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HISTORY OF THE DISABILITY LEGAL

ADVOCACY NETWORK

Curt Decker
Executive Director, NDRN
Amanda Mays
Disability Advocacy Specialist, NDRN
National Disability Rights Network

Vision: NDRN has a vision of a society where people


with disabilities have equality of opportunity and are
able to participate fully in community life by exercising
choice and self determination.

Mission: NDRN’s mission is to promote the integrity


and capacity of the P&A/CAP national network and to
advocate for the enactment and vigorous enforcement
of laws protecting civil and human rights of people with
disabilities.
NDRN Activities

•Trade Association

•Training and Technical Assistance Provider

•Quality Assurance

•National Disability Rights Leadership

•Contractor and Fundraiser for Members


PADD
PATBI
$41M
$3.3M
PAVA
$5.3M

PAIR
$18.
1M
Principles of Protection & Advocacy Systems

CLIENT-DIRECTED

LEGALLY BASED

INDEPENDENT ADVOCACY

CONSUMER-MANAGED
Priority Setting

•Consumer Involvement
a)Board of Directors
b)PAIMI Advisory Council
Continuum of Remedies
Authority

“Pursue legal, administrative


& other appropriate remedies”

• Range of Issues

• Ranges of Remedies

• Ability to Respond

• Access Persons, Records, Facilities


PADD

• 1975 – Developmental
Disabilities Assistance
and Bill of Rights Act
includes Protection &
Advocacy PADD
• 1977 – Planning $41.0M
grants to State
($20,000)

• 1978 – Protection &


Advocacy agencies
begin operations with
State Designations
PAI
MI

• 1984 – Client Assistant Program (CAP)


reauthorized as formula grant program
CAP

• 1986 – Protection &


Advocacy for Mentally Ill
Individuals (PAIMI)
program enacted
(Institutions + 90 days)

• 2001 – Expansion of
PAIMI to community
PAIR
$18.1
M

• 1989 – Protection & Advocacy for Individuals Rights (PAIR) demos


PAI
R

• 1991 – PAIR program reauthorized to formula grant

• 1993 – PAIR trigger reached


PAAT

• 1993 – Assistive
Technology subcontracts

• 1998 – Protection &


Advocacy for Assistive
Technology (PAAT) funded

• 2004 – PAAT
Reauthorized
BS
PA

• 1999 – Ticket To Work/Work Incentives Act (TTWWIA) passes


S

• 2001 – Protection & Advocacy for Beneficiaries of Social Security


(PABSS) funded
PATBI

• 2001 – Protection and


Advocacy for Individuals
with Traumatic Brain PAT
Injury (PATBI) Authorized
BI
• 2002 – PATBI $3.3
Competitive Grants -
$1.5 million – 33 Awards M
• 2003 – PATBI moves to
formula
PAVA
$5.3M
VA
PA

• 2003 – PAVA funded at $2 Million

• 2004 – PAVA funding raised to $5 Million


History of Disability Legal Advocacy Network

• 1994 – Native American P&A established

• 2005 – NATIONAL DISABILITY RIGHTS


NETWORK

• 2005 – Katrina Aid Today - $5.4 million

• SSA Representative Payee Oversight project

• CLASS Act P&A


Special
Emergen Autis
Educati PAJJ
cy m
on
Prepared
ness
PADD PATBI
PATBI
$41M $2.97 M
$2.97M
CAP PAVA Class Act
$11.7M $4.72M M
$4.72 M

PAIM
PAIMI PAIR
PAIR PAB
PABS Veter
I
$34.0 $18.1M M
$16.489 SSS
$36.
M
ans
$8.6
$7 M
4M PAAT M
PAAT$4.
$4.45 M
Rep 3M
Payee
$1.4M
FY10 Primary Disability Data
# of Served % of Served
• Mental Illness 19,525 36.11%
• Mental Retardation 7,082 13.10%
• Autism 4,928 9.11%
• Orthopedic Impairments 4,413 8.16%
• Specific Learning Disabilities 3,702 6.85%
• Traumatic Brain Injury 2,659 4.92%
• Cerebral Palsy 1,729 3.20%
• Other Emotional/Behavioral 1,542 2.85%
• Hard of Hearing / Deaf 1,500 2.77%
• Blind / Visual Impairments 1,223 2.26%
• Neurological Disorders 1,143 2.11%
• Other Intellectual 1,004 1.86%
• Epilepsy 549 1.02%
• “Other” and All Others <1% 3,068 5.67%
* Data based on the73% of PPRs submitted.
Federal Government
WHAT CAN P&A’S HELP WITH?

• Special Education Advocacy


• Abuse and Neglect investigations
• Access to Service/Healthcare entitlements
• ADA accessibility issues
• Community integration and participation
• Employment, Housing and Transportation
MORE INFORMATION ABOUT NDRN

NDRN website: www.ndrn.org

Contact your P&A:


http://www.ndrn.org/en/when-to-contact-your-state-paa-cap.html
Questions and Comments