MOVING TOWARD A WORLD FREE OF MS | VOLUME 7 EDITION 2

MSCONNECTION
GATEWAY TO WELLNESS
This was a fantastic program. I learned a lot about myself and it was great to share with others who know what youre going through, wrote a Gateway to Wellness participant. The six-week health and education program, co-led by a health-care professional and a person with MS promotes wellness, self-management, and balance in lifestyle. Gateway to Wellness has touched the lives of over 500 Michigan participants since the chapter started the program a little over ten years ago. Gateway classes meet two hours once a week for

MICHIGAN CHAPTER

Influencing Lives for the Past Decade

education, skills training, exercise, and goal setting. Participants learn and practice daily living skills in a supportive environment. No one finishes the program without changing something, says Diana Hohn, one of the Michigan program founding facilitators. Gateway is for individuals with all levels of ability or disability. Trained facilitators present current information on fatigue, nutrition, and a variety of other topics. A health professional helps people with MS incorporate exercise into their life and learn to set realistic goals. The program Continued on page 2

REGISTRATION INFO
Interested in participating in the Gateway to Wellness Program? Please request an application by calling 800 344 4867 option #1 or send an email request to: christy.bomba@mig.nmss.org

INSIDE THIS ISSUE

Relationship Matters PAGE 4

MS Advocates in Lansing PAGE 6

Camp Independence PAGE 10

Join The Movement! PAGE 13

MSCONNECTION
A PUBLICATION OF THE NATIONAL MULTIPLE SCLEROSIS SOCIETY, MICHIGAN CHAPTER
21311 Civic Center Dr. Southfield, MI 48076-3911 Ph: 800 344 4867 or 248 351 2190 Fax: 248 350 0029 E-mail: info@mig.nmss.org Chapter Chair Dean Munger Chapter President Elana Sullivan Newsletter Editor Chris Collins The National Multiple Sclerosis Society does not endorse products, services or manufacturers. Such names appear here solely because they are considered valuable information. The National Multiple Sclerosis Society assumes no liability for the use of contents of any product or service mentioned. Information provided by the Society is based upon professional advice, published, experience and expert opinion. Information provided in response to questions does not constitute therapeutic recommendations or prescriptions. The National Multiple Sclerosis Society recommends that all questions and information be discussed with a personal physician. The National Multiple Sclerosis Society is dedicated to ending the devastating effects of MS.
Copyright 2010 National MS Society, Michigan Chapter

Gateway to Wellness continued from page 1 created specifically for people with MS by Peggy Neufeld, a Washington University occupational therapy faculty member helps people with MS focus on wellness rather than illness! While some people arrive with an attitude of I cant, through class interactions they discover that everyone can control some aspect of their day-to-day living. Hohn vividly remembers a participant who turned his life around through the program. Ray, a scooter user with partial use of one limb, started the program depressed and negative. In the program he learned to reframe and rename his life experiences, he turned negatives into positives. He started and stayed with an exercise program. Gateway group members and goal setting provided the reinforcement he needed to gain a sense of empowerment. Anecdotal evidence shows that Gateway to Wellness can be a gateway to the National MS Society. Gateway was the first NMSS program a Holland woman ever attended during 29 years of living with MS. She was thrilled with the program and enthusiastically said she would attend other educational programs and try out the local self-help group. Gateway to Wellness sessions will take place this fall in Royal Oak, Grand Rapids, and Bay City. Call 1-800-344-4867 for an application. Enrollment is limited. Make the programs tenth anniversary year your gateway to wellness. For more information regarding the upcoming Gateway to Wellness classes being offered please see the Michigan Chapter Program Calendar on page 11.

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NEWS

HAVE A QUESTION?
Answers when you need them. Dial 1-800344-4867. Some 200,000 callers a year dial this number. Regardless of why they call, they tap into a network linking them to the chapter of the National MS Society that is nearest to them (the phone company cleverly does this) and to a vast database of resources managed by our Information Resource Center, or the IRC, in Denver, Colo. One phone number works for the entire country. If you should call after hours, youll be asked to leave a message. But if you have an emergency, dont wait. Call 911 right away and plan to get in touch with us as soon as the immediate problem has been resolved.

ADA CELEBRATES 20 YEARS

The Americans with Disabilities Act (ADA), signed into law in July 1990, promised to change the landscape for citizens with disabilities. But the ADAs promise will be reached only if we remain committed to full implementation, said David Chatel, the Societys executive vice president of Advocacy. We can best celebrate our progress by reaffirming our principles of equality and inclusion, said Joyce Nelson, the Societys president and CEO. Learn more! Visit nationalMSsociety.org/ADA.

CHAPTER ANNUAL MEETING AND CALL FOR BOARD NOMINATIONS

Invitations for the Chapters Annual Meeting and Volunteer Recognition Celebration to be held in November will be coming in the mail early this fall. The Board of Trustees of the National MS Society, Michigan Chapter is elected at the chapters Annual Meeting each year. If you are interested, or know of someone who is interested in serving on the Board of Trustees, please send a letter expressing that interest and a resume to the Board of Trustees Governance Committee, c/o the Michigan Chapter, 21311 Civic Center Drive, Southfield MI 48076 prior to October 29, 2010. If you have any questions, please call Chapter President Elana Sullivan at 248 351 2190 or email elana.sullivan@mig.nmss.org.
TOLL FREE NUMBER 1 800 344 4867 | 3

GO GREEN & HELP SAVE THOUSANDS!

Did you know that with your help the Michigan Chapter can save thousands of dollars annually? Our environment would also benefit by the huge reduction of paper usage. How can you help? Sign up now to receive MS Connection and other mailings electronically. Try it. If you change your mind, we can always put you back on the list to receive printed copies. To sign up, visit our website at www.nationalmssociety.org/mig. Complete the short form, and thats it!

LIVING WITH MS

IN MS, RELATIONSHIP MATTERS

WHEN THE DIAGNOSIS IS PRIMARY PROGRESSIVE

Call 1-800-344-4867 for your free copy of Primary Progressive Multiple Sclerosis: What You Need to Know. In this 156-page-book, experts Dr. Jack G. Burks, Dr. Nancy J. Holland and Dr. Diana M. Schneider address symptom management, treatment options, rehabilitation, technology and adaptations, quality-of-life issues, carepartner resources and much more. The book, jointly sponsored by the Society and the Multiple Sclerosis Association of America, comes with a companion DVD, featuring five people who are living with primary-progressive MS. Their comments also appear throughout the book, grounding the advice in real-life situations. The book and DVD were developed following recommendations from a Society task force on the needs of people affected by this type of MS. Publication and free copies to people with primary-progressive MS have been made possible by a generous educational grant from Genentech. For more facts and strategies, visit our online webcast series at nationalMSsociety.org/ ppmsweb. RESEARCH

A Relationship Matters class in action

Photo courtesy of Christian Brown

When you know how to take charge as a couple, MS doesnt have to rule your relationship. MS doesnt make relationships easier, but it can make them matter even more. The Societys amazing Relationship Matters program for couples living with MS has been making a powerful difference. As one participant put it, After 22 years I thought we were pretty good (but) I learned a lot of new ideas. In person classes will be offered in Grand Blanc and Gaylord during November. Online and teleconference sessions are also available. All offer interactive curricula on challenges related to MS. Registration is ongoing. Just call 1-800-3444867 or e-mail couplesprogram@nmss.org.
Funding for this program is provided by U.S. Dept.of Health and Human Services, Administration for Children and Families, Grant: 90FE0090

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LIVING WITH MS

THE DOCTOR DILEMMA

BY SUE CHAPMAN, MA, MSW
Much is written about taking the best advantage of your appointment with your doctor. Suggestions like writing your questions down so as not to forget and then writing down what he tells you to keep his advice fresh afterward are invaluable. As well, take someone with you on the valid premise that four ears can be better than two. Keep track of your health developments between visits so you can give an accurate report of your situation. Choosing a doctor also has options. Referrals from the MS Society, recommendations from friends, preferred providers through your insurance are all valid ways to select a neurologist. Ultimately, the final decision rests with you-the patient. Over the years, I have had the opportunity to talk with many folks with MS about the treatment they receive from their doctors. Happily, the majority of those I speak with are satisfied with the treatment they get remaining with the same doctor for years. But, every rule has exceptions and these are the focus of this article. Sadly, on top of the challenges of MS, folks sometimes express frustration with their doctors. They report, even after an hour or more in the waiting room, feeling rushed through the visit increasing their aggravation. Another source of angst surfaces when patient calls arent returned. Or, in the face of an exacerbation, waiting weeks for an appointment. Others report being crushed to learn that a promising new treatment/drug wont help them with little or no explanation.

Even more disheartening is when a newly diagnosed person is told they have the most severe type of MS. Remember, Im no doctor, but as an Information and Referral volunteer for many years, the devastation heard in the voices of those receiving this information is profound. We give a lot of lip service and glib rhetoric about the lack of bedside manner in certain doctors, but this remains a serious problem in the medical community. There are a couple solutions: First, give your doctor a chance by telling him/her your concerns and disappointments. If that fails to produce satisfactory change then find a new doctor. Again, you are the master of your destiny, take control! MS can present many challenges; your doctor should not be one of them.

TOLL FREE NUMBER 1 800 344 4867

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ADVOCACY

MS ACTIVISTS MAKE MS A PRIORITY IN LANSING AND ON CAPITOL HILL

ISSUES ADDRESSED ON CAPITOL HILL

At the 2010 MS Public Policy Conference, MS activists pushed forward major initiatives that will impact disease understanding and research. MS activists, who gathered in Washington, D.C., this March, sought co-sponsors for the National MS and Parkinsons Disease Registries Act. A national MS registry could provide invaluable information on the incidence and prevalence of the disease, allowing researchers to investigate potential geographic, genetic or environmental risk factors. Activists requested a $15 million appropriation to the Department of Defenses Congressionally Directed Medical Research Programs for MS research. The availability of respite care for all age and disability groups is at a dismal low. Activists urged legislators to commit $94.81 million to help stressed-out families and caregivers through the Lifespan Respite Care Act To find out more about MS advocacy and how to get involved in public policy issues, visit nationalMSsociety.org/mig.

Photo: Scott Crawford

MS DAY AT THE CAPITOL

MS activists tackled Michigan issues that will impact people with MS at the second annual MS Day at the Capitol. Work to improve the availability of home care was advanced through our support for $20 million increased funding for MI Choice, the Home and Community Based Medicaid Waiver program. We advocated for access to quality, trained home care workers by making permanent the Michigan Quality Community Care Council. Delegates opposed bills and any future legislative action that will compromise the ethical conduct of stem cell research. Such research is already regulated by Federal guidelines and authorized by Michigan residents, when they voted in 2008 in support of eliminating Michigans previous stem cell restrictions.
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Michigan Chapter Advocates in Lansing

NEWS

TUNE IN TO MS FROM A TO Z ONLINE

MS from A to Z features MS experts speaking on a range of topics such as alternative medicine, cognitive issues, depression, employment, new directions in research, pain, vitamins and more. Nationwide access to these once-a-month episodes is available at researchchannel.org

(search for MS from A to Z). The first episode, aired February 2nd, featured an overview of the series by Dr. George Kraft, principal investigator at the University of Washington Multiple Sclerosis Rehabilitation Research and Training Center. Episodes can be watched online at any time, or listened to as a downloaded MP3 file, so theres really no reason to miss a single one. Plan to tune in. This online series is produced by the University of Washington.

ANNOUNCING 2010 SCHOLARSHIP WINNERS

Arnetia Vaughn-Scott (upper left), Elizabeth Markham (middle left) and Becky LaHaie (lower left) are the recipients of the Michigan chapters 2010 scholarship awards. Michigan high school seniors who have multiple sclerosis (MS) or a parent with MS are eligible to apply for scholarships. Also, high school graduates (or GED) of any age who have MS or a parent with MS are eligible. Applicants must also plan to attend an accredited post secondary school for the first time. After graduation from Detroit School of Arts, Arnetia will attend University of Michigan in Ann Arbor. She plans to study psychology. Elizabeth is headed to Western Michigan University after receiving her diploma from Harper Creek High School in Battle Creek. She hopes to earn a nursing degree. Becky just graduated from Alpena High and is looking forward to starting Central Michigan University this fall. She will major in business. The annual scholarship program opens in the fall of each year and applications will be available. Amounts vary from year to year, but this years recipients received a $1000 award. To learn more about the NMSS Scholarship Program call 800-344-4867 or visit our website at www.nationalmssociety.org.
TOLL FREE NUMBER 1 800 344 4867 | 7

RESEARCH

STAY INFORMED ON CCSVI

ORAL DRUGS MAKE PROGRESS

Oral drugs for MS are getting even closer to the doctors office, with one, Ampyra, now available by prescription. Heres the scoop: The FDA approved Ampyra (dalfampridine, Acorda Therapeutics) in January for its ability to improve walking in people with MS. People with MS and their healthcare providers can call 888881-1918 for information on Ampyra, including patient assistance programs and insurance coverage. (The drug is costly: wholesale price is estimated to be $1,056 for a 30-day supply.) Watch Dr. Patricia Coyle talk about what Amypra does, how it works and possible side effects at nationalMSsociety.org/ampyra. Fingolimod, an oral disease-modifying drug for MS received support from the FDA advisory committee in June. While the FDA is not required to follow recommendations of its advisory committees, it usually does. The Agency is expected to make a final decision about whether to approve the drug in September, 2010. Read the studies thus far at nationalMSsociety.org/fingolimod. With positive results in the latest studies, Cladribine, another oral disease-modifying drug, is in the process of applying for marketing approval. Visit nationalMSsociety.org/news and type cladribine in the search field to learn more. Get the latest news on oral drugs sent directly to your inbox. Visit nationalMSsociety.org/signup to create a user profile and start getting the MS eNEWS!

Society leaders meet with CCSVI researcher Dr. Paulo Zamboni (second from left) at a NYU briefing chaired by Dr. Joseph Herbert (second from right).

Theres been a lot in the news lately about CCSVI, a blood flow drainage abnormality in the brain and spinal cord that some studies indicate may be linked to the damage wrought by MS. The Society is pursuing this potential MS lead by undertaking the funding of new research in CCSVI (chronic cerebrospinal venous insufficiency) in MS and has invited investigators worldwide to apply for grants on the topic. We collaborated with the MS Society of Canada to convene an international panel of experts to conduct an accelerated review of proposals and working with our sister MS Societies around the world to assure that our research strategies are coordinated. New CCSVI research projects are expected to begin July 1, 2010. Track the story To stay up-to-date on the latest developments on CCSVI research, visit nationalMSsociety.org/ CCSVI.

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MONEY MATTERS

NEED HELP PAYING FOR MS DRUGS?

Managing the costs of MS meds is a huge challenge, especially for people with no insurance or who are underinsured. But some help is available. Each disease-modifying drug manufacturer and many makers of medications that treat MS symptoms have Patient Assistance Programs (PAPs), which offer free or low-cost medications to those who qualify. Prescription drug discount programs can help as well. Ask your doctor if there is a generic version available for any prescription. Patience may be needed to get benefits, however. You can get support and information from the Society too. Visit nationalMSsociety.org/underinsured or call us at 1-800-344-4867.
RESOURCE CENTERS These centers can help with information, applications and exploring your options. Name NeedyMeds Partnership for Prescription Assistance RxAssist Drug Name Avonex Betaseron Copaxone Extavia Novantrone Rebif Tysabri Website NeedyMeds.org pparx.org RxAssist.org Phone Number (online service only) 888-477-2669 401-729-3284 Website msactivesource.com betaseron.com sharedsolutions.com No Web site No Web site mslifelines.com msactivesource.com Phone 800-456-2255 800-788-1467I 800-887-8100 866-925-2333 877-447-3243 877-447-3243 800-456-2255

For help in purchasing disease-modifying drugs Resource MS Active Source BETA PLUS Patient Support Program Shared Solutions Extavia Patient Support Program Novantrone Patient Assistance Program MS Lifelines Access Made Simple MS Active Source

For help in purchasing drugs that address MS symptoms Drug Ampyra (fampridine-SR) Baclofen (intrathecal only) Cymbalta (duloxetine HCI) Ditropan XL (oxybutynin chloride) Neurontin (gabapentin) Website ampyra.com rarediseases.org/programs/medication lillycares.com jjpaf.org pfizerhelpfulanswers.com Phone Number 888-881-1918 800-999-6673 800-545-6962 800-652-6227 866-706-2400

Call an MS Navigator at 1-800-344-4867 about other drugs or state-supported patient assistance programs. The information here is not guaranteed to be up to date as programs may change, but we hope this helps you get started.
TOLL FREE NUMBER 1 800 344 4867 | 9

NEWLY DIAGNOSED REGIONAL NEWS

(continued from previous page)

Washington, HELP THAT YOU CAN just says, You need need one for medications toexercise COUNTyou a prescription for a regular slow program as much as ON down your diseaseIn addition,yourcan arrange for a number of or control we symptoms. The difficult economic times across the state of to ask your physician for that prescription and services including transportation to medical You may need Michiganfor aaffectingto a physical therapist or a rehabilitation physician are referral appointments, home care assistance, short-term a significant number may need to educate the therapist about MS. As Dr. counseling services, and rehabilitation therapies. and you of its citizens. Many out, many Chaptertrained inlimited medicine or how The PTs are also has sports assistance for Kraft points people are finding it the aftereffects ofand mortgage payments.about their utility, rent accidents or stroke. Ask to deal with difficult to make ends experience with MS. Its appropriate to invite a PT to contact the Last fiscal year the Chapter assisted with more meet. Combined with Societys Professional Resource Center at HealthProf_info@nmss. than 335 member requests for financial aid. A the stress of managing a chronic illness like org to learn more about MS. application was developed that new simpler MS, some of our Chapter members may feel will make it easier for members to get access to overwhelmed. To help alleviate somealsothe Its of appropriate to develop an exercise program that tsthe your products and services. Help to strain, the Michigan Chapter offers financial appeals to you personally. The Illinoiscomplete lifestyle and researchers application is available just by asking. If you are assistance. analyzed studies on exercise, notneed orphysical therapy sessions. Mary, diagnosed in 1997 a member in formal know of someone who The Financial Assistance program is a service is, please have them call 1-800-344-4867. for people with MS LIVING WITH MS who qualify throughout WHERE TO FIND make a donation to help Perhaps you are able to the state. We offer assistance for the purchase us continue this important program during You can read or download PDFs of Society this and repair of medical equipment, home and difficult time. You can call the same number to brochures at nationalMSsociety.org/brochures. auto modifications, incontinence supplies, make your donation, no for print copies. For Or call 1-800-344-4867 matter how big or small. READ ALL ABOUTBecause the ramps, and personal computers. IT IN Helping to keepbrochures are divided living heat of the summer months can exacerbate SOCIETY BROCHURES the easy searching, iseach person with MS into independently an important endeavor and eight categories: General Information, Newly symptoms of MS, the Chapter also provides your assistance is appreciated. Diagnosed, Employment Issues, Staying cooling garments and window air conditioners. Whether youre recently diagnosed, or managing Well, Managing Specic Issues, Managing an old friend of a symptom, the Society offers Major Changes, For Children & Teenagers and brochures on a range of issues related to MS. Informacin en Espaol. You can also download These brochures are reviewed by experts in a PDF catalog with brief descriptions of all the MS and regularly revised forsmell of roasted marshmallowsthe feel of a light breeze off the lakethe The the most accurate publications the Society offers clients. information possible. sound of canoe paddles slapping the water. Do these conjure up an image in your mind? These sights and sounds you Some brochures updated in 2009 include are the EXTRA! EXTRA! have the opportunity to enjoy at Bay Cliff Health Camp. brochure regularly updated with breaking One Living with MS; Multiple Sclerosis and news is Disease-Modifying Drugs. The online Your Emotions; Research Directions in northwest of Marquette on Lake Superior, offers a week of Bay Cliff, located version (nationalMSsociety.org/DMD) MS; Win-Win Approach to Reasonable for adults with disabilities. Called Camp Independence, activities each year includes the most recent information possible Accommodations; Food for Thought: MS andAugust 22nd 28th and campers will enjoy things on this year it is scheduled the disease-modifying drugs Avonex, Betaseron, Nutrition; A Guide for like fishing, boating, hiking, and singing around a campfire. All of the Caregivers; Solving Copaxone, Novantrone, Rebif and Tysabri. activities are conducted under the direction of attentive and caring staff. Cognitive Problems; and Depression and The booklet covers how they are taken, their Multiple Sclerosis. In addition, a number of If this seems like a place youd like to spend some of your summer, effects, and how to pay for them. call Bay Cliff Camp at 906-345brochures are now available in Spanish. Adems, benets, side 9314 to request an application. The cost of camp is $250. If your application for camp is accepted Check regularly for new tenemos need financial assistance to cover the cost, contactbackMichigan Chapter.reports on DMDs. and you disponibles folletos en espaol. the

Courtesy of Moore, Ink.

CAMP INDEPENDENCE

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NEWLY DIAGNOSED

(continued from previous page)

REGIONAL NEWS

Washington, a MICHIGAN CHAPTER just says, You need need one for medications toexercise PROGRAMprescription for a regular slow program as much as you CALENDAR down your disease8 Hours to a Lifetime of Relationship or control your symptoms. Gateway to Wellness is a six-week program, you will learn how to make informed choices to ask your physician for that prescription and Satisfaction will be offered with two different You may need about lifestyles and medical care. for a will learn a physical therapist orIn rehabilitationfor couples You referral to schedules this fall. a this program physician exercises that are safe and practice setting may need to educate the therapist aboutlearnAs Dr. affected by MS, participants will MS. problem and you realistic personal goals so that you can achieve many PTstechniques, in sports medicine or how Kraft points out, solving are trained communication skills, a balance of play, work, family and self-care the aftereffects of accidentsprogram will be held their to deal with and much more. The or stroke. Ask about activities in your life. Request anexperience with MS. Its appropriate2010 in Gaylordcontact the application November 5 & 6, to invite a PT to with Doug by calling 1-800-344-4867 option #1 or send Societys Professional Resource Centeras facilitator; and repeated Schwentor, LMSW at HealthProf_info@nmss. an email to christy.bomba@mig.nmss.org more about MS. November 13, 2010 in Grand org to learn on Saturday, Bay City - Six Monday Evening Sessions Blanc. Watch for details and registration your Its also appropriate to develop an exercise program that tsin a Aug. 16 - Sept. 27, 2010 5:30 p.m. to 7:30 p.m. brochurepersonally. The Illinois researchers lifestyle and appeals to you mailed early this fall. Grand Rapids - Sixin 1997 Evening Sessions on exercise, not formal physical therapy sessions. Mary, diagnosed Thursday analyzed studies A program for those with more advanced Sept. 2 - Oct. 7, 2010 6:30 p.m. to 8:30 p.m MS and caregivers/carepartners of those
LIVING WITHSix Monday Evening Sessions Royal Oak - MS

Courtesy of Moore, Ink.

Sept. 20 - Oct. 25, 2010 6:30 p.m. to 8:30 p.m.

with MS is being planned. If you are a person WHERE TO FIND

READCenter Pool, 1125 CivicIT INDr., City Civic ALL ABOUT Center Traverse City. Ten Saturday sessions held SOCIETY BROCHURES Sept.

MS Aquatics is available at the Traverse

11, 2010 - Nov. 13, 2010, 9:50 a.m. to 10:40 a.m. include guided recently diagnosed, or managing Whether yourewater exercise. Participants do not need to know symptom, the Society offers an old friend of ahow to swim. Caregivers are invited to on a range as helpers. No registration brochures participateof issues related to MS. fee, funded by Tharp Memorial. experts in These brochures are reviewed byCall 800-3444867, option 1 for more for the most MS and regularly revised information.accurate information possible. Mens Night Outfor men with MS will be held in Farmington Hills in 2009 include Some brochures updatedon Friday, September 17, 2010 from 6:00 p.m. - Sclerosis and Living with MS; Multiple9:30 p.m. A night of information and camaraderie will feature Your Emotions; Research Directions in Dr. Win-Win Approach to Reasonable MS;David Burks presenting Management of Bladder and Sexual Issues in Thought: MS Accommodations; Food for Men with MSand followed by Guide for Caregivers; Solving Nutrition; Asocialization, snacks, and games including Problems; and Depression and Cognitivepool, air hockey, bubble hockey, ping pong, a wide screen tv, and number of Multiple Sclerosis. In addition, amore. $10 per person fee includes pizza, Spanish. Adems, brochures are now available inbeverages, and snacks. Call 800-344-4867, en espaol. tenemos disponibles folletosoption 1 for more information.
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with MS who received this MS of Society You can read or download PDFsConnection, a brochure will come in the mail. If you know brochures at nationalMSsociety.org/brochures. of call 1-800-344-4867 for who copies. For Ora caregiver/carepartner printwould like a brochure for this program, please have them easy searching, brochures are divided into call Sue at 800-344-4867, option 2, Newly eight categories: General Information,ext. 232. Diagnosed, Employment Issues, Staying Well, Managing Specic Issues, Managing Major Changes, For Children & Teenagers and Informacin en Espaol. You can also download WELCOMES a PDF catalog with brief descriptions of all the YOUR WORK publications the Society offers clients.

EXTRA! EXTRA!
MSWorld, regularly updated with breaking One brochure the Societys online partner, invites you to share your stories, poems news is Disease-Modifying Drugs. The online and (nationalMSsociety.org/DMD) version artwork, and to meet your peers through most recent information includes themessage boards and chat possible on therooms. Membership in this global Betaseron, disease-modifying drugs Avonex, online Copaxone, Novantrone, Rebif and Tysabri. community is free and confidential. Join Thetoday at msworld.org. are taken, their booklet covers how they benets, side effects, and how to pay for them. Check back regularly for new reports on DMDs.
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WAYS TO GIVE

REMEMBER THE OCCASION WITH A GIFT

BY SUSAN GOLDSMITH

I have everything a 40-year-old babe could want or need. I have wonderful family and friends who love me, so no gifts please. If you would like, please consider making a donation to the MS Society. My mother was diagnosed with MS 19 years ago. She continues to wage a courageous battle. There is a cure. It can be beaten. All it takes is funding. Since Jessicas dad Bill will not be there to walk her down the aisle, Jessica and Rob would be honored by your donation to the National MS Society in his memory. With your help, our wedding could help some other little girls father be around to walk her down the aisle. Susan Goldsmith is the director of the Golden Circle program for the Society.

Honor a loved one or celebrate a special day with a gift that will make a difference for people living with MS. Creating a tribute or memorial fund to benefit the National MS Society can make your special occasion unforgettable. Heres how to do it. Go to nationalMSsociety. org and click the Donate button to create a fundraising Web page. Personalize your page with photos and stories. Then e-mail invitations to friends and family to visit your page, make an online donation and sign the guestbook. Its an easy and accessible way to remember a loved one, recognize an accomplishment or milestone or just to say thank you. People who have already set up Society pages left these inspiring messages: Grandma Ann has always been giving to those around her. So, it is in this spirit of giving and nurturing that we ask you that in lieu of gifts for Anns 90th year, wed like you to give a donation to MS in her honor!
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LOOKING FOR A WAY TO MAKE A DIFFERENCE?

The Helping Hands Programa grassroots fundraising effortneeds volunteers. All you need to do is call 866-675-4787 and say that youre interested in the Helping Hands Program and give the code name Kit. You will find out how to write a note to friends, loved ones and co-workers, asking them to join the MS movement by making a contribution. The movement to end MS grows with every letter mailed! And funds raised make an immediate impact in this chapter. Call today!

FUNDRAISING

Theres still time for YOU to

JOIN THE MOVEMENT!

Team One Credit Union (pictured above) is just one of the more than 650 teams that registered for Walk MS this year. Team captain Lynne Kindy recruited over 85 participants and volunteers as part of the Team One Credit Union team that walked in Frankenmuth.

WALK MS: THE RALLYING POINT OF THE MS MOVEMENT

Thousands of people participated in Walk MS at eleven locations across Michigan in May and June and to date have raised over $900,000 for the National MS Society. Thank you to all of our participants and volunteers for your support! 93 cents of every dollar you raise goes directly to our mission. Please continue your fundraising efforts throughout the summer and help us to reach our $1.2 million fundraising goal. The deadline to submit any additional pledges and to qualify for prizes is September 30, 2010. NEW FALL WALKS! Two more Walk MS events are coming up that you can be a part of: September 11th in Grand Haven

September 12th in Milford at Kensington Metro Park. Visit www.walkmsmi.org to register for Walk MS or to make a donation to a participant. For more information call 1-800-FIGHT MS.

MAKE ONE DAY OF GOLF A BIG DAY FOR PEOPLE WITH MS

Celebrating 20 years in 2010, the MS Longest Day of Golf event has generated over $3 million to help create a world free of h Anniversary 20 t multiple sclerosis (MS). The event challenges even the most seasoned golf enthusiasts to play as many holes of golf during one day as possible FOR FREE and in return raise funds that will support MS research and MS client programs and services in Michigan.
TOLL FREE NUMBER 1 800 344 4867 | 13

FUNDRAISING

Over 70 foursomes hit the links in the month of May and got the MS Longest Day of Golf off to a great start. Registration is open for September and theres still time for you to sign up and help us reach our goal of raising $130,000. Form a team, pick a course, and golf all day! Our host courses have generously donated their greens fees, though some cart fees apply. A $125 fundraising minimum is required for each golfer. To register, visit our website: www.nationalMSsociety.org/mig or call 1-800-FIGHT-MS.

BIKE MS: THE PREMIER FUNDRAISING CYCLING SERIES IN THE NATION

While the Bike MS Ride is in full gear theres still time to sign up and take the ride of your life! Two Bike MS rides are coming up this fall and we would love to see you there: Saturday, September 11th Fall Breakaway Ride at Island Lake Recreation Area Mountain Bike riders may choose from the 5 and 9 mile loops or combine them and continue to ride all day between 9 am and 3 pm. For those who prefer to ride on paved roads, check out the 12 and 24 mile routes that will take you through

the scenic parks of Island Lake Recreation Area and Kensington Metro Park. All routes begin and end at Dodge Pavilion. A light BBQ lunch will be provided to all participants and volunteers at this one-day ride. NEW! September 25th & 26th Bavarian Breakaway Ride in Frankenmuth Cyclists may choose to ride one or two days on this figure eight route which offers two different cycling routes. Each day will start and finish in beautiful Frankenmuth, Michigans Little Bavaria. This will be a great event for the whole family whether you are cycling or decide to enjoy the citys attractions and great shopping. The Harvey Kern Pavilion will serve as the events start/finish location as well as the site for a dining experience on Saturday night courtesy of Frankenmuth Brewery. Route Length: 30, 50, 75 and 100 miles Saturday and/or Sunday. Visit www.bikemsmi.org for more information and to register or call (517) 646-0807 There is a minimum $250 fundraising pledge requirement per rider in addition to a

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registration fee. First time participants may register for FREE with our Ticket to Ride promotion by entering the discount code: migt2r10 when registering.

YOU CAN HELP US WELCOME BACK THE DA VINCI AWARDS!

The Chapters da Vinci Awards event took a hiatus in 2009 due to the economy, and we are excited to announce that the Awards are returning in 2010. The event is all about innovation specifically that which helps the millions of people across the globe with a disability. Innovative assistive technologies play an important role in helping people overcome physical limitations, and each year, the da Vinci Awards recognizes the most innovative developments and research in adaptive and assistive technology. This is the only awards program in the world recognizing the broad spectrum of assistive technology in the marketplace. Along with over 300 attendees, 15 finalists in five categories will gather on September 30th, 2010 at the Henry Ford Museum to find out if they won the prestigious 2010 da Vinci Award for their respective category. The categories are: Communication/Educational Aids, Environmental Adaptation/Daily Living or Work Aids, Prosthetics/Orthotics/Controls, Transportation and Mobility, and Recreation and Leisure. We invite you to join us at the event as a nominee or as a guest. Nominations for the 2010 da Vinci Awards are being accepted through July 31st, 2010 and tickets to attend the event are on sale now!

As a new da Vinci Awards sponsor, Ability Magazine is providing our readers with free digital subscriptions. Get yours by logging onto www.comp.abilitymagazine.com. Use coupon code: daVinci. You can do this every other month to receive each new volume. For more information go to www.davinciawards.org or call Bill Pikarski at (248) 936-0341.

THE NATIONAL MS SOCIETY MICHIGAN CHAPTER IS ON FACEBOOK

Want more contact with events, programs & services, and with other people living with MS? The National MS Society, Michigan Chapter is on Facebook! Search for the following pages to connect with us: National Multiple Sclerosis Society, Michigan Chapter (www.facebook.com/nmssmi) Bike MS Official Michigan Chapter Walk MS Official Michigan Chapter MS Longest Day of Golf da Vinci Awards MS Awareness Week
TOLL FREE NUMBER 1 800 344 4867 | 15

21311 Civic Center Drive Southfield, MI 48076-3911

Mailing Label Changes

Please check the appropriate box below, correct the label then return to National MS Society, MI Chapter q Name change or misspelled q Address change q Remove from mailing list q Received more than one copy q Please send me my MS Connection via e-mail. My e-mail address is: ____________________________

EQUIPMENT CLASSIFIEDS

Pride Scooter used very short time with power seat in excellent condition $1000 or best offer. Everest Jennings Wheel Chair used very short time $200 or best offer. Shower Seat new never used $25.00. Two Walkers $25.00 each. Call Josephine at (586) 939-8521. Pride Victory Scooter. Candy Apple red. Three wheels. Basket, headlight. 350 pounds weight capacity. New battery up to 25 miles per charge. Asking $600. Call Jim at (734) 459-1480. All-terrain Power Wheelchair. Extreme 4x4 by Vestil Mfg. Four-wheel drive with wide, knobby tires. Headlights, joystick, Roho Quadtro cushion, camouflage housing. Seat tilts and elevates. Used very little. $10,000, or best offer. Call Anne at (989) 644-3380 or cell (989) 3391803

Amigo Scooter excellent condition $800.00. Call Bertha at (313) 924-5349. Walk-Aide Neuromuscular Stimulator to help with drop foot. Used one month, excellent condition. Includes extra electrodes. Paid $4,500, asking $3,500. Call Mary at (231) 894-1313. Bedside Commode $40. Four Wheel Walker with seat $75. Full Electric Wheelchair $2,000. Three Wheel Scooter $2,000. Four Prong Cane $10. Hospital Bed with electric head and foot $750. Receptacle Walker $8. All prices are negotiable. If you get an answering machine please leave name, number and message slowly. Call Florence at (586) 756-9591.