Académique Documents
Professionnel Documents
Culture Documents
Submitted by
Irada Parajuli Gautam
Independent Consultant
May 2004
Table of Content
I. ACKNOWLEDGEMENT .................................................................................................... 4
II. EXECUTIVE SUMMARY .............................................................................................. 5
1. INTRODUCTION................................................................................................................. 9
1. 1 BACKGROUND .................................................................................................................. 9
1. 2 SCOPE OF VCT NEEDS ASSESSMENT ............................................................................... 9
1. 3 OBJECTIVE OF VCT NEED ASSESSMENT ........................................................................ 10
1. 4 REVIEW OF LITERATURE ................................................................................................ 10
2. METHODOLOGY ............................................................................................................. 12
2. 1 STUDY LOCATION .......................................................................................................... 12
2. 2 STUDY DESIGN AND INFORMATION COLLECTION METHODS.......................................... 12
2. 4 PROCESS OF NEED ASSESSMENT .................................................................................... 14
2. 5 ETHICAL CONSIDERATION ............................................................................................. 15
2. 6 LIMITATION OF NEED ASSESSMENT .............................................................................. 15
3. FINDINGS ........................................................................................................................... 16
3.1 CHARACTERISTICS OF PLWHA ..................................................................................... 16
3. 2 CHARACTERISTICS OF IDU AND FSW ............................................................................ 16
3. 3 SOCIAL PROBLEMS OF PLWHA ..................................................................................... 17
3.4 HEALTH PROBLEMS OF PLWHA ................................................................................... 18
3. 5 HEALTH SEEKING BEHAVIOR AND ITS BARRIERS OF PLWHA....................................... 18
3. 6 BARRIERS OF TAKING HEALTH SERVICES FOR PLWHA ................................................ 19
3.6.1 Financial Barrier .................................................................................................. 19
3.6.2 Social Barriers ...................................................................................................... 19
3 .6 .3 Organizational Barriers........................................................................................ 20
3. 7 EMOTIONAL PROBLEMS AND MANAGEMENT ................................................................. 20
3. 8 CARE AND SUPPORT SERVICE ........................................................................................ 21
3. 9 SOCIAL PROBLEMS OF INJECTING DRUG USERS (IDUS) ................................................. 22
3.9.1 Health Problems of IDUs...................................................................................... 22
3.9.2 Health Seeking Practices of IDUs ........................................................................ 23
3.9.3 Major barriers for health seeking ......................................................................... 23
3. 10 FEMALE SEX WORKERS (FSW) ................................................................................. 23
3.10.1 Health Problems of FSW ...................................................................................... 24
3.10.2 Health seeking Practices and Barriers ................................................................ 24
3. 11 VCT SERVICE ............................................................................................................ 24
3.11.1 Needs and Expectation of PLWHA, IDUs, FSWs on VCT Service ....................... 24
3.11.2 Reason of HIV test ................................................................................................ 25
3.11.3 Reason of not willing to test .................................................................................. 25
3.11.4 Making VCT Service User Friendly ..................................................................... 26
3. 12 TARGET GROUP FOR VCT SERVICE ............................................................................ 26
3. 13 INCREASING DEMAND OF VCT SERVICE .................................................................... 27
3. 13 CHALLENGES OF VCT................................................................................................ 28
3. 14 VIEWS OF NGOS ........................................................................................................ 28
3.14.1 VCT and its Demand ............................................................................................. 28
3. 15 VIEWS OF MEDICAL PRESCRIBERS ............................................................................. 28
3.15.1 Common types of treatment provided to PLWHA by medical prescribers ........... 29
3.15.2 Names of service providers/ pathology ................................................................. 30
2
3.15.3 Prescriptions and Access of Drugs ....................................................................... 30
3.15.4 Supplies of medical prescribers ............................................................................ 30
3.15.4 Suggestion of medical prescribers ........................................................................ 31
4. RESOURCE DIRECTORY ............................................................................................... 32
4. 1 RUPANDEHI .................................................................................................................... 32
4. 2 CHITWAN ....................................................................................................................... 33
4.3 NAWALPARASI ............................................................................................................... 34
5. CONCLUSION AND RECOMMENDATION ................................................................ 36
5.1 CONCLUSION.................................................................................................................. 36
5.2 RECOMMENDATIONS ...................................................................................................... 37
III. REFERENCES................................................................................................................ 40
IV. ANNEXES ....................................................................................................................... 41
ANNEX 1: CONSENT FORM.................................................................................................. 41
ANNEX 2: VCT NEED ASSESSMENT QUESTIONNAIRES........................................................ 43
ANNEX 3: QUESTIONNAIRE FOR MEDICAL PRESCRIBERS .................................................... 49
ANNEX 4: RESOURCE DIRECTORY ..................................................................................... 55
ANNEX 5: SCHEDULE FOR VCT NEED ASSESSMENT TEAM ................................................ 57
ANNEX 6: WORK PLAN FOR VCT NEED ASSESSMENT ......................................................... 58
ANNEX 7: RESOURCE DIRECTORY OF RUPANDEHI DISTRICT ............................................... 59
ANNEX 7: RESOURCE DIRECTORY OF CHITWAN DISTRICT .................................................. 70
ANNEX7: RESOURCE DIRECTORY OF NAWALPARASI DISTRICT .......................................... 79
ANNEX 8: MAP OF RESOURCE DIRECTORY ......................................................................... 88
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I. ACKNOWLEDGEMENT
I would like to extend my heartfelt gratitude to Family Health International (FHI) for supporting
in undertaking this need assessment. I want to especially mention Jesper Svendsen, Senior
Technical Officer – Counseling, care and support, Bert Pelto, consultant to FHI, Kamala Moktan
and Bharat Mani Pant by providing valuable professional inputs all along and Jim Ross- Director
FHI, Asha Basnet Associate Director FHI country office by giving critical comments while
designing need assessment tools.
I am grateful to all colleagues of AMDA team in Hetaunda, Chitwan and Dr. Anil Kumar Das in
Kathmandu who encouraged doing need assessment in Chitwan, Rupendehi and Nawalparashi
and others who were supportive in various ways.
I would like to thank all those who made it possible to produce this report by giving their
valuable time and who contributed their ideas. Special thanks go to the PLWHAs, IDUs, FSWs,
BCI partners especially Manager and coordinator of GWP, TRINETRA, WATCH and Namuna
integrated development council, all Government and other agencies, medical prescribers, and
others who involved in need assessment process directly or indirectly in 3 districts and have
contributed immensely to the field study.
This research would not be possible without having strong team members in the field so I would
like to thank Thaneswor Koirala and Kamala B.K who played an active role in every aspect of
the need assessment and my appreciation goes to staff of BCI partners who had been involved in
data collection process through out the field study as team members.
Most importantly, my sincere gratitude to all the individuals who shared their pain and anguish
openly.
4
II. EXECUTIVE SUMMARY
Need assessment commissioned by Family Health International was conducted with support
from AMDA VCT team and other BCI partners in Chitwan, Nawalparasi, and Rupandehi
Districts. The main purpose of the need assessment was to identify the resources across those
districts and to describe the nature of resources, support groups, NGOs and other organizations in
public and private sector in relation to HIV/AIDS and to explore the needs and expectations of
PLWHAs in connection with VCT program in the area of study. It was conducted in
February/March 2004 by using rapid qualitative research methodologies, especially mapping,
focus group discussion with NGOs, PLWHAs, IDUs, FSW, and in-depth interview with
PLWHAs.
At the district level, there are many organizations working on preventive side and very few are
involved in care and support part. Comparatively, Nawalparasi district has fewer resources than
other two districts. PLWHAs of Nawalparasi are either referred to Chitwan or Butwol for testing
and better treatment.
There are several private institutions that are providing testing services without counseling
services. Likewise, resources for TB, STI treatment and FP services and treatment of general
illnesses in public and private institution is encouraging but there is lacking of care and support
program to deal with emotional aspect, nutritional aspect, and none of any institutions provides
prophylaxis treatment and ARV therapy. There are no any spiritual care practices and
rehabilitation facilities are available in any of the 3 districts. However for IDU with HIV positive
male clients, there is one rehabilitation center in Butwol and in Chitwan district. Furthermore,
there are no any PLWHAs networks and groups in Rupandehi and Nawalparasi district except
one in Chitwan called ‘Chitwan Sakriya Samuha’ (Chitwan active group).
There are some positive experiences of PLWHAs towards the service providers. According to
PLWHAs, there are some good doctors and nurses. Use of private practitioners for treatment and
testing was equally prevalent as public hospitals. The study revealed that PLWHAs, FSW and
IDUs prefer private clinic because of the short waiting time to get service and better maintenance
of confidentiality and privacy compared to the public facilities.
Regarding the medical support, most of them prefer to seek medical care rather than going to
traditional healers while they become sick. Most of the participants are in contact with some
organizations and getting either psychological or physical support or both. Most of them are
supported by WATCH, GWP, TRINTERA, Maiti Nepal, Namuna Integrated Development
Council, Support and Care Center (S & C), and Sahara rehabilitation center directly or indirectly.
Some are also working as peer educators and volunteers in those organizations. Most of the
PLWHA participated in VCT need assessment have heard ARV but no one had taken so far.
Contrary to the positive experiences, some of the PLWHAs had expressed negative feelings as
well. Police harassment to FSW and IDU is a major problem. Most of the PLWHAs and other
target group felt the discriminating behavior from some doctors, families and society. Due to that
reason some of the PLWHAs of Chitwan Sakriya Samuha did not disclose their status in society.
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Out of 26 PLWHAs, 4 HIV positive cases mentioned that they got full support from family and
society where as their dissatisfaction was like other PLWHAs towards the behavior of I/NGO
staff. Most of the organizations, despite the initial commitment, have limited their activities on
the paper rather than providing actual support. Furthermore, violation of rights (right of respect,
privacy, expressions, and dignity) by I/NGOs and service providers, lack of necessary treatment,
care and support, and discrimination are some of the problems existed in the society according to
PLWHAs. Lack of awareness about the social support mechanisms among target groups were
also observed during the study.
VCT service
Most of the participants were not aware of VCT concept. When discussed the objective of VCT
need assessment and the concept of VCT, participants were excited and highly welcomed such
services in their area and urge to ensure the availability of care and support program after VCT.
They also suggested raising awareness in society before and after starting VCT is also equally
important so that social discrimination against HIV cases could be reduced in future. They
further suggested the VCT service to be provided in the existing STI clinic or city centre where
transportation facilities are accessible. In their opinion, provision of free VCT service is required
in order to reach to all target groups.
Recommendations: Based on the findings of need assessment, following recommendations
have been made to make VCT program more effective:
Followings are some of the recommendations to increase the role of PLWHAs to confront with
the social environment:
• This need assessment revealed that most of the PLWHAs are unhappy because they are
under valued and given low status either in public or private spaces. Therefore, listening
to PLWHAs and other target groups, creating a climate of confidence, and discovering
new values and collecting their strength are highly recommended. Active participation in
the VCT service (e.g. through peer educators) may help to enhance the self-esteem and to
develop a sense of identity of PLWHA in the society. It may also give PLWHAs a
collective strength to fight against social discrimination in the society.
• PLWHAs group should be encouraged and expand in other district like Chitwan to meet
together to share, discuss and act for the improvement of their own and community
situation.
• The rights and hopes of PLWHAs and their achievement of them should be constantly on
the agenda at all levels especially in the family, VDC, DACC, DCWB, schools, women’s
groups, NGOs, children’s groups and other user committee at local levels.
• Involve PLWHAs in the decision making process and include them as full and active
partners in identifying their own issues and problems and in designing, planning,
implementing and assessing programs which affect their own lives will have more
sustainable impact.
6
2. Establish community support systems at local level:
• Organize orientation, training, and awareness activities prior to starting VCT and
continue afterwards to different stakeholders, partners, and peer educators at different
levels. It helps to protect the rights of PLWHA.
• A wide spread campaign through posters, TV, radio and other media should be organized
to aware on the VCT services and promote this theme inside and outside the family.
3. Movement to reduce discrimination against PLWHAs and change the society for
equality, peace and justice
• Service providers and support organizations need to be aware of the psychological aspect
of PLWHAs and should not hurt to PLWHAs at any case and should be friendly while
dealing with PLWHAs by using the simple language. There should not be any
discrimination by service provider who has been involved for the treatment of PLWHA
based on poor and rich, ethnicities, and gender. Therefore, need to sensitize service
providers, family and society on the dignity and rights of PLWHAs so that safe,
comfortable, and friendly environment for HIV positive cases could be promoted.
• Sensitize media people regarding the issue of confidentiality and other ethical issues prior
to publishing the news because the media increases the discrimination in the society after
publishing or broadcasting the personal/sensitive information of PLWHA.
• Since the harassment has been found in different places including from service delivery
point to the street, provision of the law is required to punish/discourage the people who
discriminate and harass PLWHA.
4. Utilization of VCT Service: In order to increase the use of VCT service, following
recommendations have been made:
• Provide free testing among target group and free treatment for PLWHA as most of them
are facing financial crisis and many of them are dying due to the lack of money to buy
medicines and no timely treatment. It is further suggested for the provision of prompt
medical treatment, other care and support program needs to be incorporated. Along with
testing enough emotional and spiritual care needs to be ensured for PLWHA.
• VCT centers to be easily accessed by transportation facilities and in the urban area rather
than in the rural area and combining VCT service with existing mobile clinics would be
effective as mobile clinics are already popular among PLWHAs.
7
• Increase the confidence of clients regarding confidentiality and privacy of the outcome of
VCT. One by one testing and counseling would be good to maintain privacy.
• Establish good counseling to the people and educate them on the importance of VCT
service.
• Facilitate PLWHAs to discover meaning in life, build self-esteem and sense of humor.
Develop skills and feeling of having some control over what happens in life. This is
related to spiritual life and religion.
• Network building among service providers and social mobilization at the local level
needs to be strengthened for better referral and lasting benefit of PLWHAs. Therefore,
coordination meeting and partnership building should be an integral part of the program
and should encourage the local level coordination and social mobilization in the districts.
• The deficiency in present legislation and policies has caused harassment to PLWHAs in
public/private places. Policies and legal provisions should be made public both locally
and nationally so that people would be careful to deal with PLWHAs.
• Organize regular sharing program among service providers, NGOs, PLWHAs and social
mobilizers at the local level to foster understanding on practical issues related on VCT
and HIV/AIDS and updating their knowledge base.
• Advocacy to protect PLWHA’s rights is virtually missing or very weak and not been able
to raise the voice of PLWHAs by organizations in cases of violating their rights.
Combined efforts of different stakeholders would be able to protect the rights of
PLWHAs.
8
CHAPTER - 1
1. INTRODUCTION
1. 1 Background
Nepal, despite being considered a low HIV prevalence country, HIV infection in certain risk
groups is increasing at an alarming rate. Now it is apparent from epidemiological evidence that
Nepal has passed from being a low risk country to one with a "concentrated epidemic" in which
the HIV/AIDS prevalence consistently exceeds more than 5% in one or more sub-groups.
At the end of 2003 about 60,000 adult HIV cases estimated in Nepal. Of this, about half the cases
estimated in the highway districts. About 26 percent of HIV cases are women. Among the high-
risk groups, seasonal labor migrants contribute almost 40 percent of the HIV cases followed by
18 percent clients of sex workers and 14 percent IDUs. About 15 percent of HIV cases are
women from rural areas of Nepal.
According to the recent HIV estimation, Kathmandu valley has the highest epidemic scenario
with this rising HIV prevalence among injecting drug users (IDUs) and female sex workers
(FSWs). Similarly, there is rapid spread of epidemic in the Far Western hilly districts among
Nepali migrant labors who travel to India to find work.
The vulnerability for rapid transmission of HIV/AIDS in Nepal is increased many fold by
pervasive poverty (40% of population below poverty line with annual income less than Rs 4400),
coupled with low literacy rate, gender inequity, labor migration, girl trafficking and increasing
sex trade. In addition to this current conflict has further added to vulnerability resulting into
massive labor migration and displaced population, broken family and social structure, increased
orphan and loss of caretakers, loss of income and access to productive assets.
A decade of national response with support from national and international agencies has clearly
shown that the response has been largely inadequate and ineffective to address PLWHA’s needs
and expectations in terms of care and support. The national HIV/AIDS strategy 2002–2006 has
also emphasized the Voluntary Counseling and Testing (VCT) as an important component as
well as pivotal entry point for comprehensive HIV/AIDS prevention, care support and treatment
services.
According to a study, 90% of those infected in Nepal do not know that they are infected which
shows the need for effective prevention and care activities for HIV positive people. Followings
are some of the advantages of VCT:
a) It promotes and sustains behavior change (prevention) and facilitates early referral to care
and support services - including access to antiretroviral therapy.
b) VCT links with PMTCT, STI, and OI services and assists in stigma reduction if any
people get tested and talk freely about.
9
c) VCT increases awareness and knowledge by correcting misconceptions about HIV and
AIDS and increases the client's perception of his or her vulnerability to HIV and it also
alleviates anxiety.
d) For those who are already married, testing together, and the counselling process can
increase trust and strengthen the relationship irrespective of the results.
e) VCT can help clients make informed decisions about marriage, pregnancy and sexual
relationships.
In line with national guidelines and with FHI’s own experience for more than 10 years in
HIV/AIDS, FHI conducted the VCT need assessment for the effective intervention of VCT
service in their working districts prior to establish VCT service with the aim of finding out:
• What are the health and social services available in the area,
• Who could be the future VCT partners including an appraisal of existing referral
mechanism,
• How could PLWHAs and other target can be involved in VCT service intervention
process, and
There were two major objectives of VCT need assessment conducted in 3 districts:
¾ Develop social mapping and directory of existing services, facilities and resources in
public/private sector in relation to HIV/AIDS. For example, explore the availability of
counseling services, treatment provisions for opportunistic infections/ARV/STI therapy,
accessibility of hospice care, mental health service and rehabilitation centers, situation of
socio-economic support mechanisms, support groups, home care, and spiritual counseling
for the care and support of PLWHA.
¾ Explore the needs and expectations of PLWHA, particularly of vulnerable groups [FSW,
IDU] with the focus on their needs for care and support services. Also to explore
inventory of current Testing, Counseling and Support Services including the potential
service providers in the community.
1. 4 Review of Literature
Research reports, documents reviewed to find out the existing information available mainly on
the area of awareness, behavior, and socio-economic status of target groups. As per the
behavioral surveillance survey in Highways, STD and HIV prevalence Survey among Female
10
Sex workers and truckers in the high way done by New Era, the following findings are the
summary of information elicited from the different literatures
9 The majority [87%] of the respondents said private drug store/pharmacy as the place to
obtain condoms, followed by public hospitals [58%] and health post [46%].
9 Participants of district said that the mean time [to go and come back] to obtain condoms
from the nearest place was 15.3 minutes.
9 Use of condom by the regular type [husband or boy friend] of sex partners during the last
intercourse was found to be very low [27%] compared to paying sex partners [80%] in
the district.
9 99% of the respondents mentioned radio, followed by drug store/pharmacy [82%], bill
boards / signboards [75%], hospital [74%] and friends/neighbors [66%] are the source of
information to obtain condom.
9 On average, sex workers work 3.7 days a week and they entertain with 2.6 persons per
week.
9 Types of clients visited with sex worker are: transport workers 53.8%, wage workers
47%, police/military 44%, businessmen 44%, local men 36%, civil servants 35% and
Rickshawala 13%. In addition to these persons some students, petty shop owners and
occasionally social and political leaders were also reported as their clients.
9 99.5% of FSW had the level of awareness on HIV /AIDS and 92% of FSW have heard
about STD.
9 Ethnically, almost 29% of interviewed sex workers were Chhetri/Thakuri, 18% were
from Matwali groups such as Magar/Tamang/Gurung/Rai/Limbu, 14% from occupational
groups such as Gaine/Kami/Damai/Sarki, 13% were Tharu from the Terai region, 10 %
were Brahamin from the hill region and Badi, and 5% from other groups of the people
from Terai.
9 Among sex workers, 70% were found illiterate and 50% had at least one STD including
20% with syphilis.
9 Among truckers, 75% were having sex with a sex worker, 10 % had at least one STD
including 5.3% with syphilis. HIV rate among truckers was 5 times higher than in the
general public and truckers with syphilis had a tenfold higher risk of HIV than those
without syphilis.
11
CHAPTER - 2
2. METHODOLOGY
2. 1 Study Location
Three districts namely Chitwan, Nawalparasi, and Rupandehi were purposively chosen for need
assessment. However, before selection of districts; discussion with AMDA was done.
GWP is the main organization contacted for need assessment. With the help of GWP the team
contacted other organizations working in the districts and identified the target groups for focus
group discussion and in-depth interview. As a BCI partner of FHI, GWP unit office located in
Narayangadh was the key organization contacted by the team for collecting required preliminary
information.
Nawalparasi district lies in the Western Development Region of Nepal. According to census
2001, the total population of the district is 7562,870 (2001 census) of which 22,630 (4.02%)
people lives in urban area of the district. There is only one municipality and 73 VDCs in the
district. Parasi is the districts headquarter. The southern part of the district boundary joins with
India (Uttar Pradesh).
Similarly, Rupandehi also lies in the Western Development Region, which has 708,419
populations (2001 census) including 52,569 (18.06%) urban population. The district consists of
two municipalities and twenty-four VDCs in the district and Bhairahawa is the district
headquarters. The southern part of the district also joins with India (Uttar Pradesh)
WATCH and Namuna are the main institutions contacted for obtaining preliminary information
regarding target groups and existing resources. WATCH, being the BCI partners of FHI, its field
office was contacted for all supports required during need assessment in Rupandehi. Namuna (a
local NGO) is working on harm reduction in Rupandehi.
Descriptive exploratory design was used for need assessment. Participatory approaches were
highly emphasized during the whole process of information generation. Please see in ANNEX
for the tools.
Mostly the qualitative methods were used for information collection. Some quantitative data
were also obtained from secondary sources where applicable. About 10 participants from
12
AMDA, GWP, WATCH, Namuna and Trinetra were involved in in-depth interview for the data
collection after providing orientation and training to them. FHI consultant along with AMDA
VCT team facilitated all focus group discussion + filled up resource directory. Following
qualitative methods were applied:
Documents Review: Literature and documents related to the topic were reviewed during the
process.
• Focus Group Discussion (FGD): Focus Group Discussions (FGD) were organized
separately with 2 groups of PLWHAs, 3 groups of FSW, 3 groups of IDU, and 3 groups
of NGO staff working in the district. FGD was focused to find out need and expectations
of PLWHA, health seeking behavior, existing care and support practices of PLWHA at
the local level and their views on VCT services. During the FGDs participants were
encouraged to participate in the discussion. Upon the consent of participants, discussion
was taped and later translated.
• Interactive Meeting with Service Providers: Interactive meeting was organized with
the service providers and managers of different organizations in order to explore their
activities, their experiences on the problems and opportunities of PLWHAs, their
suggestion for better VCT program etc.
• In-depth Interview with PLWHA: In-depth interview was done with about 16
PLWHAs in 3 districts using a semi-structured checklist. Interview was focused on to
explore their problems, their suggestions to make better VCT services, the ways of
increasing utilization etc.
• Resource Directory: Based on the discussion with NGOs, PLWHAs, IDUs, and FSWs;
resource directory form were filled up with different organizations in public and private
sector.
Table 1: Number of participants as per group
Medical prescriber 16
Resource directory form filled up on 79
HIV /AIDS in public and private
Total 206
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2. 4 Process of Need Assessment
Detail steps were followed to complete the need assessment. Major steps are the finalization of
need assessment tools, orientation and training to the selected staff of partner organization in the
districts, formation of working group to oversee the need assessment and to conduct the
fieldwork. Following flow chart shows the summary of chronological steps of need assessment
that was used in all three districts:
As per the TOR, designed training and designing tool for VCT need
assessment, getting comments from FHI and finalize the tools.
Identify participants of partners for training and trained for VCT Need
assessment, shared the detail tools, process, objective and time framework
14
2. 5 Ethical Consideration
Due to frequent Bandh and lack of transportation services, need assessment team could not visit
the interior villages and most of the focus group discussions were compelled to conduct in the
NGO offices located near by the district headquarters. It may have lacked the representation of
the views of people/PLWHAs who are residing in the villages with difficulty in accessing
services compared to the same groups living near by the district head quarter. Since the
methodology of this assessment is primarily the qualitative, quantitative comparison of result is
not possible. FGD with PLWHAs was not possible in Rupandehi district since one organization
(WATCH) did not agree to disclose their status with others.
15
CHAPTER - 3
3. FINDINGS
PLWHA in
in-depth 11 2 3 9 7 13 3 14 2
interview
PLWHA in
FGD (2 6 3 1 3 7 10 - 10 -
districts)
Note: * Literate includes those who can read and write with or with out having formal education
Altogether 23 Injecting Drug Users and 29 Female Sex Workers participated in the Focus Group
Discussion in 3 districts. All IDUs were males and all of them completed grade 9 and above.
Almost all IDUs were married in Rupandehi and Nawalparasi whereas most of the IDUs in
Chitwan were married. Similarly, 26 out of 29 FSWs were married and all were literate. Age of
IDUs was between 18 and 30 years and the age group of Female Sex Workers were in between
15 and 42 years of age.
IDU 15 8 - 23 - 23 - 8 15
FSW 8 15 6 29 29 - 26 3
Note: * Literate includes those who can read and write with or with out having formal education
16
3. 3 Social Problems of PLWHA
Most of the PLWHAs faced some forms of discrimination, exclusion, and misbehavior in
different places. They are feeling isolated in the family, village, work place and service delivery
points. Followings are some of the expressions of different PLWHAs, which reflect their social
problems facing in their own society.
“While I went to Bhairahawa teaching hospital due to some health problem, they discharged me
from hospital bed as soon as they knew I am HIV positive. Relatives of other patients near by my
bed expressed that this bed is used by AIDS patient and refused to use” – A male PLWHA.
Some of are even ostracized by husband or wife and family, and friends. One female client said,
“When my husband knew that I am HIV positive then he left me and went to India. Other family
members did not give me food and cloths and now I am living in my mother’s home” – a female
PLWHA.
Similarly, a man was left by his wife when doctor informed his wife regarding the result of his
blood test. The man expressed his anger since the doctor did not tell him about the result of his
blood test but informed his wife. PLWHAs do not want to share their HIV status with family
members and other people due to the fear of discrimination and isolation.
One PLWHA shared her friend’s experience. She said, “One of my friends arrived from India
with HIV positive after 10 years. The whole family and society refused to accept her. She went to
mother’s home and asked for shelter but flatly refused there too. After that she went to the
brother’s house/shop. While she lived there; no any customer came, did not take tea and snacks
by the customers from that shop, and then the brother threw out her from that house too……..”
“When I was sick my family members and wife ignored me. She (wife) hated and went to her
mother’s home. But currently we are living in the same house but we sleep in different beds.
When my wife shared to the family members they started very rude behavior and expression
which I have tolerated at every moment.” – A male PLWHA
A PLWHA shared his fear of loosing work if his owner knows his HIV status. He said, “I do not
like to share my status with others because if they know they hate me. If owner knows, he does
not allow for driving as I am working as a driver and I have to look after my 3 children. If they
sack me from the job then who will look after my children?”
Similarly PLWHAs have fear of sharing their HIV status in their own home due to possible
misbehavior. One of the female PLWHAs said, “I did not give information to my family
members because if I inform them about my status then they don’t allow me living at home”.
Some PLWHAs who shared their status in PLWHA group had not shared their status at their
home as they afraid family might hate and thrown out to them.
One PLWHA expressed that no one came to visit her when she had fever. Even in the hospitals,
service providers behaved in a different way. She requests to behave the HIV positive cases in
the same way as service providers behave to the non-HIV people.
However, according to PLWHAs, extent of discrimination and other social problems are
decreasing gradually. They expressed the positive impact of some NGOs’ work in reducing the
17
social problems. A female PLWHA expressed “In the beginning there was big discrimination to
me in the village. When Trinetra gave training to me on community health volunteer, then the
community people are becoming supportive”.
Another female PLWHA added, “In the beginning no one supported me and no one understood
my feelings when they knew my HIV status. After few months, my family members gave me the
separate room for me and separated me from the family. I started coping all the things myself.
Now I am getting full support from my family members”.
NGOs working at the local level are also feeling changes towards the HIV positive cases by the
society. However, PLWHAs are still not treated as the non-HIV people in the society. There is
yet lot to do to improve the social problems of PLWHAs, they added. They remembered one
incident occurred in an HIV/AIDS workshop in a VDC as: “One of the VDC chairperson said
that all HIV positive people should be killed by giving vitamin to free from HIV/AIDS in our
society”.
While discussed with PLWHAs in three district following are major health problems expressed
by PLWHAs during group discussion or in depth interview.
• Fever, Headache
• Feeling of isolation
• Dizziness, Blurred vision
• Cutting injuries if they are due to drug addict
• Skin itching
• Nodules in body
• Body ache
• Common cold
• Vaginal discharge and itching around private parts
• Tuberculosis
• Diarrhea
• Weaknesses feel, Loss of memory,
• Cough, fluid collection in Lung
When PLWHA suffers from infection they go to hospital, seek support from NGOs or private
clinic for treatment. As the participants to whom we discussed almost all they are affiliated with
NGOs, PLWHA group and much aware on HIV / AIDS. Most of the PLWHAs mentioned that
they first seek advice from family and friends then go to the doctor. According to PLWHA, there
are many NGOs working for HIV/AIDS awareness but there is no any organizations who
provides care and support services. There is no any single organization that provides free
treatment for PLWHA and no facility for CD4 count.
18
3. 6 Barriers of Taking Health Services for PLWHA
Major barriers of PLWHA for receiving timely and complete health care are:
Financial barriers
Avoidance by family
Doubts on confidentiality from service providers
Distance of health facilities
Lack of counseling
Lack of information where to get treatment
The hated behavior (Ghrina and tiraskar) of health professional
PLWHAs mentioned financial problem as one of their major issue of concerns. According to
Trinetra, most of the PLWHAs are from poor socio-economic background and they are not able
to seek medical care and not able to buy food and the complete course of medicines.
Followings are some of the expressions/experiences shared by PLWHAs during the need
assessment:
• Lack of money at the time of sickness caused delay in receiving treatment. One PLWHA
reported that her friend (PLWHA) died due to the lack of money to obtain medical
service and food. Family and other relatives ignored her to provide the care and support.
• Some PLWHAs reported that they either could not buy the medicine or could not comply
with the doctor’s prescription.
• PLWHA from sakriya samuha group said that they spent the whole day for awareness
raising about HIV/AIDS but in the evening they did not have enough food to eat.
• Most of the PLWHAs mentioned the lack of confidentiality in all hospitals has made
them reluctant to visit health facilities.
• One of the PLWHAs did not go to hospital due to fear of blames and misbehavior and
died with out getting proper treatment.
• The fear of social stigma do not allow them to expose their status in front of the society
or even friends which prevent them from consultation with the concerned people
including health workers or even with the family members.
19
• People including other patients and service providers hate PLWHAs. One PLWHA
shared that the patients and visitors near by her bed remove the blanket covered their face
and even deny talking to her.
3 .6 .3 Organizational Barriers
Organization itself sometimes creates barriers to PLWHA. Lack of clear policies, procedures,
and attitude of the staff causes problems to the PLWHAs. According to PLWHAs,
organizations have often exploited and given the false hopes for them. They have violated the
right of confidentiality and personal dignity. Followings are some of the expression of
PLWHA during need assessment on how can organizations create problems for PLWHAs:
¾ Although doctors are educated people, most of them are not good for PLWHA.
“One day I went to see my friend in the hospital and I sat on an empty bed near to
my friend’s bed. Patients of other beds, nurses, and doctor made a big issue as I
(AIDS patient) sat in that bed”.
¾ “One of the organizations organized a dohori program (folk song) to raise funds
for PLWHAs and we never got that money but they spent elsewhere for their
own”.
¾ One day one PLWHA client went to a hospital along with action aid staff. When
the staff introduced doctor as I am a PLWHA in front of many other people, then
people started staring at me. It was really a painful situation for me. The I/NGO
staff should be aware of our dignity.
¾ One day when one of our friends (PLWHA) became sick, we took her to the
hospital but the doctor refused to see her and returned to home.
¾ The lack of transparency of NGOs and behavior of the staff were also expressed
by PLWHA during need assessment. PLWHA expressed dissatisfaction towards
Action Aid. Action Aid people said, “You AIDS people die soon so why do you
need cloths and food” when asked by PLWHA for support.
Discussion was held about the immediate feeling and reactions when PLWHAs knew the HIV
positive. These emotional issues give idea for designing and implementing VCT services.
Appropriate linkages and support mechanism can be better developed based on their feelings.
Followings are some of the feelings expressed by PLWHAs:
Most of the PLWHAs expressed fear, anxiety, loss of appetite, insomnia, loneliness, lack of
interest to work and talk as the common problems they faced in the beginning. Due to support
from different NGOs, they were able to mange to these problems. They also suggested on the
need of enough activities to manage these problems along with VCT service.
Most of them were very much worried about the society’s dealings. Although they have coped
their problem but they are still facing problems from the community and family. This has created
them lots of psychological problems.
20
One of the male PLWHAs said, “I felt big crisis when I knew that I have HIV positive. In my life
that was big devastation and felt and suicidal tendency came in my mind. While I was in process
to go gulf country, blood was tested and came positive. Doctor did not explain me directly but
just gave in a piece of paper. At that time I was just 19 years. Now it is more than 10 years that I
have HIV positive in my body. For one week I could not inform to anyone but severely
traumatized. At the end, I accepted reality. From my own effort, and I went to Saibaba in
Banglore to create positive feeling in my life. Eventually I accepted that one day everybody dies,
so am me. Then I started finding positive survive by doing meditation and creating spiritual
feelings in my mind”. - A male PLWHA
“I took Ayurvedic medicine for 11 months from near by Ayurved practitioner. At that time only
millet bread was advised to take, my condition became worse than before. As per the suggestion
of my senior, then I stopped that medicine and took other modern medicine. If I become
extremely frustrated then I go to Ramhari sir of GWP for counseling and psychological support.
Then I realized how psychological support is important for people like me”. – A female PLWHA
I met HIV positive group of people especially Rajiv dai (kafle) and Anjana Amatya in
Kathmandu and got opportunity to share feelings of each other. While I saw people like me it
increased self confident to survive and realized that I am not alone in this world. Then after I am
mentally adjusted with the problem”. - A male PLWHA
During need assessment, PLWHAs expressed that there is very nominal psychological support
from NGOs. Meeting PLWHA friends, listening music, avoiding living alone, doing meditation,
and keeping themselves busy are some of the strategies applied by PLWHAs to reduce emotional
problems. In Chitwan district, PLWHA group has become very effective to reduce their
psychological problems. They also suggest making such groups strong and effective in other
areas along with establishing VCT service.
There are care and support centers for IDUs and HIV positive in Rupendehi and Chitwan for
male clients but not in Nawalparasi. However they accept clients from all districts.
Followings agencies/group that are providing social and emotional support/service for PLWHAs:
21
3. 9 Social problems of Injecting Drug Users (IDUs)
During FGD and in-depth interview, Injecting Drug Users expressed the following social
problems, which they are facing in the society:
• People do not believe and treat positively even if the drug users give up the drugs. Social
stigma is very prevalent. People do not stop ‘back biting’ and discourage their (drug
users’) parents even if family accepted them.
• When there is anything stolen in the village people suspect drug users and take action
against them without listening their clarification.
• People do not allow us making friends and restrict their kids to talk with drug users.
• Police arrest on the way and ask for money. If drug users refuse to give, police threatens
to keep in custody.
• If we (drug users) want to do something good in the society, people do not believe but
rather criticizes us by saying: “Oh!! What addict can do”.
• Always feel neglecting and discriminating behavior from family, friends, and community
people. They deal negatively with drug users. Parents are willing to spend the huge
amount of money for other kids but not for drug user even for good purpose.
• Police treats very badly, give heavy tortures when the police catch drug users.
• Due to the negative feeling of parents, some drug users expressed that they were not able
to join rehabilitation center due to financial problems.
“One of my best friends did recently marriage but he did not invite
me. I asked why you did not invite me. He pretended that he forgot
to invite but actually he ignored and avoided me since I was a drug
user”. – One drug user boy shared his experience of avoidance in
the society.
Followings are some of the health problems that drug users are facing in the need assessment
districts. These problems are based on their experience.
22
¾ Backache
¾ Burning nerve
¾ Headache
¾ Tearing in the eyes, sneezing
¾ Quick anger
¾ Lack of control on verbal language
¾ Laziness
¾ Lean and thin
¾ Lingering in small problems
¾ Loose in memory power
¾ Weight loss
¾ Hepatitis B
Injecting Drug Users do the first aid treatment themselves first in the rehabilitation center. If not
improved then they either go to private clinic or medical college teaching hospital. But Drug
users have a fear of possible misbehavior by the service providers if they know the patient is an
addict. One IDU shared, “When I went to Butwol nursing home, one doctor expressed that I am
addicted and referred to psychiatric rather giving treatment”.
Financial barriers
Avoidance by family
Doubts on confidentiality from service providers
Distance of health facilities
Lack of counseling
Lack of information where to get treatment
The hated behavior (Ghrina and tiraskar) of health professional
Most of them said the financial problem is the main reason to involve in this profession. Fear
stigma, frustration, anxiety, and abuse from police and male clients were common problems
shared by the sex workers. Following problems were identified from the discussion with female
sex workers. Common Problems are;
Few participants expressed that if they do not have money they do not want to consult until and
unless it is very serious and necessary. Consultations are also made with the friends and
concerned NGOs as most of them are affiliated with some NGOs. For minor infection/injury
either self-treatment or ordinary medical stores have been approached. Some have even tried
herbal medicine but was not effective. They go sometimes to the traditional healer for
psychological healing.
3. 11 VCT Service
There is no voluntary counseling and testing facilities existed in the districts but testing is being
done if anybody applies for visa to go foreign country or for blood transfusion purpose. Testing
is also done on request and if it is referred by a doctor or health facility. At present, there are
testing facilities available in some private and public institutions but has been done without
proper counseling service. Most of the FSWs have false impression that the HIV test is done
while done of STI testing by AMDA. Although it is wrong impression but it is due to lack of
proper communication and counseling.
Most of the participants were unaware of VCT but participated on the discussion of outcome
and coverage of VCT. They suggested sensitizing target group and community people about its
importance for its wider acceptance. Most of the organizations with whom we discussed wished
to engage in providing VCT service in future.
People do not want to come for blood test due to different reasons. These factors should be
carefully considered prior to establishing VCT services. Followings are some of the fears that
contribute people to avoid blood test:
25
• Fear of the possible discrimination and misbehavior from family, friends, and from the
whole society
• Due to uncertainty of future plan after becoming HIV positive.
• Due to the poor economic condition and fear of getting timely treatment
• Due to the risk of loosing job.
• Unable to bear the burden of anxiety by knowing the HIV status.
When we discussed with PLWHA on how to make VCT service user friendly, they suggested the
following points:
• Majority of the PLWHA suggested combining VCT service with existing STI mobile
clinics because STI mobile clinics are already popular among PLWHAs.
• Testing must be free of cost considering the economic status of target group.
• Along with testing, provision of free treatment and enough emotional support needs to be
ensured for PLWHA.
• In order to make VCT more effective, care and support program needs to be incorporated.
• VCT programs needs to be combined with other health services such as health check up,
primary health care, DOTS, and STI services in order to make VCT more accessible,
attractive and effective.
• Attempt should be made to involve PLWHA in providing service. They can provide good
service to the PLWHA because they understand the feelings and problems of other
PLWHA compared to ordinary people.
PLWHAs and other target group suggested following groups of people to be tested:
26
To test everybody who have unsafe sexual practices
The people who are injecting drug users.
All wives whose husband lives in India for seasonal works.
Those unmarried couples who is going to marry very soon
To all who are involved in prostitution or working in sex trade
Who lived many years in foreign country as migrant workers
All who returns from India
Clients of sex workers
People who have multiple sex partners
People who have STI and are frequently sick such as fever
9 Establish good counseling to the people and educate them on the importance of VCT
service.
9 Promote target groups such as IDU, FSW, PLWHA to the peer educators
9 Utilization of VCT service would be higher if the service is provided free of cost at least
for those who are in need of financial support.
9 Involve PLWHAs in program planning and implementation, which helps to make the
program more responsive to the target group.
9 Increase the confidence of clients regarding confidentiality and privacy of the outcome of
VCT. One by one testing and counseling would be good to maintain privacy.
9 Provide other health services like primary health care, treatment of TB, STI etc from
VCT centers. It helps to save client’s time and reduce the fear of stigma.
9 Ensure clients that their rights and dignity are fully protected and considered and attempt
will be made to reduce social stigma once they are identified as HIV positive.
27
3. 13 Challenges of VCT
• If the counseling component is weak people will be in distress, anxiety, fear, and will
have negative consequences in their health.
• If VCT is not linked with care and support activities, clients should face emotional,
social, and health problems.
• In case of IDUs, if test becomes negative they will perceive that the drug is safe and
therefore may continue taking drugs. Effective counseling is mandatory to prevent this.
3. 14 Views of NGOs
Focus Group Discussion was conducted with FHI partners working in three districts. FGD with
those organizations revealed the following information:
NGO staff expressed the similar problems as expressed by PLWHAs. According to them, there is
lack of services to raise self-confidence and to provide emotional support to PLWHAs. There
was strong myths towards the problems and treated accordingly. For example, community people
even refused to burn dead body of AIDS patient and avoided to buy things from their house.
Furthermore, if husband died of AIDS, wife had to bear all punishment from society irrespective
of the result of her blood test.
Discrimination has not limited to the parents, their kids are being blamed in the school. Other
students and villagers did not allow the kid to sit in the same bench.
They suggested establishing VCT services in those places where client flow is already high and
where there is more faith among PLWHAs such as STI clinic, Marie stoppes, and Kali Gandaki
clinic and in other clinics. They further suggested making the service mobile in order to cover
larger group of the people.
They emphasized the good counseling and good behavior as the prerequisites to increase VCT
demand. They equally emphasized to launch the awareness activities among NGOs and target
groups about the importance of VCT service. Other issues expressed by NGO people to increase
demand of VCT are to use media such as FM radio, mobilize peer educators, provide counseling
training to volunteers and out reach workers, provision of care and support program after testing,
and involvement of local leaders to reduce stigma.
28
Most of the medical prescribers welcomed the proposed VCT service in the district. At present
no any medical prescriber have standard guidelines for treatment of PLWHA and there is no
mechanism of tracking the referrals. Found positive feelings, attitudes and beliefs about the
treatment for illnesses related to HIV/AIDS among prescribers. However, prescribers were little
worried since patients do not share that they were HIV positive which makes prescribers difficult
in taking precautions.
In their experience, TB treatments have been found most helpful to PLWHA. Doctors suggested
seeing HIV cases separately from other patients. Regarding treatment cost, user pays full costs
for treatments and no free treatment is available. Mostly, ELISA test is available in the private
clinic and hospital but they have to refer to Teku hospital for confirmatory test. In all 3 districts,
monitoring CD4/ viral loads are not available.
• STIs
• TB
• Other infections such as bacterial, fungal, parasitic
• Skin problems
• Diarrhoea, abdominal pain
• Psychological problems
Medical prescribers felt that followings are some of the major organizational barriers of service
provision for PLWHA:
29
3.15.2 Names of service providers/ pathology
Followings are the names of service providers that PLWHA visited for testing and treatment in 3
districts:
Increase networking among providers to share Helps for mutual transfer of knowledge
information on HIV care and available and expertise, better coordination and
resources. mobilization of resources
Providing services in a more convenient Better services gives more benefit, good
manners (such as better office hours, quicker patients compliance and better outcomes
appointments, less waiting time)
31
CHAPTER - 4
4. RESOURCE DIRECTORY
Please see in ANNEX for the resource map, target group location of district and detail resource
directory.
4. 1 Rupandehi
Following table shows the list of organizations working in Rupandehi district and their area of
focus:
1. Namuna Integrated Counseling for IDU, FSW, HIV test, referral, home base
Development Council care
2. Sahara rehabilitation Rehab center for IDU and HIV positive, Counseling, day
centre/SSG care center, Mass awareness, referral, Fund raising, HIV
positive group formation (support Sahara)
3. SPW HIV/AIDS awareness, sex education
4. RUPP Loan provide to PLWHA
5. Family Planning FP service, TB treatment, community/youth mobilization,
counseling, mass awareness, STI treatment, reproductive
health service
6. ADRA Psychosocial, Mental health service and sexual and
reproductive health
32
22. Singh Medical Hall Testing and treatment
23. Doctor Medical Hall Testing and treatment
24. Tilganga Medical Hall Testing and treatment
25. Mote Medical Hall Testing and treatment
24. Butwol Medical Testing and treatment
College
25. Lumbini Medical Testing and treatment
College
26. Butwol Government Testing, TB service and treatment, 24 hours service for
Hospital inpatient
27. AMDA Hospital Health service delivery for women and children
4. 2 Chitwan
Following table shows the list of organizations working in Chitwan district and their area of
focus:
33
15. Action Aid Support for treatment, food and clothing, referral for testing,
stationery support for FSW and PLWHA children
16. TB Centre Tuberculosis treatment
17. Youth vision Rehabilitation, awareness, counseling, doctor visit, day care
center, meditation, spiritual
18. Marie stopes Family planning, reproductive health service, youth information
center and employment for PLWHA
19. Bharatpur government Testing and treatment
hospital
20. Bharatpur Medical Testing and treatment
College
21. ASHA Hospital Testing and treatment with counseling
22. Chitwan Diagnostic Testing and treatment
Center
23. Suryodoya Pathology Testing and treatment
4.3 Nawalparasi
Following table shows the list of organizations working in Nawalparasi district and their area of
focus:
34
19. Kaligandaki Private HIV testing and TB treatment
Hospital
20. Sita Medical Store Treatment and referral for PLWHA
21. Shradda Medical Hall Treatment and referral
22. Govt. PHC center, attach Treatment and referral
to Kaligandaki
23. Dumkibas health post Medical, nursing, home base care and spiritual care
24. Nawa Prativa Mental health service
Community
Development Center
25. Sajha health cooperative Preventive, curative, and home based care
26. Vijaya Development Poverty reduction, counseling, and awareness on HIV/AIDS
Resource Center
27. Social development and Economical support, sanitation, blood donation, health and
research center hygiene
28. PHC Center Chormara Preventive, curative
29. Janta Pharmacy Preventive and curative, Psychosocial
35
CHAPTER - 5
5.1 Conclusion
The need assessment has clearly revealed that the PLWHAs, FSWs and IDUs are regularly
facing social, religious, and cultural discriminations in the society. They are deprived of their
rights to adequate physical, mental and psychological development and it is still uncertain how
long they have to wait for equal treatment. Most of them are facing economic problems to
manage their daily expenses, which has limited the use of available services. Socio-economic
and cultural barriers are equally prevalent to prevent the access and use of health care and other
existing facilities.
All PLWHAs, IDUs, FSW, NGOs and medical prescribers expressed the need to create a social
conducive environment and to give equal opportunities to PLWHA so that they can express their
problems openly and can lead a life without any barriers. There are no any rehabilitation centers
for PLWHAS, especially for the women, and no any spiritual care for PLWHAs in three districts.
There are many organizations working on HIV/AIDS in preventive aspects at the community
level but services are not free in any of those organizations and lacking care and support
program.
All the organizations and target group welcomed the concept of VCT service. It is very
encouraging to start the VCT service however the PLWHAs and NGOs suggested integrating
care and support program along with it. There are very few organizations working to deal with
day-to-day problems of PLWHAs. Moreover, supports that are being provided by some
organizations are minimal and is only limited to few PLWHAs. The existing medical and
diagnostic facilities in public and private sector are not affordable and counseling service is not
being done properly. Only few NGOs and one PLWHA group in Chitwan are providing
counseling service.
Participation of PLWHAs, IDUs and FSWs at different levels of program was equally
emphasized in order to make VCT service more effective. They can be the good resource for
counseling, peer education, and other purposes in the VCT sites.
The commitment, skills and experiences of those organizations working closely with PLWHAs
were questioned by many of the PLWHAs and target groups. Therefore, for the effectiveness of
the VCT program, most of PLWHAs and other target groups suggested considering their views
and opinions while developing programs plans and interventions. More specifically, policy
makers and all key actors, who either work for PLWHAs or who have responsibility for
PLWHAs in one way or another needs to start thinking about how PLWHAs see their world,
how could be improve their life better, and how could their views be incorporated.
All most all the target groups are quite aware of their own needs and the solutions to obtain equal
status as Non HIV person. One of the worries expressed by PLWHAs and other target groups
during need assessment is the under estimation of their rights, values and dignity by the service
providers and the community people. This is the main reason of PLWHAs, FSW, and IDU for
being not able to disclose their status with service providers, family members and communities.
36
Therefore, we need to analyze the problems and strengths of PLWHAs, FSW and IDUs and use
their potentialities in making VCT program more effective, accessible, and user friendly for
PLWHAs. At the same time, strong commitment from different stakeholders is necessary at
different levels to address the specific needs of PLWHAs.
5.2 Recommendations
Based on the findings of need assessment, following recommendations have been made to make
VCT program more effective:
The Voluntary Counseling and Testing (VCT) is an important component as well as pivotal entry
point for comprehensive HIV/AIDS prevention, care support and treatment services. Therefore,
organizations that are working directly or indirectly on HIV/AIDS have to show strong
dedication and commitment at all levels. Efforts should target to create a more congenial
situation for PLWHAs with the joint effort among stakeholders. Followings are some of the
recommendations to increase the role of PLWHAs to confront with the social environment:
• This need assessment revealed that most of the PLWHAs are unhappy because they are
under valued and given low status either in public or private spaces. Therefore, listening
to PLWHAs and other target groups, creating a climate of confidence, and discovering
new values and collecting their strength are highly recommended. Active participation in
the VCT service (e.g. through peer educators) may help to enhance the self-esteem and to
develop a sense of identity of PLWHA in the society. It may also give PLWHAs a
collective strength to fight against social discrimination in the society.
• PLWHAs should be encouraged to meet together to share, discuss and act for the
improvement of their own and community situation.
• The rights and hopes of PLWHAs and their achievement of them should be constantly on
the agenda at all levels especially in the family, VDC, DACC, DCWB, district health
office, schools, women’s groups, NGOs, children’s groups and other user committee at
local levels.
• Involve PLWHAs in the decision making process and include them as full and active
partners in identifying their own issues and problems and in designing, planning,
implementing and assessing programs which affect their own lives will have more
sustainable impact.
Once we establish VCT service, many HIV positive cases will be identified so if
communities are not involved the PLWHA might be thrown out from the society. Unless the
community as a whole is involved in the VCT process, it cannot succeed and the change will
be difficult and slow. The support systems should identify PLWHAs who face more
difficulties so that they will not doubly victimize and other PLWHAs will not suffer.
PLWHAs who have faced many difficulties can be good teachers for a live giving strategy
and for restoring responsibility to the community.
37
Followings are some of the recommendation for this:
• Organize orientation, training, and awareness activities prior to starting VCT and
continue afterwards to different stakeholders, health personnel, partners, and peer
educators at different levels. It helps to protect the rights of PLWHA.
3. Movement to reduce discrimination against PLWHAs and change the society for
equality, peace and justice
The current situation is an intolerable status quo, which has made PLWHA seriously
frustrated for not getting care and support services. We should have positive attitudes and
believe a small change in our perception can have a major impact to PLWHAs. Following
recommendations have been made:
• Service providers and support organizations need to be aware of the psychological aspect
of PLWHAs and should not hurt to PLWHAs at any case and should be friendly while
dealing with PLWHAs by using the simple language. There should not be any
discrimination by service provider who has been involved for the treatment of PLWHA
based on poor and rich, ethnicities, and gender. Therefore, need to sensitize service
providers, family and society on the dignity and rights of PLWHAs so that safe,
comfortable, and friendly environment for HIV positive cases could be promoted.
• Sensitize media people regarding the issue of confidentiality and other ethical issues prior
to publishing the news because the media increases the discrimination in the society after
publishing or broadcasting the personal/sensitive information of PLWHA.
• Since the harassment has been found in different places including from service delivery
point to the street, provision of the law is required to punish/discourage the people who
discriminate and harass PLWHA.
4. Utilization of VCT service: in order to increase the use of VCT service, following
recommendations have been made:
• Provide free testing among target group and free treatment for PLWHA as most of them
are facing financial crisis and many of them are dying due to the lack of money to buy
medicines and no timely treatment. It is further suggested for the provision of prompt
medical treatment and other care and support program needs to be incorporated. Along
with testing enough emotional and spiritual care needs to be ensured for PLWHA.
• VCT centers to be easily accessed by transportation facilities and in the urban area rather
than in the rural area and combining VCT service with existing mobile clinics would be
effective as mobile clinics are already popular among PLWHAs.
38
• Increase the confidence of clients regarding confidentiality and privacy of the outcome of
VCT. One by one testing and counseling would be good to maintain privacy.
• Establish good counseling to the people and educate them on the importance of VCT
service.
• Facilitate PLWHAs to discover meaning in life, build self-esteem and sense of humor.
Develop skills and feeling of having some control over what happens in life. This is
related to spiritual life and religion.
• Some organizations need to involve dealing nutritional aspect, prophylaxis treatment, and
ARV therapy and rehabilitation facilities for PLWHA in those districts.
It is the solidarity that makes possible for their voices to be heard more loudly in the future. The
formation of PLWHAs group and network across a wide spectrum across sections of society at
the local, national, regional are of the utmost importance. Followings are some recommendations
for this:
• Network building among service providers and social mobilization at the local level
needs to be strengthened for better referral and lasting benefit of PLWHAs. Therefore,
coordination meeting and partnership building should be an integral part of the program
and should encourage the local level coordination and social mobilization in the districts.
• The deficiency in present legislation and policies has caused harassment to PLWHAs in
public/private places. Policies and legal provisions should be made public both locally
and nationally so that people would be careful to deal with PLWHAs.
• Organize regular sharing program among service providers, NGOs, PLWHAs and social
mobilizers at the local level to foster understanding on practical issues related on VCT
and HIV/AIDS and updating their knowledge base.
• Advocacy to protect PLWHA’s rights is virtually missing or very weak and not been able
to raise the voice of PLWHAs by organizations in cases of violating their rights.
Combined efforts of different stakeholders would be able to protect the rights of
PLWHAs.
39
III. REFERENCES
• MOH, National Center for AIDS and STD Control, National Estimates of Adult HIV
Infections, March 2004.
• MOH, National Center for AIDS and STD Control, National Guidelines for Voulntary
HIV / AIDS Counseling and Testing, July 2003
• Crepha, draft report on estimations of Sex Workers and Potential Client Sub-Population
in Select Major Towns in Terai and Along the East-West Highway Districts, February
2004
• New Era, Behavioral surveillance survey in Western to Far - Western sector of Mahendra
Highway of Nepal, February 2003
• New Era, Behavioral Surveillance Survey in the Highway Route of Nepal: Round 4, May
2002
• STD and HIV prevalence Survey Among Female Sex workers and Truckers on Highway
Routes in the Terai, Nepal, May 2000
40
IV. ANNEXES
The information collected using this guideline will be kept confidential and use for programme planning
purposes only.
Introduction
Hello. My name is ………………………… …….…. I would like to discuss with you for about
an hour on problems related to HIV/AIDS and voluntary counseling and testing (VCT). It will
help us develop programs to help people and community protect their own health specifically
against HIV/AIDS. You are assured of confidentiality on all information you volunteer and no
reference will be made to your name if the findings of this study are published. You may refuse
to answer any question that you are uncomfortable with or not willing to answer and will not
prevent you to benefit from any services that are already available. However, your open and
candid answers to the questions will be highly appreciated. Are you all then willing to participate
in this conversation?
To Interviewer: If the participant gives his /her consent please continue, if not stop here.
I will try to take notes of major things that you express. However, it would be difficult to
remember every thing and take notes that you say during the interview. For this reason we would
like to use tape recorder. This will capture all your ideas. I hope you would not mind using tape
recorder. No body will know who said what because your name would not be used.
To Interviewer: Be sure that the informant do not have any objection to using a
tape recorder. [Just Tick of]
Before starting our discussion, can you please give me some personal information?
Participant’s Identification
41
- Current address and duration of stay: ……………………
Dist………………………Location……………………
- Place of birth: Dist:……………………. Location…………………….
- Marital status: …………………………….
- Education: ……………………………...Occupation:………………….
- Mother tongue: …………………
1. Create mapping and directory of services, facilities and resources in public / private
sector in relation to HIV / AIDS such as counseling services, treatment for opportunistic
infections, hospice care, mental health service, rehabilitation centre, socio economic
support, ARV therapy, STI, FP, TB, support groups, home care and spiritual counseling
for the care and support of PLWHA.
2. Explore the needs and expectations of PLWHA particularly those in vulnerable groups
[FSW, IDU, clients of FSW] and more especially their needs concerning care and support
services. Assessment of those services in-terms of;
• Accessibility
• Acceptability
• Affordability
• Availability
42
ANNEX 2: VCT Need assessment questionnaires
The information collected using this guideline will be kept confidential and use for programme
planning purposes only.
A. Problems:
1. First of all, could you please tell me about any problems you have been having, and how you try to deal
with those problems?
What are the major problems (Economic, Social) faced by you and your friends?
(Spontaneous list of problems develop a checklist of problems now - and then grade these into
seriousness - most serious, moderate and least serious)
For each major problem ask the whole story of exactly what it happen; Focus on one of the problems
the person mentioned, and ask: “Depending on ‘the story’ ask
- How serious was it?
- How did you try to get help for that problem?
- Who did you go to?
- Who did you talk with about it?
- When and where did this happen?
- Who is the person who helped you?
- Why it is serious
2. Where do you go when you are ill? Where you got support including address and location.
Ask details about;
Ask where she goes for assistance for each
problem, list of services? (For this, do a
• Emotional support, religious, NGO, etc, free listing first and then use a pre-
• Material support --food, clothing, etc, developed checklist focussing on services,
• Social support -relations hip, affection, persons, institutions, places where they are
etc., provided modern medicine, traditional,
• Economic support (money, what spiritual, others), persons to contact,
places/institutions).
happens if there is no business, you are
ill, etc.)
43
3. If there is a health problem;
- What are the common health problems faced by you and your friends?
(Again for health problems too do a free listing and compare the problems with the pre-developed list and do
grading according to seriousness most serious, moderate and least serious)
Note for the facilitator:
• Diarrhea
• Chest infection/cough/common cold
• Loss of appetite
• Skin infections
• Weight loss
• Headaches
• Psychological problems
• Tuberculosis
• STIs: genital sores, swellings, discharge from penis or vagina
Choose the first three most serious health problems and explore the questions as above WH question
and below)
4. Did you/other person consult someone about where to seek treatment? If yes, whom?
(For Interviewer; Friend/ relative –, friend/relative – with medical background, dhami/jhankri, went to
a temple, telephone hotline, other)
5. Where did receive treatment and from whom? Explore: (Probing: Modern health facility, traditional
or Ayurvedic etc
If treated by a service where they didn’t know his/her HIV status; you could ask: “Have you ever been
treated for health problem in a place where they knew you are HIV+?”(Yes??) “Are they quite good at
treating people who are HIV positive?
44
8. How was the service? (Probing questions for interviewer: Waiting time, crowded, privacy,
sex of health provider, attitude and behaviour of health worker, Knowledge and skill on subject),
did you find it comfortable to talk to the health provider about your problems.
(To interviewer: If the respondent did not visit a modern health facility for most serious health
problem) What are the major barriers for that? (For interviewer: ask informant a
spontaneous list of barriers - and then grade these into - 4 categorise)
Financial barriers – such as the cost of drugs and the need to prioritise other general supplies, such as
food.
Organisational barriers – such as poor administration of treatment services and lack of skilled staff.
Physical barriers – such as treatment facilities being distant and transport
not being available.
Social barriers – such as stigma being associated with a treatment and
people being concerned about confidentiality.
d. What were your/other person’s worries? (Curiosity about the disease, its seriousness, the way
it was contracted, what could be done, who could help, etc.)
e. How long did you/other person wait for seeking treatment (delay in seeking treatment).IF
WAITED: What were reasons to wait?
(After discussing about most serious health problems and related issues find out about the preference
of the respondent for certain health facilities and reasons for preference) [Use Matrix Chart to find out
preferences]
8. If psychological problems were not mentioned, ask: “Do you talk with anybody who gives
you psychological support or advises about keeping up your spirits, your inner strength or things
like that? Who? What kind of a person?
9. What about support from your family? and support from community?
10. If the person mentions problems of stigmatization in the family: “Did you ever get anybody to talk
with your family about HIV, to get them to understand better?” [If no such help: ‘Do you think that
45
could help? ---that someone comes to talk with your family members and explains more about HIV, etc.
etc…]
10. (Did he or she mention HIV positive groups??) What about HIV positive groups? (If s/ he goes to a
group.) What kind of help do you get in the group? How does the group help? What do you share in
groups?
B. Inventory of services, facilities and other resources for the treatment, care and support of
PLWA:
In your area, where do the PLWA group usually go for treatment of HIV related illness? give group a
task
Task 1: A simple treatment (such as paracetamol for pain relief).
Task 2: A well-known but less simple treatment (opportunistic inf such as for TB).
Task 3: An antiretroviral drug.
Mark the places in the community where the drugs for HIV treatment are available to a person with HIV.
These might include their home, clinic, hospital, pharmacy, NGO, traditional healer, private practice
practitioner or market place.
General Probe: Are there any other places or people that maybe helped you or gave some support
some time or other? Any organizations, or persons, anybody?
What types of health facilities are available for HIV/AIDS and where are they? Points out in map and
list the description. How is the service? (Affordable, accessible, acceptable, available).
What is generally available for HIV treatment and care? Where PLWA can go for health services?
Draw a map showing about the overall availability of drugs for HIV related treatment in the local
community? What types of drugs are more available than others? Why?
Do you know any doctor or clinic in the area that is known for good treatment of HIV people (where
is it on the map)
- If the respondents indicate that there is a doctor who is good with HIV persons, who is he or
she? What does she do? Have you been checked by her/him? Where do they refer the cases
for the further consultation? Please give us all the details about that person or clinic. Do you
sometimes accompany other PLWHAs to that clinic? Please tell more about that.
- For what kinds of illness do they treat specify. Such as: simple illness, treat TB, or ARV
therapy.
If there is a support group of PLWHA: Can you tell us all about that group? How long has it been
meeting? Who is the head of the group? What kinds of people are in the group? What types of
services they are providing? What type of support you have given and taken among your group?
Are there any PLWHA group /networks in your community? and other NGOs that focuses on
PLWHAs? How are they working?
Are there any other organizations or facilities (or NGOs) in your knowledge that could possibly play
a role in helping PLWHAs? What kinds of help they could offer (support, treatment, referral or
other)? List and Mark on the map
Do you know any other social organizations that working for PLWA beyond health services?
46
1. Do you know of anybody who has gone for an HIV test? If yes where, when, how s/he decided
for testing? Who and where was test performed?
2. Who suggest them for test?
3. Why do people go for testing?
4. Do you think people should be tested?
5. Who should be tested?
6. Do many people go for testing? If no, why not?
7. What are the benefits/drawbacks of testing for HIV?
8. Have you /your friends ever been counseled? If yes, who and where have you been counseled?
And on what topic?
9. Have you ever heard of HIV/AIDS voluntary counseling and testing (VCT)? If no listen to me:
1. What is your opinion about the starting VCT program in your areas.[positive and negative aspects]
2. If you have NOT taken an HIV test before, what will motivate you to go for a test? (Only ask for
IDU and FSW (Checklist for interviewer, Do not read out the options.)
3. Can you suggest effective way to run this program for the maximum benefit to the beneficiaries?
How VCT service could be friendly to target group and any individual who like to do regardless of
status.
4. How could PLWA and vulnerable people’s involvement and participation can be done in the
designing and implementation of the VCT
2) What are the experiences of PLWHAs regarding testing and follow-up, and related issues? What
kinds of special needs, services, has he or she contacted, or needs to contact?(Get plenty of
descriptive details; get specific events )
3) Did you or your friend tried for the treatment of HIV/AIDS (ARV)? If yes where did you go?
Who prescribed the ARV?
4) Where and how do you get information about HIV care and treatment? What drugs and
treatments are accessible locally, including pharmaceutical, drugs, traditional, herbal or home
remedies and supportive measures?
47
5) What is the existing support system for the PLWA? (psychological, material, referral etc) Do any
organizations providing support and care to you (PLWA)? If yes list the name and their area of
services. Spot on map for the location.
6) What is the input on care and support from the friends, family, and the community?
7) What is professional medical input? – Nurses, doctors, pharmacists etc? - Diagnosis, treatment, -
referral and follow up, - nursing care, - counselling, -support to meet psychological, spiritual,
economic, social, and legal needs.
8) What should we do to make the services user-friendly to you and your friends? What type of
support is important for HIV + positive?
9) What can you do against HIV as a group? Where you can get support in your city?
11) When he or she went to a particular health service or other organization. What happened? Who is
helpful?
12) What recommendations concerning testing services, counseling, etc. does he or she suggest?
Who should provide HIV testing? In what kind of location(s)?
13) What are the kinds of supporting help that people have turned to, both for health care and other
support? What kinds of supporting services need to be developed? What organizations in the
community might help in these matters?
14) What do you think should be done—should there be more HIV testing available, and how, where
should it be done? Who all do you think should go for testing?
15) What measures are doing by Govt, NGOs and other agencies / individuals for the prevention,
care and support? What do you think about these services; are they effective?
16) What could be done for the improvement of existing health service and treatment system? in-
terms of quality of treatment, accessibility and user friendly?
Thank you very much for all the valuable information you have given me.
48
ANNEX 3: Questionnaire for Medical prescribers
The information collected using this guideline shall be kept confidential and used for programme planning
purposes only.
1. How did you get involved in helping PLHA, what kind of helps do you give and what support
do you get? (Treatment, care, social support, economical support etc)
3. What are common problems you see with health and HIV when you are helping PLHA? How
do you find out and manage the problems?
4. What are your feelings, attitudes, beliefs about treatment for illnesses related to HIV /AIDS?
(For the interviewer guide - eg. some treatment is possible with simple drugs; simple drugs are
available but not really worth doing anything; if we can get antiretrovirals it is worth doing
something; don’t want HIV patients coming to my clinic - puts off other patients; worth treating
early illness but nothing can be done for late-stage patients; palliative care is important, but we
need good analgesics; can’t get morphine so can’t do palliative care)
- How much of your work relates to HIV-related conditions eg: proportion of time taken up,
- How has practice changed as epidemic developed?
- How do you decide what conditions to treat and with what?
- Tools e.g. do you have up to date information & training on HIV?; do you have up to date drug
information, if not what is the problem;
- Do you have standard treatment guidelines?
6. What technical support is available for treatment? If you are providing ARV in what basis do
you give? How do you diagnose the cases?
(E.g.: diagnostic tests, monitoring CD4 / viral loads, improving adherence via pharmacist,
nurse, doctor, counseling, family/volunteers etc?)
8. Are you able to refer patients for specialist help when needed?(-eg: where to, under what
conditions, what barriers are there, what happens, are patients referred back to community when
specialist help no longer appropriate?)
9. Are you able to refer patients for home/community care when needed? eg: under what
conditions, what care and support is available, what other needs have to be met as well as
treatment?
10. What are the major problems do you encountered in the treatment process of
PLWA/PLWHA? how do you solve/ manage the situation ?
11. Do you know any persons/ agencies/doctor who are giving treatment to the PLWA? (Simple
treatment or ARV therapy). Approximately how many are there and where are they? How is
there treatment quality in your opinion? Do they share experience with you?
12. What are the encouraging and discouraging factors for you during the treatment process of
PLWA?
C. Contextual issues
12. Who supplies drugs etc. for treatment, (e.g.: sources of supply, local, national, international)
13. What alternatives are possible if the supplies you want are unavailable or unaffordable?
14. Are traditional treatments or local remedies used alongside or instead of conventional
medical treatments? How can use of these treatments/ remedies be improved?
15. What are your experiences with PLHA coming for treatments?
-Please tick all that apply:
18. What effects do the treatments prescribed by you have on the lives of the PLHA you
help?
Please, briefly, give us your opinions on each of the following questions:
18.3 What are your experiences in helping PLHA to get and use treatments?
18.4. Do treatments make a difference to PLHA and their families? What are the main
difficulties in accessing or using them, and what improvements could be made? - diagram:
18.5. What are some problems you see with health and HIV when you are helping
PLHA? How do you find out and decide what to do about them?
51
18.6 What are the current advantages and disadvantages of providing treatments? How might the
situation be improved or changed for the future? What are the barriers to future change?
19. Which of the following services do you provide? (For HIV AIDS service organizations)
Type of service YES NO
20. In the last 12 months please estimate the total number of patients/clients your institution
served?
22. Do you refer clients (PLWA) to any of the following? If yes where and how many for each?
a. Medical services
b. Social services
c. Other counselling services
d. NGOs
52
e. Family planning
f. MCH services
g. TB/chest clinic
h. STI services
i. Traditional healers
j. Spiritual groups
k. HIV prevention programs
l. Care and support service
m. Others (specify)
23. When you refer clients, does your agency/facility have a way of tracking referrals?
1. No
2. Yes, if so, how and by whom
24. Supplies
25. What is the single most important change you would suggest for your organisation to
improve services for HIV-infected individuals or families affected by HIV?
26. List three barriers that your organisation/you has faced when providing care to people living
with HIV/AIDS.
27.Which of the following would help you to better serve clients/patients living with
HIV? Please explain how.
Would help? How?
1. Opportunities for networking □ Yes
among providers to share □ No
information and HIV care and
available resources.
2. Training to gain additional □ Yes
experience/knowledge about □ No
providing HIV care, such as ARV,
dealing with opportunistic
infections, and monitoring and
explaining patient’s health status
3. Providing services in a more □ Yes
convenient manners (such as □ No
better office hours, quicker
53
appointments, less waiting)
4. Training on how to better □ Yes
advocate for clients/patients □ No
5. More funding □ Yes
□ No
6. Other specify □ Yes
□ No
28. What are the future plans (short term, mid term and long term) of this organization in term of
HIV/AIDS care and support?
54
ANNEX 4: Resource Directory
6. E-mail addresses
8. Location:
9. District:
b) Range of services:
(Medical, nursing, psychosocial, home base care, hospice, spiritual care, rehabilitation centre,
mental health service)
55
19.How many clients did you referred last year? For what purposes?
25. Future Plan: What are the future plans (short term, mid term and long term) of this
organization in term of HIV/AIDS care and support?, Do you like to engage on VCT service in
future.
Title:
56
ANNEX 5: Schedule for VCT Need Assessment Team
• Confirms interviewer
for VCT need
assessment training
57
ANNEX 6: Work plan for VCT need assessment
Date Activities
2 to 6 Feb
a. Informal meeting with AMDA team
b. Orientation to key people of partners [ AMDA,
GWP,WATCH and Trinetra]
c. Establish working group and discuss the role of working
group beyond VCT need assessment
d. Review tools in consultation with working group
e. Identify participants and train for VCT Need assessment
Whole February
a. Conduct field work as per methodology designed
b. Data analysis / discussion with working group
Participants of orientation:
For training: 2 staff from each partner + Namuna Integrated council and counselor and field co-
coordinator of AMDA had participated in training and assist for VCT need assessment.
58
ANNEX 7: Resource directory of Rupandehi district
4. Telephone 071-540081
5. Fax 071-543882
7. Target population (s): Women / Men reproductive age and youth adolescence (girls and
boys)
8. Current service area (s):
----------------------------------------------------------------------------------------------------------------------------
4. Telephone 071-520630
5. Fax 071-520160
6. E-mail address NA
9. Future engagement on VCT: Willing to involve in VCT program through networking and co-
ordination with agencies
59
1. Name of the provider or agency: JICA / Community TB and Lung health project
3. Postal address: C/ O district public health office, Maitri Path, Rupandehi District
4. Telephone: 9841235879
5. Fax NA
8. Current service area (s): TB program has been implemented through partners
9. Future engagement on VCT: Willing to involve in VCT program especially referral of HIV
clients with TB
------------------------------------------------------------------------------------------------------------------------
1. Name of the provider or agency: Sahara drug treatment and Rehabilitation centre
7. Target population (s): All drug addict + HIV positive male client with IDU
9. Future engagement on VCT: Willing to involve in VCT program especially care and support
60
1. Name of the provider or agency: Butwol DOTS Clinic
5. Fax NA
6. E-mail addresses NA
-----------------------------------------------------------------------------------------------------------------------------
4. Telephone:
5. Fax
6. E-mail addresses
61
1. Name of the provider or agency: AMDA – Nepal, Siddharth children and women hospital
5. Fax : 071-544691
• Preventive
• Curative: Medical, nursing, psychosocial, spiritual care
--------------------------------------------------------------------------------------------------------------------------
5. Fax :
7. Target population (s): IDUs, sex workers and their clients, young people and women
group
8. Current service area (s):
• Preventive
• Counselling which include hot line telephone service too
• Psychosocial
• Home base care
• Spiritual care
• Rehabilitation
9. Future engagement on VCT: Willing to involve in VCT program especially work with
PLWHA, pre and post test counselling, home base care and risk
reduction activities
62
1. Name of the provider or agency: DDC / Local Development Fund (LDF)
6. E-mail addresses:
• Preventive
• Advocacy
-------------------------------------------------------------------------------------------------------------------------
• Preventive
• Curative: Medical, testing, nursing, psychosocial, spiritual care
63
1. Name of the provider or agency: Nepal Red Cross society
5. Fax : NA
6. E-mail addresses: NA
• Preventive
• Curative: Medical, HIV testing for blood transfusion purpose and ambulance service
------------------------------------------------------------------------------------------------------------------
5. Fax :
• Preventive
• Medical,
• Psychosocial
• Spiritual care
• Rehabilitation
• Counselling, Meditation
64
1. Name of the provider or agency: Singh Medical Hall
5. Fax : NA
6. E-mail addresses: NA
• Preventive
• Curative
• Palliative
• Medical,
• Psychosocial
-----------------------------------------------------------------------------------------------------------------------------
• Education course
• DOTs Programme
• CDP programme
65
1. Name of the provider or agency: ADRA – Nepal
6. E-mail addresses: NA
• Psychosocial
• Mental health service
• Sexual and reproductive health
---------------------------------------------------------------------------------------------------------------------------
6. E-mail addresses: NA
• Medical
• Nursing
• Home base care
• Psychosocial
• Mental health service
9. Future engagement on VCT: Willing to engage at district and Zonal hospital on VCT
programme
66
1. Name of the provider or agency: WATCH
• Medical
• Nursing
• Home base care
• Psychosocial
• Spiritual care
------------------------------------------------------------------------------------------------------------------------------
5. Fax :
7. Target population (s): School youth, out of school youth, community people
• Awareness
• Networking to related VDC, Health post, hospital
67
1. Name of the provider or agency: Mahial Ekta Kendra
5. Fax :
6. E-mail addresses:
8. Current service area (s): Women rights and Economic support to PLWHA women
------------------------------------------------------------------------------------------------------------------------------
5. Fax :
6. E-mail addresses:
68
1. Name of the provider or agency: MCH clinic Butwol
5. Fax :
6. E-mail addresses:
• Preventive
• Curative: Nursing, Psychosocial, home base care
• Palliative
69
ANNEX 7: Resource directory of Chitwan district
5. Fax :
• Medical
• Psychosocial
• Counselling
• Reintegration IDU cases
• Home base care, Spiritual care
• Rehabilitation centre
• Mental health service
9. Future engagement on VCT: Willing to involve in VCT program especially care and support
-----------------------------------------------------------------------------------------------------------------------------
5. Fax :
6. E-mail addresses:
• Preventive program
• Training to government health workers, CHV, TBAs
70
1. Name of the provider or agency: Chitwan Sakriya Samuha, Chitwan
4. Fax :
5. E-mail addresses:
--------------------------------------------------------------------------------------------------------------------------
5. Fax :
6. E-mail addresses:
• Psychosocial
• Home base care
• Ayurbedic treatment
• Mental health service
71
1. Name of the provider or agency: Diyalo Pariwar, Chitwan
Preventive: HIV / AIDS component has been carried out as the cross cutting approach
9. Future engagement on VCT: Plan to implement HIV / AIDS program with support of
UNICEF, so VCT can integrate
----------------------------------------------------------------------------------------------------------------------
• Preventive:
• Curative: Medical, nursing, psychosocial, spiritual care for Kaposi’s sarcoma cases
• Palliative
• Hospice
• Counselling
9. Future engagement on VCT: Willing to involve in VCT program especially for referral and
care of AIDS cases
72
1. Name of the provider or agency: RHIYA
3. Postal address: RHIYA Tandi, Sworaha chowk, near by shree tel Udyog
Chitwan district,
5. Fax :
6. E-mail addresses:
7. Target population (s): All 10 to 24 years adolescence/ youth married and unmarried
8. Current service area (s):
9. Future engagement on VCT: Willing to involve in VCT program especially for youth
mobilization
-------------------------------------------------------------------------------------------------------------------------------
3. Postal address: Nava Kiran Plus, Bharatpur -10 Chaubish kothi Chitwan, near by
Balmandir chowk
4. Telephone:
6. Fax :
9. Future engagement on VCT: Willing to involve in VCT program especially for the treatment
of PLWHA
73
1. Name of the provider or agency: Action Aid Nepal, Chitwan
3. Postal address: Action Aid Nepal, Lila Chowk, near Narayani river Bharatpur,
Chitwan
6. E-mail addresses:
7. Target population (s): FSW, PLWHA
9. Future engagement on VCT: Willing to involve in VCT program especially for care and
support program
---------------------------------------------------------------------------------------------------------------------------
7. E-mail addresses:
74
1. Name of the provider or agency: Marie Stopes centre
5. Fax :
7. E-mail addresses:
• Mobile clinic
• Economic support to PLWHA for income generating
• Counselling
• STI treatment
----------------------------------------------------------------------------------------------------------------------
75
1. Name of the provider or agency: Bharatpur Hospital
5. Fax :
6. E-mail addresses:
• Medical
• Nursing
• Psychosocial
• Rehabilitation
• Mental health service
9. Future engagement on VCT: Willing to involve in VCT program especially testing, treatment
and referral to PLWHA.
------------------------------------------------------------------------------------------------------------------------------
3. Postal address: Nepal CRS Company, Lilachowk, NATA Building Bharatpur -1,
Chitwan
5. Fax :
• Medical
• Home base care
76
1. Name of the provider or agency: Maiti Nepal, Bharatpur
6. E-mail addresses:
9. Future engagement on VCT: Willing to involve in VCT program especially care and support
----------------------------------------------------------------------------------------------------------------------------
• Medical
• Nursing
• Awareness and education focussed on sexual and reproductive health
9. Future engagement on VCT: Very soon FPAN is going to start VCT services.
77
1. Name of the provider or agency: DPHO, Chitwan
6. E-mail addresses:
• Preventive
• Curative: DOTS, safer motherhood, child hood program
78
ANNEX 8: Resource directory of Nawalparasi district
3. Postal address: Nepal Red cross society, hospital line Ram Gram -5
Nawalparashi
5. Fax :
6. E-mail addresses:
• Counselling
• Blood testing for HIV
• Preventive
• Curative
9. Future engagement on VCT: Willing to involve in VCT program especially care and support
------------------------------------------------------------------------------------------------------------------------------
5. Fax :
6. E-mail addresses:
79
1. Name of the provider or agency: Suseli Art group
3. Postal address: Suseli Art group, Panchanagar VDC, ward -2, 4 km west from
Bardaghat, Nawalparshi
5. Fax :
6. E-mail addresses:
• Preventive program: Mass awareness at community through street drama and theatre for
development on HIV / AIDS and other social issues
-----------------------------------------------------------------------------------------------------------------------------
5. Fax :
6. E-mail addresses:
• Psychosocial
• Home base care
• Ayurbedic treatment
• Mental health service
• Spiritual care
80
1. Name of the provider or agency: Raya Medical hall
5. Fax :
6. E-mail addresses:
------------------------------------------------------------------------------------------------------------------------------
• Preventive:
• Curative : Medical, Testing, psychosocial,
• Home base care
• Nursing
9. Future engagement on VCT: Willing to involve in VCT program especially for referral and
care of AIDS cases and awarness at society
81
1. Name of the provider or agency: Vijaya Development Resource Center
• Counselling,
• Preventive, awareness arising, training
9. Future engagement on VCT: Willing to involve in VCT program especially for community
mobilization
---------------------------------------------------------------------------------------------------------------------------
5. Fax :
6. E-mail addresses:
9. Future engagement on VCT: Willing to involve in VCT program especially for the treatment
of PLWHA
82
1. Name of the provider or agency: Social Development and research centre (SDRC – Nepal)
• Preventive,
• Joint work with VDC, DDC, CBOs, NGOs
--------------------------------------------------------------------------------------------------------------------------
5. Fax :
6. E-mail addresses:
9. Future engagement on VCT: Willing to involve in VCT program as per Govt plan
83
1. Name of the provider or agency: Sraddha Medical Hall
6. E-mail addresses:
• Preventive
• Curative: Medical, referral, mental health service
• Psychosocial
• Home base care
-------------------------------------------------------------------------------------------------------------------------------
9. Future engagement on VCT: Willing to involve in VCT program especially conduct awarness
program.
84
1. Name of the provider or agency: Kali Gandaki Hospital / PHC
5. Fax :
6. E-mail addresses:
• Medical
• Nursing
• Psychosocial
9. Future engagement on VCT: Willing to involve in VCT program especially testing, treatment
and referral to PLWHA.
-----------------------------------------------------------------------------------------------------------------------------
5. Fax :
6. E-mail addresses:
85
1. Name of the provider or agency: Social Creative Group
5. Fax :
6. E-mail addresses:
• Preventive
• Curative
------------------------------------------------------------------------------------------------------------------------------
5. Fax :
6. E-mail addresses:
• Medical
• Nursing
• Home base care
• Spiritual care
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1. Name of the provider or agency: Disabled Rehabilitation Center
6. E-mail addresses:
• Preventive
• Home base care
• Medical
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9. Future engagement on VCT: Willing to involve in VCT program especially care and support
of TB with HIV
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ANNEX 9: Map of Resource Directory
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