Fulfilling Potential

ecdp response, March 2012 Part 4/4: Annexes

This document forms part four of four of ecdps response to the Office for Disability Issues Fulfilling Potential discussion. The Annexes below describe how ecdp worked with members to coproduce a response and some of the key outputs which resulted from this work. All four parts of the report are available on the ecdp website: www.ecdp.co.uk. For further information on any element of these documents, please contact Rich Watts (Director of Policy & Development, ecdp) on rwatts@ecdp.co.uk or 01245 392 324.

Annex 1 How this response was created

Following ODIs announcement of the Fulfilling Potential discussion, ecdp has worked with members to collect their lived experience and co-produce a response.

ecdp Fulfilling Potential focus groups

Through four focus groups, including 80 disabled people from all impairment groups and of all ages, we held detailed discussions with people from across Essex: Focus group 1: a pan-impairment group for disabled and older people (aged16-80). This group was attended by 15 participants Focus group 2: a group for young disabled people and people with learning disabilities, attended by 25 people Focus group 3: a pan-impairment reference group who advise ecdp on issues surrounding the Right to Control in Essex. The reference group has 10 regular contributors Focus group 4: a pan-impairment group formed of 30 members of ecdps staff drawing on their own lived experience and that of supporting other disabled people in Essex. Various outputs from the above focus groups are also available online, as described below: The stories of three focus of the focus groups are available on our website: http://www.ecdp.org.uk/home/2012/3/2/fulfilling-potential-the-story-so-far-part-iii.html Photos from the events are available from ecdps Flickr account: http://www.flickr.com/photos/essexcdp/ Audio recordings are available on Audioboo: o http://audioboo.fm/rich_w o http://audioboo.fm/fayesavage Three videos are available on YouTube: o http://youtu.be/bv_3Tc5k1r0 o http://youtu.be/9xVac02Ji34 o http://youtu.be/hD-wk9BIdXQ

ecdp Fulfilling Potential survey

We launched an online survey to inform our response, which ran for three months. The survey was completed by 44 individuals from across Essex, who shared their lived experience of the key areas

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outlined in the Fulfilling Potential discussion document. A more detailed demographic breakdown of these individuals is provided below. Please tell us which gender you identify as: Female 64.7% Male 29.4% Other 0% Prefer not to say 5.9% Please give details of your sexuality: Heterosexual 88.6% Homosexual 2.9% Bisexual 2.9% Prefer not to say 5.7% Please give details of your impairment (if you have multiple impairments, please tick all that apply): Mental health condition 31.4% Learning disability 22.9% Physical impairment 57.1% Sensory impairment 8.6% Long term health condition 48.6% Prefer not to say 2.9% Please give details of your ethnic group: Black African 5.6% White British 77.8% White Irish 2.8% White (any other background) 8.3% Prefer not to say 5.6% Please tell us which area of Essex you live in: North East Essex 19.4% North West Essex 2.8% Mid Essex 11.1% South West Essex 5.6% South East Essex 22.2% Thurrock 0% Outside of Essex 30.5%

Other reports
ecdp also drew on previous work carried out with disabled people in Essex, which are highlighted below. Throughout this report we have also drawn on the considerable contribution of disabled people in Essex to these other key pieces of work. The number of individuals who have contributed through surveys, focus groups and meetings to these other pieces of work are listed below: Survey respondents 404 Focus group participants 76 Public meeting attendees 140

When all of our engagement mechanisms are included, therefore, we estimate we have had direct contact with approximately 650 disabled people in Essex and beyond in informing this response to Fulfilling Potential. Fulfilling Potential ecdp response, March 2012 Part 4/4 : Annex Page 2 of 5

Access to Work and Driver Support ecdp Lived Experience Report (August 2011) http://www.ecdp.org.uk/home/2011/8/15/disabled-people-may-be-prevented-from-workingdue-to-governm.html Big Care Debate ecdp response (November 2009) http://www.ecdp.org.uk/home/2009/11/7/ecdpcontributes-to-the-big-care-debate.html Changes to DLA and ILF ecdp survey (July 2011) http://www.ecdp.org.uk/home/2010/7/23/results-of-ecdps-survey-on-dla-ilf.html Caring for Our Future ecdp member engagement (November 2011) http://www.ecdp.org.uk/home/2011/11/8/contribute-your-lived-experience-at-ecdpsagm.html Caring for our Future ecdp response (December 2011) http://www.ecdp.org.uk/home/2011/12/6/ecdp-response-to-caring-for-our-future.html Disability Hate Crime ecdp Lived experience report (May 2011) http://www.ecdp.org.uk/home/2011/5/25/disability-hate-crime-in-essex-and-beyond-areport-by-ecdp.html Disability Hate Crime: ecdp member engagement (November 2010) http://www.ecdp.org.uk/home/2010/11/5/your-views-on-hate-crime-and-safeguarding.html DLA reform Consultation ecdp response (February 2011) http://www.ecdp.org.uk/home/2011/2/16/dla-reform-consultation-ecdp-response.html Modernising Commissioning Green Paper ecdp response (December 2010) http://www.ecdp.org.uk/home/2010/12/23/modernising-commissioning-green-paper-ourresponse.html PIP draft criteria and regulations ecdp final report (August 2011) http://www.ecdp.org.uk/home/2011/8/31/ecdp-members-share-final-views-on-pip.html Personalisation: the experience of services users (June 2011) http://www.ecdp.org.uk/home/2011/6/7/personalisation-the-experience-of-serviceusers.html Right to Control Consultation ecdp response (September 2009) http://www.ecdp.org.uk/home/2009/10/5/right-to-control-consulation-ecdp-response.html Specialist Disability Employment Programmes Consultation ecdp submission (October 2011) http://www.ecdp.org.uk/home/2011/10/18/ecdp-response-to-getting-in-staying-in-andgetting-on.html

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Annex 2 About ecdp

ecdp is an organisation run by and for disabled and older people. Established in 1995 our origins are firmly rooted in a belief that the voice of disabled and older people, both as individuals and collectively, is vital if the lives of disabled and older people are to be enhanced. Our vision is to enhance the everyday lives of disabled and older people in Essex and beyond. We do this by: Actively involving and engaging with disabled and older people Delivering a range of high quality services, projects and programmes Working in partnership with a range of stakeholders in the public, private and voluntary sectors Shaping and influencing strategy, policy and practice Creating a professional, effective and efficient organisation that can and does deliver. We provide a wide range of support, information, advice and guidance services, primarily in the field of social care. We currentlyi provide Direct Payment / Personal Budget support services to approximately 3,900 clients in 3 services across 4 local authority areas. We are also closely involved in the design and delivery of the Right to Control Trailblazer in Essex. As an organisation we have 43 staff, approx 1.7m turnover, nearly 190 volunteers and approximately 1,700 members of all ages and impairment groups.

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As of December 2010