Freedom of Information Request

Our Ref: FOI/15/194 Trust Headquarters
Swandean
Arundel Road
Date: 23 December 2015 Worthing
West Sussex
BN13 3EP
Tel: 01903 843078

Email:foi@sussexpartnership.nhs.uk
Via Email: request-257808-22701010@whatdotheyknow.com
Dear A.E
Freedom of Information Request
Thank you for your email dated 21 November 2015 requesting further information on our
response to FOI/15/099. The answers to your questions are shown below.
Question 1:
8) Your response:
“Answer 2
All assessments include clinical tools and adhere to best practice."
Bearing in mind that the NBC manager (or female member of staff representing the
manager at the time) stated on the telephone during July 2012, that "this is the way
assessments are done" when it was specifically queried why the assessments in question
were undertaken without clinical tools and not having met BMJ best practice in place at the
time
(http://bestpractice.bmj.com/best-practice/monograph/707/diagnosis/step-by-step.html)
this further evidences that your FOI response Answer 2 is incorrect. Please provide a
response in line with evidence supplied.
Answer 1:
We reiterate that all assessments include clinical tools and adhere to best practice. We
have attached the tools used by the Multi-Discipinary Team although the AS-IS Self-
Report would not have been in use at the time of this assessment.
I hope this information is helpful. However if you are dissatisfied with the handling of your
request, you have the right to ask for an internal review. Internal review requests should be
submitted within two months of the date you received the response to your original request
and should be addressed to:
Colm Donaghy
Chair: Caroline Armitage Chief Executive: Colm Donaghy
Head office: Sussex Partnership NHS Foundation Trust, Swandean, Arundel Road, Worthing, West Sussex, BN13 3EP
www.sussexpartnership.nhs.uk
Chief Executive
Sussex Partnership NHS Foundation Trust
Swandean
Arundel Road
Worthing
West Sussex BN13 3EP
Please remember to quote the reference number above in any future communications.
If you are not content with the outcome of the internal review, you have the right to apply
directly to the Information Commissioner for a decision. The Information Commissioner
can be contacted at:
Information Commissioner’s Office

Wycliffe House
Water Lane
Wilmslow
Cheshire
SK9 5AF
Yours sincerely
Natalie Hennings
Corporate Governance Manager
AS-IS Self Report Questionnaire (based on DSM IV and V) (Stott & Childs 2012)
To be used with adult individuals who can self report and excluding those with significant
learning disability or other cognitive deficits.
Please write your experiences about each of the headers below. You can write as much or
as little detail as you like, but we would encourage you not to over-analyze your answers too
much or worrying about the answer being “perfect”. For each header there are examples to
help you think about the type of information that may be important. You can use the space
provided or add additional sheets if necessary.
The answers you write will be used as a basis for the face to face interview, which is part of
your assessment process.
You can either write your answers by hand, or contact me for an electronic version
(Bettina.stott@sussexpartnership.nhs.uk) . Please return your completed questionnaire by
email or post to:
Autistic Spectrum Conditions Service

Highdown
Swandean
Arundel Road
Worthing
BN13 3EP
Tel: 01903 846 656
Your name: __________________________________ Date: _______________

1. Please write about your experiences of friendships and relationships
How often do you see your friends face to face? What do you do with them? How long have
you known them? Are friendships important to you? Is it easy for you to make and keep
friends? Has it always been like this?
2. Please write about your experiences of using and understanding non-verbal

communication
Examples of non-verbal communication include eye-contact, gestures, facial expressions,

body language and tone of voice. Do you use and understand sarcasm and joke? Has it
always been like this?
3. Please write about your experiences of understanding other people and social
situations
How easy is it for you to hold conversations? Do you like talking to others? What do you
think of “Small Talk”? Is it easy for you to be and cope in groups? Do you prefer to pursue
your hobbies on your own or with other people? Is it easy for you to make sense of the way
other people feel or why they think or behave in a certain way? Has it always been like this?
4. Please write about how you cope with change.
Is change something you are comfortable with and enjoy? How easy is it to try new things ?
Do you like doing things the same way and following routines? Can you give examples and
write why? Has it always been like that?
5. Please write about your interests, collections and hobbies.
Do you have any, what are they and how much time do you spend doing them? Do you like
doing them on your own or with other people? Has it always been like that?
6. Please write about how you think.
Do you think about things in a detailed and analytical way? Do you sometimes find yourself
getting stuck and thinking about things over and over? Do you like to organise and plan
things carefully? Is it easy for you to change your opinion? Has it always been like this?
7. Please write about your experiences of anxiety.
Do you worry about things a lot? What sort of things do you worry about? What do you do
when you are worried and how do you cope with it? Has it always been like this?
8. Please write about your sensory experiences.

Do you have any unusual reactions to sound, vision, touch, taste and smell? Are any of
these experiences particularly pleasant or unpleasant? Are you clumsy or bump into things
or trip over things a lot? Has it always been like this?
9. Everyday functioning
Have the things you wrote about impacted on your employment, education and ability to get
on with other people? Has it always been like this?
Ritvo Autism Asperger’s Diagnostic Scale – Revised
RAADS-R
(Riva Ariella Ritvo, Ph.D. and Edward Ritvo, M.D., 2007)
There are 80 questions over the next 5 pages.
It will take about one hour to answer all the questions.
Please tick the box that best describes how true some life experiences and personal characteristics
are of you.
Please answer all the statements.
Tick only one answer per question.
Use the following key to mark your responses:
Always True - you have always been like this, now and when you were young
True only now – you are only like this since you are an adult or only true in recent years
True only when I was younger – you used to be like this only before the age of 16
Never true – you have never been like this
Once you have completed this questionnaire please keep it safe and bring it with you to your next
appointment.
The questions start on the next page.

Life Experiences and personal characteristics Always True only True only Never
True now when I True
was younger
1* I am a sympathetic person.
2 I often use words and phrases from movies and TV

in conversations.
3 I am often surprised when others tell me I have been

rude.
4 Sometimes I talk too loudly or too softly, and I am not

aware of it.
5 I often don’t know how to act in social situations.
6* I can “put myself in other people’s shoes”.
7 I have a hard time working out what some phrases

mean, like “you are the apple of my eye”.
8 I only like to talk to people who share my special

interests.
9 I focus on details rather than the overall idea.
10 I always notice how food feels like in my mouth. This

is more important to me than how it tastes.
11* I miss my best friends or family when we are apart

for a long time.
12 Sometimes I offend others by saying what I am

thinking, even if I don’t mean to.
13 I only like to think and talk about a few things that

interest me.
14 I’d rather go out to eat in a restaurant by myself than

with someone I know.
15 I cannot imagine what it would be like to be someone

else.
16 I have been told that I am clumsy or uncoordinated.
17 Others consider me odd or different.
18* I understand when friends need to be comforted.
19 I am very sensitive to the way my clothes feel when I

touch them. How they feel is more important to me
than how they look.
was younger
20 I like to copy the way certain people speak and act. It
helps me to appear more normal.
21 It can be very intimidating for me to talk to more than

one person at the same time.
22 I have to “act normal” to please other people and

make them like me.
23* Meeting new people is usually easy for me.
24 I get highly confused when someone interrupts me

when I am talking about something I am very
interested in.
25 I can be difficult for me to understand how other

people are feeling when we are talking.
26* I like having a conversation with several people, i.e.

around the dinner table, at school or work.
27 I take things too literally, so I often miss what people

are trying to say.
28 It is very difficult for me to understand when

someone is embarrassed or jealous.
29 Some ordinary textures that do not bother others feel

very offensive when they touch my skin.
30 I get extremely upset when the way I like to do things

is suddenly changed.
31 I have never wanted or needed to have what other

people all an “intimate relationship”.
32 It is difficult for me to start and stop a conversation. I

need to keep going until I am finished.
33* I speak with a normal rhythm.
34 The same sound, colour or texture can suddenly

change from very sensitive to very dull.
35 The phrase “I’ve got you under my skin” makes me

very uncomfortable.
36 Sometimes the sound of a word or high-pitched

noise can be painful to my ears.
was younger
37* I am an understanding type of person.
38 I do not connect with characters in movies and

cannot feel what they feel.
39 I cannot tell when someone is flirting with me.
40 I can see in my mind in exact detail things that I am

interested in.
41 I keep lists of things that interest me, even when they

have no practical use (i.e. sports statistics, train
schedules, calendar dates, historical facts and dates)
42 When I feel overwhelmed by my senses, I have to

isolate myself to shut them down.
43* I like to talk things over with my friends.
44 I cannot tell if someone is interested or bored with

what I am saying.
45 It can be very hard to read someone’s face, hand

and body movements when they are talking.
46 The same things (like clothes or temperatures) can

feel very different to me at different times.
47* I feel very comfortable with dating or being in social

situations with others.
48* I try to be as helpful as I can when other people tell

me their personal problems.
49 I have been told that I have an unusual voice (i.e.

flat, monotone, childish or high-pitched).
50 Sometimes a thought or a subject gets stuck in my

mind and I have to talk about it even if no one is
interested.
51 I do certain things with my hands over and over

again (i.e. flapping, twirling things, waving things by
my eyes).
52 I have never been interested in what most of the

people I know consider interesting.
53* I am considered a compassionate type of person.

was younger
54 I get along with other people by following a set of
specific rules that help me to look normal.
55 It is very difficult for me to work and function in

groups.
56 When I am talking to someone, it is hard to change

the subject. If the other person does so, I can get
very upset or confused.
57 Sometimes I have to cover my ears to block out

painful noises (i.e. hoover or people talking too much
or too loudly).
58* I can chat and make Small Talk with people.
59 Sometimes things that should feel painful are not (i.e.

when I hurt or burn myself).
60 When I am talking to someone I find it difficult to

know when it is my turn to talk or listen.
61 I am considered a loner by those who know me best.
62* I usually speak in a normal tone.
63 I like things to be exactly the same day after day and

even small changes in my routine upset me.
64 How to make friends and socialise is a mystery to

me.
65 It calms me to spin around or to rock I a chair when I

am feeling stressed.
66 The phrase “He wears his heart on his sleeve” does

not make sense to me.
67 If I am in a place where there are many smells,

textures to feel, noises or bright lights, I feel anxious
or frightened.
68* I can tell when someone says one thing but means
something else.
69 I like to be by myself as much as I can.
70 I keep my thoughts stacked in my memory like they

are on filing cards and pick out the ones I need by
looking through the stack and finding the right one
(or in another unique way),.
was younger
71 The same sound sometimes seems very loud or very
soft, even though I know it has not changed.
72* I enjoy spending time eating and talking with my

family and friends.
73 I can’t tolerate things I dislike (like smells, textures,

sounds or colours).
74 I don’t like to be hugged or held.
75 When I go somewhere, I have to follow a familiar

route or I can get very confused or upset.
76 It is difficult to figure out what other people expect of

me.
77* I like to have close friends.
78 People tell me that I give too much detail.
79 I am often told that I ask embarrassing questions.
80 I tend to point out other people’s mistakes.
Thank you for completing this questionnaire.

The Adult Autism Spectrum Quotient (AQ)
NAME:
Below are a list of statements.
Please read each statement very carefully and rate how strongly you agree or disagree with it by
circling your answer to the right of each statement.
I prefer to do things with others rather than on my definitely slightly slightly definitely
1
own. agree agree disagree disagree
I prefer to do things the same way over and over definitely slightly slightly definitely
2
again. agree agree disagree disagree
If I try to imagine something, I find it very easy to definitely slightly slightly definitely
3
create a picture in my mind. agree agree disagree disagree
I frequently get so strongly absorbed in one thing that definitely slightly slightly definitely
4
I lose sight of other things. agree agree disagree disagree
definitely slightly slightly definitely

5 I often notice small sounds when others do not.
agree agree disagree disagree
I usually notice car number plates or similar strings definitely slightly slightly definitely
6
of information. agree agree disagree disagree
Other people frequently tell me that what I’ve said is definitely slightly slightly definitely
7
impolite, even though I think it is polite. agree agree disagree disagree
When I’m reading a story, I can easily imagine what definitely slightly slightly definitely
8
the characters might look like. agree agree disagree disagree

9 I am fascinated by dates.
In a social group, I can easily keep track of several definitely slightly slightly definitely
10
different people’s conversations. agree agree disagree disagree

11 I find social situations easy.

12 I tend to notice details that others do not.

13 I would rather go to a library than a party.

14 I find making up stories easy.
I find myself drawn more strongly to people than to definitely slightly slightly definitely
15
things. agree agree disagree disagree
I tend to have very strong interests which I get upset definitely slightly slightly definitely
16
about if I can’t pursue. agree agree disagree disagree

17 I enjoy social chit-chat.
When I talk, it isn’t always easy for others to get a definitely slightly slightly definitely
18
word in edgeways. agree agree disagree disagree

19 I am fascinated by numbers.
When I’m reading a story, I find it difficult to work out definitely slightly slightly definitely
20
the characters’ intentions. agree agree disagree disagree

21 I don’t particularly enjoy reading fiction.

22 I find it hard to make new friends.

23 I notice patterns in things all the time.

24 I would rather go to the theatre than a museum.

25 It does not upset me if my daily routine is disturbed.
I frequently find that I don’t know how to keep a definitely slightly slightly definitely
26
conversation going. agree agree disagree disagree
I find it easy to “read between the lines” when definitely slightly slightly definitely
27
someone is talking to me. agree agree disagree disagree
I usually concentrate more on the whole picture, definitely slightly slightly definitely
28
rather than the small details. agree agree disagree disagree

29 I am not very good at remembering phone numbers.
I don’t usually notice small changes in a situation, or definitely slightly slightly definitely
30
a person’s appearance. agree agree disagree disagree
I know how to tell if someone listening to me is definitely slightly slightly definitely

31
getting bored. agree agree disagree disagree

32 I find it easy to do more than one thing at once.
When I talk on the phone, I’m not sure when it’s my definitely slightly slightly definitely
33
turn to speak. agree agree disagree disagree

34 I enjoy doing things spontaneously.

35 I am often the last to understand the point of a joke.
I find it easy to work out what someone is thinking or definitely slightly slightly definitely
36
feeling just by looking at their face. agree agree disagree disagree
If there is an interruption, I can switch back to what I definitely slightly slightly definitely
37
was doing very quickly. agree agree disagree disagree
38 I am good at social chit-chat.
People often tell me that I keep going on and on definitely slightly slightly definitely
39
about the same thing. agree agree disagree disagree
When I was young, I used to enjoy playing games definitely slightly slightly definitely
40
involving pretending with other children. agree agree disagree disagree
I like to collect information about categories of things
41 (e.g. types of car, types of bird, types of train, types
of plant, etc.).
I find it difficult to imagine what it would be like to be definitely slightly slightly definitely
42
someone else. agree agree disagree disagree

43 I like to plan any activities I participate in carefully.

44 I enjoy social occasions.

45 I find it difficult to work out people’s intentions.

46 New situations make me anxious.

47 I enjoy meeting new people.

48 I am a good diplomat.
I am not very good at remembering people’s date of definitely slightly slightly definitely
49
birth. agree agree disagree disagree
I find it very easy to play games with children that definitely slightly slightly definitely
50
involve pretending. agree agree disagree disagree
The Cambridge Behaviour Scale (EQ)
Name:
How to fill out the questionnaire:
Below are a list of statements. Please read each statement very carefully and rate how strongly
you agree or disagree with it by circling your answer. There are no right or wrong answers, or
trick questions.
I can easily tell if someone else wants to enter a strongly slightly slightly strongly
1
conversation. agree agree disagree disagree
strongly slightly slightly strongly

2 I prefer animals to humans.
I try to keep up with the current trends and strongly slightly slightly strongly
3
fashions. agree agree disagree disagree
I find it difficult to explain to others things that I
4 understand easily, when they don't understand it first
time.
5 I dream most nights.

6 I really enjoy caring for other people.
I try to solve my own problems rather than strongly slightly slightly strongly
7
discussing them with others. agree agree disagree disagree
I find it hard to know what to do in a social strongly slightly slightly strongly

8
situation. agree agree disagree disagree

9 I am at my best first thing in the morning.
People often tell me that I went too far in driving strongly slightly slightly strongly
10
my point home in a discussion. agree agree disagree disagree
11. It doesn't bother me too much if I am late strongly slightly slightly strongly
11
meeting a friend. agree agree disagree disagree
Friendships and relationships are just too difficult, so strongly slightly slightly strongly
12
I tend not to bother with them. agree agree disagree disagree

13 I would never break a law, no matter how minor.
I often find it difficult to judge if something is rude or strongly slightly slightly strongly
14
polite. agree agree disagree disagree
In a conversation, I tend to focus on my own
15 thoughts rather than on what my listener might be
thinking.
16 I prefer practical jokes to verbal humour.

17 I live life for today rather than the future.
When I was a child, I enjoyed cutting up worms to strongly slightly slightly strongly
18
see what would happen. agree agree disagree disagree
I can pick up quickly if someone says one thing but strongly slightly slightly strongly
19
means another. agree agree disagree disagree

20 I tend to have very strong opinions about morality.
It is hard for me to see why some things upset strongly slightly slightly strongly
21
people so much. agree agree disagree disagree
I find it easy to put myself in somebody else's strongly slightly slightly strongly
22
shoes. agree agree disagree disagree
I think that good manners are the most important strongly slightly slightly strongly
23
thing a parent can teach their child. agree agree disagree disagree

24 I like to do things on the spur of the moment.

25 I am good at predicting how someone will feel.
I am quick to spot when someone in a group is strongly slightly slightly strongly

26
feeling awkward or uncomfortable. agree agree disagree disagree
If I say something that someone else is offended by, strongly slightly slightly strongly
27
I think that that's their problem, not mine. agree agree disagree disagree
. If anyone asked me if I liked their haircut, I would strongly slightly slightly strongly
28
reply truthfully, even if I didn't like it. agree agree disagree disagree
I can't always see why someone should have felt strongly slightly slightly strongly
29
offended by a remark. agree agree disagree disagree

30 People often tell me that I am very unpredictable.
I enjoy being the centre of attention at any social strongly slightly slightly strongly
31
gathering. agree agree disagree disagree

32 Seeing people cry doesn't really upset me.

33 I enjoy having discussions about politics.
I am very blunt, which some people take to be strongly slightly slightly strongly
34
rudeness, even though this is unintentional. agree agree disagree disagree

35 I don’t tend to find social situations confusing.
Other people tell me I am good at understanding strongly slightly slightly strongly

36
how they are feeling and what they are thinking. agree agree disagree disagree
When I talk to people, I tend to talk about their strongly slightly slightly strongly
37
experiences rather than my own. agree agree disagree disagree
38 It upsets me to see an animal in pain.
I am able to make decisions without being strongly slightly slightly strongly

39
influenced by people's feelings. agree agree disagree disagree
I can't relax until I have done everything I had strongly slightly slightly strongly
40
planned to do that day. agree agree disagree disagree
I can easily tell if someone else is interested or strongly slightly slightly strongly
41
bored with what I am saying. agree agree disagree disagree
I get upset if I see people suffering on news strongly slightly slightly strongly
42
programmes. agree agree disagree disagree
Friends usually talk to me about their problems as strongly slightly slightly strongly
43
they say that I am very understanding. agree agree disagree disagree
I can sense if I am intruding, even if the other strongly slightly slightly strongly
44
person doesn't tell me. agree agree disagree disagree
I often start new hobbies but quickly become bored strongly slightly slightly strongly
45
with them and move on to something else. agree agree disagree disagree
People sometimes tell me that I have gone too far strongly slightly slightly strongly
46
with teasing. agree agree disagree disagree

47 I would be too nervous to go on a big rollercoaster.
Other people often say that I am insensitive, strongly slightly slightly strongly
48
though I don’t always see why. agree agree disagree disagree
If I see a stranger in a group, I think that it is up to strongly slightly slightly strongly

49
them to make an effort to join in. agree agree disagree disagree
I usually stay emotionally detached when watching a strongly slightly slightly strongly
50
film. agree agree disagree disagree
I like to be very organised in day to day life and strongly slightly slightly strongly
51
often make lists of the chores I have to do. agree agree disagree disagree
I can tune into how someone else feels rapidly and strongly slightly slightly strongly
52
intuitively. agree agree disagree disagree

53 I don't like to take risks.
I can easily work out what another person might strongly slightly slightly strongly
54
want to talk about. agree agree disagree disagree

55 I can tell if someone is masking their true emotion.
Before making a decision I always weigh up the strongly slightly slightly strongly
56
pros and cons. agree agree disagree disagree
I don't consciously work out the rules of social strongly slightly slightly strongly
57
situations. agree agree disagree disagree
58 I am good at predicting what someone will do.
I tend to get emotionally involved with a friend's strongly slightly slightly strongly
59
problems. agree agree disagree disagree
I can usually appreciate the other person's strongly slightly slightly strongly
60
viewpoint, even if I don't agree with it. agree agree disagree disagree
Wender Utah Rating Scale
As a Child I Was (or Had):
Not at All or Quite Very
1 Active, restless, always on the go Mildly Moderately
Slightly a Bit Much

2 Afraid of things Mildly Moderately
Slightly a Bit Much

3 Concentration problems, easily distracted Mildly Moderately
Slightly a Bit Much

4 Anxious, worrying Mildly Moderately
Slightly a Bit Much

5 Nervous, fidgety Mildly Moderately
Slightly a Bit Much

6 Inattentive, daydreaming Mildly Moderately
Slightly a Bit Much

7 Hot or short tempered, low boiling point Mildly Moderately
Slightly a Bit Much

8 Shy, sensitive Mildly Moderately
Slightly a Bit Much

9 Temper outbursts, tantrums Mildly Moderately
Slightly a Bit Much
Trouble with stick-to-it-tiveness, not following Not at All or Quite Very

10 Mildly Moderately
through, failing to finish things started Slightly a Bit Much

11 Stubborn, strong willed Mildly Moderately
Slightly a Bit Much

12 Sad or blue, depressed, unhappy Mildly Moderately
Slightly a Bit Much

13 Uncautious, dare-devilish, involved in pranks Mildly Moderately
Slightly a Bit Much

14 Not getting a kick out of things, dissatisfied with life Mildly Moderately
Slightly a Bit Much

15 Disobedient with parents, rebellious, sassy Mildly Moderately
Slightly a Bit Much

16 Low opinion of myself Mildly Moderately
Slightly a Bit Much

17 Irritable Mildly Moderately
Slightly a Bit Much

18 Outgoing, friendly, enjoying company of people Mildly Moderately
Slightly a Bit Much

19 Sloppy, disorganised Mildly Moderately
Slightly a Bit Much

20 Moody, have ups and downs Mildly Moderately
Slightly a Bit Much

21 Feel angry Mildly Moderately
Slightly a Bit Much
22 Have friends, popular Mildly Moderately
Slightly a Bit Much

23 Well organised, tidy, neat Mildly Moderately
Slightly a Bit Much

24 Acting without thinking, impulsive Mildly Moderately
Slightly a Bit Much

25 Tend to be immature Mildly Moderately
Slightly a Bit Much

26 Feel guilty, regretful Mildly Moderately
Slightly a Bit Much

27 Lose control of myself Mildly Moderately
Slightly a Bit Much

28 Tend to be or act irrational Mildly Moderately
Slightly a Bit Much
Unpopular with other children, didn’t keep friends for Not at All or Quite Very
long, didn't get along with other children Slightly a Bit Much

30 Poorly coordinated, did not participate in sports Mildly Moderately
Slightly a Bit Much

31 Afraid of losing control of self Mildly Moderately
Slightly a Bit Much

32 Well coordinated, picked first in games Mildly Moderately
Slightly a Bit Much

33 (For women only) Tomboyish Mildly Moderately
Slightly a Bit Much

34 Ran away from home Mildly Moderately
Slightly a Bit Much

35 Get in fights Mildly Moderately
Slightly a Bit Much

36 Teased other children Mildly Moderately
Slightly a Bit Much

37 Leader, bossy Mildly Moderately
Slightly a Bit Much

38 Difficulty getting awake Mildly Moderately
Slightly a Bit Much

39 Follower, lead around too much Mildly Moderately
Slightly a Bit Much
Trouble seeing things from someone else's point of Not at All or Quite Very
view Slightly a Bit Much
Trouble with authorities, trouble with school, visit to Not at All or Quite Very
the principal's office Slightly a Bit Much

42 Trouble with the police, booked, convicted Mildly Moderately
Slightly a Bit Much
Medical Problems as a Child:
43 Headaches Mildly Moderately
Slightly a Bit Much

44 Stomach aches Mildly Moderately
Slightly a Bit Much

45 Constipation Mildly Moderately
Slightly a Bit Much

46 Diarrhea Mildly Moderately
Slightly a Bit Much

47 Food allergies Mildly Moderately
Slightly a Bit Much

48 Other allergies Mildly Moderately
Slightly a Bit Much

49 Bedwetting Mildly Moderately
Slightly a Bit Much
As a Child in School:
50 Overall a good student, fast Mildly Moderately
Slightly a Bit Much

51 Overall a poor student, slow learner Mildly Moderately
Slightly a Bit Much

52 Slow reader Mildly Moderately
Slightly a Bit Much

53 Slow in learning to read Mildly Moderately
Slightly a Bit Much

54 Trouble reversing letters Mildly Moderately
Slightly a Bit Much

55 Trouble with spelling Mildly Moderately
Slightly a Bit Much

56 Trouble with math or numbers Mildly Moderately
Slightly a Bit Much

57 Bad handwriting Mildly Moderately
Slightly a Bit Much
Though I could read pretty well, I never really Not at All or Quite Very
enjoyed reading Slightly a Bit Much

59 Did not achieve up to potential Mildly Moderately
Slightly a Bit Much

60 Repeated grades (which grades?) Mildly Moderately
Slightly a Bit Much

61 Suspended or expelled (which grades?) Mildly Moderately
Slightly a Bit Much
CAARS-Self-Report: Long Version (CAARS-S:L)
Listed below are items concerning behaviours or problems sometimes experienced by adults.
Read each item carefully and decide how much or how frequently each item describes you
recently. Indicate your response for each item by circling the answer that corresponds to your
choice.
Not at All Just a Little (once Pretty Much Very Much

1 I like to do active things.
(never) in a while) (often) (very frequently)
I lose things necessary for tasks or activities Not at All Just a Little (once Pretty Much Very Much
2
(e.g. to-do lists, pencils, books, or tools). (never) in a while) (often) (very frequently)

3 I don’t plan ahead.

4 I blurt out things.

5 I am a risk-taker or daredevil.

6 I get down on myself.

7 I don’t finish things I start.

8 I am easily frustrated.

9 I talk too much.

10 I am always on the go, as if driven by a motor.

11 I am disorganised.

12 I say things without thinking.

13 It's hard for me to stay in one place very long.

14 I have trouble doing leisure activity quietly.

15 I'm not sure of myself.
It's hard for me to keep track of several things Not at All Just a Little (once Pretty Much Very Much
16
art once. (never) in a while) (often) (very frequently)

17 I'm always moving even when I should be still.
18 I forget to remember things.

19 I have a short fuse/hot temper.

20 I'm bored easily.

21 I leave my seat when I am not supposed to.
I have the trouble waiting in line or taking turns Not at All Just a Little (once Pretty Much Very Much
22
with others. (never) in a while) (often) (very frequently)

23 I still throw tantrums.
I have trouble keeping my attention focused Not at All Just a Little (once Pretty Much Very Much
24
when working. (never) in a while) (often) (very frequently)

25 I seek out fast paced, exciting activities.
I avoid new challenges because I lack faith in Not at All Just a Little (once Pretty Much Very Much
26
my abilities. (never) in a while) (often) (very frequently)

27 I feel restless inside even if I am sitting still.
Things I hear or see distract me from what I'm Not at All Just a Little (once Pretty Much Very Much
28
doing. (never) in a while) (often) (very frequently)

29 I am forgetful in my daily activities.

30 Many things set me off easily.

31 I dislike quiet, introspective activities.

32 I lose things that I need.
I have trouble listening to what other people Not at All Just a Little (once Pretty Much Very Much
33
are saying. (never) in a while) (often) (very frequently)

34 I am an underachiever.

35 I interrupt others when talking.

36 I change plans/jobs in midstream.
I act OK on the outside, but inside I'm unsure Not at All Just a Little (once Pretty Much Very Much
37
of myself. (never) in a while) (often) (very frequently)
38 I am always on the go.
I make comments/remarks that I wish I could Not at All Just a Little (once Pretty Much Very Much
39
take back. (never) in a while) (often) (very frequently)
I can’t get things done unless there is an Not at All Just a Little (once Pretty Much Very Much
40
absolute deadline. (never) in a while) (often) (very frequently)
I fidget (with my hands or feet) or squirm in my Not at All Just a Little (once Pretty Much Very Much
41
seat. (never) in a while) (often) (very frequently)
I make carless mistakes or have trouble Not at All Just a Little (once Pretty Much Very Much
42
paying close attention to detail. (never) in a while) (often) (very frequently)

43 I step on peoples toes without meaning to.

44 I have trouble getting started on a task.

45 I intrude on other's activities.

46 It takes a great deal of effort for me to sit still.

47 My moods are unpredictable.
I don't like homework or job activities that Not at All Just a Little (once Pretty Much Very Much
48
make me think a lot. (never) in a while) (often) (very frequently)

49 I'm absent minded in daily activities.

50 I am restless or overactive.
I depend on others to keep my life in order Not at All Just a Little (once Pretty Much Very Much
51
and attend to the details. (never) in a while) (often) (very frequently)

52 I annoy other people without meaning to.
Sometimes my attention narrows so much that

53 I'm oblivious to everything else; other times it's
so broad that everything distracts me.

54 I tend to squirm or fidget.
I can’t keep my mind on something unless it's Not at All Just a Little (once Pretty Much Very Much
55
really interesting. (never) in a while) (often) (very frequently)

56 I wish I had greater confidence in my abilities.

57 I can’t sit still for very long.
I give answers to questions before the Not at All Just a Little (once Pretty Much Very Much
58
questions have been completed. (never) in a while) (often) (very frequently)
I like to be up and on the go rather than being Not at All Just a Little (once Pretty Much Very Much
59
in one place. (never) in a while) (often) (very frequently)

60 I have trouble finishing tasks or schoolwork.

61 I am irritable.
I interrupt others when they are working ort Not at All Just a Little (once Pretty Much Very Much
playing. (never) in a while) (often) (very frequently)
62
My past failures make it hard for me to believe Not at All Just a Little (once Pretty Much Very Much
in myself. (never) in a while) (often) (very frequently)
63
I am distracted when things are going on Not at All Just a Little (once Pretty Much Very Much
around me. (never) in a while) (often) (very frequently)
64
I have problems organising my tasks and Not at All Just a Little (once Pretty Much Very Much
activities. (never) in a while) (often) (very frequently)
65
I misjudge how long it takes to do something Not at All Just a Little (once Pretty Much Very Much
or go somewhere. (never) in a while) (often) (very frequently)
66
Y-BOCS Symptom Checklist
The following are a list of common obsessions and compulsions which people with your problem sometimes have difficulty with.
Please answer each question by putting a tick in the appropriate box. We are interested in both your current and your past symptoms.
Clearly mark the principal symptoms with a "P"
AGGRESSIVE OBSESSIONS Current Past

Fear might harm self
Fear might harm others
Violent or horrific images
Fear of blurting out obscenities or insults
Fear of doing something else embarrassing
Fear will act on unwanted impulses (e.g. to stab friend)
Fear will steal things
Fear will harm others because not careful enough (e.g. Hit/run MVA)
Fear will be responsible for something else terrible happening (e.g. fire/burglary)
Other:
CONTAMINATION OBSESSIONS Current Past

Concerns or disgust with bodily waste or secretions (e.g. urine, faeces, saliva)
Concern with dirt or germs
Excessive concern with environmental contaminants (asbestos, radiation, toxic waste)
Excessive concern with household items (e.g. solvents, cleansers)
Excessive concern with animals (eg. insects)
Bothered by sticky substances or residues
Concerned will get ill because of contaminant
Concerned will get others ill by spreading contaminant (Aggressive)
No concern with consequences of contamination other than how it might feel
Other:
SEXUAL OBSESSIONS Current Past

Forbidden or perverse sexual thoughts, images or impulses
Content involves children or incest
Content involves homosexuality
Sexual behaviour towards others (Aggressive)
Other:
HOARDING/SAVING OBSESSIONS Current Past

Distinguish from hobbies and concern with objects of monetary or sentimental value
RELIGIOUS OBSESSIONS (scrupulosity)

Concerns with sacrilege and blasphemy
Excess concern with right/wrong morality
Other:
OBSESSION WITH NEED FOR SYMMETRY OR EXACTNESS Current Past

Accompanied by magical thinking (e.g. concerned that mother will have accident unless things in the right
place)
Not accompanied by magical thinking
Other:
MISCELLANEOUS OBSESSIONS Current Past
Need to know or remember
Fear of saying certain things
Fear of not saying just the right thing
Fear of losing things
Intrusive (non-violent) images
Intrusive nonsense sounds, words or music
Bothered by certain sounds/noises
Lucky/unlucky numbers
Colours with special significance
Superstitious fears
Other:
SOMATIC OBSESSIONS Current Past

Concerns with illness or disease
Excessive concern with body part or aspect of appearance (e.g. dysmorphophobia)
Other:
CLEANING/WASHING COMPULSIONS Current Past

Excessive or ritualised handwashing
Excessive or ritualised showering, bathing toothbrushing, grooming or toilet routine
Involves cleaning of household items or other inanimate objects
Other measures to prevent or remove contact with contaminants
Other:
CHECKING COMPULSIONS Current Past

Checking locks, stove, appliances, etc
Checking that did not/will not harm others
Checking that did not/will not harm self
Checking that nothing terrible did/will happen
Checking that did not make mistake
Checking tied to somatic obsessions
Other:
REPEATING RITUALS Current Past

Re-reading or re-writing
Need to repeat routine activities (e.g. in/out door, up/down from chair)
Other:
COUNTING COMPULSIONS
ORDERING/ARRANGING COMPULSIONS
HOARDING/COLLECTING COMPULSIONS Current Past

Distinguish from hobbies and concern with objects of monetary/sentimental value (e.g. carefully reads junk
mail, piles up old newspapers, sorts through garbage, collects useless objects)
MISCELLANEOUS COMPULSIONS Current Past

Mental rituals (other than checking)
Excessive list making
Need to tell, ask, confess
Need to touch, tap, rub
Rituals involving blinking or staring
Measures (not checking) to prevent harm to self, harm to others, terrible consequences
Ritualised eating behaviours
Superstitious behaviours
Trichotillomania
Other self damaging or self mutilating behaviours
Others:
YALE-BROWN OBSESSIVE COMPULSIVE SCALE (Y-BOCS)
The following questions refer to your obsessive thoughts, especially those that you marked as “principal” symptoms.
How much of your time is occupied by obsessive thoughts? How frequently do the obsessive thoughts
1 occur? {Be sure to exclude ruminations and pre-occupations which, unlike obsessions, are ego-syntonic and
rational (but exaggerated)}.
 None.
 Mild, less than 1 hour a day or occasional intrusion.
 Moderate, 1 to 3 hours a day or frequent intrusion.
 Severe, greater than 3 and up to 8 hours a day or very frequent intrusion.
 Extreme, greater than 8 hours a day or near constant intrusion.
How much do your obsessive thoughts interfere with your social or work(or role) functioning? Is there
2 anything that you don't do because of them? {If currently not working determine how much performance
would be affected if patient were employed}.
 None.
 Mild, slight interference with social or occupational activities, but overall performance not impaired.
 Moderate, definite interference with social or occupational performance, but still manageable.
 Severe, causes substantial impairment in social or occupational performance.
 Extreme, incapacitating.
3 How much distress do your obsessive thoughts cause you?
 None.
 Mild, not too disturbing.
 Moderate, disturbing, but still manageable.
 Severe, very disturbing.
 Extreme, near constant and disabling distress.
How much of an effort do you make to resist the obsessive thoughts?, How often do you try to
4 disregard or turn your attention away from these thoughts as they enter your mind? {Only rate effort
made to resist, not success or failure in actually controlling the obsessions}.
 Makes an effort to always resist, or symptoms so minimal doesn't need to actively resist.
 Tries to resist most of the time.
 Makes some effort to resist.
 Yields to all obsessions without attempting to control them, but does so with some reluctance.
 Completely and willingly yields to all obsessions.
How much control do you have over your obsessive thoughts?, How successful are you in stopping or
diverting your obsessive thinking?, Can you dismiss them? {in contrast to the preceding item on
5
resistance, the ability of the patient to control his/her obsessions is more closely related to the severity of the
intrusive thoughts.}
 Complete control.
 Much control, usually able to stop or divert obsessions with some effort and concentration.
 Moderate control, sometimes able to stop or divert obsessions.
 Little control, rarely successful in stopping or dismissing obsessions, can only divert attention with difficulty.
 No control, experienced as completely involuntary, rarely able to even momentarily alter obsessive thinking.
The next several questions are about your compulsive behaviours” {Make specific reference to the patients principal
compulsions}.
How much time do you spend performing compulsive behaviours? How much longer than most people
does it take to complete routine activities because of your rituals? How frequently do you perform
6
compulsions? {in most cases compulsions are observable behaviour(eg. hand washing) but some
compulsions are covert (eg. silent checking)}.
 None.
Mild, (spends less than 1hr/day performing compulsions), or occasional performance of compulsive
 behaviours.
Moderate, (spends from 1-3 hrs/day performing compulsions), or frequent performance of compulsive
 behaviours.
Severe, (spends more and up to 8 hrs/day performing compulsions), or very frequent performance of
 compulsive behaviours.
Extreme (spends more than 8 hrs/day performing compulsions) or near constant performance of compulsive
 behaviours(too numerous too count).
How much do your compulsive behaviours interfere with your social or work (or role functioning? Is
7 there anything that you don't do because of the compulsions? {If currently not working determine how
much performance would be affected if patient were employed.}
 None.
 Mild, slight interference with social or occupational activities, but overall performance not impaired.
 Moderate, definite interference with social or occupational performance, but still manageable.
 Severe, causes substantial impairment in social or occupational performance.
 Extreme, incapacitating.
How would you feel if prevented from performing your compulsion(s)? How anxious would you
8 become? How anxious do you get while performing compulsions until you are satisfied they are
completed?
 None.
 Mild only slightly anxious if compulsions prevented, or only slight anxiety during performance of compulsions.
Moderate, reports anxiety that would mount but remain manageable if compulsions prevented, or that anxiety
 increases but remains manageable during performance of compulsions.
Severe, prominent and very disturbing increase if compulsions interrupted, or prominent and very disturbing
 increase in anxiety during performance of compulsions.
Extreme, incapacitating anxiety from any intervention aimed at modifying activity, or incapacitating anxiety
 develops during performance of compulsions.
How much of an effort do you make to resist the compulsions? {only rate effort made to resist, not
9
success or failure in actually controlling the compulsions}.
 Makes an effort to always resist, or symptoms so minimal doesn't need to actively resist.
 Tries to resist most of the time.
 Makes some effort to resist.
 Yields to almost all compulsions without attempting to control them, but does so with some reluctance.
 Completely and willingly yields to all compulsions.
How strong is the drive to perform the behaviour? How much control do you have over the
10 compulsions? {In contrast to the preceeding item on resistance, the ability of the patient to control the
compulsions is more closely related to the severity of the compulsions}.
 Complete control.
 Much control, experiences pressure to perform behaviour but usually able to exercise voluntary control over it.
 Moderate control, strong pressure to perform behaviour, can control it only with difficulty.
Little control, very strong drive to perform the behaviour, must be carried to completion, can only delay with
 difficulty.
No control, drive to perform behaviour experienced as completely involuntary and overpowering, rarely able to
 even momentarily delay activity.
Cambridge Depersonalization Scale (State Version)
Please read these instructions carefully:
This questionairee describes strange and 'funny' feelings that people may have in their daily
life. Please read carefully each of the following descriptions. If you feel you are having 'Right
Now' any of the following experienes, please let us know how bad it is at the moment by
making a mark on the line.
Example:
0% ¦---------------------------------------------- /-----------------------¦ 100%
(I'm not having it at all) (it's as bad as it can get)
I'm feeling strange, as if I were not real or as if I were cut off from the world.
1
0% ¦-----------------------------------------------------------------------¦ 100%
Things around me are now looking 'flat' or 'lifeless', as if I were looking at a picture.
2
0% ¦-----------------------------------------------------------------------¦ 100%
I am feeling as if parts of my body didn’t belong to me.

3
0% ¦-----------------------------------------------------------------------¦ 100%
I'm now having the feeling of being a 'dethatched observer' of myself.

4
0% ¦-----------------------------------------------------------------------¦ 100%
My body is feeling very light now, as if I were floating on air.

5
0% ¦-----------------------------------------------------------------------¦ 100%
I am not feeling any emotions at all.

6
0% ¦-----------------------------------------------------------------------¦ 100%
If I read this sentence aloud, my voice sounds remote and unreal.

7
0% ¦-----------------------------------------------------------------------¦ 100%
I am having a feeling of complete emptiness in my head so
that I am not having any thoughts at all.
8
0% ¦-----------------------------------------------------------------------¦ 100%
I am having a feeling that my hands or my feet have become larger or smaller.

9
0% ¦-----------------------------------------------------------------------¦ 100%
My surroundings are feeling detached or unreal, as if there was a veil or fog
between me and the outside world.
10
0% ¦-----------------------------------------------------------------------¦ 100%
It seems now as if things that I have recently done had taken place a long time ago.
For example anything which I have done this morning feels as if it were done weeks ago.
11
0% ¦-----------------------------------------------------------------------¦ 100%
If I now try to remember important events in my life (e.g. graduation, wedding etc.), I
feel so detached from the memories that it seems as if I had not been involved in them.
12
0% ¦-----------------------------------------------------------------------¦ 100%
I don't seem to be feeling any affection towards my family and close friends.
13
0% ¦-----------------------------------------------------------------------¦ 100%
Objects around me are looking smaller or further away.

14
0% ¦-----------------------------------------------------------------------¦ 100%
I cannot feel properly the roller or pencil that I have in my hand, as if it were not me
who were holding it.
15
0% ¦-----------------------------------------------------------------------¦ 100%
If I now try to imagine a face of a relative or friend whom I frequently see
(but who is not with you at present) I do not seem able to picture it in my mind.
16
0% ¦-----------------------------------------------------------------------¦ 100%
If I pinch myself in my arm now, I feel so detached from the pain that it feels as
if it were 'somebody else's pain'.
17
0% ¦-----------------------------------------------------------------------¦ 100%
I am now having the feeling of being outside my body.

18
0% ¦-----------------------------------------------------------------------¦ 100%
I am feeling as if I were not in charge of my movements, so that I feel
'automatic' and mechanical as if I were a robot.
19
0% ¦-----------------------------------------------------------------------¦ 100%
I am feeling so detached from my thoughts that they seem to have a 'life' of their own.
20
0% ¦-----------------------------------------------------------------------¦ 100%
I feel like touching myself to make sure that I have a body or a real existence.
21
0% ¦-----------------------------------------------------------------------¦ 100%
I am still having the same strange feeling as when I started to answer his questionnaire.
22
0% ¦-----------------------------------------------------------------------¦ 100%

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Our Ref: FOI/15/194 Trust Headquarters

Tel: 01903 843078

Via Email: request-257808-22701010@whatdotheyknow.com

Freedom of Information Request

Chair: Caroline Armitage Chief Executive: Colm Donaghy

Information Commissioner’s Office

Autistic Spectrum Conditions Service

Tel: 01903 846 656

Your name: __________________________________ Date: _______________

2. Please write about your experiences of using and understanding non-verbal

Examples of non-verbal communication include eye-contact, gestures, facial expressions,

4. Please write about how you cope with change.

6. Please write about how you think.

8. Please write about your sensory experiences.

There are 80 questions over the next 5 pages.

It will take about one hour to answer all the questions.

Please answer all the statements.

Tick only one answer per question.

Use the following key to mark your responses:

Never true – you have never been like this

The questions start on the next page.

2 I often use words and phrases from movies and TV

3 I am often surprised when others tell me I have been

4 Sometimes I talk too loudly or too softly, and I am not

5 I often don’t know how to act in social situations.

6* I can “put myself in other people’s shoes”.

7 I have a hard time working out what some phrases

8 I only like to talk to people who share my special

9 I focus on details rather than the overall idea.

10 I always notice how food feels like in my mouth. This

11* I miss my best friends or family when we are apart

12 Sometimes I offend others by saying what I am

13 I only like to think and talk about a few things that

14 I’d rather go out to eat in a restaurant by myself than

15 I cannot imagine what it would be like to be someone

16 I have been told that I am clumsy or uncoordinated.

17 Others consider me odd or different.

18* I understand when friends need to be comforted.

19 I am very sensitive to the way my clothes feel when I

21 It can be very intimidating for me to talk to more than

22 I have to “act normal” to please other people and

23* Meeting new people is usually easy for me.

24 I get highly confused when someone interrupts me

25 I can be difficult for me to understand how other

26* I like having a conversation with several people, i.e.

27 I take things too literally, so I often miss what people

28 It is very difficult for me to understand when

29 Some ordinary textures that do not bother others feel

30 I get extremely upset when the way I like to do things

31 I have never wanted or needed to have what other

32 It is difficult for me to start and stop a conversation. I

33* I speak with a normal rhythm.

34 The same sound, colour or texture can suddenly

35 The phrase “I’ve got you under my skin” makes me

36 Sometimes the sound of a word or high-pitched

38 I do not connect with characters in movies and

40 I can see in my mind in exact detail things that I am

41 I keep lists of things that interest me, even when they

42 When I feel overwhelmed by my senses, I have to

43* I like to talk things over with my friends.

44 I cannot tell if someone is interested or bored with

45 It can be very hard to read someone’s face, hand

Your name: ____________________ Date: _