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STEAMY SECRETS
IT MAY BE YOUR CANCER THE HYPE AND HOPE
TREATMENT FOR GREEN TEA
t WINTER 2010
er-free movemen
into Alberta’s canc
HEALING
TRADITIONS
Honouring loss during
the holidays
TRIP OF A LIFETIME
Mother-daughter travellers
will always have Paris
CANADIAN PUBLICATIONS MAIL PRODUCT AGREEMENT #40020055 Non-deliverable mail should be directed to: 10259 105 Street, Edmonton, AB T5J 1E3
“For those facing cancer toda
today,
in honour of those lost to cancer,
and for generations to come,
ess.“
we promise progress.
20
16 TRIP OF A LIFETIME
For a writer, her toddler and her cancer patient
mother, Paris will never be the same
12 BODYMIND FEATURES
How to meditate mindfully
32 TOP JOB
13 COOKING SMART Chaplain encourages patients to take a spiritual
Green tea: healer or hype? journey
48 EXERCISE ON TRIAL
New study asks “what amount of activity can
reduce the risk of breast cancer?”
32
16
Knowledge is Power
We are still basking in the afterglow of our annual research conference,
Alberta’s signature scientific symposium for cancer researchers in the
province. More than 250 researchers – graduate students to veteran
scientists – attended sessions in Banff ranging from the epigenetics of
breast cancer to depression and survivorship. It’s inspiring to see so many
TRUSTEES dedicated cancer researchers under one roof, together for one mighty
purpose.
Leslie Beard, We’re proud of the work our researchers do. And as we told them in
Edmonton Banff, we know that every time someone gives a dollar to the Alberta
Cancer Foundation, it comes with an expectation. Each gift is laden
Angela Boehm, with fear, grief or gratitude – sometimes all three. Each gift trusts us to
Calgary do something, to drive progress on every front – prevention, research,
treatment and care.
Greg Cameron, Donors trust us to change the landscape so fewer Albertans get cancer,
Edmonton to transform treatment so fewer people die of cancer and to provide better
support so patients and families can be fully
Heather Culbert, alive – while on the cancer journey.
Calgary Donors trust us to change the Last year, the Alberta Cancer Foundation
landscape so fewer Albertans get received more than $35 million in trust from
Steven Dyck, cancer, to transform treatment so Albertans. That’s a lot of trust. We invested
Lethbridge the lion’s share of those dollars into research,
fewer people die of cancer and to so our scientists and cancer specialists can
Tony Fields, provide better support so patients continue to push the boundary of medical
Edmonton and families can be fully alive – knowledge every day. Every year, those who
face a cancer diagnosis have better treat-
Dianne Kipnes,
while on the cancer journey. ments and better support than those diag-
Edmonton nosed before them – thanks to research. But
every year, 16,000 more Albertans are newly diagnosed with cancer and
John J. McDonald, they desperately depend on the knowledge researchers are generating.
Edmonton Over 25 years, the cancer mortality rate in this province has dropped
some 10.6 per cent. That translates into more than 600 Albertans each
Brent Saik, year who have survived cancers that would have killed them 25 years ago.
Sherwood Park Research is the key to the knowledge that unlocks the mystery of cancer
and saves lives.
Prem Singhmar, As we head into 2011, we hope you enjoy a wonderful holiday season.
Sherwood Park We are committed more than ever to a new year, a new resolve and making
even more progress towards a future free from cancer.
Heather Watt,
Edmonton
John Osler, Chair Linda Mickelson, CEO
Vern Yu, Alberta Cancer Foundation Alberta Cancer Foundation
Calgary
Cancer
Delicious Fundraiser
What could be more delectable than a lobster dinner in one of your favourite
restaurants? The Earls Edmonton Clareview location adds in a red-carpet gala as
the main course, with a paparazzi photographer and silent auction on the side.
That’s what guests were treated to when they attended the event on Oct. 3.
This Earls location decided to do something different as part of the company’s
annual Keith’s Lobster Party.
“My chef and I wanted to take the popularity of the event and turn it from a
random party and give it a little depth and meaning,” says restaurant leader
Christina Reboh. She explains that several partners of the restaurant have had
family members diagnosed with cancer over the last year. “We thought it
would be a really nice way to show our support for them.”
The Earls Lobster Dinner Gala fundraiser was only opened to 106 ticketholders
who were literally given the red-carpet treatment, while a photographer
CLARIFICATION snapped photos throughout the night. Instead of the standard sit-down-and-
A Fall 2010 story was improperly titled “The Sixth Vital eat restaurant style, the gala encouraged guests to mingle and explore the
Sign.” The researcher profiled, Dr. Bejoy Thomas, is not silent auction, which included a signed Oilers jersey, wine gift sets and night-
the creator of the Sixth Vital Sign but is researching the on-the-town packages.
impact a person’s race has on it. Leap and the Alberta Earls Clareview managed to raise more than $8,000 for the Alberta Cancer
Cancer Foundation apologize for the confusion. Foundation to invest in cancer research at the Cross Cancer Institute.
ady
Elma Sp
Elma’s friends gathered with her
again just three months later as
she died of pancreatic cancer.
But her ability to push through
challenges continues. Elma funds
cancer research with her legacy.
She knew that if one small woman
can build a boat, together, we
In September of 2005, Elma can build a future without cancer.
Spady and 30 friends celebrated To learn more about leaving a legacy to a
a tugboat launch in Pigeon cancer-free future, please contact: Derek Michael,
Lake Alberta. 780 643 4662, 1 866 412 4222 or email
derek.michael @ albertacancerfoundation.ca
The day celebrated friendship and
the vibrancy of 63-year-old Elma,
a lawyer, who had built the replica
of New York Harbour tugs by hand
in her garage.
Eat Your Broccoli
Scientists uncover another benefit of broccoli,
though parents still haven’t figured out how to get
their kids to enjoy it. Apparently, the long-
despised vegetable possesses cancer “battling”
abilities. It plays out like a fantasy adventure tale:
broccoli’s cancer prevention ability, sulforaphane,
is released when it combines with allies found in
lower stomach bacteria. The bacteria absorbs the
sulforaphane and cancer prevention activities in
the colon are enhanced.
For those at-home chefs who overcook vegeta-
bles, the stomach’s bacteria can salvage some of
the sulforaphane that may be otherwise
destroyed.
Other broccoli benefits include vitamin C,
vitamin A, folic acid, calcium and fibre nutrients.
The study by University of Illinois professor
Elizabeth Jeffery and her team can be reviewed
in the November issue of the Food and Function
journal. And in case you’ve been resisting it, broc-
coli can be found in the produce section at your
local grocery store.
Gingerbread Figures
1/2 cup (125 ml) Butter or hard margarine, softened
Reprinted from Company’s Coming for Christmas © Company’s Coming Publishing Limited.
1/2 cup (125 ml) Granulated sugar
1/2 cup (125 ml) Fancy molasses
1 Egg yolk (large)
2 cups (500 ml) All-purpose flour
1/2 tsp. (2 ml) Baking powder
1/2 tsp. (2 ml) Baking soda
1 tsp. (5 ml) Ground cinnamon
1 tsp. (5 ml) Ground ginger
1/4 tsp. (1 ml) Ground nutmeg
1/4 tsp. (1 ml) salt
1. Cream butter, sugar, molasses and egg yolk together until light.
2. Add next eight ingredients. Mix well. Wrap in plastic and chill at
least one hour. Roll out. Cut into shapes with cookie cutters.
Arrange on baking sheet. Bake in 350°F (175°C) oven for 10 to 15
Gingerbread Lollipops
minutes. Cool. Shape 1/4 to 1/3 cup (60 to 75 mL) dough into ball.
Insert wooden stick. Place on greased cookie sheet.
3. Frosting: Beat egg white with spoon in medium bowl. Beat in as
Press with bottom of tumbler to 1/4 inch (six millimetres)
much icing sugar as needed until icing will hold its shape. Ice cookies.
thick. Bake for 10 to 12 minutes. Cool.
Makes 12 to 16 gingerbread men cookies or a variety of other shapes.
cott
Wayne S
supporting cancer research chairs at
the Tom Baker Cancer Centre.
Instructions for
Mindfulness Meditation
BY LINDA E. CARLSON, PH D
Myth #1 To meditate, your mind has to be when you will not be interrupted – this can just be a few minutes at first, and gradually
completely blank build up to 20- or 30-minute stretches.
Actually, for mindfulness meditation, it doesn’t matter 1. Take a seat, either in a straight-backed chair, on the floor with crossed legs
what’s on your mind – your worries, plans, fears, aches with your buttocks elevated by a cushion or even lying down if you cannot sit
and pains can all be the focus of your mindfulness upright comfortably. Allow your shoulders to drop away from your ears and
practice. Your mind can be calm and placid or full of your chest to expand as you breathe.
metaphorical storm clouds. To meditate, you simply 2. Begin paying attention to your breath, without trying to change it.
have to be where you are and focus your awareness on 3. Note silently to yourself “in” with each in-breath and “out” with each out-breath.
your direct experience in each 4. At the same time as your are noting “in” and “out,” notice
moment. This type of breath the rising and falling feeling in your belly or alternatively,
awareness meditation the feeling of your breath flowing in and out through
Myth #2 To meditate, you your nostrils.
need to sit on the floor, twisted
is excellent for 5. Continue until your attention wanders (this may only take
up like a pretzel and never training the mind to a few breaths).
move a muscle stay focused where 6. As soon as you notice your mind wandering, mentally
Again, not necessary at all. You you’d like it to be. congratulate yourself for becoming aware of the wandering
can sit in a comfortable chair, on and simply return to noting “in” and “out” with each breath.
a cushion or even lie down flat. The important thing 7. If you begin to feel impatient, restless, bored or sleepy, accept these and any
about the posture is simply that you can breathe freely other feelings or thoughts as just passing mind moments, let them go and
and remain relatively still and comfortable. return to the breath.
8. Keep at it for five minutes, then 10 and eventually 15 or 20.
Myth #3 People who meditate are hippies,
Buddhists or gurus This type of breath awareness meditation is excellent for training the mind to
You don’t have to belong to any specific religious, stay focused where you’d like it to be. It requires practice and patience, but will
philosophical or social group to practice mindfulness pay off over time by improving your capacity for paying attention and eventually
meditation. Most every spiritual tradition or religion help you gain insight into the causes and remedies for your suffering.
has its own form of mind training or meditation – the
practice can easily be integrated into whatever religious Dr. Linda Carlson is the Enbridge Chair in Psychosocial Oncology at the Tom
or spiritual practices you already follow. Baker Cancer Centre, a professor and a clinical psychologist at the University of
Calgary and the Tom Baker Cancer Centre and co-author of Mindfulness-Based
Now that we’ve addressed the myths, here’s how to Cancer Recovery: A Mbsr Approach to Help You Cope With Treatment and Reclaim
get started. Begin by setting aside a short period of time Your Life. Learn more at lindacarlson.ca.
Green Tea:
Healer or Hype?
BY TANIA VANDER MEULEN
T
his is a tale of two cities, two daughters, two people that needed
taking care of, and that desire to explore, which lives in all of us.
Travelling can be stressful even for the hardiest of people. For cancer
patients, it’s an even more daunting prospect. Managing a safe and
relaxing journey when you have cancer involves planning carefully and
paying attention to details. This I know now. I wish I had then.
In early 2006, my mother was diagnosed with stage IV uterine cancer
and given 18 months to live. While there is never a good time for this type
of news, the timing was particularly bad. In only a few weeks, my husband’s
new job would be taking our family far away from our home in Alberta to
London, England. For my mother, the idea of having to be away from her new
granddaughter was especially difficult. It turned out nothing could keep her
away, not even cancer.
And so, despite the diagnosis, plans were made for my mother, accompanied
by my sister, to visit us for two weeks at our new home overseas shortly after
we moved. Our main consideration was to work the trip in between her
monthly chemotherapy treatments. We also made arrangements for the four
of us – me, my mother, sister and daughter – to take a quick jaunt to Paris.
Such travel isn’t unusual for cancer patients. According to medical
oncologist Dr. Bernie Eigl at the Tom Baker Cancer Centre, “The majority of
patients often want to travel in one way or form. We try to enable people to do
as much as they can, safely.”
Back then we had no clue about her oxygen levels or didn’t even know what we
airline medical desks. Her doctor’s consent was all the were waiting for.
preparation we thought we needed. Of course, we had Cold and concerned,
lingering concerns, but the joy on my mom’s face when she we pressed train staff,
saw her granddaughter at the airport erased any doubts who themselves had little
anyone may have had. more information than we
We took the first few jetlagged days slow, wandering did. They were dealing with
through leafy parks, sampling cream teas and preparing crowds that reached more than 6,000
for Paris. So elated were we to be reunited, touring our people that day and the resulting confusion. But I had to
favourite neighbourhood haunts took precedence over deal with a feisty toddler and a 70-year-old with a shot
exploring what-if scenarios. Preparation was light. immune system standing in the rain. I was responsible
Passports: check. Diaper bag: check. French-English for putting Mom in this dangerous situation, and I
dictionary: check. Unfortunately, packing extra needed to get her out of it.
pain medication and prescription refills We took matters into our own hands and snuck back
somehow escaped our checklist. inside the station. Relieved to at least be back under shelter,
Looking back, I was in denial that this trip we stood in the unheated station for what would become
was going to be different. Perhaps I wasn’t the eight painful hours.
only one in denial. Mom’s exuberance upon We had plenty of time to worry about a lot of things.
seeing her granddaughter distracted us all Would we ever get to Paris? Would we even make it home
from how frail she was. Yet she was keeping that night? Was I a bad mother for keeping my daughter
up on walks and constantly smiling. Getting strapped in her stroller for over 10 hours? But a curious
through a few rides on the Tube and the high- thing happened that day. The thing none of us worried
speed Eurostar train under about just then was cancer.
the English Channel Though Mom was cold and tired, she was determined.
seemed like a non- What sustained her during that long day weren’t the four
issue. energy bars she was plied with, but her attitude.
The delayed Our patience and perseverance eventually paid off. After
Eurostar to Paris officials determined a passenger priority list, we were put
should’ve been our on the last train to Paris. Apparently, a house falling into a
first clue all would sinkhole beside the Eurostar track caused the delay. Who
not go as expected. has a contingency plan for that?
Happily distracted by We finally arrived in the City of Light 14 hours after
magazines and lattes, leaving my flat in London. We couldn’t have been happier
we remained patient. to see that cramped hotel room with its tacky bedspread.
But the delayed Mom went to bed, and spent most of the trip in it, as the
train led to a platform drama of the journey caught up with her and developed
change followed by a into a cold.
mad scramble of hundreds Lofty plans for climbing the Eiffel Tower and
of people. We made it onto meandering through the Musée d’Orsay were replaced
the train but when we reached with a few short excursions to sites that mattered most.
the Ashford International Railway Changing our game plan allowed us to appreciate the little
Station, it stopped – and stayed things: dunking warm pastries in hot chocolate in the
stopped. morning, laughing at French commercials and curling up
Along with 500 other passengers, under thick comforters.
we were herded unceremoniously Our best meals weren’t at Michelin-star restaurants,
outside to wait in the drizzle. We but eaten picnic-style on top of the hotel bed. With a
waited and waited until we realized we thriving market close by, we feasted on rotisserie chicken
Talk
ABOUT
SEX
BY LISA RICCIOTTI / ILLUSTRATION BY RAYMOND REID
Y
ou or your partner has been diagnosed with tive,” owner Brenda Kerber is busy doing just that.
cancer. Are you thinking about sex? Building on her former career as a social worker, Kerber
Highly doubtful, and your doctor’s probably not moved beyond the stigma usually associated with the sex-
focused on how cancer treatment will impact your sex toy industry to create an enlightened adult-toy boutique
life either. “The first concern is always survival,” says Dr. Kelly where both women and men feel comfortable. Its wel-
Dabbs, an Edmonton surgeon who treats breast cancer and coming environment attracts many cancer patients who
melanoma. “Initially patients and physicians are so focused on seek out the Tickle Trunk following a medical referral or
the malignancy and treatment that the impact on sexuality is for their own curiosity.
rarely discussed – unless a patient raises the issue.” “Sexuality is often ignored by health professionals,”
Sadly, most won’t, says Dr. John Robinson, a clinical psy- Kerber notes. “Often the attitude is you have cancer and
chologist at Calgary’s Tom Baker Cancer Centre. “Cancer there are more important things to think about than sex.
patients worry they’ll be judged as having their priorities mixed But you can’t set sex aside and wait until you’re better when
up if they ask about sex. And often patients think only below- treatment takes months or years. You need to maintain
the-belt cancers bring sexual changes, while treatment affects physical closeness, especially through such difficult times.
nearly everyone, regardless of the cancer type. In fact, sexual Give yourself permission to accept that this area of your
dysfunction is the most frequently cited top adverse effect.” life is important, even during treatment. And give yourself
It’s important to treat the whole person, not just the tumour, permission to talk about it, without shame or fear.”
emphasizes Robinson, and sexuality is a big part of who we are. So let’s draw back the curtain of quiet surrounding
“The tragedy I see is that couples stop being intimate. As they sexuality and cancer with some straight talk from these
suffer in silence, the relationship bond suffers too. But the experts: a psychologist who counsels couples on how to
good news is sexual pleasure is still possible. It’s been an eye- overcome sexual difficulties and a sexuality store owner
opener for medical professionals how creative couples find who offers practical aids many couples have never consid-
solutions and we need to share those possibilities.” ered. Interestingly, their perspectives overlap into three
Over at the Traveling Tickle Trunk, an online and basic themes we’ll call the three prescriptions for good sex
Edmonton-based store that describes itself as “sex-posi- during cancer – recognize, redefine and relax.
Rx No. 1: Recognize
First, recognize your new reality, and that its cause is usually a known carcinogen, and look for latex-free labelling
a side effect of treatment rather than the disease itself. The if allergies are a problem. Although ordering online
most common problems are lack of desire, difficulty becom- offers anonymity, Kerber finds she can assist most
ing aroused, painful intercourse for women and erectile dys- couples after in-person or email conversations to
function for men. help her match product to particular needs and
These changes may be temporary or permanent, but as preferences.
Robinson puts it, “Where there’s a will, there’s a way.” What’s out there may surprise you: tasteful,
Finding the will becomes difficult, however, when treat- attractive styling designed for ergonomics and
ment leaves patients feeling fatigued, nauseous or in pain. partner-friendly use. “Vibrators aren’t a penis substi-
Surgery may also cause pain and reduced mobility. tute, but a powerful tool for arousal,” Kerber explains.
“The issue becomes how do you have the stamina and “They get the blood flowing, stimulating circulation and
interest to even want to be touched when you’re in pain or so desire. They’re also good for massage and reducing scar tissue.”
sick and tired?” Kerber says. Vaginal dilators and wands, (far prettier than the name suggests), reduce vaginal atrophy
Hormonal changes add further complications. and pain during intercourse. Constriction rings and vacuum pumps help maintain
“Chemotherapy really messes with a woman’s hormonal erections and are far less invasive than drug or surgical solutions. The new generation of
balance, putting them into early menopause, lowering lubricants to ease vaginal dryness don’t irritate like glycol-based products such as the old
libido and reducing natural lubrication,” she explains. K-Y standby, thanks to water- or silicone-based formulae—and they last longer too. Special
Testosterone levels drop for men during androgen- pillows and supports like Love Bumpers make sexual positions more comfortable and
deprivation therapy for prostate cancer, making erections reduce fatigue.
difficult or impossible. Add to this the problem of feeling “Sex is such a life-affirming activity when a person is facing cancer,” says Robinson. “Often
sexy after hair loss or weight loss or gain following treat- couples who try new approaches and communicate more openly tell me they wish they’d
ment, and it’s understandable that sex drives suffer and rifts gone this route before cancer forced them to, since sex is much better for them now.”
develop in relationships.
Because knowledge is power, ask your physician what to Like for Gloria* a middle-aged Edmonton woman diagnosed with breast cancer in
expect and share the information with your partner. 2007. Gloria is back at work and doing well today, after a lumpectomy, four rounds of che-
motherapy and radiation treatment. Since she’d already been through menopause, she
Rx No. 2: Redefine didn’t experience radical hormonal changes from chemo, but it had other unsettling effects.
“My most important message is just because sex isn’t the “It took away my energy and ability to focus, and even affected my hearing.” Gloria lost her
same as it used to be doesn’t mean it can’t be as good as hair, but her husband constantly reassured her that he loved her bald head. Still, she felt a
it used to be,” Kerber notes. “Sometimes it even becomes growing distance.
better, because partners really discuss their needs and take “We’ve never had sex frequently—that was always the story of my marriage—and we
nothing for granted. But you can’t cling to wanting things to tried a couple of times unsuccessfully while I was in treatment. But what really bothered
go back the way it was, or neither partner will be happy.” me was seeing how my husband felt he always had to be the ‘strong one.’ He would never
Robinson encourages couples to reframe expectations by discuss how my cancer was affecting either of us emotionally. That made my cancer jour-
thinking about their sex drive as an appetite. “We’re not ney very lonely for him. It was like a big bruise on his soul.”
always hungry enough to want the full-meal deal, but that Once Gloria felt better, her interest in sexuality returned, but it took a lot of patience
doesn’t mean we can’t enjoy eating. Sometimes you only before she and her husband truly reconnected. “We’re more intimate now, but I regret that
want an appetizer, and nibbling is completely satisfying.” he suffered in silence for two long years.”
This approach reduces the pressure on partners and opens It takes courage and some creativity to stay close, but couples find the effort pays off.
the door to redefining sex as mutual pleasure, rather than the Kerber says one of her most memorable cases was helping a woman get her groove back
traditional act itself. following years of breast cancer treatment. “Her relationship suffered during that time
“We put so much emphasis on penetration as the only way and she didn’t know how to get back on track. We talked about simple things, then the
to have sex,” Kerber agrees. “But there are so many other conversation branched off into more areas. When she left, she said, ‘‘I have hope now.
ways to be physically intimate. You don’t have to shut every- I believe things can change.’ And later I received an email saying things were improving.
thing down if one approach no longer works.” All she needed were ideas on how to start again. The need to be physically intimate
Think of your body as the new and improved string of never goes away. You just need to stay open about figuring things out together and a
Christmas tree lights, Robinson adds. When one bulb doesn’t willingness to try.”
work, the others still do. “Men can still become fully aroused *name changed by request
and have orgasms without an erection, or even a penis. You
can still light up.”
Rx No. 3: Relax
Expand your sexual repertoire by using whatever works for
RX NO. 4: RESOURCES
you as a couple – including sexual aids. “Sexuality stores Counselling and courses
aren’t necessarily whips and chains,” says Robinson. Individual, couple or class counselling is available through the psychosocial
“There’s nothing dirty or taboo about exploring options. departments at Edmonton’s Cross Cancer Institute and the Glenrose Sexual
Experiment to find what works.” Health Service or Calgary’s Tom Baker Cancer Centre and the Prostate
Shun old-style sex shops and look for those with products Cancer Centre. Physicians can advise what’s available in your area.
tested for safety, ease of use and durability. Avoid phthalates,
a
Life
Well Lived
BY CAITLIN CRAWSHAW / PHOTOGRAPHED BY KORI SYCH
and, like many people with the dis- horses,” says Pearson. It seemed like “a great trib-
ease, didn’t feel any pain or discom- ute, as well as a way to fundraise that was a bit differ-
fort from it until the end. ent from the usual things.”
Stunned by Catherine’s death, Pearson and In September 2009, the family organized the first
their children, Leah, Kyla and Stephen, wanted to Catherine Pearson Charity Rodeo at the Wild Wild
do something to keep her legacy alive and, just as West Event Centre, near Calaway Park. Rodeo high-
importantly, help prevent other families from going lights included wild-horse (bareback) races, bull and
through what they had. cow rides (“The only difference between cows and
Pearson began contacting a number of cancer bulls, is that cows don’t chase you,” says Pearson)
organizations, which eventually led him to the and a goat dressing, in which teams of three attempt
Alberta Cancer Foundation. Just months after his to put a t-shirt on a goat (with mixed results).
wife’s passing, he established the Catherine M. The event raised more than $40,000 the first year
Pearson Research Fund. Stephen came up with the and close to the same amount in September 2010.
idea of hosting a charity rodeo to raise funds. In addition to the rodeos, Pearson approaches
“Cathy was a big fan of the Stampede and she liked companies and wealthy individuals in the commu-
24 winter2010 myleapmagazine.ca
nity who have the means to make large donations. He
has also invested some of his own money. “I’ve been
hoping to show this is a significant effort – not a flash-
in-the-pan,” he explains.
Donations from the second rodeo and private dona-
tions are still being calculated by the Alberta Cancer
Foundation. However, as of Oct. 26, the Pearsons had
raised a little more than $145,000 in less than two
years.
But Pearson is far from satisfied. He says many fam-
ily memorials raise a few thousand dollars before fad-
ing away. “I want to raise $1.5 million,” he says. This is
the amount he needs to set up an endowment that
would fund a sarcoma research fellowship at the Tom
Baker Cancer Centre.
The
Family
GenesBY KELLEY STARK / ILLUSTRATION BY COLIN SPENCE
W hen cancer is prevalent in one’s family – Uncle Burt has had testicular cancer,
cousin Georgia found a lump in her breast or Grandpa Ted passed away from stomach
cancer – people often say “cancer runs in my family.” Fortunately, cancer doesn’t work
like that. It doesn’t so much run as it saunters along, looking in all the store windows and stopping
to chat with the passing townspeople.
In most cases, even a high incidence of a certain type of cancer in a family doesn’t mean any one
member is at risk. However for those cancers – breast, ovarian and colorectal – where genetic links were
discovered in the 1990s, a diagnosis for you or someone in your family may result in referral for genetic
counselling and testing, and collecting a complete family medical history.
“People don’t always have 100 per cent accuracy in their knowledge of their family history,” says Dr. Dawna
Gilchrist, professor and clinical geneticist at Edmonton’s Medical Genetics Clinic. If you are concerned about
your risk for hereditary cancer (see sidebar on page 28), “Talk to your family doctor or specialist,” advises Gilchrist.
For those patients that meet the criteria, a referral to the Medical Genetics Clinic is the first step in cancer risk
assessment, genetic counselling and possible genetic testing.
If you meet the clinic’s stringent criteria, then you will be contacted by the clinic to confirm interest in pursuing coun-
selling and testing.
Next, the family history must be documented, and then a pedigree is constructed so the clinic can decide whose records
they require. “We need records on your mom, your sister and your cousin Georgia (who had the lump in her breast),” says
Gilchrist. “We’ll send you release of information forms and then you ask your mom, your sister, and your cousin, ‘Are you willing
to sign these medical release forms so that Medical Genetics can review your history?’”
The records are then reviewed and checked against what you have said and if everything still meets the criteria, an appointment is made.
According to clinic protocol, the first appointment involves “assessment of hereditary cancer risk, discussion of potential molecular
For most of us, the holiday season is a joyful time, a milestone celebration of any kind, be it a birthday,
merry whirlwind of home baking and house decorat- anniversary, Thanksgiving or Mother’s Day. But, he
ing, letter writing and gift wrapping, last-minute clarifies, if the loss falls around an important date,
shopping and getting together with friends, col- the grieving person may still be in shock, and the loss
leagues and family. But for someone who has experi- may be more keenly felt the following year.
enced the loss or death of a loved one, it may be the The best way a family can help someone in mourn-
most dreaded time of the year. ing during the holiday season is to acknowledge their
“Society encourages loss. “I call it the elephant in the room,” says Worden.
“Grieving is both a necessity and us to join in the holiday “When everyone is gathered around the dinner table
festivities, but all and there is one less place setting, don’t pretend that
a privilege and it comes as a around us are sights and nothing has happened. Acknowledge the elephant.”
result of having given love and sounds that reawaken He encourages families to remember the loved one
received love.” memories. And what by lighting candles, putting flowers on the table or
triggers memories will including their name in a toast or a blessing.
trigger emotions and feelings,” says Mark Sloan, a Worden says communicating and planning are key
social worker with the Medicine Hat Cancer Centre to helping families cope with their grief. “Share ideas
and member of the palliative care team at the on how to approach the holiday season. Keep your
Medicine Hat Hospital. traditions but do it a little differently. Do a potluck
For more than 20 years, he has helped people dinner or go to a restaurant.” Talk to the grieving
through the grieving process. person and ask what you can do, he suggests. Can you
Grief, he explains, follows a loss of any kind: write cards together? Go to the cemetery with them?
“Anything that takes the loved one out of the normal “Be present in their emotions. Ask what their
routine of life can result in grief – whether through thoughts are. Let them know you still care about
an expected or unexpected death, an illness such as a their loss.”
stroke, or a disease such as Alzheimer’s.” Talking about death is not something our society
Dr. Richard Worden has a doctorate in grieving. He does very well, admits Sloan. “We don’t know what to
retired in 2006 after 25 years as a social worker with say or how to comfort someone in pain.” He says it’s
family services in Medicine Hat and now provides not uncommon to hear family members tell a griev-
social work services at the Health Matters Medical ing person that it’s time to get on with things. “We
Clinic, part of the Palliser Primary Care Network. want them to show us they are okay – but that often
He says a grieving person often dreads the first serves to repress their emotions of grief.”
Before Sinclair started at the Tom Baker Cancer Centre “So much of the work I do is Sinclair does not look to any
in Calgary as its spiritual care coordinator, the centre did based on connection,” he says.
not have a full-time chaplain. Since coming on board three “Whether you call that a spiritual
particular religious doctrine
years ago, he has expanded the program, gained acceptance connection or a personal connec- when working with any given
and support from most of the staff and hired on a second tion, I would want to know the per- patient. He lets the patients lead
staff member to work alongside him. Sinclair’s job descrip- son who is going to care for me in a the way and gently helps them
tion is simple: he makes himself available to talk to patients spiritual way.” reflect on what gives their own
who may need some spiritual guidance. He prefers not to Dr. Neil Hagen, the pain and
take referrals, but instead visits different departments palliative care tumour group lives meaning and hope.
within the clinic to do what he calls “intentional loitering.” leader at the Tom Baker Cancer Centre and head of the academic division of Palliative
“I don’t sit here waiting for phone calls,” he says. “I go Medicine at the Department of Oncology at the University of Calgary, agrees.
down into the treatment areas and I visit people and say “The doctors, nurses, pharmacists and other clinicians at the Tom Baker Cancer
hello. Sometimes they respond with just a ‘hello’ and Centre deeply care about the well-being of the patients who come here to get treated,”
sometimes it’s a ‘hello, I need to talk about something, he says. “When the amount of suffering is huge and when it’s complex is when a person
because it’s my first day in treatment and how on Earth like Shane, with such depth and breadth of experience in dignity and in meaning, can
am I going to make it through this?’” help patients tap into their own resources.”
Sinclair says that part of the reason he prefers to approach “One talks of pain and suffering, but they’re not the same,” Hagen adds. “They’re
patients casually is that many of them don’t know what a related, but they’re not the same. What I deal with is pain. What Shane deals with
spiritual care coordinator is or they expect he will give them is suffering.”
unsolicited religious advice. Sinclair does not look to any Sinclair has plans to expand what he does at the Tom Baker Cancer Centre
particular religious doctrine when working with any given and has received support to develop music and arts programs that will give his patients
patient. He lets the patients lead the way and gently helps another way to explore their spirituality. He has also recently organized a celebration-
them reflect on what gives their own lives meaning and of-life service to honour patients who have passed away. It’s part of an all-encompassing
hope. For some people, that might mean their church or approach that recognizes that cancer doesn’t just affect a patient’s physical self.
temple. For others it’s their family or love of nature. “There’s something mysterious to our experience of cancer,” Sinclair says. “To hon-
“A lot of my work is looking at areas of hope in a person’s our that and be present with that with people in their joys and questions and uncertain-
story and how that can be a resource to facilitate what ties and curiosities is extremely healing, whether they talk through it and figure it all
they’re going through in terms of their chemotherapy out or whether they simply had a person who sat beside them in silence as they weep.
or radiation,” he says, “because people generally dig down There’s comfort in that.”
pretty deep when they go through something like this.
So having somebody who is non-judgmental, a positive
presence and really interested in cultivating that person’s
own spirituality is what this department is all about.”
AWARD-WINNING CARE
Becoming a certified spiritual care coordinator In August 2010, Dr. Shane Sinclair was awarded the Dr. Solomon Levin
or chaplain requires a master’s degree (though Sinclair has Memorial Award. The award was established by the Alberta Cancer Foundation
a PhD) and at least one year of residency in a hospital set- in 2007 in collaboration with the Department of Symptom Control and
ting. While he is still working on an academic level, specifi- Palliative Care at the Cross Cancer Institute and the Alberta Cancer
cally studying how a health care worker’s personal spiritu- Foundation. The funds awarded are meant to finance recipients’ continuing
ality can benefit the quality of the care they provide and education and professional growth, as related to the realm of palliative care.
issues concerning a patient’s sense of dignity, his greatest Sinclair was given the award so he could continue his research regarding
qualification is his innate ability to communicate and make matters of dignity when it comes to end-of-life care and how that relates to a
a patient feel comfortable in confiding in him. patient’s spirituality. “Dignity is one of those fuzzy words that doesn’t exclu-
Cathy Lockerby understands that connection. The nurse sively fall into the realm of spirituality,” Sinclair says. “But at the end of the day,
and former breast cancer patient was in the chemotherapy I think it is one of those words like ‘compassion’ that we all know is so important
unit for treatment when Sinclair stopped by to chat with but have a hard time putting our finger on. It becomes particularly important to
her. “I found him very warm, interested and easy to engage anyone who’s going through a health crisis, but especially for those who are at
with,” says Lockerby, who immediately liked him. the end of life.”
From there, she and her adult children attended counselling Sinclair is working with researchers in other parts of the country and the
sessions with him to overcome challenges associated with endowment allows him to further those collaborations. While the work is
family communication and support strained by cancer. “I felt academic, he says that his findings will be translated practically back into his
honoured and respected by him,” she says. “He’s very skilled at work with patients at the Tom Baker Cancer Centre.
what he does.”
Higher
LOVE BY KRISTIANA INDRADAT
PHOTOS: DR Photography
biliary tree and making him jaundiced.
When Jim had first been diagnosed in “I knew what the outcome was going
October 2006 with stage IV colorectal to be, but to run away from true
cancer, the tumours found in his liver love is one of the most detrimental
were larger and more manageable. Now
the only thing to do was to continue
things someone can do in their life.”
living until his body could not endure
the cancer any longer. “True love is rare enough to not go through with the risk.
For Jim, that moment happened in the comfort of his I knew what the outcome was probably going to be, but to
family’s home back in Windsor, Ontario, just days after run away from true love I think is one of the most detrimen-
the wedding. tal things someone can do in their life,” she says.
That morning, Henderson brought him breakfast. She The minute Jim had walked into her workplace where
reached out to help him sit up and then, as he embraced she was making travel arrangements for his family to visit
her, it happened. “I swore that I could see the light just go Australia, Henderson knew he was the man she had
out of him,” she says. “He went very quickly.” To her, it dreamed about for years. The intensity of that first meet-
seemed that he waited until he’d had the chance to talk ing was no different for him. For several moments, they
with his family once more over those four days before simply stared at one another, she recalls, thinking of the
allowing himself his own peace. odd but comforting recognition each one had for the
Henderson knew from the beginning of their relation- other despite never having met.
ship that Jim’s prognosis was poor, but it hadn’t scared From then, the two were inseparable, and Jim, who
her away. once wondered if he’d ever have an opportunity to have a
les
Fred Co
through the bequest he left to
the fellowship program at the
Tom Baker Cancer Centre.
family, had immediately become a loving stepdad to alone with bittersweet memories of their joyous but
Henderson’s then 11-year-old daughter. shortened relationship.
Even when Jim’s chemotherapy sessions kept him “It made me realize that life is not about where. It’s
tired, weak and groggy, the couple made plans for in not about the places you go, how much you manage to
between sessions. Jim’s doctor encouraged the couple to see. It’s about sharing it, and sharing with somebody
live to the fullest, allowing them to rearrange treatment who really matters to you or even with people you meet
schedules in order to accommodate trips they really along the way,” Henderson says.
wanted to take. Despite the outcome, Henderson feels Jim’s life is
“The whole point was to give him as much life as possi- truly inspirational. Their original wedding date became
ble,” says Henderson. a memorial in celebration of his life and accomplish-
Following Jim’s death, Henderson set forth to spread ments.
his ashes over some of their favourite destinations from Jim was valedictorian of his high school graduating
coast to coast that were special to him. In the end, she class and recipient of the Governor General’s Award for
went to 33 different spots over five months, marking each Academic Achievement as well as a full scholarship to
year of his life. the University of Windsor. He had several hobbies and
Her travels also became a personal journey of reflec- skills, contributed to his favourite environmental causes
tion and mourning. After all, her first stop at the Bruce such as the Bruce Peninsula National Park trails and he
Peninsula – a personal favourite of Jim’s that he hadn’t was passionately involved himself in the creation of
the chance to show her – was only a week and a half after accessible programs and resources for young adults with
he had peacefully died in her arms. Where the happy cancer in Canada. One such contribution was the
newlyweds should have been sharing the awe and beauty creation of an online Flash game called Mullet Mayhem
of these locations together, Henderson often stood there for the “Shave for the Brave” cancer fundraiser.
The couple had originally planned to donate half the Waterton Lakes National Park
money they received from their wedding to the Alberta “The geological history behind it makes it beautiful and interesting because
Cancer Foundation. The other half was to be spent on it was part of a tectonic thrust that pushed mountains out over the prairies,
their honeymoon, but given Jim’s fate, Henderson felt so there are no foothills.” Highway 2 South is the fastest route to Waterton,
donating the estimated $8,000 was more worthwhile. but Henderson recommends a diversion to Route 22 South. “It is absolutely
As for Henderson, she’s found inspiration to do the breathtaking, cuts through many beautiful and historic towns and ranches.”
best she can to help others experience true happiness like
she has. She’s taken her job as a travel agent to a different Writing-on-Stone Provincial Park and Cypress Hills Provincial Park
level, specializing in planning destination holidays for Both personal favourites of her late husband, Jim, for hiking, camping, wild-
people with life-threatening illnesses. life and wildflower photography and aboriginal and frontier history. “Worthy
“It’s all about what I can contribute to others now. My visits enroute to these places would be the very cool Head-Smashed-In
daughter, for example, now knows what true love looks Buffalo Jump and the High Level Bridge in Lethbridge, or Lethbridge
like. That is one of the greatest gifts I could ever give her Viaduct, the longest train trestle of its kind in the world and still in use.”
because she is going to want that for herself.”
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W
hen a typical person is 22 years old, he’s fin- He credits his interest in genetic research to his family.
ishing off an undergraduate degree, starting a “My dad loves problem solving,” he says. Cancer has
career or figuring out how to get a foot in the affected his family directly, as both his grandfather and
door. For Braden Teitge, however, his early 20s have been mother had it, and his grandmother died from the disease
spent on researching a cure for cancer. before he could meet her.
As a graduate student at the University of Alberta’s In 2009, Teitge was a student researcher for Dr. Diane
Molecular Genetics program, he had a perfect GPA along Cox at the Department of Medical Genetics in the U of A
with multiple awards from the school and worked as a Faculty of Medicine and Dentistry. With Cox, he
summer research student in his second year. He calls it performed an analysis of genetic variants in the Wilson
accidental. “I was just going on whatever interested me,” Disease gene, where he tested for copper-induced
he says. “It was sort of a coincidence.” cytotoxicity. “He found some really interesting results,”
This coincidence led to research work in two other labs says Cox. “He’s an outstanding student.”
at the U of A and at McGill University in Montreal. At And he’s an outstanding winner of numerous awards.
McGill, he researched the genetic resistance to viral infec- Teitge has received eight awards in 2010 alone, including
tions. Currently, he’s attending the University of Calgary the Alberta Cancer Foundation’s Cyril M. Kay Graduate
to earn his graduate degree in neuroscience. Studentship as the top-ranked applicant in 2010. For
While at the U of A in late 2008, Teitge got the idea for this award, Teitge receives a stipend of $41,500 over two
Eureka: a student- years to live off of during
run journal that “I’ve got a lot of life left to seek a cancer cure. his graduate degree. Teitge
focuses on under- I just want to be a good researcher.” also received the 2010
graduate research Dean’s Silver Medal in
at the university. After pitching the idea to faculty mem- Science and the International Scholarship Foundation
bers, he began recruiting friends and editors to contribute Post-Graduate Award for the same year.
in 2009. The first edition came out in March 2010. “He sticks to the job, he’s accurate, he’s thorough, he’s
“I thought there was a lot of really good work being critical,” says Cox about her time with Teitge in the lab. “I
done by undergraduate students that wasn’t being recog- select the top, most outstanding students. I have been
nized,” he says. “The faculty didn’t have enough of a cohe- pretty good at picking good students.” She adds that
sive feeling to it. I wanted to improve upon that.” Teitge Teitge has the opportunity to author an article, which is
says he started the project to help students make the tran- rare for a student so young. In November, he presented a
sition “from the classroom to the bench.” poster on genetic resistance to chemotherapy at the
is a specific dollar amount on his donation, it is an • Including a charitable donation to the Alberta Cancer Foundation in your
will is easy to do, says Kirby. “It’s just a simple matter to put a statement in
amount that he hopes to change and increase in the
your will that says ‘I will leave X dollars to Y charity.’” You can designate a
coming years. “In the future, if things go good for me
specific gift amount or contribute all or a portion of your estate to charity.
and continue, then I’ll be able to increase it,” he says.
He advises people to let family members know • First though, Kirby advises people to ensure all of their other personal
of such donations “so that there are no surprises” – obligations are adequately looked after before leaving anything to charity.
something he did by reading his will to his family at a He also recommends letting family members know about such donations
Sunday dinner. “I said, ‘I’m telling you this because it’s to avoid surprises after the fact.
not really coming from me…. It’s really you guys that • Significant tax advantages exist when leaving charitable donations in your
are going to be the ones making this donation because will, says Kirby. A gift to a registered Canadian charity through your will
it reduces the amount of your inheritance.’” Kirby’s can provide a tax credit, as such donations can be claimed under the
idea received great reception from his family, who deceased’s personal tax return for the year of death.
understood and supported his decision completely.
hnsto n
Mary Jo
Today, Dr. Alan Underhill keeps
Mary’s resolve by investigating
the inner workings of melanoma,
knowledge critical to driving
development of more effective
therapies.
To learn more about leaving a legacy to a
cancer-free future, please contact: Derek Michael,
Mary I. Johnston knew melanoma 780 643 4662, 1 866 412 4222 or email
derek.michael @ albertacancerfoundation.ca
would take her life. But that
didn’t stop her fighting the
disease. She set a plan in action.
DEEP ROOTS
IN THE COMMUNITY
BY STEPHANIE SPARKS
BY KELLEY STARK
M
eeting new people, getting in shape and boosting your
body’s production of happy endorphins are no longer the only
benefits to hanging out at the gym. Researchers have found that
exercise can help reduce breast cancer risk. Studies, like the
ALPHA trial, have shown evidence of this in postmenopausal women, but
the new question to be answered is just how much exercise is necessary?
To test the accurate amount of exercise, principal investigators Dr.
Christine Friedenreich of Alberta Health Services-Cancer Care and Dr.
Kerry Courneya, professor and Canada research chair at the University of
Alberta, have come up with a new trial. The Breast Cancer and Exercise Trial
in Alberta (BETA) will ultimately determine what amount of exercise can
reduce breast cancer risk as measured by changes in biomarkers linked to
this cancer.
Participants in the trial will be randomly assigned to either a high-volume
exercise group (one hour, five days a week) or a moderate group (30 minutes,
five days a week). They will be followed for an entire year and are expected
to complete a series of assessments throughout. They will provide blood
samples at the beginning, midpoint and end of the study, complete fitness
tests every three months and have CT and DXA scans to measure their body
fat levels. They will also be asked to complete several questionnaires to
provide the researchers with as much information as possible. The partici-
pants will wear accelerometers three times during the study for a one-week
period to measure the amount of activity they do throughout the day.
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