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was subsequently expanded in the works of interactional death. Such work is highly demanding and often stressful.
nurse theorists such as King (1981) and Paterson and Zderad The nurse–patient relationship goes beyond ‘sitting and
(1976). Recent writers continue to cite the importance of listening’ and ‘talking’, in which the patient is the object of
relationship development to balance the emphasis on techni- clinical attention or a subject manifesting psychosocial
cal skills (McQueen 2000, Chant et al. 2002). They have problems. Here, the patient not only wishes to speak, but is
emphasized that a capacity for forming relationships with also known to the nurse in an intimate and private way.
others is a key attribute of individuals. Because of the underlying structural inequality of relations
Hartrick (1997) has argued that the emphasis and reliance between nurse and patient, May has described the relation-
on mechanistic models of relating often results in failure by ship as in some way pastoral. The nurse expresses sympa-
nurses to realize the importance of relational capacities. thetic concern, while at the same time the patient reveals the
Hartrick has described five relational capacities: initiative, most private aspects of their life; the relationship is not
authenticity and responsibility; mutuality and synchrony; reciprocal. However, some patients prefer to detach them-
honouring complexity and ambiguity; intentionality in rela- selves from the situation. In such cases, they do not allow
ting; and re-imagining. Relational capacity embraces the nurses to become involved, which makes care more difficult
caring values of nursing and the primacy of relationships in as nurses are then unable to perceive how patients are feeling.
caring nursing practice. Hagerty and Patusky (2003) have In addition, when nurses take time to talk to patients and
provided an alternative framework for nurse–patient inter- meet their needs, they must then contend with other,
actions based on the theory of human-relatedness, which competing, work demands. In order to take time to talk,
consists of four states: relatedness-connection, disconnection, nurses may have to re-arrange other work or re-allocate staff.
enmeshment and parallelism. The four states are based on May has described how the nurse–patient relationship is
levels of involvement and comfort. imbued with a moral value, which is an investment that
Some studies have explored the nature and types of nurse– undercuts its status as paid labour.
patient relationships (May 1991, Morse 1991, Ramos 1992, Spross (1996) has emphasized that in palliative care,
Morse et al. 1997). Morse (1991) has commented that the primary interventions are interpersonal and that patients’
relationship between nurse and patient is the result of interplay subjective status is given ever greater priority. Spross has
or covert negotiations until a mutually satisfying relationship described the nurse–patient relationship as ‘one-sided inti-
is reached. She has also identified four types of mutual macy’. The nurse would always know more about the patient
relationship according to the duration of contact between than the patient would know about the nurse. She acknow-
nurse and patient, the needs of the patient, the commitment of ledges that the depth or intensity of this nurse–patient
the nurse and the patient’s willingness to trust the nurse. They relationship makes it like friendship. However, unlike
are: clinical relationship, therapeutic relationship, connected friendship, the relationship demands conscious use and
relationship and over-involved relationship. It is argued that interpretation of complex cognitive, affective, and beha-
the intensity of the negotiations depends upon the patient’s vioural knowledge to enable nurses to communicate deliber-
perception of the seriousness of the situation and the patient’s ately to achieve therapeutic goals. Spross further described
feeling of vulnerability and dependence. the central interpersonal process of nurse–patient relation-
Palliative care aims to promote the physical and psycho- ships as coaching. At the initial encounter, nurse and patient
social well-being of patients whose disease is no longer have entirely separate goals and interests. They have their
responding to curative treatment. In nurse–patient relation- own preconceptions of the meaning of the situation and the
ships, nursing work is directed at maintenance of the body roles of each in the encounter. The initial encounter between
rather than its restoration. Emotional and psychosocial them is that of strangers, and it is important for each to
distress are common as individuals confront the terminal accept the other person as they are and to treat them as an
phase of an illness and their impending death. One of the core emotionally able stranger. As they work together, they begin
elements of good palliative care is good nurse–patient to arrive at a mutual understanding of the situation and
relationships. The change of focus has the effect of reconfig- establish common goals that focus on the patient.
uring interactions between nurse and patient. Jones (1999) applied the concept of containment to analyse
During the process of dying, time is limited and the patient the nurse–patient relationship in palliative care. Containment
is vulnerable, making the patient–nurse relationship in was described as a process of projective identification. An
palliative settings an interesting area for exploration. May example of containment is an infant feeling assaulted by strong
(1995) highlighted the important role of nurses in helping feelings: because of being unable to ‘think’, the child empties
terminally ill patients to come to terms with the imminence of its feelings into the mother or a substitute (container).
476 2004 Blackwell Publishing Ltd, Journal of Advanced Nursing, 48(5), 475–483
Issues and innovations in nursing practice Nurse–patient relationships in palliative care
A mother who is able to ‘contain’ the feelings can refine and from tape-recorded interviews with 10 hospice nurses and 10
moderate them and so return them to the child in a more people with incurable cancer. There were 15 nurses working
comforting form. As a result, the child is calmed and feels a in the palliative unit; therefore, the participants represented
sense of order. In palliative care, nurses allow dying patients to 66% of these nurses. The patient participants were those
assign their anxiety, appropriately to nurses, who in turn help receiving palliative care services in the hospital or at home.
the person to tolerate distress through the containing process. There were a total of 110 such patients; hence, the partic-
ipants represented around 9%. Each interview lasted from
1 to 2 hours. Observational notes were written immediately
The study
after each interview, and then added to the transcript data.
Interviews with nurse informants lasted around 1Æ5–2 hours
Aim
and were conducted in the interview room of the palliative
This aim of the study was to explore the nurse–patient care unit. Nine interviews with patient informants were
relationship in the context of palliative care. The paper conducted in their homes and one was conducted in the ward.
specifically focuses on several dimensions of this relationship,
including its context, relational qualities and patients’ and
Interviews
nurses’ interpretations and meanings of the relationship.
Open-ended, unstructured interviews were conducted. The
interviews with patients started with the question, ‘Can you
Design
tell me about how you have experienced your illness and
Phenomenology offers an approach to researching the com- about your relationship with your nurse?’ Those with nurses
plex world of human experiences and accommodates non- started with the question, ‘Can you tell me about how you
empirical data such as values, beliefs and feelings. Van experience caring for patients with incurable cancer and
Manen’s phenomenological approach was used to guide the about your relationships with your patients? I am particularly
hermeneutic investigating process in this study because his concerned with what this relationship is like for you’. Van
methodology is interpretative, open to innovation and Manen (1990) noted that the art of a hermeneutic interview is
emphasizes dialogue through self-reflection. It consists of a to keep the meaning of the phenomenon open and to go on
dynamic interplay among the following research activities: asking questions. During the interviews, the researcher tries
stop and think, dwell on the phenomenon through dialogue, to strike a balance between allowing the story to emerge and
reflection and dialogue (Van Manen 1990). directing the interview.
The following criteria guided the identification of nurse Approval for the study was granted by The Hong Kong
participants: Polytechnic University’s Human Subjects Ethics Subcommit-
• working in a palliative care setting as a direct caregiver; tee and the Hospital’s Ethics Committee. Permission to access
• working in a palliative care setting for at least 2 years. patients’ medical records for demographic data was obtained
The following criteria guided the identification of patient from the palliative care unit involved. It was clearly explained
participants: to participants that they had the right to withdraw from the
• diagnosed with incurable cancer and referred for palliative study, and that participation was voluntary and would not
care (either inpatient or home care); affect the treatment they received. The confidentiality and
• clearly aware of the incurable nature of the illness; anonymity of the data were assured, and informants signed
• able to verbally express themselves; a consent form. No reference to participants’ names or any
• inpatients were required to have a length of stay of at least other detail that might identify them was made in the text of
1 week; the study.
• patients having the home care service were required to have
been receiving this for at least 4 weeks;
Data analysis
• able to identify one or two particular nurse/s who have
been caring for him/her. The interviews were conducted in Cantonese and transcribed
Over the course of 9 months (May 2001 to February verbatim into Chinese. The accuracy of transcription was
2002), purposive sampling resulted in data being gathered verified by comparing the text with the tape and rectifying
2004 Blackwell Publishing Ltd, Journal of Advanced Nursing, 48(5), 475–483 477
E. Mok and P.C. Chiu
any errors or omissions. All 20 interviews were examined for married. Three had received tertiary education, three had
the essence of the nurse–patient relationship. According to received a secondary education and the other four had had
Van Manen (1990), a hermeneutic interpreter is in a reflective primary education. All had been diagnosed with cancer in
position. From the transcribed data, a selective reading different sites, with or without secondary occurrences.
approach was adopted, meaning that we read the text several Table 1 presents the demographic characteristics and descrip-
times and asked: ‘What statements or phrases seem partic- tions of the patient participants.
ularly essential or revealing about the phenomenon or
experience described?’ These statements were underlined
Interpretation of the data
and highlighted. The findings were formulated based on
reflections on the essential themes that characterized the Phenomenological model of the nurse–patient relationship
phenomenon. The hermeneutic process entailed a systematic The model of nurse–patient relationship that emerged from
analysis of the whole text, systematic analysis of parts of the the analysis is shown in Figure 1. The thoughts, emotions,
text, and comparison of the two interpretations for conflicts and questions are deeply embedded in the context of the
and an understanding of the whole in relationship to its parts. participant’s life-world. Munhall (1994) has described four
Shifting back and forth between cases revealed new themes, existential life-worlds and their interconnectedness in a per-
patterns and a global picture of the phenomenon. The goal son’s life: space (spatiality), lived body (corporeality), lived
was to seek commonalities in meanings, situations and lived time (temporality), and lived human relation (relationality).
experiences. Categories, themes and exemplars that vividly The patient and the nurse had a complex, lived reality that
depicted the themes were identified. The goal of thematic shaped and was shaped by the context of their experiences.
analysis was to discover meaning and to achieve understand- According to nurse participants, their encounters with
ing. The categories, themes and exemplars were then trans- patients in the hospice had special meaning, which meaning
lated into English. derived from the context of patients’ limited remaining time
and from their suffering. The patients received palliative care
and all lived with the awareness that they were going to die.
Findings
They were living with incurable cancer, and making the
transition to a life awaiting premature death. They also
Characteristics of participants
experienced suffering and loneliness. The nurse–patient
The ages of nurse participants ranged from 24 to 40 years, relationship consisted of four main processes: encountering in
giving a mean of 33Æ4 years. Two were Enrolled Nurses, the caring process, forming a trusting and connected rela-
seven were Registered Nurses and one was a nurse manager. tionship, refilling fuel and being enriched.
Their mean length of nursing experience was 11 years and In the encounter of palliative care, nurses aimed to reduce
mean hospice experience 6Æ2 years. All had completed a suffering and to provide maximum comfort to patients. They
hospice nursing course. took the initiative in approaching patients. In such encoun-
Patient participants ranged in age from 40 to 78 years, ters, some patients revealed their needs and fears to nurses,
giving a mean age of 62Æ9. Four were female and the other six while others preferred to keep their thoughts private. All
were male. Four of 10 were widows, and the other six were nurse participants chose to continue to work in hospice care
478 2004 Blackwell Publishing Ltd, Journal of Advanced Nursing, 48(5), 475–483
Issues and innovations in nursing practice Nurse–patient relationships in palliative care
Life
world Hospice
nurse
Nurse
Nurse and enriched
patient experience
encounters Relational qualities, and
in the caring involvement leads to a
process relationship of trust Connected
relationship
because of the job satisfaction they obtained and because they involvement of nurses and patients determined the depth of
felt enriched in their encounters with patients. the relationship:
Their relationships with nurses gave patients someone to
When patients only talked to you in a superficial way and did not
rely on, someone they could trust, and someone to whom
express their emotions, this indicated they did not want to disclose
they could express their deeper feelings. Of utmost import-
their intimate feelings. It did not mean that they rejected the nurse.
ance was that, through their relationships with nurses, they
They were not ready to disclose their feelings and sufferings.
experienced themselves as people who mattered. The rela-
tionship was like being refilled with fuel, giving them energy. You would find the patient was suffering and struggling in pain and
It enabled them to find meaning in life and eased their anger. However, he would choose to control himself and didn’t allow
suffering. Although the categories are presented and dis- you to enter into his inner world. One had to respect him even though
cussed separately, they are clearly not mutually exclusive. one knew that ventilating his emotion was good for him, but we had
to accept his pace rather than push him or force him to say how he
Encountering in a caring relationship felt. Often the patients did not want to talk at that particular time;
The relationship between nurse and patient developed on a maybe later they would talk. (N6)
continuum. There were three themes related to this category:
In the process of entering into the relationship, the nurse took
(1) expectations of the nurse’s role, (2) involvement, and (3)
the role of initiator and was sensitive in ‘palpating’ the
reciprocity. At the initial encounter, nurse and patient had
relating process. Taking the initiative meant not being pushy,
their own preconceptions of the meaning of the situation and
and giving time and space to patients when they were not
the roles of each in the encounter. Nurses were faced with
ready to disclose their deeper feelings. As the nurse–patient
certain responsibilities. These involved meeting expectations,
relationship evolved, it went beyond the superficial.
whether assigned by themselves or by society, and knowing
On the other hand, the nurse took the initiative to respond
what to take on. Nurse participants stated that their goal was
to the patient’s needs quickly, in a timely and appropriate
to relieve the suffering of patients:
manner, and to show that they really cared.
I knew the patient would die soon. I felt the urgency to relieve the
suffering, as time was short. If I could do that, I felt I could achieve
Development of a trusting and connected relationship
something and my heart would be at ease. Patients usually suffer
along the trajectory of dying. When a patient dies in an agitated way When a nurse responded to a patient’s needs in a trustworthy
rather than in peace, I feel sorrow and so do the families. (N1) way, a relationship of trust developed. Nurse participants
found that their relationships with patients evolved into
As for the patients, they were aware of their limited time and
friendships and that they became part of patients’ families.
often had feelings of fear and helplessness. The relationships
There were four themes in the development of a trusting and
they had with their nurses might be either mutual or
connected relationship: (1) understanding the patient’s needs;
unilateral, according to the outcome of covert interactive
(2) displaying caring actions and caring attitudes; (3) provi-
negotiations or implicit interplay. Whether a mutual rela-
ding holistic care; and (4) acting as the patient’s advocate.
tionship developed was dependent on whether both nurse and
According to participants, nurses who developed a trusting
patient were willing to enter into the encounter. The
2004 Blackwell Publishing Ltd, Journal of Advanced Nursing, 48(5), 475–483 479
E. Mok and P.C. Chiu
relationship with patients demonstrated understanding of according to patients’ unique needs. Nurses took the initiat-
their needs and suffering. One nurse said: ive in relationships and believed that their care made a
difference to patients. As a result, patients considered nurses
In establishing the relationship, the nurse needs to be approachable,
as part of their families and believed that nurses had gone ‘the
you need to know your patients, understands their needs. The patient
extra mile’:
welcomes the nurse because he/she knows you, they know you care.
Even though you might not be able to help him/her to get better, they With a trusting relationship, as patient I could tell her everything I
still trust you; and because the relationship has evolved into a need. She would bring my issues to the meeting at the hospital, so my
friendship, the nurse becomes part of the family. Also, they feel concerns would be heard. It wouldn’t be that way if our relationship
secure because you are a medical professional. (N8) were a distant one. The nurse was not only a healthcare professional,
she was also a good friend, part of the family. (P2)
The nurse–patient relationship evolved into a trusting and
connected relationship as patients found that nurses were
caring in both action and attitude: A fuel station for revitalizing energy
The nurse took the initiative to come to visit me, asked how I was, For the dying patients in the study, their relationships with
and examined my body. She checked not only my hands, but also nurses gave them the incentive to continue to live, helped
touched my feet to see whether they were oedematous. When I was in them to find a sense of peace and security, and eased their
the hospital ward, she came to visit me, although it was not her suffering. They expressed the view that their relationships
responsibility as she was the Hospice home nurse rather than a nurse with nurses were like going to a refueling station and being
in the wards. She expressed her care in action. (P2) refilled with fuel in order to keep on going. The fuel triggered
their inner strength; hence the relationships had the capacity
I found that the nurses were cheerful, didn’t wear a long face all time
to sustain them. In their experience of struggling with
and were patient. Their attitudes were very important. Their love was
incurable illness, the intensely traumatic process required
visible through their soft voices. They took the time to listen to what
that they have energy to continue. They chose to disclose
I said. (P2)
their deepest pains to nurses because they trusted them and
Nurses in the study took a holistic approach in caring for felt that they knew them in an intimate way. As a result of
patients, tending to their physical, psychosocial and spiritual ‘refueling’, patients were able to go on, as illustrated by the
needs, showing awareness of their expressed and unvoiced following examples:
needs, providing comfort without actually being asked; they
I have had the illness for too long. It’s really a traumatizing process
were reliable, available and present, and listened to patients’
that is repeated and repeated as I’ve gone through all the losses. Inner
deeper feelings. The personal qualities of nurses were
strength is the fuel that allows me to go on. When I was caught in the
perceived as integral to establishing a trusting relationship,
toughest emotional struggle, I chose to disclose my deepest pain to
and patients felt that the nurses were genuinely interested in
my nurse, although it was not easy for me to tell someone else. I
them:
needed help…It was a tough situation and the strong trust in her
I visited (the patient) at his home. He was weak, lying in bed. He was drove me to ease this pain through dialogue with her. (P3)
really tired and reluctant to talk. I read scripture for him. I said to
Since we developed a good relationship, my days with the illness have
him, ‘You don’t need to say anything, just listen to what Jesus said to
changed for the better. I have peace at heart and I’ve found security in
you.’ I felt that he listened to the message and found peace and let go.
the relationship. I could share my feelings with my nurse. Before I
On another day, when I stepped into his room, at the first glance, I
worried a lot, but now I am much more at ease with myself. I know
found that his eyes looked pitiful, helpless and sad. I stayed with him,
that whatever is going to happen, I can approach the nurse, who is a
gave him support by telling him I would be around if he needed help.
reliable person. (P1)
I saw him become more relaxed. Whenever he was in fear and
sorrow, I took the initiative to be with him, listened to his feelings, or
was just there, and encouraged him, and I found he was changed. Enriching experiences
(N5)
For nurses, the relationships, although focused on the goals
Nurses’ understanding of the desires and choices of patients and needs of patients, were enriching. Their understanding of
formed the basis for the strong advocacy role that they patients’ worlds enhanced their personal growth. The three
assumed. The nurses interceded on behalf of patients with themes here were: (1) personal growth; (2) letting go; and
family members or medical staff, and provided specific care (3) satisfaction with one’s life. When nurse participants
480 2004 Blackwell Publishing Ltd, Journal of Advanced Nursing, 48(5), 475–483
Issues and innovations in nursing practice Nurse–patient relationships in palliative care
encountered patients who were so close to death, this patient. In our study that involvement was getting to know
provided them with an opportunity to reflect and develop the patient, and taking initiative to respond to their needs
meanings that were largely free from the stressful and quickly. Involvement represents encounters that emphasize
meaningless aspects of their own lives and embraced aspects the importance of being concerned, interested and giving. In
that defined personal meaning. One nurse mentioned that the context of palliative care, some patients refuse to talk
learning to search for joy and beauty in life, and to let go and about their problems and difficulties. This refusal might
be more open. Nurses’ encounters with patients gave them reflect emotions of depression, anger, pain and helplessness.
satisfaction through the process of caring, and they also Nurses in the study nurtured the relationship by giving
found tremendous worth in patients, and were inspired by patients space in the encounter, allowing them to be angry,
their integrity and motivated by the way they transcended and waiting until they were ready to disclose their personal
their suffering: needs and feelings. This respects patient choice and wishes.
2004 Blackwell Publishing Ltd, Journal of Advanced Nursing, 48(5), 475–483 481
E. Mok and P.C. Chiu
482 2004 Blackwell Publishing Ltd, Journal of Advanced Nursing, 48(5), 475–483
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