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Copyright © 1998 Elsevier Science Ltd. All rights reserved.

8.03
Health Care
JOHN WEINMAN
United Medical and Dental Schools of Guy's and St. Thomas's
Hospitals, London, UK

8.03.1 INTRODUCTION 79
8.03.2 THEORETICAL BACKGROUND 80
8.03.3 PERCEIVING SYMPTOMS AND ENTRY INTO THE HEALTH-CARE SYSTEM 81
8.03.3.1 The Nature and Experience of Symptoms 81
8.03.3.2 Factors Influencing Symptom Perception 82
8.03.3.2.1 Attentional focus 82
8.03.3.2.2 Knowledge and expectations 83
8.03.3.2.3 Disposition and emotions 83
8.03.3.2.4 Contextual factors 83
8.03.3.3 Summary: Symptom Perception 84
8.03.3.4 Symptom Perception and Help Seeking 84
8.03.4 HEALTH-CARE PROFESSIONAL±PATIENT COMMUNICATION 86
8.03.4.1 Input Factors in Communication 86
8.03.4.1.1 Patient input factors 87
8.03.4.1.2 Health-care professional input factors 89
8.03.4.2 The Consultation Process 91
8.03.4.3 Outcomes of Health-care Communication 92
8.03.4.3.1 Cognitive outcomes 92
8.03.4.3.2 Affective outcome: patient satisfaction 92
8.03.4.3.3 Behavioral outcome: adherence 94
8.03.4.3.4 Consultation outcomes: an overview 98
8.03.4.4 Improving Health-care Communication 98
8.03.5 HEALTH CARE IN HOSPITALS 100
8.03.5.1 Psychological Effects of Hospitalization 100
8.03.5.1.1 Physical and social environment 100
8.03.5.1.2 Communication in hospital 101
8.03.5.2 Children in Hospital 102
8.03.5.3 Psychological Aspects of Specific Hospital Treatments 102
8.03.5.4 Stressful Medical Procedures in Hospital 104
8.03.5.5 Psychological Interventions for Stressful Medical Procedures 104
8.03.6 CONCLUSION 106
8.03.7 REFERENCES 107

8.03.1 INTRODUCTION sense of and respond to symptoms, leading up


to the decision to seek health care. Following
This chapter is concerned with a range of this, a large part of the chapter is concerned
psychological processes involved in the entry with the process and outcome from medical
into, experience of, and outcome from health consultations. Finally, it considers some very
care. It begins by considering how people make specific health-care settings such as hospital

79
80 Health Care

environments and surgical treatments where sense of self and to solve the problem of what is
psychological factors can play an important happening to their health.
role in adaptation and recovery. The individual's initial representations of a
Thus, the chapter covers the three following health problem (e.g., ªthis stomach pain is a
broad areas, which form its major subsections: temporary problem brought on by something
(i) perceiving symptoms and entry into health specific such as over-eatingº) give rise to specific
care, (ii) health-care professionalÐpatient com- coping procedures (e.g., not eating, taking
munication, and (iii) health care in hospital. antiacids) which are appraised for their effec-
It is important to note at the outset that this tiveness (see Figure 1). If the appraisal process
chapter does not deal with the nature of health- results in the view that the mode of coping is not
care systems and the ways in which these are working, then another coping procedure may be
organized and accessed. Health-care systems selected or the individual may change their view
vary greatly from country to country and there about the nature of the problem (e.g., ªthis
can be considerable differences in the ease of stomach pain has lasted for the whole day and
access to health care, the relative roles of the has not responded to indigestion medicationÐit
primary and secondary care sectors, and the must be something more seriousº) and their
ways in which health care is funded and response to it.
delivered. All these are extremely important The core of the self-regulatory approach is the
contextual factors which can directly influence individual's own understanding or representa-
the experience of health care for the individual tion of their situation. Work by Leventhal and
but a consideration of their influence is beyond colleagues (Leventhal et al., 1997; Leventhal,
the scope of this chapter. The focus here will be Nerenz, & Steele, 1984) has shown that this
on those psychological processes involved in the representation is built around five distinct but
entry into and use of health services, and which interrelated themes, namely identity, cause,
may be seen across different health-care systems. time-line, consequences, and cure/control. On
experiencing a new symptom, the individual
8.03.2 THEORETICAL BACKGROUND typically will provide a label or description and
possibly search for or link this with other
Although this chapter focuses on a range of symptoms which they are experiencing. These
psychological processes and issues, there is a aspects constitute their perceived identity of the
general model which unifies many of the various problem, and typically this is linked with a
themes, particularly from the patient's perspec- causal explanation, as well as some expectations
tive. This is the self-regulatory approach (e.g., about how the problem will last (time-line), its
Carver & Scheier, 1990; Leventhal et al., 1997). likely effects (consequences) and the extent to
The core concept here is that the individual which it is amenable to cure or control. These
attempts to make sense of threats to health using representations will influence how the indivi-
preexisting knowledge or schema which give rise dual responds to the problem in the short-term
to behavioral responses (e.g., taking nonpre- and the longer-term, if it persists. They will also
scribed medicines, deciding to seek medical help, provide the conceptual framework for provid-
following medical advice, etc.). Thus, many of ing and making sense of information within
the individual's behaviors within the health-care consultations with health-care professionals, as
setting can be understood from the perspective well as for evaluating the appropriateness and
of their own thoughts and ideas. These are not efficacy of recommended treatment or advice.
static but may well change and develop with the In some of the following sections (e.g.,
experience of new symptoms or information. symptom perception), this self-regulatory,
Self-regulation is therefore a dynamic process in schema-based approach will be very obvious
which the individual attempts to preserve the but in others it will be less clear or less pertinent.

Cognitive representation
Coping Appraisal
of illness/health threat
Internal and
environmental
stimuli
Representation of
Coping Appraisal
emotion (fear/distress)

Figure 1 Leventhal's self-regulatory model (adapted from Leventhal, Diefenbach, & Leventhal, 1992).
Perceiving Symptoms and Entry into the Health-care System 81

Nevertheless, it is a central tenet in this chapter, three symptoms per week and very often
just as it is in many other areas of psychological symptom diaries reveal the presence of daily
research. Just as individuals actively interpret symptoms. Most of these are transient and,
and make sense of their physical (Eysenck & while they may make the individual wonder
Keane, 1995) and their social environment about their nature and cause, they may not give
(Fiske & Taylor, 1991), it will be shown that rise to any further behavior such as taking
the psychological processes involved in experi- medication or seeking medical help. One study,
encing symptoms and utilizing health care can of people keeping health diaries, found that
be understood in a similar way (Weinman & while symptoms were recorded on 38% of the
Petrie, 1997). days in the study period, medical care was
sought for only 5% of those symptoms
(Verbrugge, 1985). This ªclinical icebergº has
8.03.3 PERCEIVING SYMPTOMS AND been reported elsewhere (e.g., Last, 1963) and it
ENTRY INTO THE HEALTH-CARE is clear that neither the experience nor the
SYSTEM severity of a symptom provides an adequate
There are many reasons why people gain explanation of why people seek medical help.
access to health care. Increasingly people are There are many people who seek help for
encouraged to attend on a regular basis for symptoms which doctors consider to be ªmin-
check-ups or for screening or preventive orº or ªtrivialº and there are also people who
purposes, but by far the most common reason delay or do not seek help for symptoms which
for seeking medical help is the experience of a may reflect serious or life-threatening condi-
symptom. At first sight, the relation between tions, and some examples of this will be
symptoms and entry into health care might discussed in Section 8.03.3.4. In order to
appear straightforward. A simplistic model of understand the relation between symptoms
the relation between symptom experience and and help-seeking behavior, it is necessary first
health-care utilisation would probably involve to examine how symptoms are perceived and
the idea of a threshold of symptom severity, and then to examine their role, alongside other
that individuals would only seek care when this factors, in initiating access to health care.
notional threshold is exceeded. As we shall see, The studies of Pennebaker (1982) and others
this simple model is untenable and it is necessary show clearly that symptom perception shares
to understand first how symptoms are perceived many characteristics of other perceptual pro-
and then to examine how they influence cesses, such as those which are involved in the
behavior, including help-seeking behavior. recognition of objects and sounds in the external
world. Thus, there is considerable evidence that
8.03.3.1 The Nature and Experience of bodily changes are not perceived accurately and
Symptoms that there can be large variations in what is
attended to and how it is perceived and
There are continuous changes in bodily interpreted. Just as attentional processes and
functions but individuals have limited aware- ªtop-downº influences in the form of knowl-
ness of these. In a series of studies, Pennebaker edge and prior experience can determine how
(1982) examined the awareness of a number of objects are perceived (Eysenck & Keane, 1995),
changing bodily processes (e.g., heart rate, the same factors play a critical role in influen-
finger temperature) and showed that this cing our awareness of and interpretation of
process is neither direct nor accurate The bodily changes.
awareness and interpretation of bodily pro- Physical symptoms are often ambiguous and
cesses has been found to involve a range of their interpretation involves a number of
factors, as will be outlined below, and an cognitive-perceptual processes which are subject
understanding of these is a basic first step in to both psychological and social influences
explaining why people seek help for health (Cioffi, 1991; Pennebaker, 1982). The experience
problems. A fundamental issue here concerns of a bodily symptom initiates an active memory
the point at which the individual decides that a search in order to generate comparisons between
particular change in bodily functioning might current stimulus and the concrete and abstract
constitute a symptom and may therefore be knowledge contained in the person's illness
indicative of a medical condition. Symptoms are schemas. These cognitive structures are the
experienced quite frequently. This has been dominant source of information for the apprai-
found by asking people to recall symptoms sal of health threats (Leventhal et al., 1997).
experienced in the preceding days or weeks or by According to Bishop (1991), the information
getting them to record their symptoms, by contained in illness schemas forms a stable
keeping a health or symptom diary. Typically knowledge base or prototype which acts as a
people recall experiencing between two and standard for the comparison and interpretation
82 Health Care

of bodily symptoms. Current symptoms are many of these factors interact, they can be
compared with prototypical patterns of illness loosely categorized into those which affect or are
retrieved from long-term memory. If there is a a part of the self-system and those which stem
close enough resemblance between the illness from external, social, and cultural influences.
prototype and the current symptoms, then a
congruent interpretation will be made. How-
8.03.3.2.1 Attentional focus
ever, H. Leventhal and Diefenbach (1991)
propose that comparisons are made not with Symptom perception is subject to the same
illness prototypes but with specific illness limits and biases as other types of sensory
episodes. They suggest that matching to proto- processing, where there are well-demonstrated
types is likely to result in an ambiguous outcome limits in attentional capacity which can be
and that the resulting uncertainty will initiate influenced by internal states, perceiver's inten-
additional, more specific searches. Croyle and tions, and environmental stimuli and contexts
Barger (1993) comment that both types of (e.g., Kinchla, 1992). Similarly, a number of
matching may occur. Frequently experienced studies have shown that symptom perception
illnesses such as flu may promote the formation depends on what the individual is attending to
of prototypes, whereas unusual symptom clus- as well as what is happening in the perceiver's
ters may give rise to matching with specific illness environment. For example, Pennebaker (1982)
episodes. Cioffi (1991) has described a model of reports a study in which the symptom reports of
symptom interpretation which is compatible fatigue were compared in two groups of joggers,
with the self-regulation model. Her model one running around a track and the other on a
proposes that symptom interpretation is a cross-country run. The cross-country group
function of interactions between ªbottom-up,º report less fatigue, presumably because of the
stimulus-driven processes, situational cues, and more varied and interesting surroundings.
ªtop-downº processes which reflect the influ- Similarly it has been reported that, while
ence of higher level cognitive structures (e.g., watching films, people are more likely to notice
knowledge, expectations) on other cognitive itchy/tickly throat sensations and then cough
functions such as attention and memory. during boring parts of the film.
According to Cioffi (1991), ambiguous physio- Attention to symptoms is to some extent
logical changes compete with other events for a under strategic control and a number of studies
share of our fixed attentional capacity. If the have examined the effects of attention to or
stimuli are strong enough, or if there is little distraction from physical sensations (Cioffi,
competition from other sources, the sensations 1991). Experimental studies examining the
are noticed and given a somatic label. An effects of various unpleasant stimuli (e.g., loud
attribution is then made regarding the cause of noise, pain induced by immersing one's hand
the change and its consequences. Causal attribu- into iced water) on tolerance and arousal, have
tions reflect the relative influence of the shown that active distraction can have short-
procedures involved in the interpretative process term advantages over more direct attention to
and may be symptomological (e.g., muscle pain the stimuli (Mullen & Suls, 1982). However,
as a symptom of illness), or nonsymptomologi- focused attention results in more favorable
cal (e.g., muscle pain due to exercise). Sympto- outcomes than distraction when the noxious
mological attributions can reflect preexisting stimulus is chronic and when the attentional
hypotheses such as particular health concerns strategy involves focusing on concrete aspects of
which may bias both attention to bodily stimuli the sensation (Suls & Fletcher, 1985). This raises
and choice of attribution. Alternatively, in the the question as to whether focusing on aversive
absence of a prior hypothesis, a memory search is symptoms such as pain could have any positive
launched in order to generate plausible attribu- or negative effects which could be utilized in the
tions. These processes, along with subsequent clinical situation. Work by Leventhal, Le-
behavioral responses, are mediated by factors venthal, Shacham, and Easterling (1989) in-
such as mood, coping repertoire, available dicates that focusing on sensory properties of
choices, and both situation-specific and general sensations can result in reduced levels of
goals. A schematic of this model is shown in distress. This type of sensory focusing or
Figure 2. monitoring serves to direct attention to more
objective, sensory properties of the stimulus and
8.03.3.2 Factors Influencing Symptom away from the more negative, emotionally
Perception arousing aspects, resulting in a more neutral
interpretation and response. This can be used to
The appraisal of health threats may be good effect in providing sensory information to
influenced by a range of personal, psychological, patients prior to stressful medical procedures
social, and cultural factors (Croyle, 1992). While and surgery (see Section 8.03.5.5).
Perceiving Symptoms and Entry into the Health-care System 83

communication with other people, particularly


Behavior medical practitioners (Leventhal et al., 1984).
The body or self schema also affects the
interpretation of health threats as it provides
a basis for comparing deviations from the norm
and for discriminating normal age-related
Mediators changes from illness (Keller, Leventhal, Proha-
sha, & Leventhal, 1989). Indeed, with older
people there is evidence of a bias towards age-
related attributions (i.e., ªit's because I am oldº)
Prior which can serve to delay seeking help or prevent
hypothesis taking appropriate action (E. Leventhal &
Crouch, 1997).

8.03.3.2.3 Disposition and emotions


The content and activation of illness schemas
Attributions may also be influenced by dispositional factors
such as psychological traits and emotions (H.
Leventhal & Diefenbach, 1991; Leventhal,
Diefenbach, & Leventhal, 1992). For example,
Somatic Leventhal et al. (1992) propose that personality
label factors such as repression-sensitisation (Byrne,
1964) may affect illness representations by
influencing attention to and interpretation of
somatic states. Also, high levels of negative
Physical affectivity, which is highly correlated with
neuroticism (Watson & Clark, 1984), have been
state
found to predict symptom reporting and health
complaints, but not actual health status (Wat-
Figure 2 A model of symptom perception (adapted
from Cioffi, 1991). son & Pennebaker, 1989). Laboratory studies
involving experimental induction of a negative
mood state in volunteer subjects results in more
negative judgements of health status and higher
8.03.3.2.2 Knowledge and expectations levels of symptom reporting than is reported by
The knowledge contained within illness comparison subjects who had undergone posi-
schemas imposes meaning on internal and tive mood induction (Croyle & Uretsky, 1987).
external events (Leventhal et al., 1984). A Similarly, when individuals are asked to keep a
powerful illustration of the influence of schema diary of symptoms and moods, they report
contents on the interpretation of somatic stimuli higher levels of symptoms during negative
comes from studies of patients suffering from mood states (Verbrugge, 1985).
panic disorder and hypochondriasis whose
catastrophic illness-related interpretations of 8.03.3.2.4 Contextual factors
benign bodily stimuli reflects their current Social information and the environmental
health concerns (Warwick & Salkovskis, and cultural context also affect symptom
1990). Similar influences of catastrophic inter- perception (Croyle & Barger, 1991). When
pretations on symptoms can be seen in patients intrapersonal memory searches aimed at estab-
with chronic fatigue syndrome (Moss-Morris, lishing the meaning of symptoms fail to provide
1997) and with chronic pain disorders (e.g., an answer, social information becomes an
Keefe, Brown, Wallston, & Caldwell, 1989). In important factor. In particular, the social
all these situations the catastrophizing indivi- comparison process, in which illness informa-
dual will be likely to interpret a bodily symptom tion is shared within the social network, has a
in a very negative way (i.e., perceive it as significant influence on symptom appraisal
indicative of a serious problem), which then will (Leventhal & Diefenbach, 1991). Medical
generate even higher levels of anxiety and an sociologists describe the way people use ªlay
increased focus on and negative interpretation referralº networks in trying to make sense their
of related symptoms. symptoms. These reflect the use of advice given
In addition to personal illness experience, by family and friends, who may often refer the
illness schemas are derived from illness infor- individual to others who are known to have
mation current in the culture and from social knowledge or experience which could help in
84 Health Care

throwing some light on the nature of the related behaviors. The most common initial
problem (see Armstrong, 1989). response is to anticipate that the symptoms will
Situational and contextual cues can play an be short-lived and can be attributed to a specific
important role in interpreting symptoms and in situational factor but there are important
the generation of illness representations. For individual and cultural differences in this
example, Baumann, Cameron, Zimmermann, respect (Robbins & Kirmayer, 1991; Kirmayer,
and Leventhal (1989) found that, in the presence Young, & Robbins, 1994). These authors have
of a stressful life event, participants were more carried out studies in which they presented
likely to interpret ambiguous symptoms as signs various imaginary symptoms (e.g., dry mouth)
of stress than signs of illness. However, in the to participants and asked them to choose the
absence of stress, an illness interpretation was most likely cause from three alternatives, of
more likely. While external factors affected which one was situational (ªI need to drink
judgements about ambiguous symptoms, the more liquidsº), one of which was physical
effect was constrained by prior knowledge since (ªthere is something wrong with my salivary
context did not influence judgements about glandsº), and the other was psychological (ªI
symptoms representing familiar illnesses. must be scared or anxious about somethingº).
Situational explanations were chosen most
8.03.3.3 Summary: Symptom Perception frequently but some individuals showed clear
biases towards selecting more physical or
The interpretation and response to symptoms psychological explanations.
is guided by illness schemas and involves several A bias towards opting for physical explana-
cognitive procedures. Typically, it begins with a tions for symptoms could lead to potential
search of long-term memory for comparable conflicts in health care, when tests fail to reveal
illness episodes, which promotes comparisons any organic cause for a problem. To some extent
between the current state and previous experi- this can be observed in people with chronic
ence. The outcome of the comparison process fatigue syndrome since they commonly attri-
influences judgements about illness status and bute their symptoms to a physical cause in the
the identity of symptom clusters. These judge- absence of any confirmatory evidence (Moss-
ments can be mediated by the self-system and by Morris, 1997). This, in turn, may reduce the
external factors. The influence of the self-system perceived relevance of any psychological treat-
reflects personal illness experience, the cultural ments which may be offered and have adverse
knowledge base, the body schema, and person- effects on treatment adherence (see Section
ality traits. Symptom appraisal may also be 8.03.4.3.3).
biased by motivational processes aimed at Seeking medical help is a relatively uncom-
minimizing health threats (Croyle, Sun, & Hart, mon response since the majority of individuals
1997). For example, in an experimental study, wait, do nothing, or self-medicate (Freer, 1980).
Croyle, Sun, and Louie (1993) found that However, there has been considerable interest in
students who had been told that they had a understanding the responses of two groups of
potentially risky cholesterol level actually rated individuals: those who persistently seek help for
high cholesterol as less serious than those who what appear to be quite minor symptoms and
were informed that theirs was in the normal those who delay seeking help while experiencing
range. Contextual and situational cues may also serious or life-threatening symptoms. Studies of
modify symptom interpretation, by the provi- frequently attending patients reveal that they
sion of specific local information (e.g., other are typically high in trait anxiety (Banks,
people with similar symptoms) or via selective Beresford, Morrell, Waller, & Watkins, 1975).
attention to specific aspects of the symptom This is consistent with the finding that trait
experience (Cioffi, 1991). anxiety is associated with a stronger attentional
focus on internal bodily states, as well as higher
8.03.3.4 Symptom Perception and Help Seeking levels of symptom reporting (Watson & Penne-
baker, 1989). Also, these individuals are more
From a population perspective, the experi- likely to make more negative interpretations
ence of symptoms is widespread and it is clear and attributions for particular symptoms than
that the majority of these are transient and their less anxious counterparts (Sensky, Ma-
benign. For the individual, each symptom is cleod, & Rigby, 1996). Given the negative
evaluated in terms of its potential threat and cognitions which accompany anxiety (Lucock,
decisions will be made on how best to respond Morley, Peaks, & White, in press), it is therefore
on the basis of past experience and the present not surprising that there will be greater concern
context. Thus, the perceived identity and cause and an accompanying need for reassurance but,
of the symptom and its anticipated timeline and as is discussed more fully at the end of this
consequences will give rise to particular health- section, the rather minimal reassurance which is
Perceiving Symptoms and Entry into the Health-care System 85

very often provided by the doctor is not likely to help. In view of this, it is noteworthy that
be effective in reducing anxiety or preventing guidelines for good patient interviewing in
further help-seeking. primary care include an encouragement to
Delay in seeking help for serious symptoms is focus on why the patient has come (Pendleton,
a complex process which depends critically on Schofield, Tate, & Havelock, 1984). Thus, in
the individual's perception of their symptoms as addition to eliciting signs and symptoms,
well as contextual factors, such as barriers to doctors are expected to develop an interviewing
health care. Three stages of delay can be approach which allows patients to express their
identified and have been described by Safer, own ideas or concerns about their condition.
Tharps, Jackson, and Leventhal (1979) as From the HCP's perspective, patients may
appraisal delay, illness delay, and utilisation appear to be seeking help for relatively minor
delay. Appraisal delay involves the decision as symptoms (e.g., transient pain from indigestion)
to whether one is ill, given the particular pattern whereas specific contextual factors (e.g., a close
of symptoms which are being experienced. This relative with a heart problem) may cause the
stage is very much a function of the sensory patient to hold a much more serious representa-
properties of the symptoms as well as the way in tion of their problem.
which these are interpreted either from past A further implication for HCP's lies in the
experience, from reading about one's symp- issue of reassurance. As will be outlined in
toms, or from discussion with others. The Section 8.03.4.1.1, one of the most common
appraisal stage can be understood easily in patient expectations for a primary care con-
terms of the models of Leventhal et al. (1997) sultation is to be able to have a better under-
and Cioffi (1991) which were outlined earlier in standing of a current complaint (Williams,
the chapter, since symptoms which do not Weinman, Dale, & Newman, 1995). Since the
activate threat-related illness schema are not majority of symptoms will not be found to be
interpreted as serious or potentially serious and indicative of any underlying problem, as the
are very unlikely to instigate help-seeking. result of a physical examination or diagnostic
Illness delay describes the delay between test, it is not surprising that the HCP will expect
recognising that there is an illness and deciding this to be sufficient to reassure the patient. For
that professional help should be sought, whilst some patients being told that there is no
the time taken from that point to actually underlying or serious problem is effective in
seeking help is referred to utilisation delay. providing reassurance but there is consistent
Different factors contribute to the various evidence that this is not always so. For a
stages of delay, including past experience of significant minority, there is continued concern
symptoms, their perceived consequences and about their health status (Channer, James,
concerns about the possible costs, and negative Papouchado, & Rees, 1987; Lucock et al., in
aspects of the treatment and outcome. One press).
condition where delay can have very serious This continued anxiety following reassurance
consequences is myocardial infarction (MI), from the HCP may then result in further
since early utilization of medical care is needless consultations or investigations, and is
associated with improved changes of survival. one of the factors involved in frequent atten-
Death following MI typically occurs within a dance for health care. The key issue here seems
few hours of symptom onset, yet the evidence to be the nature of the reassuring message which
shows there is a large variation in utilization typically consists of reporting that no pathology
delay times and that some individuals put can be detected and so there is no need to worry
themselves at much greater risk as a result (McDonald, Daly, Jelinek, Panetta, & Gutman,
(Dracup et al., 1995). This work also shows that 1996). Although apparently comforting from
symptom severity and interpretation are im- the HCP's perspective, this message only
portant since those who perceive their symp- provides negative information and fails to
toms as indicative of MI are less likely to delay. contribute a positive explanation for the
Problems caused by patient delay over a longer symptoms which the patient had or is experien-
time period are also found with other condi- cing. According to Lucock et al. (in press),
tions, including cancer (Facione, 1993), sexually reassurance in the form of negative information
transmitted diseases (Leenars, Rombouts, & will only provide a short-term reduction of
Kok, 1993), and mental health problems health concern. If symptoms persist or reoccur,
(Clausen, Pfeffer, & Huffine, 1982). then the health concern will also return since the
From the health-care professional's (HCP) patient still lacks a satisfactory explanation
perspective it is therefore important to know which would enable them to interpret the
what symptoms the individual has experienced symptoms as benign. For reassurance to be
and the way that these have been interpreted as effective, patients' concerns need to be elicited
a basis for understanding the decision to seek and appropriate information provided for
86 Health Care

explaining the symptoms. These findings can be that jargon was used in about half the
understood in terms of Leventhal's self-regula- consultations in their study. Other studies have
tory model, which was outlined at the beginning shown how much this ªcommunication gapº
of this chapter. If the patient's cognitive reflects differences in biomedical knowledge
representation of a problem is that it is serious between patients and HCPs. A good example is
(e.g., heart disease) and the diagnostic test fails seen in Figure 3 which shows some data from a
to provide any evidence for this, then an study by Hawkes (1974) who investigated
adequate alternative explanation and discussion patients' and doctors' interpretations of anato-
of the symptoms will probably be necessary for mical terms. Not only did this study show that
the patient to generate a more benign repre- patients' understanding of anatomical terms is
sentation and therefore be reassured by the test often quite different from that of their doctor
results. but also that doctors may also differ in their use
of some terms. Another complaint from
patients is that the HCP does not appear to
8.03.4 HEALTH-CARE PROFESSIONAL± be interested in their presenting problem or in
PATIENT COMMUNICATION their concerns or worries about it and this is
associated with lower levels of satisfaction with
The consultation between the patient and the the consultation (Williams & Calnan, 1991).
HCP lies at the centre of health care. The Moreover, patients often report feeling that
information which is transmitted during the they have not been sufficiently involved in the
consultation is very often critical in the decision-making which may have occurred in
formulation of diagnoses and in the organisa- the consultation. Hence, Roter and Hall's
tion of treatment. Effective communication is (1989) overview of research in this area revealed
necessary to ensure not only that the patients' that patient satisfaction was higher following
problems and concerns are understood by the consultations in which the HCP engaged in
HCP but also that relevant information, advice, more social conversation, positive verbal and
and treatment is received and acted upon by the nonverbal behavior, and partnership building.
patient. Since the late 1960s there has been The development of relatively unobtrusive
considerable research on the medical consulta- audio and video-recording techniques has
tion, prompted to a large degree by the fact that allowed researchers to investigate the consulta-
there has been consistent evidence that not only tion and many studies have analyzed the process
are the process and outcome often unsatisfac- of the consultation and attempted to relate
tory for patients but also there is widespread process variables or characteristics to outcome.
noncompliance with subsequent treatment re- While these studies have identified important
commendations. Early research revealed quite themes, they have not always been successful in
high levels of patient dissatisfaction which was making clear links between process and out-
often associated with insufficient information, come (Stiles, 1989). In the absence of simple
poor understanding of the medical advice, and relations between consultation process vari-
subsequent reluctance or inability to follow ables (e.g., duration or style of consultation)
recommended treatment or advice (e.g., Korsch and various outcomes (e.g., satisfaction, ad-
& Negrete, 1972). These early findings showed herence, etc.), more recent studies have begun to
that many patients complained that they were examine what HCPs and patients bring to the
not given sufficient information about the consultation, as well as the importance of
nature of their problem, the treatment, and contextual factors. As a result, many current
the likely outcome. For example, in the Korsch frameworks for understanding doctor-patient
and Negrete (1972) study, which involved communication tend to be based on the
mothers taking their children to a paediatric relations between inputs (i.e., the attitudes,
outpatient clinic, about 20% of mothers were beliefs, expectations, etc. which patient and
not informed clearly about the diagnosis and doctor bring to the consultation), process (the
nearly 50% were uncertain afterwards as to the nature of the encounter), and outcome (the
course of their child's illness. Similar findings short- and longer-term effects on the patient).
have been produced in more recent studies in a An example of one such framework is provided
variety of health-care settings and it is notable by Friederikson (1993) and is shown in Figure 4.
that these problems are unrelated to the length An overview of input, process, and outcome
of time spent with the HCP (Korsch & Negrete, factors follows.
1972).
A related problem involves the use of 8.03.4.1 Input Factors in Communication
information, such as medical jargon, by the
HCP which the patient misconstrues or cannot Input factors which influence the consulta-
understand. Korsch and Negrete (1972) found tion include not only aspects of the doctor and
Health-care Professional±Patient Communication 87

In the picture below put a tick underneath the drawing that shows
the correct position of the brain

Total Rating
Doctors 0 0 0 53 (100%) 0 0 53 Good
Patients 11 (5.9%) 9 (4.8%) 17 (9.2%) 122 (66.3%) 4 (2.1%) 21 (11.4%) 184 Fair

In the picture below put a tick underneath the drawing that shows
the correct position of the sciatic nerve

Total Rating
Doctors 0 1 (1.8%) 2 (3.7%) 29 (54.7%) 21 (39.6%) 53 Fair
Patients 37 (22.8%) 25 (15.4%) 8 (4.9%) 36 (22.2%) 56 (34.5%) 162 Poor

Figure 3 Examples of the differences in the use of anatomical terms by patients and doctors (from Hawkes,
1974).

patient but also the context and setting in which be involved in the health-care process (Krantz,
the consultation occurs. For example, for many Baum, & Wideman, 1980). These studies also
primary care consultations in the UK, patients show that patients differ in the amount of
are booked in for 10-minute appointments information which they would like to receive
whereas similar consultations in other countries about their health problem. Similarly, a dis-
may typically last two to three times longer. tinction has been made by Miller, Brody, and
Although longer consultations do not inevitably Summerton (1988) between ªmonitorsº and
result in better patient outcomes (Morrell, ªblunters,º with the former being more inclined
Evans, Morris, & Roland, 1986), the resulting to need and seek out information about their
process may well be different. Similarly, the problem and treatment, whereas the latter
layout of the consulting room, including the group prefer consultations in which relatively
proximity and positioning of the HCP and limited information is provided. This is similar
patient, can also influence the communication to the repression-sensitisation classification,
process. described in Section 8.03.3.2.3, and reflects
the extent to which patients choose to cope with
their health problems in a problem-focused or
8.03.4.1.1 Patient input factors
an avoidant manner.
When considering patient ªinputº factors Patients come into the health-care setting with
which can influence the medical consultation, a different levels of biomedical knowledge, based
number of studies have shown that patients on their past experience. There is also consistent
cope with health threats in diverse ways and evidence that patients have differing expecta-
show consistent differences in how they want to tions for specific consultations (Williams et al.,
INPUT PROCESS OUTCOMES

Initialization S
P Frame of A
Perceptions
Reference T
A
Compliance I
T S
Motivations,
F
I goals, needs, Concern
A
expectations C
E
Information exchange Understanding T
N I
Personal
Relationship O
T information
N

Acknow- S
Frame of Physical Perceptions A
D ledgement Questions
Reference exam T
of problem
O Diagnosis I
Motivations, Diagnosis S
C Prognosis F
goals, needs,
T Treatment/Action A
expectations C
O Treatment option T
Understanding
Medical I
R Relationship O
information
Termination N

Figure 4 Information processing model of medical consultation (adapted from Friedrikson, 1993).
Health-care Professional±Patient Communication 89

1995), and an awareness of these can be helpful in expectations by the simple categorization of
understanding not only why they are seeking needs according to the medical condition can be
help at that time but also in being able to respond inadequate since patients may require varying
effectively to their needs. Following the self- levels of information about the presenting
regulatory model, described at the beginning of symptoms. The range of psychosocial and
this chapter, it has been found that patients' medical expectations of primary care patients
illness representations will influence their deci- has been investigated by Good, Good, and
sion to seek help (Cameron, Leventhal, & Nassi (1983). They have developed a scale
Leventhal, 1993) and hence their expectations (Primary Care Patient Request Scale) from the
of the consultation. responses of North American primary care
Patient expectations have been conceptua- patients and it requires patients to rate the
lized and defined in a range of different ways. In extent to which each item on the scale reflects
their review of the literature, Thompson and their needs prior to the consultation. The results
Sunol (1995) have proposed working definitions of a principal components analysis to investi-
for four types of expectations that are used gate underlying components on the types of
frequently: consultation requests of primary care patients
(i) Ideal. This may be referred to as an revealed five distinct dimensions: treatment of
aspiration or desire; psychosocial problems, medical explanation,
(ii) Predicted. The realistic, practical, or supportive communication, test results, and
anticipated outcome which therefore reflects ventilation and legitimation. A simpler version
what users actually believe will happen in an of this scale, developed by Salmon and Quine
health care consultation; (1989), measures four components: explanation
(iii) Normative. What should or ought to and understanding, support, medical treatment,
happen and could be equated with what users and information-seeking. Using this scale,
are told, or led to believe, or personally deduce Williams et al. (1995) have shown that the most
that they ought to receive from health services; common expectation in primary care patients is
and for explanation and understanding of their
(iv) Unformed. This state occurs when users problem, with much smaller numbers wanting
are unable or unwilling to define their expecta- tests, diagnoses, or support. Thus,patients do
tions, which may be because they do not have not always want or expect diagnosis or treat-
any, or find it too difficult to express, or do not ment since they may be looking to the
wish to reveal their feelings, due to fear anxiety, consultation to gain more understanding of
conformity to social norms, etc. their health problem or may be hoping for
The term ªexpectationsº itself therefore support or understanding from their doctor.
needs to be clearly defined and one reason for These prior expectations can be important in
the lack of consistency in the research in this determining outcomes, since consultations in
area is that many studies have failed to do this. which patient expectations are met have been
An example of this problem can be seen in a shown to result in greater satisfaction and an
study carried out to investigate the relationship increased willingness to follow advice or
between patients' expectations and HCPs' ac- treatment (Williams et al.).
tions (Webb & Lloyd, 1994). Primary care
patients' expectations were measured using
8.03.4.1.2 Health-care professional input factors
questionnaires which asked each patient
ªHow do you think the doctor will be able to It is important to acknowledge that health-
help you with your problem?º and instructed care professionals can vary considerably in the
the subjects to tick as many of the following attitudes and beliefs which they have not only
actions: ªgive you a prescription,º ªrefer you to about their own and the patient's role, but also
hospital,º ªgive you advice,º ªhelp you in some about the function and conduct of the con-
other way.º By this method it would not be clear sultation. Doctors have been categorized in
to the patients whether they should respond various ways according to their role perceptions
according to what they themselves want (i.e., and the extent to which they concentrate on the
ªidealº expectations) or what they merely technical or more psychosocial aspects of
expect that they will be given by the doctor patient care, as well as their beliefs about
(i.e., ªpredictedº or ªnormativeº expectations). whether patients should be actively involved in
One method of measuring patients' expecta- the consultation and in decision-making about
tions is to categorize their informational needs the management of the clinical problem (e.g.,
into distinct categories such as information in Grol, de Maeseneer, Whitfield, & Mokkunk,
relation to aetiology, diagnosis, prognosis, 1990). Inevitably, these broad attitudinal differ-
treatment, and social effects (Kindelan & Kent, ences are reflected in differences in the way in
1987). However, the measurement of patients' which the consultation is conducted and in
90 Health Care

other aspects of professional behavior, includ- then will have to make a decision about the best
ing decision-making, prescribing, and manage- approach to treatment. Both these processes
ment of clinical problems (McGee, 1997). occur under conditions of uncertainty and, for
Similarly, other HCPs have also been found much of the time, the doctor's thinking will be
to vary in their beliefs and attitudes in ways based on the use of probabilistic information.
which impact on the way they manage their The signs and symptoms may be ambiguous and
encounters with patients (Marteau & Johnston, there is often a margin of error in test results.
1990). In clinical psychology, one very obvious Also, treatment decisions, whether they involve
HCP input factor is the theoretical orientation waiting to see what will happen or the
of the practitioner, since this can have a major prescription of treatment, can involve risks of
influence on the way in which clients' problems complications or side-effects.
are conceptualized and managed. It has also During clinical decision-making, the doctor is
been shown that personal characteristics of the often faced with having to process a large
practitioner can have significant effects on the amount of information about the patient and
process and outcome of psychological therapy the possible diagnoses and treatment options. In
(e.g., Strupp & Hadley, 1979). this they are subject to the same limits of
A few studies have attempted to examine the information-processing capacity which affect
interaction of clients' and therapists' values in all of us (see Eysenck & Keane, 1995). Thus,
psychological therapies (e.g., Kelly, 1990). there are limits in what can be attended to and
There is evidence that strong initial differences how much information can be held in working
between client and therapist may have signifi- memory. In view of this it is not surprising to
cant negative effects on the early stages of find that all doctors acquire heuristics, or
therapy (Kelly & Strupp, 1992) and may be a general strategies, for processing diagnostic
contributory factor to client dropout (Vervaeke, and treatment information and these are subject
Vertommen, & Storms, 1997). to a range of influences.
Although HCPs undergo a common training Kahnemann, Slovic, and Tversky (1982) have
and share a common body of knowledge and described a number of the heuristics which are
skills, wide variations in their clinical behaviour used during clinical decision-making. These
have been noted (e.g., Marteau & Johnston, include the representativeness heuristic (deci-
1990). Part of this variation is a by-product of sions based on the similarity between the
personality differences and can be seen in present situation and known previous ones)
differences in interpersonal aspects of clinical and the availability heuristic (judgments made
practice but part is a reflection of differences in on the basis of information which is most
the approach to clinical problems. Some of readily available). The influence of representa-
these are between-individual differences, tiveness heuristics can be seen in the initial
whereas others reflect factors which can vary hypotheses which doctors generate for newly
within the same individual, such as changing presented symptoms and availability heuristics
mood, time pressure, and various other con- can be inferred from the influence of such
textual influences. In their overview of clinical factors as recent or emotionally salient events
decision-making, Schwartz and Griffin (1986) which readily come to the doctor's mind during
point out that there are often substantial the clinical judgment process. Christensen-
disagreements between doctors when interpret- Szalanski, Beck, Christensen-Szalanski, and
ing the same clinical information (e.g., X-rays). Keopsell (1983) have demonstrated an avail-
They also note that doctors may be inconsistent ability bias in doctors' estimates of the risk of
and disagree with their own previous judge- different diseases since their overestimates of
ments. risks were found to be biased by encounters with
Clinical decision-making has been the subject people with the disease. Similarly, attitudes and
of psychological research for a number of years beliefs about the doctor's and the patient's role
and there is accumulating evidence of inter- and can influence the weighting given to informa-
intra-individual differences in both the process tion from patients (e.g., the relative attention
and the outcome (Schwartz & Griffin, 1986). A given to physical and psychosocial informa-
detailed account of medical decision-making is tion). The doctor's mood can affect
beyond the scope of this chapter and so what information-processing in a number of ways
follows is a brief outline of the process together by directly influencing the speed and accuracy
with a focus on some factors which are of clinical problem-solving (Isen, Rosenzweig,
associated with variation in decision-making & Young, 1991) or possibly by constraining
performance. access to mood congruent semantic informa-
In responding to a new patient, the doctor will tion, as has been demonstrated on more general
first try to solve the problem of what is wrong, studies of the effect of mood on cognition (e.g.,
based on the various signs and symptoms, and Power & Dagleish, 1997).
Health-care Professional±Patient Communication 91

8.03.4.2 The Consultation Process Wasserman and Inui (1983) have noted that a
strength of Bales's system is that it deals with
There are a range of methods and frame- both the content and relationship levels of the
works for analyzing and describing the process communication and that it is particularly strong
of the consultation. One of the broadest on the relationship level, where it is sensitive to
distinctions made has been between consulta- the feelings of each communicator. Moreover, it
tions which are described as patient-centered has been shown to be reliable and applicable in
and those which are HCP-centered, reflecting diverse situations. Its main weakness is the
the extent to which the HCP or patient treatment of information transfer, that is, the
determines what is discussed (Grol et al., transfer of information from the patient to the
1990). HCP-centered consultations are ones in doctor as well as in the reverse direction. With
which closed questions are used more often and this system there is a difficulty in categorising
the direction is determined by the HCP, statements that involve both information
typically with a primary focus on medical transfer and affective components. As a result,
problems. In contrast, patient-centered encoun- a number of investigators, including Roter
ters involve more open-ended questions with (1977), have modified the system to allow direct
greater scope for patients to raise their own coding from audiotapes, assessment of the
concerns and agendas. Related to this are affective aspects of the clinician's behavior,
consistent differences in the extent to which and a more finely tailored categorisation of the
the HCP responds to the emotional agendas and clinical encounter.
the nonverbal cues of the patient (see Roter & An alternative approach, known as the
Hall, 1989). Although there has been a tendency Verbal Response Mode (VRM), has been
to consider the more patient-centered/emotion- developed by Stiles (1978) and which classifies
focused approach as preferable, what appears to each statement made by the HCP and patient
be more important is for HCP and patient to be into one of eight basic categories (e.g., ques-
in agreement over the nature of the problem and tions, giving interpretations, etc.). Good over-
the best course of action (Starfield et al., 1981). views of these different approaches are
A number of specific methods have been available elsewhere (e.g., Roter & Hall, 1989)
developed for carrying out detailed analyses of and attempts have been made to define a
the social interaction between HCP and patient number of more general ways of classifying
based on audio or videotapes or transcripts of HCP-patient interactions. For example, one
the consultations but, as yet, there is no real can distinguish between verbal and nonverbal
consensus as to the best method for this. One of information and, within the verbal domain, six
the earliest of these was the Bales's (1950) broad categories can be defined: information-
process analysis system which distinguishes giving, information-seeking, social conversa-
verbal statements into those which are task or tion, positive talk, negative talk, and partner-
emotion-focused and then into more specific ship building. From a meta-analysis of these
categories and this approach has been adapted broad categories (Roter, 1989) it has been
and extended by a number of other investigators found that for the doctor, information-giving
(see Roter & Hall, 1989). occurs most frequently (approximately 35% of
With Bales's system, the coding can be carried the doctor's communication) followed by
out using transcripts, audiotapes, or first-hand information-seeking (approximately 22%), po-
observations (Bales, 1950; Korsch & Negrete, sitive talk (15%), partnership building (10%),
1972). Verbal behavior is usually studied, social conversation (6%), and negative talk
although nonverbal behavior may also be (1%). In contrast, the main type of patient
coded. A unit can be as short as a single word communication consists of information giving
or as long as a lengthy sentence; compound (approximately 50%) with less than 10%
sentences are usually divided at the conjunction involving information seeking.
and sentence clauses are scored as separate units A comparative study of process analysis
when they convey a single item of thought or methods was carried out by Inui, Carter,
behavior. The rationale underlying this ap- Kukull, and Haigh (1982). The Bales, Roter,
proach is that all interpersonal statements can and the VRM system were applied to 101 new
be classified as falling into one of two domains, patient consultations at a general medical clinic.
the task and the socioemotional. Interaction is The outcome measures were patient knowledge,
described in terms of 12 mutually exclusive satisfaction, recall of prescribed medications,
categories: six ªeffectively neutralº in the task and compliance. The findings revealed that the
dimension (e.g., doctor gives suggestion) and six explanatory power of the three systems differed.
equally divided into positive and negative Roter's system was found to explain 28% of the
affective categories in the socioemotional variance in adherence to prescribed medicines,
dimension (e.g., doctor agrees or disagrees). compared to 19% for the Bales system and none
92 Health Care

for the VRM. The Roter and Bales systems were 8.03.4.3 Outcomes of Health-care
also better than VRM in explaining variation in Communication
satisfaction.
More recently, Roter et al. (1997) have used The efficacy of any communication needs to
cluster analysis with the Roter Interactional be evaluated in terms of its effect on outcome.
Analysis System (RIAS) to describe doctor's For health-care communication, the ultimate
communication patterns in a study of 127 outcome is health but only relatively few studies
doctors and 537 patients. Their results revealed have measured short or longer-term health
five distinct patterns: (i) ªnarrowly biomedical,º outcomes following consultations and these will
(ii) ªexpanded biomedical,º (iii) ªbiopsychoso- be mentioned briefly. However, a range of other
cial,º (iv) ªpsychosocial,º and (v) ªconsumer- outcomes have been assessed and these fall into
istº (see Table 1). They found that ªbiomedicalº three broad groups, namely cognitive, affective,
approaches were used more often with more and behavioral.
sick, older, and lower income patients by
younger, male doctors. Patients and doctors 8.03.4.3.1 Cognitive outcomes
completed a satisfaction questionnaire imme- These can be assessed by evaluating changes in
diately after the consultation. The highest levels patients' knowledge, understanding, and recall
of doctor satisfaction were found in those using of the relevant information provided in the
the consumerist approach and the lowest levels consultation. Ley and colleagues have carried
were found in those using the narrowly out a number of careful studies of patient recall
biomedical approach. In contrast the highest and these have been summarized (Ley, 1997).
levels of patient satisfaction were found with Studies which have assessed how much patients
those who had seen doctors using the psycho- are able to recall from consultations have shown
social communication pattern whereas the that about half the information is retained but
lowest satisfaction scores were recorded in there is considerable range. This variation partly
those who had experienced either of the two reflects the type of setting and sample used and
biomedical patterns. partly the method which is used to test for recall.
A very different approach to process analysis There are a number of other factors involved
can be found in the studies of Ley and including the content of the information, the
colleagues (Ley, 1988), who have concentrated patients' prior knowledge, and their level of
on the informational content of the consulta- anxiety. With regard to the content and structure
tion and the quality of information provided of the message, information which is presented
by the doctor. In particular they have analyzed early in the consultation is recalled better (the
the content in terms of its level of complexity, primacy effect) as are statements which are
comprehensibility, and the extent to which the perceived as being important or relevant. More-
information is organized. They and others have over, if the HCP makes an effort to present
found that medical information may be too information in an organized way based around
detailed or complex with the result that specific themes (e.g., the nature of the problem,
important information may not be understood the details of the treatment, etc.), then recall is
or retained by the patient. Ley's studies have improved. Not surprisingly, the more informa-
shown patients' understanding and recall of tion which is presented, the smaller proportion is
the consultation can have a direct influence remembered.
on treatment adherence or can influence ad-
herence via their effects on satisfaction (see
8.03.4.3.2 Affective outcome: patient
Figure 5).
satisfaction
There is even evidence that patients and
doctors may interpret the same information in One of the broadest indicators of the patients'
different ways and this communication gap can affective response to a health-care consultation
occur around anatomical information or other is their overall level of satisfaction. Fitzpatrick
technical terms which are used to describe illness (1997) has commented that the concept of
or treatment (see Figure 3). patient satisfaction is important because it
These various ways of conceptualizing and focuses on the need to understand how patients
analyzing the consultation process have given respond to health care. As a result, it is
rise to a large number of indices or categories increasingly being assessed in surveys of health-
which have been related to outcomes, often in care settings as a marker of quality of care,
quite a limited fashion. Outcomes, such as along with such other dimensions of quality as
patient satisfaction or adherence to treatment, access, relevance to need, effectiveness, equity
are likely to be determined by a range of factors, and efficiency.
reflecting a complex interaction of input, Patient satisfaction is also considered im-
process, and situational variables. portant since it is associated with patient
Health-care Professional±Patient Communication 93

Table 1 Communication patterns and their frequency of use in primary care consultations.

Type of pattern Characteristics Consultations % of doctorsa

Narrowly biomedical Low % of talk on psychosocial topics; high % 32 68


of biomedical information given by dr. & pt.;
high % of question asking by dr.
Expanded biomedical High % of question asking by dr.; moderate 33 61
levels of biomedical and psychosocial
exchange for dr. & pt.
Biopsycho-social Balance between biomedical and psychosocial 20 42
exchange in dr. & pt.; fewer questions than in
the two biomedical patterns
Consumerist High frequency of question asking by pt. and 8 23
information giving from dr.; low levels of
question asking by dr. and of psychosocial
exchange
Psychosocial Dominated by psychosocial exchange; dr. talk 7 19
divided between psychosocial and
biomedical; high % of pt. psychosocial talk;
lowest levels of question asking by dr. & pt.;
dr.- very positive and accepting of pt. input

a
percentage of doctors with at least one of their consultations falling in the pattern Source: Roter et al. (1997).

cooperation (Hall, Roter, & Katz, 1988; Roter, the HCP's behavior towards them, the informa-
Hall, & Katz, 1987), improved health status tion provided, the technical skills of the HCP,
(Eraker, Kirscht, & Becker, 1984), and fewer and the access to and quality of the health-care
malpractice suits (Vaccarino, 1977). Increased setting. Despite this, there is evidence that the
levels of satisfaction have also been found to be behavior of the HCP is the critical determinant
related to other important outcomes from the and one which can significantly influence
consultation, particularly adherence or com- ratings of all the other aspects of health care.
pliance with treatment or advice. Although patient satisfaction appears to be a
Although the concept of satisfaction has relatively straightforward concept, there remain
good face validity, there is a singular lack of a number of difficulties in measuring it. Results
good theory or consensus about its nature or from most satisfaction surveys reveal very
structure. Some approaches are based around skewed data, apparently indicating very high
the anxiety surrounding illness and equate levels of satisfaction across patient samples,
satisfaction with the adequacy with which this particularly amongst older patients (Hall &
is dealt with by HCPs. Stimson and Webb Dornan, 1988). Part of this problem seems to lie
(1975) have suggested that patient satisfaction is in the reluctance of patients to criticize health-
related to the perceptions of the outcome of care services and part of it is due to the structure
treatment and the extent to which treatment of the questionnaires which have been used to
meets the patient's expectations. This can be assess patient satisfaction. Comparative studies
related to the self-regulatory model, in that of different methods have shown variability in
greater satisfaction would be predicted if the satisfaction across measurement approaches.
patient's own representation of the problem is Wide variation in satisfaction scores between
taken into account by the HCP and if the three commonly used methods has been
information which is provided allows the reported (Counte, 1979). For example, consis-
patient to develop a representation of the tently lower rates of satisfaction are found when
problem and the treatment which reduces their the same respondents use a five-point rating
uncertainty and facilitates their coping, includ- scale ranging from ªpoorº to ªexcellentº
ing their adherence to treatment (Leventhal & compared to a six-point rating scale ranging
Cameron, 1987). from ªextremely satisfiedº to ªvery dissatisfiedº
More recently Fitzpatrick (1997) has pro- (Ware and Hays, 1988). In addition, the use of
moted the idea of patient satisfaction as a more in-depth methods which require patients
multidimensional concept, since patients have to describe their experiences of health from their
been found to have differing views about own perspective, typically give rise to a more
different aspects of their health care, such as critical view (Fitzpatrick & Hopkins, 1993).
94 Health Care

Understanding

Satisfaction Adherence

Recall

Figure 5 Ley's cognitive model, showing the relations between the patient's understanding, recall, and
satisfaction with the consultation and subsequent treatment adherence.

Although these do not provide a quantitative ment are seen as problematic in most chronic
measure, they can be used to highlight areas of diseases including asthma (Yeung, O'Connor,
dissatisfaction. Parry, & Cochrane, et al., 1994), diabetes
There are many patient satisfaction ques- (Glasgow, McCaul, & Schafer, 1986), heart
tionnaires that have been developed for use in disease (Horwitz & Horwitz, 1993; Monane,
different health-care settings. For assessing Bohn, Gurwitz, Glynn, & Avorn, 1994), cancer
patient satisfaction with the consultation, one (Lilleyman & Lennard, 1996), and kidney
of the most widely used measures is the Medical disease (Cleary, Matzke, Alexander, & Joy,
Interview Satisfaction Scale (MISS) (Wolf, 1995), as well as in psychological treatments,
Putnam, James, & Stiles, 1978). This scale such as relaxation training for anxiety-related
measures satisfaction with three aspects of the disorders (Taylor, Agras, Schneider, & Allen,
medical consultation. First, it assesses the extent 1983).
to which the patient feels that the doctor listens, The incidence of reported medication non-
understands, and is interested (affective). Sec- adherence varies greatly from 4±92% across
ond, it assesses the patient's evaluation of the studies, converging at 30±50% in chronic illness
doctor's competence in the consultation (beha- (Haynes, Taylor, & Sackett, 1979; Meichen-
vioral) and the third aspect is concerned with the baum & Turk, 1987). In the area of primary
amount and quality of information provided prevention, it has been found that many
(cognitive). participants drop out of lifestyle change
Bowman, Herndon, Sharp, and Dignan programs designed to improve diet or reduce
(1992) have identified a number of important health risk behaviors (Dunbar & Agras, 1980).
structural and measurement criteria for an Even patients who have experienced major
adequate patient satisfaction scale and have health problems, such as heart attacks, may
reported that the MISS meets all of these. show low levels of uptake of rehabilitation
Moreover, it has good internal consistency and programs as well as considerable variation in
correlates highly with other equivalent mea- the adoption of recommended lifestyle change
sures (Kinnersley, Stott, Peters, Harvey, & (Petrie, Weinman, Sharpe, & Buckley, 1996). In
Hackett, 1996). the area of mental health, there is also evidence
of significant rates of nonadherence to various
recommendations from HCPs. For example,
8.03.4.3.3 Behavioral outcome: adherence
about half of those undergoing intake in a
The most widely studied behavioral outcome mental health clinic were found to fail to attend
from health-care consultations is reflected in the for the first arranged interview and something
extent to which the patient adheres to the advice like three-quarters of psychotherapy patients
or treatment offered by the HCP. Many have been found to drop out by the fifth session
consultations result in the prescription of of treatment (Phillips, 1988).
treatment or advice by the HCP and the There has been a major interest in patient
appropriate adoption of self-care behaviors, adherence for many years since it has been
including use of medicines, is a key aspect to the found that many so patients fail to follow
self-management of most chronic illnesses. advice or treatment. In view of the importance
However, many patients fail to do this and of this topic, the following section will present
low rates of adherence to recommended treat- an extended overview of it, focusing on the
Health-care Professional±Patient Communication 95

nature of the concept and its causes, as well as representation to adhere to their medication
ways in which it can be influenced by specific over a long period of time (Meyer, Leventhal, &
interventions. Guttman, 1985).
Although adherence may be simply defined as Passive nonadherence may be unintentional
ªthe extent to which the patient's behavior when the patient's intentions to follow treat-
coincides with the clinical prescriptionº (Sackett ment recommendations are thwarted by bar-
& Haynes, 1976), there are several conceptual riers such as forgetting, and inability to follow
and methodological issues (Gordis, 1976). It is treatment instructions because of a lack of
neither usually possible nor desirable to define understanding or physical problems such as
nonadherence as an ªall or nothingº response in poor eyesight or impaired manual dexterity.
which the patient either completely follows the Thus, if the quality of communication is poor
HCP's instruction (adherence) or deviates from and patients receive information which is
it in some way (nonadherence). For most difficult to understand or recall, as has been
treatments, the need for total adherence is outlined above, then this makes it less likely that
questionable and this has led Gordis (1976) to treatment will be adhered to (Ley, 1988).
define nonadherence as ªthe point below which
the desired preventative or desired therapeutic
(i) Measuring adherence
result is unlikely to be achieved.º The percen-
tage adherence necessary to achieve the desired Adherence measures can be divided into two
effect varies between treatments and between broad categories according to whether the
and within individuals. Many individuals, assessment is direct or indirect. Direct measure-
particularly those with chronic health problems, ment entails observing the required adherence
are required to adhere to a variety of recom- behavior such as the ingestion of the drug or by
mendations from their HCPs. For example, detecting its presence in body fluids. Indirect
diabetic patients are required to take medica- measures assume ingestion based on proxy
tion, control their diet, and check their feet and evidence such as the patient's report or the
blood glucose levels on a regular basis but it has number of dosages removed from a container.
been found that these behaviors are not highly The strengths and weaknesses of available direct
correlated (Glasgow, McCaul, & Schafer, and indirect methods have been reviewed
1987). extensively (e.g., Rudd, 1993). At first sight,
Nonadherence behaviors may be categorized direct methods might appear to be the best way
as either active or passive. Active nonadherence to assess adherence as other methods do not
arises when the patient makes a strategic directly confirm that the medication has been
decision not to take the treatment as instructed. ingested (Caron, 1985). However, these techni-
An example of this type of behavior was found ques are problematic partly because they may be
among hypertensive patients who believed that difficult to carry out and partly because there is
they could judge when their blood pressure was not a one-to-one relationship between the
high by the presence of symptoms such as stress amount of medication or tracer taken and the
or headache and thus took antihypertensive concentration found in body fluids. Further-
medication only when these symptoms were more, a major drawback of direct methods is
experienced (Baumann et al., 1989; Meyer, that they are invasive, expensive, of question-
Leventhal, & Guttman, 1985). Active nonad- able reliability, and provide no indication of the
herence behavior has been noted among several type or time-course of nonadherent behavior. A
chronic illness groups including those with commonly used indirect method for assessing
asthma (Becker et al., 1978; Woller, Kruse, adherence is to count the number of dosage
Winter, Mans, & Alberti, 1993), rheumatoid units left in the container and compare this to
arthritis (Lorish, Richards, & Brown, 1990), the number which would have been left had the
epilepsy (Conrad, 1985), and hypertension patient followed the instructions. This method
(Morgan & Watkins, 1988), and may be has the advantages of being technologically
particularly influenced by the patients' percep- simple and inexpensive. However, some studies
tion of their problem as well as their level of have shown that pill counts may under-estimate
satisfaction with the HCP and the consultation. the true level of nonadherence (Kruse, Niko-
From a self-regulatory perspective, the level of laus, Rampmaier, Weber, & Schlierf, 1993;
treatment adherence may be indicative of a Rudd, Ahmed, Zachary, Barton, & Bonduelle,
strategic coping response which is entirely 1990). For example, patients may remove
consistent with the patient's view of their medication for reasons other than to use it.
problem (Leventhal & Cameron, 1987). Thus, They might give the medication to someone else,
patients who believe that their problem will not or transfer it to another container, or may
last for long have been found to be less likely deliberately discard doses prior to monitoring
than those with a more chronic timeline to create an impression of high adherence.
96 Health Care

In the 1990s, technological developments the treatment or the disease which might
have allowed the incorporation of electronic influence adherence levels. More recent studies
devices into the medicine container to record the have tended to concentrate on cognitive factors,
time and date of usage. The major advantage of particularly patients' beliefs and attitudes, since
these devices is that potentially they provide a these are potentially modifiable.
profile of medication taking rather than simply In an early systematic review of 185 studies
detailing how much was taken (Kruse et al., (Sackett & Haynes, 1976), no clear relationship
1993; Rudd et al., 1990). However, as with the emerged between race, gender, educational
pill count method, a dose removed is not experience, intelligence, marital status, occupa-
necessarily a dose taken. Furthermore, if tional status, income, and ethnic or cultural
inclusion of the monitoring device changes background and adherence behaviors. More-
the appearance of the medicinal product, this over, there is little evidence that adherence
will alert the patient to the fact that they are behaviors can be explained in terms of person-
being monitored and may change behavior. ality characteristics (Becker, 1979; Bosley,
Similarly studies assessing adherence to beha- Fosbury, & Cochrane, 1995; McKim, Stones,
vioral treatments, such as the use of relaxation & Kozma, 1990). Also, the idea that stable
tapes, have required the users to keep diaries sociodemographic or dispositional characteris-
recording their daily use of the tapes (e.g. tics are the sole determinants of adherence is
Bennett & Millard, 1985) and it is very likely discredited by evidence that an individual's
that this self-monitoring process will influence levels of adherence may vary over time and
rates of adherence. between different aspects of the treatment
One of the most widely used methods of regimen (Cleary et al., 1995; Hilbrands, Hoits-
assessing adherence is patient self-report which ma, & Koene, 1995; Rudd et al., 1990). This
is held to be a valid indicator of treatment limitation also applies to the search for disease
adherence that is practical and useful in a wide and treatment characteristics as antecedents of
variety of research settings (Ley & Llewellyn, adherence since there are wide variations in
1995; Meichenbaum & Turk, 1987). One adherence between and within patients with the
problem with self-reported adherence is that same disease and treatment (e.g., Cleary et al.;
questions about medicine taking are often Lilleyman & Lennard, 1996).
presented at a time and place which is quite One very obvious explanation for nonadher-
distant from the actual event and so reports are ence arises from the poor cognitive outcomes
subject to recall effects. In particular, even when outlined above, particularly poor understand-
they admit to nonadherent behavior, people ing and recall of information presented in the
tend to overestimate the extent of their consultation. Many patients lack basic knowl-
adherence (Ley & Llewellyn, 1995). The edge about their medication (Al Mahdy &
accuracy of self-report as a measure of Seymour, 1990; Cartwright, 1994; Eagleton,
adherence has been assessed by comparison Walker, & Barber, 1993) but the relationship
with other, more objective, methods or eval- between this and their adherence is neither
uated on the basis of correlation between self- simple nor clear-cut. In a review of the
reported adherence and clinical outcome mea- adherence literature Haynes (1976) concluded
sures. In the main these studies show that the that, although 12 studies had demonstrated a
accuracy of self-report varies according to the positive association between knowledge and
type of adherence behavior (e.g., medicine adherence, there were more that had failed to
taking vs. lifestyle change) as well as the type demonstrate a link. Studies conducted since
of self-report measure used. Nevertheless Mor- then generally indicate that associations be-
isky, Green, and Levine (1986) have shown that tween knowledge and adherence are at best
a four-item scale of adherence to antihyperten- small and inconsistent (Eagleton et al., 1993),
sive medication had acceptable internal con- and interventions which enhance knowledge do
sistency and was moderately predictive of blood not necessarily improve adherence (George,
pressure control at two and five year follow-ups. Waters, & Nicholas, 1983; Haynes et al., 1978).
There is increasing interest in the role of
patient satisfaction as a mediator between
(ii) The determinants of nonadherence
information provision, recall, and adherence,
The search for causal factors to explain as would be predicted by Ley's model which was
patients' adherence or nonadherence to their outlined earlier (see Figure 5). In a national UK
recommended treatment or advice has pro- survey of patients' satisfaction with medicines
gressed through different phases since the 1960s. information, over 70% of respondents wanted
Much of the early work focused on the possible more information than they were given (Gibbs
contribution of demographic or personality & George, 1990). Dissatisfaction with attributes
factors, as well as particular characteristics of of the practitioner or the amount of information
Health-care Professional±Patient Communication 97

and explanation provided may act as a barrier coping behavior. Confirmatory evidence for
to adherence by making the patient less this is provided by findings from a study of
motivated towards treatment (Hall et al., 1988). patients with diabetes who used perceived
The emphasis of adherence research since the symptoms to indicate their blood glucose levels
late 1980s has moved away from attempts to and to guide self-treatment (Gonder-Frederick
identify stable trait factors which characterize & Cox, 1991). Unfortunately patients' beliefs
the nonadherent patient to achieving a greater about their symptoms, and estimations of their
understanding of how and why patients decide own blood glucose levels, were often erroneous
to take some treatments and not others (Horne, and resulted in poor diabetic control. Further
1993). Much of this research is informed by evidence of the importance of illness represen-
psychological theories which conceptualize tations was obtained by Meyer et al. (1985) who
behavior as the product of cognitions which noted a clear relationship between illness
occur within a social framework and these are representations and behavior in their study of
described more fully in Chapter 8.01. patients with hypertension. Patients who be-
The application of social cognition models in lieved that their hypertension was an acute
research indicates that medication nonadher- condition were more likely to cease taking
ence may arise from a rational decision on the antihypertensive medication than those who
part of the patient and identifies some of the believed it to be a chronic condition. This study
cognitions which are salient to these decisions. also showed that patients' representations of
Although there is some variation in the specific their illness often conflicted with the medical
type of beliefs which are associated with view and provided an insight into the effects of
adherence across studies, the findings show mismatch between the patients' representations
that certain cognitive variables included in the and those of their doctor. In a group of 50
Health Belief Model (HBM) (Janz & Becker, patients who had continued in treatment, 80%
1984) and Theory of Planned Behaviour (TPB) agreed with the statement that ªpeople cannot
(Ajzen, 1988) appear to be prerequisites of tell when their blood pressure is up.º However,
adherence in certain situations. For example, 92% believed that they could tell when their
beliefs that failure to take the treatment could own blood pressure was raised by monitoring
result in adverse consequences and that one is symptoms such as tiredness, headache, and
personally susceptible to these effects tend to be stress. Patients who believed their anti hyper-
associated with higher adherence (Cummings, tensive medication improved symptoms were
Becker, Kirscht, & Levin, 1981; Kelly, Mamon, more likely to take it. A striking example of this
& Scott, 1987; Nelson, Stason, Neutra, Solo- was provided by five out of 17 patients who
man, & McArdle, 1978). Perceived severity of believed that their medication affected symp-
anxiety has also been found to be related to toms. These patients took their antihypertensive
adherence to recommended practice of relaxa- medication only when they judged their blood
tion training at home (Bennett & Millard, 1985). pressure to be raised. The patients had under-
Additionally, adherence decisions may be stood and accepted the abstract medical view of
influenced by a cost-benefit analysis in which hypertension as an asymptomatic condition but
the benefits of treatment are weighted against their concrete experience or symptoms caused
the perceived barriers (Brownlee-Duffeck et al., them to hold contrasting beliefs and to behave
1987; Cummings et al., 1981; Nelson et al., according to these.
1978). Other studies, based on the TPB, have Illness perceptions have been linked with a
shown that the perceived views of significant range of adherence-related behaviors other than
others such as family, friends, and doctors the use of medicines. These include various self-
normative beliefs may also influence adherence management behaviors, such as dietary control
(Cochrane & Gitlin, 1988; Reid & Christensen, and blood glucose testing in diabetes, attending
1988). Several studies have demonstrated the rehabilitation, and the adoption of various life-
value of interventions based on the HBM in style changes following myocardial infarction.
facilitating health-related behaviors, such as A study of noninsulin dependent diabetic
attending for medical check-ups (Haefner & patients, has shown that personal models of
Kirscht, 1970), or using emergency-care facil- diabetes are related to dietary self-management
ities in an acute asthma attack (Jones, Jones, & and to exercise adherence but not to the more
Katz, 1987). medical aspects of control, such as blood
Another cognitive approach which has been glucose testing and taking medication (Hamp-
used to explain nonadherence is the self- son, 1997). Similarly, in a prospective study of
regulatory model outlined at the beginning of patients following first-time myocardial infarc-
this chapter. This model also acknowledges the tions (MI), Petrie et al. (1996) have found that
importance of symptom perception in influen- specific illness perceptions are predictive of
cing illness representations and adherence as a different post-MI behaviors. They found that
98 Health Care

attendance at rehabilitation, which is prescribed reported greater adherence to medication regi-


for all patients, was predicted by the strength of men (Horne, 1997).
their belief in the cure/control of their MI
whereas return to work depended more on the
extent to which the patient saw their MI as 8.03.4.3.4 Consultation outcomes: an overview
having less serious consequences The cognitive, affective, and behavioral out-
In addition to studies of the role of illness comes of the consultation are very closely linked
beliefs, there is a small body of work which has and can influence each other. Patient satisfac-
examined people's beliefs about medicines and tion, understanding, and beliefs can play a
the ways in which these could influence major role in influencing adherence with
adherence (Britten, 1994; Conrad, 1985; Do- treatment or advice, which is obviously im-
novan & Blake, 1992; Morgan & Watkins, portant in situations where nonadherence
1988). The negative beliefs about medicines results in adverse health consequences. Since
identified in these studies appear to be common there is evidence of high levels of nonadherence,
across several illness and cultural groups and this can clearly affect other outcomes including
include worries about the potentially harmful health and well-being. The latter have not often
effects of medicines and about long-term been studied as communication outcomes but
dependence on them. However, there are only there are a number of studies which demon-
a few studies which have assessed medication strate positive effects on patients' health and
beliefs quantitatively and they have used well-being arising from positive experiences in
different questionnaires or have investigated medical consultations (Stewart, 1995). These
medication beliefs in the broader context of have focused on psychological states such as
views about the practice of medicine (Echabe, anxiety as well as changes in specific physical
Guillen, & Ozamiz, 1992; Marteau, 1990). Some variables such as blood pressure and blood
studies have assessed peoples' ideas about glucose control. Some of the most impressive
medicines in general, whereas others have findings here have been found in the patient-
focused on specific medication prescribed for intervention studies, which are described below.
a particular illness.
Research by Horne (1997) indicates that four
ªcore-themesº or factors underlie commonly 8.03.4.4 Improving Health-care Communication
held beliefs about medicines. Factor analysis of
a pool of belief statements revealed two broad In addition to increasing our understanding
factors describing peoples' beliefs about their of health-care communication and its central
prescribed medicines: their perceived necessity role in health-care delivery, some research
for maintaining health (specific-necessity) and findings have also provided insights for devel-
concerns based on beliefs about the potential for oping interventions to improve the quality of
dependence or harmful long-term effects and communication. The majority of these have
that medication taking is disruptive (specific been aimed at improving the communication
concerns). Two factors were also found to skills of health-care students or practitioners at
describe peoples' beliefs about medicines in various stages of training but a few have been
general. The first relates to the intrinsic proper- targeted at patients, to enable them to get the
ties of medicines and the extent to which they most from a consultation. Both types of
are harmful, addictive substances (general- intervention approach will be outlined.
harm) and the second factor comprises views Communication skills training is now re-
about whether medicines are overused by garded as a fundamental part of the curriculum
doctors (general-overuse). for medical, nursing, and other health-care
Peoples' views about the specific medication students but this varies considerably in terms
regimen prescribed for them were found to be of the amount and type of teaching and the stage
much more strongly related to adherence at which it is taught. Typically, students are
reports than are more general views about provided with an overview of the basic skills of
medicines as a whole. Moreover, an interplay ªactiveº listening which facilitate patient com-
was found between concerns and necessity munication. At a basic level these include the
beliefs which suggests that people engage in a importance of developing good rapport and the
risk-benefit analysis and consequently attempt use of open-ended questions early in the
to moderate the perceived potential for harm by consultation, appropriate eye-contact and other
taking less. Patients with stronger concerns facilitatory responses to help the patient talk,
based on beliefs about the potential for long- together with the ability to summarize and arrive
term effects and dependence reported lower at a shared understanding of the patients'
adherence rates, whilst those with stronger problem. These skills can be taught in a number
beliefs in the necessity of their medication of ways but the successful courses inevitably
Health-care Professional±Patient Communication 99

involve active learning, using role-plays with proceed at their own pace and allowing
simulated patients, as well as real patient information to be assimilated. The other key
interviews (see Kendrick, 1997; McManus, skills involve developing the ability to recognise
Vincent, Thom, & Kidd, 1993). Feedback is distress and allow this to be expressed without
important to identify problem areas as well as feeling discomfort or providing unrealistic
indicators for improvement, and increasing use reassurance (Maguire, 1997).
is made of videotape for this purpose. There There is growing evidence that the way bad
is consistent evidence that this type of training news is presented to patients can have major
can result in clear improvements in basic effects on the patient's perception of their
communication skills which are maintained condition and on subsequent coping and
for a number of years (Maguire, Fairburn, & adjustment (Fallowfield, Hall, Maguire, &
Fletcher, 1986). Baum, 1990). Effective training of health-care
In addition to these basic packages, it is also professionals in this area can have significant
necessary for health-care students to learn how effects on the quality of health care for patients
to communicate about sensitive or difficult with serious or terminal conditions. In addition
areas of clinical practice, including dealing with to improving the HCP's communication skills,
distressed patients or relatives and giving ªbad there is also considerable scope for providing
news.º Research in this area, using tape- patients with more useful information, includ-
recorded consultations, has shown that doctors ing tape-recordings of their consultations.
tend to give detailed information rather than Since the 1980s, there have been a number of
find out and respond to patients' concerns and interesting interventions aimed at patients.
informational needs. As Maguire (1997) notes, Generally, these have involved interventions
this avoidance of patients' worries can have for patients prior to a consultation in order to
negative effects in the short and longer term. An increase their level of participation, particularly
immediate consequence is that patients may to ensure that their own concerns are dealt with
remain preoccupied with their own concerns and that information provided by the doctor is
and fail to take in information or advice. They clearly understood. A successful development of
may also selectively attend to negative phrases this approach can be seen in the work of
or messages and be unresponsive or misconstrue Greenfield, Kaplan, and Ware (1985) who used
more positive or neutral information. Maguire a preconsultation intervention lasting 20 min-
(1997) provides the example of a surgeon who utes for hospital outpatients who were helped to
informs a recently diagnosed cancer patient that identify their main questions and encouraged to
radiotherapy will be given ªto mop up any ask these in the consultation. Compared with
residual cells,º and then adds ªI am sure that we control patients, these patients participated
will eradicate your cancer.º When questioned more actively in the consultation and this was
afterwards, the patient only recalled the phrase also associated with better long-term health
ªresidual cellsº and became very distressed since outcomes, including lowered blood pressure in
she thought that this meant that the cancer hypertensives and better glycaemic control in
would spread through her body. diabetic patients. These interventions can be
There were are various reasons why doctors quite time-consuming and a number of re-
and other health-care professionals may be poor searchers have explored the possible efficacy of
at ªbad newsº communication and these include simpler patient-based interventions, such as the
lack of training, fears about the effects of use of preparatory leaflets (e.g., McCann &
exploring patients concerns, lack of support, Weinman, 1996), but these have not shown such
and a desire to protect their own emotional well- significant effects in changing the process or
being. Some of the training packages which outcome of consultations.
have been developed have taken these factors Finally, mention should be made of two
into account and provide sufficient time for the specific patient-based approaches which have
learners to explore and get feedback on different been very successful. The first by Ley and
strategies, using role-play situations. Many of colleagues (see Ley, 1988) involved hospital
the component skills are those which are part of patients and an additional short visit which
any communication training package, such as allowed them to ask for any information to be
those outlined earlier in this section. The key clarified. Compared with control groups, these
first step is to ensure that this communication patients had a much higher level of satisfaction
takes place in an appropriate environment and with communication, indicating that effective
needs to start with the patient, exploring what interventions need not be of complex or time-
they have been told and what they think and feel consuming. Hogbin and Fallowfield (1989)
about their condition. If will often be necessary describe another simple intervention which
to take time to provide the patient with the consisted of making a tape-recording of the
information which they want, letting patients ªbad newsº consultation and allowing patients
100 Health Care

to take away and keep the tape. Since this type been identified. The psychological reactions
of consultation is often very distressing, patients which are described may reflect not only a
may often find it very difficult to take in all the response to hospitalization but also to the illness
information. Thus, it was found that patients itself.
welcomed the use of these tapes as something
which they could go back to and which others
8.03.5.1.1 Physical and social environment
could also listen to.
The importance of providing patients with One obvious feature of hospital life which
access to information in various forms, which involves a considerable change for the patient is
can be discussed and shared with family and the physical environment. Although a number
friends, is very pertinent in this area of health. In of studies have demonstrated positive and
this respect it is interesting to note the negative effects of the built environment on
development of patient support groups and psychological well-being and health (Spencer &
information exchanges using the ªinternetº Baum, 1997), there are relatively few studies
(Davison & Pennebaker, 1997). Providing which have directly investigated how the
patients with access to others with similar or physical environment of the hospital affects
related medical conditions may result in very the patient's condition. The hospital environ-
important gains in communication. For exam- ment has been identified as one of a range of
ple, patients may be able to locate and stressors which people experience in hospital
communicate with others who have very similar (Koenig, George, Stangl, & Tweed, 1995). Even
experiences and circumstances, which may not such factors as the nature of the view from the
only have a supportive function but may also patient's bed have been found to affect recovery.
provide ways of sharing and coping with many For example, Ulrich (1984) found that patients
of the problems which are experienced. with a window view of trees had a better
postoperative recovery (i.e., fewer complica-
tions, less analgesia, better adaptation, shorter
8.03.5 HEALTH CARE IN HOSPITALS length of stay) than patients recovering from the
same type of surgery but whose hospital window
This section of the chapter will focus on a
looked out on to a brick wall.
range of psychological aspects of health care in
The hospital environment is frequently seen
hospital settings. It begins with a general
to be drab, clinical, impersonal, and cold by
consideration of the psychological consequences
patients. Whereas in the outside world the
of admission to hospital and is followed by a
individual operates with a strong sense of
brief outline of some of the psychological
personal space, which is the amount of space
problems associated with the hospitalization
necessary for optimal social behavior, in
of younger children. Then there is a selective
hospital this space is being constantly invaded
overview of particular hospital treatments such
as part of the daily routine. The daily routine
as intensive care and haemodialysis which can
itself is one which is very likely to be very
produce specific emotional reactions due to the
different from life at home and therefore may
limitations and demands they impose on
require considerable adjustment. It is not
patients. Similarly, many medical procedures
therefore surprising to find that studies, which
are found to be painful or distressing and a
have compared home-treated and hospitalized
number of psychological interventions, which
patients with the same condition, have shown
have been devised to help patients cope with
less psychosocial distress in those remaining at
these, are outlined in the final part of this section.
home (e.g., Oldenburg, Macdonald, & Perkins,
1988).
8.03.5.1 Psychological Effects of Enforced life-style changes have also been
Hospitalization identified as a key hospital-based stressor in the
Hospital Stress Index (Koenig et al., 1995).
Hospital patients vary in many ways includ- Admission to hospital removes individuals from
ing their age, personality, and social circum- a familiar, well-ordered world and places them
stances, as well as in the severity of their health in an environment which is different in every
problems and the duration of their stay. Also, respect. In hospital they are likely to be totally
their experience in hospital will vary greatly and dependent on others for most basic functions
this inevitably means that there are difficulties such as washing and feeding. Usually they will
in attempting a general discussion of the impact be restricted to one place, surrounded by totally
of hospital admission. Some specific issues new people, whose skills are now of vital
concerning children are presented separately importance to them, and it is significant that
but the following account is intended to convey developing good relations with hospital staff is
some of the more general factors which have not only an important factor in adaptation to
Health Care in Hospitals 101

hospital life but can also be a potential source of unwilling to ask for information. The diffidence
stress for patients (Koenig et al.). Other hospital which seems to underlie patients' reluctance to
stressors which have been identified by an older complain or ask for information has been the
measure, the Hospital Stress Rating Scale subject of psychological study and it would
(Volicer & Bohannon, 1975), include worries appear that patients enter hospital with ideas
about aspects of communication with staff as about how they should behave. Lorber (1975)
well as concerns about investigations and has identified three categories of patient which
treatment, which are discussed in more detail she labeled ªgood patientsº (about 50% of her
below. sample), ªaverage patientsº (about 25%), and
On the positive side, studies by Kulik and ªbad patientsº (about 25%) on the basis of the
Mahler (1987) and Kulik, Mahler, and Moore ratings of their medical staff. Patients who were
(1996) have demonstrated the importance of labeled ªgoodº were ones who had straightfor-
social contact in the recovery of patients ward medical problems, were uncomplaining
following surgery. These studies have focused and docile, who took up minimal staff time, and
on the effects of having a preoperative room- showed uncomplicated recovery. The ªaverageº
mate on the anxiety and recovery of surgical group were rather similar except they had some
patients. In the early study they compared the problems, but these were manageable. The
effects of sharing a room either with a patient ªbadº group consisted either of patients with
who was also about to undergo cardiac surgery serious conditions or those without serious
or with one who had already had the same conditions but who complained and put extra
operation. The results showed clear beneficial demands on the staff as a result.
effects of sharing a room with someone who was Interestingly, these patterns of behavior could
recovering from surgery. The patients who had be detected from interviews with patients about
postsurgical room-mates were less anxious prior their views of the patient's role at the time of their
to surgery, engaged in more postsurgical admission. Thus, it would appear that many
physical activity, and were discharged sooner patients enter hospital with the expectation of
(Kulik & Mahler, 1987). In a more recent being in a relatively passive role and the pattern
variation on this study, two further variables of life in hospital actually reinforces this,
were investigated, namely having a room-mate sometimes to the point of helplessness. Taylor
or being on ones own and having a room-mate (1979) describes how helplessness can develop
who was about to undergo or had gone through when questions go unanswered and desires for
same type of operation. In addition to replicat- attention are not met. As a result ªgoodº patient
ing the earlier findings with respect to the behavior may actually be detrimental to recov-
advantage of sharing with a postsurgical ery since it prevents patients from taking an
patient, it was also found that it was advanta- active role in their health care. Moreover ªbadº
geous to share with a postsurgical patient who patient behavior can be seen as a reaction against
had undergone the same type of surgery and helplessness and an attempt to gain a degree of
that those who were in rooms on their own had control, and hence could be thought of as a
the slowest recovery (Kulik et al., 1996). healthier response.
Fortunately, these problems do not appear to
be insurmountable. For example, Ley, Brad-
8.03.5.1.2 Communication in hospital
shaw, Kincey, and Atherton (1976) conducted a
In addition to the general stresses associated study of hospital patients on three wards of a
with hospital admission, some of the fear and general hospital. In one ward there was an extra
anxiety which is found in many hospital patients visit made to patients every 10 days, in which
may stem from the uncertainty and lack of attempts were made to ensure that they had
information which they may have about the understood what they had been told. These
nature of their illness and its treatment and visits were relatively brief and only concerned
prognosis. There are a number of studies of with clarifying existing information rather than
hospital patients which show clearly that they raising new issues. The second ward essentially
are greatly dissatisfied with the communications comprised a control group, who received an
aspect of hospital life (e.g., Ley, 1972). These extra visit to discuss their welfare, food, and so
studies indicate that about 40±50 % of hospital on and not to clarify information. Patients in the
patients are critical of the communication third ward in the study received no extra visits.
aspects of their stay. Many of the communica- The results showed that 80% of patients who
tion problems which were discussed in the had received the informational visit were
earlier part of this chapter (see Section 8.03.3) satisfied with the communication received,
are also seen in hospital settings. which was approximately twice the level of
There is also evidence that hospital patients satisfaction with communication found in the
are often diffident in this respect and are other two groups.
102 Health Care

In addition to these general psychological put forward and, to some extent, implemented
impacts of hospitalization, there may be specific to allow greater access by parents to their
problems or demands which occur either as the hospitalized children. These have included
result of the particular health problems or the increased flexibility in visiting arrangements
type of treatment which the patient has to as well as a greater provision of overnight
undergo. An example of the way in which the accommodation for parents.
patient's health problem may influence their Adaptation to hospital life will depend
experience of hospital care can be seen in some greatly on the age and personality of the child
of the studies of patients with AIDS who may as well as on the family and their reaction to the
experience negative attitudes from staff or other child, to disease, and to hospitals. When they
patients. These negative attitudes are closely occur, emotional problems in hospital are much
linked with the blaming attributions which staff more prevalent in younger children, particularly
or patients may have for the cause of AIDS. In a up to and around the age of four. Older children
survey of 270 AIDS patients being treated in are more amenable to explanation and are
either special care units or integrated in more usually less distressed by separation from home
general hospital settings, specific stresses were and by being surrounded by strangers. A more
reported by those in the integrated units (Van extensive discussion of children's responses to
Servellen, Lewis, & Leake, 1990). Whereas both health issues and health care can be found in
groups were bothered by the same range of Chapter 8.27.
general stressors identified above, particularly There are a number of specific psychological
loss of independence, separation from loved problems associated with the hospitalization of
ones, and problems with medicines, those who children. The problems would appear to stem
were in integrated settings more frequently from three sources:
experienced and were upset by factors asso- (i) The social separations and disruptions
ciated with ambiguity about their care and their incurred by admission to hospital;
medical condition. Moreover, these patients (ii) The emotional response to the clinical
also reported higher levels of stress associated problem; and
with feelings of abandonment and impersonal (iii) The lack of preparation for hospital life
or discriminatory treatment. A number of and the investigations and treatments to be
studies of HCPs have revealed evidence that carried out.
their attributions of patient blame for their The more long-term effects of hospitalization
condition can have direct influences on their on children suggest that some of the traumatic
attitudes to the care of the patient as well as their effects reported in early studies may have been
approach to and involvement with them. overstated. Follow-up studies of hospitalized
Broadly, it has been shown that where staff children indicate that serious problems are only
see patients as instrumental in having brought found in children who had psychological pro-
about their own condition through their own blems prior to admission or who come from
behavior or neglect, then they may be less difficult families (La Greca & Stone, 1985).
committed, motivated, and sympathetic to- Studies of preparation of children for hospita-
wards them (Marteau & Riordan, 1992). lization also show that different types of pre-
paration appear to be suitable for children of
different ages and with different amounts of
8.03.5.2 Children in Hospital prior experience (see Schmidt, 1997 for an
overview).
In many countries approaching 50% of
children will have spent a period of time in
hospital and for those with chronic conditions 8.03.5.3 Psychological Aspects of Specific
many have to spend longer periods or visit Hospital Treatments
repeatedly over a number of years. There is
evidence that children's reactions to illness and In the same way that physical illness imposes
hospital treatment can be quite distinct and that physical and social limitations on the individual
the psychological and social consequences of which can give rise to psychological reactions,
separation from home can produce quite some treatments are also very restricting and
specific problems. Older studies of the emo- have been found to cause emotional and
tional reactions of children to hospital (e.g., behavioral changes. In particular, a number
Illingworth & Holt, 1955) showed that admis- of studies have been made of patients in specific
sion to hospital was often very distressing for treatment settings such as intensive care units
them, particularly the younger ones, but the (ICUs), coronary care units (CCUs), and
situation has improved over the years. Since haemodialysis. Although these treatment en-
that time various recommendations have been vironments can give rise to specific stressors,
Health Care in Hospitals 103

they also offer challenging opportunities for recovery of patients in CCUs. Using a self-
psychological interventions. regulatory framework, one study has shown
Experimental work with healthy volunteers that patients with myocardial infarction have
has shown that long periods of sensory clear beliefs about the cause, timeline, con-
deprivation or sensory overload will often give sequences, and controllability of their heart
rise to a state characterized by increased condition during the acute phase of their
wakefulness, disorientation, and visual halluci- hospital stay in the CCU. Moreover, these
nations (Goldberger, 1982) These states have beliefs appear to be associated with subsequent
also been found in some patients who are being attendance at cardiac rehabilitation and with
treated in ICUs since they may be exposed to later adaptive changes, such as return to work
long periods of sensory deprivation produced and social functioning (Petrie et al., 1996). In
by monotony and immobilization, sometimes addition to these cognitive processes, there is
interrupted by periods of overstimulation, as also good evidence that patients' mood states at
well as sleep deprivation. It is claimed that the the early stages of recovery are related to longer-
observed ªICU psychosisº is the result of all term physical and psychological well-being
these factors on an individual who is already (Frasure-Smith, Lesperance, & Talajie, 1995)
fearful of his or her life because of a serious and there is now increased awareness of the
physical illness. Fortunately, these dramatic ways in which appropriate care during the
psychological responses gradually disappear hospitalization phase of treatment can promote
when normal amounts of sensory stimuli and adaptive coping and recovery (see Bennett,
sleep are restored by returning the patient to a 1994).
normal hospital environment. More important, In contrast to the acute psychological
these changes can be avoided if the ICU restrictions and demands of intensive or
contains a more varied sensory environment coronary care, some patients are subject to
and with good contact with visitors and staff. much more chronic restrictions as part of their
For example, Keep, James, and Inman (1980) treatment. Many patients with renal failure are
have compared patients in ICUs with and required to spend a considerable amount of time
without windows, and found that those in the on renal dialysis machines, either in hospital or
windowless units were less well oriented during at home. These patients have a uniquely
their stay and had a less accurate recall of their dependent relationship not only on their dialysis
length of stay afterwards. In addition to these machine but also with the staff involved in their
general problems associated with the ICU, treatment. Dialysis can have major effects on an
other studies have assessed the degree of stress individual's psychological and social function-
experienced by patients, staff, and visitors. For ing, particularly giving rise to vocational
example, in a study of a surgical ICU, patients impairment, reduced sexual activity, and mood
rated their level of stress from a wide range of changes (Oldenburg et al., 1988). In addition to
events which occurred (Pennock, Crawshaw, the physical limitations and demands of
Maher, Prue, & Kaplan, 1994). The ratings were dialysis, the patients are also faced with the
made shortly after their transfer from the ICU need to adhere to strict recommendations
and indicated relatively minimal distress asso- regarding diet and fluid consumption, as well
ciated with many events with exception of being as complex medication regimens. Nonadher-
intubated and not being able to communicate. ence can be a key issue in renal failure and the
For patients' relatives there is evidence that they range of adherence-related factors outlined in
find the time spent by the patient on life support an earlier section are very pertinent for patients
in the ICU particularly worrying. During this on dialysis.
time they experience considerable fear and One finding which emerges from studies of
uncertainty but this can be resolved by seeking patients on renal dialysis is that psychological
information and the use of other resources dysfunction at an early stage is a predictor of
(Jamerson et al., 1996). For staff working in this longer-term adjustment. This means that it is
climate, it is assumed that greater levels of work- not only vital that good psychological care is
related stress will be experienced, compared available during hospital treatment but also that
with other hospital personnel. However, the ªat riskº individuals can and should be
evidence on this is ambiguous and some studies identified at an early stage in order to anticipate
have shown that ICU staff show a more positive later difficulties. It is noteworthy that compara-
attitude to their work and work environment tive studies of patients on hospital or home-
than equivalent non-ICU staff (Boumans & based dialysis show that the home-treated
Landerweerd, 1994). individuals show much less social dysfunction
In the context of coronary care, a number of (Oldenburg et al., 1988). Part of this may well
studies have identified possible areas for reflect the patient selection criteria for hospital
psychological intervention in facilitating the and home dialysis, with more ªproblematicº
104 Health Care

patients tending to be treated in the hospital discomfort and anxiety. These include specific
setting. However, part of this may also reflect investigative procedures such as barium X-rays
the additional negative effects of hospitaliza- (Allan & Armstrong, 1984), endoscopy (John-
tion, outlined earlier, superimposed on the son, Morrissey, & Leventhal, 1973), and cardiac
specific limitations and demands of dialysis. catheterization (Kendall et al., 1979) which may
The most commonly reported psychological not only be uncomfortable and sometimes
difficulties found in patients on renal dialysis physically distressing but which also carry the
are depression and anxiety but the extent of this threat of uncovering a serious medical condition
is unclear. There is a range in the reported (Weinman & Johnston, 1988). The other
prevalence of depression from 10±100% (Levy, obvious ªeventº in hospital which has been
1994) and this variation is partly due to the found to produce significant psychological
different criteria and measures used (see Kaplan effects is surgery. The psychological impact of
De-Nour, 1994). Another reason stems from the surgery will partly depend on the procedure, the
similarities between the physical effects of renal condition, and the likely outcome as well as on
failure, such as fatigue, apathy, and sleep such psychological factors as the patient's
difficulties, and the symptoms of depression. expectations and coping style and the quality
Despite these methodological problems, there of communication.
do appear to be a number of aspects of dialysis The way in which a patient reacts to a medical
which can give rise to psychological distress. procedure can also have a significant influence
For example, Devins, Binck, Hollomby, Barre, on the outcome, particularly in recovery from
and Guttman (1981) have identified the con- surgery. Patients who show the highest pre-
stant threat of death, dependence on the dialysis surgical levels of stress response will also tend to
machine, medical staff, and the stringent dietary experience adverse psychological reactions
and liquid restrictions as key factors in the postsurgically and will be more likely to show
widespread feelings of helplessness and lack of poorer physical recovery (Johnston, 1986).
control. Patients' perceptions of control over These patients have been found to request more
their treatment have been found to interact with analgesia, show more postsurgical complica-
treatment experiences and illness severity in tions, and tend to recover more slowly with
determining mood outcomes (Christensen, delays in discharge, as compared with less
Turner, Smith, Holman, & Gregory, 1991). A anxious or stressed patients.
belief that one's health is subject to personal
control has been found to be associated with
lower levels of depression in people who had 8.03.5.5 Psychological Interventions for
only been treated by dialysis whereas, for those Stressful Medical Procedures
who had returned to dialysis following a failed
kidney transplant, higher control beliefs over Since studies have shown a relation between
health were associated with greater depression. patients' psychological state and their recovery,
In line with self-regulatory theory, patients it has been recognized that there could be
representations of their kidney disease, includ- considerable gains from providing a psycholo-
ing their control perceptions, would be expected gical intervention designed to reduce or mini-
to influence coping and other outcomes, mize the psychological impact of a medical
including treatment adherence (Horne & Wein- procedure. There is a range of interventions
man, 1994). Studies by Christensen, Benotsch, which have been used to prepare patients for
Wiebe, and Lawton (1995) have demonstrated surgery or other stressful procedures in the
that problem-focused types of coping were hospital setting. In broad terms, they can help
associated with better adherence to fluid intake by providing the patient with information to
restrictions when these coping strategies were reduce the uncertainty of the event, or with
used in response to stressors arising from a specific behavioral or cognitive skills to help
relatively controllable aspect of dialysis. For with some of the discomfort or pain Mathews
those stressors which patients perceived as less and Ridgeway (1984) have provided a clear
controllable, emotion-focused coping strategies overview of the various preparations and these
were associated with better levels of adherence. are summarised in Table 2.
Procedural information is probably the most
widely used approach and consists of providing
8.03.5.4 Stressful Medical Procedures in information about the various procedures which
Hospital will take place before and after the operation. In
short, it involves a description of what will be
In addition to the generally stressful effects of done to the patient at different stages pre- and
hospital admission, there is a range of medical postoperatively. Sometimes this information is
procedures which can give rise to considerable also accompanied by an explanation of the
Health Care in Hospitals 105

purpose of each of the procedures which are shown dealing with the task with ease and
described. Thus, it provides the patient with a ability, and (ii) coping models who are shown as
map of the events which will occur and, in doing having some anticipated concerns but who
so, can reduce the uncertainty of the whole nevertheless are able to overcome these and
process. cope with the procedure. The coping type of
Sensory information describes what patients model has been found to be a more effective
are likely to feel, particularly during the preparation for children undergoing surgery.
immediate postoperative pain period. The For example, in a study of children about to be
important point here is to provide matter of innoculated, Vernon (1974) has compared a
fact or benign interpretations of the sensations group of children who saw a preparatory film
so that the patient can recognize them as part of which was realistic (the child in the film is seen
the expected postoperative process. Thus, the to experience short-lived, moderate pain and
patient who can recognize postoperative pain as emotion) with a group who saw an unrealistic
an expected sensation caused by the incision and film (no pain or emotional expression) and a
reflecting the healing process will be far less group who saw no preparatory film. The
likely to be distressed than someone who has not realistically prepared group were found to
been prepared for the pain and who may think experience least pain when receiving their
of it as problem or a complication of the injections. These methods have been more
surgery. widely used with children than with adults,
Contrada, Leventhal, and Anderson (1994) particularly since it may be difficult to provide
have outlined an interpretation of the benefits of children with sensory or procedural informa-
sensory and procedural information from the tion or behavioral instructions in a meaningful
perspective of the self-regulatory model. They way.
view the sensory preparation as providing a Relaxation-based interventions can involve a
script which describes internal sensations and number of different techniques. These may
the procedural preparation as a script providing involve the use of deep breathing, progressive
the objective external events involved in muscle relaxation, or, less frequently, hypnosis.
surgery. They maintain that it is the availability Relaxation can be used both to provide a
of the script which reduces uncertainty and general preparation involving anxiety-reduc-
worry for the patient. More specifically, tion and to give a specific skill which can be used
Leventhal (1985) has argued that sensory postoperatively for dealing with pain or
information should be particularly helpful since discomfort.
it focuses on potentially threatening sensations Cognitive coping procedures focus on pa-
(e.g., pain, discomfort) with the aim of ensuring tients' concerns and fears about the surgery and
that these are processed as nonthreatening or provide ways of dealing with them in one of two
less threatening. However, evidence on the ways. First, they may make use of coping
efficacy of both types of preparatory informa- strategies which the patient has used success-
tion indicates that procedural information is at fully in the past for dealing with stressors,
least, if not more, effective in producing enabling the patient to rehearse and apply these
favorable outcomes (Johnston & Vogele, in the surgical context (Langer, James, &
1993, see below). Wolfer, 1975). The second cognitive approach
Behavioral instructions are also commonly involves dealing with negative thoughts by
provided and describe different behaviors which distracting attention from them and by focusing
will help before, during, and after surgery. on positive aspects of the surgery and repeating
These include instructions about ways to cough positive self-statements (Ridgeway & Mathews,
and move in bed which will reduce the 1982).
likelihood of pain associated with these move- The efficacy of these interventions has been
ments. Other behavioral instructions such as evaluated by examining their effects on a range
deep breathing and ambulation exercises may of postsurgical outcomes, including anxiety,
also reduce the incidence of pain or complica- pain, and use of pain medication, length of stay
tions as well as facilitating recovery. in hospital, and various indicators of recovery.
Modeling is based on the use of filmed models All the interventions have been found to be
who can be seen undergoing the same procedure successful in improving at least one aspect of
as the patient. Following Bandura's social outcome and the majority have a positive
learning theory (Bandura, 1986), modeling or impact on many of the outcomes. The different
the observation of others completing a difficult interventions have been examined systemati-
or stressful task can serve to increase the cally in a meta-analysis by Johnston and Vogele
individual's sense of self-efficacy for managing (1993) and their findings will be outlined briefly.
the same task. Two main types of model have The largest recovery effects were obtained for
been investigated: (i) mastery models who are pain, negative affect, and physiological indices
106 Health Care

Table 2 Psychological preparations for stressful medical procedures.

Type of preparation Example

Procedural information ªAfter the operation, you will be taken to the recovery
room, where specialist staff will care for youº
Sensory information ªIt is normal to feel a sharp, burning sensation along the
line of the incisionº
Behavioral instructions ªYou should try to cough four times each morning and
afternoon/evening to keep your chest clearº
Modeling ªThis film shows someone like you coping with the
procedures that you will be experiencingº
Relaxation ªTry to breathe deeply and concentrate on relaxing the
muscles of your body whenever you feel tenseº
Cognitive coping ªYou say that you are worried about the anaesthesia.
Try to think of ways in which you could make those
thoughts more positiveº

Source: Mathews & Ridgeway (1984).

of recovery but there was considerable variation intervene effectively using relatively uncompli-
in the magnitude of these effects. Smaller but cated procedures. Moreover, there is now
more consistent advantages of psychological sufficient information about their efficacy to
preparation were found on pain medication and be confident in recommending that they should
length of hospital stay. The interventions which be included as routine components of standard
had the most widespead overall effects on all the medical and nursing care for all patients
outcomes were found to be procedural informa- undergoing surgery.
tion provision and behavioral instructions.
Relaxation was also found to have beneficial
8.03.6 CONCLUSION
effects on the various outcomes. Whereas
Mathews and Ridgeway (1984) had indicated The outline of psychological preparations for
that cognitive coping interventions were most surgery provides a very positive endpoint for
likely to have the greatest efficacy, the meta- this chapter. The development and success of
analysis results show that their effects appear to these procedures not only constitute very
be restricted to specific outcomes. Thus, concrete evidence of the importance and
cognitive interventions have been shown to contribution of psychological factors in health
have positive effects on negative affect, pain and care but also serves to link together some of the
use of pain medication, and clinical recovery but other main areas covered in this chapter. For
do not appear to result in shorter lengths of stay example, the preparations can have important
or in improved physiological indices or beha- effects on the way in which postsurgical
vioral recovery. Surprisingly, in view of the symptoms are interpreted and responded to
importance attached to patient evaluations of by patients. Indeed, the efficacy of the inter-
health care, only a few studies have examined ventions provides additional evidence of the
the effects of these interventions on patient role of self-regulatory processes and expecta-
satisfaction but these show quite positive tions in symptom perception since the provision
results, indicating that patients view them as of sensory information can provide the patient
acceptable and helpful. with a benign interpretation of predictable
In summary, there is considerable evidence to postsurgical symptoms. Moreover, it is clear
indicate that different types of psychological that whatever specific mode of intervention is
preparation can not only reduce the anxiety, used, each of them involves aspects of commu-
stress, and pain involved in many medical nication between the HCP and the patient.
procedures, but also that there are considerable At the beginning of this chapter a brief
related benefits (e.g., less analgesia, better mention was made of the variety of systems
recovery, faster discharge, etc.). Although the which have evolved for the delivery of health
above outline of approaches provided separate care in different countries. The psychological
descriptions of each, they can easily be used in processes and topics covered here are of equal
conjunction and often are. relevance across all these systems. It is notable
What is encouraging from the research and that Johnston and Vogele (1993) end their meta-
reviews of psychological preparation for sur- analysis with a similar observation since they
gery is that they show that it is possible to find that psychological preparations for surgery
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