to their health and
care inherent to family life. It is a social body disease experiences. That said, care practices may
whose members have shared experiences of sick- be linked to ways of acting in which individuals
ness and culture and live the health-disease pro- and their families seek alternatives based on their
cess in a similar way1. rationale of action, and not only those linked to
Family care, the primary core of care, encom- norms and rules underlying a given culture11.
passes health, well-being and happiness. In gener- Therefore, care practices are present in the
al terms, in the illness of any of its members, it re- family units of the most diverse social groups,
arranges the ways of living and caring, because the classes, and ethnicities. Each social and family
process of illness reaches the whole family unit3, group will address health needs by developing
requiring the satisfaction of new care needs4,5. means or practices that consist of care strategies
The family builds a particular world of and tactics, according to their culture, values,
meanings, knowledge and practices in line with beliefs, education, access to formal and informal
its sociocultural environment and daily experi- health services networks, and socio-familial sup-
ences within and outside the family. Moreover, port networks11-13.
this context includes the realm of health and the The research problem was structured based
search for care systems5,6. The concepts about on the following guiding questions: What are the
health, disease and care are related to the char- concepts of health, disease, care, and care practic-
acteristics of the sociocultural context and the es of marketers’ families working at the Feira de
subjective experience of each subject7. Santana Supply Center (CAF) in Bahia? How do
These concepts are historical and social con- family health-disease-care concepts interrelate in
structions linked to the historical, social, eco- coping with the health-disease process? Based on
nomic and political moment experienced by a these questions, this work aimed to understand
certain generation in a territory. As a result, pop- the interrelationships between health, disease,
ular theories are elaborated8 and develop from care, and how workers in the in Feira de Santana
the material conditions of existence and daily ex- CAF see care practices in their family units.
periences4. These theories reorganize and shape We highlight the relevance of considering
themselves around scientific knowledge, while marketers as social actors of the research because
taking into account the influence and relevance they are a group of informal workers about which
of a common knowledge learned and passed there are few studies focusing on their ways of
from generation to generation to family mem- seeing and doing concerning health, disease and
bers, observing a family hierarchy. care in their family units; as a network of mutual
Recognizing the health-disease process, as support that mobilizes efforts and reorganizes it-
well as care practices as spaces of interaction self before health needs12.
between social subjects in their life context, the Farmers also have peculiarities concerning
concepts of health, disease and care range from the environment and working conditions, ex-
the most biologicist to the most holistic7. posure to risk factors, and protection, which put
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Ciência & Saúde Coletiva, 24(5):1723-1732, 2019


them in a situation of vulnerability concerning out, which allowed us to arrive at a first impres-
disease and care required to meet their health sion of the corpus, followed by the definition of
needs14. registration units, context units and empirical
Working on the family-centered health-dis- categories. Then, we proceeded with the analy-
ease process is still a challenge since this unit sis, or material exploitation, which consisted in
has singularities. Therefore, understanding the successive readings of the corpus, in order to car-
meanings assigned to care and ways of providing ry out its codification, through theme clustering
care in the family’s daily living is a complex and into units that would allow the description of the
challenging social dynamic5. relevant characteristics of the content. Finally,
the results were addressed, in which an under-
standing of the underlying content was sought
Methods by inference and interpretation.
The data analysis and interpretation process
This is an exploratory research with a qualitative enabled the elaboration of the empirical catego-
approach. The empirical field was the Feira de ries: Concepts of health, disease, care, and ways
Santana Supply Center (CAF), in Bahia (Bahia), of seeing care practices; Family leadership in care
Brazil, which gathers retailers and wholesalers of practices; Performance of social and professional
foodstuffs and handicraft products. Sixteen par- support networks in the health-disease-care pro-
ticipants from both genders who worked at the cess.
CAF with family members were selected, and
the initial inclusion criterion was to have been
working for at least six months, and to accept Results
to participate in the study after initial contact
and explanation of the study proposal, with the Sixteen marketers, eleven women and five men,
clarification of the possible risks and benefits who were working at the CAF with family mem-
of the investigative process. Confidentiality and bers participated in the study. They originated
anonymity were preserved through the adoption from Feira de Santana (BA) and other cities in
of pseudonyms. Marketers who worked alone or the metropolitan region, and from the states of
those with employees with whom they had no Pernambuco and Minas Gerais. Women were
family ties were excluded from the study. aged 20-68 years, and men 36-66 years. The mar-
Data were collected and information pro- keters self-declared as white, brown and black.
duced through a semi-structured interview, so Most were married, six of the respondents
that the marketers could discuss the proposed were single, and the number of people residing
theme, defining the terms of their answers with- in the same household was between two and six.
out previously fixed conditions15. The monthly income ranged from one half to
The progressive listening of social actors eight minimum wages; schooling ranged from
took place until the concepts, explanations and five to 17 years of study, from incomplete pri-
meanings attributed by them to health, disease mary education to incomplete higher education;
and care were regular, which was a criterion of however, the years of study included drop-outs
saturation, which was understood as when it was and repetition years. Concerning religion, they
“possible to identify symbolic patterns, practices, self-declared Catholics and evangelicals.
classificatory systems, categories of reality anal- The marketer’s activity is the only occupation.
ysis and worldviews of the universe in question, The working day lasts 10-13 hours on average.
and recurrences [...]”16. This study observed The time of operation as marketer ranged from
the ethical precepts of human research and was one to twenty-three years. In the tent, stand or
based on respect for the autonomy of social ac- warehouse, which are the working environments
tors, treating them with dignity, maintaining a in the CAF, the number of family members work-
posture of respect vis-à-vis their ways of think- ing in the area ranged from two to five. The bond
ing about health-disease and providing care. The between the relatives is father-mother-child, who
Human Research Ethics Committee of the State underpin the family core, and uncles, nephews
University of Feira de Santana (CEP/UEFS) ap- and cousins, who make up the extended family.
proved the research, observing Resolution Nº The duties performed are seller, store clerk and
466/12 of the National Health Council. cashier.
We used thematic-related content analysis. The following category describes how con-
From this choice, initial readings were carried cepts about health and disease relate to the con-
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Saturnino MNG et al.

cepts of care or even ways of practicing care in society, in which the idea of being sick is associat-
the family context. ed with the inability to generate work.
Some concepts of caring somehow approxi-
Concepts of health, disease, care, mate the concepts of health reported by the mar-
and ways of seeing care practices keters. Therefore, a biological realm of the idea
of caring is present (visits, periodic tests, health
The health-disease-care process concepts understood as the absence of disease), and, nev-
are related to the care practices when the way of ertheless, other concepts take on broader realms
understanding the world and its social dynam- of disease prevention. Care, as the name is already
ics legitimize actions, attitudes, interpersonal saying, is to take care of the body, right? Caring for
relationships, orientations and advice. In this re- food, eating correctly, going to the doctor at least
lationship, health is attributed to an idea linked once a year. (Matheus).
to the use of hygienic practices, above all, those Care can be taken by carrying out preven-
required for food cleaning, which is taken as care tive practices: taking care of food, paying a visit
action. Health is everything, it is hygiene, wash- to the doctor periodically; or healing practices
ing hands, when going to the bathroom, washing such as buying the prescribed medication. In ful-
your hands, washing your hands before you pick up filling these needs, one takes care of the family
food [...] (Maria). Maria ratifies the reductionist to preserve life and provide essential subsistence
health-disease concepts, by emphasis on biolog- resources.
icism, adopting hygienic practices as health and It is argued that despite the indistinction re-
disease avoidance measure. garding concepts of care and health, often pres-
Disease is perceived in analogy to the func- ent in the perception of the marketers, a more
tioning of a machine; it is noted that something comprehensive notion of care is found. While
is not within the “normal” and, thus, marketers unlike health, it can do without the relationship
associate disease with some biological body dis- with the process of illness, by imbricating inborn
order; it is when signs and symptoms manifest aspects to the human being. In this line, caring
themselves in the body and the marketers express assumes an affective dimension, with aspects re-
them when referring to malaise or pain. Illness is lated to happiness, and social dimension, related
when you do not feel well, the body is fading, with- to the needs of the family as a social body.
out strength, without courage, feeling pain. (Lia). The ontological realm of caring – in its true
Thus, feeling good for the marketer is not made meaning – is revived by Jacó and Naomi, insofar
of the various realms of well-being (physical, so- as they understand caring as concern, zeal, atten-
cial, mental), it boils down to the proper func- tion, as a process inherent to the human essence.
tioning of the organs and not feeling pain. According to Jacó, care refers to you caring, loving,
The health concepts are social constructions because who loves cares, isn’t that so? The concept
and can be resignified by subjectivities. They car- is love; you love, you care. Naomi, in turn, said:
ry influences of experiences and assume a value [...] It depends on each one. We have to take care of
relative to living life, and living it in the best pos- ourselves first, to value ourselves; take care of myself
sible way. There seems to be an understanding and then take care of the other. The statements re-
that to make life pleasant, one must be healthy. fer to the human meaning of caring, an altruistic
Health is life because without it, you don’t have a meaning, inherent to the human being because it
life. Health is what makes you alive, right? (Jacó). is understood that care is intrinsic when consid-
For marketers, life depends on the state of health. ered a subjective competence.
The health concept, in this vision, expands Based on these reflections, the following cat-
and makes sense when feeling alive, in the capac- egory addresses the importance attributed by
ity to work and enjoy life. Health is to live well, is marketers to family care in care practices, a pro-
to be willing to work, to be without disease, without cess in which the family provides care and pro-
stress, to do physical exercise, to walk, right? [...]. motes health.
(Raquel). There is a concept of health that en-
compasses health promotion practices. Accord- Family leading role in care practices
ing to Naomi: the disease stops everything in life,
being sick is horrible [...] sometimes you stop work- The family can be understood as a leading
ing, stop studying because of the disease [...]. Also, unit of human development, standing out in
we can perceive social aspects of the concept of care practices. Thus, solidarity in the family unit
health-disease through the influence of capitalist is reaffirmed to strengthen the forces aiming at
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Ciência & Saúde Coletiva, 24(5):1723-1732, 2019


overcoming health problems. Our family is very ing the family as a source of strength and union
united. When necessary, everyone is willing to pro- articulates with the thought that there are ideal
vide care, accompany to the doctor, stay at the hos- ways of acting: in caring, in love and affection
pital, give support and comfort as well. (Marta). that are provided as care practices and as strength
We notice that, for Marta, all the relatives can restorer of diseases, even considering the indi-
participate in the practice of care. She says any viduality of each member, their personality and
family member, when triggered, will be willing to their attitudes.
join other family members and enhance care. An However, the feeling of family union brings
idea is in the air where everyone can and should living experiences; it is necessary to reflect how
take care, either as an “obligation”, a family duty, the family relationships, previously conflicting
or as a responsibility towards the other, readily and distant, will be established. Is the phenome-
assumed, without impositions. non of illness capable of mitigating or eliminat-
The woman-caregiver figure stood out in ing such characteristics of family relationships
the statements, signaling that even the woman for the sake of healing? Jacó believes the family
of modern society, when assuming other social must provide support and care until the resto-
roles, internalized the role of caregiver, monop- ration of “health conditions”. However, when
olizing knowledge and care practices. As a result, dealing with chronic illness, for example, such
the still sexist society naturalizes and submits a practice can result in the rupture of the daily
women to a domestic scenario, something that routine of family members who exercise care, or
occurs mainly in the popular classes. [...] I be- in abandoning caregiving.
lieve the mother always takes greater care, unlike In short, the family is one of the components
the father [...] when it comes to illness, I think it’s of the social support network in the health-dis-
even more important. (Judith). She is responsible ease process and works together with other (for-
for “greater care”, surrounded by attention, dili- mal and informal) institutions that complement
gence, and love, and it seems, thus, natural that it health networks in the professional context. This
is up to her to take care of the practical aspects in thematic approach is outlined in the following
a situation of illness, such as taking to the doctor, category.
for example.
The family is valued as an area of security, Performance of social and professional
care and transmission of values, and, in certain support networks in the health-disease-care
aspects, it approaches the concept of contempo- process
rary family that exercises its citizenship through
responsibility with the health-disease process, in The concepts of health, disease and care in-
its political connotation. Thus, the health services terfere in the way of acting and moving across the
are charged by the subjects as bodies that ensure health services underpinning the care systems.
the right to health. We have the Community Health Thus, one cannot speak of the health-disease-care
Worker. If it is something we cannot go to, it is up to process without relating it to the concrete expe-
the Health Worker’s obligation to go. (Maria). rience of having transited through the network
Maria emphasizes the role of the Commu- of health services, whether public or private. We
nity Health Worker (ACS) as a mediator in the usually go to the health post in the neighborhood,
relationships between families and the primary right? If we cannot solve things there, we must seek
healthcare facility to meet health needs. These, in another resource in the private service. (Acsa).
turn, presuppose the sharing of rights and duties Social actors seek assistance to their
between users and health services. health-disease process through the health ser-
The family becomes a primordial resource vices provided by formal and informal care sys-
for the health-disease-care process, reiterating tems. These services refer to the professional do-
its supportive role, which provides objective and ing or approaching this through the empiricism
subjective resources for the reestablishment of of non-specialists, who through popular wisdom,
health. The family has to be in the first place [...] support health needs through advice on the use
to be united, to be together. As it is said, union is of home remedies. Care is provided by the peo-
strength. [...]. Marriage is fundamental, this love, ple who are prepared for it, that is, doctors, nurses,
family care helps a lot, especially in extreme cas- professional care and also personal care, right? A
es; family support, care helps people to reestablish visitation from relatives, friends, all this helps [...]
themselves, to recover, family help, all this counts seek, if it is the case, it may be herbs, adding herbs
a lot. (Jacó). It is observed that the way of think- helps [...]. (Jacó).
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Saturnino MNG et al.

The formal system of care constituted by the Discussion


healthcare network does not exclude the search
for the informal or popular system represented The health-disease-care process has a marked rel-
by the family’s social network: mother, father, evance and influence in the daily life of a family
siblings, relatives, friends, neighbors and institu- since it involves different aspects of life in society.
tions such as school and church. The resources of It is argued that no organization has the power to
the popular system, for the actors, are restricted impose human behavior; they can guide and per-
to the use of herbs (teas), possibly because it is a haps influence decisions and establish limits17.
family-rooted knowledge, passing from genera- However, the views of social actors on this pro-
tion to generation, by the experience of use, sur- cess reveal the power of a given social organiza-
rounded by ideas that the consumption will not tion, in this case, the family unit – in converging
do any harm, or by the most affordable price and predictable reactions.
availability, as some types of medicinal herbs are The family usually thinks in tune and acts
grown or sold by the marketers themselves. similarly. Thus, the idea advocated is that, even
The social support network provides social with different reactions to pain and the process of
protection and is primarily stems from the fam- becoming ill, subjects have, to some extent, pre-
ily, extending to informal institutions, such as dictable reactions, since they belong to a group;
philanthropy, churches, social institutions and and its members share the social meanings at-
schools that assume this role. They are based on tributed to this process. Therefore, it can be in-
cooperative and solidary relationships, which fa- ferred that family life, sharing values, beliefs and
vor a sense of closeness and security. [...] some- behaviors reflects in the identification of “being
times you do not have transportation to take to the family”, and this ultimately converges shared feel-
doctor, neighbors help in any way they can [...]. ings and attitudes in the illness process18.
Neighbors are the first family that we have [...]. The concepts of health, disease and care are
(Judite). According to Hosanna: At church, each articulated, and their conditioning by an unfa-
one plays his part, one prays, another helps [...], vorable social and economic context can lead to
then we help them help, they collect here to help one-off, reductionist care practices. For example,
other people [...]. Marta says: School also helps to when the concept of health is restricted to hy-
educate the children, doing these campaigns, gym- gienic practices, it is thought that they may only
khana that collects objects to donate, stuff like that. have the purpose of warding off diseases caused
Neighbors provide social support as they are by pathological microorganisms.
close to families and can help with financial aid, Social actors seem to regard health and dis-
or obtain transportation to take the sick person ease as interdependent categories. Thus, the
to health service, among other aid. They are also disease, as opposed to what has been said about
considered members of the family, as reported by health, may mean not adopting hygienic prac-
Judite. Thus, a web of relationships is established tices, a notion that is also related to hygienism,
and protects the subjects in diverse situations, consisting of hygiene practices that are personal,
mainly against illness. structural, such as cleaning and aeration of envi-
The church is a space of social support and ronments and basic sanitation measures19-21.
provides spiritual and emotional support, which Conceptual reductionism about the health-
promotes health and care, through words of disease-care process can support care practices
comfort, hope, strength and determination to geared only to rehabilitation and prevention of
move forward in the pursuit of health, or even of illness, because if the disease is established, the
its prevention and promotion. Although they are actors will live with daily routine rupture, prob-
more restricted, schools are seen as health pro- able changes in income, increased involvement
moters, providing guidance on health measures, of family members and, sometimes, the support
developing the socialization of children, convey- network management; however, it is not ap-
ing the idea of solidarity. propriate to generalize such concepts, since, for
Given the diversity of interpersonal relation- some marketers, health expands and assumes a
ships and the socio-political-economic context, social perspective22. This feature is manifested
networks that involve social actors seek to meet by the exploration of aspects that pre-empt own
many shortages or needs, among them, those of concepts of a given group, influenced by socio-
health. economic characteristics, epidemiological profile
and by the work environment, resulting in social
vulnerability.
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From an expanded view of health and care, it overcoming the resulting problems, as well as,
can be seen that the unfavorable socioeconomic the knowledge and realization of the care options
conditions of the marketers do not prevent them provided by healthcare sectors: professional, in-
from seeing the health-disease-care process crit- formal or popular.
ically, understanding the existence of risk factors It is emphasized that the way of seeing, un-
in their work environment, which deviate them derstanding the world, family dynamics and ad-
from the quality of life and healthy life habits; vice by family, friends and neighbors are a power
therefore, perceiving health through subjective of persuasion of ideas, ways of seeing and do-
aspects, of well-being, feeling good, having qual- ing that govern family relationships and guide
ity of life. Health assumes the idea of value, of pre-diagnoses, health measures and search for
the preciousness of living, “health is life”. Thus, health services25,26. In a situation of illness or the
health is understood not only as a duty of the demand for prevention practices, these teachings
State, because individuals enjoy their autonomy, support decision-making, interaction and atti-
assuming the responsibility vis-à-vis their health tudes within the health-disease-care process.
and that of their relatives. Therefore, the internalization of habits and
The concepts of health-disease-care and ideas shared and accepted in the family unit can
the practices of care adopted are related to the influence the decisions and attitudes of care, the
cultural constructions, beliefs and values that search for health services, and even the emotion-
underpin or enable the family to improve and al strengthening that the situations of illness and
maintain life, since culture is a web of meanings prevention of future events require. The health-
that exerts powerful influence on behavior and disease-care process is subsidized by semiotics
practices22,23, despite the prescriptive nature that (symbols and re-significations), which helps in
seems to emanate from the biomedical discourse tracking and overcoming this process, through
on health-disease and self-care ways. the reorganization of family dynamics, con-
However, this prescriptive nature does not cepts and practices, to meet the demands of care,
invalidate preventive-oriented actions, in which and to cope with the hindrances of overcoming
health practices are expanded through a vision of health problems.
disease prevention, measures that meet the needs This shared empiricism is supported by the
of basic subsistence and those related to well-be- experience of situations lived by family mem-
ing (emotional support, genuine caregiving), bers, even if each re-signifies his/her own expe-
characterized as care practices (less biological rience and has his/her concepts27. New individual
and broader). concepts can be understood as variants of social
Care practices are inherent to the health-dis- norms long supported by the family unit. On the
ease process, perhaps because of this, authors other hand, adopting new concepts, based on
such as Rosa et al.25 use the nomenclature health- scientific knowledge, for example, which enjoys
disease-care process, which was adopted in this broad access to contemporary generations, will
study. The statements of social actors reveal that establish intergenerational conflicts28.
they understand care as a strategy to overcome According to the reports, faced with an illness
and avoid disease, as a requirement for health, a situation and the demands of care that emerge, at
situation in which the synonymy between con- first glance, limits to the roles of family caregivers
cepts, or better said, ways of seeing care and are inexistent or not observed. Notwithstanding,
health with one’s practices is noted – ways of do- the alleged readiness of the solidarity network
ing care and health. A conceptual indistinction that is the family, and of the assistance to the
between concepts of health and care is also not- health needs of the health-disease-care process,
ed. However, one also perceives that care involves the female figure still holds a prominent place in
and contains, compared with a mathematical di- a socially naturalized role, since women are seen
agram, health and disease, since it is performed (and assume) as more fit and available for care.
to avoid disease and to approach health. The family is a fundamental tool in caregiv-
The concepts about the health-disease-care ing, along with health services, as it has the capac-
process are tools, that is, they train from the ity to be disseminating care and information, and
theoretical-reflective plane, of ideas, advice and influencing its members to seek health services,
beliefs, to the ways of doing within this process; as well as helping to understand and prevent
these are practices that allow the family unit diseases within the family, because it has a keen
options for health care, planning care actions, eye as a producer of health and care. It seeks to
sharing and suggesting prevention strategies and overcome health problems and articulates with
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Saturnino MNG et al.

the various healthcare institutions. Thus, besides ry models established on the health-disease-care
preventing, it promotes health and facilitates the process and thus make therapeutic choices to
conditions that promote well-being and quality attend to their health needs and also reflect crit-
of life29. ically to readjust their health-care concepts and
It reaffirms itself as a social and basic struc- practices, that is, their ways of seeing and doing.
ture for the psychosocial development of its It was observed that health and care concepts
members; moreover, it operates as a social sup- are not always well defined and differentiated by
port – perhaps the most representative – and the marketers. Similarly, this indistinction ex-
of health network; it is a system that mobilizes tends to the synonymy between health practic-
efforts when one of its members requires care, es and care. However, ideas are advocated that
catering for it, helping them financially, giving purport that the concepts and practices of care,
them good advice and supporting them mutually the first in the field of cultural reflection and
in illness situations, with the other institutions. perception, and the second, of care attitudes, are
The social actors, based on their lay concepts different levels – care practices, which become
coupled with the learned scientific knowledge of more comprehensive, assuming multiple realms,
social institutions, use strategies and tactics and among them an affective realm of emotional sup-
seem to elaborate an explanatory model to clar- port to the members.
ify the state of health19 and care actions. Market- Reductionist health and disease concepts
ers use the informal sector, notably in the home seem predominant. They base health practices
care provided by the family and its support net- aimed only at rehabilitation and prevention of
work. In the formal sector, services of the Unified illness, because if the disease is established, the
Health System (SUS) appear as the primary care actors must coexist with a daily living rupture,
network, emphasizing that the search for care in probable changes in income, greater involvement
private services occurs mainly due to obstacles of family members, and sometimes, the agency of
in access – high demand to the detriment of few the support network, however, does not abstain
professionals, delay in care, shortage of diagnos- from the broader and more promotional realm
tic resources, or even lack of urbanity in care – in of disease and health problems prevention atti-
public services. tudes.
The strong idealization of the family as a
solidary and altruistic network of social sup-
Final considerations port, always ready to attend or follow-up on
the demands of the health-disease-care process,
Concepts of health, disease, care, and health- can lead to conflicts due to task accumulation,
care practices help the family to provide care. absence from work, emotional distress, among
The family is responsible for transmitting val- others, resulting from the new health needs in a
ues, habits, information, and guidelines that will member’s illness process.
influence their members around the healthcare We note ways of seeing and doing that ap-
network, and the provision of care related to the proach biologicist concepts, well as other that
promotion or rehabilitation of health. The fami- evoke other expanded concepts of health, dis-
lies allow the subjects to re-signify the explanato- ease and care. The latter seem to stem from po-
1731

Ciência & Saúde Coletiva, 24(5):1723-1732, 2019


litical-social and scientific empowerment that
fosters expanded concepts and actions, allowing
social actors to lead the health-disease-care pro-
cess, in a relationship of sharing rights and duties
between health services and their social support
network.

Collaborations

MNG Saturnino worked on the concept and de-


lineation of the research, on data analysis and
interpretation, on the drafting of the paper and
the approval of the version to be published. TP
Santos and PRLF Vale worked on the writing of
the paper and the approval of the version to be
published.
MGG Aguiar worked on the concept and de-
lineation of the research, on the critical review of
the paper and the approval of the version to be
published.
1732
Saturnino MNG et al.

References

1. Bruschini C. Uma abordagem sociológica de família. 17. Freidson E. Profissão médica: um estudo de sociologia do
Rev. bras. estud. popul 1989; 6(1):1-23. conhecimento aplicado. São Paulo: UNESP; 2009.
2. Fonseca C. Concepções de família e práticas de inter- 18. Santos PRM, Araújo, RFS, Belatto R. (Re)configurações
venção: uma contribuição antropológica. Saúde Soc dos modos de ser e cuidar em família. In: Atas do XII
2005; 14(2):50-59. Congresso Ibero-americano em Investigação Qualitati-
3. Corrêa GHLST, Bellato R, Araújo LFS. Diferentes mo- va;2015, Aracaju.p. 468-472.
dos da família cuidar de pessoa idosa em situação crô- 19. Mendes EV. Um novo paradigma sanitário: a produção
nica. Cienc Cuid Saude 2015; 14(1):796-804. social da saúde. In: Mendes EV. Uma agenda para a saú-
4. Stamm M, Miotto RCT. Família e cuidado: uma leitura de. 2ª ed. São Paulo: Hucitec; 1999. p. 233-300.
para além do óbvio. Ciênc Cuid Saúde 2003; 2(2):161- 20. Barbiani R, Junges JR, Asquidamine F, Sugizaki E. Me-
168. tamorfoses da medicalização e seus: impactos na fa-
5. Ribeiro TS. Cuidar em família: uma análise sobre os mília brasileira. Physis Revista de Saúde Coletiva 2014;
significados atribuídos por famílias atendidas no Centro 24(2):567-587.
Cultural A História que Eu Conto/Rio de Janeiro [disser- 21. Laurel AC. La salud-enfermedad como proceso social.
tação] Rio de Janeiro: Pontifícia Universidade Católica Rev. Latino Am Salud 1982; 2:7-25.
do Rio de Janeiro; 2016. 22. Iserhard ARM, Nunes ET, Budó MLD, Badke MR. Prá-
6. Kleinman A. Patients and healers in the context of cul- ticas culturais de cuidados de mulheres mães de recém-
ture: an exploration of the borderland between Antropol- nascidos de risco do sul do Brasil. Esc Anna Nery Rev.
ogy, Medicine and Psychiatry. Berkeley: University of Enferm 2009; 13(1):116-122.
California Press; 1980. 23. Becker SG, Rosa LM, Manfrini GC, Backes MTS, Mei-
7. Dias G, Franceschini SCC, Reis JR, Reis RS, Siqueira relles BHS, Santos SMA. Dialogando sobre o processo
-Batista R, Cotta RMM. A vida nos olhos, o coração saúde/doença com a Antropologia: entrevista com Es-
nas mãos: concepções e representações femininas do ther Jean Langdon. Rev. Bras. Enferm 2009; 62(2):323-
processo saúde-doença. Hist. ciênc. saúde-Manguinhos 326.
2007; 14(3):779-800. 24. Rosa AS, Cavicchioli MGS, Brêtas ACP. O processo saú-
8. Minayo MCS. Saúde-doença: uma concepção popular de-doença-cuidado e a população em situação de rua.
da etiologia.Cad Saude Publica 1988; 4(4): 363-381. Rev Latino-Am. Enferm 2005; 13(4):576-582.
9. Câmara AMCS, Melo VLC, Gomes MGP, Pena BC, Sil- 25. Leininger M. Culture Care Theory: a major contribu-
va AP, Oliveira KM, Moraes APS, Coelho GR, Victorino tion to advance transcultural nursing knowledge and
LR. Percepção do processo saúde-doença: significados practices. J. transcult. nurs. 2002; 13(3):189-192.
e valores da educação em saúde. Rev. bras. educ. med. 26. Moura MAV, Chamilco RAIL, Silva R. Teoria transcul-
2012; 36(1)(Supl. 1):40-50. tural em pesquisas de enfermagem. Esc Anna Nery Rev.
10. Waldow VR. Uma experiência vivida por uma cuidado- Enferm 2005; 9(3):434-440.
ra, como paciente, utilizando a narrativa literária. Texto 27. Giraldo PB. La familia como sujeto de cuidado. Aqui-
& Contexto Enferm 2011; 20(4):825-833. chan 2013; (13):5-6.
11. Certeau M. A invenção do cotidiano: artes de fazer. 3ª ed. 28. Ferrigno JC. Conflito e cooperação entre gerações. São
Petrópolis: Vozes; 1998. Paulo: Edições SESC SP; 2013.
12. Saturnino MN, Aguiar MGG. Práticas de cuidado e re- 29. Helman CG. Cultura, saúde e doença. 4ª ed. Porto Ale-
des de apoio social de feirantes. In: Carvalho ESS, San- gre: Artmed; 2003.
tos LM, organizadores. Retratos de famílias e aborda-
gens de cuidado. Feira de Santana: UEFS Editora; 2016,
p. 309-374.
13. Acioli S, Luz MT. Sentidos e valores de práticas popu-
lares voltadas para a saúde, a doença e o cuidado. Rev.
Enferm. UERJ 2003; 11:153-158.
14. Vale PRLF, Santos TP, Saturnino MN, Aguiar MGG,
Carvalho ESS. Itinerários terapêuticos de feirantes
diante das necessidades de saúde dos familiares. Rev.
Baiana Enferm. [Internet]. 2015 Out-Dez [acessado
2016 Jan 15]; 29(4):372-381. Disponível em: https://
portalseer.ufba.br/index.php/enfermagem/article/
view/13396.16.
15. Minayo MCS, Deslandes SF, Cruz Neto O. Pesquisa
social: teoria, método e criatividade. Petrópolis: Vozes;
2011.
16. Fontanella BJB, Luchesi BM, Saidel MGB, Ricas J, Tu-
rato ER, Melo DG. Amostragem em pesquisas qualita- Article submitted 06/01/2017
tivas: proposta de procedimentos para constatar satu- Approved 27/07/2017
ração teórica. Cad Saude Publica 2011; 27(2):389-394. Final version submitted 29/07/2017

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