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A family is defined as a basic societal unit of family may be greater than that on the patient
two or more people related by genetic or inter- at this time (Chartier & Contu-Wakulczyk;
personal bonds, who have a commitment to 1989). Coping strategies may be new and
nurture each other emotionally, physically and unfamiliar and must be implemented without
spiritually (Leske 1986; Picton 1995). Family preparation.
members are considered to be immediate close ‘The ED staff plays a critical role in how the
relatives or significant others to the patient. family relates to the events’ (Soreff 1979). Staff
Families have the unique role of supporting their interventions influence the response to, and
ill member, filling the gap that cannot be met by long term dealings with, loss. Those who have
hospital staff when providing holistic care. had poor emotional support after the death of a
The phrase ‘during resuscitation’ denotes loved one in the ED may have haunting mem-
the time span from the arrival of the critically ill ories that interfere with the resolution of their
patient into the resuscitation room until dis- grief (Jones & Buttery 1981). The natural pain
charge or death. of loss cannot be rushed. However, family pres-
ence brings a sense of reality to the loss avoid-
ing a prolonged period of denial that would
interfere with the normal grieving process
(Hanson & Strawser 1992). ED staff can con-
LITERATURE REVIEW
tribute to the well-being of family members
The ED is the most common place in the hos- and influence their coping ability (King &
pital for cardiac arrest to occur (Fulde 1995). Gregor 1989).
The outcome of resuscitation is not always
favourable. This makes care of relatives at this
time most important. The time they have with Needs of grievers
their loved one in the ED may be the last con- Hampe’s (1975) early work with the grieving
tact they have before death. spouse laid the foundation for recognition of
Grief is the response to bereavement charac- the needs of families in grief. She claimed that
terised by emotional, cognitive, physiological the least supportive behaviour by the medical
and interpersonal disruption (Saunders & team was removal of family members from the
Valente 1994). Anticipatory grief is a term used bedside of the dying person. Needs of grievers
to describe the intense feelings related to the in many settings have been described by several
threat of loss such as an expected death, loss of a authors. Table 1 shows a summary of the needs
role within the family unit or loss of hopes and of grievers classified using Hampe’s categories
aspirations and expectations for the future of ‘needs of self’ and ‘needs of relationship with
(Hampe 1975; Alpen & Halm 1992). the dying person’.
There are several factors that predispose Staff providing guidance and support can assist
families to a greater risk of an inappropriate in meeting the needs of families. Family presence
response to loss, associated with morbidity and during resuscitation reduces the mystery of resus-
mortality (Dubin & Sarnoff 1986; Parrish et al citation for relatives. Families are given the
1987; Raphael 1984). Sudden injury, illness or opportunity to gain a realistic view of attempted
death brings an extra effect of shock over and resuscitation and death (Post 1989; Cox 1993;
above the normal as there is no time for antici- Martin 1991). Family members, allowed to
pation (Raphael 1984). Emotional stress on the be with their ill relative can feel useful
Needs of grievers
Self Relationship
To receive comfort and support from family To feel helpful to the person
To receive acceptance support and comfort To be assured of the comfort of the person
from health professionals
To know that everything possible was done To be aware of the impending death
To have someone wartlng and available on To be with the person at the time and place
arrival to the hospital of death or soon after
Staff attitudes towards family presence during resuscitation I47
4DR.Decide
Fig. I - Breakdown of medical and nursing responses to the question ‘Would you consider allowing families to be present
during resuscitation?’
1 Experience
PNotle
3Benefits
4 Disadvantages
5 both
6NA
Fig. 2 ~ Breakdown of medical and nursing responses to the question ‘Have you ever experienced family presence during
resuscitation and in your experience were there benefits, disadvantages or both?’
The concerns below are ranked in order . 33% indicated that staff may offend family
according to the number of participants that members.
indicated each as a preference. . 29% indicated that the general public are
not equipped to deal with being present
. 76% indicated that the procedures involved during resuscitation.
would offend family members. . 18% indicated that legal proceedings may
. 61% indicated concern that emotional stress arise from their presence.
on staff would be increased. . 7% indicated that there was no benefit to be
. 48% indicated that family members would gained from family presence.
be disruptive to staff members working. . 14% added varied comments indicating
. 46% indicated that family presence would their concern. The majority of these could
interfere with treatment. be classified in the above statements.
Staff attitudes towards family presence during resuscitation I49
family members causing disruption in the Very few (7%) of respondents indicated that
Foote Hospital study. The few family members they thought that the family had no right to be
who felt unable to deal with the situation were present in the resuscitation room. The decision
escorted quietly from the room. Contrary to should be made on ethical grounds after careful
expectations it was found that family members analysis of both sides of the argument. The
were frequently overawed by the activity family member’s unique role is of supporting
(Hanson & Strawser 1992). With a support per- the patient, an extension of the team approach.
son present at all times, no members of the The concerns of staff must be addressed if
resuscitation team need to be distracted from family presence during resuscitation is to
their role. become an ongoing reality in the ED.
Prior to entry into the resuscitation room, Comments made by ED staff about their expe-
the support person must prepare the family for rience with families in the resuscitation room
what they are permitted to do, and what they give insight into the many complex issues
will see and hear. The family preparation involved:
should include:
l ‘I was berated by the charge nurse.’
l What the patient will look like and why . ‘The resuscitation was kept going for longer than
. The numbers of staff present usual.’
. The room environment. . ‘Panic by relatives disrupts medical efort.’
. ‘Some relatives and some stafdo not cope very
Family members may need encouragement to well.’
be near their loved one, touch them, hold their . ‘Unable to voice opinion about the deterioration
hand, talk to them ‘just in case they could hear’. of the child’s condition.’
Thirty-three per cent of respondents were
concerned that staff may inadvertently offend
family members by their behaviour. ED staff Limitations
can usually quote many incidents of inappro- Failure to include ED staff from all Melbourne
priate or bizarre behaviour of staff members metropolitan hospitals increases the possibility
under stress. Staff aware of the impending of sampling bias in this study. However, repre-
arrival of a family member into the resuscita- sentativeness is enhanced by the substantial
tion room can modifjr their behaviour accord- numbers of respondents from each of the hos-
ingly, just as they would for other visitors such pitals involved. Further research is needed to
as consultants or clergy. Families are perceptive identify specific details of what ED staff con-
of staff behaviour and attitudes and vividly sider to be ‘controlled circumstances’ in the
remember details of their experience (Parrish et resuscitation room.
al 1987; Soreff 1979).
The concern that family members are not
equipped to deal with being present during
CONCLUSION
resuscitation was expressed by 29% of respon-
dents. The level of understanding by the The keystone of any successful program involv-
general public has been heightened by the ing family presence during resuscitation is the
graphic nature of media and increased health support and enthusiasm of the staff involved.
awareness over recent years. Many families may From the results of our study we have discov-
have witnessed or participated in resuscitation ered that the majority of staff in Melbourne’s
procedures in the community (Doyle et al EDs recognise there is a demand for considera-
1987), only to be separated from their loved tion of this option. Many are concerned by the
one on arrival at the hospital. Most families can related issues.
be prepared for what to expect and are capable The formulation of structural guidelines to
of receiving and understanding important regulate the presence of families can address or
information in stressful situations (Sigsbee & alleviate many staffconcerns. There appears to be
Geden 1990). no reason for continuation of policies that indis-
Surprisingly, only 18% indicated that legal criminately exclude family members from the
proceedings were of concern. Judicial interven- resuscitation room. As Parkes states ‘A well-
tion is usually sought in the belief that a per- rounded life should have a beginning a middle
ceived injustice has occurred. Tension created and an end (cited in Kubler-Ross 1977). Families
by uncertainty can become unbearable participate in the beginning and the middle of
(Mitchell & Lovatt 1989). A realistic view and life, do we have the right to exclude them horn
understanding of the care given gained by pres- the end? ‘The time has come to encourage famil-
ence at the bedside would assist in alleviating ial bonding during the death of a loved one, just
uncertainty. as we encourage it at birth’ (Post 1989).
Staff attitudes towards family presence during resuscitation I5 I