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I thought it would be helpful to have a thread about the doctors who really know LPR and who have been the most useful to us.
Just list the name and city and state of any doctors that you would like to recommend to others in this community. Feel free to tell us why.
Philadelphia, Pennsylvania:
Dr. Sataloff - Have not been to him specifically, but have seen his partner who is just as good. I believe the practice was started by Sataloff, and
just yesterday had another doctor tell me that Satalof is known for being an ENT, but thinking like a gastroenterologist (or thinks he is a
gastroenterologist). Whatever he said, that's the kind of doctor an LPR patient needs. Huge reputation. 90% of practice is laryngeal patients.
Dr. Karen Lyons (Dr. Sataloff's partner). Used to practice surgery, but now does office visits only. Wonderful, compassionate, thorough, and
gives you lots of time. Terrific doctor in every way. Knows LPR inside and out.
Dr. David Katzka (UPENN Gastroenterologist): Considered to be very conservative (does not push surgery) and is very easy to talk to. Is a
gastro, but I believe he's in charge of the UPENN Swallowing Center. Only problem is getting in to see him - if you have an immediate problem,
he's not available. The wait is typically 2-5 months for an appointment unless you keep calling daily to inquire about cancellations.
New York City:
Dr. Anthony Jahn - ENT, I thought he is pretty good - well known for working with singers and he advocates alternative therapties like
accupuncture along with PPIs for LPR. I only saw him once, but if you have United Health Care, like me, and can't get in to see any of the other
top LPR docs, he may be one of your best choices.
New Haven, CT:
Eugenia Vining - Wonderful lady who I belive was also president of the Connecticut ENT Association. She was the first to diagnose my LPR and
recommended the right medicatiion right off the bat. There's a long wait for appointments with her.
In addition, I have the following names have come up repeatedly in my search for an LPR doctor:
1. Dr. Michael Goldrich, Edison/Highland Park, NJ. Recommended by Westminster Choir College in Princeton for students with voice problems.
The only doctor I've found in central Jersey who regularaly sees LPR patients, but doesn't accept my insurance.
2. Dr. Peak Woo, NYC, Also recommended by Westminster Choir College. Listed in Top Doctors. Ran the laryngeal neuropathy study I
discussed in another thread.
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Have either one of these meds worked effectively for anyone? I understand you must take them 2 weeks consecutively for any
signs of improvement, however, how safe is it to get on or off them, and might they cause other problems in the long-run?
I will seek some help for relief of this problem, I'm suffering for four years!
I tried zantac a few times, but as of lately, I feel uneasiness in my stomach - does it cause that?
Also, is peanut butter bad? I take a few spoonfuls with hazelnut spred and just wondering if its not good? I dont feel anydiscomfort afterwards.
However, I tried eating a chicken patty just now, and it wouldn't go down. For the past 2 years or so, I have been putting on the patty some
vinegar along with some ketchup and some blue cheese spred, and cook it like that, only because it comes out softer to chew - I hope i am not
ruining my esopgagus eating this way - i just cant eat anything tough...
So, am I looking for an ent? I am absolutely clueless, only because i never need to go to docs...please help me find the source....I cant take not
eating like a human anymore
I've just been diagnosed with extreme GERD. I've been offered laparoscopic anti-reflux surgery to try and eliminate it, but is
there anything else out there to try and help me?
I constantly have heartburn/indigestion, feel sick most of the time, have an unquenchable thirst and I tend to regurgatate a lot of food. This is
getting rather embarrassing for me and to my family. Is there anyone out there who has suffered the same?
Thank you
MR,
I still seem to be in some type of flare. PND is BAD, draining down back of my throat (which is better than being stuck, I guess) cough and hack,
been doing nasal irrigations more than twice a day, no meds help and still have this "whatever" in my nose. My voice is there but not good. Feel
very tired and SOB quickly. Of course, I haven't been watching my diet whatsoever if it even matters. Still holding off on antibiotics but may
have to fill to get over this and not sure it's sinus infection. Making it every day somehow though! Found a very interesting article on net called
"The Surprising Source of Many Physical Disorders." Really hit home with me!
Isn't it the pittts that you pay to see a Dr. and sometimes now rarely do. I fired my GP Dr. LOL. He made me mad and wasn't helping anyway.
I've even told my husband that I'm not going thru any more tests right now. It' so far to that surgeon and I don't feel he will do any kind of surgery
with all test negative for reflux. I think with the kind I have that they will not show much reflux as I've been told it's not the amt but where it goes.
So what's the point? I'm so sorry you are still having to make the rounds to try and find out what's going on with you. Hopefully, you will get
some good news soon! Maybe it will take a little bit longer for your body to adjust to the new changes. That article I read say's that our bodies
know when to re-act to something not right and it's ironic that refluxing acid causes us to produce more mucus to protect us all the while we're
about to choke to death! It does say that it trys to heal itself but apparently mine's not listening.
I also feel as though there are certain times of the year that I'm worse and I'm not sure if it's because I'm doing more physical things (such as
raking leaves-bending) or allergy related. I do feel more asthma symptoms in the winter. Sure the cold air although I hate the heat being on in
the house. Dries me out so, which reminds me to get the humidifer out!
Keep in touch and let me know what you find out and I'll do the same.
Char
Hi all, I have posted here before. I have been on Omeprazole for awhile, but then I went off since the doc said only 3 months.
About 3 days ago I had this burning so badly in my throat, it was pretty severe off and on, sometimes it would just sit there on my throat, other
times come and go. All night long. In the morning I finally took a Pepcid AC which seem to keep the burning away, and it returned later, then
took another Pepcid. The doc put me on 40 mg fomatadine (pepcid) twice a day, and it seems to be ok. Is this ACID REFLUX?? If so, I have
never had burning that bad. I do have allergies, and really dry throat. That day I had lots of spicy sauces, and tortilla chips. I just wondered if
any of you get this burning in the throat. I didn't have any stomach pain, or any in the center of my chest, or heart burn. Dr. says its dyspepsia
now. Any response is appreciated! Thanks
PS THe burning really scares me. I feel like it is something serious when it burns so badly.
I don't know what to think. For two years now I have had excess phlegm in the back of my throat which I try to cough up and I
only get it when I'm sleeping. It's like I'm drowning in mucous. I've been to two ENT's and they both said they don't think it's acid reflux or LPR
because my esophagus doesn't seem irritated enough and because I told them it gets better in the morning. They feel LPR gets worse towards
the morning, not better.
They both told me that I seemed very dry and they thought I need to drink more water to thin out the mucous. I have to admit I'm not that great
with drinking a lot of fluids still, but I am drinking more than i used to and there is no improvement. They told me to take Nyquil and i do every
couple of days since it's the only way i can sleep. I lose so much sleep from this. The funny thing is that the Nyquil seems to work for two or
three days, which neither doctor has heard of. they also told me to get a humidifier which i'm going to do, but I have to say I'im doubtful.
has anyone been through this and do you think being dry could really cause this?
I have LPR. I take Prevacid every morning. When I get into any stressfull situation I can barely swallow. Talking on the phone is
extremely difficult. I am constantly trying to clear my throat and trying to swallow. I've tried restricting my diet as per Doctors orders. This is
really getting frustrating.
Any thoughts or ideas?
wht all foods can be avoided or included to get relief from acidity?
Is plain yogurt to be avoided?
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