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Joint Research Centre The European Commission’s in-house science service www.jrc.ec.europa.eu Serving society

Joint Research Centre

The European Commission’s in-house science service

Centre The European Commission’s in-house science service www.jrc.ec.europa.eu Serving society Stimulating innovation
Centre The European Commission’s in-house science service www.jrc.ec.europa.eu Serving society Stimulating innovation

www.jrc.ec.europa.eu

Serving society Stimulating innovation Supporting legislation

IPTS : Part of Joint Research Centre of the EC: 7 Research Institutes across Europe
IPTS : Part of Joint Research Centre of the EC: 7 Research Institutes across Europe

IPTS: Part of Joint Research Centre of the EC: 7 Research Institutes across Europe

Mission: “to provide customer- driven support to the EU policy- making process by developing science-based responses to policy challenges that have both a socio-economic as well as a scientific/technological dimension”

responses to policy challenges that have both a socio-economic as well as a scientific/technological dimension”
ISG*ISARC2012 Eindhoven, 27th June 2012 ICT-enabled services for carers and care: lessons from policy and

ISG*ISARC2012

Eindhoven, 27th June 2012

ICT-enabled services for carers and care: lessons from policy and innovation

for carers and care: lessons from policy and innovation Stephanie Carretero, James Stewart & Clara Centeno

Stephanie Carretero, James Stewart & Clara Centeno

Joint Research Centre (JRC) Institute for Prospective Technological Studies The European Commission’s Research-Based Policy Support Organisation

Institute for Prospective Technological Studies The European Commission’s Research-Based Policy Support Organisation
Relevance of the research Informal carers: • Assumes today between the 50 to the 90%

Relevance of the research

Informal carers:

Assumes today between the 50 to the 90% of LTC.

Little recognition of their role.

Poor awareness of their needs and access to formal services.

ICT as a more effective enabler of social support and coping strategies.Poor awareness of their needs and access to formal services. DAE and EIPAHA support the need

DAE and EIPAHA support the need of empowerment and inclusion of informal carers through the identification and deployment of ICTs.and access to formal services. ICT as a more effective enabler of social support and coping

need of empowerment and inclusion of informal carers through the identification and deployment of ICTs. 28
IPTS research on ICT for domiciliary care Exploratory research on ICT for carers (2008-09) 1)

IPTS research on ICT for domiciliary care

Exploratory research on ICT for carers (2008-09) 1) What ICT applications / tools are used
Exploratory research on ICT for carers (2008-09)
1) What ICT applications / tools are used to
support informal caregivers of older people?
2) Opportunities and barriers for ICT use?
3) Potential policy options?
Focus on informal caregivers in general, and in particular for
migrants

Potential of ICT for informal care: need of more evidence- based data on impact, scalability and business models

1)

2)

CARICT (2011)

how ICT can support the creation of a sufficient number of available (motivated) and skilled informal caregivers and family employed care workers? how technology-enabled services can allow above caregivers to:

- better engage with care recipient, - improve their quality of life and - improve quality and efficiency of care?

Funded by DGINFSO and JRC

Research team:

IPTS and European Centre

and - improve quality and efficiency of care? Funded by DGINFSO and JRC Research team: IPTS
Research Methodology 12 Countries: UK, IE – AU, FR, DE – SE, FI - IT,

Research Methodology

12 Countries: UK, IE – AU, FR, DE – SE, FI - IT, ES –
12 Countries: UK, IE – AU, FR, DE – SE, FI - IT, ES – HU, CZ, SI
European Center for Social Welfare policy and Research + 4
National research organisations: CIRCLE (UK), INRCA (IT),
Institute of Sociology of Academy of Sciences (HU), Swedish National Family
Care Competence Centre, and Eurocarers
Research methods:
1)
2)
3)
4)
Mapping of initiatives in 12 MS through a literature review
Development of an Multi-Level Impact Assessment Methodology (QT, QL)
In depth analysis of innovation processes and impact through interviews with
initiative coordinators and documents analysis
Expert (June 2011) and policy (Nov 2011) validation workshops with 42
experts
Types of ICT:
EVALUATION OF:
Cross analysis of impact, success factors, drivers and challenges

Geographical coverage Beyond pilot status

Independent living, Information and learning, Personal support and social integration for carers, and care coordination

Independent living, Information and learning, Personal support and social integration for carers, and care coordination
Main findings 1.- A first analysis of 52 ICT based initiatives for informal care in

Main findings

1.- A first analysis of 52 ICT based initiatives for informal care in this research pointed to the existence of a wide range of successful examples of ICT-based support for caregivers across Europe.

pointed to the existence of a wide range of successful examples of ICT-based support for caregivers

CARICT (52) initiatives in 12 countries

CARICT (52) initiatives in 12 countries MAPPED INITIATIVES BY TYPE OF CARE REGIME AND COUNTRY Care
CARICT (52) initiatives in 12 countries MAPPED INITIATIVES BY TYPE OF CARE REGIME AND COUNTRY Care

MAPPED INITIATIVES BY TYPE OF CARE REGIME AND COUNTRY

Care regime

Country

Mapped initiatives

 

Ireland

3

Anglo-Saxon (liberal)

United Kingdom

7

Overall number per care regime

10

 

Austria

4

France

6

Continental

Germany

6

(corporatist)

Overall number per care regime

16

 

Sweden

5

Scandinavian (Nordic)

Finland

3

Overall number per care regime

8

 

Italy

5

Mediterranean

Spain

4

Overall number per care regime

9

 

Hungary

5

Czech Republic

2

Eastern European

Slovenia

2

Overall number per care regime

9

 

Total

52

UK France Sweden Slovenia Leeds City Council Telecare Service Cyber France My Joice TV Red

UK

France

Sweden

Slovenia

Leeds City Council Telecare Service

Cyber France

My Joice TV

Red button telecare

Carers UK online forum:

Salveo

ACTION

My healthcare personal reminder

HFT (formerly Home Farm Trust)

Maison Vill'age

Family Care Support Portal (Anhörigstödsportalen)

Italy

Book Your Own Breaks

Forum aidants

GAPET

CAMPUS

Telecare Scotland

Web-napperon

IPPI & AMIGO

E-CARE

Just Checking

Open and distance learning

Hungary

C.A.S.A. (Care Assistants Search Agency)

Nottingham Community Housing Association

Germany

Skype care

Ring Project (Transferring supports for caregivers)

Ireland

SEKIS

Emergency alarm

T-Seniority Project

Fold Group

Pflege Wiki

MOHANET

Spain

Try It

Vitaphone

Életvonal 24

Andalusian Telecare Service

Emergency Response Ltd

SOPHIA

Body Guard

Un cuidador, dos vidas (A caregiver, Two lives)

Austria

PAUL

Czech Republic

Ser Cuidador (Being a caregiver)

Hilfswerk Notruf

Alzheimer Blog

Seniors' Telephone – Crisis Helpline (Zivot 90)

Tele-gerontologia

Alzheimer Website

Finland

Careion Emergency Care

 

n@tzwerk pflege

Vivago Watch

   

Plattform für pflegende Angehörige

The CaringTV (Hyvinvointi TV)

   
Vivago Watch     Plattform f ü r pflegende Angeh ö rige The CaringTV (Hyvinvointi TV)
Independent living TELECARE SCOTLAND • One of a range of national initiatives to improve health

Independent living

TELECARE SCOTLAND

One of a range of national initiatives to improve health and care services (JIT, with 70m GBP budget; 20m investment in on Telecare)

• Replacement of institutional care with housing including various sensors and alarms, and mobile care staff.

• Part of a range of ICT-based services to dependents and carers

•

Partnership with carer organisations and local authorities

• Service rolled out over 17 regions and now integrated into ‘NHS24’service (new change funding programme on aging in place)

• Considerable innovation and learning over 5 year period. • 2007 onwards, over 43,000 people accessed a telecare service, with more than 30,000 still receiving one in March 2011

. The value of benefits arising from telecare expenditure from 2006 -2011 approx. £79m. Most savings split between avoidance of care home admissions, and avoiding hospital inpatient stays.

approx. £79m. Most savings split between avoidance of care home admissions, and avoiding hospital inpatient stays.
approx. £79m. Most savings split between avoidance of care home admissions, and avoiding hospital inpatient stays.
SOPHIA (DE) SO ziale P ersonenbetreuung – H ilfen I m A lltag After State

SOPHIA (DE)

SOziale Personenbetreuung – Hilfen Im Alltag After State funded R&D phase (1.5m EURO) SOPHIA founded in 2005 by CUP 2000 in partnership with Northern Bavarian housing company (THS Wohnen GmbH) and operates in five German states Service to elderly with limited mobility with low-moderate care need Package of telecare,safety wristband with monitoring function, GPS monitoring, PC-TV terminal to service centre. SOPHIA Franken involves about 100 staff inc 85 volunteers in service centres who are “godparents” of the users Development of a platform of services to older people Co-payment financing, with basic insurance cover. Reduced demands and stress on family members who often live at a distance

financing, with basic insurance cover. Reduced demands and stress on family members who often live at
financing, with basic insurance cover. Reduced demands and stress on family members who often live at
Carers Information and help Plattform für pflegende Angehörige, Central government funded website to support carers

Carers Information and help

Plattform für pflegende Angehörige, Central government funded website to support carers with over 60000 users a year. Austria

to support carers with over 60000 users a year. Austria Carers UK run a carers web

Carers UK run a carers web and phone support service Total charity budget 3.5m GBP from donations and consultancy

Austria Carers UK run a carers web and phone support service Total charity budget 3.5m GBP

Online Training & Courses (England)

Online Training & Courses (England) Caring with Confidence National (NHS) initiative seeking to provide training to
Online Training & Courses (England) Caring with Confidence National (NHS) initiative seeking to provide training to

Caring with Confidence National (NHS) initiative seeking to provide training to 10.000 carers over 3 years Linked to national Carers Direct help line (cost 2.7m GBP)

→ Local group sessions

→ Workbooks for self-study

→ Online study sessions

→ Content/courses for BME

carers

City & Guilds – Learning for Living

Online Learning Programme for carers:

(1)

Learning resource

(2)

nationally recognised (level 2) qualification: ‘Certificate in Personal Development & Learning for Unpaid Carers’

since 2004, around 700 participants in 2009

Personal support and social integration Skypecare - Hungary Pilot use of Skype on a PC

Personal support and social integration

Skypecare - Hungary

Pilot use of Skype on a PC for frail older people at home to talk to distant relatives Initiated by a University, Care charity and small business Av. 84 year-old frail, non-IT users, using home care service, with distant relatives and weak social network

Reluctance by support by large firms and young social workers. Adaptation of technology and support of volunteers, specially young people, family and formal carers made service possible Enthusiasm, connection with distant family, introduction to new technology improved wellbeing and autonomy of older people, reducing need for care Builds intergenerational solidarity

new technology improved wellbeing and autonomy of older people, reducing need for care Builds intergenerational solidarity
Care coordination Many services to enable families friends and volunteers to share and coordinate caring

Care coordination

Many services to enable families friends and volunteers to share and coordinate caring responsibilities i.e. private social networking tools for families of dependent people:

ShareCARE – Netherlands

Caring Bridge,Carecentral, SharetheCare, Lotsa Helping Hands - USA

Low cost or free to end users (0-30 euros/month)

Caring Bridge,Carecentral, SharetheCare, Lotsa Helping Hands - USA • Low cost or free to end users
Caring Bridge,Carecentral, SharetheCare, Lotsa Helping Hands - USA • Low cost or free to end users
2.- Positive impact on health of informal carers and the care system ICT – based

2.- Positive impact on health of informal carers and the care system

ICT – based services for domiciliary care :

Increase the quality of life for older people and carers,

Increase the access to qualified long- term care,

Allow the integration of health and social care services, empowering carers, to ensure adequate informal long – term care, and

Help to generate direct savings that contribute to the sustainability of the system.

informal long – term care, and • Help to generate direct savings that contribute to the
3.- SUCCESS FACTORS • The involvement of end-users, which includes carers, elderly people and formal

3.- SUCCESS FACTORS

The involvement of end-users, which includes carers, elderly people and formal care staff, in the design of services, complemented by training in digital and care services competences;

The progressive integration of the ICT based service inside the existing or traditional social and health care system;

The cooperation among stakeholders; being especially relevant the engagement of non- profit organisations

The promotion of the involvement of different kind of stakeholders acting as intermediaries in the delivery chain of ICT based services for informal carers.

The exploitation of existing ICT and digital inclusion infrastructure,

The development of policies that support decisions makers and providers at multiple levels and functions.

The policy role is central for the success of the transferability

and providers at multiple levels and functions. • The policy role is central for the success
4.- Policy relevance Policy leadership to put in place the combination of complementary already existing

4.- Policy relevance

Policy leadership to put in place the combination of complementary already existing support and funding programmes for stakeholders is at the core of the policy recommendations for the development, implementation and scalability for ICT based services for domiciliary care.

policy recommendations for the development, implementation and scalability for ICT based services for domiciliary care.
5.- The relevant role of third Sector relevance. It appear repeatedly relevant for the success

5.- The relevant role of third Sector relevance.

It appear repeatedly relevant for the success of the initiatives to recognise the role and to support the value of the participation of the third sector and of volunteering in the provision of ICT based service for informal care.

of the participation of the third sector and of volunteering in the provision of ICT based
Conclusions 1.- Social innovation for informal care is taking place. Existence of running and successful

Conclusions

1.- Social innovation for informal care is taking place. Existence of running and successful initiatives of ICT based initiatives for domiciliary care across Europe that serves as good practices to stress and support the role of informal carers.

2.- Impact on the quality of life, of care and sustainibility of the systems.

3.- The involvement of end-users in all the phases of the development of the ICT services is central for the success of the initiatives.

4.- Policy leadership with the combination of already existing and new funding and supporting programmes is the main role to be taken by policy-makers

5.- The third sector and volunteers are acquiring a main role for the sustainability of these services.

by policy-makers 5.- The third sector and volunteers are acquiring a main role for the sustainability
IPTS available reports • Long term care challenges in an Ageing Society: The role of

IPTS available reports

Long term care challenges in an Ageing Society: The role of ICT and Migrants – Results from a study on England, Germany, Italy and Spain (2010), integrates the results of the following reports:

•

The potential of ICT in supporting Domiciliary Care in England (2010)

The potential of ICT in supporting Domiciliary Care in Germany (2010)

The potential of ICT in supporting Domiciliary Care in Spain (2010)

The potential of ICT in supporting in supporting Immigrant Care Workers in Domiciliary Care in Italy (2010)

CARICT: Analysis and Mapping of 52 ICT-based initiatives for caregivers, Deliverable 2.3 (2011)

CARICT: Final report containing case-by-case detailed description and analysis of selected 12 Good practices (2012)

•

Forthcoming Final Policy Report (2Q2012)

•
practices (2012) • Forthcoming Final Policy Report (2Q2012) • http://is.jrc.ec.europa.eu/pages/EAP/eInclusion.html

http://is.jrc.ec.europa.eu/pages/EAP/eInclusion.html

• Forthcoming Final Policy Report (2Q2012) • http://is.jrc.ec.europa.eu/pages/EAP/eInclusion.html
Thank you very much for your attention! Stephanie.carretero-gomez@ec.europa.eu
Thank you very much for your attention!
Stephanie.carretero-gomez@ec.europa.eu
http://is.jrc.ec.europa.eu/pages/EAP/eInclusion.html