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The NHS Confederation is the only independent All of our work is underpinned by our core values:
membership body for the full range of organisations
that make up today’s NHS. • ensuring we are member driven
• putting patients and the public first
We represent over 95 per cent of NHS organisations
as well as a growing number of independent • providing independent challenge
healthcare providers.
• creating dialogue and consensus.
Our ambition is a health system that delivers
first-class services and improved health for all. We
work with our members to ensure that we are an
independent driving force for positive change by:
ISBN: 978-1-85947-187-6
BOK60028
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Contents
Summary 2
Introduction 3
Conclusion 14
References 16
02
04 Feeling better? Improving patient experience in hospital
Summary
Introduction
The drive to deliver a good experience for all What we know works
patients is of course not a new concept within
the NHS. However, a commitment to making While there is no single path to improving
all experiences excellent is still not widespread patient experience, we know that the following
and change is sometimes slow. This is partly points all contribute:
due to strong incentives for hospital boards
to focus on other things. To date their focus • transformational leadership
has arguably been on delivering equity and • a clear vision
efficient systems, with the unspoken but widely
held beliefs that also providing good patient • desired values and behaviours embedded
experiences is ‘nice but not necessary’ or ‘nice across the whole organisation
but too expensive’. As a result the importance • engaged staff, patients, families and carers
and relevance of patient experience has been
consistently relegated, such that the recent • greater clinical engagement and professional
2010 Commonwealth Fund appraisal of empowerment
healthcare services in seven countries rated • a healing environment.
the UK seventh for patient-centred care.3
04
06 Feeling better? Improving patient experience in hospital
Royal Bolton Hospital NHS Foundation are embedded. In orthopaedics the lead
Trust – applying ‘lean’ thinking orthopaedic surgeon, matron, nurse ward
manager and senior therapist were all critical
Lean thinking is an improvement approach to sustaining the improvements
designed to improve flow, eliminate waste and • ensuring staff ‘own’ the system and
deliver what customers really value.15 Royal understand the benefits of it.
Bolton Hospital is using lean methodology
to become more effective at delivering what The impact
patients value and more efficient across the For orthopaedics the project has resulted in
patient journey.16 The trust has introduced the improved patient feedback (96 per cent of
Bolton Improving Care System (BICS) which has
patients reported their experience was good or
seen them use patient experience-based design.
excellent) as well as measurable improvements
in pain management and a 40 per cent
BICS has so far been trialled in orthopaedics,
reduction in delayed bed days.
stroke services, children and adolescent mental
health services, respiratory care, and accident
and emergency.
Cambridge University Hospitals
The approach NHS Foundation Trust – continuous
Initially trialled for orthopaedics, the team improvement
videoed patient interviews and identified
the emotional ‘touch points’ that were most Cambridge University Hospitals has a long
important to them. The films were then edited established programme of initiatives designed
into two main themes: ‘no needless pain’ and ‘no to improve the experiences of its patients.
feelings of helplessness’. The trust ran sessions It is committed to establishing a culture
for more than 200 staff where they watched whereby patient experience is seen as the
and commented on the videos. Staff then jointly responsibility of all hospital staff, rather than
worked with patients to come up with ideas to a top-down initiative that is done ‘to’ them.
improve the service and overall experience. Key features of their approach include a focus
on patient experience within their governance
In practice their approach has included:
arrangements and running an integrated patient
• being clear about aims and why improvements advice and liaison service (PALS) and complaints
are needed office, which is open seven days a week.
• understanding what is valuable to patients
The approach
by ‘looking through their eyes’. Techniques
The trust:
include using patient diaries, questionnaires,
interviews and focus groups • has 19 elected governors, including patients,
who run a number of different work streams
• understanding whether or not services are
(including one on quality and public
delivering what patients value
engagement)
• redesigning care if necessary
• runs in-house quarterly patient surveys –
• having line manager buy-in to ensure changes shortly after discharge the trust writes to
08
010 Feeling better? Improving patient experience in hospital
The driver diagram is also designed to help People working in healthcare tend to have
diagnose problems and support organisations come into the sector with compassionate and
to develop action plans. The full patient idealistic motives. Hearing that they might
experience driver diagram is available on our be at fault for providing a poor service to
website at www.nhsconfed.org/feelingbetter patients is painful information and there can
be a tendency to deny it. Some of the senior
Using the methodology of the IHI driver managers we interviewed for this report gave a
diagram the following key drivers for improving number of examples of basic assumptions from
patient experience emerge for the NHS: organisations they’d seen that had a culture of
providing poor patient experience, including:
Reaching all levels – leadership and culture
It is important that boards demonstrate ‘We have a difficult group of patients who’ll
that their organisation’s culture is focused complain even where the service is good.’
on patient-centred care and ensure the
momentum for change is sufficient to reach ‘A focus on patient experience is a luxury we
all levels of staff. Experience tells us that, even can’t afford in these hard times.’
with commitment at the organisational level
to improving patient experience, these policies Views such as these can be a significant
may not be evident at the front line.19 barrier to change and overcoming them is
critical. Frequently, such statements reflect
It is essential to pay attention to the culture the culture of the organisation, demonstrating
of an organisation at the front line. Focusing accepted behaviours within a trust. Similar
on workforce morale and developing a positive views are widely held across the NHS, and the
Feeling better? Improving patient experience in hospital 13
015
organisations whose case studies we have and work-related absenteeism are widely
outlined will have come across them. The reported.28
Patient-centered care improvement guide
examines and refutes ‘myths’ like these.23 Creating the right physical environment for
www.patient-centeredcare.org patients is a real challenge for the NHS with
its old and varied buildings. However, while
Engaging patients, families and carers the NHS is likely to struggle to fund major
Patients should have the opportunity to make improvements to its building stock over the
choices about their healthcare to a level they next few years, it is important to recognise
feel comfortable with. Many patients want that even small changes can have positive
to be a partner in their health, not simply a effects for both patients and staff. For example,
recipient of care,24 and the ‘no decision about introducing a simple and cheap message board
me without me’ ethos is a cornerstone of the for patients can positively impact on how they
Government’s health white paper1 published feel about their care in hospital.29 The Kissing it
in July 2010. However, it is equally important Better website has many examples of low-cost
to remember that not all patients want to changes which make a difference.
actively make choices about their healthcare, www.kissingitbetter.co.uk
with potentially around 60 per cent of people
favouring passive decision making.25 Implementing evidence-based care
Improving the implementation of evidence-
Engaging patients in decision-making about based changes in practice could dramatically
their healthcare is not always easy, even if improve people’s experience of the NHS and
there is organisational support and policies their health. Much is known about what
are in place to encourage active participation. constitutes high-quality healthcare but there
Multiple approaches are needed to help can be an enormous delay between realisation
engage differing and vulnerable groups. For and implementation across the NHS. While
example, challenging healthcare staff is less many research papers are published each year,
likely among surgical patients, men, patients implementing evidence-based care can take
with lower educational attainment and the up to 16 years before the majority of units
unemployed. In addition, the importance of adopt it.30
health literacy, with information and messages
tailored to the right level for an individual, Research from the USA in 2003 found that
needs to be considered every time.26 patients with long-term conditions only
received all the care they should have 53 per
Creating a healing environment cent of the time, with condition specific self-
The importance of the physical environment management education only shared effectively
to a patient’s emotional experience of their in 18 per cent of cases.31 There is evidence that
care is reported in many studies. This can times may be changing though. Adopting the
include the effect of sunlight, windows, World Health Organisation (WHO) Surgical
seating arrangements and odour.27 Also, the Safety Checklist, shown to decrease error by
effects of the environment and ergonomics 30 per cent, has been taken up widely across
on staff as measured through stress, fatigue the UK.32
14
016 Feeling better? Improving patient experience in hospital
Conclusion
The Government’s Equity and excellence: liberating no means the only examples of good practice.
the NHS1 white paper undoubtedly challenges However, given what we know about the benefits
the way staff and patients interact with the of delivering a great patient experience for both
NHS, with the proposed system set to support patients and providers alike, adopting whole
successful patient experience programmes. organisational approaches appears to be slow.
However, whether it will be the main driver for The challenge for organisations is not just to show
improvements in patient experience remains less that they can get care right once, but that they
clear. The emphasis must be on organisations can do it consistently time and again.
to take the lead in this arena to make excellent
patient experience a reality across the NHS. With a supportive national framework and greater
commitment from NHS organisations, we believe
This report offers ideas as to how this challenge the NHS has a real opportunity to improve how
can be met by hospitals and shows evidence patients experience care.
that it is possible to achieve a real difference
for patients, often using relatively low-cost
initiatives. It is clear that stand-alone projects will Further analysis
not effect change across a whole organisation.
Led from the top there needs to be a consistent, It is not only providers that can make a difference
joined-up approach involving both patients to patient experience. As a next step to this
and staff. It is also essential that governance report we recommend that the role of other
committees are committed to ensuring patients healthcare organisations be considered, including
have a good experience, as well as receiving safe the role of commissioners, regulators and
and effective care. education and training programmes.
There is no doubt there has been progress in For more information on this report, or to respond
improving patient experience in the NHS and to any of the issues raised, contact Clare Gorman,
the case studies we include in this report are by Policy Manager, at clare.gorman@nhsconfed.org.
Acknowledgements
This report was prepared by the NHS Confederation in partnership with Joanne Watson, a consultant
endocrinologist at Taunton and Somerset NHS Foundation Trust and the first clinical director of
patient experience in the UK. She is also the clinical director of the hospital pathway programme in
the Point of Care, King’s Fund.
We are very grateful to the NHS organisations that contributed case studies of their approach to
improving patient experience.
We would also like to thank the following people for their help in producing this report.
Mandy Wearne, Director of Service Experience, NHS North West
Hugh Ross, Director, Health Strategy Unit, NHS Wales
Professor Mike Cooke, Chief Executive, Nottingham Healthcare NHS Trust
Sally Brearley, Chair, Health Link and lay member, National Quality Board
Eileen Sills CBE, Chief Nurse/Chief Operating Officer, Guy’s and St Thomas’ NHS Foundation Trust
Feeling better? Improving patient experience in hospital 15
017
References
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excellence: liberating the NHS for the NHS
2. Lord Darzi (2008) High quality care for 16. Womack J P, Jones D T (1996) Lean
all: NHS next stage review final report. thinking. Simon and Schuster, New York
Department of Health
17. Berry L, Seltman K (2008) Management
3. Davis K, Schoen C, Stremikis K (2010) Mirror, lessons from Mayo Clinic, McGraw Hill,
mirror on the wall: how the performance New York
of the U.S. health care system compares
internationally, Update Commonwealth Fund 18. Balik B, Conway J, Zipperer L, Watson
J (2010) ‘The Patient and Family
4. Department of Health (2010) The NHS Experience’. IHI Innovation Series white
Constitution for England paper. Cambridge, Massachusetts:
5. Department of Health (2010) Transparency on Institute for Healthcare Improvement.
outcomes – a framework for the NHS (Available from Jan 2011) www.ihi.org
11. Picker Institute ‘What do patients want 22. Wilson AD, et al. ‘Interventions aimed
from healthcare?’, policy position at changing the length of primary care
www.pickereurope.org/101 physicians’ consultation’ Cochrane
Database 2006, Issue 1
12. DiGioia A 3rd, Greenhouse PK, Levison
TJ (2007) ‘Patient and family-centered 23. Frampton S, Guastello S, Brady C, Hale
collaborative care: an orthopaedic model’ M, Horowitz S, Bennett Smith S, Stone S
Clinical orthopaedics and related research, (2008) Patient-centered care improvement
Oct; vol 463, pp 13-9 guide Planetree Connecticut
13. Charmel PA, Frampton SB (2008) ‘Building 24. Department of Health (2008) What
the business case for patient-centered care’ matters to our patients, public and staff
Healthcare Financial Management March, vol
25. Wilkinson C, Khanji M, Cotter PE, Dunne O,
62(3), pp 80-5
O’Keeffe ST (2008) ‘Preferences of acutely
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26. Agency for Healthcare Research and Quality, 30. Balas E, Boren S (2000) Managing clinical
Literacy and Health Outcomes, 2004 knowledge for health care improvement
www.ahrq.gov/clinic/tp/littp.htm In: Bemmel J, McCray AT (eds) In Yearbook
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Feeling better? Improving patient
experience in hospital
Understanding and improving how patients The coalition Government is committed to improving
experience their care is a key component to patient experience and putting the patient at the heart
successfully delivering high-quality services that of everything the NHS does. Its health white paper,
are based on their needs. This report looks at what Equity and excellence: liberating the NHS’, published in
we know about improving patients’ experiences of July 2010, outlines plans to make patient experience
hospital care and shares the approaches of both a measurable outcome of care, along with a stronger
UK and USA hospital providers that have made focus on patients having a say about their healthcare
significant progress in providing services that are truly with a ‘no decision about me without me’ ethos.
patient-centred. It also details emerging evidence
that hospital boards can achieve better outcomes This new policy environment provides a strong
across their whole organisation when patient platform for ensuring that improving patients’
experience of care is a clear priority.
experience is a priority.